THIS IS HARD TO TALK ABOUT!!!

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  • เผยแพร่เมื่อ 20 ต.ค. 2024

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  • @MM-sn1rx
    @MM-sn1rx 2 ปีที่แล้ว +105

    Actually not talking about difficult things is not always a bad thing. Some of us process inwardly more efficiently than others. Be still. And know that I am God. Brings me a lot of peace when I am dealing with difficulty.

    • @marciamills2900
      @marciamills2900 2 ปีที่แล้ว +1

      Oh my gosh this is me and I just totally failed at trying to communicate that to my family ❤️

    • @nancyfarkas3592
      @nancyfarkas3592 2 ปีที่แล้ว +6

      Yes but if you never talk about that’s a bad thing. Can lead to depression if you don’t deal with it. She said if she didn’t talk about it maybe they would go away so she isn’t dealing with it?

    • @ToChristBTheGlory
      @ToChristBTheGlory 2 ปีที่แล้ว +2

      You’re absolutely right, but sometimes it’s different for everybody. everybody deal with situation or problems differently; some like to talk about it and some like to keep it between them self and God. I am one of them that likes to keep it between me and God because quite honestly God is the only one that has help me through every situation in my life bad or good. God bless you all. ❤️

    • @neymaandrade6193
      @neymaandrade6193 2 ปีที่แล้ว +4

      Not talking about things is definitely not healthy, the only thing is that she doesn’t have to make it public. However talking about it in public could also help others going through it.

    • @kc26119
      @kc26119 ปีที่แล้ว

      Love and prayers to your sweet family!! Carlin- I had a bad accident years ago, and I still suffer from it. I thank God that I can walk, talk, and breathe. It does still make me discouraged because I can't do everything I could do before. I can relate. You are so very brave!! An inspiration. You and Evan are so blessed to have one another and the kiddos!! Thank you for sharing your life with us!!❤❤

  • @sueregan2782
    @sueregan2782 2 ปีที่แล้ว +32

    Layla’s attention span for the manicure is phenomenal for a two year old! The photos of Zane at the ball game look just like Layla as a baby! Wonderful family.

  • @denisebyrd3573
    @denisebyrd3573 2 ปีที่แล้ว +69

    Someone else mentioned this, but I would highly recommend a service dog, too. They can not only alert you that a seizure is coming, but also assist with a safe “fall” or even alert someone for help. I am a quality management nurse and when I was reviewing charts the other day, I came across something I wanted to share with you. This patient had Remote Symptomatic Epilepsy. It said her epilepsy was caused by a car accident that had been 6 years before. Just thought it might be something to bring up to the neurologist. Prayers for your sweet family ❤️🙏🏻

    • @jeanpotter2163
      @jeanpotter2163 2 ปีที่แล้ว +2

      This might be helped by a chiropractor…I know of a case that was helped after this same thing happened.

    • @outback7092
      @outback7092 2 ปีที่แล้ว

      Do you know when was the patient diagnosed with " Remote Symptomatic Epilepsy " ?

    • @carrieanncancino5118
      @carrieanncancino5118 2 ปีที่แล้ว +3

      She needs to have $20,000 to $40,000 to have it specifically trained for only her. The doctor can only recommend it but not get it for her or get it for free or discounted. My sister's husband has 1 for his diabetes. Not really sure why everyone is telling her to see ok talk to the doctor about getting one. It doesn't work like that and there is 2 years of training to get the dog completely trained and that depends on the needs of the person. And the waiting list is like very long to get on. She should start looking at different websites now if she is even thinking of getting one. Insurance does not cover service dogs too.

    • @outback7092
      @outback7092 2 ปีที่แล้ว +2

      @@carrieanncancino5118 How about looking into what vitams & minerals etc. to take to reverse or minimiliase the "trial injection" that has caused it ? How about removing SUGAR from diet entirely too?

    • @Sunnydreamer1470
      @Sunnydreamer1470 2 ปีที่แล้ว

      Yes! I do believe a chiropractor could help! Worth a try! Acupuncture too!

  • @AmyintheMountains
    @AmyintheMountains 2 ปีที่แล้ว +2

    Evan, you made me tear up! 🥲 Your advice shows your maturity and godliness. You and Carlin are a precious example of love, humility, and integrity. I’m praying for you all, especially for answers to Carlin’s health issues.
    And that sweet Layla getting her nails done 💅🏻 so adorable!!

  • @Lurthatgurl
    @Lurthatgurl 2 ปีที่แล้ว +142

    I totally understand it took me 6 years to get a correct diagnosis. I finally went to a big university here in Florida to a group of doctors who finally listened to me. They put me in the hospital did 2 day of tests and on day 3 had all of the answers. I never cried so hard in my life. Hang in there it’s tough I know but with God all things are possible. Sending you lots of prayers. 😊

    • @kellywawro3132
      @kellywawro3132 2 ปีที่แล้ว +9

      May I ask what hospital in Florida you went to? My husband’s been very ill for the last couple years nobody can find a reason. I’ll have you in my prayers that you get well

    • @anseldiaz1968
      @anseldiaz1968 2 ปีที่แล้ว +2

      And what is your diagnosis? If you don't mind sharing

    • @Lurthatgurl
      @Lurthatgurl 2 ปีที่แล้ว +1

      @@kellywawro3132 Shands Hospital in Gainesville. I saw 3 specialists at UF Shands who are the best of the best! That university and hospital are amazing. They saved my life.

    • @Lurthatgurl
      @Lurthatgurl 2 ปีที่แล้ว +3

      @@kellywawro3132 also my primary never gave up he wrote letters to the specialists up there asking them to take my case and he called all the time. They put me up in a hotel for the first 2 days with free transportation and then direct admitted me to a room where they did the tests and again saved my life. I still drive up every 3 months for checkups but I get my treatments here at home.

