What is Cervical Dystonia and how do you treat it?
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- เผยแพร่เมื่อ 17 ก.ค. 2019
- Rebalance Physical Therapy is a pelvic floor and orthopedic physical therapy practice based in Philadelphia and on the Main Line in Pennsylvania.
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DISCLAIMER: This video is no substitute for in-person treatment and is for demonstration purposes only. If you suffer from any physical condition and illness, please consult your doctor before receiving any form of treatment.
Copyright All Rights Reserved 2019 Rebalance Physical Therapy
I'm so glad this has a name. I've had it for years and I've been pulling my hair out trying to figure out a solution for it. Constant headaches, stiffness, aches and pains, seeking different therapies... and of course the annoying muscle contractions. Thank you for this.
Im making a pretty wild recovery from generalized dystonia that went just about everywhere in my body. Me and my chiro are doing a lot of research together as we recognize my recovery is accelerating beyond the expected. I think doctors give up too quickly on this condition. While there’s no pill or single therapy that can cure the disease the mind has the power to rewire new connections and then forget the old ones. Using this principal Im learning to fight through every single tic and find its source and teach the muscle to stop contracting! Don’t give up with dystonia! Have gone from needing a walker to squatting, deadlifting, running, etc nothing is too hard any longer!
Me and my doc aren’t sure what to expect at this point but Im determined to make a full recovery!
We are so happy you are making such a quick recovery! That is such good news to hear and that you are doing all the things you love!
Extremely helpful video! Thank you!
Physical therapy can help with the symptoms but not so much the causes (meanwhile, chiropractors will do more harm than good). There are different types of cervical dystonia; there isn't a single "cervical dystonia". In some cases it is genetic, in others it seems to be the result of physical injuries (car crashes etc.) - and in many cases it is psychogenic (e.g. stress, anxiety, trauma) yet the psychogenic root of dystonia is severely overlooked.
How is this on 17000 views this deserves 100 million views. This is very informative stuff I have mild dystonia and currently seeing treatment and it's difficult on me as well but I'm trying to be hopeful so this video helps out even though it's a different phrase but it's very informative. Thank you 👍🏾👍🏾
I agree with the ortho aspect of your video but I wish it had addressed its neurological component as it grossly affects the basal ganglia, cerebellar and frontal brain activity. The weakness and spasm of SCM has to be treated via the brain . I’m a physical therapist as well and dystonia rehab imo is these 3 ways:
1. Daily walking to promote inter hemispheric connection ( as right brain activity is diminished in dystonia)
2. Exercises to get the neck out of the prominent ATNR ( a primitive reflex that gets established due to diminished frontal and pre frontal brain)
3. Breathing exs ( minimum 20 mins) to calm the vagus nerve.
When these are done over a few months, it’s possible to increase tone of the hypotonic SCM
Thanks so much for your reply. I do realize the neurological aspect of this condition and I did plan to make another video on this. However it would be great to connect with you if you are open to it.
@@akundal THIS is what I have been looking for in a video! TY!
I have had this from birth (20 years) I’ve done it all, Botox injections, deep massages, scraping that scm muscle, chiropractor, physical therapy. Nothing is working so it’s time to get surgery! Lol wish me good luck
I really feel for you, I’ve only had it for 2 years but nothing works for me either - and I can’t have the deep brain stimulation surgery
good luck
Best of luck
How has it been for you, now? Hopefully all is good
I've had this from birth too (50+ years). How did it go with chiropractor? I was too afraid they'd do more harm? Did you do the surgery? What kind of surgery was it and how did it go?
Ok I had this injury when I was young in the 80's. Now I have to pop my neck every day. And when bad ice and get neddleieing . So could this be a cause of this injury?
Thank you!!
You're welcome!
Do you know what are the causes of this and is this related to Tics? Thanks
I have a MRI in two days. I have been told that this is a possibility for what I have, along with CP. After 19, almost 20 years, I might finally have a diagnosis! I wasn't breathing for almost 10 minutes when I was born so that is what most likely caused it if I do have it. So I have come a long way and I still can't believe I'll almost have a for sure diagnosis soon!
I’m a 22 year old guy and was told that I have bulging discs on one side of my neck but there’s no nerve damage. My range of motion is very much restricted by what I suspect is cervical dystonia. This also affects my balance/walk slightly and I’m extremely self conscious about it as my head can sometimes look slanted unless I click my neck into a more balanced position every day. Initiation of treatment and surgery has been delayed due to Covid, but I wondered whether you had any advice in the meantime and what type of surgery could be carried out (I.e would it involve removal of these bulging discs etc). I’ve had this since I was about 18 and it all started with severe anxiety where my neck would spasm/shake in some of my classes. I’m worried that if I don’t get surgery soon then it’ll only get worse from here.
