Wow, a week ago. That is mighty fresh. Take things slow, absorb as much info as you can (but don't overdue it), and take good care of your spirit! It sure took me a while to think positively about the whole thing. Take care!
metaspencer Absolutely yes, my friend! I consider it my great privilege sometimes. It made me feel happy and thankful just for being able to see or walk. Many many people will never experience this pure joy of our "good days". And the more grateful I get, the healthier I am.
very positive and inspirational. I too have chosen the no meds, and hope to continue on this road. Diet, exercise, less stress, and positive thoughts are a great medicine. Thank you so, so very much, bless you and continue to win this fight.
I was diagnosed about 4 years ago. I have never taken medication either. sometimes the pain is unbearable but I manage with Ibuprophen and switch to Aleve. Summers are really hard on me. I sweat so bad..fatigue is horrible and I hurt more. I'm trying to stay positive. Good Luck to you and I am very glad I found your videos. Thank You Spencer!!
I'm also staying positive, most days ... though the heat of summer is tough! Hang in there! I hear so many bad stories about people taking the drugs that I'm always happy to not have gone that route. All best!
Thanks for sharing your story on how you are dealing with MS!! Great to hear that you haven't had that many exacerbations in the past year!! I support you with choosing the non medical treatment. Rock on with it brother!!!
Hang in there! It's crazy how a diagnosis can take so darn long. I'm about 6 years without a relapse and no drugs, so feeling very optimistic about it all myself. Be well
I'm glad I ran into your video. I just received my official diagnosis this past Thursday and your #9 just really hit home for me. I know that I'm the same person I was a week before I just officially know that I have MS and dealing with that mentally is not easy right now.
wow I had no idea that you had MS you really seem to be managing your health very well. I personally have inflammation problems from gout so I know how important schedules and living with the least amount of stress can be .. cheers man
Thanks for posting, does it run in anyone's family, my grandmother had it, now I have it , we have Scottish ancestry and tracing my family tree I found a relative that helped develop the lumbar puncture test 100 years ago at Glasgow University that makes my wonder how far back it goes.
Love these videos-waiting for diagnosis right wow-similar circumstances. Have had symptoms for years but always told fibromyalgia and poo poo-ed it as nothing. Now at this point in life having major symptoms and I have enough sense and info that it's obvious so all that's left is neuro to say-when my eyes began hurting horribly then I finally decided no more letting some doc just write if off as fibromyalgia or all in my head due to stress. Was vegetarian for 24 years but last several weeks have switched it up to total vegan and juicing as well while studying through natural ways to heal. Thanks again!
Sounds tough, but the diet sounds like something you definitely have going for you! With MS, having good levels of vitamin D is crucial ... Good luck and I hope you find some answers. Message me here or on Instagram if you ever have questions or whatever.
metaspencer thank you-yeah my vit D is def low according to blood work-maybe I should take more than 2000mg a day. This is all new to me-but so wild to see others have and weird odd symptoms for YEARS. Thanks again-
Carnivore helped me the most. Pain went from 10 to 1. I was vegan, vegetarian before that, then went to keto, but the pain was still bad. Took me 3 months on carnivore before the pain went away.
Great video! Thank you so much! I’ve shared this with my dad. His left leg will go numb and drag. His back can have excruciating painful spikes. He’s newly diagnosed so my mom is changing his diet and trying to help with a holistic approach.
Don't know if this will help, but I changed my diet to carnivore, and it's helped tremendously in lessening the pain. It took about 3 months, but the pain went from 10 to 1.
Hey Tim! I've had a range of symptoms, mainly sensory in nature: numbness, tingling, hot/cold sensations, hypersensitivity, pain, synesthesia (nerve confusion), heat intolerance, and then eye issues (optic neuritis and diplopia). I have some residual symptoms from previous episodes, but not much is lasting (thus far). And then I have a few of the typical "signs," like mild clonus at times, Lhermitte's sign, and border-line Babinski's sign -- but those don't really bother me much. I avidly follow your channel, so it's nice to connect! All best
My original "My MS Story" video is here. th-cam.com/video/zw5pPojRFRU/w-d-xo.html ... My third "My MS Story" video is here: th-cam.com/video/7I0ujnOqDfk/w-d-xo.html ... My 4th "My MS Story" video is here: th-cam.com/video/28CJb48KAjw/w-d-xo.html
Your really helping me your words of wisdom have answered so many in answered questions I have be diagnosed a month ago you have also motivated me to do a story too
No dairy (didn't eat it before diagnosis), no wheat, mostly raw veggies, nothing processed -- basically I follow an anti-inflammatory diet now, take vit D, get lots of rest, and haven't had a flare up in 5 years.
