Hugh Cox

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  • เผยแพร่เมื่อ 12 ม.ค. 2025
  • In this episode we’re going to talk to Hugh Cox, a member of the Vascular Ehlers-Danlos Syndrome community diagnosed just in 2022. He was first misdiagnosed with a clotting disorder.
    Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org (thevedsmovement...) , loeysdietz.org (loeysdietz.org) , and marfan.org (marfan.org) . You can also find information and resources through the John Ritter Foundation, johnritterfoundation.org (johnritterfoun...)
    Links to resources, events, and research opportunities:
    VEDS Collaborative Research Study: Email vedscoll@ohsu.edu (mailto:vedscoll@ohsu.edu)
    Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:
    marfan.org/cal...
    Join a Walk for Victory:
    marfan.org/walk/
    Help and Resource Center
    marfan.org/ask
    loeysdietz.org...
    thevedsmovemen...
    Support
    Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: staying-connec...
    You can make a one-time donation to Translucent One LLC at www.paypal.com..., or you can also support this podcast by subscribing to my Patreon at / translucentone .
    Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
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    Disclaimer
    The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
    Source (staying-connec...)

ความคิดเห็น • 1

  • @SandrinaN
    @SandrinaN 4 หลายเดือนก่อน

    Thank you for sharing your story.