This was brilliant and excellent explanations. The only thing is that you said two reasons to not get one are that it isn’t suitable, or you don’t want one, and they are the only two reasons. But the third separate reason, as you mentioned later, is that some cannot afford, so I suppose that is a third separate reason. All the questions were really interesting.
Hi found yr channel by complete accident, my hearing in my left ear 👂 is totally gone , so im getting hopefully the implant within the next 6 to 8 months depending on how big the queue is here in Finland 🇫🇮. I enjoyed yr vid , but i. Must admit the one thing that I'd love to change is the chronic tinnitus i also suffer from . But its good too see you smiling , thanks for all the helpful tips and thoughts .
Hi, good luck with getting your implant. Cochlear implants can help with tinnitus in some people. For me, when I have my processor on, I don't have tinnitus at all in that ear. I still experience tinnitus at night when I take off my processor. Good luck with getting your cochlear implant and I hope it helps your tinnitus some. Nelle :)
I also suddenly lost my hearing in both ears over 30 years ago age 19, to such an extent that I had to leave my job as a nurse age 24. I am profoundly deaf and was told that if I had been born with the level of deafness I have then I would have never have learned to speak. 8 weeks ago I underwent cochlear implant surgery in one ear, it was switched on 5 weeks ago. I have a nucleus 7 processor and I’ve got to say it took some getting used to. At first everything sounded like C3PO from Star Wars, just beeps and squeaks. But now I can recognise voices, hear birds tweeting although the sounds are not like I remember as they’re synthesised and very high pitch. I describe it as having a small tinny speaker sound and as if you have an in the ear headphone in so the sound is in your head, but I can understand a lot of speech. My hearing aid provides bass and only bass (at 120db) and the implant provides the missing top end. Im still getting used to the sounds and there’s a long way to go but I know someone who had the implant 4 years ago and they say the sound does become natural as time goes on and does begin to sound like you remember as the brain adjusts. I still rely on lip reading and I never learned to sign as I wasn’t part of the deaf community, I was very dizzy for a few days after surgery but I think I’m getting to the point where I’m starting to feel like I’m glad that I had it done. I still can’t use a phone but I’m hearing much more speech than with hearing aids alone, which was to be honest probably very little. I was offered a cochlear implant around 1990 but have been holding out for better technology, but it still seems to be years away. Stem cell or cochlea’s that have been 3d printed are being researched by the NHS but I’m told are years away from being available. I wish you well in getting your second implant.
I meant R2D2 not C3PO 🙂 also after surgery I lost my sense of taste on the implant side, this hasn’t returned but it’s only been 8 weeks so I’m hoping it will.
Thank you for your comment. Cochlear implants definitely take some getting used to. Mine is getting beter all the time. The side effects can be pretty weird too. I didn't have the thing with my taste, but the tip of my ear was numb for months. It's starting to go back to normal now though. I'm really glad I got my implant, it helps me hear speech so much and if I ever get annoyed with it, I can always take off the processor if I don't like it. I hope you continue to experience improvement with your implant. Thank you for your positive wishes. Nelle xx
@@mariacastellanos3632 it’s about 15 months since switch on. Taste has pretty much returned just slight diminished on that side. With every mapping I could hear more. I recently had an hearing test (the beeps and squeaks) and hearing on implant side was within normal range as in normal hearing. Sounds are higher pitch than normal sound. Like listening through a tinny speaker but deep in ear like wearing ear buds. You have to be prepared to be patient and put a lot of listening practice in. I bought a Tv smart link to replace old loop system and with basic stuff that has a lot of talking I don’t need subtitles. I do with movies because of background music etc. I now hear bird’s singing and thinks I haven’t heard for years. I have no natural hearing so that’s pretty amazing. It’s a long journey a marathon not a sprint and tiring too but I can now join in conversations (better one to one at home rather than noisy places) music is still weird however my recent mapping has much improved it. Expect it to sound out of tune as the intervals between the notes aren’t spaced right. When there’s a lot of instruments and voices it sounds worse as the processor doesn’t distinguish complex sound well and voices can sound more garbled. That said my recent mapping on most songs I listen to made a vast difference. They reduced the top end and increased the mid. They say I’ll continue to see improvements as it takes a couple of years for full benefit. At switch on I only heard beeps and squeaks for a few days. I hated it and totally regretted having the implant. Week 3 I was hearing birds. The sound now is more natural just an octave higher I would say. To say I’ve been over 30 years without hearing it’s remarkable how much I’ve gained. It has been hard work you have to put effort into listening at first and not give up.
You shared so much in thoughtful questions and your own answers in this video. It's a quality video with clear video, clear audio, and each question was genuinely helpful. Thank you for going through the effort to gather your thoughts and order them into such a helpful video. I get my cochlear implant in the morning and have been watching videos of others to gain a sense of the community that I'm about to join. Wonderful days ahead for you and thanks again.
Thank you. Good luck with your implant. Let me know if you have any questions or anything. If you're interested in more specific information about adjusting to an implant, I have a video called 'Making the most of your cochlear implant' specifically for new CI users which you might find helpful. Nelle :)
Thank you Nelle, very good informative Videos, I have a similar hearing loss to you in both ears, just had a cochlear implant surgery, and being switched on next week. So your demonstrations have been very helpful.