    • @courtneybreaud806
      @courtneybreaud806 2 ปีที่แล้ว

      It took me over ten years to get diagnosed with pots

  • @lindseyf22
    @lindseyf22 2 ปีที่แล้ว +11

    Layla getting her nails done was beyond precious, her smile was everything 🥰💕

  • @tammymdotson4604
    @tammymdotson4604 2 ปีที่แล้ว +61

    Several years ago my husband kept passing out, seemed to be specifically after he would eat. Long story short version, is he went to neurologists, cardiologists, etc. had multiple EKG's and Echo Cardiograms, etc., several doctors saying "nothing to see here". We eventually went to a doctor that within 2 minutes of conversation diagnosed his with HOCM (Hypertrophic Obstructive Cardio Myopathy), immediately referred him and bottom line he come very close to death and could have died at any time by his condition that doctors didn't believe was anything. Stress tests, heart monitors, Echo Cardiograms - etc never identified it - the Echo should have but you have to have a tech that knows what they are looking for. He had major heart surgery to correct his issue and is perfectly fine now. My point is yours is not the same and probably not as serious as his was - but trust your instincts on what you think - doctors aren't perfect, and not all are equal. You have to push to get answers I had worked at a hospital and worked with doctors everyday and I had a hard time getting them to understand the seriousness, they see so many things they don't always see what is in front of them. I will say after the diagnosis I called Mayo Clinic in Minnesota and requested an appointment - 2 weeks later they did a thorough review and scheduled the surgery 2 weeks later. Things have changed but you can request your doctor to refer you to a Mayo or someplace like that to do a thorough review... One other note we went to Mayo in Florida and to University of Florida - Mayo in Rochester is much MUCH better. Bottom line is you have to be your own health advocate, people thought we were crazy flying to Minnesota for surgery - but we went to the experts and who made us most comfortable.

    • @DoctorJoanieTool
      @DoctorJoanieTool 2 ปีที่แล้ว +9

      Mayo in Rochester is the best of the best. And you are in there and every possible team of specialists coordinate to figure out the problem. People fly from all over the world. Check w insurance. Call Mayo. Check about referrals.

    • @mnmom723
      @mnmom723 2 ปีที่แล้ว +4

      I live about 45 min from Mayo Rochester. I have been there with my child as well a few family members. They are wonderful! Im a Nurse (BSN) and my child (who’s 25 now) went there when he was little. We were treated with respect and felt heard. I can’t tell you how many times docs have been wrong, lazy, narcissists or just plain ignorant! More so with my child than with my neonatal patients but it still happens. I’m not saying Carlin has bad docs, just saying they do make mistakes and it’s okay to look for different ones. You can still maintain your home GP while being seen at Mayo. I have to agree that I think Carlin needs to seek help from a more advanced healthcare center that specializes in cases like hers. . I honestly believe that Carlin will get much better & prompt care at Mayo. 🙏🏼

    • @daveshoemaker7137
      @daveshoemaker7137 2 ปีที่แล้ว

      @@DoctorJoanieTool Cleveland Clinic too!

    • @suestephan3255
      @suestephan3255 2 ปีที่แล้ว

      @@DoctorJoanieTool sounds like she can get a diagnosis and your referral may be it.

    • @tammymdotson4604
      @tammymdotson4604 2 ปีที่แล้ว +2

      @@mnmom723 The problem is doctors don't know everything and general practitioners have so much to know about so many different things, they are not specialists. I have many Physician friends and it is not that they don't want to help, it's more like they don't know what they don't know. My husband saw a bunch of different Cardiologists, I honestly think each thought their diagnosis of "nothing to see here" was correct. My husband was in his 50's doesn't drink, smoke, not over weight, he exercises and did great on stress tests, the only real thing that should have been a clue was he had a heart murmur, his was a very specific rare issue, so no fault of them. The other thing is he went to the ER numerous times from passing out - ER's treat the immediate issue - he passed out and hit his head - they do not look at why he passed out other than to treat what is currently going on, that is for your primary physician - who doesn't always have the experience to see the signs. We were fortunate to find a Cardiologist (finally) that had seen this and knew what it was - honestly he said most Cardiologists will never see his issue so no surprise they didn't diagnose it. In retrospect we should have cut bait and went to Mayo in Rochester in the first place - but it is a case of you don't know what you don't know and not always an easy decision. You have to go through the process and for me I worked with Doc's everyday and had a hard time working through what to do. And truly renowned hospitals aren't always experts in every field and some times Doc's have their own agenda's, sad but true. Mayo clinic in Florida was absolutely no help for my husbands condition - to be fair his was rare and the Doc there had not seen it - but with that said he was a Cardiologist and we had a diagnosis when we saw him and I honestly knew more about the treatment for it than he did - so Fl Mayo gave me a bad taste for people with HCM or HOCM - probably fine for other things, same with University of Florida - although that Doc was at least aware of the protocols - she didn't suggest the "right" treatment for his situation, but it was a legitimate option. The moral is be your own health advocate, no one cares more about your health or understands the symptoms more than you.

  • @vb346
    @vb346 2 ปีที่แล้ว +45

    That nail session was literally one of the cutest things I've ever seen....She was so patient and that smile when it was done. That mother daughter moment was epic.....It's the little things that make big memories.

  • @MegaCj65
    @MegaCj65 2 ปีที่แล้ว +87

    Evan, you are an incredible husband. The words you spoke at the end prove just how committed you are to your wife and your family. What a beautiful sentiment. My heart is always with Carlin. Keep pushing through the days, good or bad. God is with you always. 💕

  • @DawnShortMsShortyTV
    @DawnShortMsShortyTV 2 ปีที่แล้ว +26

    Keeping you in my prayers. My sister had something like this after she had her second child and it was originally thought to be something to do with the epidural so they tried a reverse epidural. In her case this wasn't what went wrong but thought I'd say something in case it may be a slight possibility somehow. Much love to you all! xo

  • @debcarpenter8519
    @debcarpenter8519 2 ปีที่แล้ว +164

    Carlin, it's okay to be bummed, frustrated, angry...the list goes on. You're right we're you need to be right now, as hard as it is. Hang in there. You are so lucky to have Evan and the rest of the family!

