Hodgkin's Lymphoma Survivor Story | CC Webster, Stage IV | The Patient Story
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- เผยแพร่เมื่อ 16 ธ.ค. 2018
- CC Webster is Hodgkin's Lymphoma Survivor. This is her story.
She was 29 when she was diagnosed with stage IV Hodgkin lymphoma. She underwent 12 cycles of the ABVD chemotherapy regimen before the cancer was in remission. Hear from her as she talks about getting diagnosed, how to deal with the side effects, her hair loss and response, and relying on others for support.
You can find CC's entire story at The Patient Story: www.thepatientstory.com/cance...
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Background:
The Patient Story turns in-depth interviews from recent cancer survivors into a FAQ format-story along with timelines to give newly diagnosed patients and caregivers a sense of what their lives may look like in the upcoming months. Hear straight from the people who've already been through it.
TPS (formerly OneDavid) was started by Stephanie Chuang, a non-Hodgkin lymphoma survivor, who wants cancer patients and caregivers to get the information they need in a human way, not with medical jargon. Visit www.ThePatientStory.com for more.
If you would like to share a story, give feedback, or just say hello, we'd also love to hear from you! Please write us at support@thepatientstory.com.
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A message from our founder:
My name is Stephanie.
In 2013, I found a story that touched my heart: a group of friends were fighting to raise awareness about bone marrow donations for a young woman who'd been diagnosed with non-Hodgkin lymphoma. It had spread to her brain.
Nina was in dire need of a bone marrow transplant. She's of Asian descent, which narrowed her odds of finding a match (fewer people of the same race and ethnicity registered to donate).
The good news: she found a donor! The wife and mother of two is living happily. I couldn't be happier.
The "odd" news: I was diagnosed with the same cancer, same sub-type just three years later.
That motivated me to create The Patient Story: a company to help cancer patients and caregivers by giving them real answers from real people - people who've actually been through the experience.
Find more at www.thepatientstory.com
Where it all started: • The Patient Story | Wh...
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I just survived Hogkins lymphoma stage four, I was 16 when I was diagnosed and I’m now in remission at 17 after 7 long months of targeted chemo therapy, I am in remission
Chad, that is such great news! Incredible. We'll have to get your story some time. If you're interested, we have a get-to-know-you survey: thepatientstory.typeform.com/to/OJfTUC
Congratulations, Chad! I’m 30 years out from stage IVB Hodgkins...had chemo, radiation, surgery, etc. The treatments are even better now than ever. Stay strong, my friend!
What were your symptoms
@@ryanmiller5810 Severe itchy skin , insomnia and I had a very hard time breathing because of the tumors in my lungs
@@Chad-vi4zr You are one strong dude! I will always pray for your brother. May I ask what your blood count looks like initially? High white blood cells?
I had a different reaction when I found out! { “ This is it ! The final curtain call. I was 65 going on 105 ! Totally looking decimated! I had a great life I said to myself. I’m ready to go! “ } Forty-five days later ,, I’m still here. Starting my second cycle of chemotherapy for non-Hodgkin’s aggressive Lymphoma.
So glad you are getting care - I went through treatment for aggressive NHL as well. Hugs! -Stephanie
2018 i had it.
Survivor ?
I recently gave up that i would have my life back.
Chronic fatigue aged me 20 years.
Treatment saved my life, but i am not living.
Job, exercise, interests and family life. It all got reduced to 25 %.
I was alwas very stoic, but 4 years of this, cannot be explained to people. I wish you all well, and hope you avoid the fatigue.
I’m a 25 year survivor of stage IVB Hodgkin (called Hodgkin’s back then) lymphoma. I had the crazy regimen of MOPP/ABV, 6 cycles total. I’m glad to see you’re only required to do ABVD now! The mustargen was the hardest to deal with. I had my spleen removed and also had 8 weeks of radiation therapy. I took mega doses of vitamin C (like 50,000 mg per day!) I’m thankful to God for giving me a second chance at life and pray for anyone battling cancer. It’s not a walk in the park.
Thank you for this, this truly was amazing, I am about to embark on my journey to healing from this horrible disease but I know God will pull me through this in the name of Jesus. May God bless you and whoever is either going or will be going through this.
Emilio, thank you for your kind words for everyone! Please know we are thinking of you, too. -Stephanie
Lots of love to you Emilio…God bless stay well and strong!
Amen 🙏🏼 ❤
She's beautiful, I hope she is doing well and continues to be well
Thank you, Jonathan!
@@ThePatientStory are u doing ok?
You have your own personality!
You cannot be defined by anyone else!
U know who you are?
You are the lady that will change the way things are done!
I’ll be 73 next month and I just found out that I have a recurrence of my HL after 3 1/2 years. This time around I chose radiation. It was a punch in the gut the first time I was diagnosed and this time was a little easier to handle the unfortunate news. I trusted my team before and I trust them now. I believe I’ve got this and look forward to getting on with the treatments and move on once again.
Just got diagnosed last week. 25 years old. I’m pretty heartbroken. I have no symptoms but they found a tumor in my chest. Not even at the staging phase yet. Wish my luck yall 🙏
Danielle, thinking of you. Just know that you are not alone. ❤️ - Stephanie
Wish you the best! Im going through treatment as well stage 4 hodgkin lymphoma
i got diagnosed October 2021 and still on going chemotherapy. I have to undergo 12 cycles and on my 6th cycle already..
