As a long time sufferer of chronic lymphoedema I can only with a heavy heart sympathise with Cora. This condition is a nightmare to live with and can be utterly debilitating as it progresses as you get older. I’ve been totally housebound for the last five years because of the lymphoedema and all its other side effects. Some of us though, like Cora and her parents are remarkably lucky to find specialists that are an absolute godsend to us. I have a specialist lymphoedema nurse that I see at regular intervals. Her knowledge of lymphoedema, the lymphatic system, and practically every skin condition known to medicine is phenomenal. I trust her implicitly with every level of my ongoing care. I wish Cora and her family much love and prayers for her continued care and wellbeing. Whichever route in her life Cora decides to take, I sincerely hope she never lets lymphoedema define who she is. I may be pushing 60, housebound and now virtually bedbound, but I am still a mother to a beautiful daughter who has given me the greatest gift of being able to be a very proud grandmother to my two year old granddaughter. My little ray of sunshine, she understands that her Nana can’t do what all her other grandparents can, but that has never held us back from being best friends and having an absolute blast playing together whenever she visits. I even get to FaceTime her umpteen times a day. Life is what you make of it. Go grab it Cora, make your life what you want it to be. Smile and the world smiles with you. Laugh, it’s definitely infectious.💞🙏🇬🇧
Awe my heart goes out to her and her family. She’s one tough little girl, so proud of her for taking the treatment like a champ. I’m pregnant and at 36 weeks and my feet, ankles and legs are swollen and hurt so I can only imagine how much pain she’s in and how uncomfortable she is, she’s so tough 💜🖤
If this continues after your pregnancy don’t be afraid to insist to see a lymphatic specialist just to be on the safe side. It usually ends after your pregnancy due to your body slowly returning to normal pre-pregnancy, but on the rarest of occasions it can, like with me, trigger Lipidaema. Lymphatic issues can easily be missed and never go diagnosed. Congratulations on your precious new family member. There’s nothing as amazing and wonderful as becoming a Mum.🙏💞
@@Jjudes9665 thanks yes it went away after I had my son well it took lil over a week it got bad when I had my son but went away, that poor baby she’s so tough to go through this. Hope she gets better 💜🖤 I had my baby not long after this comment I had him at 37 weeks and couple days.
I don't believe it. I've watched people getting compression and massage treatment for lymphedema on many of these obesity shows. I'm sure the child's age made it more difficult, but of course they have treatment for this condition in the U.S..
As an adult with lymphedema in my upper right arm down to my back (from an accident at age 20) my heart really breaks for this poor baby. It’s extremely uncomfortable and sometimes painful.
What an amazing little girl Cora is! She just gets on with it. I have lymphoedema & wear compression garments on my legs. Having it your hands is on another level and she, and her parents, just cracked on with it! Super special girl.
I'm so surprised they had to go to Germany....we offer the same massage and wrapping treatment even at the rural critical access hospital where I work in the US. Glad she's doing better!
@@debrawakefield8537 I would ask your doctor or Google it, at my hospital we have 2 physical therapists who are trained in it. I think you may have to go to your doc first anyway for a diagnosis and referral. You will also want to make sure things like edema and cellulitis are ruled out. Good luck!
There are many, many people in the U.S. that are Certified Lymphedema Specialists. I myself am certified in Manual Lymphatic Drainage. When their is something mechanically wrong with the Lymphatic System, this is where Certified Lymphedema Therapists come in, they are qualified to work on severe issues. Very powerful but very gentle work.
Poor little sweetheart. I feel so lucky to have had a healthy baby, but makes my heart hurt that some babies aren't so lucky. I wish I could do something to help.
It's amazing what babies and Young kids can deal with. My daughter has waardenburg syndrome and just turned 2. She had surgery a few months ago on her face because her eyelashes on her lower lids were in her eye and she had to have her inner eyelids, and tear ducts operated on and she was up playing the next day. These babies can overcome anything they set their mind too...I pray for her health and for the treatments to work to make her quality of life better. 🙏
I hope little Cora is doing better. It is an awful condition for such a small child. I'm glad she is getting treatment. I was diagnosed with lymphedema just 4 years ago ( I was 54 at the time). I never really understood what it was about till I saw this show. I'm glad I watched this.