    • @HeatherKFezuk
      @HeatherKFezuk 2 ปีที่แล้ว +3

      Absolutely OK! I have had my condition since 2009 and I still get angry, depressed and frustrated. I still cry. Have days where I am couch bound. I just say it’s OK. Today is what it is.

    • @bubsodleson4109
      @bubsodleson4109 2 ปีที่แล้ว

      Please check your spelling on public forums. The correct form is where not we're. We're is the same as "we are" so that isn't the correct form of the word. I'm sure you don't want people making incorrect assumptions about you.

    • @HeatherKFezuk
      @HeatherKFezuk 2 ปีที่แล้ว +4

      @@bubsodleson4109 it might be her auto correct. I have to double check mine when it comes to were. It always changes it to we’re.

    • @cindykennedy1940
      @cindykennedy1940 2 ปีที่แล้ว +3

      Evan your talk at the end was so true and honest! Noticing what really makes others happy especially you’re children is priceless. And doing things to make others is rewarding for everyone!!
      I enjoy your humor also! You always make me chuckle 🤭
      Keep up the great work.
      Prayers for Carlin

    • @lisaoatts8246
      @lisaoatts8246 2 ปีที่แล้ว +2

      Carlin, it's ok to talk about it. Evan is such a blessing, know that! Regardless of the outcome or diagnosis, you are LOVED! Hold on the that, and remember God doesn't make mistakes, he has a purpose for your life. You are AMAZING ❤️! BTW, I'm not one of those perfectly healthy people, I just saw a cardiologist, myself, next week will be a vascular (vein) specialist. Between now and then, I'm having an endoscopy.....reach out if you need encouragement. 🙏🏻

  • @antonialofgren4367
    @antonialofgren4367 2 ปีที่แล้ว +17

    Thanks for being so vulnerable and letting me in on your journey, I have brain aneurysms and it really is hard going through health challenges and it’s encouraging to know I am not alone. Thanks again for being you

  • @shirleysmith971
    @shirleysmith971 2 ปีที่แล้ว +115

    Have you thought about getting Carlin a therapy dog? It would be with her at all times and warn her when an episode is coming so she could prepare. Love to you and your family💕

    • @nmrn672
      @nmrn672 2 ปีที่แล้ว +7

      That a great idea. They can sense seizures. Maybe even get izzy trained for that since they already have her and it wouldn't be adding something new to the mix.

    • @rondamiller4206
      @rondamiller4206 2 ปีที่แล้ว +5

      A seizure therapy dog is a great idea!

    • @bree._.
      @bree._. 2 ปีที่แล้ว +2

      Amazing idea!

    • @sarahloyd7276
      @sarahloyd7276 2 ปีที่แล้ว +5

      They have Izzy they can take her to specialized training to get her to be a seizure therapy dog

    • @patseemore5019
      @patseemore5019 2 ปีที่แล้ว +4

      There is a very long list of people waiting for dogs, they might be able to get a grant for one, otherwise we will all have to step up and donate so they can afford one.

  • @nicoleholding
    @nicoleholding 2 ปีที่แล้ว +13

    As an academic who has to give a lot of lectures I l do love how Evan engages with the audience. He is so natural and authentic in front of the camera and I do enjoy his sense of humour. He is very entertaining and I enjoy watching them. Prayers for Carlin. It took me nine months to get a diagnosis for me but mine was more a disinterest from doctors. I knew what I had, even my then 10 year old niece diagnosed me but every doctor fobbed me off which by the time I was diagnosed left me with permanent damage. Keep pushing for answers but it seems you have a good medical team.

  • @ScrubNSqueeze
    @ScrubNSqueeze 2 ปีที่แล้ว +77

    The SMILE on Layla’s face the whole time her nails were being painted 💅🏻💅🏻 SO cute!! She’s one smart, beautiful girl!

  • @jessicaw1438
    @jessicaw1438 2 ปีที่แล้ว +6

    Hearing that Carlin is still struggling with health issues, just breaks my heart. I hope you guys can get some concrete answers soon. And that is such great advice! Seeing your little girl so happy, seriously made my day. You guys are the best! 💕

  • @angelabrockman7816
    @angelabrockman7816 2 ปีที่แล้ว +50

    The message at the end was on point! Layla and her nails is too cute. God bless your family and prayers for answers. ♥

  • @cindym7234
    @cindym7234 2 ปีที่แล้ว +8

    Oh my gracious! Watching Layla's smile while getting her nails painted was the cutest thing ever! Sending prayers your way for answers and healing! Love from Texas

  • @christinad1020
    @christinad1020 2 ปีที่แล้ว +53

    My daughters & I just love y’all’s family! Who wouldn’t? What joy y’all bring! ❤️ Oh, my heart. The way Layla held her little hands when she got her nails done! 😍 Love the love & team work as a couple y’all have. Such a beautiful testimony to so many. ❤️ And I admire Carlin’s strength & grace in this journey. Your own journey is valid, Sweet Sister. And God is & will bring His glory through it! He is ordering your steps. How brave you are to share the steps as you walk them. ❤️ We’re praying for y’all & we’re excited to rejoice with y’all when the answers & solutions come! 🙌🏻 Sending y’all so much love & prayers! ❤️🙏🏻

    • @melissamcswain9617
      @melissamcswain9617 2 ปีที่แล้ว +3

      You said already what I was thinking, except it's my mom and I. So I'll just say, ditto here. 💖😊
      Thank you Carlin and Evan for being so faithful, honest and real, even through the hard stuff, as God uses you in this journey and will make Good things come out of it. 💖🥰💖
      We love you and keep you in our prayers as you seek answers and understanding. 🙏💖
      And Evan, Good idea to wait for the nail salon until after the oil change. Safer that way. 😉

  • @hockeymom8906
    @hockeymom8906 2 ปีที่แล้ว +13

    The amount of cuteness when Layla is saying the color blue, and her sitting there so happy and patiently, and well behaved, was the most adorable thing! 🥰 You are both great parents, and doing a great job with your babies.

