Symptoms of Endometriosis
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- เผยแพร่เมื่อ 19 ต.ค. 2024
- Symptoms of Endometriosis
have been dealing with Endometriosis for 12 years and I thought I would do a video on my symptoms. I have had symptoms change and progress through the years and some of them I never realized were endo related until this year. So if your dealing with odd symptoms and wondering if maybe they are related to endo check out my video.
Also as a disclaimer, I am not a doctor or medically trained at all. If you think you may be dealing with endo, please see your doctor or a specialist to have them go through your history. A lot of these symptoms could also mean other things. That is the tricky part with endo. So please make sure to talk to your doctor about any concerns.
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Hey everyone! I love chatting with you all! I did want to let you know that I had laproscopic surgery for my Endo and did a video on it. I would love to hear your experiences with surgeries you have had.
th-cam.com/video/roCcD4fOFNs/w-d-xo.html
Christine Hetkowski I have all your symptoms you've mentioned in this video. I had lap surgery last year in June I'm actually going to my gyno in a couple days because of all the symptoms. Surgery worked great for me and regulated my period with no problems for about 4-5 months and now I've only had one period this year so far and instead of getting a monthly period I'm spotting when I should be having my cycle. I think I'm going to try bc {pill} to regulate my period so I'm only dealing with pain during my cycle. June was the worst it's been hard to leave my heating pad and I spent more days in the month spotting then I did not spotting. Before having surgery my periods were extremely irregular and very painful but I didn't suffer from an "endo" pain or symptoms
I have been feeling the numbness in my leg and I get a terrible lower back pain right before my period that is getting worse
@@christinacerda2241 same here! I don’t know why I don’t have so much symptoms but as each year passes I get more. I’m guessing because of how long I’ve started getting periods.
Its has afftected my fertility.i feel nausea,dizzyness,bloated,exchausted,low energy,headaches.
Plzzzz help mee.
@@itschriisty hii i need to ask something please do reply... I'm having severe endo symptoms
omg.. absolutely everything, everythiiing you described is what i am living. the hip-leg pain thing, the coming home at night and crashing after acting normal all day... just everything. glad you shared this.
This is me :(
Also wanted to say to anyone who is having surgery, to make sure that your head is supported. I used to work for a doctor & one of the things he discovered is that people who are under anesthesia can get tossed around a little. So it's important to have a supported neck & head during any surgeries because it the movement of the neck/head can lead to fibromyalgia and/or other spinal cord issues that can cause a multiple of other health problems & diagnosis that would've been prevented by using a good supportive pillow. Tell the anesthesiologist that you need to support your neck/head. They are usually willing to do what you'd like. :-) God bless you all.
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I watched this video and cried. I was like you were talking about me with all the symptoms. I am 44 years old and have had a total of 5 surgeries. 3 of them were to remove the endometriosis and the other two were to take the uterus and then the ovaries. I am still having all the symptoms accept for the bleeding of course. This is a very depressing thing to have. I can not even live a normal life. I basically just live on my couch. I pray your surgery will help and pray your health fast. Thank You for sharing, I no longer feel alone with this disease.
Patti Ingersoll please I'm really curious about something I have always had painful periods from my teens, at age 22- 27 I did got pregnant with my dates at that time but terminated them due to the fact that I wasn't ready for a baby, but suddenly 2yrs now am trying to conceive with unexplained infertility could i have suddenly developed endometriosis kindly help if u know. Do people just suddenly have them.
colleen eta you could have endometriosis but the only way to positively find out is to have a laparoscopy surgery. Endometriosis is microscopic. As far as I know that's the only way to know if you have it. Endometriosis can cause women to not be able to get pregnant. My cousin had to go in and get treatments just to get pregnant. Not sure what she had done but it worked. Not all are so lucky tho, a lot of women are unable to have children. You really need to go in and get checked out to see what's going on. I was lucky, I had two children but at a young age. I had no choice and had to have a hysterectomy after I had the kids. You really need to go see a obgyn to start the process to find out. I wish you the best of luck and hope they can help You.
Also wanted to say I do not think ppl get it all of a suddon, I think if you have it you probably had it back when you had all the pain.
The brain fog and shooting pain information was really helpful for me. I just missed out on a baseball game with my family cause I've been in pain for a while. Have to make a doctors appointment soon
I just turned fifteen and I've been suffering with endo since I first got my period at age eleven I feel so much comfort knowing I'm not alone, there's times where I've passed out from the pain, couldn't eat for days and throw up everything I consume so I really appreciate everybody's stories
😥 I hope you are doing much better❤
This is EXACTLY how I feel. You could not have explained it any better. Thank you. I thought I was going crazy.
Thank you for making this video! It definitely helped me to better describe my symptoms to all the doctors I've seen in the past 2 years.. the gastro diagnosed me with IBS when I first started having really bad stomach/abdominal pain and was losing weight. I had a really hard time believing it because I've never had issues with any foods before. Plus it seemed that everytime I would have the intense stomach cramping or pulling sensation, it always came long with other hormonal symptoms (cystic acne, brain fog and mood swings) - especially when ovulating. I also had an upset stomach on a regular basis. After seeing a few GYNOs that all related it to anxiety or IBS, I finally broke down crying (super hormonal) in a recommended GYNOs office and she suggested that I have a laparoscopy done because I might have adhesions that the doctors would not be able to see otherwise. Sure enough, I had the surgery yesterday and my abdomen was covered with endometriosis scar tissue. Praying that I will be back to feeling like myself again soon. Thank you again for sharing your symptoms!
I know I’m extra late seeing this comment but I appreciate it so much. I also have a lot of the symptoms of this, I see a specialist on the 12th hopefully I get sum answers. Has the surgery helped you?
I haven't been diagnosed. Ive dealt with horrible menstral cycles since high school, so bad i would pass out. I've been experiencing a lot of these symptoms in this video lately. Particularly, I'm constantly pushing my stomach out and it's so painful. I'm tearing up because this hits really close to home.
Lately it's been really rough. Haven't found a doctor yet that understands anything I explain. I rarely have bowel movements, bloating is ridiculous, memory is pitiful, back pain makes it hard to wear a bra and I'm a DD cup.
Thank you for sharing. Makes me feel like I'm not losing my mind.
Keep a diary, i found this helps when trying to explain it to drs. Xx
It's 5 years after you made this, but I just found you today. I was searching for something to help me feel like I am not CRAZY! I had endo surgery in 2009. I have been living a nightmare since September 2020. My periods are not bad at all BUT I literally have every other sympom. My right side and "Abs" feel like I have spent 6 hours at the gym every day. My right hip hurts so bad. I'm so tired all the time. It doesn't matter how much I sleep, I'm exhausted. I'm either constipated or have diarrhea. There is no middle. Since Sept 2020, I've had bloodwork 2x, a colonoscopy, a CT scan, and an Ultra Sound. The GI Dr can't find anything. I started BC, which doesn't help. It simply gave me terrible acne. I'm going back to my OBGYN today, and asking for surgery again. I feel like a freak. I feel like people think I'm lying, because I honestly hurt all over, all the time. I feel like since I don't have agonizing periods ( I actually have less pain on my period) that the dr's think I'm crazy. I'm emotionally at my limit!
This is 100% me too. I sometimes have crippling pain and blood clots during my period but other times not and they are not particularly heavy. Ovulation is always terribly painful but I have what I thought was only bowel issues all throughout the month, constipation then diarrhoea, pelvic and hip bone pain, stabbing pain in my belly button and sometimes under my left rib, lower back and where my left kidney is. My hormones are shot and moods all over the place and anxiety and depression through the roof. Lots of similar symptoms, more than IBS I’m sure although I’ve been diagnosed with that too after having all the tests you have and them finding nothing. As I write this I’ve been in constant pain now for a week and half with no let up because I ovulated 2 days ago.
