Hi Katie❤ I'm Sara, from Italy. I'm so scared, they told me I'm both Heds and Veds. They are not helping me, they just say me "It's a case too complicated".
Hi Sara. I’m so sorry you are going through this. You can use The VEDS Movement help and resource center to find knowledgeable doctors and get support. Thevedsmovement.org/ask. I know there are knowledgeable doctors in France and I hope in Italy as well. Have you had genetic testing?
I’m not familiar enough to comment on it, but I’d recommend reaching out to the VEDS Movement help and resource center. There’s a nurse there who may be able to help. Thevedsmovement.org/ask
Thank you for sharing this story. It means so much.
Thanks for sharing ❤
Hi Katie❤ I'm Sara, from Italy. I'm so scared, they told me I'm both Heds and Veds.
They are not helping me, they just say me "It's a case too complicated".
Hi Sara. I’m so sorry you are going through this. You can use The VEDS Movement help and resource center to find knowledgeable doctors and get support. Thevedsmovement.org/ask. I know there are knowledgeable doctors in France and I hope in Italy as well. Have you had genetic testing?
What are your thoughts on ifuse surgery?
I’m not familiar enough to comment on it, but I’d recommend reaching out to the VEDS Movement help and resource center. There’s a nurse there who may be able to help. Thevedsmovement.org/ask
@@TranslucentOne got it, thanks