maybe you should watch the videos and learn information.... Your comment only shows you are a coward, how about use this video to learn more about what is actually dangerous in stead of using your fear to make decisions. yes there are tons of meds that can do bad things to you. If you learn what they are and why you will protect yourself way better than if you shove your fingers in your ears and go LALALALALA everything is bad.
This needs to be broadcasted on every possible platform, including national television and beyond. What a beautiful young man he is along with his amazing mother. God bless you both. I don’t think I will ever forget this interview. To the son and mother you will be in my prayers
That’s the whole problem. It will never be broadcasted in the news. This crap is happening since the 90’s and it’s swept under the carpet because of government interests with the pharma companies. The permanently harmed and death are just seen as collateral damage. It will never hit the news. Medicine is cause of death number 2 (look it up online) but you only hear on the news about a car crashing against a tree. Never about meds. Who do you think are the sponsors of those news channels? A rational person would think like you, but the government, pharmaceutical companies are not rational, they think about money and stocks.
Marcello here… I couldn’t agree more. True informed consent for all is LONG overdue. Sadly, most legacy media outlets rake in huge sums of money from the pharmaceutical industry in the form of advertising revenue. There is a real and present conflict of interest preventing news outlets from engaging with this public health emergency, and no one is incentivized to put an end to it.
@@marchromano1 I too have been damaged by these drugs, I wish with all my heart I could do something to stop the madness of people getting so unimaginably damaged. I’am grateful for Dr Josef for what he does. Hang on! Never stop praying 🙏
@@marchromano1 God bless you, Marcello. I feel that these “doctors” wrongfully put you further and further, deeper and deeper into the psychiatry abyss. They suggested taking these drugs thinking they were innocuous. They really have no idea! It is so wrong on so many levels! Thank you for standing up in this fight. Society needs to be made aware of what exactly psychiatry is and what is actually going on. Everyone needs to wake up to these atrocities that are happening to suffering people who put their trust in these so called “professionals”.
A few zopilcone almost gave me a heart attack from not taking them properly at precisely time they wouldn't even work in the ward the clients and nurses were driving me even more into psychosis... he wanted to give me 1 zop and 4 of something I refused just left my self lose my mind even more couldn't even sleep In there... they gave me a wafer benzo right away knocked me out for 16 hours then put me on invega and effexor right away after a nuclear mri my brain was entirely orange I was developed into an acute transient psychosis then diagnosed into psychotic depression remission... I had some weird Catanic schizophrenia symptoms of inability to feel pain from serious trauma I have the procedure on medical file where my left eye literally went crooked, optic and nerve damage through being thrown into a pile of autistic shit so hard I almost died
Didn’t know this was Marcelo , I’ve read his story many times and have seen him post on Facebook, the guys been through it. Glad to see him here. Kudos to his mom for sticking with him
I NEED HIM TO KNOW THAT IT GETS BETTER!!!! IM SOBBING WATCHING HIS STORY CUZ ITS SOOOOOO SIMILAR TO MINE. IM ALMOST 8 YEARS INTO MY INJURY AND I AM FINALLY GAINING BACK THE JOYS OF LIFE THAT HE TALKS ABOUT HAVING LOST. BECAUSE I LOST ALL OF THOSE TOO. FOR ME IT WAS MY ART. AND I STOPPED READING AND DOING STEM. BUT ITS COME BACK. I HAVE SUCH A STRONG RELIEF THAT HELL GET IT BACK
My ability to create was also removed from me for 4 long years. I never fathomed that my very own personality and talent could be erased. I am forever grateful that it gradually resurfaced. Unbelievable what we endure with this injury. I was injured by Cymbalta, Paxil, and Ativan.
Marcello here. The fact that I am still alive after half a decade of this is proof that I believe it can get better. However, this is not some universal truth, and it shouldn’t be tossed around as one. It’s simply wrong to assume this will be the case with everyone, as if all one has to do is buck up and wait for guaranteed healing. A huge part of informed consent for people who have not yet taken these meds is communicating that it absolutely can be permanent, or so long lasting and severe that it is impossible to survive.
I applaud his mother for protecting him against the psychiatric kabol when he was at his most vulnerable and keeping him from forced medication and incarceration. As parents we have to trust our Instincts and not just follow the medical machine
It's cabal, not "kabol". I did not even know you could make so many mistakes in one word, I seriously hope English is your second language, otherwise US education system has failed you
@@yoga_iaini In my case it was my GP who prescribed me prozac for anxiety instead of referring me for counselling and full thorough blood testing to check for deficiencies in minerals etc
Marcello here… Never in a million years would I have agreed to take these medications if I had known the risks. It seems unbelievable that Big Pharma would allow people to be tortured to death in this inhumane and barbaric way, yet here we are… Thanks for your kind words.
@@marchromano1 Hi Marcello, you have navigated with so much grace and strength this whole journey. I can definitely sense that you have gifts to share. Have you thought of writing an article about the analogy of akathisia and climate change, maybe for Mad in America? You can take a look here: www.madinamerica.com/submitting-personal-stories/
I relate with Mom so much, and I’m so impressed with her decision to respect her sweet, brave son’s autonomy. I’m going through a similar nightmare with my husband, who took benzos for decades to treat a movement disorder. Wishing all good things to this beautiful family.
In the age of the internet, the evils of psychiatry will inevitably fall. Well done, Marcello. We appreciate your bravery and honesty. Also, I have severe akathisia as well as the non-24 syndrome. You mentioned in the interview that you hadn’t seen anyone in the community with that. Here I am
Thank you Anthony. I was going to say that I know several. Ashleigh Lattimore has chronic akathisia and non 24/circadian rhythm disorder. I also have it. It developed a few years into the pacing. I tried to explain to Marcello how similar my experience was to his. He’s more severe than I was at his age. I’m hopeful because he knows what to do. I had no idea the neurological monster I was wrestling at nineteen. Of course, knowing what to do and being able to do it are two different things. I have felt forced to try and treat pain severe times in this journey. I’m back doing it right now knowing it’s making me slowly worse trying to live to fight another day.
@@kevk741 thanks for sharing that, Kevin. It makes me feel less alone. I completely understand the need to treat the extreme pain while it also making you feel worse and worse. Every day is a fight to survive for me as well. Keep on fighting, buddy. I’m only 2 years out but the intensity is still at a 10. Thanks for your support and kindness 🫂
Marcello here.. I often wonder how long it will take for these barbaric injuries to become common knowledge. Here’s to hoping that the internet and people like Dr. Josef can help speed things up.
I'm so sorry you are going through this for so long Marcello... Akathisia is the worst torture on earth...it's beyond the scope of human imagination Only those who have experienced it would truly understand the depth of the suffering... I resonate with everything you said. I feel so sorry for those before the era of the internet who suffered in isolation. I believe a lot of them probably offed themselves just for relief from akathisia and were reported as "suicides." Things are changing now, thanks to people like you and dr. Josef
@@Tammy-w5m5k Robin Williams took his life after taking mirtazapine but they didn’t report this they said he had some form of dementia but when I was on support groups people said it was from drugs
A nurse told me that when atypicals came out, Big Pharma said that undiagnosed akathesia had been a leading, or the leading, cause of patient suicide. Then she laughed and speculated they may have always known that, and just owned up to it when they had a newer drug to peddle.
@@Aqzcwghk Such beautiful Souls 🥰 yes you are so right. the torment of Akathisia is totally indescribable and beyond unbearable, even if you have it there aren’t enough right words to describe so others could begin understand.
It's a chemical panic. Deeply different from any natural panic. You know it's your body crying out from chemical assault. He describes it perfectly. And yes it does affect music and sound processing.
Yes, true. For over one year, I was unable to watch TV or listen to music. I had the strange perception of sound coming from behind the wall. This has to do with DP/DR, too.
@sarahpearsall2248 Effexor withdrawal done by a so-called doctor. It's a terrible and undefinable thing. I feel better now, I can sleep again. That's a miracle, I had lost all hope before that.
Yes! I worked in a building as a super. After stopping Lexapro or just changing doses - I ended up with the chemical panic. I also became very sensitive to coffee. I got this panic about my building thinking I have to keep fixing it at all cost and stated doing manic things like looking for problems, taking on projects, being rude to people to force them to service the building better. People told me to stop but I wanted to express so badly I didn’t care. I could t accept there was something wrong with me that I needed to deal on my own and not through others. It was like panic and stress and getting enraged at things and not being okay with context. It being to weigh things to figure what to do best and doing things when doing nothing is the correct way.
Yes I often refer to it as a chemical feeling. My doctor doesn’t understand it at all and still doesn’t believe in such a thing so I now no longer see him anymore and if honest don’t trust medical professionals anymore.
I’ve been thinking of you Marcello , praying for you, praying for all of us , thank you for bringing your story , you are unbelievably strong , I wish people knew how really strong you truly are.
@@lam7402 The many of us suffering with not as much love and understanding as he gets from his parents understand all too well the hell he has been in but he said it’s easing and if that’s the case then that gives me hope but he hasn’t tried to unlive himself like sadly many before him Many celebrities lost their lives due to prescribed drugs from dodgy, money minded people who could offer talk therapy and diet suggestions before reaching for the prescription pad
Marcello here. Thank you for acknowledging the fight, and yet, there are plenty of people who have/have had this worse than me… For instance, think of all the veterans that come home with severe PTSD, only to take these meds and have THIS blow up in their faces. There are people confined in prison with this. There are a thousand ways to imagine those that don’t stand a chance with this. It’s pure evil.
Thank you so much Marcelo and Mom for sharing your harrowing experiences with psychiatric medications. There is such an urgent need to get this information known, especially because the the vast majority of medical professionals know nothing about adverse reactions or serious side effects from the drugs they prescribe.
Now we need to know how we can help ourselves to heal from it when it’s gone on for more than 2 years and I want to know if Marcelo feels like his inner terror has improved at all in the 5 years.
@@sarahpearsall2248On the whole, I have had absolutely zero improvement in 5+ years. Many aspects are worse, such as the exhaustion from fighting this most impossible torture and disability.
This is one of the most important, poignant , informative videos on this I ever seen! Marcello describes what happened to me ! I had NO clue what was happening to my mind/body... This is validation for me on so many levels! From the gaslighting of "professionals " to " clawing through, just moment to moment". Thank you from the bottom of my heart! I will add it CAN and DOES get better. Microscopically. But , it DOES! ❤
Marcello and Mom did an amazing interview. He articulated so well and Mom's love is so apparent. Best discussion ever. Marcello and my son are nearly identical except for in a different situation. It has been over 5 years. It is just my son, myself, his patient advocate and a counselor. You feel like you are against the world, and you are. The days of screaming and crying, "skull pain", and the look on his face which I will never forget. Absolute terror and painful agony. When I tried to hug him, he told me to keep my distance as the sensory was too much. All you can do is be there in presence. Add to that his multiple health conditions that we are unable to address, it feels like we are on a sinking ship. One second at a time. Also, thank you Dr. Josef.
Marcello, you have no idea how much you have helped me understand some of antidepressant medication withdrawal. My son struggles and has been unable to work and doesn’t go to far from home
Marcello here… It’s important to trust your son and follow his lead. These injuries fall on a spectrum of severity and can look different for everyone. No two injuries are alike, and things that have helped others might not help your son at all or vice versa.
@@marchromano1 Dear Marcello, apologies for chiming in, but you mentioned briefly that you struggled to sleep. Was it common for you to experience days without any sleep at all? The reason I'm inquiring is that I am currently struggling with severe, treatment-resistant insomnia due to OCD and was just curious how bad yours went? Thank you in due course. Hope you'd make a video about your condition as others are struggling and would love to reach out, perhaps just for support to a fellow community.
You are so strong and brave and well spoken, Marcello! I think I wouldn't be able to bear something like this even for a few weeks or months. Also my heart goes out to the mom, it must be horrible to see your loved one in this torment and not be able to do anythimg to help them. I'm sending love and prayers with the best wishes that you'll get a least a little better over time.
I am so , so , so very sorry for you that you had and have to go through this Hell ! I don’t have Akathesia , but your story and others that have been harmed and really all this could’ve been prevented by so called professionals it’s inhumane! I’m glad your mother was there for you . I am 41 yrs Chinese women, trying to wean off very slowly and may hold to, but it 🤬ucks me up when children and young men like you get harmed . It’s reall heart breaking, heart wrenching , soul and spirit despair, body is shut down . I am so passionately angry ….
