The Boy in the Bubble | Retro Report | The New York Times
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- เผยแพร่เมื่อ 20 ก.ย. 2024
- In the early 1970s, an unusual boy captivated the nation. Now, decades later, his story continues to unfold in remarkable ways.
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The Boy in the Bubble | Retro Report | The New York Times
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![HIWWHEE | OHM [Official MV]](http://i.ytimg.com/vi/OJJLtTLqLag/mqdefault.jpg)
When nasa gave him a astronaut suit my heart melted
an*
Human Being stfu
I ugly cried.
@@nomyum7042 animes profile pictures should be seen not heard
@@zachsakaria4957 i think thats an onion
Just imagine being a mother and the first time you touch him will be when you bury him
😭😭
It's ye boi blayt :(
Well no what about when you are giving birth to him
nope first time she touched em is when he came out
I’m pretty sure his mom wasn’t able to touch him at birth since they saw that he would get sick
I am someone with severe autoimmune deficiencies, and multiple rare diseases. Without David and his mother and his work I’d have died years ago. Every spring my body revolts, and I start going into anaphylaxis every time I am exposed to common seasonal allergies. The research he helped spur has saved my life many times over, and will continue to save lives all over the world. I am eternally grateful.
Emma Flanagan That’s amazing Emma. I hope you are well
somehow i think youre exaggerating for attention.
GrowYourOwnFood Wow. I didn’t know that about depression and anxiety being linked to bad gut. I must have a gut full of rotten whatever it is. This is interesting and definitely worth looking into
Emma Flanagan Same thing for one of my cousins, saved her life.
@Aaron Espinoza So rude.
The poor mom looks like she still agonizes over the decision she made w him. 😥
As a mother you can't help but feel responsible when your child dies... It doesn't matter why.
Her strength in this is amazing. How she chalked up the bone marrow transplant of David as "something we live with".
lily blu she did the best she could ☹️
Parenting is full of difficult decisions; especially when there is limited information to make decisions off of.
@@KiddBloo86 That is true, but I think a lot of people have a hard time accepting that. They will blame themselves for making that decision and not somehow knowing then what they know now. It takes a certain type of strength and clarity to accept that you were essentially flipping a coin at the time, you chose the wrong side and you have to live with that.
That poor woman. She buried two of her children. How heartbreaking 😢
M Detlef I know, it’s horrific 😢
M Detlef the world doesn’t need more humans!!!!!!!! Don’t you see how messed up we’ve left this world?
Indira Lorenzo omg. If you honestly think like this, I hope you NEVER become a mother, you don’t deserve it!!
@@milkshake42069 & Indira Lorenzo: Better than abortion, Carol Ann Vetter could've practiced common sense & *contraception* after the death of her first son.
JenJen Jen Why is that 😂😂 you don’t know me at all to know what I deserve. But if someone doesn’t want a child then it’s THEIR choice. The world would be a better place if others learned how to mind their business and stop trying to control others.
“Why don’t we pull all these tubes out and let me go home?” absolutely broke my heart.
Same, I can't imagine my kids saying that to me. It would just break me.
I define that as death.
@@hmm7895 duh
Yes, heartbreaking, especially for the mom to hear that. I think I would have lost it right then and there. Very strong mom! God bless her.
He is supposed to be there
“I always thought that at some point,when david left the bubble that he would be a researcher himself and help mankind that way. It turned out, he is helping mankind but in a different way.”
The most powerful message ive ever heard
Then, you need to listen more
It’s not a message though. It’s just a nice quote.
SAME HERE i just got here yesterday so i don't know much
Wow
Rip to all of the children that passed away for this
Including the uncounted millions who passed away before the condition was ever known. From the era when babies "just died sometimes" because we didn't know about nor couldn't help with their conditions such as SCID, type I diabetes and many more.
keeping at 99 likes welp 1k
Rebecca Williamson 🙏🏻
dacypher22 just an L for being born in the wrong era
I wonder if David could had been at risk for autoimmune diseases despite not having an immune system.. As you mention. .. T1 diabetes
imagine your child dies and TV shows start to make a joke out of it
I would sue
Adam Sandler made a parody about a boy in a bubble and Adam's mom sued the Sandler, the studio, and the production company. I believe there was a settlement.