  • @JL-vy8mf
    @JL-vy8mf 2 ปีที่แล้ว +1

    Layla’s joy at getting her nails done was so fun to see. Evan, you are such a good dad and husband. Carlin, thanks for letting us be apart of this tough health journey with you. You will get there.

  • @blancallara1719
    @blancallara1719 2 ปีที่แล้ว +33

    Carlin..you are in my thoughts and prayers everyday. Whatever you feel it's okay..if you cry it's okay. I pray for a peace that surpasses all understanding for you and Evan. The Lord has you. He will not abandon you but it's okay to feel scared and apprehensive. We love you guys so much we want all the best for you in Jesus name, AMEN !!!

  • @cherman3952
    @cherman3952 2 ปีที่แล้ว +17

    Been praying often for you all. Your situation may be completely different from mine. But I had months of near fainting with a lot of your symptoms. I went to Mayo Clinic and I went through several days of every test possible, it seems...like you. Everything came back clear. It turns out that I had an autoimmune disease that pregnancy triggered and I had become allergic to several foods, especially gluten and corn products. I changed my diet, and the symptoms went away, unless I eat gluten or corn by accident...usually through cross contamination. Huge learning curve. Thought I'd share just in case you are in similar situation. With continued prayers...

    • @showtimesynergy87
      @showtimesynergy87 2 ปีที่แล้ว +1

      @@Katnann4 agree completely with this. I have Ehlers Danlos, but also have Mast Cell Activation Disorder, which I had to fight to be tested for.

    • @cherman3952
      @cherman3952 2 ปีที่แล้ว +1

      @@Katnann4 Yes, I agree with you. I have been praying they would see the comment and now yours. Thank you for replying!

    • @cherman3952
      @cherman3952 2 ปีที่แล้ว +1

      @Rachael Nelson Hi, everybody is different. Food Intolerances, food allergies, etc. can and do sometimes cause seizures. A lot of autoimmune diseases cause food intolerances, food allergies...a fact. And seizures can come from autoimmune diseases.

    • @cherman3952
      @cherman3952 2 ปีที่แล้ว +1

      @Rachael Nelson I am not going to argue. Most doctors have no clue how food can affect people and cause problems (the comments above this, show that too). So saying your team of doctors said something, isn't saying much at all. Mayo Clinic team of many doctors never figured it out for me. After several years of research, plus finally finding a doctor with knowledge about this, things largely improved, by God's grace. The point of my comment was to possibly provide help; something to check into...not argue with someone. Plus, continuing to reply to you is futile. I hope things go well for you.

  • @3girliez617
    @3girliez617 2 ปีที่แล้ว +37

    I get tremors too. I don't pass out anymore. Still keep talking about it, even if it is hard and disappointing. Holding it in doesn't help at all. We understand and many of us know the frustration you are dealing with. It is hard to not have the answers when we want them.
    You are brave and strong. The days you don't feel that way doesn't mean you are any less than brave and strong. It is okay to have not so brave or strong days. Those are the days you lean on the Lord and your family. We are praying for you Carlin ❤️❤️

  • @Lilliebug01
    @Lilliebug01 2 ปีที่แล้ว +9

    I love when children skip you can just tell they are soooooo happy their heart is just singing ❤️❤️❤️

  • @lindajones8895
    @lindajones8895 2 ปีที่แล้ว +47

    Prayers continue for ya'll. Carlin I say prayers for you and your doctors. You have the support of your family. And all of us here. We love ya'll so much. ❤️❤️
    Good they are checking more. Perfect.

  • @Elishava_
    @Elishava_ 2 ปีที่แล้ว +2

    Evan, the last part of the video with you talking was so beautiful. For you to admit you can be selfish and how Carlin’s illness is changing you brought tears to my eyes. Every video you post the love you and Carlin share is shining through. I appreciate you let us in.
    Carlin, no matter how much struggle and sickness you have, your elegance and kindness never leaves you. We are all pulling for you and your family.

  • @kathy3178
    @kathy3178 2 ปีที่แล้ว +8

    I have several health conditions. Seeing all those doctors and living in the unknown felt overwhelming and scary. There were times when I didn't want to talk about it. There were times when I broke down crying. It is like a wild roller coaster that will not stop. Process how you need to do so. Because, it is important to take care of your mental health in all this. I will keep praying for you.

  • @jangrady1061
    @jangrady1061 2 ปีที่แล้ว +7

    Evan and Carlin: You are such a blessing to so many. Love to you both and your beautiful family. Prayers continue for Carlin and the family.

  • @lauragasho4671
    @lauragasho4671 2 ปีที่แล้ว +8

    Layla has really come into her personality and so very happy. You guys have really matured in great ways, love watching you!

  • @donnavercoe1186
    @donnavercoe1186 2 ปีที่แล้ว

    Leila getting her nails painted was the cutest thing! My little niece painted her nails with me last week, and she loved it too. I like what you said about the simple things meaning everything to them, and enjoying it through their eyes. I will try to do this more with the little sweethearts in my life!

  • @mallorycirelli4084
    @mallorycirelli4084 2 ปีที่แล้ว +14

    Oh my goodness! When Layla was getting her nails done was just about the cutest thing ever! She's absolutely precious.

