In this video I discuss the steps I take in preparing for my IVIG Infusion. It amounts to hydrating, taking premeds to fight off side affects, and warming the area where the catheter will be placed.
You got this! It's a tough road, but we're warriors! Thanks for the comment and the subscribe. Lots more comment coming. If you have any ideas on the type of comment you'd like to see, let us know !!
@@patrykklek6251 I'm fortunate as the disease primarily progressed only to my legs. For the most part, i'm almost fully functional but do have nerve damage in both legs, so my gait is a little funny. There are some things that I can't do anymore, as I was a avid golfer and i'm not able to do that anymore. I still sometimes have a lot of tingling and numbness in my legs.. primariy feet, ankles and calves. But it sort of comes and goes. I tried to get off IVIG last year, but the symptoms came back after about 6 weeks, so had to get back on it again. I may try again after the summer. I want to beat this stupid disease.
Thanks for the informative content, your channel is inspiring me with my struggle through nerve pain
You got this! It's a tough road, but we're warriors! Thanks for the comment and the subscribe. Lots more comment coming. If you have any ideas on the type of comment you'd like to see, let us know !!
That’s for video I’m a cidp patient receiving treatment for past 18 months everything you said is definitely true very similar side effects
Hello from Poland, im cidp fighter
Hi Patryk !! Nice to meet you !! We'll have lots more content coming. Hope you keep watching. Thanks.
How are you doing with cidp fghter ?
Are you working, What sympthons do you have, pain?
@@patrykklek6251 I'm fortunate as the disease primarily progressed only to my legs. For the most part, i'm almost fully functional but do have nerve damage in both legs, so my gait is a little funny. There are some things that I can't do anymore, as I was a avid golfer and i'm not able to do that anymore. I still sometimes have a lot of tingling and numbness in my legs.. primariy feet, ankles and calves. But it sort of comes and goes. I tried to get off IVIG last year, but the symptoms came back after about 6 weeks, so had to get back on it again. I may try again after the summer. I want to beat this stupid disease.