Wow, the strength and courage this young man and his mother displays is so very powerful. His hopes and thoughts about how to continue on with life is just offering hope even through his deep pain and obvious horror with what he is dealing with. I can only pray that he will see great improvement and will not only survive but thrive. What a brave interview and though I am going through much pain, neuropathy, akathisia, BIND, protracted w/d, etc. myself at age 68 yrs old, I, too, quit letting the ERs, providers, psychs, etc. make decisions for me!!!! I decided after 30 yrss to take my life back and am currently tapering meds and pray that I, too, can get my life back to a degree that I can enjoy the sky, the sunshine, my love for my family and friends … to be able to smell the everyday smells that are now so very toxic in my state. You are so very right about just drawing near to those who never left your side during this horrific experience/life-HOLD THEM TIGHTLY ❤
This presentation is so chilling. Marchello and Lisa are so brave. Before watching this I never even heard about “injury from taking anti psychotics” I have been taking Effexor for a year now. Watching this has motivated me to get off all my psych meds. I really hope you find what you are looking for and get better soon.
I relate to many things you the sick injured from psych meds have said. Chemical neurological terror with no help. Being near rivers and streams help me with my feet in the water. O ly very small joy or small tiny happiness short lived. Your description struck me so that I wrote it down so I can remember the words to explain the unexplainable. I had no idea a human could suffer so. I am thinking of you and praying for you. Please hang on. I feel sure your body will start to heal itself and return to a simulate of homeostasis. Love to you son❤❤❤ God bless us all
Thank you for sharing your story. You are very brave. And I feel for your mom and dad and friend who have gone through this with you. I had akathisia for five years. Very similar to yours. I walked constantly, 20 miles plus a day. So I truly understand everything you’re going through both mentally and physically. It took about four years (med free) to start to come round and by year five it was pretty much gone. I have watched your journey in the groups. I’ve tried to speak up, but it’s a tough place to speak because so much bad advice is being given all the time. Are you still taking meds? My heart broke when I saw you went on opioids. The way to survive this injury is with nothing, just sheer fortitude and waking up every day, taking everything second by second and breath by breath. It is the most inhumane horrific injury known to man. But it is survivable. I really hope that you are on the upward swing now. You do not have non-24. You have the same sleep injury that all of us have. There are tons and tons of people out there staying up all night and sleeping all day. And it changes all the time. My sleep took several years to come back and I still struggle with it. I’m going on eight years of this, but I will tell you when the aka leaves you’ll be in a much better place. It will all come back for you. Get yourself med free (personally I think you have to be fully free to heal, others don’t, but the evidence is anecdotal), let your brain and body heal. It will happen.
Thank you so very much for this interview. My son had many of the very same symptoms/ side effects from taking the hair loss drug Finastride. He was also prescribed many other drugs including benzos for his symptoms. I have heard that PFS and PSSD are closely linked. You mentioned the circadian rhythm disorder which my son definitely had but I had never heard of before this video. I just thought my son’s insomnia was the cause. When you described it I was shocked to learn it was actually a known disorder. As I continued to listen I was in tears to the similarities of your conditions and I could so relate. My son also could no longer drive, listen to music, watch tv, or read a book and he also constantly cried and screamed in agony. I am so so very sorry you are experiencing this and I want you to know I believe you and extremely appreciate you sharing this story. Thank you Dr Joseph as well for the interviews you conduct. Unfortunately my son succumbed to his suffering by taking his own life two years ago. These interviews give me hope that people are waking up to the realities of the harm these drugs can do and are fighting back against Big Pharma. Marchello and Lisa you are in my prayers and again thank you for your courage to share. Is there a way I could find out the name of your play Lisa?
My heart aches for him. I can relate all too well to Marcello. Struggling with a psych med injury and akathisia like symptoms and insomnia. Hell on earth. Hardest part is when you realize how alone you are in all of this and no one can help. Only hope is one day it will go away.
It does take time but over time you should notice a gradual reduction in symptoms. I am 5 years beyond a benzo taper and most of the debilitating symptoms have resolved. But the profound torture of akathesia and about 50 other symptoms simultaneously have left me shell shocked.
Marcello is one of few that's ever come close to explaining how horrible Akathisia is. I'll sound like a broken record preaching to the quior but... 5.5 years of having severe Akathisia... There's no greater torment in the world. Akathisia is the worst side effect imaginable. Doctors, manufacturers, sales reps that know of Akathisia should be held accountable to the level of terrorism on our nation. It's that severe. Dr. Doerring, if you ever want to reach out to me about Akathisia, feel free. I'll save up some energy to talk.
It’s crazy how we can’t understand this until we go through it. The way Marcelo speaks. It sounds exactly like the way I spoke when I was in the midst of it all. Speaking in metaphors in order to describe your pain (which can end up making you sound even more insane and have doctors try to put you on other meds) because there are no accurate words to describe this experience other than complete dread and other-worldly loneliness. That moment he speaks about how he couldn’t panic and just had to figure out what to do. It reminded me of when I, as someone who has always had immense anxiety and OCD, had to shut that all down to simply keep making it to the next moment. You realize at some point that factually the only way to somewhere better is by doing what you need to do to try to make it. That’s it. Marcello’s vocabulary and the way he takes the time to process before he speaks shows me that this has been a very traumatic time for him. I’ve always been good at writing and speaking freely, but my experience led to me becoming EXTREMELY articulate as a result of needing to do my best to explain the absolutely unreal experience I was having using words that cannot do it justice. Thank you for speaking up, Marcello. I hope things get better♥️
Its Exactly as you say. No words can describe it, normally no human go through this hell. Its an brain- neurological injury. Its like your brain is gone.
What a raw story. Thank you for sharing your experience and lessons, and for doing such important work - you're saving lives and preventing suffering. Thank you and good luck.
Im from Brasil. My history is very similar, but it started with a benzo's cold turkey. At the same time I was pregnant and lost the baby. I keep using a lot of meds and im very afraid about getting worse if i quit them. I am a psicologyst and i try to help some patients lije me too. When i first met dr. Josef i start to share his videos to help people. Thank u very much dr. , you cant even imagine how necessary you are in this days! Hope some day i can meet you.❤
My family member is going thru this now with being given Tradozone on top of her Lamictal and Abilify. After over 17 different psychiatrists and fifteen years later for a first ADHD diagnosis, which turned to mood disorder then bipolar and now after a 3 months close psychiatric observation and psychology testing the last one said maybe ASD. It's disheartening and criminal how our youths are being treated by this profession. After reading Anatomy of an Epidemic and many other books my way of coping is supporting those in FB withdrawal groups and Inner Compass with Laura Delano. Looking for hope into medical Keto too w/Metabolic Mind and this site. God help us all🙏
Marcello, I don’t know if you’ll see this, but I also have non 24 from my psych med injury but never knew there was a name for it! I am constantly shifting my sleeping forward 3-4 hours and end up being completely nocturnal some days. It’s been 2 and a bit years but I always just said I had sleeping difficulties. You described it perfectly. I am in a similar position although fortunately not tortured with constant akathisia 24/7, albeit with other devastating symptoms. My heart goes out to you. Your mother also reminds me of mine who has helped me through my injury. They really are a rock in this situation and I hope they understand how much we appreciate them. I really hope you improve soon.
I so hope this will get better for him, such a tender person.🙏 I also had and still going through consequences of sensitive reaction to psych meds, but not this level fortunately.
It was pretty beautiful to watch and beleive it or not I even found it quite comforting. An extremely sensitive and smart boy and his smart mom. Good news, most people recover from akhatisia, after a few years. I'll watch it again. And please come back in a few...
My heart extends to precious Marchello and his family. The intense suffering I see it in him and it’s extensively heart wrenching to watch. Im tapering off atm and it’s horrific! Indescribably hell of all hellish hells. I started tapering last April from 20mgs to now at 3.75mgs. My next taper is in a week. I’m not comfortable disclosing the medication. Everything that’s described I understand, deeply. All the Drs, Specialist, tests, medications, intensive suffering, being used as a rat lab is so familiar to me. Exhausting all avenues and no medical professional, holistic, nor natural could help. If it were not for my faith, I don’t believe Id be here. I’ve done this tapering on my terms, listening to my body, my GP is updated. My story is extremely similar, bar the non 24. How my heart aches for this Marchello. I just feel to share with him, watching him is so relatable. I was at the point of wailing for him. Watching him bopping was so heartbreaking. I tremble erratically. It’s a very, deeply lonely place to be. Family members help so much, however, no one can understand this horrific, indescribable torture, unless they’re going through it, or been through it. I, too, was switched from medication to medication. I’m an Author, Poet and Writer and an Independent Investigative Researcher. Ive been sharing with my Drs what to do, what this is, and sending them information. Our medical industry in Australia is very poor. I’m praying for this precious family. My heart breaks in many pieces for them, for this to occur at such a young age is cruel, so very cruel. The robbery of life is so agonisingly cruel. As I was watching I was praying. There’s so many dynamics to this horror of hell. Suffering that is unable to describe. Marchello, you’re a very strong young man. I know that is no comfort. We, in this situation are so desperate, we search and search for comfort. Lisa, who m 54, days have 2 adult children and my husband and extended family, if you need to talk you can find me on FB Messenger as Salwa Mariam. On Instagram as Salwa Samra. People don’t know, nor understand how everything, minute by minute, is forced by faith. We’re not able to plan at all and I was a an overly active, in nature person. Melbourne, Australia.
It comes back. The true self never goes away. You are still you underneath it all Marcello. It takes an eternity but you are aware of the present moment and the value it has. Ride with it. Learn to surf…. Flow. You never change, your brain chemistry might, but you are still the same person underneath it all. Strength to you. May you look back one day to find genuine peace and be closer to stillness.
Fantastic interview. Thank you so much for sharing your story Marchello. I know it's not easy to speak publicly about these things. I have a protracted withdrawal injury from an SSRI too. I also wondered what I would have thought if I didn't have access to the internet and other peoples experiences. I probably would have thought that I'd went insane and just followed doctors into oblivion. You might have tried this already but for the sleep issues you could try restricting light exposure. I used to have a lot of problems with my sleep schedule as well and what helped me was wearing a pair of dark sunglasses, turning all the lights off and turning any computer or phone screens down to a very low level of brightness. If I do that at least 3 hours before when I wish to fall asleep, for at least 3 weeks, then I start to notice a big difference. I still have insomnia at times but my sleeping schedule is a lot more consistent if I maintain this routine. This might not work for you though as I don't think I have non-24, so your issues might be more severe.
You are very articulate maybe you should write your story down also. My husband just tampered off Valium 9 days ago. The battle is real! Hope is our motto! Thank you for sharing.
These psychiatrists must be stopped. I almost lost my life because they told me “benzos are safe and you should use them to help you come off the mirtazapine”. Almost two years later and I am still unable to sleep, drive, or work.
I'm so sorry you are experiencing this. I'm 35 and have been on SSRI's since I was roughly 14 or 15. I got severe akathisia when trying to come off/stay off my SSRI the last time I tapered and it is actual hell on earth. Without experiencing it first hand there is no way to describe what it feels like or how torturous it is. I had to go back on the meds after trying to stay off for two years and being disabled/unable to work or even leave the house at times. I was able to stabilize back on them somewhat but still feel the sensory/ nervous system damage the last taper/withdrawal caused. I live in a state of hating the side effects while on the medication but also not being able to function off of it. I'm hoping at some point I will have access to a doctor in NH who can treat me and help me try to taper again. I seriously feel for you and wish you all of the best.
I'm so sorry this happened to you and you were so brave to talk about it . I have OCD and it got bad last year sometime and I had to go back on OCD medication clexa like I did six years ago but this time the reaction was terrible I got myoclonic jerk I switched to Lexapro and still had them but they have calmed down a bit. I hope my OCD will get better soon and I pray that God will heal you angisidy and akathisia. I hope you and your family will be well.
I can completely relate to losing my sense of awe at the vastness of the universe. That used to be something I was especially sensitive to. When looking up at the night sky, I would get goosebumps thinking about the scale of what was out there and feeling like I was a part of it. Beautiful music would resonate with my heart and sometimes bring me to tears. I could tap into a creative flow and it was magical. Latuda permanently took that away in only two and a half years. I don't enjoy music anymore, and I'm no longer capable of getting goosebumps. I was never told that this could happen.