Thank you for having real world info on here. All else I could find on TH-cam sounded like CI infomercials for deaf geriatrics and 6 year olds. With precious few actual experiences being shared. Does anybody else feel like deaf folks are talked down to like they are children when purveyors pitch their "miracle ears". If so just ask about your devices' noise floor , frequency response , and maximum gain in decibels. I am a profoundly deaf recently retired semi-pro musician and music teacher. I was born severe to profoundly deaf. I have been a cochlear implant candidate for about a year now. My right ear is 98% Deaf with 12% speech recognition when amplified @ 145 db . My hearing aid purveyor says I am maxed out for BTEs and recommends I check into CI through Advanced Bionics.. My left ear is about 86% deaf at the time of writing this comment. I am looking into CI but only with great trepidation. Upon my first google search I'm finding a class action recall lawsuit against Advanced Bionics, it does not bode well . Am I being overly cautious or what? Paranoid even..?😁
I definitely feel like some of the things about cochlear implants can be a bit patronising and like they've just assumed that their implants are the key to transform your life. In my experience the stuff from the USA is way more like that than the British stuff (I think we're too cynical for that here). Since you're a musician, you might find it interesting to read this study I found the other day about a guy with cochlear implants who has good enough pitch recognition to tune a guitar by ear. www.ncbi.nlm.nih.gov/pmc/articles/PMC3961348/ My implant is from the Cochlear brand not Advanced Bionics and I am very happy with it. The sound quality is so much better than with hearing aids and there is no whistling or anything to worry about. If it helps, my implant centre aren't providing Advanced Bionics implants at the moment due to their technical issues so I only had the choice of Cochlear or Med-El so you might be better off going with a different brand. I have heard nothing but good things about Cochlear and Med-El and I know Oticon make implants too. I don't know a lot about them, but they might be worth looking into. I don't think it's paranoid at all to be cautious when making such a big decision. I think it's very sensible to do as much research as you can into implants before getting one (or two). I found this comparison chart really helpful when I was looking into which implant to get. It's really helpful just having all the information there in plain figures rather than having to filter through the marketing to find them. www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwj01ePTi4z4AhUinVwKHUWKAHcQFnoECAwQAQ&url=https%3A%2F%2Fcochlearimplanthelp.files.wordpress.com%2F2021%2F06%2Fcochlearimplantcomparisonchart_v11.3b.pdf&usg=AOvVaw1OcyYhuhlgjtzTe7aEM6Oc I hope this helps. Please let me know if you have any questions or anything about my implant. I'm not an audiologist but I can tell you my experience and what I've found from my research. Nelle :)
Hi Congratulations! After over 30 years with natural hearing since birth (1955), I became a dual hearing aid recipient and like you had to retire from work because of severe/profound hearing loss. June 13,2023 I became a single Cochlear recipient at my right ear and my activation date was also 5 weeks later on July 21, 2023. Amazingly after the initial start up mechanical sounds I was immediately able to hear/recognize REAL words! It sounded like I was in a tunnel or hallway but clearly words. My work is cut out for me but I am sure that for both of us it WILL get much better! :) P.S I am a very young 68 years old.
I'm just barely starting to go through this process right now I just got back from my audiologist a couple days ago and we're looking into getting me a cochlear implant on my left side. I haven't been able to hear from my left side for a while but my hearing ability has been dropping more rapidly recently and it's gotten to a point where even with hearing aids my speech understanding level is down in like the 10 to 13% range. it's very frustrating and I'm hoping that if I qualify for a cochlear implant my life will change for the better. I'm a little bit worried but I feel like some hearing in that left ear is way better than nothing even if it's weird.
Hey, thank you for creating thr content and sharing your experiences. Also thank you to those that commented and shared their's too. I'm profound in one ear and severe in the other. My hearing has deteriorated over the last twenty years and will likley continue. I'm now a candidate for one and probably a second in the future (though the second will have to be privately funded. Just wondering what the rehabilitation process is like?
Hi. The rehabilitation process is different for everyone. It's definitely hard work and you don't start out being able to hear that well (usually), but for me, it was definitely worth it and even about a month after my implant was activated, I could already hear a lot better than I could with hearing aids.
Thank you Nelle for an informative answers. I'll be evaluated next month for a possible cochlear implant. In 1993 I had a sudden hearing loss and vestibular loss on my right side. My left ear has moderate to severe hearing loss for which I have a hearing aid.. But, clarity of hearing is getting worse. I'm wondering if the implant will help me understand what people are talking about in "noisy" environments. Currently, words are just a shambles and the tinnitus just increases in volume (in both ears). My best wishes to you...
Hi Nelle, Thank you so much for taking the time to make this video and share your experiences with your cochlear implant. My grandmother who is now 86 lost hearing in her right ear in her 30s I believe, and eventually needed a hearing aid for her left ear a few decades ago but heard perfectly fine in her left ear with the hearing aids. Just last October she now had a big drop in hearing in her left ear and could not fully process/understand sound speech in her left ear anymore and after 8 months of not being able to hear she finally was able to get the surgery for cochlear implant. She is officially healed from surgery and is now on her second week of practicing using her new cochlear hearing aids but she is getting very very discouraged if she will ever hear again and sometimes doesn't even want to have the hearing aid on out of frustration...do you have any words of encouragement I can give to her as someone who has a cochlear implant? Also, how long did it take you to relearn how to process sound since getting your surgery? I read the average time takes anywhere from 3-6 months?
I was advised by my implant team that it takes a year to fully adapt. I adapted faster, but as a young person who has had normal hearing previously, I was an ideal candidate to adapt quickly. It probably took me about 2-3 months before I was hearing pretty well, but I still don't hear everything. 2 weeks is still very early days and it is completely normal to struggle with it and there is nothing wrong with taking breaks from using your processor if it gets too much or too frustrating. It might even be worth just using it for like 2 hours a day of specific practice at first if that's all you can manage. It's a major life change, and that's a lot to deal with especially when you're 86 so be kind to yourself and don't listen to the people who don't get what it's like. I think sometimes well meaning people expect CIs to be a miracle and get annoyed when your results aren't miraculous immediately even though that's completely normal.
@@nellefindlay Thank you so much for taking the time to write this. I will explain to my grandma who you are and then have her read this, hopefully it encourages her, she has been doing a little better since I wrote the original comment. Take care!
If you hear things as the link in your description states, how come you sound 100% perfect with your speech? This isn't a question due to any doubt but rather curiosity and amazement. There is an accurate representation of what it sounds like on youtube done by a university in America using a female that is deaf in 1 ear. It is quite different from what you posted in a way. It's more clear and as the girl explained, sounds like a wall between you and the noise. Perhaps because you are deaf in both ears, you are not able to give such an accurate representation. Awesome video btw.
Mostly it's because I lost my hearing as an adult and so I just remember how to speak. Also, when I'm recording videos I make an extra effort to speak clearly, and you can't really hear the fact that I'm usually very loud. Here's a video where I explain a bit more in detail: th-cam.com/video/BxeaqQ0QYU4/w-d-xo.html
@nellefindlay your awesome! Thanks alot for replying to me. I don't often comment on TH-cam videos, but it's super nice to see when I finally do, that I get a response. Thanks much again 😊, especially for the links with more details 😀
Hi Nelle, Thank you so much for your video! I work in assistive technology for a day program for people with disabilities and I have a young client who has profound hearing loss in both ears and has cochlear implants. I am working on creating a support plan for her but have really struggled to find non biased information about cochlear implants. My main point of concern is discussing situations in which she may receive uncomfortable auditory feedback. Have you ever noticed scenarios or sounds that frequently are really unpleasant? I have heard that riding in the car with implants on can be uncomfortable but beyond that, I don't know. My client is nonverbal and has frequent meltdowns that many staff say seem unprovoked. The solution to these frequently is taking or turning off her cochlear implants, therefore, I feel there may be some sort of environmental stimulation that causes discomfort. I would love to hear your insight. Thanks again for your videos, so helpful!