I had laparoscopic surgery a little over a year ago. I'm also on the pill and don't have a period anymore (pretty much). I'm so glad for the surgery. Made an enormous difference.
I'm a stage 4 endo, full hysto survivor. You did well in your explanation. Thanks for sharing.
At 12 , I started with bad period and back pain , then weak-painful joints, which was surprising because I was always very athletic.I was always told that's just part of being a girl, suck it up and exercise will help with menstrual pain. But it didn't. In my teens I would get really bad back aches.I did have mono as a teen, and got HPV, some think there could be a causal link . At 21, one and only pregnancy for me (ill through it all) -normal birth. After that, 24-25 my auto immune symptoms started ; allergies, arthritis in hands, fluid cysts on knuckles and top of my foot, easy to get sick and horrible back pain continued to get worse. My list of doctors started adding up. Late 20's total constipation pre-menstration, loose stool post.Major depressive episode , no sexual desire- too tired and some minor pain during sex.Unreal back pain, at the doctors constantly. They can't figure out why I'm in so much pain.My face breaks out (was never an issue before) dermatologist suggest LUPUS, and then Rosacea which I can not treat due to allergy to meds. No I don't have Lupus. Thank god. At 30 my Internist , my Chiropractor, and Gyno , all hear about my terrible, excruciating back pain, and constant feeling like I have to pee, and my myriad of other ailments , so then I get sent to a Urologist. Nothing there, no explanations about having the FEELING of needing to pee 30 times a day. At 35, my pain was so bad I became an alcoholic with depression and anxiety.I would go to work and get that line every day , "smile " or " Why don't you smile?" I couldn't take it. I lost my kid to her dad, then my job. At 40, I was ready to go out of my area and health plan to see a surgeon in NYC about back surgery -I had the appointment set, then I canceled, and convinced myself I was just crazy like the doctor thinks I am. I thought about how badly I wanted it all to end so often.I felt like a noose was already around my throat. I would live with the pain, off and on-mostly on though. I would tell myself to stop feeling so bad for myself -I was just driving myself crazy. So, I just kept taking the depression meds. and sleeping meds. and do the best with what life had given me.Then I started to having an eczema rash all over my body. I went for allergy testing, to multiple doctors. At one point when the doctor suggested maybe I was in need of "talk therapy" I said I was willing to try anything. As if I was bringing all this on myself.That therapist never returned my call. So, luckily no money was wasted on her. I tried to go back to school, but I started to get really, really fatigued-I couldn't stay awake for more then a few hours. I went back to work. After one year there I started to become constipated.For nearly a whole year, my bowels were off and I was barely going. I had to stop working because it was too dangerous as sick as I was , and always being tired. I had no disability payments because the doctor still couldn't tell me what my problem was. Then, I stood up to my doctor and said" YOU HAVE TO FIND OUT WHAT IS WRONG WITH ME! I FEEL LIKE SOMETHING IS IN ME!!" He sent me to have a colonoscopy. My bowels looked fine other then a small kink. The Gastroenterologist said I may have a bit of Endo. I said "no".
A doctor (woman) there told me about FODMAPS diet and told me not to eat sugar anymore.No gluten, dairy, etc.
It worked great . I lost 30 lbs. became regular. No more rash, my face cleared up, no sugar/ no gluten means no beer. But I dismissed the suggestion of Endo. because I saw my Gyno regularly and I had already had an ablation , and several small polyps removed and my Gyno never said anything about Endo to me. That was Spring 2015.
By Sept. at 46years young , I was finally back to work and then a lot of pain in my back and then my gut worse then ever happened. And another routine trip to Gyno and finally they see an ovarian cyst .In hospital, surgery to remove the cyst laparoscopically was started then aborted when the doctor couldn't even see the cyst due to all the adhesions and extreme Endo inside me.The cyst remained until a cancer surgeon was found and agreed to do a full hysterectomy.I was reborn on 12/4/15. But that was all he took out. He left all the Endo in me, and it is all over my gut organs and intestines, abdominal wall etc. I lived free of pain for the first six months. I was never happier in my life. But, the pain has returned in my back. I have just recently had kidney stones and I know the difference. My Endo is regrowing.
I must find someone to excise the crap out of me! Wish me luck, I'm worried.
dlbhanlon I’m now starting to get bad joint pain and abdominal pain, gonna get tested soon for Endo
May I ask do you have children...I am stage 4 with a golf size cyst on my ovary. And seriously considering a hysterectomy.
@@dlbhanlon 🥺 feeling so sorry for you i can feel it because all what you said is exactly my condition accept for i know from the beginning that i have endo and never knew that all these symptoms are from endo😞
I suffered with undiagnosed endo for 10 years. I was on contraception most of my fertile life, which hid it. Wasnt until i finished having my children i decided i wanted to be sterilised and not take synthetic hormones. I was a 38 year old smoker at this point. Soon after the op the pains started. Was fobbed off with ibs for years, 10 exactly. Wasnt until i had pain when peeing around my period that a locum dr said the word endo and got me referred to gynae. There is not enough awareness by drs at all about this. Thankfully i am 50 this year and my fertile years are coming to an end. The only time i got relief was when i was given a medically induced menopause, twice by injections. But 3 years later it creeped back. I am so glad i am near the menopause. People think im nuts when i say i cant wait for the change 😏.
Thank you for sharing. I’ll share one of the weirdest symptoms I had at the beginning, prior to being diagnosed. I used to feel pain in the upper intestine area, whenever I would eat. I could literally feel the food moving through my intestines,it was soooo painful, felt like a knife was sliding through. I knew something was up because it would only happen when I had my period, and when I took Advil, the pain would go away. I told my gyno at the time, he said it was probably just stress and to see a gastroenterologist. But I kept telling him it has nothing to do with my stomach, if Advil is helping me, and it only happens when I get my period! Took me 5 years to get diagnosed when I switched doctors, thankfully. I’ve probably had endo since my teen years, when I was 17 I had my period, for a month straight, was put on birth control and it was pretty much the end of that. It’s when I stopped the birth control, that the symptoms started to show up. I’ve had 2 surgeries, in the last 4 years, 2 years apart, almost to the day. My symptoms have gotten better, I still have lower back pain on my left side, and at times feel some pain on my left ovary, which is where most of my adhesions were. I can’t stand in one place for too long, without getting sciatic pain, always on the left side. So what I usually do, if i know I’ll be standing for long periods of time, I’ll take Advil that morning, and it helps a ton.
omg same here always on left side w the pain, right above the butt especially in sometimes down into leg, sometimes feel food passing thru me on that side
@@diouranke it's the worst!
This is so relatable! I often wonder what it would be like to be pain free. When you said you put your pain on hold while your out and then are exhausted when you get home, I get that! I'm in pain every day. I feel like I have adapted to daily pain being "normal" to the point where I often dont realise I'm in pain until it's a full blown episode 💜💜
Me too.....
I just found your vlog. I'm 44 and I think I have endo. Until this past June I was fine. The bam I started having severe pain. This month has completely wiped me out. So far nothing has shown up on sonograms. So much that a gyn I've seen for 10 years blew my symptoms off. So I got another gyn. It's so nice to know that there are other women going through the same thing.
It's normal to disassociate from chronic pain. There's no other way to survive! You aren't faking it- it's a coping mechanism.
