Thank you for your videos! My daughter is hearing impaired and they are very helpful videos. As a musician, I can tell you we are constantly “rehabbing” our “ears”. One thing to note about music. Your ear ( cochlear or not) might be giving you the correct info, but your mind might be having a hard time sorting thinks out. Example certain intervals such as a major or minor 6th and 7ths are hard to discern in the brain even though your ear gave you the right info. We have to spend countless hours on ear training as musicians. Meludia really is helpful! From what I did on the free trial, it seemed to help me with some of this anxiety we have as musicians.
I'm glad you've found my videos helpful. Of course everyone processes sound slightly differently and even amongst people with cochlear implants, sound perception can vary a lot. I think it's definitely important not to expect perfection, even people with normal hearing don't hear everything perfectly. I think it's always better to focus on improvement over perfection. I'm glad you've found Meludia helpful even if you don't have a cochlear implant.
Hi Nelle💖sorry to hear you have been poorly I hope you get completely well soon,on Sunday 23rd I thought I had the flu I felt really ill but I decided to check for covid & was shocked to find I was positive! It scares me after seeing all those people in hospital needing oxygen etc! Thankfully I am no worse at the moment! What hearing people don't understand is even with a cold your ears bung up & your hearing loss is even worse! I still can't believe you have had the implant for a year & it's good it's helping! Am glad your still using your hearing aid,even a tiny bit of natural hearing is better than nothing! My hearing aids don't help that much but I do like my earmoulds it shows people I am deaf! But one thing we have in common is our struggle with speech especially when we are tired! Since I lost nearly all my hearing I realized how much we rely on hearing our own voices! So thank you for those captions! It's good your going to have more mapping done but I so wish we could raise enough money to get your other ear implanted,i am no hearing expert but I hope you using a hearing aid helps keep the auditory processing nerve alive ready for the implant! Is there a way of raising more money via products you sponsor? It's good your making the most of the technology available to you! Let's hope 2023 will be the year you get the other implant,all the while the fund stays open I will contribute when I can as I know how hard it is being deaf 💖💖
Sorry you're feeling ill too. I've had Covid twice but thankfully didn't get seriously ill (I had been fully vaccinated before getting it so that probably helped a lot). I would definitely consider doing sponsored videos but I would only ever take sponsorships from products that were actually good and because my channel is still very small I haven't yet had any offers for anything I would be willing to support.
Hi Nelle, just watched your video on robotic speech sound. My new implant, activated two months ago, has normal speech sound not the robotic sound you demonstrated; however, I experience sound feedback and whistling, which over whelms the speech and is very annoying. Have you experienced a whistling feedback, and if so, how did your audiologist fix? I also have a very low static hum in background and Currently my Oticon hearing aid on my left ear balances out the sound but, like you I miss bits of conversations in noisy crowded rooms. Also liked your video on how you’ve implemented the various accessories, I need to get on that.
Hi, I haven't experienced that at all. I have only experienced the robotic speech, but not whistling or feedback. I hope your audiologist can help you get that sorted. I'm glad you've found my video useful. It's definitely worth using the accessories, but sometimes it's easy to forget.
Hi, Thank you for your tip. I currenly already have a pretty decent high-powered hearing aid in that ear so I don't think another brand would make a huge amount of difference. It might be slightly better, but I'm comfortable sticking with what I have for the moment, until I can hopefully get a second cochlear implant. It would definitly be worth looking into for people with severe/profound hearing loss who aren't able to get a cochlear implant though. Nelle :)
I’ve bought the Roger ON and it’s definitely a must have! It reallly helps, it’s like I can hear normal with it, like before I started losing hearing 🥺 I was in court a week ago and the sherif was suspicious that I brought a tape recorder or camera into the room and the other sherif shut him down right away and said I needed it because I am deaf and he was so apologetic 😅 There’s other instances of people being a little nervous around it but overall it’s amaaazing . Although I have to juggle things in my hands as well as the Roger ON
I'm so glad you've found it helpful. It's been game changing for me. I've never tried to bring it into a court room though. That situation sounds very embarrassing, well done for standing up for yourself though. Do you have the phone app for the roger on? The app allows you to mute the microphone from a distance and manually change which mode it's in which is good when using it in a classroom setting etc. Extra hands would always come in useful, but at least it has a lanyard and a clip so you can have your hands free if you need to.
I think a remote microphone is the most useful think in these sorts of situations. I use the Phonak RogerOn microphone and I really like it. You can control it through an app on you phone and it works with most hearing aids and cochlear implants. Here is a link to my review video of it if you're interested: th-cam.com/video/U_KXb7JSebo/w-d-xo.html There are plenty of other reviews online too if you want multiple opinions. It's pretty expensive, but there are often schemes that can provide them free or at reduced cost. There are also many other remote microphones that you can get, this is just the one I have used and feel comfortable recommending. I hope that was helpful Nelle :)
Hi, my hearing loss is bilateral. I have profound hearing loss in both ears. My hearing loss happened about 3 years ago. I lost all my hearing in about one week with one ear going first and the other about a week later. I hope that answers your question.
