Bone Marrow Transplant Experience vlog : day +11 to day +29 (hospital day 17-26)
ฝัง
- เผยแพร่เมื่อ 23 มี.ค. 2022
- I am not a medical professional, I am sharing my personal experience.
This is the first day of going into hospital for my transplant.
Hospital Day 17 to 26 and 9 days at home: Transplant Day +11 to +29
Day 0 is the day that you get the stem cell transition.
Day -5 to -1 is preparation days with chemo and other medications.
Day +1 to +12 is approximately the time you have minimal blood cells until your new stem cells begin to make new blood cells.
I was in hospital total of 26 days. It was one of the most difficult months of my life, I hope these videos help anyone who is going to go through a transplant or have a loved one who will go through one.
I have been dealing with Chronic Myeloid Leukemia CML since 2011. Nothing has worked to get into remission, my cancer began to show signs of progressing to AML, so a bone marrow transplant was advised.
I was lucky enough to have time to prepare mentally and physically for the transplant.
Bone marrow transplant / Stem cell transplant story experience vlog Blood Cancer
Some of the Medications during the process: Fludarabine Chemo , Busulphan Chemo , imatinib , nilotinib , Allopurinol , Clonazepam , Ursodeoxycholic acid , Rabbit ATG Anti Thymocyte Globulin Genzyme , Methylpred , Phenergan , Cyclosporin , Vitamin K , Loratadine , Hydrocortisone , Fluconazole , Valaciclovir , Methotrexate Chemo , NG tube
Are you doing better?
I am Non hodgkin lymphoma (PMCL) patient. I am going through ALLO Bone marrow transplant. Today, done with conditioning chemo & radiation. Tomorrow, transplant is there. Little bit scare
I will receive a bone marrow transplant next month and this really helped me prepare myself, thank you so much for sharing your experience!❤️Hope you are doing well. Lots of love from Germany xx
I am so glad that this helped! Best of luck with your Transplant, I am happy for you that you are in Germany, you will be following a great transplant protocol (different countries have slightly different transplant processes, and I heard the Germany one is really good)
I will try add more videos soon about what to pack and what to expect afterwards.
I am now day +510 :) getting my baby vaccinations now!
Congratulations!! 🎉Getting your vaccines is a huge milestone💪🏼
I am definitely very grateful to receive my transplant here. At least one thing to be happy about in this really not great situation😬
Looking forward to more videos from you 😊
How are you now
How are you now? I have CML and may get a transplant. What type of disease did you have?
Hey, I’m doing good. Day +718 now. I also had CML, diagnosed when I was 17. How are you? Did they say you have to have a transplant? Have the TKI’s not put you into remission? If you do have to have a transplant, it would be tough, but so good knowing you’re finally in remission. Good luck
@@bonemarrowtransplantjourney I have been on TKI's since 2015 and havent been in remission, however my numbers are very low. My Dr. has brought up a BMT since I am on my 4th TKI do to some bad side effects. I am currently on asciminib. Do you feel normal now that youve been +700 days post BMT??
How are you doing
Hi, I am doing really well, over 1000 days now. I will try organise an informational update video soon :)
I'm suffering with myelofibrosis and my Dr told me that transplant will have only 20% success rate I am from India
@@Sanju40-Qmy father from India will undergo BMT next month
How are you doing?
@@naginaiqbal5036how is he?
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