This video helped me a lot, and i think the creeping pulling tugging pains inside that go farther up in my core every month are Endo, and there's a lot I recognize in your story, especially with the severe bloating flares and bowel issues. Mine got loads worse after having the copper IUD, which made my periods 4 times heavier than normal. Got that out and while my monthly cycle is lighter, the pain and side symptoms continue to increase every month. Thank you for this video!
This made me feel so validated I cried, thank you for this.
This video made me cry! I have very similar symptoms. Thanks for sharing!
+Avery Anderson I’m so glad you found it! Hopefully you can get some answers and help. It’s a HORRIBLE disease ❤️❤️❤️
Ugh, wow yes, I have all these symptoms plus alot of nausea, dizziness, and bladder pain is the worst right now. We need a cure! & Doctors need to stop pushing us to get shots and surgery that won't help us or cure us!
I know this video is 2 years old but I'm just coming across it now. I'm waiting for my diagnosis. I've had 2 c sections and now 10 years out my symptoms have gotten so much worse. Bladder pain is really awful right now. Any movement can cause the burning in my bladder. Feels like I have a UTI but tested negative. I've had the bladder burning here and there over the years right under my c section scar but the past few months it has really gotten more intense. Hoping you have gotten relief from your pain.
I had nausea bloating dizziness and low energy,headaches.its been like 8 months till i got my self diagnosed with endo.i take birth controll pill.if u have any home remedies to controll these symptopms plzzz tell me.sister
The bladder pain is something that seriously bothers me. I just got diagnosed after being told it was everything but endo since I was not having cyclical pain. It was seemingly random. I was told I had chronic UTIs, but I would go to get urine tests and they would say "well, we don't see anything, but take these antibiotics and we will just send it to the lab for culture" which would always end up negative. The most confusing part was trying to tell if the antibiotics were helping or if it was just a timing thing and the pain had gone away. Don't get me started on bowel pain... just awful. So debilitating.
Wow, this is so good Janelle. Getting rid of the symptoms is like no longer going through the difficulties again. Personally I am not going through endometriosis but I have a sister who is going through that. I can say that your video is so helpful. O so much appreciate it. Although we did get some help on how to get rid of the symptoms in Bio tex clinic. I can say that this video was like an eye opener. A nutritious and balanced diet are always advantageous for healthy living. However, when you are dealing with endometriosis. You may need to be extra careful about your eating habits. Certain food choices may be better than others and an endometriosis diet is often recommended. The thought of exercising when you are in pain may be unimaginable for you. But exercise does help in coping with endometriosis. The body needs to calm down occasionally and shut off all of the thoughts related to daily stresses. A brief siesta, listening to music, putting on your headphones, or just watering can leave you feeling refreshed and reenergized. Lastly try to stay positive and keep the smile on your face.
A great effort done by the lady suffering from endometriosis. It is good thing to share her own personal sufferings, as this gives hope and courage to the other women suffering from same problem. She has discussed everything in detail. Like how and when it started. She had no idea what’s happening with her. Going through all the pains and problems associated with endometriosis. And the moment she was diagnosed with the disease. The good thing that’s giving hope to others suffering from the same problem is that she has babies too. So the woman who has lost the hope of giving birth to the babies, this video is a hope for them.
I could relate to so much of this! Especially ovulating pain, I was laid up for a day and a half this month. Have a lot of similar symptoms to you. Xx
Have you been diagnosed with Endo? I'm glad I was able to help! I highly suggest seeing a dr who understands the disease and is up on all the new information that has been found about the disease. If you can it will change your quality of life immensely!
You have put some of my problems into words that I couldn't articulate properly. Especially the exhaustion. Also that my brain forgets that I'm in pain, which sometimes results in sudden dizziness when my body feels like reminding me.
I too got diagnosed with IBS in my early 20s. I got sterilised at 30 and that's when they found I had endo. The pain is awful. Hips, pelvis, knees, my left leg. I also have endo on my bladder so going for a pee is always painful. I'm will be 34, end of this year, 2 endo surgeries later and they have now decided to try me with the mirena coil because they are reluctant to do more surgery given the current covid-19 pandemic. I've just seen your mirena coil video suggestion pop up, so will watch that too. Thank you for uploading and being so honest.
Hey Christine. This is good of you. I have been living with my sister all my life. She has been going through endometriosis too. But these days I am helping her battle the illness. Thanks we got some help in Bio tex clinic. Perhaps can also share her symptoms. Since there are some few more you never tackled on. A major symptom of endometriosis is severe recurring pelvic pain. The pain can be mild to severe cramping that occurs on both sides of the pelvis. Radiating to the lower back and rectal area and even down the legs. The amount of pain a woman feels is not necessarily related to the extent or stage (1 through 4) of endometriosis. This is where things get even more complicated. Endometriosis symptoms have a great deal of overlap with many other conditions. Often, it can be lumbered into the same category as PCOS. With many women not knowing the difference. Unlike PCOS the symptoms revolve around pain. Rather than weight gain. Excess hair or acne. Heavy periods, clotting, spotting between periods, irregular periods, fatigue, depression, disrupted sleep and infertility are just some of the endometriosis symptoms to look out for
Thank you so much for ur comment! I’m expirencing every symptom your describing
Thank you for this video! I have been trying to investigate my symptoms for 3 years and all doctors have done is tell me I have IBS. But now yay they are listening to me😁 seeing a gyno and also having a colonoscopy to check that side of things. It seems to me I have a lot of the symptoms you are describing. Just one question, did you ever feel nauseous during endo flare ups? I get that too sometimes. Could possibly not be endo but from what I’ve read it seems that’s what I have, will find out soon. Again thanks for your experience👍😁
I had laproscopic surgery 14 months ago for endo and I haven't had any issues sincs. I'm now on the pill and I generally don't have a period anymore...which is amazing after years of horrible periods. 100% glad I had surgery.
Hi Christine thank you for sharing your story with us about Endometriosis. I have been suffering from Endometriosis since 12 years old! I suffer with pelvis pain for so long until I was 21 for some reason my pelvis pain when away ! Don’t no why ? But I was relief for a couple of years. At 24 years old I had a C section , where I had complication. I didn’t know that my uterus was damaged by fibroids so badly. I had to get an emergency partial hysterectomy. It was so hard for me mentally to loss by uterus so young and bless in having my baby. Also to make things worse I was diagnoses with Endometriosis of the lungs! Can you believe that? Is unbelievable that Endometriosis can travel to another part of the body. I was devastated, doctors didn’t know what to do in order to help me with this illness! I was put on Lupron Off and on since I was 24 years old that’s been 21 years ago! So far I had 3 lung surgery and many more to come!! I been trying to prevent pelvis surgery cause I believe the Endometriosis is going to get worse. At this time my Endometriosis on my pelvis is getting worse my pain is more intense and I’m afraid that the Endometriosis has spread to another part of the body. I’m having pain on my butt area, my legs and my belly is on fire with cramps and gasses. Don’t know what to really do! I want to get off the Lupron cause I know it’s going to give me more problems that I don’t need. I want to ask my Ob-gyn if there is anther treatment I can take for Endometriosis. Do you have any suggestions in what type of medication that is not that toxic for my body?