It’s so not fare whenever a child is born with something wrong. They’re way too young to know what suffering is. I pray one day we will have cures for everything so the little ones no longer suffer.
I went to a physical therapist in Iowa who was a certified lymphatic message. I’m sure you can find others in the USA who are closer to you. She worked for Century Physical Therapy in Altoona Iowa; her name is Becky Phillips, DPT. She was amazing!
What a brave young lady and what a wonderful family. I'm very very glad they were able to help her. I live in the state in Germany were this clinic is located. Lymphedema is not as rare as people think. The cost and stress associated with travel and treatment must be tremendous. Maybe the parents could move here and dad could get employment in Germany? Keep getting better!
Bless this sweet girl. I have lymphedema in my legs and it’s hard enough to deal with as an adult! People without swelling don’t realize how much it hurts!
OMG POOR BABY!!!!! 😭Thank God for those German doctors! I am so happy to know that she'll be able to manage her condition into full adulthood, that is so great!
Awww bless her poor heart... I too have lymphedema and it is a horrible thing to live with .....let alone being so small and active....I know it’s hard on her having to deal with the compression because it’s so restricting...I also see a specialist for my lymphedema and I’ve seen a tremendous difference with the wrapping and massages....along with the pump...I was wondering if you had tried the pump for lymphedema swelling.....it does wonders....I will be praying for this angel 👼🏼
I’m 38 years old from Kenya Africa, and I have the same swelling right under my ear that I noticed in 2015 and it has grown so much that I no longer have some self esteem. I don’t like the fact that everyone notices it and ask what it is.
I have Hereditary Angioedema. The swelling is awful. I had a throat swell last year and had to be ventilated. Stomach and genital swells suck so much. Feels like your skin might burst.
I had really awful swelling during pregnancy. My legs were the same width from knees to toes, and I honestly feel like it was worse than childbirth, and both of mine births were all natural. I am so sorry this is a chronic issue for you. My empathy center aches for you, I hope the moments of relief you experience are many and often💝
Such a strong and brave little girl Cora is. So glad that she was able to be helped, even if it was in another country. 🙌 Sending prayers 🙏 ❤️ to Cora. Her parents are outstanding 👏 👌
Amazing child. She’s going to do great things, in my opinion this is all she knows so to her it’s normal, she’s beautiful and I know she will be a strong amazing adult
I had one, but that was a long time ago in 1997. They wouldn't even do one to find out the gender. Times have changed. I think I had one with my second too, in 2006/2007.
Iv got lymphoedema and lipolymphedema in my legs iv had my legs bandaged from top to bottom and I wear compression stocking to keep the swelling down so I feel sorry for the little girl because I know what she is going through
Baby Cora, my prayers are going up to our almighty in heaven! You are sooo precious I know there must be an effective treatment for you. GOD bless you, mommy, and daddy!!!
Whe she's older trust she'd be happy it was already over with instead of having t do something later. Plus the skin was so stretched I can't imagine it would end well if u hadn't don't anything.
I was born with this exact thing on feet. I’m in tears. Everything they describe I’ve experienced & It breaks my heart this little girl is going through it . God bless her & anyone else experiencing this overwhelming health condition .
Did yours ever go down? My son was born with it i believe and we’re currently trying to find a neurologist to look at his feet, he’s 3 months old now and we don’t know how this’ll impact his life.
@@CheyenneTrent my dads side of fam was born with it & went away completely as they got older. When born both my feet looked like little ballons, when I was older around elementary school they were less but still swollen enough were I could only wear boots or shoes sized up.. I’m 24 now & left foot is slightly swollen barely noticeable ,. Right foot is same except it gets extremely swollen up to my calf, if I walk after couple hours or eat too much junk & soda or if hot temperature outside. Truly it’s difficult in many little ways but hey I can walk & fully function, I’m grateful for my feet. what I can say that makes me happy for you is your baby is only few months (like I mentioned a lot of family of mine were born with same & their body defeated whatever was blocking their lymphatic fluid) , don’t lose hope💓Praying that your sons experience with this is quick so he can wear awesome little shoes . one thing I can invite you to do with all respect is yes go to the neurologist & continue to do all you can to help figure out what’s going on. Despite all the pain this brought me one thing I am grateful for is my moms determination since the day i was born till even now to try & find help for me. Sending all the best to you & your fam 🙌🏻 you got this (:
hands,feet,and genitals.....yikes,well that's basically asking for almost no semblance of normal life especially post puberty and becoming an adult unless you can solve at least the third by the right later date.