Your video is very helpful! Thank you for the photos and description of why the neck is doing this. My 16 year old son has been dealing with inability to more his neck and a pull to the right side and shoulder raising up also. I am a massage therapist in the Seattle area trained in NRT. I will be using it to try to reset his SCM, upper traps, levator scapula, neck muscles and suboccipitals. Are you familiar with Neural Reset Therapy- NRT? If so, have you used this in the treatment of cervical dystonia?
Bro I'm suffering from this as well pleass guide me
Tmj connection and posture alignment is the source of the issue. Try the popsicle stick test in mouth with posture aligned to see if it reduces spasms or stops them
What is the stick test?
Thank You
So i broke my left clavicle into 3 piece when i raced motorcycles. Broke the hardware that was implanted, shortly after surgery. Never had it fixed. After that, ive found that when im talking to a group of people, my neck has a spasm or twitches and im fighting my head from turning. Only happens when i talk in front of a group though. I dont drink caffeine or take drugs. It’s just strange that it only happens when all eyes are on me. Would the break cause this??
I’m so sorry you are going through this and this is exactly why we are trying to educate on these subjects. We would love to answer all the questions that come in however it becomes a liability to give medical advice without sufficient knowledge and questioning of your history and background. The best we can help those who are not local to us (in Philadelphia, PA) is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
I can’t write at all but diagnosis is nothing .spasm in neck and scm muscle can it be this dyatonia
I respect what you said encouraging us to allow "professionals" to touch "us" (those of us with Cervical Dystonia) but having this ailment as long as I can remember and feeling if anyone touched me I would Whiplash, you have no real idea. I hope you never do.. I am still waiting for relaxation,,, and I am 68. I am glad you have studied this plight, it gives me hope .... (You Go Girl..!!)
Hi Susan,
The best we can help those who are not local to us (in Philadelphia, PA) is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
Nice video , some excersis would have helped.
The best we can help those who are not local to us is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
What about the Feldenkrais method. The neuromuscular re-education has not been mentioned.
We are sorry you didn’t get what you needed out of this video. Unfortunately we can’t satisfy everyone and our
intention is to educate and provide knowledge on a subject that many health professionals and MD’s don’t even understand.
When should you see a Dr.?
Dòc there is a cùre òr mediçatiòns on it.thank you
Can this also cause ear issues?
Thank you. Your information is very helpful. Thinking I will do physical therapy on my own... Seems as though people, meaning Many physical therapist are not aware of this condition. 10 yrs. Ago Lady looked at me as though I was faking or making it up.
Put me on 2 machines 2xs a weak. One was a bicycle wheel I had to roll with my arms. 😆 lol...
Needless to say, was a joke.
Hopefully with your great information people can be more educationally aware that this condition needs attention to make ones life normal again.
My pleasure to hear that we were able to help you. Thank you!
I get torticollis every day now, it used to go away. Can this be related to whole body twitching\?! Bits of my body spasm and twitch and 'fasciculate' where I don't even think there is muscle?! I also have 'Interstitial Cystitis' and Trigeminal Neuralgia (bilateral, which doesn't exist, apparently)... I think the neck stuff could be caused by my open bite, my teeth at the front don't meet and it's very annoying/. But my worst symptom is nocturia which made my insomniac tendencies come into their own and now I can only sleep a hrs at a t1-2 hrs at a time.
Check for chiari (related to jaw, teeth and peripheral sinkage), eds, hypermobility. The treatment could be aligning cervical axis of the neck. There is a treatment called atlas
eu tenho essa doença, é muito dolorosa e constrangedora.
The sternocleidomastoid does not attach to the jaw
I had a bad sleeping position today and now i cant move my head at all... So i looked this up. Im scared i might be diagnosed with this
We would love to answer all the questions that come in however it becomes a liability to give medical advise without sufficient knowledge and questioning of your history and background.
The best we can help those who are not local to us is either via our online programs or via our 60 min video consultation with Hina…both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: www.rebalanceptonline.com/pelvic-pain
Female: www.rebalanceptonline.com/female-pelvic-pain
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
I really wish that your facility was in Texas. My neck is all messed up. My head is forward and I have spasms mainly after I have laid down for a while. The emergency rooms and general practice doctors think everything is fine because my cervical spine is intact, but I know everything is not normal with my neck.
Go see an ent surgeon (ears nose and throat)
Look up Jeffery Brown on youtube with Brendan stack. There is also a practitioner in Frisco texas who works with the TMJ and you might be able to get relief with her. Your problems might be unexpectedly coming from your tmj. Millennium Smiles is the one in texas. good luck. Fix it now or end up very very bad down the road.