    • @gayle228
      @gayle228 2 ปีที่แล้ว

      Amen 🙏🏻

  • @kaylanewling3175
    @kaylanewling3175 2 ปีที่แล้ว +3

    Thank you Carlin for sharing with us and being vulnerable!! Always thinking of and praying for you! 💕🙏
    Evan, it's been amazing to see how you've stepped up to bat and the selflessness you've shown in caring for your family. Thank you for the encouragement and the fine example!

  • @julesmisty
    @julesmisty 2 ปีที่แล้ว +16

    Please continue to share Carlin. Some of us know exactly how you feel. My daughter was 2 when I became sick and almost 4 when diagnosis finally happened through a specialist I saw that had nothing to do with my symptoms. You WILL get answers. Take it from me, rely on Evan to keep you safe. I had the hardest time giving up my independence, but it was too risky for my daughter to ignore that it wasn't safe for me to go out alone with her. Driving will come back, but don't do it now. They will take your license if anything happens. You don't want to put anyone in danger. Finally, stay strong for your babies. I feel like I would have died if it wasn't for my daughter. You can message me for any support. I'm a Nana now and I worry about you. Lots of love for all of you. Evan, you're an amazing husband and father ❤️❤️❤️❤️. Oops, forgot, I've never heard of a heart problem causing seizures but am anxious to see what tests show. I walked out of work Jan 17, 1989 and never got to return. It's hard, but you can do it. WITH family, you can get through anything. My mom stepped up for me as my husband left when I was pregnant. I lost my mom recently and am still wondering how to live without her. My best friend and personal cheerleader, she is missed every minute of every day.

    • @Prattmary
      @Prattmary 2 ปีที่แล้ว

      BUT GOD
      BUT GOD
      GOD ALLOWED HER TO SEE U THROW. One will never know what she was going through while helping U through.
      I strives of BREAK THROUGH AND DELIVERANCE.
      U CAN MAKE IT.

  • @mollieroach5971
    @mollieroach5971 2 ปีที่แล้ว +1

    Layla is so cute when she’s getting her 💅 done blue w/sparkles and is just so joyous in that moment!!! That’s such a great reminder from Evan to just do something for someone else to help you be less selfish! And Carlin, oh my goodness… you are so strong for allowing us to share your health journey. It’s okay to be frustrated and mad because the answers aren’t coming in your timing but just knowing that God is with you every step of the way, walking beside you and loving you through it all! My prayer 🙏 is that you will be able to get an answer soon! ❤️ 💕

  • @sherrieclark4217
    @sherrieclark4217 2 ปีที่แล้ว +18

    This one brought tears to my eyes. The other morning the Lord put it on my heart to stop and specifically pray for Carlin. Also, what you spoke about at the end. Tear jerker...thank you for saying that. Things around me not going the best and I forget to just slow down and take that time with my kids and bring joy to that time. It's hard when life is getting me down but my kids are growing fast and time is slipping. Thank you for the encouragement!

  • @simplyshannon9053
    @simplyshannon9053 2 ปีที่แล้ว +2

    Awesome advice at the end of the video Evan! Also Carlin, I am praying for you mama! I know when I was first diagnosed and dealing with my chronic illness, needing help and always feeling like I was letting people down because I couldn’t do certain things or go certain places was SO HARD!!! Just know there are others who understand how you feel and you sharing also helps us feel not alone!

  • @bluemoonrising7200
    @bluemoonrising7200 2 ปีที่แล้ว +12

    Prayers and love to Carlin, Evan & family.🙏♥️

  • @Kari982
    @Kari982 2 ปีที่แล้ว +3

    Oh Carlin, watching you break down and cry broke my heart and I wanted to cry with you and give you a big hug. I’m am praying that you find answers to what is going on and to finally know what is causing all of these problems. Love you guys!! ♥️♥️

  • @Robindigsit
    @Robindigsit 2 ปีที่แล้ว +4

    Oh Evan you are such an amazing young man! And oh my heart when Layla was getting her nails done I also enjoyed her happiness 😊 Just remember you being there for Carlin means the world to her! We need more Evans in this world!

  • @amywood8642
    @amywood8642 2 ปีที่แล้ว

    That SMILE on Layla's little face... Priceless!!! Carlin, it is frustrating when you can't get answers to what is going on, but there is an answer. Sometimes it just takes time to get to it. Keep trusting the Lord. "Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take." (Proverbs 3:5-6) Continuing to lift you up to the Great Physician!

  • @traceonthecase
    @traceonthecase 2 ปีที่แล้ว +9

    Youll figure it out girl. Somethings gotta give. I feel confident youll get some answers and meds that work. Your babies are still small and they will adjust to whatever happens and the treatment. Im just glad there's lots of family to help you. Good luck.

  • @ericalatshaw4287
    @ericalatshaw4287 2 ปีที่แล้ว +8

    Hey Carlin, you are so encouraging to me. I’ve been experiencing some seizure like symptoms too. I’m a young mom of a 2 and 3 year old.
    Waiting for some tests and some more test results. I’m so frustrated sometimes and it’s very overwhelming. I feel like I can’t be the best mom and I feel like I’m missing out because I’m an anxious mess.
    Hang in there! 💓

  • @marciamills2900
    @marciamills2900 2 ปีที่แล้ว +9

    Well said Evan at end of video with selflessness as hard as it is the reward on the heart is priceless. ❤️ Blessings to your family and sweet kids and hugs for answers in Gods timing as it will be just perfect!

  • @TeressaJ1960
    @TeressaJ1960 2 ปีที่แล้ว

    This video melted my heart! Layla is at such a cute age, she's irresistible! Keep working on solving your health problem, Carlin. You seem to be such a strong, godly woman and somewhere there is a doctor or group of doctors who will find answers for you. Keep the faith. Praying for y'all!

