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Hey there!! Yeah, i'm not associated with the Fit After 50 website. This was just a thing I was doing to help others that are older like me. I got thru the first two phases before ending the program and refocusing my content on my CIDP condition.

It took about 4 months before I could start walking again. I started with a cane and then moved to walking unassisted. It was a bit of a long haul and I went to fast and ended up messing up my back in the process.

Luis Diaz

It does a bit of both. It keeps your immune system from attacking your nerves and allows your nerves to heal.

Good luck. Let me know how it goes.

me too.

You're welcome!

Cool. Appreciate any feedback.

I know. I went to multiple ER's and still didn't get a diagnosis until I got to see a neurologist. I was lucky, as it only took me a few weeks. Good luck with your treatment.

The toes and feet are the worst. It sucks that you're not stable with the IVIG dosing. Ideally ,the IVIG keeps you stable for the entire 3 weeks allowing the body to try and heal itself. I'd push for maybe more frequent IVIG - every 2 weeks vs every 3 weeks to try and get your symptoms to stabilize. Wishing you luck and recovery. This disease sucks so much.

Thanks so much for watching and commenting. Yeah.. I was such a competive golfer and really can't play anymore. It really took a toll on me but i've accepted my new reality, and am just setting different goals. Good luck on your IVIG therapy. Without it.. I likely would have never walked again.. strange now to say that given I just walked 25 miles thru the Grand Canyon.

@turtle.warriors life has been different but I am optimistic, especially after watching your journey.

I have never heard of grounding. Sounds a bit gimmicky.. but who knows. My IVIG therapy was delayed a week.. and already feeling it. Sucks.. Good luck in your recovery !! The IVIG can have some amazing results. Stick with it.. try and stay positive. One day at a time.

Hey Todd.. thanks so much. You found my other channel !!

@@turtle.warriors What you've accomplished through mindset, altered nutrition, training, and medical treatments, is very impressive Darrell!! As you know, I'm a huge believer and practitioner of all of it!! Great job my friend! Looking forward to seeing your future adventures... and also, RIP to your butt, training on a road bike. Oohf!! 😉

@@austinado16 Thanks Todd !! Need to do some research on the best training plan for cycling now.

@@turtle.warriors Step 1: Stay off the roads and streets. Step 2: Enjoy mountain biking! LOL

@@austinado16 No roads and streets for me.. Just bike paths !! We have a really nice path that goes from Henderson, NV all the way to Boulder City, NV and loops around the lake. Literally like 50 miles of path. It's awesome.

Thank You my friend. !! Hope you are doing well.

Thanks so much. This is so gratifying to hear. It's the whole reason I make these videos. Thanks for your support and your continued recovery.

Thanks for watching. Hoping your recovery is going okay.

So terrible how our medical system works. Thanks for watching.

Hey John, good luck with your treatment. I've been on so many supplements, but the biggest difference has been the recent addition of CBD Tincture. I use the 1200 mg from Primary Jane's. I mostly got it to help me relax a little at night, and hopefully also help with inflamation. I feel it's made a pretty big differnce with my condition. Good luck with everything. Thanks for watching !!

My symptoms are extreme fatigue cognitive issues and full body parathesia can Ivig help me in very young

I have no physical weakness with the parathesia but I can’t function

Feels like neuropathy in my arms and legs but I’m not weak

It would be interesting if a study was done for sure.

@@turtle.warriors the problem is we may only see some sporadic case studies, any systemic analysis or meta analysis study without support from both big pharmaceutical companies and the government medical establishment guaranteed will not to be published, even if it can be published, downsizing the effect and euphemism will be needed--my experience from both research and medical fields. Government and establishment also shut us up for saying/asking…….I wish all the best for your recovery!❤️

Thanks so much Keith. I hope your recovery is still going well. Doing Grand Canyon Rim2Rim in a month !! That will be epic. January.. i'll be trying to get off IVIG again. Hopefully.. this time i'm done with it !!

Thanks so much for watching and commenting. You got this !!

She's young. With proper treatment hopefully she will live a relatively normal life (other than the infusions). Hopefully it will also go into remission. I pray someday for a cure.

Hey Holly.. thanks so much !!