Hi, thank you for your question. As you can imagine, I can't really give a conclusive answer as I haven't seen the situations that give her meltdowns in person so I don't know exactly what sounds there would be there. However, I do have a couple of theories that might explain it. Theory 1: Her implants might not be programmed correctly for her and might be giving her a really uncomfortable electric shock sensation when she hears certain frequencies. Oftentimes with young children or patients with additional disabilities, the audiologist can't really get feedback when programming the implant if something sounds bad so they kind of have to guess what settings would be best. For a while after my implant was switched on, high pitched sounds would be painful for me so I had to ask for them to be turned down at the following appointment. Your client might be experiencing this and not be able to explain the issue and it wouldn't be obvious to other people. Theory 2: Too much background noise makes the sound from cochlear implants just sound like radio static which is really overwhelming at times and I often need to turn the volume down. I am on the autistic spectrum so I might be more sensitive to this than some other people so this might be more or less of an issue depending on your client's situation. Also, towards the end of the day, I often find that sounds seem louder and more intense and I need to turn my implants down. If her meltdowns tend to be in noisy environments or at the end of the day, this might be the issue. Theory 3: The cochlear implants isn't what's causing the meltdowns, but she finds it easier to calm herself down from a meltdown when the implants are off so she doesn't have to hear a load of sound when she's already distressed and trying to calm down. I know you said that other people don't notice a particular trigger for her meltdowns so maybe this theory is wrong, but I think it's worth pointing out, just in case. I hope this helps you figure out what might be happening with your client and you can get it resolved soon. Meltdowns are really awful (both for the person experiencing it and for the people around them) so I really hope you can figure out how to help her. Nelle :)
@@nellefindlay thank you so so much for your thoughtful responses. I will discuss all of this with her and her audiologist. Thank again for your content!
Hey Nelle, thanks for sharing all this info. It’s interesting hearing from someone who is going through a similar experience to myself. I’ve been deaf in one ear for about 10 years now and I’ve been holding off having any surgery as I was worried about tampering with my cochlear in case they find some sort of cure, but it’s getting to the point I’m fed up of being deaf in one ear and I’d like to reduce the tinnitus in that ear too. When I was first diagnosed with ssd I was also told that cochlear implants were only available on the nhs to people who were deaf in both ears so I wasn’t even aware this was an option to me until today! I was wondering, does the robotic hearing become more like normal hearing after time, when your brain adjusts and gets used to it? Also, can you see the implant under the skin when the processor is removed? I know you have long hair so it doesn’t apply to you but maybe you remember from after you had the surgery done. I’m a guy with short hair and shaved sides, so just curious to know if it would be visible if I decided to not wear it at certain times? Thanks
Hi, just to clarify, I am profoundly deaf in both ears so that's why I got a cochlear implant on the NHS. However, there are definitely people who are single sided deaf who get a cochlear implant for their deaf ear. The channel I usually point people towards for information on that is called Nessa's lifescape. She got an implant around the same time as me and she has an asymmetrical hearing loss where one ear is profoundly deaf and the other only has a mild-moderate hearing loss. Overall, her channel has a pretty similar vibe to mine so if you like my videos, you'll probably like hers. I also know that a lot of SSD people chose to go for CROS hearing aids or BAHAs if you're looking for less expensive options that preserve your cochlear and allow you to hear from your deaf side (although these don't allow for directional hearing). Cochlear implants sit completely under the skin and are pretty flat. You can definitely feel where it is under the skin, but I don't think you'd see it even with short hair (although obviously the processor is visible). BAHAs often have an abutment which is visible through the skin although there are some newer versions which attach with a magnet like a cochlear implant which wouldn't be as visible. You also definitely adapt to hearing with a cochlear implant and it gets to sound pretty normal after a while. I hope this answers your questions :)
When you said, i can hear people behind me, i started to cry because i am %90 deaf and i am using hearing aids. But doctor suggest me to get implants but i cant afford it now. And i cant understand if i dont read peoples lips. I am 24 years old and i cant count how many times i get fired because i cannot hear.
That’s awesome that you’re planning on a second cochlear implant. I am still trying to process on my first cochlear implant. Does the process take a while? How long it took you from the time the audiologist told you that you’re a cochlear implant candidate
Thank you for your comment. I really hope I'll be able to get a second implant. It definitely took me a while to adjust to the cochlear implant. I think I'm probably still adjusting to it gradually. I think the process of adapting to an implant is probably very individual so there isn't really an exact timeframe. I received my cochlear implant around 6 months after losing my hearing, but that is not an average timeframe. I was put through the process faster because I lost my hearing very suddenly so I was prioritised. I hope this answers your question. Nelle xx
Can anyone help me the breeze box with cochlear which ybare supposed to use every night. I saw a video and the speech processorvwas put in plus the battery does it get recharged in the breeze box or is the battery putbin there to dry I'm confused what I should put in the breeze box
No, I received my cochlear implant 3 years ago. The reason my speech is very clear is that I developed my hearing loss as an adult so I had already learned to speak.
Thank you for sharing information I have menieres disease as well and there is a possibility that I maybe deaf one Day because I'm just 26. I love language learning I already speak english and french along with my Mother language. I'm so sad and curious will I be able to understand and speak or learn other languages after the cochlear implant
Hi, thanks for your comment. I'm actually in University at the moment studying modern languages. I'm studying Spanish and British Sign Language and being deaf hasn't really been a problem. There is actually a video coming out on my channel later today about my experience with that. You 100% can learn other languages if you're deaf and have a cochlear implant. I hope this answers your question. Nelle :)
I had my implant in my ear at 24 years old with no history of ever hearing in that ear. However I have my other ear normal (only recently aided with a hearing aid) so I can speak and understand speech. If not single sided deaf, it would very much depend and as Nelle said it would be best to speak to an audiologist.
can someone with 100% hearing loss since birth get CC? I would think the brain wouldn't even know what to do with those signals coming from a place they have never come from before.
It depends. If someone born totally deaf gets a cochlear implant as a young child, they will usually be very successful with their implant as their brain is able to adapt to it. Of course they won't be able to hear exactly like a hearing person, but still have good access to sound. For adults who have grown up without any access to sound, cochlear implantation is an option, but is usually not as successful. Most of these people can hear the sound but not really be able to distinguish speech as their brain can't adapt as well to the sound. Oftentimes these people don't wear their processors very much as they don't get much benefit and can find the sound overwhelming. These are generalisations of course. There are exceptions to everything.
Hi, I'm not really sure what you are asking with this question, but I'll try to answer the best I can. The quietest sound I can consistently hear with my cochlear implant is around 40db. I can hear really loud sounds fine, there is a limit to the maximum level of sound the implant can send into my ear so even if a sound is really loud, it isn't uncomfortable through the implant. The 'dynamic range' of the implant (basically the difference between the quietest and loudest sounds I can hear) is around 40db. I hope this answers your question. :)
My hearing isn't anywhere close to normal hearing, but it's a lot better than nothing. If you're around me for more than a few minutes, my hearing loss is definitely noticeable. One on one I can follow a conversation, but in groups or with a lot of background noise, I can't hear anything.