  • @hannahreason577
    @hannahreason577 2 ปีที่แล้ว +8

    Carlin, I know it's hard and I've been where you are with a different kind of health problem. Not knowing is not fun but it will be be found out and it is in God's hands. Many prayers going up for you and just keep trusting in the Lord.

  • @Playing_with_a_Purpose
    @Playing_with_a_Purpose 2 ปีที่แล้ว +1

    Children are precious. I agree that watching children happy with the small things is so sweet!

  • @jessicadrake5394
    @jessicadrake5394 2 ปีที่แล้ว +14

    I feel your pain and frustration for sure! It took me 7 years to get my diagnosis of POTS. It so hard to get people to understand especially when all tests come back normal. Hang in there!!!!! ❤️💕❤️💕

    • @bek1720
      @bek1720 2 ปีที่แล้ว +1

      So many people don't even know about POTS. Sending lots of love and understanding of what you are going through ❤

    • @lindamaskus5142
      @lindamaskus5142 2 ปีที่แล้ว

      I'm one who doesn't know what pots is. Never heard of it.

    • @bek1720
      @bek1720 2 ปีที่แล้ว

      Sorry meant for Jessica Drake❤

  • @sandiebrown8291
    @sandiebrown8291 2 ปีที่แล้ว +4

    The smiles that Layla had on her face was priceless. Good luck with your health journey I can relate it takes time God bless you all

  • @macaronmaker0720
    @macaronmaker0720 2 ปีที่แล้ว +13

    Wow, that pizza at the beginning looked so stinkin good! The joy on Layla's face when she was getting her nails painted was beyond adorable 💙 (blue heart for Layla)

  • @bobbiecurry3162
    @bobbiecurry3162 2 ปีที่แล้ว

    My fav part of this was Evan reflecting on Layla getting her nails done and all the words that followed... do more of that ;) It's inspiring and motivating to be reminded of the little but BIG daily blessings that God supplies without end to us if only we are ready and willing to see and receive them. Prayers for you Carlin. When it feels like God is quiet... just know it is then when he is working His hardest. He will see you through... in His time and His way.

  • @stephroseblade4336
    @stephroseblade4336 2 ปีที่แล้ว +5

    As a mum with a disability, I understand where you are coming from, the more time that passes and health doesn’t improve, you gradually lose the hopes that this is something that will just pass. It’s so hurtful at times, to be a mom who has limitations with your kids, because we all desire full active parenting. I think you’re both dealing with it great xx

    • @mrsmack5808
      @mrsmack5808 2 ปีที่แล้ว +1

      I feel this so hard. I have some chronic medical conditions/low immune system. Especially with this pandemic I have been so limited and have had to limit my kids activities as well. I feel so guilty that they don't get to do all the things their cousins and friends get to do because of the risk to me. They're troopers.

  • @MamaLuceroCreations
    @MamaLuceroCreations 2 ปีที่แล้ว +6

    Great advice Evan! It's nice that you've learned this at such a young age. I'm sorry you're having to do it in the midst of a difficult situation, but the hard times do make you appreciate life more. 👍

  • @jamiewilhelmy9990
    @jamiewilhelmy9990 2 ปีที่แล้ว +5

    Evan, You are such a good Husband and Father! I have never seen you put yourself first. Hang in there Carlin, hopefully the answers will be coming soon. Kids are adorable and Layla was so cute getting her nails done.

  • @flyawaydutchie
    @flyawaydutchie 2 ปีที่แล้ว +11

    Hats off to you Evan. I appreciate your honesty in talking about your growth as a husband. These things you are going through as a young couple are hard to handle . Makes one grow up real fast.
    Please rest assured that my husband and are keep you in our daily prayers.
    May God heal you from these health problems but more than anything may Gods will be accomplished in your lives.
    Love in Christ.

  • @kwebb4826
    @kwebb4826 2 ปีที่แล้ว +8

    Carlin, my heart go's out to you. I know how hard it could be to find out what is going on with your body, and how hard it could be to talk about it. But think of it this way...you are helping others by getting your story out.
    Keep being strong! Hey do you have a email address because I have a question or two ask you.

  • @tinipak3955
    @tinipak3955 2 ปีที่แล้ว

    i feel you, its always hard to admit that theres something wrong with yourself. pretending its not there and not talking about it, hoping it will magically disappear. Ive been there before and its not really healthy, mentally and physically. i used to deal with depression but for years i had always denied i had it, tryna unvalidify myself and that only worsened my state. It wasnt til when i admited that im not okay, smt is wrong with me, that i started getting the help i needed n be a better person :(
    i hope you will get through this soon

  • @tkaerich
    @tkaerich 2 ปีที่แล้ว +13

    Oh Sweetheart…..I just want to give you the biggest Auntie hug!! Hope this gets resolved soon.❤️

  • @julieorozco1419
    @julieorozco1419 2 ปีที่แล้ว +1

    Your brother-in-law with the popcorn 😂😂😂. And Layla getting her nails done!! I can't handle it. Too precious!!!

  • @blessednana2272
    @blessednana2272 2 ปีที่แล้ว +10

    Evan, you're doing a great job. Yall are a blessing, i have been going through a rough time in my life and you all sharing that church service was just what i needed. The songs and word that was preached ministered to my soul. Thank you!

  • @nannaterri
    @nannaterri 2 ปีที่แล้ว +2

    Carlin and Hubby are so mature and strong. You are in my prayers 🌹

  • @vjohnson2400
    @vjohnson2400 2 ปีที่แล้ว +27

    You’re such a trooper Carlin, I can’t imagine how hard it is for you and the family. You’re a strong woman but even the strongest of women need support and will feel emotional at times but that’s OK. We’re with you, I hope it helps just a little. Wishing you a return to good health very soon. Layla is just too cute. That was quite a revelation Evan and very honest, everyday we learn something.