Hi Keith.. thanks for watching !! I'm so lucky that I recovered the way I did, and I just want to do whatever I can to give others hope. Hoping your treatment is going well. See you on the next one !!

For me it's right afterwards. Probably a combination of the infusion plus the premeds. Usually the next morning i'm lots better. I'm pretty luck as I dont' get many side affects.

Hey Patrick!! Thanks for sharing. It's a tough road, but we're warrior. We got this !!

Thanks so much. Thanks for watching !!

@@turtle.warriors Of course and I subscribed as well! I have 2 quick questions for you: 1. Do you think there is a correlation between EBV, GBS, and MS? 2. Also, is IVIG better/worse than SCIG? Thanks in advance!

@@mrsminnamorato As far as the first question. I didn't know what EBV, but looked it up. Any virus can potentially cause GBS. Thankfully GBS is rare. I believe the literature is unclear on what causes MS, but similarly to GBS, it's an autoimmune disease, so it also might be brought upon by a virus. It's not clear what causes CIDP. It's not clear it's always caused by a virus. In my case I was originally diagnosed with GBS because of the quick onset of symptoms and the fact that I had a really bad fever (virus), so the doctor put two and two together. But now it seems it's CIDP because it keeps coming back. I think it's relatively rare for a person to have GBS/CIDP and MS. Hope this helps?

@@turtle.warriors Yes!! This helps tremendously! I had an attack and after tests, it was deemed as idiopathic and then I was diagnosed with RRMS, but not before my thyroid went out-enter Graves’. I just found out from bloodwork that I may have been misdiagnosed as having strep throat exactly 10 years ago when it was mono thus the EBV bloodwork scaring the life out of me! Everything l’ve taken for MS has been a failure and perhaps because the wrong thing is being treated. The symptoms I experienced with that attack I thought I was going to die because of the pain, couldn’t walk, paresthesias, and neuropathy which I’m currently dealing with. Taking Cymbalta for the neuropathic pain which has helped enormously.

Thanks for watching my friend. I'm stable. Good days and bad days. I did a crazy/stupid hike at the Grand Canyon 1.5 weeks ago. Really kicked my ass th-cam.com/video/wVekCFd_9b8/w-d-xo.html - My lower back is really bothering me (supposedly one of the side affects of IVIG), plus I really screwed it up when my gait changed because of the nerve damage in my legs. Today i've got a. lot of numbness and tingling in right foot and ankle. It's always one thing or another. But. hanging in there like usual. I've been on IVIG for a little over 3.5 years. Tried to get off of it a year ago.. but really bad weakness came right back at the 7th week. How are you doing?

Hey Keith !! Thanks for watching. Slowly but surely, we'll get there. I'm hiking the grand canyon this week. So with preserverance and the right treatement and attitude, anything is possible !!

Thanks for watching. I'm so glad you're recovering quickly. It took a while for me.. and now with CIDP.. I have a lot of up's and downs.. But I try and stay strong. Don't feel alone, there is lots of folks with this disease, and lots of facebook groups for support.

Yeah.. I didn't sleep for 3 weeks. I was a mess. Had no idea what was happening to me, I was stressed, and everytime I got close to sleeping had these terrible hypnic jerks that would awaken me. The only thing that helped me was lunesta. I'm still on it. But I can sleep. I also had a history of panic attacks.. but hadn't had them for almost a decade.

Thanks for watching. Such an awful disease.

This is so awful. It sounds like maybe during the lumbar puncture they may have hit a nerve which is acting up and causing the spasms. Hang in there. Nerves do tend to heal themselves. I'm taking both Gabappentin and Cymbalta for nerve pain and they do help.

For most CIDP patients, it will be for the rest of their life. I tried to get off my infusions about 9 months ago, and my weakness and pain came back after about 6 weeks so had to get back on the infusions. They say patients should occasionally try to get off their treatment, but you have to be careful that you don't cause additional nerve damage when trying to wean off.

@@turtle.warriors thanks for the info.

@@turtle.warriors It can be a difficult balancing act for sure. During my 18 years with CIDP, I have had times (months or years) where I did not need IVIG. However, my care team found that a more regular schedule was better for maintaining my nerve conduction results, my strength, and keeping symptoms at bay. Currently I'm infused once every 6 weeks and so far that has seemed to strike a good balance for me.