It's funny tho lmao
are you talking about the movie "the boy in the plastic bubble," because that movie wasn't making fun of the kid.
i would like this comment but its got 666 likes
I literally just realised that if David had lived, he would have been 47 years old, probably married with children
Oof
If he had been healthy, he could have done those things.
*"Married with children"?!* Was there a thriving dating scene/singles bar in his bubble, which they neglected to feature in the movie?
Starbucks Drink aww
June Zapitron true
Seeing him in that bubble is so heart wrenching and breaks me. I can't even imagine how he survived and lived all his life in there. God bless him.
As far as I can see God did not bless him. It beats me how you all are so blind.
Mike w that’s mean to say eww what if someone said eww to u from not be able to control it
@@ElNightmareYT it’s not that God didn’t bless him it’s that the devil saw some weakness of some sort and came in God is not at fault here satan is
@@ElNightmareYT Having a loving family that not everyone has? Experiencing love and joy that not everyone feels? Having to be a great stepping-stone for science development? Have you never learn to appreciate?
Death is a blessing. Know that he's happier in Heaven with the Lord than to live in this horrid world of pain and suffering.
Who is blind?
@@red_dulge Death is not a blessing, that has to be one of the stupidest things humans have ever believed.
We be complaining about being at home for 8 months while this kid has LITERALLY been quarantining his ENTIRE life 🙄
That really puts things into perspective
Speak for yourself! And this is a TOTALLY DIFFERENT situation!
@@Petra44YT Karen alert
Well, he has never known life outside the bubble. When you have enjoyed freedom and have it taken away from you all of a sudden, people will struggle. It's not a Karen complain, it's common sense
It does put things in context...
I knew David. I knew his Mom and Dad. I went to his House and talked to him. His Sister was a Member of my Swim Team, and all of us protected David's Secret with our Live's. He was funny, happy to a point, and very cool to know, in every Way. God rest him , for his Bravery. Few will ever face what he had to face.
Mark Greiser Thanks for sharing that yu knew him. what secret??
Secret???
I went to the school named after him
Mark Greiser What secret?
secret??
I went to the school dedicated to this boy, David Elementary was one of the best school years of my life. The mother would come and speak to us about her son every year.
That’s cool, I like your profile pic btw;)
@utmag WE REACH FOR THE SKY-- TOMORROW IS WAITING
@utmag this was hella throwback- I can't believe I remember that song. you too, I'm surprised as well
WHAT YEAR???
Where my David gang at 😎
At least he lived 2 weeks out of the bubble imagine the happiness of being out for 2 weeks after spending your whole life in a bubble.
He was terrified of the world outside the bubble, that's partly why he didn't use the "space suit" more :(
He was sick in the hospital when they took him out of the bubble. Hardly happy. Probably was confined to some kind of room at that.
@@Garbeaux. yes, he was doing for those two weeks, and in a mostly sterile area
He was dying of Lymphoma for those 2 weeks, Einstein.
Didn't know that, sorry for not being informed.
I didn't realize "bubble boy" was based on a real bubble boy
What the boy in the plastic bubble with jon Travolta
I thought it was just a wacky 1990s movie
M2
Me either. Now I find the movie is so means. God with David and blessing his family. Btw, he has an angel smile and heard he is also a funny person, who knows he just an angel who passed by and give joy. Amen
Well known fact for every true seinfeld fan. Is on the DVD commentaries.
Boy: mommy! I'm a star!
Mom: why, yes you are sweetie, you're the light of my life.
Boy: not that kind of star mommy, I'm famous!
Well thats a bit sad.
Dayum
Thousandth like
Children dont see the the problem with that. They're children
A star shines above the sky but won't stay for another night
If he’s famous he’s should be able to *touch someone*
'Why don't we just pull all these tubes out and let me go home'
This line killed me
💔💔💔💔💔💔
he did go home 💔💔
😢
They probably told him that was an option if things got bad
@@charliepuppy. wwwwwwwwww😊wwww😊w😮ww😊😊 9:32
His life was like a sadder Truman Show.
