Do you have an episode on Shy-Drager syndrome? Supposed to be a rare form of Parkinson’s…..my mom was diagnosed with this and also Orthostatic Hypotension(low blood pressure) this episode shed some light on her ‘panic attacks’ and other phenomena
You can check out episode #15 and #48 to see if that helps. In those episodes, we are talking to our Movement Disorder Specialist about what to prepare and questions to ask.
Like financial? We have a non-profit, the 5KforJK (www.5kforjk.org) where we raise money to drive awareness by delivering Parkinson's kits we created, support exercise programs, and the podcast. To-date, we don't use those funds to support the podcast (we just donate our time and talents), we are looking for corporate sponsorship so we can fund the podcast, allowing us to advertise and do things that would cost us money.
Luckily if caught early enough it can be reversed I hear. New research found that it is caused by sugar. The cells in the body are glycated from all the junk/processed food, not to mention all the foods the body turns into sugar. Basically anything you put in your body other then fat and protein turn into sugar automatically and stored as fat. So that piece of toast you had this morning turned into sugar by the body. The cells get glycated from the sugar running around in the body and get stuck to the outside of the cells. For you to move your fingers, a signal has to travel from your brain to your finger cells. If the cells are glycated the signal can't get in...so the brain keeps sending out signals....similar idea as restless leg syndrome. So the research been showing putting these people on a high fat, no carbs at all is bringing people out of the dementia and the body is able to detox all the sugars and eventually replace all those cells with new ones approximately every 3 months. If you want to learn more about this Dr. Ken Berry on youtube just put up a video on hope for Alzheimer's and Parkinson patience. He also posted all the research paper in the notes so you can read them as well. Here the article I saw and only just stared researching on it myself. www.thesun.co.uk/health/24524117/fat-triglycerides-dementia-risk-lower/ So forgive me if I have a bit twist why I recommend going to see what Dr Ken Berry has to say, he saved my life maybe he can help you. Good luck, and remember the right foods are good for the body. Also if you have loved ones with cancer....people are reporting this is working for them as well. First brain cancer to live over a year after treatment and cured. He still has a few months to go I believe before he is cleared as okay. Good luck peeps and claim your life and health back.
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms••My Dad is completely okay and healthy now.
If you have questions, please send them to info@thesecretlifeofpd.org But to answer your question, Brian did not experience nights like that until just recently, so after DBS.
@@thesecretlifeofparkinsons I’m sry , I didn’t know about the new address… Previously I had been exchanging with Brian through his email address. Thank you kindly have a great day
@@thesecretlifeofparkinsons Good morning Jess & Brian! Did you have somebody at your house to help you After each of your surgeries? Has your vision gotten worse since the surgery and how about your speech… My 1st scheduled surgery is January 10… I'll be staying in Florida with my husband at a hotel at least once every two weeks.... otherwise I may be alone and wondering how that Will be. Are you really glad you had the surgery , and would you do it again? What about depression and anxiety ? any better or worse? I’m starting to freak out… I’m extremely extremely depressed and anxious and I cannot find any help Thank you for your time it is much appreciated
Thank you for keeping on with these episodes. I have young onset Parkinson, I am 34. I feel less alone :)
You are so welcome!
@@thesecretlifeofparkinsons😊😊a😊😊😊😊😊😊😊😊😊
Qaa😊
Do you have an episode on Shy-Drager syndrome? Supposed to be a rare form of Parkinson’s…..my mom was diagnosed with this and also Orthostatic Hypotension(low blood pressure) this episode shed some light on her ‘panic attacks’ and other phenomena
Great topic, thank you!
Your mother is lucky having caring family near. God bless you all. Things could be a lot worse! Stay together!😊
How old were mom and dad during this time?
Could you go over what normally happens during a parkinson's dr appointment. The different questions people do's should be asking and physical exam?
You can check out episode #15 and #48 to see if that helps. In those episodes, we are talking to our Movement Disorder Specialist about what to prepare and questions to ask.
Can you receive contributions to continue your podcasts ?
Like financial? We have a non-profit, the 5KforJK (www.5kforjk.org) where we raise money to drive awareness by delivering Parkinson's kits we created, support exercise programs, and the podcast. To-date, we don't use those funds to support the podcast (we just donate our time and talents), we are looking for corporate sponsorship so we can fund the podcast, allowing us to advertise and do things that would cost us money.
Luckily if caught early enough it can be reversed I hear. New research found that it is caused by sugar. The cells in the body are glycated from all the junk/processed food, not to mention all the foods the body turns into sugar. Basically anything you put in your body other then fat and protein turn into sugar automatically and stored as fat. So that piece of toast you had this morning turned into sugar by the body. The cells get glycated from the sugar running around in the body and get stuck to the outside of the cells. For you to move your fingers, a signal has to travel from your brain to your finger cells. If the cells are glycated the signal can't get in...so the brain keeps sending out signals....similar idea as restless leg syndrome. So the research been showing putting these people on a high fat, no carbs at all is bringing people out of the dementia and the body is able to detox all the sugars and eventually replace all those cells with new ones approximately every 3 months. If you want to learn more about this Dr. Ken Berry on youtube just put up a video on hope for Alzheimer's and Parkinson patience. He also posted all the research paper in the notes so you can read them as well. Here the article I saw and only just stared researching on it myself. www.thesun.co.uk/health/24524117/fat-triglycerides-dementia-risk-lower/ So forgive me if I have a bit twist why I recommend going to see what Dr Ken Berry has to say, he saved my life maybe he can help you. Good luck, and remember the right foods are good for the body. Also if you have loved ones with cancer....people are reporting this is working for them as well. First brain cancer to live over a year after treatment and cured. He still has a few months to go I believe before he is cleared as okay. Good luck peeps and claim your life and health back.
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms••My Dad is completely okay and healthy now.
???????????????👀👀👀👀👀👀😵💫
Rem BEHAVIORAL Disorder??
Go Bobcats!
Such a cruel disease.
Although the info is valuable, I wonder why it requires an hour of my waking time.
Brian … u didn’t have that before ur Dbs ?
I’ve emailed u a few times re: Dbs
Can u pls ck ur email folders ?
If you have questions, please send them to info@thesecretlifeofpd.org
But to answer your question, Brian did not experience nights like that until just recently, so after DBS.
@@thesecretlifeofparkinsons
I’m sry , I didn’t know about the new address… Previously I had been exchanging with Brian through his email address.
Thank you kindly have a great day
@@thesecretlifeofparkinsons
Good morning Jess & Brian!
Did you have somebody at your house to help you After each of your surgeries?
Has your vision gotten worse since the surgery and how about your speech… My 1st scheduled surgery is January 10… I'll be staying in Florida with my husband at a hotel at least once every two weeks.... otherwise I may be alone and wondering how that Will be.
Are you really glad you had the surgery , and would you do it again?
What about depression and anxiety ? any better or worse?
I’m starting to freak out… I’m extremely extremely depressed and anxious and I cannot find any help
Thank you for your time it is much appreciated