strokes are all very different, and it is hard to remember that sometimes! Advocate for yourself, as much as you can, because nobody else can do that but you.
I am a nurse who've had Six Strokes Total Since 2017 And I am still recovering today. I have not been allowed to go back to work because It has taken me so long to reach this point But at least I can speak Without a slur And I crochet And knit To keep my affected side Active.
@@debdellutri6699 I was a nurse assistant before I got stroke 6 years ago, I loved my job i worked at a nursing home giving care seniors but.. life!! I’m not diabetic, ño high blood pressure , … life surprised me 🥺j at this point I jus tried to get it and live life with this It was hard I’m Much better because meditation for depression 🥹😬
Balancing on one leg (any leg) is the simplest way to invoke, or switch on, neuro-plasticity. When the brain senses that we are at "risk" it counters that risk by switching on the ability to learn quickly. It is a survival trait. Balancing is an essential skill which we need to survive, so, balancing (and wobbling) on one leg will do it every time. The more we "wobble" the more we learn. If we don't wobble and go out of our comfort zone we don't learn anything, apart from learning not to use our affected limb/s. Failure is good because it tells the brain yet another way that things don't succeed.
@user-eh9li5tx7h Experiencing some level of "failure", in this case the wobble, is good! The only thing I'd say is make sure that if you are pushing yourself to this point, make sure to have someone else with you or are set up in an environment that you can safely do this on your own. Safety first! ❤️
3 years into my stroke and no help from hospital services with regards to rehab in my country i've only just in the last couple days started rotating my affected wrist without any pain! Ive learnt alot and gotten tremendous help from Elyse and everything she has been doing for us. Spasticity is the biggest thing for me atm but I'm pushing on❤❤
What?! Are you serious? That’s a huge win! I’m so excited that you’re not having pain in your wrist ❤️ always love hearing from you. Thank you for always being so willing to share your experiences 😊
Words of wisdom from a stroke survivor, never give up, and take one day at a time. Also, have patience for your care-giver. Unless they have actually had a stoke they can never understand what it is like to be paralyzed on one side of the body. Nothing can compare, and good luck!
I am Tabitha from Kenya i had an attack that made my left side paralysis ... it's not easy to deal with this monster of stroke but I am doing well actually I am working at my salon and I do walk without my cane ..... I would like to be a caregiver in future for stroke patients 😊
Why are some volks miserable and usually negative the facts are myself was at home reading the long newsday paper listing of events going on Friday afternoon my mother was behind me seeing that I saw singles square to be after after our evening meal the my dad oposite me open his big mouth babbling negative that I true past times had gone to places without a dance partner came home no senorita amigo how I was a sloppy dresser wearer of both sex fashions he meant all negative senoritas want seniors with mucho dinero or elsewise not my dirty business cleaner nicer automobiles so we eat supper mom cleans dishes I start going to front door hearing his hers mouths begging me to stay home nothing will happen or donot come home miserable and tell me dad it was well you cannot or meet anyone at home usually four walls life is taking chances after I parked my automobile go inside the dance caller was almost ready to start some others were doing drinks snacks refreshments 1st time there I calmly walk around seeing whoever I heard dance caller if you are all ready let’s get the evening going with a big circle boy girl the usual then we make squares 4 couples side head it was done only one senorita myself had no one so I asked her to dance with me the caller was mucho clear after a few dances two more then break time me quiet she said I am enjoying myself you are my parter for the whole evening we did not have name tags on so when it was ending she said told adios went home senorita surprise first time some mucho nice senorita was a real person nicer to me when I got home I went to bed not sex loco dinky Dow just thinking try again so two times there again was it anyhow she came to me for a date with others there invite to her home afternoon bar b que Sunday let me say as back then take things nice and easy not the usual senoritas gold diggers want seniors dinero while they are after sex rushing things it all first November 1989 after a while we all did things girls boys mucho senorita bar b ques Xmas party myself saint nicolous Santa Henry left her New York State I used my past experience slow easy mail and could say mucho more only at work one day one fellow there asked me next dance so I sent her quick mail note and now 34 plus years we are still amigos even with problems distance living apart senorita only driver myself us army veterans benefits health medical small stroke because life is never predictable always when where who ever you meet now one thing I do say know well of the mucho you try try harder in a rush we’ll just go easy does why is it called rush hour when no one really rushes we are not your usual couple lovers senorita cougar senior cub December 14 1943 or may 9 1946 no I am not taller senorita is besides close too two years five months older best for us both is that we both respect all of everyone world wide gods creations race skin eyes truth is I am pink not white employment jobs walks status in our lives me mr cub is an inviromentalist self employed we two are not your usual diners out yes we dine at nice places nothing extra fancy we never well wine use drugs how mucho would date a senior who dresses in mixed sex fashions most girls want him to have nice fancy automobiles $$$$$$$$$$$$$$dinero best looks yes no personality counts mucho how we do each other no way ever is everyone perfect mucho marry for wrong reasons do things in a hurry donot think first haste makes waste how sad our world society has become basically one way for girls boys seen in past comments it hurts us all in different ways that volks mucho often are not dealing with the real world and society dreamers not down on earth in reality cam on ong and enjoy yourselves in todays remains remember we are all somewhat the same different some things we have no control over others well just learn to live with the good bad ugly win lose or draw and donot give up
I've had a serious mental health decline since 2022. The worst part of this is that everyone that at one point cared for me watched it happen in real time and did absolutely nothing to help me. I continue to advocate for myself as I am on my own here. The health care system still doesn't prioritize any of us dealing with neurofatigue and are post-stroke, so even battling to get refills can be a challenge. At the end of the day, I am grateful to be alive every single day, despite the loneliness and the daily challenges. I truly believe that if we survived these life changing strokes, We have a reason and purpose to be alive today. Thank you for this reminder. We all truly need it.