I'm bilateral now and it is horrible experience. I lost hearing from new ear and the tip fold over occurred during implantation so they had to replace it to CI612 in same operation. I have still high hopes for better hearing wit ci, right now i get simple sounds but speech is very bad
Hi, It's really unfortunate that you've had a bad surgery experience and you're struggling with your cochlear implant. I'm very aware that I'm very lucky to have had a good experience. Good luck with trying to improve your speech understanding. Advanced Bionics has something called 'Sound Success' where there are rehabilitation exercises for you to practise. That might be helpful for you. Nelle :)
It depends on the person; for me, things do sometimes still sound a bit robotic, but it doesn't really bother me that much because I'm completely used to it, but some people say it sounds entirely natural after a while.
Dear Nelle I hope you doing well so far. I am feeling really sorry about you only having one cochlea implant. I don't know why NHS has such stupid rule. Here in Switzerland or also in Germany we don't have such hard rules. Even a person age 70 can have two Cochlear implants paid by the national health insurance. I am myself have bilateral Cochlear OSIA 2 implants, but my doctor already told me I may have to get a cochlear implant on my left side in the next 2 years or so, depending on my speech hearing recognition. I truly hope you get your second implant somehow and I wish you the best greetings Andreas
Hi, thank you for your comment. The rules seem so unfair, but at the same time there are people in some places in the world who have no access to any audiology services whatsoever. Good luck if you end up getting a cochlear implant, since you're already using BAHAs it probably won't be that much of a change. Thank you for your positive wishes. Nelle
Hi, I have a profound sensorineural hearing loss which means I can't hear my own voice without my cochlear implant. With my implant I can hear my voice, but I don't hear my voice any clearer than other sounds.
![My First Month Using a Cochlear Implant (Cochlear Nucleus 7) [CC]](http://i.ytimg.com/vi/Xz6JNMrRNn8/mqdefault.jpg)
![My First Month Using a Cochlear Implant (Cochlear Nucleus 7) [CC]](/img/tr.png)
![Frequently asked questions about cochlear implants [CC]](http://i.ytimg.com/vi/KEkXXVz6ht8/mqdefault.jpg)
We absolutely need a 2 years update Nelle :)
Thank you for your videos! My daughter is hearing impaired and they are very helpful videos. As a musician, I can tell you we are constantly “rehabbing” our “ears”.
One thing to note about music. Your ear ( cochlear or not) might be giving you the correct info, but your mind might be having a hard time sorting thinks out. Example certain intervals such as a major or minor 6th and 7ths are hard to discern in the brain even though your ear gave you the right info.
We have to spend countless hours on ear training as musicians. Meludia really is helpful! From what I did on the free trial, it seemed to help me with some of this anxiety we have as musicians.
I'm glad you've found my videos helpful. Of course everyone processes sound slightly differently and even amongst people with cochlear implants, sound perception can vary a lot.
I think it's definitely important not to expect perfection, even people with normal hearing don't hear everything perfectly. I think it's always better to focus on improvement over perfection.
I'm glad you've found Meludia helpful even if you don't have a cochlear implant.
Thanks for this information, very interested in music, so will take advantage of this knowledge
Hi Nelle💖sorry to hear you have been poorly I hope you get completely well soon,on Sunday 23rd I thought I had the flu I felt really ill but I decided to check for covid & was shocked to find I was positive! It scares me after seeing all those people in hospital needing oxygen etc! Thankfully I am no worse at the moment!
What hearing people don't understand is even with a cold your ears bung up & your hearing loss is even worse!
I still can't believe you have had the implant for a year & it's good it's helping! Am glad your still using your hearing aid,even a tiny bit of natural hearing is better than nothing! My hearing aids don't help that much but I do like my earmoulds it shows people I am deaf!
But one thing we have in common is our struggle with speech especially when we are tired! Since I lost nearly all my hearing I realized how much we rely on hearing our own voices! So thank you for those captions!
It's good your going to have more mapping done but I so wish we could raise enough money to get your other ear implanted,i am no hearing expert but I hope you using a hearing aid helps keep the auditory processing nerve alive ready for the implant! Is there a way of raising more money via products you sponsor? It's good your making the most of the technology available to you! Let's hope 2023 will be the year you get the other implant,all the while the fund stays open I will contribute when I can as I know how hard it is being deaf 💖💖
Sorry you're feeling ill too. I've had Covid twice but thankfully didn't get seriously ill (I had been fully vaccinated before getting it so that probably helped a lot). I would definitely consider doing sponsored videos but I would only ever take sponsorships from products that were actually good and because my channel is still very small I haven't yet had any offers for anything I would be willing to support.