  • @xxcookiegamerxx3344
    @xxcookiegamerxx3344 2 ปีที่แล้ว +2

    Layla getting her nails done was so precious. We’re praying for you Carlin. God bless

  • @hensyrodriguez482
    @hensyrodriguez482 2 ปีที่แล้ว +7

    What a beautiful and encouraging video 💛 praying for Carlin!

  • @karenperez8879
    @karenperez8879 2 ปีที่แล้ว +1

    Evan, Thank you for your words, so uplifting! What a Great Guy you are!

  • @nicolezappia20
    @nicolezappia20 2 ปีที่แล้ว +9

    Send prayers to you and your family. I know what it’s like to be going through health issues. Sometimes talking about/sharing something you might not want to can actually make you feel better.

  • @joannaandblueskies9435
    @joannaandblueskies9435 2 ปีที่แล้ว +1

    Evan , bless your heart , what a beautiful example of being a dad , loving the joy through your sweet daughter eyes , such wise heartfelt words. You and Carlin are such strong loving incredible people , parents and husband and wife to each other, I pray for answers and healing for Carlin as so many people are here. Thank you you both again for sharing your vulnerability with this journey, many blessings to your family.

  • @kimberleyschaeffer3526
    @kimberleyschaeffer3526 2 ปีที่แล้ว +10

    Hey girl, hang in there. It took me 7 years to find my brain tumor. It’s tough and I felt like a hypochondriac every time I went to the drs. You have to be your own advocate. Looks like you have a great support system. You said something about your arms being cold, so I’m curious what you find about that. I get cold arms as well.

  • @susansmith6680
    @susansmith6680 2 ปีที่แล้ว +2

    Carlin always in my prayers.
    Layla getting her nails done, completely precious.
    Evan love your reels. By the way you are so amazing yourself.

  • @DoctorJoanieTool
    @DoctorJoanieTool 2 ปีที่แล้ว +3

    Really beautiful. I wondered if things were still happening - I understand that the longer this continues with no seeming end in sight is one of the hardest things to sit and be present with … please know your family is absolutely helping others feel seen and supported and understood.
    There is an answer (or set of answers). This is highly abnormal and keep hope because somehow the answers will be found and you will get some answers to help your quality of life and independence. Fear of the unknown is one of the hardest things to grapple with. Thanks Evan, for the perspective and the truth. Don’t give up hope and don’t stop looking for the answers. Are they still considering the 10 day in hospital brain scan to try to capture what is going on in your brain during these seizures?
    Hang in there. We all appreciate how open and vulnerable you’ve been. You are helping so many of us. Thank you and be safe!!

  • @marciabigg469
    @marciabigg469 2 ปีที่แล้ว +1

    The joy on Layla's face was incredible. As a parent, that is everything you work for is to see that kind of joy.

  • @Martlin
    @Martlin 2 ปีที่แล้ว +4

    Keeping you all in my prayers that answers come soon. Evan, your humor and humility is top notch.

  • @ConnieLeinicke
    @ConnieLeinicke 2 ปีที่แล้ว +1

    Layla could not be more adorable! I love your family and may God bless you all with answers and solutions to Carlin’s health challenge as well as with many happy days together while your babies are small. ❤️

  • @tissosweet7606
    @tissosweet7606 2 ปีที่แล้ว +4

    Layla is a ray of sunshine ☀️!! Carlin, you continue to be in my prayers 😇.

  • @lindseyweihmeir1918
    @lindseyweihmeir1918 2 ปีที่แล้ว +2

    Carlin I love how you hold sadness and joy so well together. Evan what you said at the end is so true. You guys have already been through a lot in your marriage together and it is only making you guys stronger. I will be praying for you all. My husband and I are about to bring our first baby into the world and I can’t wait to see that excitement on his face

  • @aprilparrish67
    @aprilparrish67 2 ปีที่แล้ว +10

    I’m so sorry this has happened to you. Still praying they find answers for you.

  • @caradixon9247
    @caradixon9247 2 ปีที่แล้ว +1

    Evan, I loved your little talk at the end!! Really makes you think and realize you need to be more present with your loved ones!

  • @vonda7848
    @vonda7848 2 ปีที่แล้ว +5

    What an inspiration your sweet little family is. Blessings to you and continued prayers.

  • @cindymercado3563
    @cindymercado3563 2 ปีที่แล้ว

    Hug your kiddos extra hard this week. Just dropped my baby off at college for her freshman year and it’s been a tough few days. I’m officially an empty nester!! Evan you’re so right there is nothing better than to see your kids smile or their dreams come true no matter how big or small.

  • @TheMrKristens
    @TheMrKristens 2 ปีที่แล้ว +6

    Sweet Carlin, I am nearly 2 decades in to my diagnosis and I am still learning things. 😕 The issue with mine is it is a progressive disease with my endocrine system and it sorta doesn't stop until some point in the 4th decade of life. So I have a while to go. 🥺 I always considered myself a very healthy kid and teen...turns out I had ALL the signs of what I have starting as an infant. Not sure how it was missed for 20 years, but it was. So...I still struggle with it. And while I can talk about a lot of it, some things still get me hecka upset. I just went through a surgery recently (I am totally good and everything is physically healed great) and it rocked my world emotionally. I just didn't realize how intense the feelings would be. It is nuts. The feelings range from not feeling like I can trust my body, not understanding my body, anger at why it doesn't work like it should, wondering why I can't fix whatever is wrong, feeling utterly let down by my body...etc. I think the thing with an illness/disease that is long term is the fact that the mental aspects of it are so hard to deal with at times. It gets overwhelming. I always thought people didn't feel like this who dealt with big things. Nope. They break down and cry and scream and get frustrated and angry and then they pick themselves up and start all over again. It is a cycle. This is all new for you and you are waiting on so many answers right now. It is so hard. It's totally ok not to talk about it. It's also ok to spill your guts and get it all out. It really is all ok. Do what you need to do in the moment. This stuff is big. It will be difficult at times. Easy at others. Just know that you are loved by all those around you. 💗💗💗 I am sending you all lots of (((PRAYERS))).