Marcello here… I can tell that you really get it. I’m sorry you have to know this barbaric torture also. It is criminal on every conceivable level that these medications are maiming people who don’t suspect a thing except to feel better. ♥️
@@marchromano1 Thank you for helping to make this more well known. Latuda also gave me akathisia, which felt like a chemical panic. The best way I can describe it is the sense of movement and doom you get when you hit the brakes but your car continues to slide forward on the black ice and you know you're about to crash. Except it's constant. When I described it to my doctor, she said, "It sounds like your anxiety is getting worse. I could add a prescription for gabapentin to help with that." I only learned the word "akathisia" from a youtube video (shout out to Living Well With Schizophrenia) and realized what was happening. I tapered and cut ties with my doctor, but much of the damage was already done. Time will only tell how much was permanent. Good luck with your journey, my friend. ❤
@@Tempo50 Yeah. I'm trying really hard to get it back. It's like when you lose your sense of smell from Covid and you try to regain it by deliberately sniffing a bunch of different scents. I have to keep exposing myself to things that are beautiful and awe-inspiring until my brain starts to register that feeling again.
This interview means so much to me. Thank you Dr. Joseph, Marcelo, and Marcelo’s mother. I am someone who dealt with PSSD for a long time, but I actually recovered. Tragically, I relapsed from trying the drunk Low Dose Naltrexone and I am utterly devastated to my core, as the PSSD has returned after being in remission for about a decade. My story is similar in that I just did not have the presence of mind to make the right decisions in the middle of all that was going on. In fact, I made a very bad decision in that I microdosed Psilocybin once in an attempt to recover my feelings as the LDN was causing emotional numbness and I also drank some alcohol as I was stressed. This was during the withdrawal period and seemed to make things even worse. I am so angry with myself as I am a spiritual minded person who meditates and does yoga nidra etc, and yet I still made these terrible mistakes regarding my health and body, but as you said, when you are in the thick of things, you are mainly just trying to get by in the moment, and you can’t see the down stream affects of your actions. Thank you and sending prayers.
@@jmeditation in the thick of things you can't think clearly and you need guidance and help the most. Guidance and help that didn't exist or you didn't know exist at the time.
This is awful to see this boy in such a state and for 5 years!...I've said before on this channel, I've gone through this . None of the doctors knew what to do with me. I eventually found a psychiatrist that told me "he'll keep working with me until he gets a solution". He got me well again, all my symptoms went away. I'm on 4 ssri no benzos. I can't believe I'm well again it's a miracle. I wish I could talk with these guys .
I feel for you, as much as I’m able.. i still have almost every symptom you describe, but no help. It’s been 3.5 years since if was ripped off a Benzo & an anti depressant. I am slowly, very slowly, healing, I think. I am much older. I am grateful for you to have what sounds like amazing support. I feel this in itself is a great benefit, as you mentioned. Hopefully one day the will figure out what is different about those of us who have been injured, and why also, many many are not so injured. Sending lots of love & strength 🫶🕯🪶
My dyskinesia was so unbearable that it crossed my mind to paralyze my legs but fortunately I now take a Chinese herb - Licorice Peony (3x/day) as well as Magnesium Theonate (doesn’t cause loose stools) which calms it down. They gave my life back to me. The dyskinesia has lasted 17 years so far.
I love Dr. Josef. I appreciate how he is trying to help many people. My precious friend would love to get better and taper off her medication but does not have $30k for his tapering program.
@@sarahpearsall2248 I didn't develop Akathisia but it has been 5 years since I have stoped Venlafaxin and I feel I am still seeing improvements from the harms it has cause me. But apart from my personal experience I do believe it is possible that he will recover. There is so much we cannot understand and so much possibility that yes, I do believe that.
Such a crazy story! I want to say Marcelo has such a good mother! Maybe the way different people grow up and their attitudes towards medicine but I was once prescribed Zoloft after my son was born and I knew after taking one pill to stop. But I am lucky that I am super sensitive to literally everything. Modern medicine has made us disconnect from our intuition though and distrust ourselves without some authority.
My heart goes out to this young man. I had a very mild similar reaction in comparison to a medication I was only given once thank God, but it was the absolute worst thing I have ever been through in my life and I am a cancer survivor. To this day, it still brings terror to my heart that I never want to experience anything like this again. My prayer is that he finds something that will help as I cannot even imagine that level of torture.
Understood! Akathesia is unbearable and I too have screamed in the past.. I am fortunate not to experience it any longer. My heart goes out to your family. ❤️
Dr Josef, l love your words about l may not know all the answers, but l do know that l will be beside you every step of the way as we navigate this journey....this is very powerful, thank you...that would be so very helpful to hear!❤
That moment he describes getting hit like a tone of bricks is bone chilling to hear for people who have gone through that exact moment. How these drugs can do this to you is honestly a crime against humanity. The worst criminals who are given life in prison aren’t put through anywhere close to the same level of torture as someone who put their trust in the healthcare system.
Hey Marcello, Thank you for telling your story so eloquently, in spite of your immense agony. Dropping in to say that, while I didnt know it had a name, my sleep cycles did the exact same in my withdrawal. It wasn't until about year 7-8 where I started to get a bit more access to the world, and then sloooowly in the years to follow did I get a bit more and more. Also, I sleep normal hours now (although still broken sometimes with wakings or insomnia). Hold on. I hope more healing comes soon. I'd love to see your mom's play, too - will there ever be a recording of it, or will it be shown again? Best wishes.
Thank you Nicole, your positivity and hope is what we all need, despite you having to endure it for so long to give others hope. I salute you!!! We all so desperately need positivity and hope, especially this young man and his family. EVERYBODY RECOVERS!!! it just may take an incredibly long time x
What a damn warrior. Idk how he’s made it 5 years I barely made it 2.5 weeks and wanted to die. Luckily I reinstated tapered properly and it was not there when I finished
Hi Lucinda I've seen your videos- I am sorry you are going through this. Please read my comments- I posted twice here about lithium oligosol the trace mineral that for me took away my akathisia-overnight. After 3 years of agony. I had the same facial expression of despair that I've seen on your face.I thought it would never go away. I did not want to continue living like that. Now I am smiling and relaxing and enjoying life. It's worth a try. I enclosed all the links including the study in which it was used for benzo withdrawal. Take good care. You will beat akathisia. You are very strong!
My mom died 2/3/2018 at 65. My mom, my mom was not diagnosed properly with Alzheimer's dementia until about 12 days before her death, but it was about 2 years. No, it was less than 2 years. It was about 15 months before her death that she started having this apathasia, and nobody told me about it, and It was just a walking around anxiety. She could not stop walking and what triggered it was 2 antidepressants. I believe one was called boost boring, and the other 1 was paxil, and it revved up her system to where she could not stop walking. She just was walking around in circles, and she even told me Sandra, I'm like a Bunny, I cannot stop and I said, just relax, just sit And she said, I can't, and I said, why why can't you just sit? And she said she had this um, feeling like something in her feet or something in her legs. It was like something inside was making her legs move and I don't know if it was like an itchy feeling like or something inside I don't know what it was, but her Central nervous system was all messed up and her hurt. Sympathetic nervous system was heightened to a degree that I've never saw before. And something in those medications triggered it, and I know it was because she abruptly stopped the SNRI Efexeror and I was giving her effexor.... She, she was taking effects her on her own. She was able to take it on her own in her forties, so around the age of forty two, my mom started the effector but by the time my mom was, oh about 63 or 64 , my mom My mind couldn't really remember if she was taking her medication every day and it was horrible when I saw my mom in 2016 how much she declined The Psychiatric drugs that my mom was giving destroyed my mom's life and it destroyed our relationship. It was horrible. I am my mom's only child.I am now 49. But she died when I was 42 or 43. It just hit it was horrible.It was absolutely atrocious.I have a book that i'm writing and I had to pause the book because it's just too much trauma and it's too much for me to write
Marcello here… I sure as hell hope I am able to make it, but every indication tells me that it may not be possible. Thanks for your encouragement and stay safe.
@@marchromano1 I wish also the best of the universe for you. I suffer aktathisa too since 2019 from a cold turkey of pipamperone for sleep. Now hooked on Klonopin and Propranolol to ease my every day life which only took the edge of it. It is a nightmare!!! I was validated too, but I see in every doctors eyes that they don't know what this is really like! Greetings from Germany. Hold on, I hope this will all get better for us all who suffers from this. Sorry for my English!
YOU ARE VERY LUCKY YOU HAVE EACH OTHER. LOVE HELPS A GREAT DEAL. MARCELLO IS A GOOD, DESERVING, RESILIENT PERSON. NONE OF US DESERVED WHAT THOSE NEGLIGENT, MALPRACTICING "DOCTORS" INFLICTED ON US.
Great mom. These clueless psychiatrists are infuriating. It adds so much insult to injury (and more injury, too) that they can't even admit they don't know what to do once someone is harmed like this.
They're golem. NPCs. I'm convinced most of them aren't real people. I just can't make it work in my mind, it requires extreme suspension of disbelief to consider them human. For all I know they don't even exist when they aren't in your field of view. Yes, literal solipsism, that's how much this palce just isn't believeable.
Marcello here… There are something like 500 medications on the market that can cause an injury like this. Sometimes all it takes is a single dose of a drug that is entirely incompatible with an individual’s physiology. It’s best to thoroughly research interventions that doctors swear are safe and avoid medications that have “black box warnings” all together. Thanks for your kind words.
Yes this happens to many SSRI’s. Happend to me on zoloft after long term use I got sicker and had an adverse reaction. Dr took me off almost Cold turkey. The first year was only survival. Im still sick 2 years off. Its brain and neurological injury.
@@marchromano1 Have you ever considered trying a medically supervised Ketogenic diet? Get your brain off carbs for a little while and possibly reset cell metabolism? Look into Dr Chris Palmer's work. he wrote a ground breaking book titled "Brain Energy". It may not help then again it might speed up recovery. If you do it under a doctors care all of your blood chemistry can be monitored. Just a thought.
Awesome brave guy and family.... I realised that psych meds were ridiculous, thankfully with far less trauma than you did... I only took then for 2 weeeks and did have a further 15 or so years of debilitating depression and was often suicidal... I don't believe it was due to the meds as I didmt take them long enough and I was already in a really bad way before them... I just somehow had the wherewithal to know that meds weren't the answer... Keep speaking out on this important topic and you are so eloquent and sensitive.. . I am wishing you hope and healing, I know there is help out there, you just have to keep looking... Changing to a whole foods plant based diet has really been a life changer for me over time and thabk god I finally, after those 15 years, found a woman healer who basically saved my life... I have becone a healer myself and am also studying nutrition... If you are reading this and would like her info, please let me know... Wishing you all the best.... ❤
I experienced akathisia when I was around 21. I was a medical student, in need of some cash, and agreed to a clinical trial - for an antipsychotic. It was to work out dose- so not first in human trial, but obviously a new drug- that they hoped would have less side effects such as weight gain. It was an IV dose once daily. Each day… at around 15mins after dose- I would feel extremely weird. I had complete insight into feeling weird- but almost no ability to report it to staff or seek help- it was if that was not a thought of option. I would feel like time was going painfully slow. That even existing was incredibly uncomfortable- not pain as you would know it- but so so so incredibly uncomfortable that - if there was no hope to stop it- I know I would have had to kill myself. I felt an internal unrest.. like I needed to escape and run.. but it wasn’t anxiety. And so so painful/ awful. It lasted about an hour.. then I would be asleep… and wake up in the afternoon kind of okay and almost forgetting how bad that sensation was (like childbirth) VERY strange. After the trial I realised I experienced textbook akathisia- it is SO hard to explain and you simply cannot appreciate it unless you’ve experienced it. It is like torture.. completely intolerable. Poor guy.
Did you report this to the researchers of the study and was it documented? Have you had the opportunity to have any further input on this in your medical career?
There are so many people inflicted with this there are many pharma drugs that can cause this some and for some it goes away after they stop the offending drug.