F A C T S 💔
At least Truman had a big town to roam all over, and he didn't know.
It was actually true The Truman Show isn't true I'm not sure if you know that or not but this is a true story Truman Show was not
I'm dude it seems pretty close
Wow just wow reality is stranger then fiction
More like the reality that is unobserved tends to be different than what we have already seen. If you take action to do something, that action cannot be the same, only similar, to previous actions. But sometimes there is very little similarity due to factors like distance. And the differences are often jarring.
Secr
Than not then sir
There is a movie about that
True he will be surrounded by people that love him everyone will be surrounded that people love them everyone I just one person everyone
“But it turned out, that he is helping mankind, but in a different way.”
A very bitter-sweet yet powerful way to end the video.
He taught the world more about cancer and the immune system and disease after his death. His life and death were extraordinary, tragic and totally out of his control. I think he’d like to know how much he taught us in his death
O LPGA get saw
sad that davids life is a joke to many. he was such a strong little boy who didn’t deserve any of that. his story is so inspiring
How was his life a joke to many? Just because he inspired a comedy movie in poor taste once? I have a sneaking suspicion he would have laughed at how ridiculous it was. Comedy at its most powerful tends to draw from pain.
He's luckily in a better place now
@@DoYouLikeScaryMovies2024He is FREE and can breathe..now..he can run ,walk and do what he pleases in heaven
If he was born today, he would’ve lived. This is so sad, knowing that she lost 2 of her kids from the same disease. ❤️
I wouldn't have anymore children after all this ordeal
Doctors warned them that if they had another male child, he would have 50% chance of getting the disease. Since they already have a healthy daughter, they should've stopped having more children. Poor David.
People live today because of him
No, if he would have born today then there's no cure. It is because he was born in the past that we found prevention.
You learned better because of old technology....
This truly makes everyone realize how gifted they are in life...
I'm not, cause i dont have lungs
@@jeetraj2371 Atleast you can walk freely, you are not quarantined for life
@@hamitodo5855 How do you know that they have legs?
You're not allowed to be happy becuase others have it better than you.
@@hamitodo5855 stop pushing that toxic positivity down people's throats, bro. people don't have to be grateful that their situations are better than others.
So moving, heartbreaking. I'm glad newborns are getting tested. But, why are some states not doing it?
because it seems, once a kid is born. the passion or interest in all the pro-life people drops by 90%
NikkoYM o
Brett, that's right.
I once heard, "Arizona is so progressive!" By someone who has never lived here. I am continuously outraged by the lack of choices here, and am convinced it is due to voter suppression and the "snow-birds" who live here part-time, who get to make decisions for everyone when they vote.
Karmarie seems like the snow birds are old people. Which lean republican. So that would make sense why they are anti choice.
I hate saying I am pro choice which is also saying I am anti life. That’s not true.
It should be PRO choice or ANTI choice.
That “hi, mom” w/ a peace sign at 12:02 gave me a stab in the heart. Such an innocent, loving boy.
💙💙💙
sweet loving boy, indeed
9:02 This made me extremely angry. This boy contracted a rare disease that he did not survive and they JOKE?!
It’s funny tho
@@10inyamom98 That's very rude.
@@confidencewhere9185 how so? I can't find shows that turn serious or real life situations funny?
@@10inyamom98 I'm just saying it's rude to the kid. He had a very serious illness and died. I personally think it's very rude, but I can see why you think it's funny. The show tried to portray it in a comedic manner.
@@confidencewhere9185 it’s not rude to either of these kids imo but ok.
Man, those parents that turn advocates after the loss of their children are absolute heroes to me and the bravest people I’ll ever see. If that happened to me I could only see myself become more bitter and angry as science progresses. Always thinking, “Why couldn’t you have saved him. Why not then? Why now?” Applause for them.
Well said
@@PartnershipsForYou indeed
I cried while watching this. David was such a beautiful boy.