@DJAUDIO1 Alex, the world absolutely needs you. You bring so much joy through your work. Unfortunately, you are right that the U.S. healthcare system does not prioritize continued recovery. As you well know, it's often a few weeks of therapy (if that) and then good luck to try and figure the rest out on your own. Thankful for the community of survivors and professionals who build each other up ❤️
Advocate for more...neuroplasticity, not lazy...thank you for explaining...my husband is having a stroke but this information helps me to understand how I can help him.
@dianeescarenozamora7088 Of course! I hope both you and your husband are doing well. Caregiving is a hard job. I hope you're able to take a bit of time for yourself, too ❤️
Another fantastic video. I wish I’d been able to see this when I had my stroke three years ago. One of the best pieces of advice I’ve gotten is in one of your videos. You said that we’re looking for better. I started back to OT yesterday and they asked me what my goals were and I said improvement. I don’t want to set unrealistic goals for what may or may not happen. I want to see any improvement and be grateful for that. Today is my three year a Strokeaversary!! Some people don’t like to talk about their stroke, but I talk about it, and celebrate it. I have been healed as much mentally as I’ve been healed physically and I am so grateful to God for that. Your play a really big role in my recovery, and I thank you.
@heatherguill9614 Heather!! Happy 3-year Strokeaversary!! Thank you so much for always sharing your experience and perspective. You have an amazing attitude that I hope to emulate. I'm so glad that my videos have been helpful to you, but you've put in all the work! I'm so proud of you. So glad that you are a part of this community. Thank you so much ❤️
I had a small stroke January 2014 was in hospital three and one half days now since two February 2014 in a nursing home not doing mucho it is my bad left side I am a u s army veteran when I had sepsis urinary infection it was very bad diaherra down my pants legs had maybe four times in court urinating in public by by my car all the doctor would do for me were notes for me in court well he knew I was mucho sick telling me what should he do for me well after six years or so it was so bad I had to go to it was fort Hamilton army hospital first time I had four tubes in me while on my back to pump my organs dry then next Friday was to operate on prostate now seen on I pad videos excercise for strokes it is bad left side raising. Lowering using my left hand walking I can alone no just myself if right hand using hemi aid I walk well the volks at nursing home donot do mucho for me I have been told to see orthopedics I had X-rays on bad hand a whole fifty minutes left side mri no one will operate tells me make it mucho worse then was told need operationor no good been told somewhat more who to believe or otherwise donot ask me I see on repeat tv I pad videos what to do or try or else what would anyone do recommend I only know from my past health medical hospital times something’s I donot believe something nicer can not be done someone my younger senorita amigo an rn nurse doesnot like this she was phsyco nurse my older senorita amigo hospital worker medical laboratory examiner of skin microbiology is worried about me I use toilet ok but urin all coming out not 100x sure my mouth very few teeth left mouth feels well dressing problems yes no showers yes help some can not put on socks use shoe laces clothes with buttons no good on my back always in ten plus years not on my front back up at all now to say am I getting my whole self examined properly first here then from there I have splint for left elbow to finger tops nails or some say at nursing home what do I want better nicer than this on reading newspapers I pad use seeing things what to do no one will try even who will would suggest ideas thank you
I am so glad I found you, I have just recently found out I've had a mild stroke and am feeling very anxious and scared for my future. This comforted me a little to find your chanel thank you
@stevieleannemcglynn8350 I'm so sorry to hear about your recent stroke. It's 100% normal to feel anxious and scared after a life-threatening event like a stroke! I actually have a video that comes out next Friday about how to cope with the fear and anxiety around having a second stroke that you may find helpful. I'd highly recommend you reach out to a stroke support group. There's no one who better understands what you're feeling than other survivors ❤️
I had an ischemic stroke on February 17, 2022, at 45 years old. I suffered left-side weakness in my arm, hand, and leg. After continuous physical therapy, I improved from a walker to walking and riding a bike again. I can do most tasks that I did before my stroke, but I may need more time to rest because neural fatigue will slow me down. I was also able to return to work in a different role. My job did great by accommodating me. This video covers great advice that I have reminded myself of often. A few points that have helped me along the road to recovery is that stroke recovery really takes time. I am upbeat and motivated one week, and the next week could be my darkest days because I may have regressed in some areas of my recovery. I regained my motivation by reminding myself where I was on day one after my stroke and the tremendous improvement I have made. Therefore, remove unrealistic expectations and give yourself all the time you need to improve. After two years, I have continued to improve in many ways that may be unnoticeable to most people but obvious to me. I like her last point. Advocate for yourself. Never give up expressing to your doctor and/or therapist what your needs are.
I'm on year 39. Still struggle but good days are sprinkled in with the bad. No use of my left hand. Aging has an impact on improvement. Therapy is primary. Best of luck to all ❤
I am a stroke survivor of 4 plus years and what you say is true, more people need to hear this to give them hope and continue on with their rehabilitation.
Thank you for the advice. I’m six weeks out from my stroke and I’m trying to navigate recovery. I was referred to physical therapy but I suffer from agoraphobia (even before the stroke) so I haven’t been able to go to PT. My physical therapist gave me exercises to do at home. All things considered I think I am doing well in my recovery. Thank you for reminding me that every person is different and my recovery might not look like someone else’s
Agoraphobia is so tough to deal with. I was diagnosed with panic disorder in 2012 and dealt with agoraphobia for around 2 years before it started to get better. I’m so glad that your PT had exercises for you to work on at home. Do you have anywhere around you that offers teletherapy, that way you wouldn’t have to leave your house but you could still get therapy? ❤️
I’m reading your message now you are loved and Never Give Up and Believe. Count your blessings and take one step at a time. I had a stroke Nov 2023 and it’s not easy but I walk by Faith and making changes in my lifestyle as a whole. Trust and ask God to help you get through this.