Hi Nelle, just watched your video on robotic speech sound. My new implant, activated two months ago, has normal speech sound not the robotic sound you demonstrated; however, I experience sound feedback and whistling, which over whelms the speech and is very annoying. Have you experienced a whistling feedback, and if so, how did your audiologist fix? I also have a very low static hum in background and Currently my Oticon hearing aid on my left ear balances out the sound but, like you I miss bits of conversations in noisy crowded rooms. Also liked your video on how you’ve implemented the various accessories, I need to get on that.
Hi, I haven't experienced that at all. I have only experienced the robotic speech, but not whistling or feedback. I hope your audiologist can help you get that sorted.
I'm glad you've found my video useful. It's definitely worth using the accessories, but sometimes it's easy to forget.
Hi Nelle, I wonder if the Oticon "Xceed" might help you hear better in your hearing aid ear. Might be worth looking into.
Hi, Thank you for your tip. I currenly already have a pretty decent high-powered hearing aid in that ear so I don't think another brand would make a huge amount of difference. It might be slightly better, but I'm comfortable sticking with what I have for the moment, until I can hopefully get a second cochlear implant.
It would definitly be worth looking into for people with severe/profound hearing loss who aren't able to get a cochlear implant though.
Nelle :)
I’ve bought the Roger ON and it’s definitely a must have! It reallly helps, it’s like I can hear normal with it, like before I started losing hearing 🥺
I was in court a week ago and the sherif was suspicious that I brought a tape recorder or camera into the room and the other sherif shut him down right away and said I needed it because I am deaf and he was so apologetic 😅
There’s other instances of people being a little nervous around it but overall it’s amaaazing .
Although I have to juggle things in my hands as well as the Roger ON
I'm so glad you've found it helpful. It's been game changing for me. I've never tried to bring it into a court room though. That situation sounds very embarrassing, well done for standing up for yourself though.
Do you have the phone app for the roger on? The app allows you to mute the microphone from a distance and manually change which mode it's in which is good when using it in a classroom setting etc.
Extra hands would always come in useful, but at least it has a lanyard and a clip so you can have your hands free if you need to.
@@nellefindlay my HA actually have tap control so I can mute
I’ll use the lanyard, thanks for the tips ☺️!
Nelle, may I ask you, if there are any technologies one ca use during a conference or in a classroom you can recommend?
I think a remote microphone is the most useful think in these sorts of situations. I use the Phonak RogerOn microphone and I really like it. You can control it through an app on you phone and it works with most hearing aids and cochlear implants. Here is a link to my review video of it if you're interested: th-cam.com/video/U_KXb7JSebo/w-d-xo.html
There are plenty of other reviews online too if you want multiple opinions. It's pretty expensive, but there are often schemes that can provide them free or at reduced cost. There are also many other remote microphones that you can get, this is just the one I have used and feel comfortable recommending.
I hope that was helpful
Nelle :)
Hi, is your sensorineural hearing loss bilateral? When were you diagnosed with SSHL? Did it start in one ear and later other ear also affected?
Hi, my hearing loss is bilateral. I have profound hearing loss in both ears. My hearing loss happened about 3 years ago. I lost all my hearing in about one week with one ear going first and the other about a week later.
I hope that answers your question.
I'm bilateral now and it is horrible experience. I lost hearing from new ear and the tip fold over occurred during implantation so they had to replace it to CI612 in same operation. I have still high hopes for better hearing wit ci, right now i get simple sounds but speech is very bad
Hi, It's really unfortunate that you've had a bad surgery experience and you're struggling with your cochlear implant. I'm very aware that I'm very lucky to have had a good experience. Good luck with trying to improve your speech understanding. Advanced Bionics has something called 'Sound Success' where there are rehabilitation exercises for you to practise. That might be helpful for you.
Nelle :)
Okay, I’m scared. I’ve put myself forward for a Cochlear Implant. I’m kinda regretting it now. Do voices sound robotic permanently? Xx
It depends on the person; for me, things do sometimes still sound a bit robotic, but it doesn't really bother me that much because I'm completely used to it, but some people say it sounds entirely natural after a while.
Dear Nelle I hope you doing well so far. I am feeling really sorry about you only having one cochlea implant. I don't know why NHS has such stupid rule. Here in Switzerland or also in Germany we don't have such hard rules. Even a person age 70 can have two Cochlear implants paid by the national health insurance. I am myself have bilateral Cochlear OSIA 2 implants, but my doctor already told me I may have to get a cochlear implant on my left side in the next 2 years or so, depending on my speech hearing recognition. I truly hope you get your second implant somehow and I wish you the best greetings Andreas
Hi, thank you for your comment. The rules seem so unfair, but at the same time there are people in some places in the world who have no access to any audiology services whatsoever. Good luck if you end up getting a cochlear implant, since you're already using BAHAs it probably won't be that much of a change.
Thank you for your positive wishes.
Nelle
Can you hear your own voice when you speak? XX
Hi, I have a profound sensorineural hearing loss which means I can't hear my own voice without my cochlear implant. With my implant I can hear my voice, but I don't hear my voice any clearer than other sounds.