Looking back too high school, this African American Girl (Who's Most Certainly Is a Woman Now) had this SAME illness 🤔🤒😔🥺🙁 I ALLWAYS wanted to Pull Her Aside & ask because I never saw or understood... , why one side of her body like her ( foot, some of her leg,and her eye's) where swollen throughout the school year. I say that because I thought eventually the swelling would've went down. She was only able to wear 1 shoe & the other Leg/foot she wore a flip flop. I always watched out for her too! Like for Bullies... NOBODY MADE THEMSELVES. I PRAY THAT OUR MAGNIFICENT MERCIFUL OUTSTANDING LOVING HEALING GOD HEAL ALL THAT IS ILL. 🙏🏽 ❤ 🙌🏽
I find it more than a little irritating that this family had to travel to Germany to get this treatment. I'm sure if an american doctor took the time to listen to the family's concerns this could have been treated in the states. 'murica
I understand. It's hard to understand situations like this because sometimes not everything is easy to understand the fear of life of the unknown about questions that not everyone has the answer to because there are situations we don't understand why anyone would deal with this regardless of what kind and I'm glad we have a loving community that cares and I want to help out but I am afraid of the unknown situation of how do I know who to ask for that idea if I don't know where to find the right place to donate money if I'm afraid of trusting online sites if some of them are shady people who steal because not all are safe if they can be hacked by the dark web or created by criminals who steal from people so please look for red flags because if it's too good to be true it's dangerous and also full of red flags from criminals
Wife n I have 5,,grown kids. Now 12 grandkids. To my recollection n picking wifes mind? Shes a retired R.N. Two ultrasounds are normal if on the 2nd one all is normal. Plus the moms general health is good n no family history of certain genetic diseases. (We n the kids all have always had great health insurance. )
Lymphedema is blockage in the lymph nodes,I have it,in the groin y legs started swelling,in high school,early 80 s,now,I’m 57, I have a huge lump,on the left side of my belly,is big as a cantalope,it was never diagnosed until I was in my mid 50 s,when my mom was pregnant with me she had high blood pressure and low potassium.My calves ,in my leg have it mic the skin is dry and cracked it leaks a clear fluid,and it makes me urinate like crazy,when I get skin that weeps. Twice I’ve had skin infections ,where I’d get chills and 104 temps,the second time was this February 2022, I suggested liposuction,for the lymphedema lump,on my left side of my belly,nothing was done.I’m swollen in my shoulder blades too.
I was born with Primary Heritary Lymphedema in both my legs, I think my great grandfather from Germany had lymphedema when he moved to America. My dad was the only one of his siblings to have lymphedema in his legs the longer he was standing & walking on his legs the worse they got severe swelling. My sister & brother both born with Lymphedema in both legs. My daughter was born with Lymphedema in her toes on the right foot only. My son was born with Lymphedema in both legs. My niece was born with Lymphedema in both her legs but my nephews & great neice's don't have lymphedema at all. My two Granddaughter's my son's daughter's both have lymphedema but there doctor calls it Turners Syndrome not lymphedema. My daughter's son that was the second child born, I was told he has swelling in his genetal area & both feet. But his older brother & his little sister don't have any lymphedema at all. If this help's any one F4 gene can cause lymphedema & the severe swelling of certain parts of the body, any where there is lymph vessel's in the body can be affected.
Sweet girl! I don’t understand why those treatments of liposuction and compressions aren’t available in the US? She could have gotten the fatty tissue diagnosis here too. Regardless I’m glad she’s found some relief!!