Oh wow! I am so sorry it has been so bad for you. I love how most doctors don't even realize still that Endo can go to different organs in the body. It's such a new diagnoses sadly most doctors don't know how to treat it and are going off old info. It's been 2 years since my surgery and I have seen that there is a LOT more media and social awareness of the seriousness of this disease so hopefully that will bring some serious change in the industry for it. But being I haven't had to deal with it really I don't know what modern things are out there and how they work. I know for traveling to a surgeon who most of what he did was endo surgery was what worked for me. I agree the meds they typically offer are a bandaid at best. Praying you get some answers.
thank you so much for this I've been diagnosed for about 6 years now and my pain is centred in my abdomen and recently my back. The feeling of the cysts bursting is so bad. Keep spreading the knowledge.
Glad you made this video , I have some of these symptoms . Your the first one where I found where u have pain in your hips with it shooting down ur legs . That's what I've been having as well only my right side tho .
So glad it helped! Make sure you talk with an understanding doctor who knows the scope of the disease! It makes a huge difference. Praying you find some relief and answers!
I have this issue as well, I always say my bones hurt from my hips to my knees and it feels like when you have a high fever and your body aches. It is so much worse when I actually do get a fever though. I seem to also have horrible leg circulation and now get to were the front of my legs are cold all the time and almost numb.
I had a cyst that popped similar to how you explained about 4 years ago. They thought it was also my appendix but they found the cyst and it had drained. I've always had more intense and sharp cramps on my right side, whereas I rarely feel any discomfort on the left. I thought it was normal and that some girls just experience cramps on one side... It hurts increasingly worse around times of ovulation, but sometimes it's random. For the past year my pain has gotten suddenly worse and hasn't showed any signs of slowing down. Last night I was in such crippling pain once again it felt like it could have been appendicitis, and so I went to the ER and after a bunch of tests and CT scans they didn't see anything besides some excess fluid in my abdomen which may be blood. They told me they suspected endometriosis and that's why I'm watching this video today. For the past few months I've had crippling back pain to the point where I can't even get out of bed some days. The pain that once only stabbed on the right is now spreading to my back and it hurts to use the restroom. I feel exhausted.. I can't even hold a job because of how much pain I've been. I have bipolar depression on top of it and it's taking away almost all the fun in my life.. I can't go on hikes or with friends anymore, I'm always in too much pain, too exhausted. At the age of 17 I stopped using contraception because even while attempting to conceive I've never gotten pregnant and I'm beginning to think I'm infertile.. thank you for this video. This is a struggle I feel almost alone in as it is invisible and most people have never heard of it. A part of me hopes this isn't the case but another part of me wants to figure out why I am in such pain at the age of 19... everyday is a struggle. I don't know why else I would be in such excruciating pain. It was so bad yesterday I almost went into shock.. I'm going to my doctor today to hopefully be recommended to a GYNO and figure it out once and for all..
Hey Lunias, So sorry its taken to me so long to respond. I hope your doctor was helpful. Definitely advocate for yourself.
Hello! I too have intense right sided pain went twice to the ER and had two ct scans after taking birth control I started feeling better...a doctor confirmed endometriosis after laparoscopic surgery but on my left side only. I am so frustrated and I understand your struggles 100% I hope you find a good doctor that will help you! My appendix was removed as a possible cause of pain but no endometriosis was found on it. You can message me if you like!
Thank you, seriously, so much for this. I am in the process of getting a diagnosis for all my issues and feel very strongly that it is endo. I would say I have 85% of the same symptoms you have talked about plus some similar but a bit different. I am a miserable person and have gained so much weight because of my fatigue and constant discomfort. I have about 2 good days a month after my period and before my (seemingly) eternal and painful ovulation. I just appreciate this video for helping me not feel crazy about how I have been feeling for over 7 years now. For me the worst part is feeling like all of this caused my ectopic pregnancy in 2017 and I fear now that I won't be able to have any more children after trying for years.
Hey Christine, hope you are doing well. I am new subscriber. I am so sorry you had to go through so much. I have seen my friend was suffering from endometriosis. I have seen her suffer in pain. I hope things get better for you.
I was recently diagnosed with endo. I have severe periods, major clotting but the WORST thing I've had is chronic bowel symptoms which occur at any time, but most frequently with periods and painful ovulation. Pains that rival pain of kidney stones (which I have had) it mimics giving birth but through my intestinal tract (so contractions of the intestines). Spent 4 years jumping between my OBGYN who tried many forms of Birth control which didn't work (I was very sick on estrogen ones, progesterone does NOTHING.) and a Gastroenterologist for "ibs" before getting put on chemo (depot lupron) last year without confirming with laprascopy due to previous abdominal surgeries I had. It worked but side effects are nasty. I was stopped and put back on birth control and recently the pain came back as if it never left.
I got a second opinion two weeks ago, with a great doctor who finally decided to go in. He noted since none of the other options worked (I've tried everything except IUD due to history of tumors), I am going back on the chemo for another year. I'm 23 but have other medical issues, some which make it difficult to have kids. Confirming this, plus the expensive copays for the chemo (of which I already spent 5k on last year) I have decided to talk to my new doctor/second opinion about a partial hyster. My previous OBGYN refused to do it, seeing it as unnecessary, but the pain is so intense sometimes I hurt myself while I struggle to cope.
Has anyone else ever faced this kind of challenge before? Where do I go from here?
Sam I Am So sorry, maybe you need to look to nutrition for healing.
I am so sorry for all you are going through. I know if I don’t feel like a doctor is taking me seriously I move on. They can really suck at their jobs sometimes and I will not let them make mistakes at my expense. Hang in there. Praying for your recovery.
I totally understand you, esp about the thing with being with friends and not feeling the pain as bad because you're being distracted - and then coming home, crashing and not really talking to my boyfriend. So that's why my friends and family never see how bad i feel except for my boyfriend. You really put out how living with chronic pain are, and it feels good to hear people talk about the same exact things that I'm feeling. SOmetimes I think I'm making up my symptoms because that's what a lot of doctors says when people go to the E.R. but when you and others talk about it, it get's real and that is when I feel like It's okay to feel the way we do without having to explain why. But I guess you need to explain to the people who aren't close to you what you're going through, but a lot if people (esp. here in sweden) act like it's to personal to talk about health and that it's a thing to only mention to the closest people But I feel like if you don't mention to people that you might suddenly feel very nauseous and feel feverish at times. Because if they don't know about it, they might act like, Wow you have the flu - go home. When they should be helping you however they can.
Thanks for sharing your story Christine, I'm pretty sure I have Endometriosis I'm going to the Gyno Monday hopefully I will have more answers, I'm so overy feeling like this.
Ask lots of questions and make sure your doctor seems to understand endometriosis. If he suggests the only way to treat is Birth control, you might want to consider a different doctor IMHO. Birth control only masks the symptoms while the disease still grows and spreads. Hope you can get some answers! Feel free to ask my any questions you might have!
Did you get Breast swelling at all times during the month?
I have the shooting pain and burning sensation down my hip and leg. I feel most symptoms on my left side which is weird. I haven’t had an official diagnosis,
Helloo did u find out whether you had endometriosis or not??.
I also have these symptoms..
@@shshshshshshshsh9695 I have them too
@@shshshshshshshsh9695 did you get diagnosed yet?
OMG you have shared so much information in this one video! I just speechless but I want to say Thank you!
thank you so much for sharing all of these details. It helped me finally receive diagnosis.
Oh my gosh! That is amazing. I’m so happy for you. This is why I made these videos. I felt so alone and helpless. I’m so glad I could help. Praying for you as you figure out your next steps.
I totally understand .. cause I been going thru this since 12 . I thought something with wrong with me as I was growing up. Doctors lie alot I had more cyst problem and c rush it. Drink water but I understand it and I thankful to her I ain't alone this is something a woman has to go thru one of millions out there get just mild . I get really bad and pain killer don't do anything for me..