There are long term studies, showing harm and reduction in effectiveness over the long term. The pharmaceutical companies didn't publish them and quit doing them. The pharmaceutical industry is the one required by law to do the studies and front the money for it. And the FDA does not require long terms studies, so any long term study they don't like can be trashed and they know not to do any more of those studies. Independent scientific research companies do not have the money to do long term studies or a reason to go up against conventional practice.
It is absolutely shocking to me that there is not total absolute national attention being paid to psychiatric and antibiotic medication injuries in the U.S. as the aggregrate injured totals must exceed 20 million per the amount of prescriptions dispensed within the last 40 years. The should be congressional hearings.
Not only that but there's many groups arising on reddit detrimentally affected by supplements also( I.e lions mane) we are being attacked on all fronts by an incredibly incidious force
I was injured by Paxil, then by Cymbalta, then Ativan. 5 years post benzo taper and while the most debilitating symptoms have resolved I am rendered frail from the profound, years-long torture.
The thing is, akathisia is common. Even Dr. Stuart Shipko found tardive akathisia rather common in people who used antidepressants cumulatively for more than 10 years. Anything with an associated “withdrawal” or “discontinuation syndrome” can cause akathisia. Especially withdrawal akathisia. Opiates are infamous for causing withdrawal akathisia. We need look no further than agitated babies born opiate dependent to understand that. The problem is everyone thinks akathisia is transient. Like I said, it’s common and for most people it is transient, but it’s also injury even if it does quickly subside. Repeatedly coming on & off medications can make that chronic in many people, so be careful. Like Shipko said, using them cumulatively for years can set people up for tardive symptoms that erupt months off. Resist the idea akathisia is some rare side effect. The restlessness & agitation people push through starting and stopping meds can be really damaging.
Hi Marcello, try these things to help yourself to recover: stick to a daily routine. Wake up or get up at the same time (Weekdays or Weekends). Short nap (no longer than 1 hour during the day) if required. Gradually your sleep pattern will improve. Magnesium supplements may help to fall asleep. During the day train your brain for sensory stimulants: screen time as long as you can tolerate even if it takes just 20 - 30 seconds (watch something on the computer). Do it a few times a day and every day gradually increasing the time. Expose your self to sounds starting with very soft initially for short period of time. If you cannot tolerate tactile stimulants ask you mum to do massage starting from your hands, gradually involving arms, shoulders etc. It will take time but eventually you will retrain your brain. Keep yourself busy during the day: for example coloring books (use bright colors), sudoku (even if you can do it for minute). Do some physical exercises for example squat every day, bicycle, swimming. The whole idea is you live normal life no matter what.
Melissa you are so much right!!! Every Antidepressant on earth do this to me. I watch yours and Josefs channel constant, which gives me some relief from the aktahtisa i have every day! Keep going with your work, it helps so much and prevents some possible bad outcome!
His story makes me so sad. The harms inflicted by the psych disciplines is atrocious. What absolutely kills me is that the practitioners have ZERO remorse when someone is harmed. Just throw the person in garbage like the rest of Western culture does. I turned into a zombie with no libido talking SSRIs in my twenties, so I refused to take them again. After only 2 weeks on an SNRI, I had mild akathesia and was losing my ability to function AND I STILL FELT AWFUL MENTALLY/EMOTIONALLY. My psychiatrist told me to stop the meds cold-turkey. Talk therapy was so awful that I no longer feel love towards anything or anyone. In middle aged now and every day I work for death. Even though logically, things are better, I feel so awful inside, I can’t really appreciate the good parts of the new chapter of my existence. All I want is to go home or die. I hope you get justice, Marcello. I hope everyone injured by psychiatry and psychology gets justice.
THERE ARE MANY, MANY MILLIONS, ALL OVER THE WORLD. EVERYWHERE. THEY HAVE BEEN DESTROYING LIVES, BRAINS, HEALTH, AND FUTURES FOR MORE THAN 65 YEARS, INCLUDING MINE. FINALLY, PEOPLE ARE "GETTING IT." THIS WILL *STOP* IF WE KEEP SPEAKING OUT TO EVERYONE, SO NO MORE PEOPLE WILL SUFFER SO HORRIBLY AND LOSE THEIR VERY LIVES AND FUTURES.
@@erindabney2758 They should pay out Trillions of Dollars in Damages for the Harm they have caused by Brain Damaging their patients. All the lost Years of Functional and Normal Lives and Income Lost and Expenses to just survive it. And don't even mention the Immense UNFATHOMABLE SUFFERING they have caused. It's probably Many, Many Trillions in Damages having to spend to simply Survive it..THE LOSSES from ALL OVER THE WORLD OVER THE PAST 65 YEARS are literally Incalculable. MANY TRILLIONS of dollars, certainly. They should PAY UP TO EVERY SINGLE VICTIM. ME, INCLUDED.
Marcello here… I had to work really hard to help my family understand what was happening in the beginning. This was never a “small problem” for me. From day one this has been the single worst experience that I can possibly imagine, one that regardless of how long I am able to stay alive, will always be the worst thing that has ever and will ever happen to me.
@@marchromano1 Ok, I meant that the reason you first time "seeked help" for your situation was maybe not that bad? Before any of this "medication" ? It seems a common theme that people have some normal thing like grief and they seek help, and that "help" turns into a nighmare. I listened this thing and it is mind bogling how person who does everything right can end up in situation like you have. You seem to be such a good person. I have done many things wrong and Im lucky in that sense that I tolerated those chemicals that I demanded. I had no idea that they could be that dangerous, just like you. You are mentally very strong and I pray that you will get better somehow. I know that praying does not help but I do it anyway. At least you managed to escape from that forced "help".
@@juhopuhakka2351 My misunderstanding. Yes, I absolutely did NOT need these meds, no one does. The damage that has been done utterly dwarfs the worst periods of my life before all this. People don’t think that these drugs can cause outcomes that are worse than the original condition one seeks psychiatric help for, but they absolutely can and do.
52:10 WAIT WAIT WAIT HOLY SHI THIS IS WHAT HAPPENED TO ME ALSO WITH MY INJURY. I USED TO JOKE THAT I WAS KINDA AWAKE AT ALL HOURS CUZ IT WAS ALWAYS SHIFTING. IM NOW USUALLY FINE UP UNTIL SOME PART OF MY MONTHLY HORMONE CYCLE THEN MY PROTRACTED EPISODES ACT UP AND I HAVE THE SLEEP CYCLE ISSUES. DR JOSEF, I NEED TO INTERVIEW WITH YOU. I’m in the process of putting together my entire time line thus far. It dates back to around 2007 (i just turned 25 back in may). I’ve had several head injuries as the result of my med-induced movement issues which have further added to my brain damage. I also have experience with the Portland medical/psychiatric system like the man in this interview
It's wild they were trying to work together to get him back on psyche meds. It's definitely a risk to people with these injuries. Something needs to be done about it .
I connected with the non stop pacing and closed in feeling but when you described the raw skinless feeling, I felt very real. The Psych rolled his eyes when I said my feet felt like they had been dipped in hot oil, he basically said “now you’re just making shit up”!
I’m lucky to only have experienced akathisia twice. The first time was probably only a half hour or so and it was pure hell that I can’t describe to anyone who hasn’t experienced. This occurred after I was administered IM Geodon in the hospital . Fortunately the nurse knew right away to administer benztropine and Benadryl and that fixed it pretty quickly . I can’t imagine a human being having to suffer with this horrible side effect long term
Looks like the stuff wrecked him for good. I've personally met 2 such young guys, purposely kept in akathisia in the psych ward, with absolutely no way to escape this sadistic, criminal process. Why do they do this to people in psych wards? They must be getting a ton of money to be able to ruin people like this, young people!
Hello from New jersey! I went through a lot of this on my own. My family thought I was on street drugs and wrote me off. I had a wonderful boyfriend who stuck with me as long as he could and then God sent me an angel who took me on. This wasn't known about or nobody brought it up to me. I did get to the otherwise but it took about 8 years. It would have been less but they put me on ability and it set me back. In the end I did what felt right to me. I don't want to get into what I did because a lot of it isn't traditional. I would love to help. I would suggest microdosing. I know that sounds crazy but it helped me. I have a few other things but I really do think doing a few medium doses and then microdosing really pulled me out of those lingering symptoms. It got me past the speech issues which helped so much with the anxiety. I know that came out jumbled but I'm not perfect still.
*The cymbalta jolts* (electrocution) are much different than akathesia caused by antipsychotics. EDIT: Marcello you so don't deserve this. Im humbled by this video (watched like 5 times 😂). It's so annoying when people try to tell you about your own body. 😔
So many do and all those seizure meds do it. They say they are safe .. they are NOT safe or effective for all. This prescribing and patient shaming MUST STOP THEY ARE HARMING PEOPLE.
This mom should consider sending or inviting Robert f Kennedy Jr. To a reading….. he wants to investigate our medical industry…. Please let us know where we can observe a reading or obtain a copy of the play…..thank you for having people on that have struggled with psychiatric medicine injury…..❤🙏. I have been suffering w/ protracted w/d for 15 months now and it is so much harder than I was ever warned ….. informed consent is so important!!
I will NEVER take any psychiatric medication, EVER. Thank you for your testimony
maybe you should watch the videos and learn information.... Your comment only shows you are a coward, how about use this video to learn more about what is actually dangerous in stead of using your fear to make decisions. yes there are tons of meds that can do bad things to you. If you learn what they are and why you will protect yourself way better than if you shove your fingers in your ears and go LALALALALA everything is bad.
This is so heartbreaking. God bless him and his mom. Praying he eventually recovers and gets his joy back.
This needs to be broadcasted on every possible platform, including national television and beyond. What a beautiful young man he is along with his amazing mother. God bless you both. I don’t think I will ever forget this interview. To the son and mother you will be in my prayers
That’s the whole problem. It will never be broadcasted in the news. This crap is happening since the 90’s and it’s swept under the carpet because of government interests with the pharma companies.
The permanently harmed and death are just seen as collateral damage. It will never hit the news. Medicine is cause of death number 2 (look it up online) but you only hear on the news about a car crashing against a tree. Never about meds. Who do you think are the sponsors of those news channels?
A rational person would think like you, but the government, pharmaceutical companies are not rational, they think about money and stocks.
Marcello here… I couldn’t agree more. True informed consent for all is LONG overdue. Sadly, most legacy media outlets rake in huge sums of money from the pharmaceutical industry in the form of advertising revenue. There is a real and present conflict of interest preventing news outlets from engaging with this public health emergency, and no one is incentivized to put an end to it.
@@marchromano1 I too have been damaged by these drugs, I wish with all my heart I could do something to stop the madness of people getting so unimaginably damaged. I’am grateful for Dr Josef for what he does. Hang on! Never stop praying 🙏
@@marchromano1 God bless you, Marcello. I feel that these “doctors” wrongfully put you further and further, deeper and deeper into the psychiatry abyss. They suggested taking these drugs thinking they were innocuous. They really have no idea! It is so wrong on so many levels! Thank you for standing up in this fight. Society needs to be made aware of what exactly psychiatry is and what is actually going on. Everyone needs to wake up to these atrocities that are happening to suffering people who put their trust in these so called “professionals”.
A few zopilcone almost gave me a heart attack from not taking them properly at precisely time they wouldn't even work in the ward the clients and nurses were driving me even more into psychosis... he wanted to give me 1 zop and 4 of something I refused just left my self lose my mind even more couldn't even sleep In there... they gave me a wafer benzo right away knocked me out for 16 hours then put me on invega and effexor right away after a nuclear mri my brain was entirely orange I was developed into an acute transient psychosis then diagnosed into psychotic depression remission... I had some weird Catanic schizophrenia symptoms of inability to feel pain from serious trauma I have the procedure on medical file where my left eye literally went crooked, optic and nerve damage through being thrown into a pile of autistic shit so hard I almost died
This kid is really knowledgeable I really like the way he describes things.
Didn’t know this was Marcelo , I’ve read his story many times and have seen him post on Facebook, the guys been through it. Glad to see him here. Kudos to his mom for sticking with him
@@crookedrain771
Not still is!