I want to Thank You for your videos. They have helped me to better understand what happened to me during my stroke and the process of getting better. It’s been almost a year now and my recovery has slowed a bit. I am 75 and have returned to a normal daily life. Walking, driving, cooking etc. You have been a real inspiration in this journey. Thank You!
@frankspina6004 You are so welcome! I'm glad you've found them helpful. It's good to hear that you have been able to return to the things you were doing pre stroke! Thank you so much for sharing ❤️
After having 2 strokes on December 12 of last year, I'll make a full recovery without any injuries.. I learned a lot from this situation. Several of the people that I work with called to check on me, nothing at home but, it's my fault, being lazy, etc. to my job that seems to not want me around anymore either even though I've been released by the neurosurgeon in all doctors March 3rd this year. This is a horrible way to treat someone who wants to talk or be around others. My support group is my 3 dogs at home and friends at work. Go figure... One thing as a side note, my mind works well and I remember how and what those that around me treated me as.
Fantastic video, you said it all ❤. My rehab hospital had the motto, "Think Possible", they never presented any absolute or definitive limitations to my recovery so I never felt bound or stifled. I think that mindset helped me to achieve a high level of return
Thank you (for possibly reinforcing that which I've prob already been told but still can't remember 3 mos out). I'm going to go hop on my bike - have a great day ❤
I'm another stroke surviver, hade some therapy, my insurance denied a lot of claims. It's been almost 3 years and still need therapy. Glad I found some videos on U-tube that help.
I’m 2 years into my stroke. Elyse is my go to when I’m in need exercise or advice. I now understand my recovery is baby steps not big steps. I had a hard time excepting my slow progress. But I’ve gone from the bed for 3 months use of sarasteady to standing balancing and short time use of a cane in 2 years. That’s using my wonderful husband to assist in therapy pool, gym, home with Elyse. I’m motivated and still have to work on arm hand spasticity. Thank you Elyse for all of your workout videos and post stroke explanations.
@BrendaLaBelle-hn6em I'm so glad that you've found my videos helpful! Thank you so much for your kind words 😊 I'm glad you're a part of the community here!
I'm 12 years post 4 strokes. Work therapy like it's your job. Repeat the exercises twice between sessions. You reinforce the skills and you're able to build off those. E-stim is beneficial for those who have access to it.
This is good advice. I feel like the AVM rupture robbed me of my way of life. I lost my job, my benefits, my car, etc. I will keep trying to work through it. but it's exhausting for sure.
My father is able to walk very nicely He has loss his almost 7kgs weight He understands and remember everything He is able to do all his routine work by himself only He is not dependent on anyone He had an ayurvedic treatment in india in KLE hospital Karnataka He knows every word And now going through the speech therapy
Thank you for your advice you right , now day I’m very lazy to go back phisical therapy i really lose hope and make me feel lazy , and lose my hope to recovery I had stroke almost 6 years ago my left side is affected I don’t see. Not much difference Ay home I try a bit to do some excercises, bike , stretch my arm because my lef side is affected 😢 But I watched this video I will try to go back therapy 😢 thank you to help us to encourage us God bless you
I am 3 years and 7 months out from my stroke.I had mine on the left side,arm and leg.Also have drop foot and have brace and use a cane.After my stroke stay in the hospital for 5 days,went across the street to the rehabilitation/ hospital for 3 weeks and then 3 other out patient rehabilitations and I can walk but knee does not want to bend just a little.I bought a glove from saebo the blue one and have a split for my hand.I have spasticity.I started working out for 7 days a week for 3 months,was told to much,then 6 days a week 2 times a day.Was told that is still to much by the therapists again and they said ok to work out 5 days a week,which I have done for 3 plus years.My stay in rehabilitation was for 2 years and go back once a year for tune ups which my therapist call it for a month for PT and ot.I do a total of 30 different exercises for PT and it at home I was given.I just got completely past burned out working out and besides stretching I do every day,I took off 5 months because my body it seems has peaked and I just gotten sad that my body just has slowed down.I am trying to get motivated to start again.Had my stroke at 57 I am male white and just turned 61 Wed.Al little FYi,I heard about this drug called MPH 220 for spasticity,they started clinical trails in 2021 phase 1 and had phase 2 I believe in 2022.I looked it up again yesterday and there is no update on phase 3,from what I understand,the FDA needs 3 clinical trails and had positive results in all 3 to be considered to be approved for distribution to the public and insurance to cover them.They said you take 1 pill a day to heal spasticity.There is also an episode on 60 minutes about a shot that is given in the back of your neck bottom of head.Intercept shot that cures some stroke patients completely.They interviewed 2 stroke patients one it healed completely and the other helped.They have had about 700 to 800 patients get the shot.It cost 6K out of pocket,has not been FDA approved yet.You can look it up online on tube,is on Facebook.The doctors office is in Boco Raton, Florida.
Six months in, looking forward is tedious and taxing, looking behind my stroke was a joke. The only thing that kinda freaked me out was reading survivors has one percent survival making it twenty years. Then I did the math and in the US that's 330, 000. I'll take those odds. Only tip fight off all the bad habits that you had before the stroke after some time has past. Save your strength for recovery. 😊
I have very unique experience: I have few tulpas(thoutghtforms) and last year I asked them to move through wonderland (mindspace) like normal human being, as a result now I can walk around home without any support.( Extreme level of mental practice)
I was meant to have a 6-8week after leaving hospital in October 25 2023 and I just had Mondays appointment cancelled and was meant to be seen 11th of march and that was cancelled yesterday 😂😂😂 Thanks British NHS 😅 xx
I'm a relatively new subscriber to your feed but this has to be one of the most relevant and concise postings I've seen on ANY SUBJECT least of all on strokes be they ischemic or hemorrhagic, such as the one I had to the Basal Ganglia and Thalamus. Well Done Elsie give yourself a pat on the back.