Yes he was and he came from a pretty cool family. We loved him and his Family and spent much time with them, doing Swim team and other Activities.
chelsea violet im literally in tears, i just wanted to hug him the entire video
I buried one child... I can’t imagine burying another.
I’m sorry for your loss.
Sorry for your loss
My condolences
I'm so so sorry.... I dont know how you have the will.... my thoughts are with you
Sorry for your loss.
how does the inside of the bubble stay sterilized?
angie if no bacteria ever enters the bubble, there was nothing that needed to be sterilized.
angie No air or viruses can get in so it stays clean
James Heathcote how is it possible for no bacteria to enter it ? little yes but for absolutely no bacteria to enter it? i find really hard to believe. how did they keep him clean? bathing/showering etc. what about his bowel movements? he had to be fed somehow. food contains bacteria.
J. Jo Bacteria sounds like a really scary word. But the reality is we filled to the brim with billions of harmless bacterial microbes at all times. We’ve got some on our eyelashes that feed on our eye goop. Beneficial bacteria are completely fine to be in any kind of sterilization unit, what you’re trying to avoid are foreign or aggressive microbes. Food when cooked properly is sanitized of any of those harmful microbes, and his bathroom would probably have to be sterilized after every use to avoid to reproduction of microbes that are borne from fecal matter. He could handle the ones that were inside him, but anything his body wasn’t acutely used to was dangerous to him. Hope that made sense ❤️
@@morgiiiklein5385 that makes sense. good points all around
His death was not in vain.
NASA didn't think it was in vain. They learned a lot , from their work with him. He was a very cool Kid, and loved it when the regular Kids of the neighborhood, would go visit. I was among those Kids.
Mark Greiser wait you’ve visited him?
@@markgreiser464 what did he say?
@@markgreiser464 No ... you're a sad liar though.
@@Nautilus1972 , keep telling yourself that. There a loser here, alright
Breaks my heart when children can’t live their life to the fullest
hit me right in the feels
me too ; (
Yehuda Menachem are you Canadian? Only heard that out of Canucks! Go Canada! Sad story I agree.
Yeah i found myself crying I had no idea about this disease
It's always a tragedy to lose a child. But it's amazing how David's life has helped so many others. He lives on through them.
It’s the only silver lining to his whole life
If I was in a bubble, I rather die by hugging my parents than live in a bubble for 12 years
That's how David felt at the end.
This is heartbreaking to me
Omg is this another Mr. Succ?
whomst'dv
Yeah it really stonks
666th like
@@zollbug 6 days ago, wow god forbid that's the devil's sign lmao
It is offensive, but had it not been for these tasteless cultural references, I'd have never known about this. I'm not sure how I should feel about the bubble boy jokes.
MacGuffin I don’t think those bubble jokes are funny at all.
@lullabykoo “even the boy in the bubble had a deck of cards.”
Horrible
Eh well comedy is comedy
This brought tears to my eyes. As a mother, I can't even imagine what these mothers went through and the courage it took to keep them sane.
You know, I was having a bad day and was about to go to bed. Then I saw this in my recommended and decided to watch it. It's nice to know about something great in this world. Thanks, goodnight.
By chance, I stumbled on this site and it brought back bittersweet memories. I had the extraordinary opportunity to film David, his mother, his sister, and his doctors for a PBS documentary. I had already heard the complaints of people who were upset that the March of Dimes was spending so much money to keep this child alive. It is important to remember that no one knew how David's story would end. Furthermore, he was a bright, active, and very personable child. There was real warmth, love, and affection freely expressed between him and his mother as well as his sister. The children even played together. When David went to the hospital, he charmed the nurses and doctors. I don't believe that any of them saw David as a medical experiment. They saw a small boy for whom they were trying to find a cure. In the attempt to find a cure, David accomplished a great deal. He left a life-saving legacy which is more than many people who have hung around for sixty, seventy, eighty years, and more have done. - - Somewhere in a locker is the original film that was transferred to videotape for the PBS broadcast. Perhaps there is an institution that would like to have it.