Hi Keith. Thanks so much for watching and commenting. The IVIG for me was a godsend. My situation was weird, as I had a combination of acute onset, plus I just kept getting worse and worse. At about 9 weeks into my symptoms is when I finally got IVIG, and I could feel a difference almost immediately. But it was a long haul to wear i could walk again without assistance. Now, i'm at the point where most people that see me would not thing anything is wrong. The only thing I can't do anymore, that I used to is play golf. That's because of my back issues, which I only started having after my symptoms began. Anyhow, i'm glad you got diagnosed and are getting treatment. Be thankful that you have a good neurologist, and how that you are getting treatment, the sky is the limit. I have nerve damage, but I continue to improve slowly but surely.

@@turtle.warriors your positive attitude is motivating and your progress in healing is inspiring. Sorry to hear you having to give up Golf but based on what I’ve seen from you I have now doubt that you’ll be back on the Golf Course someday soon. As the old timers say “God willing and the Creek don’t rise” 💪🏼.

Hey Keith, good luck with the infusions. It made such a difference for me. Be patient and hang in their buddy.

Thanks for sharing.. Such an awesome story of recovery. They do say that one nice thing about steroids vs ivig.. is sometimes steroids work better for being able to get off of them without a relapse. My goal is for next Fall to do the Grand Canyon Rim to Rim hike in one day. Likelyi will do that in the early October timeframe. In april I will again to the rim to river hike. Keep it up !! Thanks so much for watching !!

Thanks so much for watching and your comment. The best advocate advice is really what it's all about. By the way.. you spell your name wrong !!

I hope you're doing better with the regular infusions. It's amazing how getting IVIG / Steroids / or PE postively affects our quality of life. I do wish more research could be done to better figure out what is causing our immune system to go crazy. Probably something really simple.. we can hope that someday they can figure this stupid disease out and we can all be cured.

Thanks so much. Lots more content to come. This disease is so strange. I'm fascinated by how much the weather affects me. The cold is the worst.

You got this! It's a tough road, but we're warriors! Thanks for the comment and the subscribe. Lots more comment coming. If you have any ideas on the type of comment you'd like to see, let us know !!

Glad you enjoyed it. NIcole (my wife) stopped her training, and is putting her marathon back a year. Hopefully in 8 months or so (after she retires) she'll start this journey again !!

Hi Patryk !! Nice to meet you !! We'll have lots more content coming. Hope you keep watching. Thanks.

How are you doing with cidp fghter ? Are you working, What sympthons do you have, pain?

@@patrykklek6251 I'm fortunate as the disease primarily progressed only to my legs. For the most part, i'm almost fully functional but do have nerve damage in both legs, so my gait is a little funny. There are some things that I can't do anymore, as I was a avid golfer and i'm not able to do that anymore. I still sometimes have a lot of tingling and numbness in my legs.. primariy feet, ankles and calves. But it sort of comes and goes. I tried to get off IVIG last year, but the symptoms came back after about 6 weeks, so had to get back on it again. I may try again after the summer. I want to beat this stupid disease.

I was originally diagnosed GBS, because condition was more acute. I was diagnosed in 9/19 and it took about 7 weeks for me to get IVIG. In that 7 weeks I deteriorated quite a bit. If I we're to go thru it again.. i'd sit myself in a hospital and have neurologist see me and get IVIG treatment right away. Would have saved a lot of the nerve damage I have.

How long after ivig did symptoms start improving. I am 4 days out from a 5 day infusion and i am weak,extreme fatigue,muscle joint pain especially in both thighs and arms

@@terryb3580🙏💙

It's a rough go. I had a very interesting case. Mine was acute and primarily motor. Listen to your doctor.. but always advocate for yourself. Learn as much as you can. Take supplements, get rest, try not to stress. You got this. You can heal!!

There is also really good facebook groups on both GBS/CIDP and CIDP. I'd recommend joining them. Very supportive and informational.

There is also a GBS/CIDP foundation 0 www.gbs-cidp.org/ - with tons of into and local liasions. Very helpful.

I was just testing the livestream and he workout. Starting Phase 1 of these workouts on Monday.

Thanks Mr. Carter. This was my last workout for this series. Switching it up a lot. Going to focus on the over 50 crowd. Hopefully the channel will do a little better.