You are a wonderful girl, I've learnt so much in the year I've been watching you, you are very good at your job, which i think you have because you are naturally empathetic. Keep up the good work.Thank you from New Zealand.
Sister, Excellent Analysis of Post STROKE Patients Rehabilitation both Mentally, physiotherapy and Real Caretaking only. Bring back Normacy QUICKLY. Unfortunate Person myself, Reason highly Educated Professor Adamant Mentality.
I am from India. Thanks a lot for your great videos which are very useful for me as my wife is a ishemic stroke patient for the last one year. Your videos instill confidence and hope in this traumatic situation. God bless you.
@dinakaransureshkumar1395 So glad to have you here! I'm so sorry to hear about your wife. I hope both of you are doing well through this time ❤️ Make sure to take time for yourself if you can. Caregiving is a very hard job.
Faith, hope, and belief in God led me to A full recover from a stroke in one year. Praise God! Now I talk to stroke patients. I give them hope. If I don’t tell you I had a stroke, you will never know. ❤
Hi I'm here again my brother has hemorrhage brain bleed on the left oct 19,2023side he was paralized right size, two weeks ago he started to move his legs and now lifting up
❤❤❤❤ i learn a lot from your videos and share it stroke survivors in best of my capacity being q stroke awarness advocate. Want to build a community where every stroke gets best advise which will keep them motivated during the journey.
I just recently found this TH-cam channel and have watched a couple of videos. I had a small stroke almost two years ago at the age of 33. My recovery was good as I was able to be on short term disability for four months off of work. The biggest challenges that I'm experiencing are fatigue, anxiety and depression. I'm wondering if this anxiety and depression has been triggered more due to being forced to move out of the rental property and losing my job a year and a half after my stroke. I also have a young family with a wife and three children. In some ways it feels that my stroke journey is a bit unique as the doctors found white spots on my brain from my MRI. My stroke doctor couldn't explain what those white spots were. So he referred me to the MS specialist. At the MS specialist appointment, they did a few tests to see if I had any symptoms of MS which I didn't have any at that appointment. So the MS specialist said we would monitor the white spots with another MRI. I had another MS specialist appointment earlier this year to discuss the MRI results which indicate that the white spots are still there but haven't increased in number or size. I've been wondering as to why did I have a stroke in the first place as I hardly drink and smoke and don't have high cholesterol. The MS specialist was awesome as now I will be doing more testing in the next few months and hopefully have some answers. Also, I find it hard to talk to others about my stroke journey who haven't experienced a stroke. Any advice would be great
It sounds like your journey has been complicated. Mental health changes can happen because of the area of the brain that was affected or because of the after effects. Having a stroke is traumatic and can significantly change your life. Have you been able to access counseling or mental health therapy to help you cope?
@@PostStrokeOrg Thank you. I've just started to access therapy for my mental health. Although I was on antidepressants before my stroke. I'm wondering if those antidepressants might have been a factor in causing my stroke. Again any advice or information would be helpful.
I have lost many people along my journey after my stroke, Hialeah Hospital Team was not very friendly and helpful. It seemed I was expected to know what to do.
My loved one is recovering physically, but his memory deficits and speech deficits don’t seem to be improving. How do I help him regain his short-term memory?
I am 10 years now, post stroke. But I am still have difficulty in walking & speaking. I have a canes ( quad & single), & xtern AFO to use. May I know your suggestions to me, ma'm Elyse
one thing OTs will never tell you never ask then to help you put on a jacket! thier policy is the patient needs to learn how not to depend on others, and need to do things themselves
@kittimoore9034 Thank you for your comment. I'm sorry to hear about your recent stroke and vision loss. It depends on the type of vision loss. Some visual field cuts (like homonymous hemianopsia) may or may not get better. I'd recommend reaching out to your neurologist or a neuro eye specialist to get a better understanding of the type of vision loss you have and what they anticipate as far as recovery of your vision ❤️
@markargeldeguzman6360 E-stim may help but always talk with a doctor or therapist to make sure that it's right for you. And it shouldn't be the only thing you're doing to improve movement!
@RubysKitchen-ie6bo I read your other comments. I would recommend reaching out to your father's doctor if he is having any type of health change, like low blood pressure!
strokes are all very different, and it is hard to remember that sometimes! Advocate for yourself, as much as you can, because nobody else can do that but you.
100%! ❤️
Thank u its really helpfull
100° I'm almost 3 years since surviving a stroke. I'm crying watching this. You are so right!!!! ❤ Thank you for ALL your videos.
@gracetelfer3588 You are so welcome ❤️ I'm so glad this came at the right time. I hope you're well!
Always believe in yourself and do not ever give up working on your recovery there is so much good advice on the videos that she posts
❤️❤️
I am a nurse who've had Six Strokes Total Since 2017 And I am still recovering today. I have not been allowed to go back to work because It has taken me so long to reach this point But at least I can speak Without a slur And I crochet And knit To keep my affected side Active.
I'm glad you’re still able to do some of the things you enjoy! It’s so important for mental health ❤️
The hard part Is giving up being a nurse Because I enjoyed Working with patients on a daily basis I took a shower
Don't give up, it's hard, you have to keep moving and people don't help sometimes, because they don't understand fully, the recovery process.