Thank you so much for these details. I sure sense David was absolutely personable, like you say. Sweet boy, clearly loved so much and parented so lovingly despite the challenges.
The fact that it worked for a while and then gave him cancer and then his heart stoped makes me cry every time.
You sweet and loving carebear. hugggggg….
It’s so sad to lose your child . I’m so glad that if identified they can prevent death. David was a beautiful boy. His sister did a wonderful thing. Through their help they have saved others who would have died.
This is one of the saddest documentaries ever! I don't care how inspiring it is, this health condition and circumstances this boy was in made him and alot people around him suffer! Those poor people to have to have lived with that sadness all their lives! You see it in that mother's face, and even those doctors who tried they very best!
YES AND YES........................
Thats not a life for a kid period. .it is better to be dead sorry than live in a bubble This .Poor kid David never was touched or hugged ..never too sad..😢😢He stayed 11 years unnecessary in a bubble and could have had a bone marrow transplantation as a baby..sorry
.
Who else is watching this during COVID19 quarantine?
Ok boomer!
@@syahmansyahputra5073
That's not how it works.
Yuh
Who thinks this kid had the right idea all along
No one
I can’t even begin to imagine how traumatic it must’ve been for his sister given the fact that she was the bone marrow donor. Imagine trying to help save your brothers life and in the end the exact opposite happens.
That poor kid. Totally heartbeaking.
I think his 2 weeks outside his bubble feels like years for him.I can't imagine how excited he was on that day.
The mother wasn't selfish, far from it. It comes down to how the child would have to decide for themselves, if David had grown into an adult what choice would he have made? The damage on his physique was already done and he may have not been able to function in society. If you had been in this situation what would you have done, I myself would probably have asked for a way to be 'relieved' of my life though my life would be in the hands of God and not necessarily be my conscious choice as to whether or not I would live.
Lil Peep so what if they believe in God?
She was selfish. She knew she was a carrier for this immune disorder yet had a child anyway. She had a child that was forced to live in a bubble his entire life, that's selfish.
@@DH-gq7bm yep she was very selfish, she had a 7 month old who died from this same disease, drs told her if she had another, it’s more than likely it would contract the same disease smfh
@@accioyoongi AMEN.....THAT NORVILLE ROGER MUST NOT BE A CHRISTIAN...SHAME ON YOU BROTHER...TOOTH FAIRY THAT IS A VERY BAD JOKE FROM THIS HEART BROKEN REAL LIFE STORY...
@⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻⸻ That was such a reach. I don’t think that person is advocating for eugenics. If you’re aware that you’re a carrier of this rare genetic disorder and PREVIOUSLY had a child who was also born with and PASSED AWAY from it, why would you risk birthing a child when you know they have a *high* probability of having the same disorder? What type of quality of life is that for the child? That’s extremely selfish and not taking into account how that child will feel.
Just heard about this in a biology class. Can't imagine a child going through this. So heart-wrenching.
My son also was born with a severe autoimmune disease. He had a bone marrow transplant and is going great thank God. 🙏
Always thought it was positively ludicrous for a fully-grown John Travolta to portray the "Bubble Boy". Couldn't they find an *actual BOY* for that role?
As I recall they did have a young boy in the beginning. Travolta played the teenager.
@@purplepantslady9461
The *actual* "bubble boy", David Vetter, never had a chance to become a teenager. Hence, Travolta looked ridiculous as a 22 year-old portraying a 12 year-old.
Well how else are you gonna sexualize someone's trauma
Was Travolta supposed to be 22 in the movie? The movie version was more about what first love would've been had the original boy made it to those years
@@daria5846 no from what I'm understanding he was a teenager in the movie. I could be wrong though so if I'm wrong please correct me but I've seen the movie and I think he was supposed to be a teenager.
I understand why spams saw the controversy of the case, because every human being has the right to live a independent life. But taking David out of the bubble would means to take is right to life away from him.
David and his mother are helping people today .....Thank you David . You were so brave .
This will always be a powerful story.