Hi Nelle sorry to be a pain but I clicked on to your go fund me link to raise money for a 2nd implant but it just takes me to the go fund me page to sign in, usually it goes straight to the person wanting the money! Maybe it's not up & running yet? I so want to help in some small way to you getting a 2nd implant! You deserve it plus your video's have been a great help! As for this video as always it was very informative & covered so much & any question you did not answer is covered in a lot of your other video's So once I know how to donate I will do it if that's ok? Is the target £30000?
Hi, thank you for your comment. Sorry about the Gofundme thing. That was me being technologically useless. It should be fixed now. Of course there is absolutely no pressure to donate but if you would like, it should be possible now. The target is £30,000 which probably won't cover the full cost, but should be enough for my family and I to cover the rest. I'm glad you have enjoyed my videos and have found them helpful. Nelle
Hi, cochlear implants can take a while to adapt, but if you have any concerns please speak to your child's doctor/audiologist. I cannot answer any specific medical questions as I am not a medical professional.
Hi, my niece has profound deafness, she is 2 years old now and my family wants to get a cochlear implant for her but it is very expensive and we don't have the money to cover that right now. If we get the surgery done after a while like after 2 years will she still be able to talk or will her speach not develop properly ?
Hi, I'm not an audiologist so I can't give specific recommendations. Most of the time, audiologists recommend that if you're going to go down the cochlear implant route, that they do the implants as early as possible. But if you can't afford it, you can't afford it. The most important thing is for her to have as much language access as possible ideally in the form of a complete sign language. It's a common misconception that access to sign language prevents deaf children learning to speak, but more recent research says that it actually helps them. Also, speech therapy is pretty essential for developing speech in deaf kids. Again, I am not a professional in this area, and I don't know your niece so I can only give very general advice. Please see if you can get professional advice as soon as you can. :)
I can understand pretty well as long as there is not a lot of background noise. With background noise I still really struggle, but overall, I can hear better with my implant than I could with just hearing aids.
Hi, I used to get headaches a lot at first with the implant because my brain was getting used to the sound, but now I'm used to it, I don't get headaches as much. I still get headaches occasionally, but I'm pretty susceptible to headaches anyway so I don't know if it's connected to my implant or not. For tinnitus, I don't really experience tinnitus in that ear when I have my processor on. If I have my processor off, I do still experience tinnitus especially at night. I hope that answers your question.
I’m in same situation as you. 2 weeks ago I suddenly lost my hearing and I have been in shock to learn I am profoundly deaf. Now I’m researching the CI and came upon your channel. I don’t know how am I going to fund it as I’m not in a country where healthcare system covers it all nor my insurance covers it. Anyway, I just donated to your go fund me and will do again as soon as I can. Everyone deserves to be helped 🙏
Hi, thank you so much for donating (please don't feel any obligation to donate to me). Have you been given steroids etc. to try and recover some hearing? I hope you're coping alright with everything. It might be worth doing some googling to see if there are any organisations that can support you getting a cochlear implant if that turns out to be the best option for you. Sending you positive wishes. Nelle :)
Hi, I'm glad you enjoyed the video. I still have tinnitus pretty much all the time in my left ear (the one without the implant). I think wearing my hearing aid in that ear helps a bit but not much. In my cochlear implanted side, I don't really have tinnitus when I have my implant on, but when I take the implant off, I still have it. I hope this answers your question. Nelle xx
@@chadmcintosh6312 don't worry indo have tinnitus snd have had it for years but after my first cochlesr operation the tinnitus got so loud I could hardly bear it but it did go down and so will yours. I had operation for upgrade to cochlear and had a bit of a flare up but it's gone now well Iean I still have tinnitus but not too bad
Yes and it did help. I now don't really get tinnitus in my implanted hear when I have my processor on, but I still get tinnitus in my other ear and when I don't have my processor on. :)
oh okay thanks for the response cuz tinnitus whewwww it's tough. 7 years just in my left ear and it's just appeared in my right it seems, now have to learn to habituate again cuz it's so loud but I'll save up for an implant, maybe in a year cuz I have SSHL in left and mild hearing los in right from noise. @@nellefindlay
Its ridiculous that the NHS only provides one implant... 30.000 pounds is nothing compared to the quality of life that someone can get with the second implant. Plus think about the productivity gain of being able to hear better. I hope you will find the funds to get it. But Britain really needs to get their minds together.
![One year with a cochlear implant update [OC]](http://i.ytimg.com/vi/pggx3zNU8l8/mqdefault.jpg)
![Confidence and Hearing Loss [CC]](http://i.ytimg.com/vi/u6GYxQWCsSI/mqdefault.jpg)
![What I Can Hear as a Deaf Person (Hearing Aids and Cochlear Implant) [CC]](/img/n.gif)
This was brilliant and excellent explanations. The only thing is that you said two reasons to not get one are that it isn’t suitable, or you don’t want one, and they are the only two reasons. But the third separate reason, as you mentioned later, is that some cannot afford, so I suppose that is a third separate reason. All the questions were really interesting.
Thank you Nelle! I was born with a hearing loss and muddled through it all my life. Now I am considering CI for my left ear. Good luck to you!
Hi found yr channel by complete accident, my hearing in my left ear 👂 is totally gone , so im getting hopefully the implant within the next 6 to 8 months depending on how big the queue is here in Finland 🇫🇮.
I enjoyed yr vid , but i. Must admit the one thing that I'd love to change is the chronic tinnitus i also suffer from .
But its good too see you smiling , thanks for all the helpful tips and thoughts .
Hi, good luck with getting your implant. Cochlear implants can help with tinnitus in some people. For me, when I have my processor on, I don't have tinnitus at all in that ear. I still experience tinnitus at night when I take off my processor.
Good luck with getting your cochlear implant and I hope it helps your tinnitus some.
Nelle :)
I also suddenly lost my hearing in both ears over 30 years ago age 19, to such an extent that I had to leave my job as a nurse age 24. I am profoundly deaf and was told that if I had been born with the level of deafness I have then I would have never have learned to speak. 8 weeks ago I underwent cochlear implant surgery in one ear, it was switched on 5 weeks ago. I have a nucleus 7 processor and I’ve got to say it took some getting used to. At first everything sounded like C3PO from Star Wars, just beeps and squeaks. But now I can recognise voices, hear birds tweeting although the sounds are not like I remember as they’re synthesised and very high pitch. I describe it as having a small tinny speaker sound and as if you have an in the ear headphone in so the sound is in your head, but I can understand a lot of speech. My hearing aid provides bass and only bass (at 120db) and the implant provides the missing top end. Im still getting used to the sounds and there’s a long way to go but I know someone who had the implant 4 years ago and they say the sound does become natural as time goes on and does begin to sound like you remember as the brain adjusts. I still rely on lip reading and I never learned to sign as I wasn’t part of the deaf community, I was very dizzy for a few days after surgery but I think I’m getting to the point where I’m starting to feel like I’m glad that I had it done. I still can’t use a phone but I’m hearing much more speech than with hearing aids alone, which was to be honest probably very little. I was offered a cochlear implant around 1990 but have been holding out for better technology, but it still seems to be years away. Stem cell or cochlea’s that have been 3d printed are being researched by the NHS but I’m told are years away from being available. I wish you well in getting your second implant.