@@debdellutri6699 I was a nurse assistant before I got stroke 6 years ago, I loved my job i worked at a nursing home giving care seniors but.. life!! I’m not diabetic, ño high blood pressure , … life surprised me 🥺j at this point I jus tried to get it and live life with this
It was hard I’m
Much better because meditation for depression 🥹😬
Balancing on one leg (any leg) is the simplest way to invoke, or switch on, neuro-plasticity. When the brain senses that we are at "risk" it counters that risk by switching on the ability to learn quickly. It is a survival trait. Balancing is an essential skill which we need to survive, so, balancing (and wobbling) on one leg will do it every time. The more we "wobble" the more we learn. If we don't wobble and go out of our comfort zone we don't learn anything, apart from learning not to use our affected limb/s. Failure is good because it tells the brain yet another way that things don't succeed.
@user-eh9li5tx7h Experiencing some level of "failure", in this case the wobble, is good! The only thing I'd say is make sure that if you are pushing yourself to this point, make sure to have someone else with you or are set up in an environment that you can safely do this on your own. Safety first! ❤️
3 years into my stroke and no help from hospital services with regards to rehab in my country i've only just in the last couple days started rotating my affected wrist without any pain! Ive learnt alot and gotten tremendous help from Elyse and everything she has been doing for us. Spasticity is the biggest thing for me atm but I'm pushing on❤❤
What?! Are you serious? That’s a huge win! I’m so excited that you’re not having pain in your wrist ❤️ always love hearing from you. Thank you for always being so willing to share your experiences 😊
My stroke was more than 3 years ago and I'm still seeing progress every week. I keep on pushing! NEVER GIVE UP!
Words of wisdom from a stroke survivor, never give up, and take one day at a time. Also, have patience for your care-giver. Unless they have actually had a stoke they can never understand what it is like to be paralyzed on one side of the body. Nothing can compare, and good luck!
Thank you for sharing your advice! ❤️
Coŕect one at a time
I am Tabitha from Kenya i had an attack that made my left side paralysis ... it's not easy to deal with this monster of stroke but I am doing well actually I am working at my salon and I do walk without my cane ..... I would like to be a caregiver in future for stroke patients 😊
Why are some volks miserable and usually negative the facts are myself was at home reading the long newsday paper listing of events going on Friday afternoon my mother was behind me seeing that I saw singles square to be after after our evening meal the my dad oposite me open his big mouth babbling negative that I true past times had gone to places without a dance partner came home no senorita amigo how I was a sloppy dresser wearer of both sex fashions he meant all negative senoritas want seniors with mucho dinero or elsewise not my dirty business cleaner nicer automobiles so we eat supper mom cleans dishes I start going to front door hearing his hers mouths begging me to stay home nothing will happen or donot come home miserable and tell me dad it was well you cannot or meet anyone at home usually four walls life is taking chances after I parked my automobile go inside the dance caller was almost ready to start some others were doing drinks snacks refreshments 1st time there I calmly walk around seeing whoever I heard dance caller if you are all ready let’s get the evening going with a big circle boy girl the usual then we make squares 4 couples side head it was done only one senorita myself had no one so I asked her to dance with me the caller was mucho clear after a few dances two more then break time me quiet she said I am enjoying myself you are my parter for the whole evening we did not have name tags on so when it was ending she said told adios went home senorita surprise first time some mucho nice senorita was a real person nicer to me when I got home I went to bed not sex loco dinky Dow just thinking try again so two times there again was it anyhow she came to me for a date with others there invite to her home afternoon bar b que Sunday let me say as back then take things nice and easy not the usual senoritas gold diggers want seniors dinero while they are after sex rushing things it all first November 1989 after a while we all did things girls boys mucho senorita bar b ques Xmas party myself saint nicolous Santa Henry left her New York State I used my past experience slow easy mail and could say mucho more only at work one day one fellow there asked me next dance so I sent her quick mail note and now 34 plus years we are still amigos even with problems distance living apart senorita only driver myself us army veterans benefits health medical small stroke because life is never predictable always when where who ever you meet now one thing I do say know well of the mucho you try try harder in a rush we’ll just go easy does why is it called rush hour when no one really rushes we are not your usual couple lovers senorita cougar senior cub December 14 1943 or may 9 1946 no I am not taller senorita is besides close too two years five months older best for us both is that we both respect all of everyone world wide gods creations race skin eyes truth is I am pink not white employment jobs walks status in our lives me mr cub is an inviromentalist self employed we two are not your usual diners out yes we dine at nice places nothing extra fancy we never well wine use drugs how mucho would date a senior who dresses in mixed sex fashions most girls want him to have nice fancy automobiles $$$$$$$$$$$$$$dinero best looks yes no personality counts mucho how we do each other no way ever is everyone perfect mucho marry for wrong reasons do things in a hurry donot think first haste makes waste how sad our world society has become basically one way for girls boys seen in past comments it hurts us all in different ways that volks mucho often are not dealing with the real world and society dreamers not down on earth in reality cam on ong and enjoy yourselves in todays remains remember we are all somewhat the same different some things we have no control over others well just learn to live with the good bad ugly win lose or draw and donot give up
I've had a serious mental health decline since 2022. The worst part of this is that everyone that at one point cared for me watched it happen in real time and did absolutely nothing to help me.
I continue to advocate for myself as I am on my own here. The health care system still doesn't prioritize any of us dealing with neurofatigue and are post-stroke, so even battling to get refills can be a challenge.
At the end of the day, I am grateful to be alive every single day, despite the loneliness and the daily challenges. I truly believe that if we survived these life changing strokes, We have a reason and purpose to be alive today. Thank you for this reminder. We all truly need it.
@DJAUDIO1 Alex, the world absolutely needs you. You bring so much joy through your work. Unfortunately, you are right that the U.S. healthcare system does not prioritize continued recovery. As you well know, it's often a few weeks of therapy (if that) and then good luck to try and figure the rest out on your own. Thankful for the community of survivors and professionals who build each other up ❤️
Never give up. Love yourself. Try to stay positive. 2 years into my stroke recovery. It’s a difficult journey for us all. Stay positive ❤Brenda
@@BrendaLaBelle-hn6em Thank you. One day at a time.
