Full interview: "Does my child have Sanfilippo Syndrome?" Facebook group aims to help find answers

​Erica McKenzie and Christin Ulrich - two Sanfilippo moms, from GA and FL, respectively - are the admins (and co-founders) of the private (but publicly searchable) Facebook chat group called "Does my child have Sanfilippo syndrome?". Along with Josephine Shamaly (who originally came up with the idea), the two women started the page earlier this year as a resource intended for anyone who has concerns that their child might have Sanfilippo Syndrome - a disease which has in recent years garnered greater attention and awareness due to the power of social media (and brave parents). Here they tell us the story of how the page came to be.