You would think the USA would have these treatments. My momma passed May 2nd 2021 she had diabetes, lymphedema and others things. We live in Raleigh NC. We tried for years and years to get her help with it. She got massages and compression garments. Also water boots that would go up to her thighs and compress up and down just like the massage. Nothing helped or worked. She suffered till her last day on earth. I miss her terribly.
It’s rare in America and not offered as well as insurance doesn’t cover it if you can find it. As well as liposuction is only for 18+ not for children suffering and even if allowed insurance won’t cover
We do even in the middle of nowhere you can get this the treatment usually doesn't work for adults that gain it from overeating versus genetics. People just like to blame doctors for their own failings and sensationalize things for entertainment
More like lymphomas , or lipomas. Praying everything works out for her . I hate when things like this happens to children , it’s just difficult to watch
This highlights the fact that the Lymphedema Treatment Act needs to be passed. I’ve had primary lymphedema for nearly 45 years. Therapy and treatment get very minimal coverage from insurance companies. Treatment is sometimes impossible in certain places all over the world, including Canada.
This helps me feel more inspired as I may not have the same thing she does however I have hyperhydrosis which is where my hands and feet uncontrollably sweat non stop even when I’m freezing I’ll sweat and my hands will get really red
As a long time sufferer of chronic lymphoedema I can only with a heavy heart sympathise with Cora. This condition is a nightmare to live with and can be utterly debilitating as it progresses as you get older. I’ve been totally housebound for the last five years because of the lymphoedema and all its other side effects. Some of us though, like Cora and her parents are remarkably lucky to find specialists that are an absolute godsend to us. I have a specialist lymphoedema nurse that I see at regular intervals. Her knowledge of lymphoedema, the lymphatic system, and practically every skin condition known to medicine is phenomenal. I trust her implicitly with every level of my ongoing care.
I wish Cora and her family much love and prayers for her continued care and wellbeing. Whichever route in her life Cora decides to take, I sincerely hope she never lets lymphoedema define who she is. I may be pushing 60, housebound and now virtually bedbound, but I am still a mother to a beautiful daughter who has given me the greatest gift of being able to be a very proud grandmother to my two year old granddaughter. My little ray of sunshine, she understands that her Nana can’t do what all her other grandparents can, but that has never held us back from being best friends and having an absolute blast playing together whenever she visits. I even get to FaceTime her umpteen times a day.
Life is what you make of it. Go grab it Cora, make your life what you want it to be.
Smile and the world smiles with you. Laugh, it’s definitely infectious.💞🙏🇬🇧
Such a incredibly brave little girl her momma is amazing
Poor baby, this breaks my heart. She’s beautiful.
She is a cutie!
Awe my heart goes out to her and her family. She’s one tough little girl, so proud of her for taking the treatment like a champ. I’m pregnant and at 36 weeks and my feet, ankles and legs are swollen and hurt so I can only imagine how much pain she’s in and how uncomfortable she is, she’s so tough 💜🖤
Hi there hope you’re doing fine ?
hope and prayers from canada for you and your little one
If this continues after your pregnancy don’t be afraid to insist to see a lymphatic specialist just to be on the safe side. It usually ends after your pregnancy due to your body slowly returning to normal pre-pregnancy, but on the rarest of occasions it can, like with me, trigger Lipidaema. Lymphatic issues can easily be missed and never go diagnosed.
Congratulations on your precious new family member. There’s nothing as amazing and wonderful as becoming a Mum.🙏💞
@@Jjudes9665 thanks yes it went away after I had my son well it took lil over a week it got bad when I had my son but went away, that poor baby she’s so tough to go through this. Hope she gets better 💜🖤 I had my baby not long after this comment I had him at 37 weeks and couple days.
Wtf is wrong with the doctors in the states that they didn't even check the composition of the swelling in her hands?
I don't believe it. I've watched people getting compression and massage treatment for lymphedema on many of these obesity shows. I'm sure the child's age made it more difficult, but of course they have treatment for this condition in the U.S..
in the us its all about $$$$$$$$$ they dont care about us there people
As an adult with lymphedema in my upper right arm down to my back (from an accident at age 20) my heart really breaks for this poor baby. It’s extremely uncomfortable and sometimes painful.