Just stumbled upon this- so glad I did! Finally saw a PA about my weird cyclical pain that occurs during ovulation but near my belly button and lasts a week (and then comes the pms pain like you said). And as you said, there’s not a lot out there on the less common symptoms! And because of that I thought it couldn’t be endo. But my PA thinks that is the case. My first symptoms came on right when I turned 31. Wild.
So glad your starting to get some answers on your health! Praying for some relief and answers :)
I completely understand what you mean about pain and being out with people. I have hashimotos and when I am out or around people I can ignore my symptoms of fatigue. But, when I get home I pay the price for it. If I do activities I am laid up for a few days afterwards.
Your story is my story except I don’t have kids. Thank you so much for sharing!!
Hey!Christine Hetkowski.I am sorry to know that you have been going through this process since 12 years.You did a good thing by making video of your experience.People relly needs suggestions from some expert.Yeah you are right some symptoms are like that you ignore them. So if we are dealing with odd symptoms and wondering if maybe they are related to endometriosis then should vivit to clinic.Don't be a diclaimer of yourself by behaving a doctor or medically trained at all. If you think you are suffering with endometriosis, please see your doctor or a specialist to have them go through your history.That is the tricky part with endometriosis.I visit biotexcom in ukarine for treatment. please make sure to talk to your doctor about any concerns as soon as possible.
Thank you for this. So many of these symptoms I had no idea were even related to endo.
It is very informative for the revision of the course. The symptoms are accurately mentioned. It is really helpful for students specially before exams. I am happy to watch the video. Thanks for the good help. It's really informative.
Hi! I'm 17 and I'm not sure whether I should be talking to a pediatrician or a gyno? I want to because my symptoms are lining up to an extent but I'm not sure, but they have been getting worse and i dont want to wait and have it get worse except reccently I've also been having painful urination? I know it's a symptom but have you experienced it? and if you have did you doctor recccomend anything like that? Did you also have any aversion to dairy? because I remember you mentioned diet
Hey Athena! Sorry it's taken me so long to get back to you. I would say scheduling with a very good gynecologist who is up to date on the current practices of treating endometriosis. Also, sadly the younger you are the more dismissed by doctors you tend to be. Really advocate for yourself! And yes diet did definitely aid in pain management.
Your story sounds so much like what I've been going through. thank you for sharing. I don't feel as alone in I'm having these syptoms. I'm going through testing now to find out if it is endometriosis.
Everything everything I've been through. I was diagnosed with pcos at 8 years old. Put on birth control before my first period. I've been blessed to have 3 children, but when my daughter turned 9 months, I started with my own personal hell.
My abdomen had gotten so big i had a lot of swelling and abdominal pain. I had a hysterectomy and it was then that they found the endometriosis. The doctors told me for years that i had inflamatory pelvic disease but they were wrong. So i suffered for years now that i had the hysterectomy my overall health is better but I'm in therapy for back and leg pain. There needs to be more information about the affects of endometriosis.
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I had almost all of those symptoms. I had excision surgery. They cut away all adhesions but also cut out all the diseased tissue by the root. It helped tremendously. The surgery where they just burn the surface is not effective.
Yay!!! So glad the surgery has been a success for you!!!! What a freedom 😊❤️
I have not been professional diagnosed with Endo but I am 100% sure I have it. Growing up I never heard of it, but have had pretty much every symptom. I am 45 now and OMG the pain about 2 weeks before my.period, then it calms down then I am in hell during my period and a week after. Pain after sex, severe bloating with pain, lower back pain and cramps whenever they feel like it, hip pain, stabbing pain in right side , fatigue, and more. I also started my period very,very early. ( 6yrs old) The pain is to the point that I am finally trying to get help, but with this covid pandemic, I can't get in anywhere by me... everyone is doing phone consultations only. Right now I look 9months pregnant due to bloating and in severe pain all night... it eases up during the day. I Just looked into diet and what can set off a flare and I think I know why right now, so we will see. I have told doctors before about my severe periods and pain after sex and bloating... all have just brushed it off to me being overweight. Which on my medical record I just found out it shows severely obese due to calories....WTF... I keep teack of what I eat and drink and my normal daily intake stays between 1200-1800 ninety five percent of the time. I dont drink pop, not big on junk food and drink mainly water and tea. Anyway I found your video very informative... now just to find someone to diagnose me without taking years of thousands of dollars. Cause I don't have insurance. I quit my job to take full care of my Bfs mother who has Alzheimer's and dementia and is a full assist and also watch over his dad who has schizophrenia. The hardest part is lifting his mother daily and changing her while in the severe pain. No-one here in the house reallizes what pain I am truly in and I can't even take the time to feel better.
I was told last week I probably have it due to my symptoms and cyclical pain. Thanks for sharing. We are pretty similar with symptoms. Everything is just making sense.
Thank you so much for sharing! I been diagnosed 6 years ago and had an operation,nothing helped,injections,contraceptive pills,3 years ago it became even more severe,the leg pains,sometimes even arms,this deep bone ache that gp couldn't figure why I get these terrible pains expecially in the right leg near enough on a daily basis,but a week before my period,throughout the period and after it finished the pain is so intense in from rib cage down to toes that my legs shake I can hardly walk,stand sit or laying down it keeps me awake at nights,now awaiting for an operation as got endomitrioma in my right overy, feel chronically fatigue and depressed,because people saying it is in my head,but it is not,can take high strength 10 ibuprofen pills and the pain just won't go away,age 31 and have fiter neighbours at age 70...just feel so alone and want to enjoy life,but it is not easy with levels of pain experiencing in my bowls,stomach,back and now legs,getting a lot of chest pains as well wonder if that could be related?
Have you found anything that helps w digestion/bowel movements? How does core exercise affect you with your uterus being attached to your abdominal wall? I ended up in the ER last time I tried and now I’m terrified to exercise my abs haha!
Have u came across endoresolved.collm Tons of ladies share there how they got rod of their endometriosis. it's through diet.
I am doing it and the results are actually amazing. my gyn & ultrasound doctor are blown away knowing that I'm taking no medicines.
only sharing this so all those endo sisters out thee can get rid of their pains and have normal life
oh my gosh!! I totally understand the going out thing! When I come home it hits, yes!
I have an appointment next week. Ive been diagnosed with IBS. I had a cyst burst(didnt know). Ive had 3 c sections. On the last one, i heard my dr tell the assist that i had scar tisuse. Now, my whole abdomen feels like im wearing a corset with fireworks underneath. I cant wait. Im willing to pay and do anything right now to stop hurting.
Thank you for sharing! I know I’m years late but I just turned 18 and I’ve had irregular periods since I was 15 maybe and I started my period at 11. I had pretty average cramping when I first started but I know between 12-14 my cramps started getting worse (although not to the point that I notice much because I have a pretty high pain tolerance). I started getting periods that won’t happen for 3-4 months then I’ll have one or they’ll happen every month it really depends. they can be super heavy, pretty normal, and or they’ll be light and pretty quick. I’m cramping almost everyday with back pain some days are worse than others, pins and needles coming from the high thigh area down to my ankles feels like arthritis, also like you said feeling cramped up above the belly button, I have a hard time passing my bowels, my pelvic area below my belly button where my uterus lays sometimes burns, around my hip region and pelvic area is very sensitive to touch, I’m bloated all the time, & my belly is super hard for the most part. It seems like endo but I’m so unsure.
Same with mine
Thank you for this video, literally in tears you describe everything I go thru 👏💓
Hugs ❤ Endo is such a hard "silent" disease.