    • @christymeez
      @christymeez 2 ปีที่แล้ว

      All very well said! 🤍🙏🏽

  • @staceynelson2357
    @staceynelson2357 2 ปีที่แล้ว +1

    I love your channel ty Evan and Carlin for even sharing your family with us! Can I just say I wanna run all the way around the block screaming bc Layla is soooooo cute! I love her cuuute pigtails and the way she loves her nails painted.💖💅😊

  • @patriciaharkin1571
    @patriciaharkin1571 2 ปีที่แล้ว +9

    Carlin honey, it's perfectly natural to feel frustrated and angry and down when you don't have answers and cannot live your life the way you would like to. Hang tight girl, this will all work out in the end. Evan, are you managing to work through all Carlin's health issues? are you managing ok financially? You could set up a Go Fund Me page and I will gladly support you. Zade is looking more like Layla every day, they are both adorable and I cannot believe Layla sat so quietly getting her nails done! God Bless.

    • @Sunnydreamer1470
      @Sunnydreamer1470 2 ปีที่แล้ว +2

      That’s nice! Me too! They have their PO Box address in their bio underneath we can send donations to that! 🥰

  • @rmllawrence
    @rmllawrence 2 ปีที่แล้ว

    Evan, you are so right! The joy through your child’s eyes is immeasurable! She is so precious! God Bless all of you!

  • @Ducky2964
    @Ducky2964 2 ปีที่แล้ว +4

    I know what it’s like to have something medically going on and doctors can’t figure it out. I’ve been there and I’m still there. Test after test with either no answer or only a limited information. It’s very hard to talk about and I hate that you guys are going through this. I’ve been praying for you and will continue to pray.
    Layla is so cute and precious. I love her blue and blue sparkle nails. They’re very pretty.

  • @jodeming5088
    @jodeming5088 2 ปีที่แล้ว

    Layla and her smiles while getting her nails done. The way she holds her hands and sits so still absolutely precious.
    Carlin, you are getting love, hugs, support & prayers from all of us. I truly understand the need for answers. Unfortunately with things like this it takes time. Hang in there, talk when and if you want. Just take good care of you and know the answers will be found.
    Evan your rid bit of info couldn’t be more true. Little man is growing so quick and is so cute. Much love and prayers until next video.

  • @mokhiber1
    @mokhiber1 2 ปีที่แล้ว +9

    Carlin we are all here to support you..it is ok to feel all the emotions that you are experiencing trying to get to the root of the problem. Take one step at a time. Just one suggestion please ask your doctor if the epidural you had during labor with Zade has anything to do with the seizures.

  • @nakibaspencer2267
    @nakibaspencer2267 2 ปีที่แล้ว

    Watching Layla is so joyful and sweet. She is my spirit animal. Thank you for sharing her joyful moments with us.🥰

  • @NannyDiaries23
    @NannyDiaries23 2 ปีที่แล้ว +3

    Layla is absolutely adorable 🥰

  • @aleciahenderson5450
    @aleciahenderson5450 2 ปีที่แล้ว +1

    What a gift, at 20-something, to learn that living selflessly brings true joy to one’s life!

  • @Doyouboo.
    @Doyouboo. 2 ปีที่แล้ว +3

    Man you sure have amazing humor and life has come at you fast! You will get answers and the popcorn brother-in-law was hilarious! You all have found funny partners it seems, and sharing your journey is inspiring.

  • @franceskey79
    @franceskey79 2 ปีที่แล้ว +6

    Layla's little face was priceless!!! Continued prayers for you Carlen!!!!

  • @huniebon
    @huniebon 2 ปีที่แล้ว

    Awwwwh! Layla Pooh is too dangnabbitt cute getting her nails painted and dried. And holding her nails out!😆😁😃😍🤩

  • @howjesuschangedme
    @howjesuschangedme 2 ปีที่แล้ว +2

    Going through my own medical mystery. I know that feeling. Praying for you guys

  • @karenminckler4198
    @karenminckler4198 2 ปีที่แล้ว +1

    That smile on Layla’s face getting her nails done was so precious. Love your family. Praying for Carlin. Hope you get some answers soon and they can do meds to stop them.

  • @dianecervantes2662
    @dianecervantes2662 2 ปีที่แล้ว +8

    Prayers for you and your family 🙏❤️❤️❤️

  • @kristametro9173
    @kristametro9173 2 ปีที่แล้ว

    My daughter dealt with an undiagnosed illness for over a year but finally with much prayer we got the help she needed. We also did a lot of fasting and prayer. We asked for special healing prayer and came against any strongholds or attacks from the enemy. Never underestimate the power of healing prayer!! I can give more specifics if your at all interested in this healing journey. I'm happy to say after a year of searching for answers, ABBA Father showed us the way to healing!!

  • @ljh150
    @ljh150 2 ปีที่แล้ว +3

    Carlin, did they give you any vaccines when you were in the hospital having baby boy? It seems like this started since then? Maybe DTAP?

  • @daniellewaring576
    @daniellewaring576 2 ปีที่แล้ว +1

    Layla ❤️. That gave me such genuine joy and a big smile on my face to see her so proud and happy about her “blue and sparkle” nails. Thank you for sharing with us 😊

  • @joellaogilvie2744
    @joellaogilvie2744 2 ปีที่แล้ว +5

    Okay Layla getting her nails done is cuteness overload OMG!

  • @shazza47
    @shazza47 2 ปีที่แล้ว +2

    Seeing Layla so happy melted my heart. Sending love to you all ❤️