@@crookedrain771
Not knowledgeable he’s telling his journey I can’t believe he was able to get a plane on his own
I NEED HIM TO KNOW THAT IT GETS BETTER!!!! IM SOBBING WATCHING HIS STORY CUZ ITS SOOOOOO SIMILAR TO MINE. IM ALMOST 8 YEARS INTO MY INJURY AND I AM FINALLY GAINING BACK THE JOYS OF LIFE THAT HE TALKS ABOUT HAVING LOST. BECAUSE I LOST ALL OF THOSE TOO. FOR ME IT WAS MY ART. AND I STOPPED READING AND DOING STEM. BUT ITS COME BACK. I HAVE SUCH A STRONG RELIEF THAT HELL GET IT BACK
@@sbocaj22 thanks for giving hope
Agreed!!! It can and DOES get better!❤ 14 months our for me.....
@@sbocaj22 I agree too. It took me a long time. But it lifted. Please believe that if you care for yourself well, it does end.
My ability to create was also removed from me for 4 long years. I never fathomed that my very own personality and talent could be erased. I am forever grateful that it gradually resurfaced. Unbelievable what we endure with this injury. I was injured by Cymbalta, Paxil, and Ativan.
Marcello here. The fact that I am still alive after half a decade of this is proof that I believe it can get better. However, this is not some universal truth, and it shouldn’t be tossed around as one. It’s simply wrong to assume this will be the case with everyone, as if all one has to do is buck up and wait for guaranteed healing. A huge part of informed consent for people who have not yet taken these meds is communicating that it absolutely can be permanent, or so long lasting and severe that it is impossible to survive.
I applaud his mother for protecting him against the psychiatric kabol when he was at his most vulnerable and keeping him from forced medication and incarceration. As parents we have to trust our Instincts and not just follow the medical machine
It's cabal, not "kabol". I did not even know you could make so many mistakes in one word, I seriously hope English is your second language, otherwise US education system has failed you
It's cabal, not "kabol". I did not even know you could make so many mistakes in one word, I seriously hope English is your second language
@@МаксимК-я4ы Does it make you feel good about yourself to be unkind to others?
Amen🙏🙏
@@МаксимК-я4ы
People are suffering from akathisia and you start giving them an English lesson
Psychiatry at its finest! Incredible! Enough is enough! I'm so sorry Marcello. Sending you my best wishes and prayers.
@@yoga_iaini
In my case it was my GP who prescribed me prozac for anxiety instead of referring me for counselling and full thorough blood testing to check for deficiencies in minerals etc
Marcello here… Never in a million years would I have agreed to take these medications if I had known the risks. It seems unbelievable that Big Pharma would allow people to be tortured to death in this inhumane and barbaric way, yet here we are… Thanks for your kind words.
@@marchromano1
Do you feel it’s less intense Marcello?
Do you feel healing happening yet?
@@sarahpearsall2248 On the whole, no. I feel myself getting more and more exhausted. Every day is active survival and nothing has helped.
@@marchromano1 Hi Marcello, you have navigated with so much grace and strength this whole journey. I can definitely sense that you have gifts to share. Have you thought of writing an article about the analogy of akathisia and climate change, maybe for Mad in America? You can take a look here: www.madinamerica.com/submitting-personal-stories/
I relate with Mom so much, and I’m so impressed with her decision to respect her sweet, brave son’s autonomy. I’m going through a similar nightmare with my husband, who took benzos for decades to treat a movement disorder.
Wishing all good things to this beautiful family.
What are you doing to help him diet wise ?
In the age of the internet, the evils of psychiatry will inevitably fall. Well done, Marcello. We appreciate your bravery and honesty. Also, I have severe akathisia as well as the non-24 syndrome. You mentioned in the interview that you hadn’t seen anyone in the community with that. Here I am
Too many people are developing akathisia. I hope this evil gets exposed and psychiatry as a field collapses.
Thank you Anthony. I was going to say that I know several. Ashleigh Lattimore has chronic akathisia and non 24/circadian rhythm disorder. I also have it. It developed a few years into the pacing. I tried to explain to Marcello how similar my experience was to his. He’s more severe than I was at his age. I’m hopeful because he knows what to do. I had no idea the neurological monster I was wrestling at nineteen.
Of course, knowing what to do and being able to do it are two different things. I have felt forced to try and treat pain severe times in this journey. I’m back doing it right now knowing it’s making me slowly worse trying to live to fight another day.
@@kevk741 thanks for sharing that, Kevin. It makes me feel less alone. I completely understand the need to treat the extreme pain while it also making you feel worse and worse. Every day is a fight to survive for me as well. Keep on fighting, buddy. I’m only 2 years out but the intensity is still at a 10. Thanks for your support and kindness 🫂
❤❤❤
Marcello here.. I often wonder how long it will take for these barbaric injuries to become common knowledge. Here’s to hoping that the internet and people like Dr. Josef can help speed things up.
I'm so sorry you are going through this for so long Marcello... Akathisia is the worst torture on earth...it's beyond the scope of human imagination Only those who have experienced it would truly understand the depth of the suffering...
I resonate with everything you said. I feel so sorry for those before the era of the internet who suffered in isolation. I believe a lot of them probably offed themselves just for relief from akathisia and were reported as "suicides." Things are changing now, thanks to people like you and dr. Josef
I agree that lots of suicides are related to akathesia and unnoticed. First thing I wonder these days after having it myself
@@Tammy-w5m5k
Robin Williams took his life after taking mirtazapine but they didn’t report this they said he had some form of dementia but when I was on support groups people said it was from drugs
A nurse told me that when atypicals came out, Big Pharma said that undiagnosed akathesia had been a leading, or the leading, cause of patient suicide. Then she laughed and speculated they may have always known that, and just owned up to it when they had a newer drug to peddle.
So well said. ❤
@@Aqzcwghk Such beautiful Souls 🥰 yes you are so right. the torment of Akathisia is totally indescribable and beyond unbearable, even if you have it there aren’t enough right words to describe so others could begin understand.
It's a chemical panic. Deeply different from any natural panic. You know it's your body crying out from chemical assault. He describes it perfectly.
And yes it does affect music and sound processing.
Yes, true. For over one year, I was unable to watch TV or listen to music. I had the strange perception of sound coming from behind the wall. This has to do with DP/DR, too.
@@FreeWanderingThinker
What caused your akathisia?
@sarahpearsall2248 Effexor withdrawal done by a so-called doctor. It's a terrible and undefinable thing. I feel better now, I can sleep again. That's a miracle, I had lost all hope before that.
Yes! I worked in a building as a super. After stopping Lexapro or just changing doses - I ended up with the chemical panic. I also became very sensitive to coffee. I got this panic about my building thinking I have to keep fixing it at all cost and stated doing manic things like looking for problems, taking on projects, being rude to people to force them to service the building better. People told me to stop but I wanted to express so badly I didn’t care. I could t accept there was something wrong with me that I needed to deal on my own and not through others. It was like panic and stress and getting enraged at things and not being okay with context. It being to weigh things to figure what to do best and doing things when doing nothing is the correct way.
Yes I often refer to it as a chemical feeling. My doctor doesn’t understand it at all and still doesn’t believe in such a thing so I now no longer see him anymore and if honest don’t trust medical professionals anymore.
I’ve been thinking of you Marcello , praying for you, praying for all of us , thank you for bringing your story , you are unbelievably strong , I wish people knew how really strong you truly are.
@@lam7402
The many of us suffering with not as much love and understanding as he gets from his parents understand all too well the hell he has been in but he said it’s easing and if that’s the case then that gives me hope but he hasn’t tried to unlive himself like sadly many before him
Many celebrities lost their lives due to prescribed drugs from dodgy, money minded people who could offer talk therapy and diet suggestions before reaching for the prescription pad
Marcello here. Thank you for acknowledging the fight, and yet, there are plenty of people who have/have had this worse than me…
For instance, think of all the veterans that come home with severe PTSD, only to take these meds and have THIS blow up in their faces. There are people confined in prison with this. There are a thousand ways to imagine those that don’t stand a chance with this. It’s pure evil.
Like this type of content 👍 to spread awareness
Thank you so much Marcelo and Mom for sharing your harrowing experiences with psychiatric medications. There is such an urgent need to get this information known, especially because the the vast majority of medical professionals know nothing about adverse reactions or serious side effects from the drugs they prescribe.
Now we need to know how we can help ourselves to heal from it when it’s gone on for more than 2 years and I want to know if Marcelo feels like his inner terror has improved at all in the 5 years.
@@sarahpearsall2248On the whole, I have had absolutely zero improvement in 5+ years. Many aspects are worse, such as the exhaustion from fighting this most impossible torture and disability.
This is one of the most important, poignant , informative videos on this I ever seen! Marcello describes what happened to me ! I had NO clue what was happening to my mind/body... This is validation for me on so many levels! From the gaslighting of "professionals " to " clawing through, just moment to moment". Thank you from the bottom of my heart! I will add it CAN and DOES get better. Microscopically. But , it DOES! ❤
🙏🏻🕊️
Marcello and Mom did an amazing interview. He articulated so well and Mom's love is so apparent. Best discussion ever. Marcello and my son are nearly identical except for in a different situation. It has been over 5 years. It is just my son, myself, his patient advocate and a counselor. You feel like you are against the world, and you are. The days of screaming and crying, "skull pain", and the look on his face which I will never forget. Absolute terror and painful agony. When I tried to hug him, he told me to keep my distance as the sensory was too much. All you can do is be there in presence. Add to that his multiple health conditions that we are unable to address, it feels like we are on a sinking ship. One second at a time. Also, thank you Dr. Josef.
Thank God for Dr. Witt-Doerring
Marcello, you have no idea how much you have helped me understand some of antidepressant medication withdrawal. My son struggles and has been unable to work and doesn’t go to far from home
Marcello here… It’s important to trust your son and follow his lead. These injuries fall on a spectrum of severity and can look different for everyone. No two injuries are alike, and things that have helped others might not help your son at all or vice versa.
@@marchromano1 Dear Marcello, apologies for chiming in, but you mentioned briefly that you struggled to sleep. Was it common for you to experience days without any sleep at all? The reason I'm inquiring is that I am currently struggling with severe, treatment-resistant insomnia due to OCD and was just curious how bad yours went? Thank you in due course. Hope you'd make a video about your condition as others are struggling and would love to reach out, perhaps just for support to a fellow community.
You are so strong and brave and well spoken, Marcello! I think I wouldn't be able to bear something like this even for a few weeks or months. Also my heart goes out to the mom, it must be horrible to see your loved one in this torment and not be able to do anythimg to help them.
I'm sending love and prayers with the best wishes that you'll get a least a little better over time.
I AM SURE YOU HAVE HELPED OTHERS BY TELLING YOUR STORY, MARCELLO. THANK YOU. GET BETTER. WE ARE THINKING OF YOU AND BEST WISHES.
I am so , so , so very sorry for you that you had and have to go through this Hell ! I don’t have Akathesia , but your story and others that have been harmed and really all this could’ve been prevented by so called professionals it’s inhumane! I’m glad your mother was there for you . I am 41 yrs Chinese women, trying to wean off very slowly and may hold to, but it 🤬ucks me up when children and young men like you get harmed . It’s reall heart breaking, heart wrenching , soul and spirit despair, body is shut down . I am so passionately angry ….
Wow, the strength and courage this young man and his mother displays is so very powerful. His hopes and thoughts about how to continue on with life is just offering hope even through his deep pain and obvious horror with what he is dealing with. I can only pray that he will see great improvement and will not only survive but thrive. What a brave interview and though I am going through much pain, neuropathy, akathisia, BIND, protracted w/d, etc. myself at age 68 yrs old, I, too, quit letting the ERs, providers, psychs, etc. make decisions for me!!!! I decided after 30 yrss to take my life back and am currently tapering meds and pray that I, too, can get my life back to a degree that I can enjoy the sky, the sunshine, my love for my family and friends … to be able to smell the everyday smells that are now so very toxic in my state. You are so very right about just drawing near to those who never left your side during this horrific experience/life-HOLD THEM TIGHTLY ❤
YOU ARE ONLY ONE OF MANY MILLIONS OF LIVES *DESTROYED* BY THEIR "THERAPIES."
This presentation is so chilling. Marchello and Lisa are so brave. Before watching this I never even heard about “injury from taking anti psychotics” I have been taking Effexor for a year now. Watching this has motivated me to get off all my psych meds. I really hope you find what you are looking for and get better soon.