Other than the daily pain I have to say the brain fog is one of the worst symptoms I hate.
yes the brain fog and fatigue!!! How could I forget those- oh yeah, the brain fog! I find it hard to drive sometimes because of the brain fog.
I know exactly how you feel, so tired, foggy brain, bloated, shooting pains everywhere, insomnia…. I didnt know what was going on for years, over 10 years until I had endometrioma developed and leaks and I passed out from extreme pain (10+level) even that takes 6 plus months to diagnose. I cant eat carbs anymore, drink milk, too many food I cant enjoy anymore… so sad. And I have stage 4 endometriosis.
Thank u for this video, i have a lot of these symptoms and it all makes sense now after listening to you, i have not been diagnosed yet, im going at the end of the week to have an MRI to see, i started having pain right aftet getting off my birth control so my husband and i could try having kids, it started out with me having a cyst, that has since gone away but im still having pain, i hope i find answers soon, thank you again!!
question I have been recently diagnosed with endometriosis I've also was diagnosed with tachycardia is there any connection to that ? I'm going next week for a d&c and pylop on cervix removal they will insert an iud to stop periods.
Sheri D I'm wondering this too
Hi! I'm Lena and I'm 19 years old and I just want to know what sort of doctor I should be looking for. I think my symptoms line up with endo, but I'm not completely sure. Some are very similar to what you describe here, including extreme cramps and painful bowel movements which started about 6 months ago. Sometimes I also have what I call "attacks" of pain in which at first I feel nauseous, then starting from my pelvic area pain and tingling. Yesterday it got to the point where I was screaming out in pain and I could not feel the majority of my body and could not move anything without extreme pain. I also have brain fog when this happens even though I'm aware of what is going on. I just can't think. The pain and subsequent inability to move comes in waves that are a few minutes apart. Advil seems to make it go away, but only a few hours after it's started. It also tends to happen more during my period, although I've had experiences where attacks have happened the week before or 2 weeks before my period. My first attack came when I was 11, after that I didn't have another period until a year later and I didn't have an attack or any period pain at all for a few years. Also I went to my pediatrician when I was about 15 or 16 and the attacks were coming back, she said I most likely had a hormone imbalance and to just take Advil to help with that. Can these be symptoms of endo and what doctors should I be finding to diagnose whatever this is?
Hey girl I was wondering if you had seen a dr. Yet?
This is helping me so much. I've not had answers for about two years. My name is also Christine and my partner is Chris! Super weird haha.
Wow, my story is very similar to yours. I have yet to be diagnosed, but I'm positive what I have been dealing with for years is endo.
Does your stomach grow quickly?
I have endometriosis too and I have all the same symptoms except the legs getting numb but I get shooting pains down my hips and legs I’m now getting so depressed that there is no cure and thinking of quitting my job of 16 because of this pain and pretending to be normal at work and just crashing when I get home so I completely understand where your coming from I tried Endovan and it didn’t work for me so now I’m trying to change my diet eating very clean no dairy no meat no gluten so hopefully that works
Hi I have been diagnosed with endometriosis and adhesion I feel your pain and understand what you mean about the brain switch, it’s that bad i have to go for a major op as they couldn’t remove any via keyhole surgery that I had a few weeks ago.
I was just wondering did you have an successful surgery
I have all these pains you describe, and I was just doing laundry, and had a horrible shooting pain I felt like I was going to pass out... I'm wondering if I should set up an appointment..
+Kaylin Edgar I would highly suggest it! Your health is always important. I'm so sorry you're struggling with it too. It is SO hard.
I have a consult scheduled to get tested. my bowel movements are becoming worse, and I continue to get worse with 2 week long cramps/sharp pains from ovulation (even though I'm on birth control) and contractions on my period.
I'm so sorry. It is really the worst! I hope you get some answers. Just remember to be a huge advocate for yourself and if your Doctor isn't willing to work with you, don't be afraid to find another doctor! It's so worth it to get a doctor who cares!
i was just released from hospital went into the ER on Monday . Woke up with pain in middle of abdomen pain increased as i got ready for work. as i drove my little one to school 5 min from my house pain intensified lower left side of abdomen n at the same time rectal pain had to pull over couldnt drive. ended up in the Er. They did trasvag sono because an earlier sono revealed ovarian cyst small in size. That sono was the worst I ever experienced. I was later admitted and had series of test because the pain travelex up into the middle of stomach sometimes to left and right then back to middle. It was a nightmare. Sonogram revealed fibroids thickened uterine lining and endometrial polyps but all GI testing ( Ct with contrast egd sigmoidoscopy came bk normal). Gi doctors and Gyn docs back and forth in my room. Gyn suspects endometriosis based on my history of very heavy periods eith formation of large clots and symptoms of bowel movements ( painful and often constipation). But the only way they said they could be a 100 % sure was through laparscopic surgery. But when told of the risks I declined. What is your opinion still in pain. But was released and told to follow up with Gyn in a week and come back to Er if the symptoms intensify as they did Monday. This is all very scary.
Hey Christine! I'm so sorry you've had to deal with so much. I would agree with your doctor. Surgery is the best option but it really has to be with an excision specialist. A regular gynecologist does not have the training to get all of the endo out. And if you go to a specialist first you will only need one surgery as opposed to two- one to diagnose and one to treat. I hope you can find some relief.
Hi, what did the pain in your hip feel like? Usually the week before my period I get these intense shooting pains right above my left hip bone, then while actually menstruating I get cramps that make me miss work and feel nauseous. Also I'm exhausted all the time. How severe is diagnosed endo pain? I'm worried that I may have it but I'm also afraid of overreacting.
Any insight anyone could offer would be great ❤️
Isa Polena mine felt as if I ran into a corner of a coffee table or something in my hip bone . Like literally running into the edge of something . It also burns down leg and sometimes the inner part of thigh . At times mine mimics a kidney stone Bc of lower back pain , fever , nausea etc. It's a full blow 10 during Monthly cycle , it takes your breath and I can't leave house ! I go through a box of tampons in a day ! I have to literally take pain medicine strong on those days . The pain is so horrible that you cry and I have crawled whenever it's gotten so bad I & doubled up praying it would stop . The Advil , Tylenol , nothing helped except a narcotic and heat . Everyone's different and drs are very naive to how it disables you . I have complex ovarian cysts with mine and all you can do is treat symptoms . It literally can hurt so bad that you feel you need ambulance depending on where it's located . It can wrap around your spine and grow everywhere . I couldn't have surgery Bc of the high risk so I live with this and everything else a woman endures . I don't know what pain control others use but mine is so bad it has to be a narcotic or a shot . Toradol helped a few times but sadly this type of pain is worse than my kidney stones! I was recently dx with lupus as well so it adds to it ! I know women in pain management because of the severity! And had to draw disability . That's how bad things can get . People that haven't experienced this won't sympathize or have a clue and that is nerve racking . I wish I could find a good female gyn that has experienced this horrid disease and ovarian cysts so that they can help us more and not say get a hot water bottle and rest . I do know laying down slows down the heavy bleeding some . Sorry this is long but I take this and all female problems serious Bc we suffer enough and looked over like we overreact or something! Good luck and keep asking everyone for advice and get a dr to do Ct scans , vaginal ultrasound and laparoscopy to see what's going on . Advice - never think your overreacting whenever your body says differently. It's about you and not anyone else who is experiencing your pain . I learned that fast !
I started having body aches in the middle of 2021 after I turned 40 especially my upper and lower back and lower extremities during ovulation/fertile days and it gets worse. Is that normal? Is it mittelschmerz or endo? Is it due to hormones?