Best advice I was given: Never ever give up.
Advocate for more...neuroplasticity, not lazy...thank you for explaining...my husband is having a stroke but this information helps me to understand how I can help him.
@dianeescarenozamora7088 Of course! I hope both you and your husband are doing well. Caregiving is a hard job. I hope you're able to take a bit of time for yourself, too ❤️
Stroke survivor, never give up, and take one day at a time!
THANK YOU FOR THAT!!!
I SAY THAT TO MYSELF EVERYDAY IN MY PRAYERS !
Another fantastic video. I wish I’d been able to see this when I had my stroke three years ago. One of the best pieces of advice I’ve gotten is in one of your videos. You said that we’re looking for better. I started back to OT yesterday and they asked me what my goals were and I said improvement. I don’t want to set unrealistic goals for what may or may not happen. I want to see any improvement and be grateful for that. Today is my three year a Strokeaversary!! Some people don’t like to talk about their stroke, but I talk about it, and celebrate it. I have been healed as much mentally as I’ve been healed physically and I am so grateful to God for that. Your play a really big role in my recovery, and I thank you.
I agree with you 💯. All her videos and exercises are getting me through my stoke recovery!
@heatherguill9614 Heather!! Happy 3-year Strokeaversary!! Thank you so much for always sharing your experience and perspective. You have an amazing attitude that I hope to emulate. I'm so glad that my videos have been helpful to you, but you've put in all the work! I'm so proud of you. So glad that you are a part of this community. Thank you so much ❤️
@sharonschnieder5923 I'm so glad that you've found them helpful!! I hope you are doing well ❤️
I had a small stroke January 2014 was in hospital three and one half days now since two February 2014 in a nursing home not doing mucho it is my bad left side I am a u s army veteran when I had sepsis urinary infection it was very bad diaherra down my pants legs had maybe four times in court urinating in public by by my car all the doctor would do for me were notes for me in court well he knew I was mucho sick telling me what should he do for me well after six years or so it was so bad I had to go to it was fort Hamilton army hospital first time I had four tubes in me while on my back to pump my organs dry then next Friday was to operate on prostate now seen on I pad videos excercise for strokes it is bad left side raising. Lowering using my left hand walking I can alone no just myself if right hand using hemi aid I walk well the volks at nursing home donot do mucho for me I have been told to see orthopedics I had X-rays on bad hand a whole fifty minutes left side mri no one will operate tells me make it mucho worse then was told need operationor no good been told somewhat more who to believe or otherwise donot ask me I see on repeat tv I pad videos what to do or try or else what would anyone do recommend I only know from my past health medical hospital times something’s I donot believe something nicer can not be done someone my younger senorita amigo an rn nurse doesnot like this she was phsyco nurse my older senorita amigo hospital worker medical laboratory examiner of skin microbiology is worried about me I use toilet ok but urin all coming out not 100x sure my mouth very few teeth left mouth feels well dressing problems yes no showers yes help some can not put on socks use shoe laces clothes with buttons no good on my back always in ten plus years not on my front back up at all now to say am I getting my whole self examined properly first here then from there I have splint for left elbow to finger tops nails or some say at nursing home what do I want better nicer than this on reading newspapers I pad use seeing things what to do no one will try even who will would suggest ideas thank you
I am so glad I found you, I have just recently found out I've had a mild stroke and am feeling very anxious and scared for my future. This comforted me a little to find your chanel thank you
@stevieleannemcglynn8350 I'm so sorry to hear about your recent stroke. It's 100% normal to feel anxious and scared after a life-threatening event like a stroke! I actually have a video that comes out next Friday about how to cope with the fear and anxiety around having a second stroke that you may find helpful.
I'd highly recommend you reach out to a stroke support group. There's no one who better understands what you're feeling than other survivors ❤️
"KEEP PUSHING"
@tiffanywest2311 ❤️❤️❤️
I had an ischemic stroke on February 17, 2022, at 45 years old. I suffered left-side weakness in my arm, hand, and leg. After continuous physical therapy, I improved from a walker to walking and riding a bike again. I can do most tasks that I did before my stroke, but I may need more time to rest because neural fatigue will slow me down. I was also able to return to work in a different role. My job did great by accommodating me. This video covers great advice that I have reminded myself of often. A few points that have helped me along the road to recovery is that stroke recovery really takes time. I am upbeat and motivated one week, and the next week could be my darkest days because I may have regressed in some areas of my recovery. I regained my motivation by reminding myself where I was on day one after my stroke and the tremendous improvement I have made. Therefore, remove unrealistic expectations and give yourself all the time you need to improve. After two years, I have continued to improve in many ways that may be unnoticeable to most people but obvious to me. I like her last point. Advocate for yourself. Never give up expressing to your doctor and/or therapist what your needs are.
Best part is i every stroke surviver can relate with this , great advice ❤
I'm on year 39. Still struggle but good days are sprinkled in with the bad. No use of my left hand. Aging has an impact on improvement. Therapy is primary. Best of luck to all ❤
I am a stroke survivor of 4 plus years and what you say is true, more people need to hear this to give them hope and continue on with their rehabilitation.
Thank you for this. A bit over a year out from my hemorrhagic stroke (right side affected). Good to know that I'm not alone in the struggle.
@cg167 So welcome! I hope you are doing well ❤️
Same here!! Hope you doing fine!! I am also trying..