Thanks Spencer, I totally appreciate your attitude towards MS. Thanks for listing what works for you but not trying to be an "armchair doctor". In your 1st video you mentioned seeing a MS specialist in Chicago. I live in the Chicago suburbs & unfortunately after 3 years of rapidly declining health, I've run into a roadblock. It's all craziness. The last Neurologist I saw said that I don't have enough lesions to be officially diagnosed, but I had more than enough o bands. I just want answers. My next move is to go downtown to Chicago, so if you don't mind, could you tell me the name of the specialist you saw in Chicago? I have a name, but I'm curious to see if it's the same guy you saw. Keep up your positive vibes & continue on your road to good health.
+mommyof2cuties ... The lesion count does seem silly, but they have to go with some metric. Duration of symptoms is often used in tandem with bands. I've seen A doc at U of Chicago neurology clinic. In my experience, finding MS specialists is the way to go, based on their online profile and publications. Mayo is reputed to be the best. Message me here or on instagram or email if you wanna chat more
This is was super helpful thank you!!! My recent episode came after an awful sunburn I got fishing. I've been so weak but today I'm slowly better because of a lot of rest.
yeah, avoiding stress on the body of all kinds seems to be helpful, at least in my experience. hang in there! you've got a lot going on with the kids and all ... but that's also great that you're doing it all!
Hi Spencer, what part of the country are you living in? Maybe you mention this in another video but I've just discovered you so I'm making my way to it... I'm curious because of the vit D component you mention and I know some areas of the US get a lot less sunshine so it can make it extra difficult there
I've lived all over -- west coast, midwest, now east coast. I long avoided sun due to skin cancer but now with Vitamin D supplements have nice high levels of D
No products, just simple whole foods: berries and non-glutenous grains for breakfast, salad with veggies for lunch (sometimes tofu, sometimes omega-rich fish), salad with veggies for dinner. I keep it simple and don't eat out. I hope that helps
I'm sure you've had a lot of advise and info coming at you, but one thing I'd suggest is getting your vit D levels checked and up there. Another thing if you're willing would be going on an anti-inflammatory diet. It might help and certainly won't hurt. Hang in there!
@@metaspencer yes my vit d levels are low..and I'm definitely thinking of a diet...I'm also jc virus positive and I have so many lesions on the brain and spine they said they cant count..also half of them are black holes
@@sethhenson3023 Well getting those D levels up will help, everyone agrees on that. Note that numbers of lesions do not always correspond with disability: some have just a few lesions and are paralyzed, others have many lesions and few if any impairments. The main thing for you is to get your immune system and imflammation settled down. Hang in !
That all depends on what your current vitamin D levels are. You have to get those levels tested. I take 5,000 units a day and get my levels tested annually. That is a high dose. Some take less and some take more. You have to be careful with D as you can take too much. It builds up in your system
Good morning sir, sir im an avid footballer can i continue with the sport.. If I have ms I might have ms, so incase if it's a positive diagnosis can i continue my symptoms are very minimal I don't want to quit the sport I love because of this ms... It will be so hard..., with enough physical exercise and diet can i change the degree of my symptoms and continue football?..
hello and good to hear from you! many of us who have MS have continued with athletics of all kinds. I have a good friend with MS who runs marathons ... another is a competetive weight lifter. The two things that many of has in common, though, is making sure our vitamin D levels are up and eating a strict anti-inflammatory diet. You can find out more about an MS diet at "best bet diet for MS" or "Wahls protocol diet" or "overcoming ms diet" ... hang in there mate!
@@metaspencer thank you so much sirr i dont want to quit football because of this..i play in the local leagues in india and they are competetive and sofun ...i want to continue for as much as i can ...