I relate to many things you the sick injured from psych meds have said. Chemical neurological terror with no help. Being near rivers and streams help me with my feet in the water. O ly very small joy or small tiny happiness short lived. Your description struck me so that I wrote it down so I can remember the words to explain the unexplainable. I had no idea a human could suffer so. I am thinking of you and praying for you. Please hang on. I feel sure your body will start to heal itself and return to a simulate of homeostasis. Love to you son❤❤❤ God bless us all
Thank you for sharing your story. You are very brave. And I feel for your mom and dad and friend who have gone through this with you. I had akathisia for five years. Very similar to yours. I walked constantly, 20 miles plus a day. So I truly understand everything you’re going through both mentally and physically. It took about four years (med free) to start to come round and by year five it was pretty much gone. I have watched your journey in the groups. I’ve tried to speak up, but it’s a tough place to speak because so much bad advice is being given all the time. Are you still taking meds? My heart broke when I saw you went on opioids. The way to survive this injury is with nothing, just sheer fortitude and waking up every day, taking everything second by second and breath by breath. It is the most inhumane horrific injury known to man. But it is survivable. I really hope that you are on the upward swing now. You do not have non-24. You have the same sleep injury that all of us have. There are tons and tons of people out there staying up all night and sleeping all day. And it changes all the time. My sleep took several years to come back and I still struggle with it. I’m going on eight years of this, but I will tell you when the aka leaves you’ll be in a much better place. It will all come back for you. Get yourself med free (personally I think you have to be fully free to heal, others don’t, but the evidence is anecdotal), let your brain and body heal. It will happen.
Were you med free for the 5 years of aka? Did you improve gradually or suddenly?
Thank you so very much for this interview. My son had many of the very same symptoms/ side effects from taking the hair loss drug Finastride. He was also prescribed many other drugs including benzos for his symptoms. I have heard that PFS and PSSD are closely linked. You mentioned the circadian rhythm disorder which my son definitely had but I had never heard of before this video. I just thought my son’s insomnia was the cause. When you described it I was shocked to learn it was actually a known disorder. As I continued to listen I was in tears to the similarities of your conditions and I could so relate. My son also could no longer drive, listen to music, watch tv, or read a book and he also constantly cried and screamed in agony. I am so so very sorry you are experiencing this and I want you to know I believe you and extremely appreciate you sharing this story. Thank you Dr Joseph as well for the interviews you conduct. Unfortunately my son succumbed to his suffering by taking his own life two years ago. These interviews give me hope that people are waking up to the realities of the harm these drugs can do and are fighting back against Big Pharma. Marchello and Lisa you are in my prayers and again thank you for your courage to share.
Is there a way I could find out the name of your play Lisa?
In tears reading this. I am so very sorry for your loss.
@@THXx1138Thankyou!
Marchello’s bravery and will is awe inspiring! 🙏
Thank you so much for sharing! I really appreciate it!
My heart aches for him. I can relate all too well to Marcello. Struggling with a psych med injury and akathisia like symptoms and insomnia. Hell on earth. Hardest part is when you realize how alone you are in all of this and no one can help. Only hope is one day it will go away.
It does take time but over time you should notice a gradual reduction in symptoms. I am 5 years beyond a benzo taper and most of the debilitating symptoms have resolved. But the profound torture of akathesia and about 50 other symptoms simultaneously have left me shell shocked.
❤❤❤ I wish I hadn't trusted doctors about SSRIs either. Thanks. You express yourself very well. It destroyed my life too.
Marcello is one of few that's ever come close to explaining how horrible Akathisia is.
I'll sound like a broken record preaching to the quior but... 5.5 years of having severe Akathisia... There's no greater torment in the world.
Akathisia is the worst side effect imaginable. Doctors, manufacturers, sales reps that know of Akathisia should be held accountable to the level of terrorism on our nation. It's that severe.
Dr. Doerring, if you ever want to reach out to me about Akathisia, feel free. I'll save up some energy to talk.
Agreed. ❤
It’s crazy how we can’t understand this until we go through it. The way Marcelo speaks. It sounds exactly like the way I spoke when I was in the midst of it all. Speaking in metaphors in order to describe your pain (which can end up making you sound even more insane and have doctors try to put you on other meds) because there are no accurate words to describe this experience other than complete dread and other-worldly loneliness. That moment he speaks about how he couldn’t panic and just had to figure out what to do. It reminded me of when I, as someone who has always had immense anxiety and OCD, had to shut that all down to simply keep making it to the next moment. You realize at some point that factually the only way to somewhere better is by doing what you need to do to try to make it. That’s it. Marcello’s vocabulary and the way he takes the time to process before he speaks shows me that this has been a very traumatic time for him. I’ve always been good at writing and speaking freely, but my experience led to me becoming EXTREMELY articulate as a result of needing to do my best to explain the absolutely unreal experience I was having using words that cannot do it justice. Thank you for speaking up, Marcello. I hope things get better♥️
There are no words because it's all so far beyond anything human beings have ever experienced in nature. Alien. Indescribable.
I have no creativity left in my brain to be able to come up with metaphors.
Its Exactly as you say. No words can describe it, normally no human go through this hell. Its an brain- neurological injury. Its like your brain is gone.
Thank you for sharing this story. Prayers for your overcoming and healing.
You’re very strong ❤. Thank you for sharing your story with the community
What a raw story. Thank you for sharing your experience and lessons, and for doing such important work - you're saving lives and preventing suffering. Thank you and good luck.
Im from Brasil. My history is very similar, but it started with a benzo's cold turkey. At the same time I was pregnant and lost the baby. I keep using a lot of meds and im very afraid about getting worse if i quit them. I am a psicologyst and i try to help some patients lije me too. When i first met dr. Josef i start to share his videos to help people. Thank u very much dr. , you cant even imagine how necessary you are in this days! Hope some day i can meet you.❤
My family member is going thru this now with being given Tradozone on top of her Lamictal and Abilify. After over 17 different psychiatrists and fifteen years later for a first ADHD diagnosis, which turned to mood disorder then bipolar and now after a 3 months close psychiatric observation and psychology testing the last one said maybe ASD. It's disheartening and criminal how our youths are being treated by this profession. After reading Anatomy of an Epidemic and many other books my way of coping is supporting those in FB withdrawal groups and Inner Compass with Laura Delano. Looking for hope into medical Keto too w/Metabolic Mind and this site. God help us all🙏
I will be praying for you Marcello. I too have akathisia slowly getting better. Trust the process 🙏🏻🫶❤️
What caused your akathisia?
How long until it started to improve for you?
@@sarahpearsall2248 changing meds and trying different ones
Marcello, I don’t know if you’ll see this, but I also have non 24 from my psych med injury but never knew there was a name for it! I am constantly shifting my sleeping forward 3-4 hours and end up being completely nocturnal some days. It’s been 2 and a bit years but I always just said I had sleeping difficulties. You described it perfectly.
I am in a similar position although fortunately not tortured with constant akathisia 24/7, albeit with other devastating symptoms. My heart goes out to you.
Your mother also reminds me of mine who has helped me through my injury. They really are a rock in this situation and I hope they understand how much we appreciate them. I really hope you improve soon.
I so hope this will get better for him, such a tender person.🙏
I also had and still going through consequences of sensitive reaction to psych meds, but not this level fortunately.
It was pretty beautiful to watch and beleive it or not I even found it quite comforting. An extremely sensitive and smart boy and his smart mom. Good news, most people recover from akhatisia, after a few years. I'll watch it again. And please come back in a few...
Excellent testimony. This is all true. People should have to watch this before ever going to a "doctor".
My heart extends to precious Marchello and his family. The intense suffering I see it in him and it’s extensively heart wrenching to watch.
Im tapering off atm and it’s horrific! Indescribably hell of all hellish hells. I started tapering last April from 20mgs to now at 3.75mgs. My next taper is in a week. I’m not comfortable disclosing the medication.
Everything that’s described I understand, deeply. All the Drs, Specialist, tests, medications, intensive suffering, being used as a rat lab is so familiar to me. Exhausting all avenues and no medical professional, holistic, nor natural could help.
If it were not for my faith, I don’t believe Id be here. I’ve done this tapering on my terms, listening to my body, my GP is updated.
My story is extremely similar, bar the non 24.
How my heart aches for this Marchello. I just feel to share with him, watching him is so relatable. I was at the point of wailing for him. Watching him bopping was so heartbreaking. I tremble erratically.
It’s a very, deeply lonely place to be. Family members help so much, however, no one can understand this horrific, indescribable torture, unless they’re going through it, or been through it.
I, too, was switched from medication to medication. I’m an Author, Poet and Writer and an Independent Investigative Researcher. Ive been sharing with my Drs what to do, what this is, and sending them information. Our medical industry in Australia is very poor.
I’m praying for this precious family. My heart breaks in many pieces for them, for this to occur at such a young age is cruel, so very cruel. The robbery of life is so agonisingly cruel. As I was watching I was praying. There’s so many dynamics to this horror of hell. Suffering that is unable to describe.
Marchello, you’re a very strong young man. I know that is no comfort. We, in this situation are so desperate, we search and search for comfort.
Lisa, who m 54, days have 2 adult children and my husband and extended family, if you need to talk you can find me on FB Messenger as Salwa Mariam. On Instagram as Salwa Samra. People don’t know, nor understand how everything, minute by minute, is forced by faith. We’re not able to plan at all and I was a an overly active, in nature person.
Melbourne, Australia.
It comes back. The true self never goes away. You are still you underneath it all Marcello. It takes an eternity but you are aware of the present moment and the value it has. Ride with it. Learn to surf…. Flow. You never change, your brain chemistry might, but you are still the same person underneath it all. Strength to you. May you look back one day to find genuine peace and be closer to stillness.
Fantastic interview. Thank you so much for sharing your story Marchello. I know it's not easy to speak publicly about these things. I have a protracted withdrawal injury from an SSRI too. I also wondered what I would have thought if I didn't have access to the internet and other peoples experiences. I probably would have thought that I'd went insane and just followed doctors into oblivion.
You might have tried this already but for the sleep issues you could try restricting light exposure. I used to have a lot of problems with my sleep schedule as well and what helped me was wearing a pair of dark sunglasses, turning all the lights off and turning any computer or phone screens down to a very low level of brightness. If I do that at least 3 hours before when I wish to fall asleep, for at least 3 weeks, then I start to notice a big difference. I still have insomnia at times but my sleeping schedule is a lot more consistent if I maintain this routine. This might not work for you though as I don't think I have non-24, so your issues might be more severe.
You are very articulate maybe you should write your story down also. My husband just tampered off Valium 9 days ago. The battle is real! Hope is our motto! Thank you for sharing.
These psychiatrists must be stopped. I almost lost my life because they told me “benzos are safe and you should use them to help you come off the mirtazapine”. Almost two years later and I am still unable to sleep, drive, or work.
I'm so very sorry ❤
Benzos saved my life the only med that works for my anxiety
Similar, and we suffer and they go on with there lives!😢
@@waspay9644Sure! Just wait til they turn on you! 😢
They didn't "save your life" you're just saying that. You're basically a drug addict. Benzo withdrawal sure can cause death though.
Thank you Dr Josef for bringing awareness to this.
You will be famous one day for helping people.
I'm so sorry you are experiencing this. I'm 35 and have been on SSRI's since I was roughly 14 or 15. I got severe akathisia when trying to come off/stay off my SSRI the last time I tapered and it is actual hell on earth. Without experiencing it first hand there is no way to describe what it feels like or how torturous it is. I had to go back on the meds after trying to stay off for two years and being disabled/unable to work or even leave the house at times. I was able to stabilize back on them somewhat but still feel the sensory/ nervous system damage the last taper/withdrawal caused. I live in a state of hating the side effects while on the medication but also not being able to function off of it. I'm hoping at some point I will have access to a doctor in NH who can treat me and help me try to taper again. I seriously feel for you and wish you all of the best.
I'm so sorry. ❤
So sorry for what you have been through and going through. 😢keep your hope alive.
I'm so sorry this happened to you and you were so brave to talk about it .
I have OCD and it got bad last year sometime and I had to go back on OCD medication clexa like I did six years ago but this time the reaction was terrible I got myoclonic jerk I switched to Lexapro and still had them but they have calmed down a bit.
I hope my OCD will get better soon and I pray that God will heal you angisidy and akathisia.
I hope you and your family will be well.