What an amazing little girl Cora is! She just gets on with it. I have lymphoedema & wear compression garments on my legs. Having it your hands is on another level and she, and her parents, just cracked on with it! Super special girl.
Hi there hope you’re doing fine ?
I'm 22 years old I was born with lymphedema in the ankle in feet God Bless This Young Lady 🙏🏾❤💯 Jesus Please Heal Cora 😫
l hope a cure can be found for Cora
@@janiqueunique8361 Me To
Amen🙏🤍
Amen 🙏
I'm so surprised they had to go to Germany....we offer the same massage and wrapping treatment even at the rural critical access hospital where I work in the US. Glad she's doing better!
Price difference?
I have a swelling problem too. Where do I go for this massaging and wrapping?
@@debrawakefield8537 I would ask your doctor or Google it, at my hospital we have 2 physical therapists who are trained in it. I think you may have to go to your doc first anyway for a diagnosis and referral. You will also want to make sure things like edema and cellulitis are ruled out. Good luck!
@@hurtkitty2490 Good thought, but I think they said that there wasn't treatment for her in the US. Just odd to me...
American doctors do not know Jack. Germany leads in helping for lymphedema and Lipolymphedema.
Awe she’s precious
Hi there hope you’re doing fine ?
She is such a precious little girl. I hope she’s doing well and thriving!
There are many, many people in the U.S. that are Certified Lymphedema Specialists. I myself am certified in Manual Lymphatic Drainage. When their is something mechanically wrong with the Lymphatic System, this is where Certified Lymphedema Therapists come in, they are qualified to work on severe issues. Very powerful but very gentle work.
Hello there hope you’re doing fine ..??
I admire this sweet family. Best wishes going forward. So glad to see the improvements! 😇
Hi there hope you’re doing fine ?
@@rolandcorey6332 why do you keep tryna hit on women in the comments, it’s not a good look Roland💀
Such a precious little girl and a beautiful family
She is so adorable. I pray for healing for this angel
Poor little baby swelling HURTS! I can’t believe these things happen to babies 😭 may god protect and help this little baby and her family 💝💝
Poor little sweetheart. I feel so lucky to have had a healthy baby, but makes my heart hurt that some babies aren't so lucky. I wish I could do something to help.
It's amazing what babies and Young kids can deal with. My daughter has waardenburg syndrome and just turned 2. She had surgery a few months ago on her face because her eyelashes on her lower lids were in her eye and she had to have her inner eyelids, and tear ducts operated on and she was up playing the next day. These babies can overcome anything they set their mind too...I pray for her health and for the treatments to work to make her quality of life better. 🙏
I hope little Cora is doing better.
It is an awful condition for such a small child.
I'm glad she is getting treatment.
I was diagnosed with lymphedema just 4 years ago ( I was 54 at the time).
I never really understood what it was about till I saw this show.
I'm glad I watched this.
It’s so not fare whenever a child is born with something wrong. They’re way too young to know what suffering is. I pray one day we will have cures for everything so the little ones no longer suffer.
Hi there hope you’re doing fine....?
My best wishes and prayers for this lil angel. I hope your future is happy healthy and prosperous.
Germany does have so many fascinating medical providers who take on these hard cases without a sweat
Awwww I feel so bad for the baby!! I wish the best for her and her family!!!
My feet have been swollen for the past 2 yrs.
This girl is handling it a million times better than I am
Keep going girl !! 💜💜
Hi there hope you’re doing fine...?
I went to a physical therapist in Iowa who was a certified lymphatic message. I’m sure you can find others in the USA who are closer to you. She worked for Century Physical Therapy in Altoona Iowa; her name is Becky Phillips, DPT. She was amazing!
Get better, Cora.
Aw poor little girl ☹️
What a brave young lady and what a wonderful family. I'm very very glad they were able to help her. I live in the state in Germany were this clinic is located. Lymphedema is not as rare as people think. The cost and stress associated with travel and treatment must be tremendous. Maybe the parents could move here and dad could get employment in Germany? Keep getting better!
her family including those dogs love her so much
Hi there hope you’re doing fine ?