I meant R2D2 not C3PO 🙂 also after surgery I lost my sense of taste on the implant side, this hasn’t returned but it’s only been 8 weeks so I’m hoping it will.
Thank you for your comment. Cochlear implants definitely take some getting used to. Mine is getting beter all the time. The side effects can be pretty weird too. I didn't have the thing with my taste, but the tip of my ear was numb for months. It's starting to go back to normal now though. I'm really glad I got my implant, it helps me hear speech so much and if I ever get annoyed with it, I can always take off the processor if I don't like it.
I hope you continue to experience improvement with your implant. Thank you for your positive wishes.
Nelle xx
I have a nucleus.8 and I'm getting confused by the technology as I'm.a technical probe
Hi. Just saw your post. Just wondering how much more your hearing has improved? I'm still in the process.
@@mariacastellanos3632 it’s about 15 months since switch on. Taste has pretty much returned just slight diminished on that side. With every mapping I could hear more. I recently had an hearing test (the beeps and squeaks) and hearing on implant side was within normal range as in normal hearing. Sounds are higher pitch than normal sound. Like listening through a tinny speaker but deep in ear like wearing ear buds. You have to be prepared to be patient and put a lot of listening practice in. I bought a Tv smart link to replace old loop system and with basic stuff that has a lot of talking I don’t need subtitles. I do with movies because of background music etc. I now hear bird’s singing and thinks I haven’t heard for years. I have no natural hearing so that’s pretty amazing. It’s a long journey a marathon not a sprint and tiring too but I can now join in conversations (better one to one at home rather than noisy places) music is still weird however my recent mapping has much improved it. Expect it to sound out of tune as the intervals between the notes aren’t spaced right. When there’s a lot of instruments and voices it sounds worse as the processor doesn’t distinguish complex sound well and voices can sound more garbled. That said my recent mapping on most songs I listen to made a vast difference. They reduced the top end and increased the mid. They say I’ll continue to see improvements as it takes a couple of years for full benefit. At switch on I only heard beeps and squeaks for a few days. I hated it and totally regretted having the implant. Week 3 I was hearing birds. The sound now is more natural just an octave higher I would say. To say I’ve been over 30 years without hearing it’s remarkable how much I’ve gained. It has been hard work you have to put effort into listening at first and not give up.
You shared so much in thoughtful questions and your own answers in this video. It's a quality video with clear video, clear audio, and each question was genuinely helpful. Thank you for going through the effort to gather your thoughts and order them into such a helpful video. I get my cochlear implant in the morning and have been watching videos of others to gain a sense of the community that I'm about to join. Wonderful days ahead for you and thanks again.
Thank you. Good luck with your implant. Let me know if you have any questions or anything. If you're interested in more specific information about adjusting to an implant, I have a video called 'Making the most of your cochlear implant' specifically for new CI users which you might find helpful.
Nelle :)
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Thank you Nelle, very good informative Videos, I have a similar hearing loss to you in both ears, just had a cochlear implant surgery, and being switched on next week. So your demonstrations have been very helpful.
This is really great information. CI are really a cool hearing device. Very helpful
Thank you for having real world info on here. All else I could find on TH-cam sounded like CI infomercials for deaf geriatrics and 6 year olds. With precious few actual experiences being shared.
Does anybody else feel like deaf folks are talked down to like they are children when purveyors pitch their "miracle ears". If so just ask about your devices' noise floor , frequency response , and maximum gain in decibels.
I am a profoundly deaf recently retired semi-pro musician and music teacher. I was born severe to profoundly deaf.
I have been a cochlear implant candidate for about a year now. My right ear is 98% Deaf with 12% speech recognition when amplified @ 145 db . My hearing aid purveyor says I am maxed out for BTEs and recommends I check into CI through Advanced Bionics.. My left ear is about 86% deaf at the time of writing this comment. I am looking into CI but only with great trepidation. Upon my first google search I'm finding a class action recall lawsuit against Advanced Bionics, it does not bode well . Am I being overly cautious or what? Paranoid even..?😁
I definitely feel like some of the things about cochlear implants can be a bit patronising and like they've just assumed that their implants are the key to transform your life. In my experience the stuff from the USA is way more like that than the British stuff (I think we're too cynical for that here).
Since you're a musician, you might find it interesting to read this study I found the other day about a guy with cochlear implants who has good enough pitch recognition to tune a guitar by ear.
www.ncbi.nlm.nih.gov/pmc/articles/PMC3961348/
My implant is from the Cochlear brand not Advanced Bionics and I am very happy with it. The sound quality is so much better than with hearing aids and there is no whistling or anything to worry about. If it helps, my implant centre aren't providing Advanced Bionics implants at the moment due to their technical issues so I only had the choice of Cochlear or Med-El so you might be better off going with a different brand. I have heard nothing but good things about Cochlear and Med-El and I know Oticon make implants too. I don't know a lot about them, but they might be worth looking into.
I don't think it's paranoid at all to be cautious when making such a big decision. I think it's very sensible to do as much research as you can into implants before getting one (or two).
I found this comparison chart really helpful when I was looking into which implant to get. It's really helpful just having all the information there in plain figures rather than having to filter through the marketing to find them.
www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwj01ePTi4z4AhUinVwKHUWKAHcQFnoECAwQAQ&url=https%3A%2F%2Fcochlearimplanthelp.files.wordpress.com%2F2021%2F06%2Fcochlearimplantcomparisonchart_v11.3b.pdf&usg=AOvVaw1OcyYhuhlgjtzTe7aEM6Oc
I hope this helps. Please let me know if you have any questions or anything about my implant. I'm not an audiologist but I can tell you my experience and what I've found from my research.
Nelle :)
Have a cochlear by cochlear
Hi Congratulations! After over 30 years with natural hearing since birth (1955), I became a dual hearing aid recipient and like you had to retire from work because of severe/profound hearing loss. June 13,2023 I became a single Cochlear recipient at my right ear and my activation date was also 5 weeks later on July 21, 2023. Amazingly after the initial start up mechanical sounds I was immediately able to hear/recognize REAL words! It sounded like I was in a tunnel or hallway but clearly words. My work is cut out for me but I am sure that for both of us it WILL get much better! :) P.S I am a very young 68 years old.