Thank you for the advice. I’m six weeks out from my stroke and I’m trying to navigate recovery. I was referred to physical therapy but I suffer from agoraphobia (even before the stroke) so I haven’t been able to go to PT. My physical therapist gave me exercises to do at home. All things considered I think I am doing well in my recovery. Thank you for reminding me that every person is different and my recovery might not look like someone else’s
Agoraphobia is so tough to deal with. I was diagnosed with panic disorder in 2012 and dealt with agoraphobia for around 2 years before it started to get better. I’m so glad that your PT had exercises for you to work on at home. Do you have anywhere around you that offers teletherapy, that way you wouldn’t have to leave your house but you could still get therapy? ❤️
I’m reading your message now you are loved and Never Give Up and Believe. Count your blessings and take one step at a time. I had a stroke Nov 2023 and it’s not easy but I walk by Faith and making changes in my lifestyle as a whole. Trust and ask God to help you get through this.
@@PostStrokeOrg I’ll have to look into that. I’m doing speech therapy by Tele health
I had ischaemic stroke 24th july 2023, and I am 36 years old. god bless everyone ❤❤
I want to Thank You for your videos. They have helped me to better understand what happened to me during my stroke and the process of getting better. It’s been almost a year now and my recovery has slowed a bit. I am 75 and have returned to a normal daily life. Walking, driving, cooking etc. You have been a real inspiration in this journey. Thank You!
@frankspina6004 You are so welcome! I'm glad you've found them helpful. It's good to hear that you have been able to return to the things you were doing pre stroke! Thank you so much for sharing ❤️
After having 2 strokes on December 12 of last year, I'll make a full recovery without any injuries.. I learned a lot from this situation. Several of the people that I work with called to check on me, nothing at home but, it's my fault, being lazy, etc. to my job that seems to not want me around anymore either even though I've been released by the neurosurgeon in all doctors March 3rd this year. This is a horrible way to treat someone who wants to talk or be around others. My support group is my 3 dogs at home and friends at work. Go figure... One thing as a side note, my mind works well and I remember how and what those that around me treated me as.
Fantastic video, you said it all ❤. My rehab hospital had the motto, "Think Possible", they never presented any absolute or definitive limitations to my recovery so I never felt bound or stifled. I think that mindset helped me to achieve a high level of return
That is such a healthy mindset! I’m glad you were in a place that had that attitude! I always appreciate you sharing your experience ❤️
This is 100% facts this lady tells it exactly how it is❤
@mrtubefishing Thank you so much for the kind words! ❤️
Thank you (for possibly reinforcing that which I've prob already been told but still can't remember 3 mos out). I'm going to go hop on my bike - have a great day ❤
@02271953me All right! I hope you have a good time on the bike. Have a great day, too ❤️
Having no spasticity til 1 ur later taught me to be a better advocate for myself as I had not learned about this in rehab
It can be hard to advocate for yourself, but it can make a world of difference in the care that you get ❤️❤️
Thank you. You just gave me hope. I have been fearing the timeline, so this really helps to know.
I'm another stroke surviver, hade some therapy, my insurance denied a lot of claims. It's been almost 3 years and still need therapy. Glad I found some videos on U-tube that help.
@wonkyganu72 I'm so sorry to hear about your therapy denials. It's one of the reasons I started this channel.
I had a stroke 5 months ago. Really love the work you do!
Thanks for all the info, and above all, for all the comfort you bring!
Love you much!
❤️❤️
I’m 2 years into my stroke. Elyse is my go to when I’m in need exercise or advice. I now understand my recovery is baby steps not big steps. I had a hard time excepting my slow progress. But I’ve gone from the bed for 3 months use of sarasteady to standing balancing and short time use of a cane in 2 years. That’s using my wonderful husband to assist in therapy pool, gym, home with Elyse. I’m motivated and still have to work on arm hand spasticity. Thank you Elyse for all of your workout videos and post stroke explanations.
@BrendaLaBelle-hn6em I'm so glad that you've found my videos helpful! Thank you so much for your kind words 😊 I'm glad you're a part of the community here!
Advocate for yourself. Thanks for sharing
@pharmclare Of course! ❤️
I'm 12 years post 4 strokes. Work therapy like it's your job. Repeat the exercises twice between sessions. You reinforce the skills and you're able to build off those. E-stim is beneficial for those who have access to it.
Thank you so much for sharing your advice! ❤️
You are an angel ❤ for stroke survival ... please continue to educate people like it ....thank you so much❤
This is good advice. I feel like the AVM rupture robbed me of my way of life. I lost my job, my benefits, my car, etc. I will keep trying to work through it. but it's exhausting for sure.
This is an excellent video! Every stroke survivor should have the opportunity to hear this information! Thank you, so much, Elyse! ❣️
Nice video. Supporting my fiance, had stroke 2 yrs ago. Working on dietary strategies to tackle neuro fatigue
This one is incredible! Thank you for this and understanding how survivors feel!
@epicorcas Thank you so much for the kind words ❤️
This was extremely excellent in! Thank you!!!😊
Thank you for the kind words!! ❤️😊
My father is able to walk very nicely
He has loss his almost 7kgs
weight
He understands and remember everything
He is able to do all his routine work by himself only
He is not dependent on anyone
He had an ayurvedic treatment in india in KLE hospital Karnataka
He knows every word
And now going through the speech therapy
Thank you for your advice you right , now day I’m very lazy to go back phisical therapy i really lose hope and make me feel lazy , and lose my hope to recovery
I had stroke almost 6 years ago my left side is affected
I don’t see. Not much difference
Ay home I try a bit to do some excercises, bike , stretch my arm because my lef side is affected 😢
But I watched this video I will try to go back therapy 😢 thank you to help us to encourage us God bless you
Let me know how your continued therapy goes!!