@@rolandcorey6332 who are you
She's beautiful and so precious 😻💕. I pray 🙏 you can get to Germany!!
This doco was made in Germany.
Hi there hope you’re doing fine ?
Bless her..she's so beautiful hope she gets better.
Bless this sweet girl. I have lymphedema in my legs and it’s hard enough to deal with as an adult! People without swelling don’t realize how much it hurts!
OMG POOR BABY!!!!! 😭Thank God for those German doctors! I am so happy to know that she'll be able to manage her condition into full adulthood, that is so great!
Awww bless her poor heart... I too have lymphedema and it is a horrible thing to live with .....let alone being so small and active....I know it’s hard on her having to deal with the compression because it’s so restricting...I also see a specialist for my lymphedema and I’ve seen a tremendous difference with the wrapping and massages....along with the pump...I was wondering if you had tried the pump for lymphedema swelling.....it does wonders....I will be praying for this angel 👼🏼
Dear Lord Please help precious Cora. Please remove the swelling from every part of her little body Amen
Amen!
Amen..Lord..
I’m 38 years old from Kenya Africa, and I have the same swelling right under my ear that I noticed in 2015 and it has grown so much that I no longer have some self esteem. I don’t like the fact that everyone notices it and ask what it is.
Cora is such a strong girl and she is so beautiful and sweet. She is lucky to have amazing parents and I wish you all the best!!! ❤️♥️💜
Hi there hope you’re doing fine ?
Awe such a brave little girl ❤️ God please give this girl healing energy 🙏
I didn't know this about lymp.
she's a beautiful little girl!
Watching from New Zealand
Aww poor baby god bless her too cute 💕🥰🥰
I'm so happy that Cora was able to get the help she needs. Thank you GOD for this miracle 💝😁❤️🙏
I have Hereditary Angioedema. The swelling is awful. I had a throat swell last year and had to be ventilated. Stomach and genital swells suck so much. Feels like your skin might burst.
So sorry for your pain 🌹
I had really awful swelling during pregnancy. My legs were the same width from knees to toes, and I honestly feel like it was worse than childbirth, and both of mine births were all natural. I am so sorry this is a chronic issue for you. My empathy center aches for you, I hope the moments of relief you experience are many and often💝
🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽prayers for you
🙏🏾🙏🏾🙏🏾🙏🏾God Bless U I Pray It Goes Away
I hope she heals quickly
Wow .poor littoe girl,I didnt think this effected a young baby.
Such a strong and brave little girl Cora is. So glad that she was able to be helped, even if it was in another country. 🙌
Sending prayers 🙏 ❤️ to Cora.
Her parents are outstanding 👏 👌
Hi there hope you’re doing fine ?
She is so adorable
Amazing child. She’s going to do great things, in my opinion this is all she knows so to her it’s normal, she’s beautiful and I know she will be a strong amazing adult
She a perfect little angel God bless you all
Get well soon brave gir.❤
Poor thing, this is difficult for her to live with 😔
That poor baby 😢
She is absolutely beautiful
Lord please give this family strength, and protect this baby.
😢😭😭😭😭this is so sad but im so glad she is getting help and has a loving family
Praying for healing.
I've see this happen to adults but it seems so wrong to be so young and not understand what's going on. 😕
two ultrasounds is the norm during pregnancy
I had one, but that was a long time ago in 1997. They wouldn't even do one to find out the gender. Times have changed. I think I had one with my second too, in 2006/2007.
Probably should've gotten one. They could've aborted her
Thats why she said it. She was highlighting that it was a normal pregnancy
Yes, that’s why she highlighted it, to state it was a normal pregnancy that only needed 2 ultrasounds.
Really? When I was pregnant, I got an ultrasound every month. Maybe it's the hospital I went to.
Thank god I don’t want kids
Such a pretty little baby girl I pray she gets the help she needs in Jesus name
Let's join prayers for a miracle to happen and this little strong girl be fully cured ❤
i have the same thing, i got diagnosed at 15, i would hate to have it so young :( poor baby
Why was the excess fat in her hands not diagnosed and treated in the US? Smh american healthcare..
