Nigel's ocrevus diary
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- เผยแพร่เมื่อ 29 พ.ค. 2024
- Ocrevus is known as a highly effective DMD, but what is it like to have an ocrevus infusion? In this video diary Nigel takes us through infusion day and tries to alleviate any fears you might have.
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Hi Nigel !
I have SecondaryM.S.
L👀King at taking Occrevus myself 🤔
Glad your doing soo well on it !
#SharingIsCaring!!!
For our M.S. Brother's & Sister's
Thank you for this publication. I have also been treated with Okrevus since 2018. I am very happy with your comments about the effect of the medicine, it was nice to hear such inspiring wishes. I also believe that everything will be fine with everyone. Hello from Ukraine, everything will be fine fine!✌️🇺🇦💪
Thanks for your comment. I’m mentally fighting this. I go in tomorrow for my 1st.
This! I have been diagnosed and considering ocrevus. You've given me hope and encouragement
All the best in your journey
Thankyou for your video. I started ocrevas in August, have had MS for 19 years. Glad it's helping you.
Thank you nigel for sharing your story of ocrevus im so scared
Thank you so much for sharing, I started Plegridy in July but have been offered occrevas, don’t feel as scared now watching your journey. I’ve had RRMS for 9 years, like you? I’m a very outgoing person, so I may speak to my MS nurse again about changing, you’re doing a GREAT job, gave me hope ☺️ Thank you 🥳 Caz
Your daughter is so adorable 😊
Thank you for sharing!🧡
Thanks for this video
💙💙💙
Thank you!❤
I will do my first ocrevus treatment soon.
Thank you so much for sharing this with us. It is one drug I am considering taking for my MS which has been pretty gnarly for the last 5 months. Good luck with it and please keep us up to date with how you are doing!
I was watching videos last night, preparing for my treatment today because nobody is talking about how they’re doing after the treatment. Whether it was worthy or not.
I was diagnosed with RRMS in August in 2011, started using copaxone. Fastrorward to December of 2018, I was ordered by the neurologist at the VA to stop using copaxone immediately because I was erroneously diagnosed with RRMS. Sure enough, I actually do have multiple sclerosis, never should have stopped treatment. I now have primary progressive. My first ocrevus treatment was on my birthday of 2022....
Nice to hear positivity - It amused me when you said 'if you find somthing new get it checked out' Sadly I find my MS team appear not to be very interested.
change your MS team if at all possible. There are many, many options in the world! don't give up. don't stop advocating for yourself!
Thanks for sharing!!!! I have my first infusion this Wednesday!!!!! Ugh
I’ve had great success with ocrevus since 2020. It has worked so well. I hope your journey with ocrevus goes well.
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Great video. Been avoiding any DMT's since bad experience. Ocrevus was recommended for me and I may try!
Just do your research as there is plenty of views online about it. I start my fifth one tomorrow and in two minds over it. Some suggested there ms has got worse. Mine in last year has got worse even on this drug
🙏🙏GOD BLESS YOU 🙏🙏
thank you, your daughter is a good girl loving her dad 🌷👍
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Thank you. I’ve been on Plegridy for three and a half years now recently offered Ocrevus. I might go for it.
Wishing you all the very best on your treatment journey 💙
@@mstrust 🙏💖
34, like 18 years with ms on ocravus like 4 years and loving it
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I go in tomorrow for my first treatment. Have had MS for 21 years. I refused any and all treatments. I’ve only done nutritional treatment. Wish me luck. Coffee, coffee and the hospital. I will probably go live here on TH-cam. I don’t do needles.
Thank you for sharing. Sending you best wishes for your treatment journey 💙
My name is Dani, I'm from Spain.
I took 1-year Aubagio but appears new lesions...now my doctors suggest start with Ocrevus. It helps me a lot your information because i bit scared for this treatment. With Aubagio it was really simple, 1 pill per day and, go!
My question is, all this fatigue you feel during the infusion and day after, then you recover your energy and your normality? I do a lot of sport, and I'm a very active person... so I'm a bit worried if for 6 months I would have a normal live.
And, about colds? Or flu? You got ill more than before? Do you need and extra Vitamin supplement, or what do you do to be healthy?
Thanks again :)
While the infusion itself might make you fatigued, this will ease after a day or so and Ocrevus will not make you more fatigued in between infusions.
Of course, fatigue is a very common symptom of MS and there may be episodes of fatigue between the infusions, though these will not be due to the drug. There is more about managing fatigue in our other videos such as pulse.ly/r1tr7ozvy8 and on our website at pulse.ly/23q8fkgod2
Ocrevus does suppresses part of the immune system so you may be more vulnerable to infections such as colds and viruses and I can understand this fills you with some concern. Your MS nurse/neurologist should give advice on ways to minimise the risk of infections.
In general, try to stay healthy in yourself, eating sensibly, staying physically and mentally active, etc. There isn't a specific list of supplements that are recommended for people with MS, although many people with MS do use them. Evidence for supplements is conflicting and unclear. Most people should be able to get all the nutrients they need through a well-balanced, healthy diet, and supplements shouldn't be necessary unless you have been diagnosed with a deficiency.
I have had Ms for 20 years and I have not been offered anything in years. I feel left out.xx
It is worth being proactive and contacting your MS nurse/neurologist to ask what treatment options are available for you. If you don't have the contact info for the nurse, you can find this on the map of services ay pulse.ly/2x3bnbwrm6 Depending on the type of MS you have, this might include disease modifying drugs and/or treatment for individual symptoms. More on treatments at pulse.ly/slk974fbui
MS see Dr Terry Wahls.
Only people who DON’T have MS suggest “go see Terry Wahls”. You know nothing about the reality of living with MS. Oh, and I tried the Wahls diet - I assure you, it did nothing.
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