There's a school and a park named after him in Houston 💚
I went to the school . David elementary
Really? Where? He was from here or came to this hospital?
♡
My son has Addison disease and thanks to these people my son was able to live outside the bubble. Thank you for what you guys gave. My son had adrenal surgery when he was 3 years old. Yes he takes medicine everyday to help him live but thank you again.
I hadn't thought about this in years. David was a few years younger than I was, so kids of my generation were aware of him, and he was in Houston besides. I am very glad to know that his life helped others later on, and that discoveries are still being made, progress is still ongoing because of this, for immunity and other things. That's unselfish.
I remember watching this movie.. It broke my heart to see what this family went through.. I remember him on the news in the late 80's...
imagine how bad the sister must feel :(
Wasn't John Travolta a little old to play a kid born in 1971?
They messed up he is the dad
No he wasn't the dad, he was the bubble boy as a teenager. And as a blind person he didn't sound like a teenager he sounded older than that.
I just finished watching the movie, in it John Travolta’s character Tod was born in 1959, and lived well into his teen years, so it’s not a reenactment of David’s life just based loosely on it.
@@cmpvariety1764 John Travolta was well over teen years when he played David (Tod in the movie) which was on;y loosly based on David’s life.
My daughter had a NMNASCT in 2004
She, my grand daughter, and granddaughter to be clearly have much to thank David for.
David. You will always live in my heart ..
Thank you David and family. I'm alive because of you all. Really thank you for all my wonderful days if life through your sacrifice and hardship...❤
It's a tragedy he pass so young but he saved countless lives in his wake
David is a hero, even if he never knew it
i think it was a bit insensitive that even after david's death, it was only used for comedy purposes, must've been difficult for his mother to just sit there and watch people mock him about being in a bubble and even making series/sitcoms about it. rest well david, you will be missed, he would've been 50 by now..🕊💓
I often hear from the older generation about this case, usually as a joke. I didn't know it was from a real and serious case growing up.
God please just keep your love around this mother. How heartbreaking.
Such a beautiful child. . . .
I cried so much watching this. I remember David. I was a few years older than him, and I remember seeing him on the news. I remember when he died. I was blessed with two sons, who I love with all my heart. I can't imagine the loss that these moms suffered.
I used to have classes with a boy who had a autoimmune deficiencies until he got taken out of classes due to COVID 19, I was very good friends with him. He died 2 weeks later.
and people still won’t wear masks
I wonder what type of food he ate
zh11147 but even when you like flash heat it, like pasteurization it’s not completely germ free right? ... or is it :0
I hadn't even thought of that.... That's a good point :O
curious to know as well!
sad he never tasted Mcdonalds in his life
They sterilized it
Lol why would they get adult John Travolta to pay him?
He was supposed have grown into an adult in the bubble.
THAT WAS WHAT I WAS THINKING
I found it impossible to suspend disbelief, watching a fully-grown John Travolta unconvincingly portray the "Bubble Boy". It was an accidental comedy.
Agree fully.
Anne Altstaetter it was based on David’s story. He wasn’t playing David in the movie
My first thought was
“Alec Benjamin”
Im not the only one
Thank you
Same
same
Bex Larzer literally the reason i clicked on this video lol
This had me in tears. I’ve got CVID and have been inside my home now 2 years. Thankyou to these courageous parents.
David's story is so heartbreaking, and yet it shows true strength and courage from him and his family. It also brings us hope and gratitude. Hope that we can prevent SCID in the future due to his legacy. Gratitude for each day we have.
“Let me go home” He discussed this a lot.. so why did the doctor say “David was funny” when he said that?💔There are many more details to his story. I really don’t know why, once he so very sick, his mom, his parents, were told they could not touch him without a glove. It wasn’t until he was in coma, from what I remember, that she was allowed to stroke his hair! 😥💔Was there any follow up on the sister who have him the BMT??
because of how innocent he is...
Brandon's mother got more beautiful with age.
david's mom was beautiful as well!
Lmao ok
Thank you
Gosh this got tears to my eyes! DAVID is a hero!! You are now safe in heaven!