I was diagnosed with IBS and recently think I found it to be a lactose issue. I've added a supplement to help with my.stomach as I've always suffered with stomach issues even as a child. I'm different then you, I got my period young, a month before my 12th birthday. I also got a vaccine in grade 8 that was been known to cause endrometrosis in woman. I developed a cyst after a miscarriage at 18 years old. This cyst is a blood filled apparently follicle cyst that will go away in time, 6 years it's been. Birth controls to.stop my period made me in worse pain so I dont use anything but heat for my pain. The pains are so sharp i cznt stand up. I have pains in my bowels, back and stomach all sharp pains. I'm immune to all medication for pain so nothing helps. I wish it would go away as I cant just have a baby to fix it and I dont want to loose my chances of ever having kids by removing it, I'm 25 years old now.
I'm going for a TV Ultrasound on Monday (3-13-17). The symptoms I've been having are; very sharp abdominal pain on the lower left side, urge incontinence, occasional pain (sharp, shaft-like) when I sit to empty bladder or move bowels, oh and I've been bleeding and experiencing cramps, every day since January 26th (2017)! Clots almost every day too. I have no children and I'm 47. My maternal aunt had Endo (no children) and had to have a complete hysterectomy, and my sister had 6 children and had to have a hysterectomy, during which, they found some Endo. I am worried that I may have it too. I am also worried about sounding like, or being accused of being a hypochondriac by my gyno. What is your opinion?
+Diana L. Sadly I think some Doctors don't take our pain seriously. If that's the case I would encourage you to find a more supportive dr. Make sure you give your family history. I have found that to be very helpful. I'm so sorry you have to go through this. I'm 2 months out from my surgery- no hysterectomy for me- and so far I'm feeling amazing!
Christine Hetkowski So glad you feel amazing! I do have to get a hysterectomy. They're not taking my ovaries though. Thank God for that!
Thank you for sharing your story
I am 26 now and I am going through this for almost 10 years now and the pain is getting worse day by day 😒
Do you have periods like every 2 weeks? I feel like im constantly on, its so painful and heavy, i feel like im gonna pass out and at times i can barley walk. Also my memory is shocking and i zone out when talking to people x
I don't I have been always regular, while on and off Birth Control.
Anyone else have nausea,gas,bloating, heartburn chest arm back and neck pain with endo?
I have back pain for sure. Hope you are able to get some answers soon
I just want to list my symptoms, shoulder pain, chest pin, crazy digestion pain (feels like real bad hunger pains) , bloating ( to the point where my stomach feels like a balloon ready to pop), I have to use the bathroom often ( I do experience some pain when I’m doing #2 but mostly during my period), pain after sex( feels like cramps, also felt like he was hitting something which was extremely painful) headaches, heat flashes then I get cold, insomnia, night sweats,crazy anxiety, cysts on my ovary, appendix pain (I’ve felt that for at least the last 5 years), heavy periods( heavy the first few days then tapers off but lasts for 7 days), shortness of breath, fatigue, the feeling of sharp little pokes around my hips, sometimes my bones feel sore around my pelvic area and stomach area, pain shooting down my right leg ( my right side is all messed up because I have a cyst on that ovary which dr.s can’t see because I believe it’s covered in it. I’ve had ultrasounds and bloodwork done and everything is “normal”. Sometimes my body just feels like it’s beat up. I’m 34 and the symptoms have hit me full force over the last year and it’s annoying that dr’s just prescribe u birth control and send you on your way. I definitely have the head fog, I noticed that a few years ago( I kept on zoning out or like daydreaming waaayyyyyyy toooo much to the point where I was like ok something is really going on) the appendix pain was and still is intense and it’s Also messed with my thyroid. Trying to get someone to believe u is absolutely the hardest thing these days because I need help like yesterday you know. I got an appointment with a specialist on the 12th n hopefully the chickens start clucking around this joint lol....oh yeah I wanted to say that losing weight has been hard as hell too. I noticed I was gaining and my go to work out is called “insanity “ lol. It’s all high intensity cardio. I’ve used it twice before to lose weight especially after having my son, I did it for about 6 months every other day and I didn’t lose not one pound 😒 come December I said f it because I was so discouraged...so here I am in pain, over weight, scared, body all trippin out of control n doin what it wants 😂
I am so sorry you are being plagued by this disease. It's so hard to get people to believe you and how bad you feel. Praying you find some solutions. I ended up getting pretty invasive surgery to get mine under control
I get bad shooting pains during my cycle that go from my pelvis to my thighs and inner knee. Some times i get shooting pains in my stomach. I had a diagnostic lap several years ago and they had to scrape adhesions off my uterus. That was like 6 months after i had my daughter. And the scar tissue was bad. They said i had PCOS so that’s what we have been treating for years now. I have went from really heavy periods with terrible clotting that were irregular.. and now to lighter periods but so damn painful. Soooo so painful. A specialist thinks i have endo and my world is upside down because i don’t understand how i could have gone years without a proper diagnosis. I started my period on my 10th birthday . I have thyroid problems, bloating, major fatigue, body aches, gastric issues, and more. I sleep through my periods these days just to make it through them. :/ I’m scared of what they’ll find...
Hey Christine! I believe I may have endometriosis and so does my gynecologist. Although, I almost feel like I'm too young for it to show up if I get the procedure. I have received a ultrasound and it came back negative, but my gynecologist did not look much into it. For being 15 I experience all the symptoms, except pain during sexual intercourse because I'm obviously not sexually active yet. I have bad cramps and back pain. I was prescribed birth control, but it is no longer effective, in which it was the first 3 months on it. I'm always tired and I can nap all day and still be tired at my normal sleeping schedule. I just feel like if I get tested the same negative results will show up again and I will never figure out what is wrong. I am switching my gynecologist, but of course there's a horrendous wait of 3 months before I can get in at the earliest. Do you have any advice to help me out? I use a heating pad often, hot baths, a lot of tea, and naproxen. Also, I cannot keep a healthy diet because of a lack of appetite, which has been one of my more recent symptoms. Any advice at all would be appreciated!!💓
I almost forgot to mention my period used to be very irregular lasting 2 weeks and they are back even on the birth control.
I've been diagnosed with fibroids but a few weeks ago I started getting nausea vomiting and diarrhea which I NEVER got on my period. I should also mention I've had an Ablation done because I use to bleed very heavily. I go see my gyn on october 5th but I am so bloated and my stomach hurts so bad. But most of my fibroids are only about 2-3cm wide so not big enough to really cause symptoms. I did some research and found out women can get endo at any age between puberty and age 50. I'm 35. So is it possible?
Brianna, herbal medicine is the only cure to fibroids permanently, Dr Odion can help you cure it permanently
Hey! I know that this was posted a while ago, so I am not sure if you will see this, but I am 15 years old and have had symptoms for over a year. It has gotten worse, however, and I went to the pediatrician when the pain first started and they ran some tests, and didn’t really see anything, so I went to a referred gynecologist. At my gyno appointment, they had a PA come in and explain how periods work, etc. (I already knew a lot about it because I’ve had my period since I was 10 lol.) The PA prescribed a low dose of birth control without examining me, etc, even though I explained my amount of pain to her, which was very frustrating. I took the birth control for about 3 months, and found that it didn’t help at all and that I still had symptoms. So I then thought that maybe it wasn’t gyno related, so I went to a pediatric gastro. We’ve had several consultations for the past 4-5 months, and she diagnosed me with IBS, and prescribed me Dicyclomine. I’ve been taking the medicine ever since and it hasn’t seemed to help. When I brought this up to her, she recommended that maybe I see a physiologist because maybe my pain is being caused by stress, anxiety, etc. However, I don’t really think that’s the case because I don’t just get symptoms when I am stressed. It was also brought up that maybe I have a lower pain tolerance as well. I am now feeling pretty lost, and have no idea where to go or what to do, but the pain has definitely gotten worse. My symptoms are always on the right side, and I constantly get that hip pain and shooting pain that you were talking about, as well as extreme lower back pains. The bloating is also really bad too. My periods also have gotten worse to where I take about 3 extra strength pain relievers, and have a heating pad, and it still doesn’t seem to help. Being so young is also hard as well, but if you have any advice on what to do it would be greatly appreciated. Thank you so much!