Side effects - FATIGUE.. sever body pain for 1 week then chemo again.
My chemo is every after 2 weeks. Its very exausting.. Still fighting to get through to finish my chemotherapy.
I was diagnosed one month ago, (after my insurance delayed it by denying a PET scan) found out it is Stage 4 a week ago, and start chemo in 6 days. Every 14 days for 2 months to start. Thanks for the advise on Acupuncture! Turns out my insurance will cover that. Plus all the other info. So grateful!
Hope you are well Danielle! 💖
I love this woman and find myself in her position. When my brain tumor was being treated, my Hodgkin's lymphoma was discovered. 🥺
How are you now?
God bless you. Are you feeling better now?
We would like to know about you, hope you are doing well!
Mine was discovered when a scan looking at my kidneys instead found an enlarged lymph node.
The lord wants you home!! Just like mee.. best wish and luck
Going through non Hodgkin’s at the moment !! My words I am currently living by ... “ don’t sweat the small things “
Rob, sending you positive vibes during your treatment. Couldn't agree with your mantra more!
I've been diagnosed with follicular lymphoma and thyroid carcinoma , I'm waiting to see such one they are going to treat first,I'm 82 and am very 😟
I'm glad that we have the Free NHS and 2 week wait system here in the UK. Once referred under the 2WW system, you wait no longer thsn 2 weeks before the next move or appointment. We also don't have to worry about searching for Drs / consultants / surgeons, as this is done by the NHS.
I am 25 years old and my mom has been diagnosed with non hodgkin lymphoom this week and this is the most difficult thing i am going through.
Don't worry, survival rate for NH Lymphoma is very high.
@@Harihar_Patel Thank you so very much. I sooo needed this. May you be blessed!!! A million and one THANK YOUS!!!!!!!!!!!!
She's so beautiful
Awesome message to all cancer fighters at the end of her testimonial! Let cancer be the catalyst that allows the new, stronger, galvanized, and more potent version of yourself to emerge. My non-Hodgkin's diagnosis helped to simplify and focus my life. It's one of the best things that have happened to me! (That said - I don't want to go through it again!) Bottom line: I think the mortality rate is still 100%, right? 😉 Don't just "go out" on your own terms, truly engage life in a loving and life-giving way! This lady's got it!
Couldn't agree more!
I need to fix this. Wish it was that easy. You could fix it with a lifestyle change. But, you doctor will take an entirely different approach.
Please tell me how you are. Good or bad x
Tracy, we are happy to say that CC continues to do well!
The first four minutes I was in disbelief. So in America even when you can afford healthcare there is no guarantee you’ll get it??? And you have to arrange it yourself??? That’s the most ridiculous dystopian shit I’ve ever heard. In the UK the NHS would get you started on treatment within the week and have a full medical team to support you without you having to make a single phone call. The system in the US clearly doesn’t function as well as people claim.
Hope she is doing well, no thanks to her endocrinologist
Isabella, thanks for the well wishes for CC!
Your statement isn’t totally correct! I found on November 12th of this year 2021 that I had a tumor, in my belly, the size of a football! Forty-five days later, I’m starting my “second cycle” of radiation chemotherapy tomorrow! You see, my healthcare provider did everything for me … from the moment I was admitted to the ER, to the installation of a nephrostomy bag the same day, to the transfer to a bigger hospital for the biopsy and installation of an IV portal …. to the transfer of an even bigger hospital (called the VA) to begin chemotherapy! It all happened in 7 days ! Those first seven days was horrible. So much so that I wanted to die! It was like going through the burning fires of Hell !
She is trying to get into the BEST places in the world asap. In the US treatment is usually quick and far better than the NHS!
Hi
My cousin has lymphoma and I know she’s gonna do this
Thinking of your cousin!
How are you Now
CC is doing well now! Check out her page for more of her story: www.thepatientstory.com/cancers/hodgkin-lymphoma/iv-cc
@@ThePatientStory great thanks
I will check
My brother is diagnosed with lymphoma cancer stage IV. :((( Please help my brother. We want him to live longer. ☹️🥺😭
Sheeren, sorry to hear about his diagnosis. We are not medical professionals - we are a community of cancer patients, caregivers, and survivors. Hopefully some of these stories help your brother through the quality of life issues and feel connected to others.
The Patient Story my brother died july 1. Huhuhuhu 🥺☹️☹️☹️
@@sheerenabbas6673 plz reply me 7002136077
How he is now??
In so sorry about your brother...
what lymphoma he had? im currently stage 4 hodgkin lymphoma
Are you saying that you were denied treatment by various oncologists? That's how it sounds. I never had an oncologist deny me treatment.
Do you have a lot of friends with cancer ?
Just a note. My doctor asked if i wanted to see a psycologist. I bluntly said that he could not get rid of the fatigue. Too many people drug out the emotional pain. I do not see the point.
Facing your pain is part of you.
Herbs Saves
Please what kind of herbs can we use
herbs will not cure cancer sorry to burst ur bubble lol
Actually yes herbs cure , look at sebi videos. 😂 you lack research