The EDS Society has a wonderful support group, which I’m a member of. They have different meeting schedules for the day of the week. I am a part of the Tuesday group. My Aunt has a hospital bed and it’s very helpful for us when we are trying to change her or bathe her or when she’s eating her meals. I agree with you on that, it is best to leave the DX to the doctor and not trying to look to support groups for that, I have cEDS but I am not a doctor therefore I can’t do that for you. I hope you can get answers is all I can say, and I think that yes, you SHOULD be upfront with your physician. Ice- cream sounds delicious but I need lactose free ice- cream!
Thank you so much for being so supportive. I notice all of your comments under my vlogs, and you are always so kindhearted and supportive. I really appreciate you! Thank you for being incurably awesome! ❤
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The EDS Society has a wonderful support group, which I’m a member of. They have different meeting schedules for the day of the week. I am a part of the Tuesday group. My Aunt has a hospital bed and it’s very helpful for us when we are trying to change her or bathe her or when she’s eating her meals. I agree with you on that, it is best to leave the DX to the doctor and not trying to look to support groups for that, I have cEDS but I am not a doctor therefore I can’t do that for you. I hope you can get answers is all I can say, and I think that yes, you SHOULD be upfront with your physician. Ice- cream sounds delicious but I need lactose free ice- cream!
Thank you so much for being so supportive. I notice all of your comments under my vlogs, and you are always so kindhearted and supportive. I really appreciate you! Thank you for being incurably awesome! ❤