Haldol did this to me. My head was turning left and it looked like I was possessed and looking like I was trying to break my own neck. I took muscle relaxers from the nurses which calmed it down in 30 minutes. Felt like hell. Terrible feeling
This happened to me when I was prescribed Geodon aka Ziprasidone! Very scary and dangerous! I was in the ER waiting room for 7 hours!!! It felt like my neck was breaking and my mouth was locked wide open! I stopped the medication immediately after they gave me a shot of 50 mg benadryl! But stopping the Geodon put me in the worst withdrawal but I refused to take geodon again I was also previously in a physically abusive relationship where I suffered severe head trauma from the beatings.
I have movement if the tongue and lips, pacing and balancing. But a lot better than i was. I would like to know if i can stay with my medication or I should change? Basically to know if some level if distonia and akhatisia can be tolerate, or if the shouldn't be tolerate at all?
Methocarbamal did this to me. It did it to my back and all limbs, it felt like i could not breathe or move my arms or legs without EXSTREME effort. The not breathing part had me feeling like i was dieing. I repeatedly hit the call button at the ER. I was so terrifiing to be announcing your dieing and everyone looking at you like your crazy.
Great presentation. However I would amend this to say no alterations in temperature (rather than vital signs) if trying to distinguish dystonia from NMS. The pain/distress caused by acute dystonic reactions unequivocally leads to alterations in HR and BP.
My son administered AMBILIFY by shot for 10 months then episodes every 2 weeks lasting minutes - 3 hours. He has requested to lowered shot dose so now at 300 & episodes now once a month. ,❤️💯🇨🇦🇨🇿
I'm on antipsychotics and get episodes where it's difficult to move my eyes down but it's accompanied by intense brain fog. I remember the episodes and get agitated but reading and even comprehending speech can be difficult. I'm wondering if that's an alteration in consciousness and what does it mean? Is this dystonia or is it something else?
I've read it does. My son with autism has been coping with this for years. Haldol, Abilify, Respiridone and now Zyprexa. We've found that some seizure meds have increased the incidence, including Epidiolex. Doctors seem to have very little experience with this, especially in the non-verbal and disabled population.
When these symptoms occur years later, it is a separate medical condition called Tardive Dyskinesia. The mechanism is similar but it is a different condition. In case of development of a tardive dyskinesia the patient might be switched to either quetiapine or clozapine from his or her regular antipsychotics. (The latter one requires a close bloodwork monitoring and is hence not our favorite option). Leo U, PharmD student
@@leoustinov537 Not exactly, you must stop taking them well at least that's in my case, somehow switching off to new medications will only worsen so tapper it down , i still have it and developed it into tremors
Haldol did this to me. My head was turning left and it looked like I was possessed and looking like I was trying to break my own neck. I took muscle relaxers from the nurses which calmed it down in 30 minutes. Felt like hell. Terrible feeling
Agreed, Geodon did the same thing to me
They shouldve given you a 50 mg shot of benadryl through an IV like they did me. It went away immediately!
Happened to me after 2 days on ability. Neck turning like crazy and tongue wouldn’t stop moving, hurt like hell.
This happened to me when I was prescribed Geodon aka Ziprasidone! Very scary and dangerous! I was in the ER waiting room for 7 hours!!! It felt like my neck was breaking and my mouth was locked wide open! I stopped the medication immediately after they gave me a shot of 50 mg benadryl! But stopping the Geodon put me in the worst withdrawal but I refused to take geodon again
I was also previously in a physically abusive relationship where I suffered severe head trauma from the beatings.
Thank you for this presentation 🌹
I have movement if the tongue and lips, pacing and balancing. But a lot better than i was. I would like to know if i can stay with my medication or I should change? Basically to know if some level if distonia and akhatisia can be tolerate, or if the shouldn't be tolerate at all?
Methocarbamal did this to me.
It did it to my back and all limbs, it felt like i could not breathe or move my arms or legs without EXSTREME effort.
The not breathing part had me feeling like i was dieing. I repeatedly hit the call button at the ER.
I was so terrifiing to be announcing your dieing and everyone looking at you like your crazy.
I was given this in a inpatient ward. At stay and attempt to mediate PTSD. (P.s. my gfs youtube account)
I am a military veteran, 160 lbs. 3 % body fat.
I workout compulsively to combat anxiety and high risk behaviors
Great presentation. However I would amend this to say no alterations in temperature (rather than vital signs) if trying to distinguish dystonia from NMS. The pain/distress caused by acute dystonic reactions unequivocally leads to alterations in HR and BP.
4 days of taking Abilify (Aripiprazol) has caused this...
4 weeks
My son administered AMBILIFY by shot for 10 months then episodes every 2 weeks lasting minutes - 3 hours. He has requested to lowered shot dose so now at 300 & episodes now once a month. ,❤️💯🇨🇦🇨🇿
I'm on antipsychotics and get episodes where it's difficult to move my eyes down but it's accompanied by intense brain fog. I remember the episodes and get agitated but reading and even comprehending speech can be difficult. I'm wondering if that's an alteration in consciousness and what does it mean? Is this dystonia or is it something else?
hi! this is oculogyric crisis! i also experience this. its awful, mine is caused by my meds
@@xXNotLostXx Thank you, I didn't know that brain fog could be a part of that. The brain fog is awful. I'm sorry you have this too.
Yes I get exactly the same as you, intense brain fog and oculogyric crisis at the same time
@@catherine7918 I'm sorry you deal with that, lower doses of the offending med have helped as well as klonopin and rest
Risperdal paralyzed my legs 8 days...
Made me drug sensitive
Thank you ..well explained ..
1:25 Risk factors
How could this not occur on quetiapine?
I've read it does. My son with autism has been coping with this for years. Haldol, Abilify, Respiridone and now Zyprexa. We've found that some seizure meds have increased the incidence, including Epidiolex. Doctors seem to have very little experience with this, especially in the non-verbal and disabled population.
Via masking with sedation be touching on the histamine receptors and having a lower affinity for the dopamine 2 receptor.
Why not administer Biperiden (Akineton) ?
Although it can be used to treat neuroleptic malignant syndrome, it can actually raise the risk of tardive dyskinesia.
Yet again I disagree these symptoms can develop years later!!!!!! People are being lied to
When these symptoms occur years later, it is a separate medical condition called Tardive Dyskinesia. The mechanism is similar but it is a different condition. In case of development of a tardive dyskinesia the patient might be switched to either quetiapine or clozapine from his or her regular antipsychotics. (The latter one requires a close bloodwork monitoring and is hence not our favorite option). Leo U, PharmD student
Why do we even bother still prescribing the old dopamine receptor antagonist first generation anti psychotics?
@@leoustinov537 Not exactly, you must stop taking them well at least that's in my case, somehow switching off to new medications will only worsen so tapper it down , i still have it and developed it into tremors
@@leoustinov537 the symptomp can be related to antipsychotic withdrawal too bro hahah not always mean tardive dyskinesia
@@leoustinov537 this IS dystonia not dyskinesia