Thanks for posting, I watched your 1st video & now this one. I'm 47 and my neurologist did the full 2 1/2 hr MRI scan of brain and spine and ruled out MS. however, my annoying symptoms continue. as i look back they started years & years ago too. I currently have what I call face vibrations or mini-spasms and creepy-crawly sensations on face, half my butt goes numb, sparkly tingly sensations in legs/thighs after brisk walking. Numb tingly feet, toes or sometimes the heel. I'm tired a lot. I have hashimotos too. low vit d of course. My f/u appt is day after thanksgiving coming up, I don't know what else to do at this point.
Feliza, thank you for sharing your experience. I too have MS. I really recommend you visit another Neurologist. I don't say this lightly. I had one Neuro I went to see my first year and a half. I was reluctant to see another doctor, simply because it was a long wait to have a first visit. I was diagnosed Aug 25, and my first visit was October 10th. My body was going nuts and remained symptomatic after I left the hospital. When I called a different facility, they advised the first available visit was at the end of November. I should have made the appointment, but I didn't. Each time you see a new doctor, always ask them if they have a Nurse Practioner they work with and who are they? Can you meet them during your visit? Can you reach them through a patient portal? What should you do when your symptoms are acting up? I feel for you because I know getting a diagnosis is not easy. Try to find a large facility with plenty of Neurologists. They may all have their sub-specialties but it will be easier for you to get a referral in the same office. I finally saw a second doctor after I moved to a different state. It was a fluke that I was able to get an appointment, and I already had another appointment scheduled with a MS doctor at another facility. I wanted a backup closer to home. Just meeting both of them gave me insight, that not all doctor's are going to agree, but having two different inputs helped me make better decisions about my treatment. Please see another doctor. And don't rely just on one doctor. Good luck.
Beautiful sharing indeed! Allow to suggest you take a look at the works of Wilhelm Reich and orgonomy. This approach is different and therapy as well. Check out American College of Orgonomy for a therapist if it triggers your interest. Much love Take care
@02:40 At your age and the stage of the disease, you have no abnormality in your gait. You do pull up's and box jumps like it was nothing, this is far from the norm. Im sure your diet has a lot to do with not having frequent flare up's but damn, you look as normal as the next guy on the street.
Spencer, I was diagnosed just a week ago, and I’ve watched all 3 of your videos. They are so helpful; thanks so much for posting them.
Wow, a week ago. That is mighty fresh. Take things slow, absorb as much info as you can (but don't overdue it), and take good care of your spirit! It sure took me a while to think positively about the whole thing. Take care!
MS is a way to take good care of yourself and love and enjoy life more! Please smile and live....
+Κατερίνα Σκότρα ... great perspective. It can be an opportunity to grow
metaspencer Absolutely yes, my friend! I consider it my great privilege sometimes. It made me feel happy and thankful just for being able to see or walk. Many many people will never experience this pure joy of our "good days". And the more grateful I get, the healthier I am.
@@Rinoulamou I actually love your words such a good a great way of looking at life
This is such a positive and constructive way to think. I love it.
I've been doing no drugs for 19 years! I have had flares occasionally, but I just try to nourish myself on all levels and aid my body back to balance.
We're in just about the same boat, then: I'm 20 years in now with no drugs for MS. Nourishing yourself on all levels, as you say, is the way to go!
very positive and inspirational. I too have chosen the no meds, and hope to continue on this road. Diet, exercise, less stress, and positive thoughts are a great medicine. Thank you so, so very much, bless you and continue to win this fight.
It's nice to hear from a fellow traveller! There are a lot of us out there on this road. Hang in!
I was diagnosed about 4 years ago. I have never taken medication either. sometimes the pain is unbearable but I manage with Ibuprophen and switch to Aleve. Summers are really hard on me. I sweat so bad..fatigue is horrible and I hurt more. I'm trying to stay positive. Good Luck to you and I am very glad I found your videos. Thank You Spencer!!
I'm also staying positive, most days ... though the heat of summer is tough! Hang in there! I hear so many bad stories about people taking the drugs that I'm always happy to not have gone that route. All best!
metaspencer .. thank you!!
Thanks for sharing your story on how you are dealing with MS!! Great to hear that you haven't had that many exacerbations in the past year!! I support you with choosing the non medical treatment. Rock on with it brother!!!