Congrats Nelle...well done video!
I'm just barely starting to go through this process right now I just got back from my audiologist a couple days ago and we're looking into getting me a cochlear implant on my left side. I haven't been able to hear from my left side for a while but my hearing ability has been dropping more rapidly recently and it's gotten to a point where even with hearing aids my speech understanding level is down in like the 10 to 13% range. it's very frustrating and I'm hoping that if I qualify for a cochlear implant my life will change for the better. I'm a little bit worried but I feel like some hearing in that left ear is way better than nothing even if it's weird.
Same here 🙋♀️. Just starting my process. Sudden lost March 2022.
Hey, thank you for creating thr content and sharing your experiences. Also thank you to those that commented and shared their's too.
I'm profound in one ear and severe in the other. My hearing has deteriorated over the last twenty years and will likley continue. I'm now a candidate for one and probably a second in the future (though the second will have to be privately funded.
Just wondering what the rehabilitation process is like?
Hi. The rehabilitation process is different for everyone. It's definitely hard work and you don't start out being able to hear that well (usually), but for me, it was definitely worth it and even about a month after my implant was activated, I could already hear a lot better than I could with hearing aids.
Wow .This is encouraging to learn
Thank you nelle, excellent answers to questions I've had. I will probably start my process next month.
Good luck :)
Oh my. I just checked your Go fund me, and you got a 10k donation a couple of days ago 😱 Congrats! Hope you'll be able to get the second CI soon.
I know, there's a super crazy story to that which I might share online at some point! I should be able to afford another implant pretty soon!
@@nellefindlay I'm so happy to hear that 🥳🥳
Thank you Nelle for an informative answers. I'll be evaluated next month for a possible cochlear implant. In 1993 I had a sudden hearing loss and vestibular loss on my right side. My left ear has moderate to severe hearing loss for which I have a hearing aid.. But, clarity of hearing is getting worse. I'm wondering if the implant will help me understand what people are talking about in "noisy" environments. Currently, words are just a shambles and the tinnitus just increases in volume (in both ears). My best wishes to you...
Lovely talk. Have donated. I hope you reach your target 😊 xx
Thank you so much!
Здравствуйте. Не могли бы Вы дать ссылку на коллективный отзыв по КИ Advanced Bionics. Мне недавно 8:53 именно этот КИ.
Hello Nelle ! I just want you to receive my good thoughts. One more person cares about you.
Your lovely, wish I could cover the entire cost.
Thank you for your video, really appreciate it
Thank you! I’m glad you’ve found my videos useful. :)
Hi Nelle, Thank you so much for taking the time to make this video and share your experiences with your cochlear implant. My grandmother who is now 86 lost hearing in her right ear in her 30s I believe, and eventually needed a hearing aid for her left ear a few decades ago but heard perfectly fine in her left ear with the hearing aids. Just last October she now had a big drop in hearing in her left ear and could not fully process/understand sound speech in her left ear anymore and after 8 months of not being able to hear she finally was able to get the surgery for cochlear implant. She is officially healed from surgery and is now on her second week of practicing using her new cochlear hearing aids but she is getting very very discouraged if she will ever hear again and sometimes doesn't even want to have the hearing aid on out of frustration...do you have any words of encouragement I can give to her as someone who has a cochlear implant? Also, how long did it take you to relearn how to process sound since getting your surgery? I read the average time takes anywhere from 3-6 months?
I was advised by my implant team that it takes a year to fully adapt. I adapted faster, but as a young person who has had normal hearing previously, I was an ideal candidate to adapt quickly. It probably took me about 2-3 months before I was hearing pretty well, but I still don't hear everything.
2 weeks is still very early days and it is completely normal to struggle with it and there is nothing wrong with taking breaks from using your processor if it gets too much or too frustrating.
It might even be worth just using it for like 2 hours a day of specific practice at first if that's all you can manage. It's a major life change, and that's a lot to deal with especially when you're 86 so be kind to yourself and don't listen to the people who don't get what it's like.
I think sometimes well meaning people expect CIs to be a miracle and get annoyed when your results aren't miraculous immediately even though that's completely normal.
@@nellefindlay Thank you so much for taking the time to write this. I will explain to my grandma who you are and then have her read this, hopefully it encourages her, she has been doing a little better since I wrote the original comment. Take care!
If you hear things as the link in your description states, how come you sound 100% perfect with your speech? This isn't a question due to any doubt but rather curiosity and amazement. There is an accurate representation of what it sounds like on youtube done by a university in America using a female that is deaf in 1 ear. It is quite different from what you posted in a way. It's more clear and as the girl explained, sounds like a wall between you and the noise. Perhaps because you are deaf in both ears, you are not able to give such an accurate representation. Awesome video btw.
Mostly it's because I lost my hearing as an adult and so I just remember how to speak. Also, when I'm recording videos I make an extra effort to speak clearly, and you can't really hear the fact that I'm usually very loud.
Here's a video where I explain a bit more in detail: th-cam.com/video/BxeaqQ0QYU4/w-d-xo.html
@nellefindlay your awesome! Thanks alot for replying to me. I don't often comment on TH-cam videos, but it's super nice to see when I finally do, that I get a response. Thanks much again 😊, especially for the links with more details 😀
Absolutely brilliant no drama summary of this. NHS being stingy and the politicians prioritising weapons snd people in other countries more.
Hi Nelle, Thank you so much for your video! I work in assistive technology for a day program for people with disabilities and I have a young client who has profound hearing loss in both ears and has cochlear implants. I am working on creating a support plan for her but have really struggled to find non biased information about cochlear implants. My main point of concern is discussing situations in which she may receive uncomfortable auditory feedback. Have you ever noticed scenarios or sounds that frequently are really unpleasant? I have heard that riding in the car with implants on can be uncomfortable but beyond that, I don't know. My client is nonverbal and has frequent meltdowns that many staff say seem unprovoked. The solution to these frequently is taking or turning off her cochlear implants, therefore, I feel there may be some sort of environmental stimulation that causes discomfort. I would love to hear your insight. Thanks again for your videos, so helpful!
Hi, thank you for your question. As you can imagine, I can't really give a conclusive answer as I haven't seen the situations that give her meltdowns in person so I don't know exactly what sounds there would be there. However, I do have a couple of theories that might explain it.
Theory 1: Her implants might not be programmed correctly for her and might be giving her a really uncomfortable electric shock sensation when she hears certain frequencies. Oftentimes with young children or patients with additional disabilities, the audiologist can't really get feedback when programming the implant if something sounds bad so they kind of have to guess what settings would be best. For a while after my implant was switched on, high pitched sounds would be painful for me so I had to ask for them to be turned down at the following appointment. Your client might be experiencing this and not be able to explain the issue and it wouldn't be obvious to other people.