I can completely relate to losing my sense of awe at the vastness of the universe. That used to be something I was especially sensitive to. When looking up at the night sky, I would get goosebumps thinking about the scale of what was out there and feeling like I was a part of it.
Beautiful music would resonate with my heart and sometimes bring me to tears. I could tap into a creative flow and it was magical.
Latuda permanently took that away in only two and a half years. I don't enjoy music anymore, and I'm no longer capable of getting goosebumps.
I was never told that this could happen.
Your comment is exactly what I've been struggling to articulate! Thank you! ❤
Marcello here… I can tell that you really get it. I’m sorry you have to know this barbaric torture also. It is criminal on every conceivable level that these medications are maiming people who don’t suspect a thing except to feel better. ♥️
@@marchromano1 Thank you for helping to make this more well known.
Latuda also gave me akathisia, which felt like a chemical panic. The best way I can describe it is the sense of movement and doom you get when you hit the brakes but your car continues to slide forward on the black ice and you know you're about to crash. Except it's constant.
When I described it to my doctor, she said, "It sounds like your anxiety is getting worse. I could add a prescription for gabapentin to help with that."
I only learned the word "akathisia" from a youtube video (shout out to Living Well With Schizophrenia) and realized what was happening. I tapered and cut ties with my doctor, but much of the damage was already done. Time will only tell how much was permanent.
Good luck with your journey, my friend. ❤
Wow what a huge loss.
@@Tempo50 Yeah. I'm trying really hard to get it back. It's like when you lose your sense of smell from Covid and you try to regain it by deliberately sniffing a bunch of different scents.
I have to keep exposing myself to things that are beautiful and awe-inspiring until my brain starts to register that feeling again.
This interview means so much to me. Thank you Dr. Joseph, Marcelo, and Marcelo’s mother. I am someone who dealt with PSSD for a long time, but I actually recovered. Tragically, I relapsed from trying the drunk Low Dose Naltrexone and I am utterly devastated to my core, as the PSSD has returned after being in remission for about a decade. My story is similar in that I just did not have the presence of mind to make the right decisions in the middle of all that was going on. In fact, I made a very bad decision in that I microdosed Psilocybin once in an attempt to recover my feelings as the LDN was causing emotional numbness and I also drank some alcohol as I was stressed. This was during the withdrawal period and seemed to make things even worse. I am so angry with myself as I am a spiritual minded person who meditates and does yoga nidra etc, and yet I still made these terrible mistakes regarding my health and body, but as you said, when you are in the thick of things, you are mainly just trying to get by in the moment, and you can’t see the down stream affects of your actions. Thank you and sending prayers.
@@jmeditation in the thick of things you can't think clearly and you need guidance and help the most. Guidance and help that didn't exist or you didn't know exist at the time.
If only we could see what the consequences of our actions in the moment will lead to in the future....God, if only 😢😢
Thank you. Very important work.
This is awful to see this boy in such a state and for 5 years!...I've said before on this channel, I've gone through this . None of the doctors knew what to do with me. I eventually found a psychiatrist that told me "he'll keep working with me until he gets a solution". He got me well again, all my symptoms went away. I'm on 4 ssri no benzos. I can't believe I'm well again it's a miracle. I wish I could talk with these guys .
Sending you both so much love. ❤
I feel for you, as much as I’m able.. i still have almost every symptom you describe, but no help. It’s been 3.5 years since if was ripped off a Benzo & an anti depressant. I am slowly, very slowly, healing, I think. I am much older. I am grateful for you to have what sounds like amazing support. I feel this in itself is a great benefit, as you mentioned. Hopefully one day the will figure out what is different about those of us who have been injured, and why also, many many are not so injured. Sending lots of love & strength 🫶🕯🪶
My dyskinesia was so unbearable that it crossed my mind to paralyze my legs but fortunately I now take a Chinese herb - Licorice Peony (3x/day) as well as Magnesium Theonate (doesn’t cause loose stools) which calms it down. They gave my life back to me. The dyskinesia has lasted 17 years so far.
I love Dr. Josef. I appreciate how he is trying to help many people. My precious friend would love to get better and taper off her medication but does not have $30k for his tapering program.
YOU WILL HEAL! Thank you so much for sharing
@@SimplesMenteSaude-gc1bp
You healed then?
He’s had this for 5 years
@@sarahpearsall2248 I didn't develop Akathisia but it has been 5 years since I have stoped Venlafaxin and I feel I am still seeing improvements from the harms it has cause me. But apart from my personal experience I do believe it is possible that he will recover. There is so much we cannot understand and so much possibility that yes, I do believe that.
Still believe its possible. @@sarahpearsall2248
Yes , he WILL heal! It takes longer for some of us. The healing is not linear, it comes in waves and windows. Eventually, the windows are longer .
@@susanmorgan4151
Did you have akathisia severely like him then?
What caused yours?
How long does it take to heal ?
thank you for the video . meaningful to me! I wish I could find Akathisia support groups. I have it
There are aka support groups
I think how horrific for those in mental wards forced meds😢
Such a crazy story! I want to say Marcelo has such a good mother! Maybe the way different people grow up and their attitudes towards medicine but I was once prescribed Zoloft after my son was born and I knew after taking one pill to stop. But I am lucky that I am super sensitive to literally everything. Modern medicine has made us disconnect from our intuition though and distrust ourselves without some authority.
My heart goes out to this young man. I had a very mild similar reaction in comparison to a medication I was only given once thank God, but it was the absolute worst thing I have ever been through in my life and I am a cancer survivor. To this day, it still brings terror to my heart that I never want to experience anything like this again. My prayer is that he finds something that will help as I cannot even imagine that level of torture.
Understood! Akathesia is unbearable and I too have screamed in the past.. I am fortunate not to experience it any longer. My heart goes out to your family. ❤️
Dr Josef, l love your words about l may not know all the answers, but l do know that l will be beside you every step of the way as we navigate this journey....this is very powerful, thank you...that would be so very helpful to hear!❤
That moment he describes getting hit like a tone of bricks is bone chilling to hear for people who have gone through that exact moment. How these drugs can do this to you is honestly a crime against humanity. The worst criminals who are given life in prison aren’t put through anywhere close to the same level of torture as someone who put their trust in the healthcare system.
Hey Marcello, Thank you for telling your story so eloquently, in spite of your immense agony. Dropping in to say that, while I didnt know it had a name, my sleep cycles did the exact same in my withdrawal. It wasn't until about year 7-8 where I started to get a bit more access to the world, and then sloooowly in the years to follow did I get a bit more and more. Also, I sleep normal hours now (although still broken sometimes with wakings or insomnia). Hold on. I hope more healing comes soon. I'd love to see your mom's play, too - will there ever be a recording of it, or will it be shown again? Best wishes.
Thank you Nicole, your positivity and hope is what we all need, despite you having to endure it for so long to give others hope. I salute you!!! We all so desperately need positivity and hope, especially this young man and his family. EVERYBODY RECOVERS!!! it just may take an incredibly long time x
What a damn warrior. Idk how he’s made it 5 years I barely made it 2.5 weeks and wanted to die. Luckily I reinstated tapered properly and it was not there when I finished
Ly , I'm so relieved to see you .. awe , ty brave warrior ❤
Hi Lucinda I've seen your videos- I am sorry you are going through this. Please read my comments- I posted twice here about lithium oligosol the trace mineral that for me took away my akathisia-overnight. After 3 years of agony. I had the same facial expression of despair that I've seen on your face.I thought it would never go away. I did not want to continue living like that. Now I am smiling and relaxing and enjoying life. It's worth a try. I enclosed all the links including the study in which it was used for benzo withdrawal. Take good care. You will beat akathisia. You are very strong!
My mom died 2/3/2018 at 65. My mom, my mom was not diagnosed properly with Alzheimer's dementia until about 12 days before her death, but it was about 2 years. No, it was less than 2 years. It was about 15 months before her death that she started having this apathasia, and nobody told me about it, and It was just a walking around anxiety. She could not stop walking and what triggered it was 2 antidepressants. I believe one was called boost boring, and the other 1 was paxil, and it revved up her system to where she could not stop walking. She just was walking around in circles, and she even told me Sandra, I'm like a Bunny, I cannot stop and I said, just relax, just sit And she said, I can't, and I said, why why can't you just sit? And she said she had this um, feeling like something in her feet or something in her legs. It was like something inside was making her legs move and I don't know if it was like an itchy feeling like or something inside I don't know what it was, but her Central nervous system was all messed up and her hurt. Sympathetic nervous system was heightened to a degree that I've never saw before. And something in those medications triggered it, and I know it was because she abruptly stopped the SNRI Efexeror and I was giving her effexor.... She, she was taking effects her on her own. She was able to take it on her own in her forties, so around the age of forty two, my mom started the effector but by the time my mom was, oh about 63 or 64 , my mom My mind couldn't really remember if she was taking her medication every day and it was horrible when I saw my mom in 2016 how much she declined
The Psychiatric drugs that my mom was giving destroyed my mom's life and it destroyed our relationship. It was horrible. I am my mom's only child.I am now 49. But she died when I was 42 or 43.
It just hit it was horrible.It was absolutely atrocious.I have a book that i'm writing and I had to pause the book because it's just too much trauma and it's too much for me to write
I really hope you will recover soon Marcello, this is horrible.
Marcello here… I sure as hell hope I am able to make it, but every indication tells me that it may not be possible. Thanks for your encouragement and stay safe.
@@marchromano1 I wish also the best of the universe for you. I suffer aktathisa too since 2019 from a cold turkey of pipamperone for sleep. Now hooked on Klonopin and Propranolol to ease my every day life which only took the edge of it. It is a nightmare!!! I was validated too, but I see in every doctors eyes that they don't know what this is really like! Greetings from Germany. Hold on, I hope this will all get better for us all who suffers from this. Sorry for my English!
@@marchromano1THESE INJURIES CAN TAKE A LONG TIME TO RESOLVE. DON'T YOU EVER GIVE UP.
YOU ARE VERY LUCKY YOU HAVE EACH OTHER. LOVE HELPS A GREAT DEAL. MARCELLO IS A GOOD, DESERVING, RESILIENT PERSON. NONE OF US DESERVED WHAT THOSE NEGLIGENT, MALPRACTICING "DOCTORS" INFLICTED ON US.
Great mom. These clueless psychiatrists are infuriating. It adds so much insult to injury (and more injury, too) that they can't even admit they don't know what to do once someone is harmed like this.
They really find this acceptable without feeling bad about it…awful.
They're golem. NPCs. I'm convinced most of them aren't real people. I just can't make it work in my mind, it requires extreme suspension of disbelief to consider them human. For all I know they don't even exist when they aren't in your field of view. Yes, literal solipsism, that's how much this palce just isn't believeable.
Thank you!❤
I had no clue this could happen on antidepressants. This young man is remarkable. I hope there's a chance he recovers.
Marcello here… There are something like 500 medications on the market that can cause an injury like this. Sometimes all it takes is a single dose of a drug that is entirely incompatible with an individual’s physiology. It’s best to thoroughly research interventions that doctors swear are safe and avoid medications that have “black box warnings” all together. Thanks for your kind words.
@@marchromano1Brother, You WILL recover. It takes time but you WILL heal. You are an inspiration to all of us. God Bless
Yes this happens to many SSRI’s. Happend to me on zoloft after long term use I got sicker and had an adverse reaction. Dr took me off almost Cold turkey. The first year was only survival. Im still sick 2 years off. Its brain and neurological injury.
@@marchromano1 Have you ever considered trying a medically supervised Ketogenic diet? Get your brain off carbs for a little while and possibly reset cell metabolism? Look into Dr Chris Palmer's work. he wrote a ground breaking book titled "Brain Energy". It may not help then again it might speed up recovery. If you do it under a doctors care all of your blood chemistry can be monitored. Just a thought.