Nice of you to comment, man! I just figured I'd put it out there ... you never know who might connect with my experiences. Take care!
Recent found out 20 years in , fully agree with low desire to Use harsh drugs/More nutrition-Whals type approach! Loved your update!
Hang in there! It's crazy how a diagnosis can take so darn long. I'm about 6 years without a relapse and no drugs, so feeling very optimistic about it all myself. Be well
I'm glad I ran into your video. I just received my official diagnosis this past Thursday and your #9 just really hit home for me. I know that I'm the same person I was a week before I just officially know that I have MS and dealing with that mentally is not easy right now.
+Samantha Bazile ... oh boy it is fresh for you! Give it some time and keep positive! Hang in there
metaspencer thanks!
Thank you for these videos. Learning as much as possible within reason without being overwhelmed.
Hang in there! You've got a lot to take in and understand ... go slow and give yourself time to digest it all. Hang in!
Good for you! Happy for you and you’re giving me hope!😀
Have hope! There are many people doing well with MS
wow I had no idea that you had MS you really seem to be managing your health very well. I personally have inflammation problems from gout so I know how important schedules and living with the least amount of stress can be .. cheers man
we've all got something ... take good care!
Thanks for sharing your story and so glad you are doing so well. I'm really digging the prison bus project as well!
Nice of you to check it out! It just so happened that you and I were posting about our experiences with MS at the same time ... take care!
Thanks for posting, does it run in anyone's family, my grandmother had it, now I have it , we have Scottish ancestry and tracing my family tree I found a relative that helped develop the lumbar puncture test 100 years ago at Glasgow University that makes my wonder how far back it goes.
From what I've read it isn't a disease that is directly inherited, but children do have a slight increase in likelihood
I’m gonna keep up with you.
excellent!
Love these videos-waiting for diagnosis right wow-similar circumstances. Have had symptoms for years but always told fibromyalgia and poo poo-ed it as nothing. Now at this point in life having major symptoms and I have enough sense and info that it's obvious so all that's left is neuro to say-when my eyes began hurting horribly then I finally decided no more letting some doc just write if off as fibromyalgia or all in my head due to stress. Was vegetarian for 24 years but last several weeks have switched it up to total vegan and juicing as well while studying through natural ways to heal. Thanks again!
Sounds tough, but the diet sounds like something you definitely have going for you! With MS, having good levels of vitamin D is crucial ... Good luck and I hope you find some answers. Message me here or on Instagram if you ever have questions or whatever.
metaspencer thank you-yeah my vit D is def low according to blood work-maybe I should take more than 2000mg a day. This is all new to me-but so wild to see others have and weird odd symptoms for YEARS. Thanks again-
Carnivore helped me the most. Pain went from 10 to 1. I was vegan, vegetarian before that, then went to keto, but the pain was still bad. Took me 3 months on carnivore before the pain went away.
Good job on sharing your experiances/knowledge!
....keep it up.
thanks, man
Great video! Thank you so much! I’ve shared this with my dad. His left leg will go numb and drag. His back can have excruciating painful spikes. He’s newly diagnosed so my mom is changing his diet and trying to help with a holistic approach.
I wish him the best!
Don't know if this will help, but I changed my diet to carnivore, and it's helped tremendously in lessening the pain. It took about 3 months, but the pain went from 10 to 1.
Great advice! Thanks for posting.
Great video. Thanks for the tips! More useful than you can imagine...
Hang in buddy!
My sister-in-law has MS. She’s doing very well.
That's great to hear. Not that she has it, of course, but that she's doing well
Top recap, Spencer. What symptoms are you getting with your MS in the past and currently?
Hey Tim! I've had a range of symptoms, mainly sensory in nature: numbness, tingling, hot/cold sensations, hypersensitivity, pain, synesthesia (nerve confusion), heat intolerance, and then eye issues (optic neuritis and diplopia). I have some residual symptoms from previous episodes, but not much is lasting (thus far). And then I have a few of the typical "signs," like mild clonus at times, Lhermitte's sign, and border-line Babinski's sign -- but those don't really bother me much.
I avidly follow your channel, so it's nice to connect! All best
Great inspiration!! I've been in for 11 years ! Thanks
+elvera long ... thanks and stay strong!
