Bone Marrow Transplant Experience vlog : day 0 to +10 (hospital day 6-16)

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  • เผยแพร่เมื่อ 22 มี.ค. 2022
  • I am not a medical professional, I am sharing my personal experience.
    This is the first day of going into hospital for my transplant.
    Hospital Day 6 to 16: Transplant Day 0 to +10
    Day 0 is the day that you get the stem cell transition.
    Day -5 to -1 is preparation days with chemo and other medications.
    Day +1 to +12 is approximately the time you have minimal blood cells until your new stem cells begin to make new blood cells.
    I was in hospital total of 26 days. It was one of the most difficult months of my life, I hope these videos help anyone who is going to go through a transplant or have a loved one who will go through one.
    I have been dealing with Chronic Myeloid Leukemia CML since 2011. Nothing has worked to get to to remission, me cancer began to show signs of progressing to AML, so a bone marrow transplant was advised.
    I was lucky enough to have time to prepare mentally and physically for the transplant.
    Bone marrow transplant / Stem cell transplant story experience vlog Blood Cancer
    Some of the Medications during the process: Fludarabine Chemo , Busulphan Chemo , imatinib , nilotinib , Allopurinol , Clonazepam , Ursodeoxycholic acid , Rabbit ATG Anti Thymocyte Globulin Genzyme , Methylpred , Phenergan , Cyclosporin , Vitamin K , Loratadine , Hydrocortisone , Fluconazole , Valaciclovir , Methotrexate Chemo , NG tube

ความคิดเห็น • 12

  • @dnm2106
    @dnm2106 หลายเดือนก่อน

    Have it in 12 hours and I'm freaking out.

  • @autismmomjoy
    @autismmomjoy 11 หลายเดือนก่อน +1

    Bless you and thanks for sharing

  • @TV-ob1if
    @TV-ob1if 9 หลายเดือนก่อน +1

    Bless you child

  • @kevanhubbard9673
    @kevanhubbard9673 6 หลายเดือนก่อน

    I am going to have one of those this year and it is the loss of my freedom to be outside that I fear the most but I don't think that I have much choice as I developed Mycosis Fungoides, pretty rare T Cell Lymphoma, and it has advanced to the aggressive stage and will probably die in a few years if it is not stopped.Nothing else has slowed it progressing through my body and they have tried loads of things.

  • @Skits_Missions
    @Skits_Missions 5 หลายเดือนก่อน +1

    Not a fun experience. I’m about 1 year post mt SCT. I’m remission but having monthly chemo. Strange getting chemo after the cells went back in.

  • @salphone01
    @salphone01 2 ปีที่แล้ว

    Oh my god when I heard cyclosporine!!
    Nightmare
    Made me high blood pressure to my head went to coma
    And epilepsy

    Transplant are not easy guys
    I wish all peoples will be ok ✅

    • @Ajaykumarchoreo
      @Ajaykumarchoreo 6 หลายเดือนก่อน

      I have been taking cyclosporine, my BP stays very high. Also different things going on my body specially related to my stomach

    • @skygirlanjali2558
      @skygirlanjali2558 5 หลายเดือนก่อน

      R u under bmt treatment? ​@@Ajaykumarchoreo

  • @Ajaykumarchoreo
    @Ajaykumarchoreo 6 หลายเดือนก่อน +3

    Hey, I'm at day +68 post transplant (AML)
    May I know how you are doing now. How's your condition.

    • @musfiqrahman-cm8pu
      @musfiqrahman-cm8pu 3 หลายเดือนก่อน

      What about u? And how's your condition?

    • @Ajaykumarchoreo
      @Ajaykumarchoreo 3 หลายเดือนก่อน

      @@musfiqrahman-cm8pu I'm much better now. Day + 140. My cyclosporine (immunoglobulin) has stopped, so feeling much better but have to go through bone marrow test on day 150 and 180 to check my donors cell.
      And Thankyou for asking

  • @offline670
    @offline670 4 หลายเดือนก่อน

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