Hi Kassidy my name is Gregg and my son Justin has VHL. It sucks and I'am sorry about your mother. I praise you for making a video about VHL and it's awareness. I wish he would do the same because I think it helps cope with this relentless disease. It also helps with the knowledge and to get to know your body with VHL I'd love to hear more about your story. If not I wish the best for you
I’m so sorry to hear about his diagnoses with VHL. It is not an easy thing to live with, talking to others who share this disease with me helps me so much. He should really think about making a youtube. It may help him and it will also educate others who don’t know the disease due to it being very rare. Thank you!
Hi Kassidy my name is Gregg and my son Justin has VHL. It sucks and I'am sorry about your mother. I praise you for making a video about VHL and it's awareness. I wish he would do the same because I think it helps cope with this relentless disease. It also helps with the knowledge and to get to know your body with VHL I'd love to hear more about your story. If not I wish the best for you
I’m so sorry to hear about his diagnoses with VHL. It is not an easy thing to live with, talking to others who share this disease with me helps me so much. He should really think about making a youtube. It may help him and it will also educate others who don’t know the disease due to it being very rare. Thank you!