Your amazing! I love your attitude!
Thanks! Gotta stay positive!
Happy for the remission.
Oh you know it!
My original "My MS Story" video is here. th-cam.com/video/zw5pPojRFRU/w-d-xo.html ... My third "My MS Story" video is here: th-cam.com/video/7I0ujnOqDfk/w-d-xo.html ... My 4th "My MS Story" video is here: th-cam.com/video/28CJb48KAjw/w-d-xo.html
Your really helping me your words of wisdom have answered so many in answered questions I have be diagnosed a month ago you have also motivated me to do a story too
Thank you Spencer
Absolutely. I hope you're well!
What are you doing for nutrition? Have you cut out dairy and wheat?
No dairy (didn't eat it before diagnosis), no wheat, mostly raw veggies, nothing processed -- basically I follow an anti-inflammatory diet now, take vit D, get lots of rest, and haven't had a flare up in 5 years.
Thanks Spencer, I totally appreciate your attitude towards MS. Thanks for listing what works for you but not trying to be an "armchair doctor". In your 1st video you mentioned seeing a MS specialist in Chicago. I live in the Chicago suburbs & unfortunately after 3 years of rapidly declining health, I've run into a roadblock. It's all craziness. The last Neurologist I saw said that I don't have enough lesions to be officially diagnosed, but I had more than enough o bands. I just want answers. My next move is to go downtown to Chicago, so if you don't mind, could you tell me the name of the specialist you saw in Chicago? I have a name, but I'm curious to see if it's the same guy you saw. Keep up your positive vibes & continue on your road to good health.
+mommyof2cuties ... The lesion count does seem silly, but they have to go with some metric. Duration of symptoms is often used in tandem with bands. I've seen A doc at U of Chicago neurology clinic. In my experience, finding MS specialists is the way to go, based on their online profile and publications. Mayo is reputed to be the best. Message me here or on instagram or email if you wanna chat more
This is was super helpful thank you!!! My recent episode came after an awful sunburn I got fishing. I've been so weak but today I'm slowly better because of a lot of rest.
yeah, avoiding stress on the body of all kinds seems to be helpful, at least in my experience. hang in there! you've got a lot going on with the kids and all ... but that's also great that you're doing it all!
Looking good so Spencer. 👍
Thanks and be well!
Good luck.... many blessings sir.
Big thanks!
Thanks for the great video!
hey, great to hear from you! I hope things are well
Hi Spencer, what part of the country are you living in? Maybe you mention this in another video but I've just discovered you so I'm making my way to it... I'm curious because of the vit D component you mention and I know some areas of the US get a lot less sunshine so it can make it extra difficult there
I've lived all over -- west coast, midwest, now east coast. I long avoided sun due to skin cancer but now with Vitamin D supplements have nice high levels of D
Swank and Wahls diet. I wish my dad would have tried but he wanted a magic pill
Sorry to hear
Thanks for the good video
Thanks for checking it out!
Thanks a lot for this video, Can you share with us some of the products that you use to prepare your meals ...
No products, just simple whole foods: berries and non-glutenous grains for breakfast, salad with veggies for lunch (sometimes tofu, sometimes omega-rich fish), salad with veggies for dinner. I keep it simple and don't eat out. I hope that helps
I'm 26 I've had symptoms the last 6 years and I'm getting worse..I've always took vitamins and stay active but nothing seems to work.
I'm sure you've had a lot of advise and info coming at you, but one thing I'd suggest is getting your vit D levels checked and up there. Another thing if you're willing would be going on an anti-inflammatory diet. It might help and certainly won't hurt. Hang in there!
@@metaspencer yes my vit d levels are low..and I'm definitely thinking of a diet...I'm also jc virus positive and I have so many lesions on the brain and spine they said they cant count..also half of them are black holes
@@sethhenson3023 Well getting those D levels up will help, everyone agrees on that. Note that numbers of lesions do not always correspond with disability: some have just a few lesions and are paralyzed, others have many lesions and few if any impairments. The main thing for you is to get your immune system and imflammation settled down. Hang in !
@@metaspencer will do thank you! Great vids too
Hello,
Which is the right dosis of vitamin D to take with this condition?