Two of my sisters had SCIDS too (one died from it too) and a few years after I met David’s parents, sister, and nephews. My youngest sister is only alive today because of the same reason David got to live longer than his brother. My youngest sister was able to get a bone marrow transplant and she is doing great now with only minor issues from the radiation she had to receive. She’s very annoying but I’m glad she’s alive and I still miss my sister.
Thank you David and family! Take solace in the fact you have helped save countless lives...
Poor poor boy diserves to be in Heaven.
I remember reading a prompt on the reading portion of the standardized test about his life.
I never thought a test would ever almost make me cry.
Aaaaaw these poor babies. Why does this happen to these innocent souls? 😔
I’m so glad they took this seriously and studied it, and tested babies in the womb. That saved his life.
Such as beautiful young boy..no matter what he tried to stay in good spirits and also wanted his mother and everyone around to be in good spirits he is definitely an angel now
my baby brother died in 2006 due to auto immune disease.. Brandon story really reminded me of my brothers story.. God bless all of them..
David's mother seems like such a kind and gentle person.
Our granddaughter will have a cord blood transplant next Thursday. Discovered SCID because of newborn testing three months ago. Thank you, Ms Vetter, for pushing for newborn screening.
MY PRAYER GOES OUT TO YOUR FAMILY....WISH I SAW YOUR POST BEFORE THAT THURS AND HOPE HAD EVERYTHING WENT WELL.......GOD BLESS
Update 81 days post transplant. No infection. Engraftment is proceeding well. She was an efficient eater pre-transplant, but is struggling with formula now. Working on creative solutions to this challenge. This hesitancy to eat is very common post transplant. 😕
I watched the entire documentary. It's rare for me to cry...but I am in tears. I've lived a pretty isolated childhood/life, and often feel sorry for myself, but this...what this little boy went through, this is just unforgivable. I can't fathom the mental and emotional anguish he must have faced as he became more aware of his situation. He was obviously dealing with a lot of anxiety and depression...and it's no wonder. I am absolutely heartbroken for him and his family. No one should have to go through this. May he rest in peace. :(
Thank you for sharing David’s story once again, for a new generation. He was so brave and courageous.
His mother is the absolute sweetest I attended David elementary when I was child and it was the most beautiful and kindest school, his mother always came and told her story and just adored every student
This young man touched my life when I was young and helped me at a young age, learn about medical issues that touch peoples lives. As an adult and being a parent of a disabled child, I often remembered this young man's life and even though he was in heaven at that point, I thought about him and his family and they gave me inspiration and strength to take yet one more step on the road called life! He touched me, his life touched others, his life had meaning. I will never forget this young man!
It makes me really sad that the mom could never hug or cuddle her son. But something that kind of conforts me even though it is still sad is that at least the son never did it in the first place, therefore he never lost said experience. Since his entire life was like that it was his personal normal.
I’m from Houston Texas and I remember in 73 my third grade teacher read us about this young boy and that’s the first time I felt compassion for others . I started to cry my teacher hug me at that time teachers would hug and nurture their students that’s something they can’t do anymore through life I always thought about him I wanted to be his friend. Rest in peace David You are gone but not forgotten your friend from a mile away thank you David for Help others yes you are famous and you are still love 💕
That last line from the mom.... I'm actually crying...
Thank you to David and his family for helping others and making them aware. Rip
That dear sweet child. He was a star... something you can't touch that shines bright for all too see. 🙏💙
That movie is an insult. Especially Travolta who looks like a spanner anyway.
*"Spanner"?*
The movie was great for awareness. Hollywood always exaggerates and makes real stories distorted.
Just worry about Britain spanner
Hollywood cannot make a movie with good advocacy. I don’t know why people still expect them to do a good job
Very emotional! Appreciation to the family for being so transparent with such a private, emotional and eventually such a tragic family trauma. I’m deeply humbled by this family that made their experiences public so the rest “of the world” learned about how cruel life can be. Thank you so very much and may God bless
This was one of the saddest stories about a child I ever heard about 😞
that footage of David playing with the ball in his suit 💔 RIP