Hey Cali, I am so sorry your struggling. I totally know how it feels to be completely lost with whats going on in your body. Honestly I would say a lot of doctors are not as up to date on what Endo is and how it can effect you from the moment your periods start. Honestly, I would get info you have found about endo and either go back to your Gynecologist if you are comfortable with that or find a new one. I had to go to a doctor 2 hours away before I was taken seriously and he was someone who specialized in Endo. They seem to be the best honestly. Hope you get the help you need ♥
I havent had a uterus for 5 years and I am Danna from Maryland and I'm new to this one topic. I don't know if I have this or not
How did u get diagnosed w/ interstitial cystitis? How are u doing w/ your bladder?
My doctor who did my endometriosis surgery diagnosed me after the surgery. Honestly my bladder has started to be a problem
Hi Chrissie I have been diagnosed with endometriosis stage 1 and it feels like stage 10 🥴🥴 what worries me is that I get groin pain before my period very badly and there’s no much info on the internet about groin pain and endometriosis..has anyone have got this lower back -leg and groin pain ???
it is possible to be having that kind of pain from even pelvic floor dysfunction from the endo. I did PT for it and it made a big difference for me
I definitely experience groin pain first it was the thigh and leg pain and eventually led to groin which let me know something was truly wrong.
Do you ever get knee throbbing?
Hi i'm now 47yrs old.i had surgery 9yrs ago.used to get lots of pain.but now d pain started coming back my lower back belly an my legs pain alot.this get me very scard.
I also have started to feel somethings coming back and I'm worried my endo is coming back. I actually went back on bc to hopefully stop it.
I thought I was just a wimp for feeling like my insides we being pulled apart 2 weeks out of the month i cant hold a job anymore because I am constantly in pain whenever it decides to show up I am basically glued to the heating pad in bed and cant do much physical activity. I used to be very active I used to exercise and do a ton of outdoor activities when I have a flare up If I state to anybody I am in pain I fear I may miss out on the events of the day or things may be cut shorter because of my discomfort I despise this feeling I feel like a literal downer. I think I need a second Laparoscopy I had one 3+ years back and it seemed to help for awhile I kept a job as a vet tech almost 2 years which btw to be a veterinarian is my dream job, and then the symptoms returned( after the 2nd year of almost no symptoms)-- I tried to avoid them and procrastinated making more Dr's appointments at this point I was pregnant has a miscarriage a few months into the pregnancy and I was starting to become quite hopeless about the future. I am currently trying to switch/considering switching my health insurance because my current insurance is different than the insurance I had during the first surgery and that same Dr doesn't take my insurance. I don't want to have to explain my story to a new Dr that I don't trust to do this incredibly invasive procedure. The child would have been my first So I have developed worsened depression/anxiety and PTSD surrounding the lost I experienced. I already have mega trust issues from my upbringing in general so I am not looking forward to living in this reality, yet Again. I feel an immense heartache for you ladies keep speaking up don't ever stop fighting Break through the pain I am soul proud of all our women Warriors. Never Give Up the battle believe We are all worth it.
what about in terms of hormones and crazy high levels of emotional and mental dysfunction? Is that a part of it as well?
So I personally have not heard or seen anything that says there is a correlation. However when you look practically at those who suffer it does seem to have a connection. I personally would love to go see a hormone specialist and see if I can get some answers.
I know this is an older video but I'd really like to know how you handle parenting with all of this because personally, I only have 2 children, they're both still young but also special needs and honestly, I can't make them understand what's wrong with me and why I don't just "get better".
My youngest daughter seems completely accepting of whatever's going on and she'll just come kiss me and lay down with me and not question it, whereas my oldest resents me for it, everytime she sees me in pain she just huffs and asks how much longer till Daddy comes home "since I'm so limited to what I can do". We both have tried to explain it to her but she's just not having it honestly. Only once in awhile do I see her start wanting to understand.
I know it'll take time but it still hurts.
Oh mama, my heart aches for you 💗 I remember feeling like a horrible mom because I couldn’t be there for them like I wanted 💗💗💗 Honestly I tried to use family and friends as much as possible. I had an amazing support group and they were always talking to my kids about me and teaching grace. I’m so sorry you’re struggling 💗💗💗
*HELP!!! .....I think I have been confusing my severe hip/leg/lower back pain with a previous car accident injury. I have also been diagnosed with fibromyalgia ....but the severe hip pain is not an injury I suffered in that accident. But here is my question.....I have already had an ultrasound that shows endometriosis.... MY HIP PAIN IS CONSTANT....it is not just once a month with my period. It is constant, every hour, of every day, and it seems to be getting worst!! .....HAS ANYONE EXPERIENCED HIP AND LOWER BACK PAIN THROUGHOUT THE ENTIRE MONTH DUE TO ENDO?? .....I'm new at this diagnosis. I had never even heard of this....I just marched into my doctors office and demanded testing because I KNEW something was wrong, and I was right. So I'm seeing a gyno next week....but I'm curious as to whether or not this hip pain is possible to have all month long due to endo.... or does it only happen during your period*
Bad-Asz Survivor I am 16 and have had endo for 3 years and my pain is constant like 24/7 without a break. I also have severe hip, back, and leg pain caused by endo but that will be confirmed in two weeks at my second lap
Yes! Every second...every hour...everyday CONSTANT DEBILITATING HIP PAIN.
Can you tell me what you did to get pregnant, I have had a surgery 2 years ago still no progress... please help?
I am so sorry you are struggling with fertility. I personally never had issues with that. Praying God blesses you soon
Does anyone else have constant pain? Like it’s there every singly day although the intensity varies. And when I move around I don’t feel it as much as when I’m standing, sitting or lying still?
I do, absolutely. Everything you said exactly.
before my surgery this was me. It eventually got so bad all the time and thats when I got surgery.
Thank you so much for replying!
Yes pain there all the time, every day with different degrees of it, sometimes so intense I can’t move and crippling bowel movements. Really intense around ovulating. Better moving around, sitting is the worst but the pain never goes away, at best it is a constant dull hum of pain which intensifies and dulls down throughout the day, every day. It’s so debilitating and my moods and hormones are all over the place and anxiety and depression.
Wow.. I have definitely experienced the belly button pain. I thought that was weird. I am also bloated lately. I have missed 2 periods I want to say. My pain ranges from my side, my stomach, my back, and my gut. I am not sure where to start. I am also not sure if I am crazy and it isn't that bad
or it is that bad and I don't want to believe it.... I am also terrified because I really want to have children.
Hannah Jones you might be pregnant
Hannah Jones me too
I'm 43 years old and have been suffering from endometriosis for probably 15 plus years as I get older it gets really bad I feel like I'm sitting on Sharp knives constant bloating I've had four scope surgeries and thinking about a hysterectomy has anybody had one and does it help after having it done with endometriosis