That all depends on what your current vitamin D levels are. You have to get those levels tested. I take 5,000 units a day and get my levels tested annually. That is a high dose. Some take less and some take more. You have to be careful with D as you can take too much. It builds up in your system
@@metaspencer Thank you, do you follow the Coimbra Protocol?
No, the Wahls Protocol and Overcoming ms diets combined
Good morning sir, sir im an avid footballer can i continue with the sport.. If I have ms I might have ms, so incase if it's a positive diagnosis can i continue my symptoms are very minimal I don't want to quit the sport I love because of this ms... It will be so hard..., with enough physical exercise and diet can i change the degree of my symptoms and continue football?..
hello and good to hear from you! many of us who have MS have continued with athletics of all kinds. I have a good friend with MS who runs marathons ... another is a competetive weight lifter. The two things that many of has in common, though, is making sure our vitamin D levels are up and eating a strict anti-inflammatory diet. You can find out more about an MS diet at "best bet diet for MS" or "Wahls protocol diet" or "overcoming ms diet" ... hang in there mate!
@@metaspencer thank you so much sirr i dont want to quit football because of this..i play in the local leagues in india and they are competetive and sofun ...i want to continue for as much as i can ...
Just keep stress down and be healthy
@@metaspencer yes sir will do ,sir and what type of vitamin d supplements would you prefer ?
Ever had back numbness and contractions?
No, but back tingling ... contractions sound rough though!
Thanks for posting, I watched your 1st video & now this one. I'm 47 and my neurologist did the full 2 1/2 hr MRI scan of brain and spine and ruled out MS. however, my annoying symptoms continue. as i look back they started years & years ago too. I currently have what I call face vibrations or mini-spasms and creepy-crawly sensations on face, half my butt goes numb, sparkly tingly sensations in legs/thighs after brisk walking. Numb tingly feet, toes or sometimes the heel. I'm tired a lot. I have hashimotos too. low vit d of course. My f/u appt is day after thanksgiving coming up, I don't know what else to do at this point.
+Feliza C ... well congratulations on the clear scan. It sounds tough, though, so hang in there!
Feliza, thank you for sharing your experience. I too have MS. I really recommend you visit another Neurologist. I don't say this lightly. I had one Neuro I went to see my first year and a half. I was reluctant to see another doctor, simply because it was a long wait to have a first visit. I was diagnosed Aug 25, and my first visit was October 10th. My body was going nuts and remained symptomatic after I left the hospital. When I called a different facility, they advised the first available visit was at the end of November. I should have made the appointment, but I didn't. Each time you see a new doctor, always ask them if they have a Nurse Practioner they work with and who are they? Can you meet them during your visit? Can you reach them through a patient portal? What should you do when your symptoms are acting up? I feel for you because I know getting a diagnosis is not easy. Try to find a large facility with plenty of Neurologists. They may all have their sub-specialties but it will be easier for you to get a referral in the same office. I finally saw a second doctor after I moved to a different state. It was a fluke that I was able to get an appointment, and I already had another appointment scheduled with a MS doctor at another facility. I wanted a backup closer to home. Just meeting both of them gave me insight, that not all doctor's are going to agree, but having two different inputs helped me make better decisions about my treatment. Please see another doctor. And don't rely just on one doctor. Good luck.
I agree. Multiple perspectives are valuable
Beautiful sharing indeed! Allow to suggest you take a look at the works of Wilhelm Reich and orgonomy. This approach is different and therapy as well. Check out American College of Orgonomy for a therapist if it triggers your interest. Much love Take care
Thanks for the comment and tips. I haven't read his work in years ... will have to look at it again
Hi was just woundering if you get face ,legs spasams ,where the face goes all funny twisted ext if you know what i mean..
+denise jones ... I've heard of such spasms but it's not something I struggle with
@02:40 At your age and the stage of the disease, you have no abnormality in your gait. You do pull up's and box jumps like it was nothing, this is far from the norm. Im sure your diet has a lot to do with not having frequent flare up's but damn, you look as normal as the next guy on the street.
Thanks for that! Yeah, I sure do try to keep ahead of it ... and I know some others who do, too, so I'm not alone. Peace!
Have you checked into Texas Fruitarian on TH-cam. Raw vegan. ms warrior.
+angelzap100 ... thanks for the tip!