Heartbreaking.
Iv got lymphoedema and lipolymphedema in my legs iv had my legs bandaged from top to bottom and I wear compression stocking to keep the swelling down so I feel sorry for the little girl because I know what she is going through
Baby Cora, my prayers are going up to our almighty in heaven! You are sooo precious I know there must be an effective treatment for you. GOD bless you, mommy, and daddy!!!
Whe she's older trust she'd be happy it was already over with instead of having t do something later. Plus the skin was so stretched I can't imagine it would end well if u hadn't don't anything.
Such sweet angle may lord Jesus blessings and love be upon Cora baby.
I was born with this exact thing on feet. I’m in tears. Everything they describe I’ve experienced & It breaks my heart this little girl is going through it . God bless her & anyone else experiencing this overwhelming health condition .
Did yours ever go down? My son was born with it i believe and we’re currently trying to find a neurologist to look at his feet, he’s 3 months old now and we don’t know how this’ll impact his life.
@@CheyenneTrent my dads side of fam was born with it & went away completely as they got older. When born both my feet looked like little ballons, when I was older around elementary school they were less but still swollen enough were I could only wear boots or shoes sized up.. I’m 24 now & left foot is slightly swollen barely noticeable ,. Right foot is same except it gets extremely swollen up to my calf, if I walk after couple hours or eat too much junk & soda or if hot temperature outside. Truly it’s difficult in many little ways but hey I can walk & fully function, I’m grateful for my feet. what I can say that makes me happy for you is your baby is only few months (like I mentioned a lot of family of mine were born with same & their body defeated whatever was blocking their lymphatic fluid) , don’t lose hope💓Praying that your sons experience with this is quick so he can wear awesome little shoes . one thing I can invite you to do with all respect is yes go to the neurologist & continue to do all you can to help figure out what’s going on. Despite all the pain this brought me one thing I am grateful for is my moms determination since the day i was born till even now to try & find help for me. Sending all the best to you & your fam 🙌🏻 you got this (:
I’m not even a dad yet but my heart goes out to you
Beautiful little girl you're amazing
Beautiful baby!!
Hi there hope you’re doing fine ?
hands,feet,and genitals.....yikes,well that's basically asking for almost no semblance of normal life especially post puberty and becoming an adult unless you can solve at least the third by the right later date.
Poor baby
That poor thing
Good to have parents that would do anything to make you well bless 🙏💯 them
this is what I have.. I have never been this heavy in my life.
they didn't know this was lymphedema? am I missing something here
Oh my god this is terrible! I only thought obese people could get lymphedema, not a child! This is so terrible😪
Absolutely. I get the wrapping myself.
It's nice to know new things
Dear Lord take care precious 😇❤️
Looking back too high school, this African American Girl (Who's Most Certainly Is a Woman Now) had this SAME illness 🤔🤒😔🥺🙁 I ALLWAYS wanted to Pull Her Aside & ask because I never saw or understood... , why one side of her body like her ( foot, some of her leg,and her eye's) where swollen throughout the school year. I say that because I thought eventually the swelling would've went down. She was only able to wear 1 shoe & the other Leg/foot she wore a flip flop. I always watched out for her too! Like for Bullies... NOBODY MADE THEMSELVES. I PRAY THAT OUR MAGNIFICENT MERCIFUL OUTSTANDING LOVING HEALING GOD HEAL ALL THAT IS ILL. 🙏🏽 ❤ 🙌🏽
I see this littele Kid und have tears in my eyes
I find it more than a little irritating that this family had to travel to Germany to get this treatment. I'm sure if an american doctor took the time to listen to the family's concerns this could have been treated in the states. 'murica
Ur so right..
😭 poor baby.