Theory 2: Too much background noise makes the sound from cochlear implants just sound like radio static which is really overwhelming at times and I often need to turn the volume down. I am on the autistic spectrum so I might be more sensitive to this than some other people so this might be more or less of an issue depending on your client's situation. Also, towards the end of the day, I often find that sounds seem louder and more intense and I need to turn my implants down. If her meltdowns tend to be in noisy environments or at the end of the day, this might be the issue.
Theory 3: The cochlear implants isn't what's causing the meltdowns, but she finds it easier to calm herself down from a meltdown when the implants are off so she doesn't have to hear a load of sound when she's already distressed and trying to calm down. I know you said that other people don't notice a particular trigger for her meltdowns so maybe this theory is wrong, but I think it's worth pointing out, just in case.
I hope this helps you figure out what might be happening with your client and you can get it resolved soon. Meltdowns are really awful (both for the person experiencing it and for the people around them) so I really hope you can figure out how to help her.
Nelle :)
@@nellefindlay thank you so so much for your thoughtful responses. I will discuss all of this with her and her audiologist. Thank again for your content!
No its o ly strange sound at first after further adjustments it gets better. I think they are good
Hey Nelle, thanks for sharing all this info. It’s interesting hearing from someone who is going through a similar experience to myself. I’ve been deaf in one ear for about 10 years now and I’ve been holding off having any surgery as I was worried about tampering with my cochlear in case they find some sort of cure, but it’s getting to the point I’m fed up of being deaf in one ear and I’d like to reduce the tinnitus in that ear too. When I was first diagnosed with ssd I was also told that cochlear implants were only available on the nhs to people who were deaf in both ears so I wasn’t even aware this was an option to me until today!
I was wondering, does the robotic hearing become more like normal hearing after time, when your brain adjusts and gets used to it? Also, can you see the implant under the skin when the processor is removed? I know you have long hair so it doesn’t apply to you but maybe you remember from after you had the surgery done. I’m a guy with short hair and shaved sides, so just curious to know if it would be visible if I decided to not wear it at certain times?
Thanks
Hi, just to clarify, I am profoundly deaf in both ears so that's why I got a cochlear implant on the NHS. However, there are definitely people who are single sided deaf who get a cochlear implant for their deaf ear. The channel I usually point people towards for information on that is called Nessa's lifescape. She got an implant around the same time as me and she has an asymmetrical hearing loss where one ear is profoundly deaf and the other only has a mild-moderate hearing loss. Overall, her channel has a pretty similar vibe to mine so if you like my videos, you'll probably like hers.
I also know that a lot of SSD people chose to go for CROS hearing aids or BAHAs if you're looking for less expensive options that preserve your cochlear and allow you to hear from your deaf side (although these don't allow for directional hearing).
Cochlear implants sit completely under the skin and are pretty flat. You can definitely feel where it is under the skin, but I don't think you'd see it even with short hair (although obviously the processor is visible). BAHAs often have an abutment which is visible through the skin although there are some newer versions which attach with a magnet like a cochlear implant which wouldn't be as visible.
You also definitely adapt to hearing with a cochlear implant and it gets to sound pretty normal after a while.
I hope this answers your questions :)
When you said, i can hear people behind me, i started to cry because i am %90 deaf and i am using hearing aids. But doctor suggest me to get implants but i cant afford it now. And i cant understand if i dont read peoples lips. I am 24 years old and i cant count how many times i get fired because i cannot hear.
That’s awesome that you’re planning on a second cochlear implant. I am still trying to process on my first cochlear implant. Does the process take a while? How long it took you from the time the audiologist told you that you’re a cochlear implant candidate
Thank you for your comment. I really hope I'll be able to get a second implant. It definitely took me a while to adjust to the cochlear implant. I think I'm probably still adjusting to it gradually. I think the process of adapting to an implant is probably very individual so there isn't really an exact timeframe.
I received my cochlear implant around 6 months after losing my hearing, but that is not an average timeframe. I was put through the process faster because I lost my hearing very suddenly so I was prioritised.
I hope this answers your question.
Nelle xx
Auto wish I could have 2 implants but my right ear isn't suitable
I'm.lucky I live in Britain and its all free under the nhs.
Can anyone help me the breeze box with cochlear which ybare supposed to use every night. I saw a video and the speech processorvwas put in plus the battery does it get recharged in the breeze box or is the battery putbin there to dry I'm confused what I should put in the breeze box
Hello. Thank you for the information! Could you sleep in it if you wanted to? Even just as a once-off or by accident?
Yes, it would probably just fall off and the battery would run out, but as far as I'm aware, it's not medically dangerous or anything.
Your sperch is excellent. Did you receive the implants young?
No, I received my cochlear implant 3 years ago. The reason my speech is very clear is that I developed my hearing loss as an adult so I had already learned to speak.
Thank you for sharing information I have menieres disease as well and there is a possibility that I maybe deaf one Day because I'm just 26. I love language learning I already speak english and french along with my Mother language. I'm so sad and curious will I be able to understand and speak or learn other languages after the cochlear implant
Hi, thanks for your comment. I'm actually in University at the moment studying modern languages. I'm studying Spanish and British Sign Language and being deaf hasn't really been a problem. There is actually a video coming out on my channel later today about my experience with that.
You 100% can learn other languages if you're deaf and have a cochlear implant.
I hope this answers your question.
Nelle :)
Hello, will it work for person who has been deaf for her entire life? For almost 25 years. Thanks for your answer
Results can vary, it's definitely worth speaking to an audiologist about her options.
I had my implant in my ear at 24 years old with no history of ever hearing in that ear. However I have my other ear normal (only recently aided with a hearing aid) so I can speak and understand speech.
If not single sided deaf, it would very much depend and as Nelle said it would be best to speak to an audiologist.
I watching this video and then I started watching the cochlear implant simulation video, the. I came back to this one and woah, that was weird
It feels really weird at first but after a while you just get so used to it that it becomes normal.
can someone with 100% hearing loss since birth get CC? I would think the brain wouldn't even know what to do with those signals coming from a place they have never come from before.
It depends. If someone born totally deaf gets a cochlear implant as a young child, they will usually be very successful with their implant as their brain is able to adapt to it. Of course they won't be able to hear exactly like a hearing person, but still have good access to sound.
For adults who have grown up without any access to sound, cochlear implantation is an option, but is usually not as successful. Most of these people can hear the sound but not really be able to distinguish speech as their brain can't adapt as well to the sound. Oftentimes these people don't wear their processors very much as they don't get much benefit and can find the sound overwhelming.
These are generalisations of course. There are exceptions to everything.
How long did the process take from when you had the implant to when you began hearing clearly?
I'd say about 3 months before it started to feel comfortable, but it was a very slow process so I can't give a super specific answer.