Where you able to go back to work?
@@laurabecerril9164 We worked from home the rest of the school year after the big Texas winter storm which damaged part of the school I work at. I think that helped a little on the part of my neck. I still get a lot of stiffness and I feel my head and neck are too loose at times, but I can function better day to day.
Thank god I have no pain anywhere but I have turtles neck 😂😂got you Missis . Sad thing my son has it 15 and I never told him he never noticed on himself
I was diagnosed with cervical dystonia over a year ago, I'm beginning to think it's actually essential tremors. I started taking Magnesium and it has all but stopped. Only rarely now does my head violently shake.
I’m so sorry you are going through this and this is exactly why we are trying to educate on these subjects. We would love to answer all the questions that come in however it becomes a liability to give medical advice without sufficient knowledge and questioning of your history and background. The best we can help those who are not local to us (in Philadelphia, PA) is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
Can I ask what magnesium you took or taking please?
Many thanks
I have had this for many years
U have that problem still?
Did it completely go away?
How did you recover from it. I'm facing this issue since long back
My brother has dystonia for almost 8 years. We have financial problem to buy a butox . Too expensive to us. 😥
The best we can help those who are not local to us (in Philadelphia, PA) is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
I have been getting atleast 500 units of botox every 3 months since 2014. What does botox cause long term?
Where are you from
Check out what is made of B o t o x it’s toxic it’s in the name too
I got Botox for mine too, didn’t end up working, now onto surgery
I'm doing the same someone please help ms
Sounds like you are describing cervical dysfunction rather than dystonia. Involuntary but very strong active turning off the head. How do you interrupt the turning spasm? I can't lie face down and my therapist needs full strength in both hands when side or supine lying to even hold my head as it's very limited what can be done in full rotation
Hi,
We would love to answer all the questions that come in however it becomes a liability to give medical advice without sufficient knowledge and questioning of your history and background. The best we can help those who are not local to us (in Philadelphia, PA) is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
Hi dok is the cure or medications to dýstonia what should i dò? Ty dok
I’m so sorry you are going through this and this is exactly why we are trying to educate on these subjects. We would love to answer all the questions that come in however it becomes a liability to give medical advice without sufficient knowledge and questioning of your history and background. The best we can help those who are not local to us (in Philadelphia, PA) is either via our online programs or a video consult. Both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: bit.ly/3vBZBXP
Female: bit.ly/3eJf0yG
In addition, we have several other courses that can help with postpartum conditions:
C-Section Solution: bit.ly/3xG0r7z
Vaginal Delivery Solution: bit.ly/3t6BpLy
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
where are u pliz my mom needs seriouse treatment pliz see my comment
I have since 4yrs cervical distonia i have done MRI Diagnosis and Dr. Are giving medicine 💊 but it not completely cured.
Plz help me mam my head is shaking when I was going to hair cutting ✂️ it's not cutting my hair head is shaking,what to do plz reply neck also paining and during sleep that time also head is shakinng plz help.
We would love to answer all the questions that come in however it becomes a liability to give medical advise without sufficient knowledge and questioning of your history and background.
The best we can help those who are not local to us is either via our online programs or via our 60 min video consultation with Hina…both links are listed below:
We have a free 30 minute powerpoint to help you better understand what is going on in both of these links below and if you feel the program can help then you can follow through with the program.
Online programs:
****Our Pelvic Pain Solution Program is
Male: www.rebalanceptonline.com/pelvic-pain
Female: www.rebalanceptonline.com/female-pelvic-pain
Video Consults:
60min Video Consult
calendly.com/hinashethpt/60min-non-local?back=1&month=2021-01
Emergent 60 min Consult:
calendly.com/hinashethpt/emergent-60-min-phone-consult?back=1&month=2021-01
I go to the Dr
I am a therapist in Scotland and work with clients on the impact psychological that past experiences may have had on the causes of dystonia. This often helps make noticeable improvements and if your clinic was nearer 😁 i would certainly send clients. There seems to be very little meaningful research in this area and generaly the medical profession often don't know what to do with it.
Great video thanks.
Thanks Roger! We work with many amazing counselors here to help with a whole host of musculoskeletal related issues.
Valium has helped me. But can't take valium forever.
I'm desperate for botox, 5 months wait. Might go private. Been given valium till neuro confirms diagnosis via letter.
I am suffering from the cervical dystonia since 6 month and i use tablets also but cannot cure the disease how to cure this dystonia what are the methods to reduce the disease
Where are you from and what are you treatment taking now
Hey can we talk
Plz reply
Kiran.kumar plz reply
@@ankitasingh3843 yes
Need to talk about cervical dysotonia
❤
Someone should translate it in hindi
It's better to show examples, not just bla bla bla