I understand. It's hard to understand situations like this because sometimes not everything is easy to understand the fear of life of the unknown about questions that not everyone has the answer to because there are situations we don't understand why anyone would deal with this regardless of what kind and I'm glad we have a loving community that cares and I want to help out but I am afraid of the unknown situation of how do I know who to ask for that idea if I don't know where to find the right place to donate money if I'm afraid of trusting online sites if some of them are shady people who steal because not all are safe if they can be hacked by the dark web or created by criminals who steal from people so please look for red flags because if it's too good to be true it's dangerous and also full of red flags from criminals
I’m curious why she only had 2 ultrasounds…. That’s strange
Probably no insurance or shitty insurance that didn’t want to cover more visits
Wife n I have 5,,grown kids. Now 12 grandkids. To my recollection n picking wifes mind? Shes a retired R.N. Two ultrasounds are normal if on the 2nd one all is normal. Plus the moms general health is good n no family history of certain genetic diseases. (We n the kids all have always had great health insurance. )
Lymphedema is blockage in the lymph nodes,I have it,in the groin y legs started swelling,in high school,early 80 s,now,I’m 57, I have a huge lump,on the left side of my belly,is big as a cantalope,it was never diagnosed until I was in my mid 50 s,when my mom was pregnant with me she had high blood pressure and low potassium.My calves ,in my leg have it mic the skin is dry and cracked it leaks a clear fluid,and it makes me urinate like crazy,when I get skin that weeps. Twice I’ve had skin infections ,where I’d get chills and 104 temps,the second time was this February 2022, I suggested liposuction,for the lymphedema lump,on my left side of my belly,nothing was done.I’m swollen in my shoulder blades too.
Hi there hope you’re doing fine
I was born with Primary Heritary Lymphedema in both my legs, I think my great grandfather from Germany had lymphedema when he moved to America. My dad was the only one of his siblings to have lymphedema in his legs the longer he was standing & walking on his legs the worse they got severe swelling. My sister & brother both born with Lymphedema in both legs. My daughter was born with Lymphedema in her toes on the right foot only. My son was born with Lymphedema in both legs. My niece was born with Lymphedema in both her legs but my nephews & great neice's don't have lymphedema at all. My two Granddaughter's my son's daughter's both have lymphedema but there doctor calls it Turners Syndrome not lymphedema. My daughter's son that was the second child born, I was told he has swelling in his genetal area & both feet. But his older brother & his little sister don't have any lymphedema at all. If this help's any one F4 gene can cause lymphedema & the severe swelling of certain parts of the body, any where there is lymph vessel's in the body can be affected.
May God healed this baby
This is so horrible that this baby has this horrible disease!!!
There is another show, that it shows it is the nerves that get twisted.
Sweet girl! I don’t understand why those treatments of liposuction and compressions aren’t available in the US? She could have gotten the fatty tissue diagnosis here too. Regardless I’m glad she’s found some relief!!
You would think the USA would have these treatments. My momma passed May 2nd 2021 she had diabetes, lymphedema and others things. We live in Raleigh NC. We tried for years and years to get her help with it. She got massages and compression garments. Also water boots that would go up to her thighs and compress up and down just like the massage. Nothing helped or worked. She suffered till her last day on earth. I miss her terribly.
It’s rare in America and not offered as well as insurance doesn’t cover it if you can find it. As well as liposuction is only for 18+ not for children suffering and even if allowed insurance won’t cover
We do even in the middle of nowhere you can get this the treatment usually doesn't work for adults that gain it from overeating versus genetics. People just like to blame doctors for their own failings and sensationalize things for entertainment
More like lymphomas , or lipomas. Praying everything works out for her . I hate when things like this happens to children , it’s just difficult to watch
This highlights the fact that the Lymphedema Treatment Act needs to be passed. I’ve had primary lymphedema for nearly 45 years. Therapy and treatment get very minimal coverage from insurance companies. Treatment is sometimes impossible in certain places all over the world, including Canada.
My name is Kasey and my daughter is also named Korra.
Poor baby.. :( she is so strong.. she looks cute too. Even if she’s going through this, I see her as normal bc everyone is a person. No offense
1st tym seeing her hand I got really shockk but she's just a cute child y god y
This helps me feel more inspired as I may not have the same thing she does however I have hyperhydrosis which is where my hands and feet uncontrollably sweat non stop even when I’m freezing I’ll sweat and my hands will get really red