Are you able to cover the cochlear with your hair so it can’t be seen?
Yes, I can cover the processor with my hair.
How loud can you hear with the implant? like how many db?
Hi, I'm not really sure what you are asking with this question, but I'll try to answer the best I can. The quietest sound I can consistently hear with my cochlear implant is around 40db. I can hear really loud sounds fine, there is a limit to the maximum level of sound the implant can send into my ear so even if a sound is really loud, it isn't uncomfortable through the implant. The 'dynamic range' of the implant (basically the difference between the quietest and loudest sounds I can hear) is around 40db.
I hope this answers your question. :)
Which kind of cochlear do you have? I mean which brand med-el or advanced?
I have the Cochlear brand with the Nucleus 7 processor.
so how is your experienced hearing now in comparison to before the hearing loss
My hearing isn't anywhere close to normal hearing, but it's a lot better than nothing. If you're around me for more than a few minutes, my hearing loss is definitely noticeable. One on one I can follow a conversation, but in groups or with a lot of background noise, I can't hear anything.
Hi Nelle sorry to be a pain but I clicked on to your go fund me link to raise money for a 2nd implant but it just takes me to the go fund me page to sign in, usually it goes straight to the person wanting the money! Maybe it's not up & running yet? I so want to help in some small way to you getting a 2nd implant! You deserve it plus your video's have been a great help!
As for this video as always it was very informative & covered so much & any question you did not answer is covered in a lot of your other video's
So once I know how to donate I will do it if that's ok? Is the target £30000?
Hi, thank you for your comment. Sorry about the Gofundme thing. That was me being technologically useless. It should be fixed now. Of course there is absolutely no pressure to donate but if you would like, it should be possible now. The target is £30,000 which probably won't cover the full cost, but should be enough for my family and I to cover the rest. I'm glad you have enjoyed my videos and have found them helpful.
Nelle
My 7 years child just did cochlear implant and activated 2days ago. Not turning when she hear voice
Hi, cochlear implants can take a while to adapt, but if you have any concerns please speak to your child's doctor/audiologist. I cannot answer any specific medical questions as I am not a medical professional.
Can I hook up my cochlear implants to my 2024 Kindle Fire?
It depends on the model you have, definitely check your user guide.
Hi, my niece has profound deafness, she is 2 years old now and my family wants to get a cochlear implant for her but it is very expensive and we don't have the money to cover that right now. If we get the surgery done after a while like after 2 years will she still be able to talk or will her speach not develop properly ?
Hi, I'm not an audiologist so I can't give specific recommendations. Most of the time, audiologists recommend that if you're going to go down the cochlear implant route, that they do the implants as early as possible. But if you can't afford it, you can't afford it.
The most important thing is for her to have as much language access as possible ideally in the form of a complete sign language. It's a common misconception that access to sign language prevents deaf children learning to speak, but more recent research says that it actually helps them. Also, speech therapy is pretty essential for developing speech in deaf kids.
Again, I am not a professional in this area, and I don't know your niece so I can only give very general advice. Please see if you can get professional advice as soon as you can. :)
I just had a cochlear implant......😅😅
In humidity, does perspiration cause any difficulty to the device ? Thank you.
They do have a bit of water resistance but if they get very wet they can have a problem.
@@nellefindlay Thank you very much. Regards.
How is converstaion woth these can you understand speech better
I can understand pretty well as long as there is not a lot of background noise. With background noise I still really struggle, but overall, I can hear better with my implant than I could with just hearing aids.
Do you get headaches or tinnitus with implant?
I am looking for reply for this question
Hi, I used to get headaches a lot at first with the implant because my brain was getting used to the sound, but now I'm used to it, I don't get headaches as much. I still get headaches occasionally, but I'm pretty susceptible to headaches anyway so I don't know if it's connected to my implant or not.
For tinnitus, I don't really experience tinnitus in that ear when I have my processor on. If I have my processor off, I do still experience tinnitus especially at night.
I hope that answers your question.
@@nellefindlay yes it answers my question. Thank you
I’m in same situation as you. 2 weeks ago I suddenly lost my hearing and I have been in shock to learn I am profoundly deaf.
Now I’m researching the CI and came upon your channel.
I don’t know how am I going to fund it as I’m not in a country where healthcare system covers it all nor my insurance covers it.
Anyway, I just donated to your go fund me and will do again as soon as I can. Everyone deserves to be helped 🙏
Hi, thank you so much for donating (please don't feel any obligation to donate to me). Have you been given steroids etc. to try and recover some hearing? I hope you're coping alright with everything.
It might be worth doing some googling to see if there are any organisations that can support you getting a cochlear implant if that turns out to be the best option for you.
Sending you positive wishes.
Nelle :)
How do you know if a song is out of tune, if you’ve never heard a song in tune
I used to have hearing and lost it so I have heard music in tune.
Hello, thank you for your video. I am wondering do you still have tinnitus after the cochealer implant?
Hi, I'm glad you enjoyed the video. I still have tinnitus pretty much all the time in my left ear (the one without the implant). I think wearing my hearing aid in that ear helps a bit but not much. In my cochlear implanted side, I don't really have tinnitus when I have my implant on, but when I take the implant off, I still have it.
I hope this answers your question.
Nelle xx
@@nellefindlay thank you for your reply, that's very helpful for me. Best wishe s.
Damn. I just go my surgery done 2 half weeks ago. Before getting it tinnitus didn’t have it much. But now ? Every day. Wears me down all the time
@@chadmcintosh6312 i am sorry to hear it, what the doctor said about it?
@@chadmcintosh6312 don't worry indo have tinnitus snd have had it for years but after my first cochlesr operation the tinnitus got so loud I could hardly bear it but it did go down and so will yours. I had operation for upgrade to cochlear and had a bit of a flare up but it's gone now well Iean I still have tinnitus but not too bad
You are so sweet!
Thank you!
Do you have tinnitus and did it help??
Yes and it did help. I now don't really get tinnitus in my implanted hear when I have my processor on, but I still get tinnitus in my other ear and when I don't have my processor on. :)
oh okay thanks for the response cuz tinnitus whewwww it's tough. 7 years just in my left ear and it's just appeared in my right it seems, now have to learn to habituate again cuz it's so loud but I'll save up for an implant, maybe in a year cuz I have SSHL in left and mild hearing los in right from noise. @@nellefindlay
👍👍
Its ridiculous that the NHS only provides one implant... 30.000 pounds is nothing compared to the quality of life that someone can get with the second implant. Plus think about the productivity gain of being able to hear better.
I hope you will find the funds to get it. But Britain really needs to get their minds together.
Wait, am I the only one hearing voices and things in the background?
It's probably just my family. I can't really hear background noise when I film my videos so sometimes the audio quality is questionable.