Awesome brave guy and family.... I realised that psych meds were ridiculous, thankfully with far less trauma than you did... I only took then for 2 weeeks and did have a further 15 or so years of debilitating depression and was often suicidal... I don't believe it was due to the meds as I didmt take them long enough and I was already in a really bad way before them... I just somehow had the wherewithal to know that meds weren't the answer... Keep speaking out on this important topic and you are so eloquent and sensitive.. . I am wishing you hope and healing, I know there is help out there, you just have to keep looking... Changing to a whole foods plant based diet has really been a life changer for me over time and thabk god I finally, after those 15 years, found a woman healer who basically saved my life... I have becone a healer myself and am also studying nutrition... If you are reading this and would like her info, please let me know... Wishing you all the best.... ❤
I experienced akathisia when I was around 21. I was a medical student, in need of some cash, and agreed to a clinical trial - for an antipsychotic. It was to work out dose- so not first in human trial, but obviously a new drug- that they hoped would have less side effects such as weight gain. It was an IV dose once daily. Each day… at around 15mins after dose- I would feel extremely weird. I had complete insight into feeling weird- but almost no ability to report it to staff or seek help- it was if that was not a thought of option. I would feel like time was going painfully slow. That even existing was incredibly uncomfortable- not pain as you would know it- but so so so incredibly uncomfortable that - if there was no hope to stop it- I know I would have had to kill myself. I felt an internal unrest.. like I needed to escape and run.. but it wasn’t anxiety. And so so painful/ awful. It lasted about an hour.. then I would be asleep… and wake up in the afternoon kind of okay and almost forgetting how bad that sensation was (like childbirth) VERY strange. After the trial I realised I experienced textbook akathisia- it is SO hard to explain and you simply cannot appreciate it unless you’ve experienced it. It is like torture.. completely intolerable. Poor guy.
Did you report this to the researchers of the study and was it documented? Have you had the opportunity to have any further input on this in your medical career?
Why there are no long term studies about psych meds?
Why?
Because it's not good for business. It's a scam, already on short term. I hope we can do something to change things.
There are so many people inflicted with this there are many pharma drugs that can cause this some and for some it goes away after they stop the offending drug.
Because they never want to have studies that show negative side effects.
The industry does not want to get exposed for what it is
There are long term studies, showing harm and reduction in effectiveness over the long term. The pharmaceutical companies didn't publish them and quit doing them.
The pharmaceutical industry is the one required by law to do the studies and front the money for it. And the FDA does not require long terms studies, so any long term study they don't like can be trashed and they know not to do any more of those studies.
Independent scientific research companies do not have the money to do long term studies or a reason to go up against conventional practice.
It is absolutely shocking to me that there is not total absolute national attention being paid to psychiatric and antibiotic medication injuries in the U.S. as the aggregrate injured totals must exceed 20 million per the amount of prescriptions dispensed within the last 40 years. The should be congressional hearings.
Yes, but the APA lobby already controls the government.
Not only that but there's many groups arising on reddit detrimentally affected by supplements also( I.e lions mane) we are being attacked on all fronts by an incredibly incidious force
I was injured by Paxil, then by Cymbalta, then Ativan. 5 years post benzo taper and while the most debilitating symptoms have resolved I am rendered frail from the profound, years-long torture.
Same.
@Snowflake1374 Sorry, friend. It's a continuing daily struggle. Hugs to you.
Also it's crazy how these drugs effect everyone sooo differently. + IMO The 'Net' can be an awful & depressing place .
The thing is, akathisia is common. Even Dr. Stuart Shipko found tardive akathisia rather common in people who used antidepressants cumulatively for more than 10 years. Anything with an associated “withdrawal” or “discontinuation syndrome” can cause akathisia. Especially withdrawal akathisia. Opiates are infamous for causing withdrawal akathisia. We need look no further than agitated babies born opiate dependent to understand that. The problem is everyone thinks akathisia is transient. Like I said, it’s common and for most people it is transient, but it’s also injury even if it does quickly subside. Repeatedly coming on & off medications can make that chronic in many people, so be careful. Like Shipko said, using them cumulatively for years can set people up for tardive symptoms that erupt months off. Resist the idea akathisia is some rare side effect. The restlessness & agitation people push through starting and stopping meds can be really damaging.
Hi Marcello, try these things to help yourself to recover: stick to a daily routine. Wake up or get up at the same time (Weekdays or Weekends). Short nap (no longer than 1 hour during the day) if required. Gradually your sleep pattern will improve. Magnesium supplements may help to fall asleep. During the day train your brain for sensory stimulants: screen time as long as you can tolerate even if it takes just 20 - 30 seconds (watch something on the computer). Do it a few times a day and every day gradually increasing the time. Expose your self to sounds starting with very soft initially for short period of time. If you cannot tolerate tactile stimulants ask you mum to do massage starting from your hands, gradually involving arms, shoulders etc. It will take time but eventually you will retrain your brain. Keep yourself busy during the day: for example coloring books (use bright colors), sudoku (even if you can do it for minute). Do some physical exercises for example squat every day, bicycle, swimming. The whole idea is you live normal life no matter what.
Obviously you've never suffered akathesia.
I don't think you understand at all!
Benzos and antidepressants cause akathisia FAR more often than antipsychotics in my experience. Also this story is a lot like mine :(
Melissa you are so much right!!! Every Antidepressant on earth do this to me. I watch yours and Josefs channel constant, which gives me some relief from the aktahtisa i have every day! Keep going with your work, it helps so much and prevents some possible bad outcome!
Benoz don't.
@@Celluarexpress They cause it frequently when you withdraw from them
His story makes me so sad. The harms inflicted by the psych disciplines is atrocious. What absolutely kills me is that the practitioners have ZERO remorse when someone is harmed. Just throw the person in garbage like the rest of Western culture does.
I turned into a zombie with no libido talking SSRIs in my twenties, so I refused to take them again. After only 2 weeks on an SNRI, I had mild akathesia and was losing my ability to function AND I STILL FELT AWFUL MENTALLY/EMOTIONALLY. My psychiatrist told me to stop the meds cold-turkey. Talk therapy was so awful that I no longer feel love towards anything or anyone. In middle aged now and every day I work for death. Even though logically, things are better, I feel so awful inside, I can’t really appreciate the good parts of the new chapter of my existence. All I want is to go home or die.
I hope you get justice, Marcello. I hope everyone injured by psychiatry and psychology gets justice.
THERE ARE MANY, MANY MILLIONS, ALL OVER THE WORLD. EVERYWHERE. THEY HAVE BEEN DESTROYING LIVES, BRAINS, HEALTH, AND FUTURES FOR MORE THAN 65 YEARS, INCLUDING MINE. FINALLY, PEOPLE ARE "GETTING IT." THIS WILL *STOP* IF WE KEEP SPEAKING OUT TO EVERYONE, SO NO MORE PEOPLE WILL SUFFER SO HORRIBLY AND LOSE THEIR VERY LIVES AND FUTURES.
Same.
@@erindabney2758 They should pay out Trillions of Dollars in Damages for the Harm they have caused by Brain Damaging their patients. All the lost Years of Functional and Normal Lives and Income Lost and Expenses to just survive it. And don't even mention the Immense UNFATHOMABLE SUFFERING they have caused. It's probably Many, Many Trillions in Damages having to spend to simply Survive it..THE LOSSES from ALL OVER THE WORLD OVER THE PAST 65 YEARS are literally Incalculable. MANY TRILLIONS of dollars, certainly. They should PAY UP TO EVERY SINGLE VICTIM. ME, INCLUDED.
I wish I had that kind of family. It is crazy how this small problem turn into life size problem.
Marcello here… I had to work really hard to help my family understand what was happening in the beginning. This was never a “small problem” for me. From day one this has been the single worst experience that I can possibly imagine, one that regardless of how long I am able to stay alive, will always be the worst thing that has ever and will ever happen to me.
@@marchromano1 Ok, I meant that the reason you first time "seeked help" for your situation was maybe not that bad? Before any of this "medication" ? It seems a common theme that people have some normal thing like grief and they seek help, and that "help" turns into a nighmare. I listened this thing and it is mind bogling how person who does everything right can end up in situation like you have. You seem to be such a good person. I have done many things wrong and Im lucky in that sense that I tolerated those chemicals that I demanded. I had no idea that they could be that dangerous, just like you. You are mentally very strong and I pray that you will get better somehow. I know that praying does not help but I do it anyway. At least you managed to escape from that forced "help".
@@juhopuhakka2351 My misunderstanding. Yes, I absolutely did NOT need these meds, no one does. The damage that has been done utterly dwarfs the worst periods of my life before all this. People don’t think that these drugs can cause outcomes that are worse than the original condition one seeks psychiatric help for, but they absolutely can and do.
52:10 WAIT WAIT WAIT HOLY SHI THIS IS WHAT HAPPENED TO ME ALSO WITH MY INJURY. I USED TO JOKE THAT I WAS KINDA AWAKE AT ALL HOURS CUZ IT WAS ALWAYS SHIFTING. IM NOW USUALLY FINE UP UNTIL SOME PART OF MY MONTHLY HORMONE CYCLE THEN MY PROTRACTED EPISODES ACT UP AND I HAVE THE SLEEP CYCLE ISSUES. DR JOSEF, I NEED TO INTERVIEW WITH YOU. I’m in the process of putting together my entire time line thus far. It dates back to around 2007 (i just turned 25 back in may). I’ve had several head injuries as the result of my med-induced movement issues which have further added to my brain damage. I also have experience with the Portland medical/psychiatric system like the man in this interview
I spoke up for my son and my life was turned upside down 😢 they make sure you dont speak up 😢
Heartbreaking. I'm in a similar position with a severe case of Post Finasteride Syndrome. Hang in there man.
It's wild they were trying to work together to get him back on psyche meds. It's definitely a risk to people with these injuries. Something needs to be done about it .
I agree. Something must be done. These so-called doctors are only interested into business.
@@FreeWanderingThinkerThey overchurned him through the system, wanting him to keep going back
@kathryn7739 This is how this criminal and dangerous system works.
that is psychiatry everyday business, not losing customers
I connected with the non stop pacing and closed in feeling but when you described the raw skinless feeling, I felt very real. The Psych rolled his eyes when I said my feet felt like they had been dipped in hot oil, he basically said “now you’re just making shit up”!
I hope doctors and psychiatrists are chiming in.
Yeah right…
@@SBecktacularTHEY WON'T. THEY ARE AFRAID OF LAWSUITS.
I’m lucky to only have experienced akathisia twice. The first time was probably only a half hour or so and it was pure hell that I can’t describe to anyone who hasn’t experienced. This occurred after I was administered IM Geodon in the hospital . Fortunately the nurse knew right away to administer benztropine and Benadryl and that fixed it pretty quickly . I can’t imagine a human being having to suffer with this horrible side effect long term
Looks like the stuff wrecked him for good. I've personally met 2 such young guys, purposely kept in akathisia in the psych ward, with absolutely no way to escape this sadistic, criminal process. Why do they do this to people in psych wards? They must be getting a ton of money to be able to ruin people like this, young people!
This is heartbreaking 🙏🤗❤️
All suic*dality is about being in long-lasting agony without seeing a way out after trying everything and wanting relief from the suffering.
Hello from New jersey! I went through a lot of this on my own. My family thought I was on street drugs and wrote me off. I had a wonderful boyfriend who stuck with me as long as he could and then God sent me an angel who took me on. This wasn't known about or nobody brought it up to me. I did get to the otherwise but it took about 8 years. It would have been less but they put me on ability and it set me back. In the end I did what felt right to me. I don't want to get into what I did because a lot of it isn't traditional. I would love to help. I would suggest microdosing. I know that sounds crazy but it helped me. I have a few other things but I really do think doing a few medium doses and then microdosing really pulled me out of those lingering symptoms. It got me past the speech issues which helped so much with the anxiety. I know that came out jumbled but I'm not perfect still.
*The cymbalta jolts* (electrocution) are much different than akathesia caused by antipsychotics.
EDIT: Marcello you so don't deserve this. Im humbled by this video (watched like 5 times 😂). It's so annoying when people try to tell you about your own body. 😔
So many do and all those seizure meds do it. They say they are safe .. they are NOT safe or effective for all. This prescribing and patient shaming MUST STOP THEY ARE HARMING PEOPLE.
I know this feeling all too well😢
You are a warrior
This mom should consider sending or inviting Robert f Kennedy Jr. To a reading….. he wants to investigate our medical industry…. Please let us know where we can observe a reading or obtain a copy of the play…..thank you for having people on that have struggled with psychiatric medicine injury…..❤🙏. I have been suffering w/ protracted w/d for 15 months now and it is so much harder than I was ever warned ….. informed consent is so important!!