I am 3 years and 7 months out from my stroke.I had mine on the left side,arm and leg.Also have drop foot and have brace and use a cane.After my stroke stay in the hospital for 5 days,went across the street to the rehabilitation/ hospital for 3 weeks and then 3 other out patient rehabilitations and I can walk but knee does not want to bend just a little.I bought a glove from saebo the blue one and have a split for my hand.I have spasticity.I started working out for 7 days a week for 3 months,was told to much,then 6 days a week 2 times a day.Was told that is still to much by the therapists again and they said ok to work out 5 days a week,which I have done for 3 plus years.My stay in rehabilitation was for 2 years and go back once a year for tune ups which my therapist call it for a month for PT and ot.I do a total of 30 different exercises for PT and it at home I was given.I just got completely past burned out working out and besides stretching I do every day,I took off 5 months because my body it seems has peaked and I just gotten sad that my body just has slowed down.I am trying to get motivated to start again.Had my stroke at 57 I am male white and just turned 61 Wed.Al little FYi,I heard about this drug called MPH 220 for spasticity,they started clinical trails in 2021 phase 1 and had phase 2 I believe in 2022.I looked it up again yesterday and there is no update on phase 3,from what I understand,the FDA needs 3 clinical trails and had positive results in all 3 to be considered to be approved for distribution to the public and insurance to cover them.They said you take 1 pill a day to heal spasticity.There is also an episode on 60 minutes about a shot that is given in the back of your neck bottom of head.Intercept shot that cures some stroke patients completely.They interviewed 2 stroke patients one it healed completely and the other helped.They have had about 700 to 800 patients get the shot.It cost 6K out of pocket,has not been FDA approved yet.You can look it up online on tube,is on Facebook.The doctors office is in Boco Raton, Florida.
Thank you for sharing. It's always good to check with your doctor to make sure that a treatment is right for you!
Thank you for sharing this 😊
Six months in, looking forward is tedious and taxing, looking behind my stroke was a joke. The only thing that kinda freaked me out was reading survivors has one percent survival making it twenty years. Then I did the math and in the US that's 330, 000. I'll take those odds. Only tip fight off all the bad habits that you had before the stroke after some time has past. Save your strength for recovery. 😊
I have very unique experience: I have few tulpas(thoutghtforms) and last year I asked them to move through wonderland (mindspace) like normal human being, as a result now I can walk around home without any support.( Extreme level of mental practice)
I was meant to have a 6-8week after leaving hospital in October 25 2023 and I just had Mondays appointment cancelled and was meant to be seen 11th of march and that was cancelled yesterday 😂😂😂 Thanks British NHS 😅 xx
@foxxybrown291 Ugh, I'm so sorry to hear this. How have you been since your hospitalization? ❤️🩹
I'm a relatively new subscriber to your feed but this has to be one of the most relevant and concise postings I've seen on ANY SUBJECT least of all on strokes be they ischemic or hemorrhagic, such as the one I had to the Basal Ganglia and Thalamus. Well Done Elsie give yourself a pat on the back.
Thank you so much for the kind words! ❤️
THANKS THIS IS GRRREEEAAATTTT INFO!!!!!!
@octoberopal8419 Of course! Thank you ❤️
You are a wonderful girl, I've learnt so much in the year I've been watching you, you are very good at your job, which i think you have because you are naturally empathetic. Keep up the good work.Thank you from New Zealand.
Thanks so much for the kind words❤️❤️
Sister, Excellent Analysis of Post STROKE Patients Rehabilitation both Mentally, physiotherapy and Real Caretaking only. Bring back Normacy QUICKLY. Unfortunate Person myself, Reason highly Educated Professor Adamant Mentality.
Thank you angel lady
@yaronkl So welcome ❤️
Thank you so much
Of course❤️❤️
stroke in june of '23. thank you.
Im also stroke last yr june 26, 2023
Hows your recovery maam.
@Hazel_Fox22 ❤️ I hope you're doing well!
Thank you for this ❤❤❤❤
@kerickwalters2749 So welcome! ❤️❤️
I am from India. Thanks a lot for your great videos which are very useful for me as my wife is a ishemic stroke patient for the last one year. Your videos instill confidence and hope in this traumatic situation. God bless you.
@dinakaransureshkumar1395 So glad to have you here! I'm so sorry to hear about your wife. I hope both of you are doing well through this time ❤️ Make sure to take time for yourself if you can. Caregiving is a very hard job.
Faith, hope, and belief in God led me to A full recover from a stroke in one year. Praise God! Now I talk to stroke patients. I give them hope. If I don’t tell you I had a stroke, you will never know. ❤
Did you take tpa?
Thank you❤️❤️for your words
Thank you
❤️❤️
Thank you Ms. Elyse
@Leo24_MyStrokeVlog So welcome! ❤️
Hi I'm here again my brother has hemorrhage brain bleed on the left oct 19,2023side he was paralized right size, two weeks ago he started to move his legs and now lifting up
Irhis video helps me to understand more My situación ,two years ago i had a Main stroke My Lefthand hand still weak o take psicoterapia twice a week.
I retired my wheelchair for good almost 8 years post. But I do rehab average 5 hours a day, 7 days a week.
Great video, thanks! ❤️
Thanks for the great video. Hope and Patience. ❤
@anthemengagement4797 So welcome! ❤️
❤❤❤❤ i learn a lot from your videos and share it stroke survivors in best of my capacity being q stroke awarness advocate. Want to build a community where every stroke gets best advise which will keep them motivated during the journey.
❤️❤️
Thanks!
Thank you SO much for your contribution to Post Stroke ❤️❤️
I’m loosing my mind over my ragging episodes. I’m three years post stroke of the brain stem. I don’t know where the rage comes from. It’s scary.
I just recently found this TH-cam channel and have watched a couple of videos. I had a small stroke almost two years ago at the age of 33. My recovery was good as I was able to be on short term disability for four months off of work. The biggest challenges that I'm experiencing are fatigue, anxiety and depression. I'm wondering if this anxiety and depression has been triggered more due to being forced to move out of the rental property and losing my job a year and a half after my stroke. I also have a young family with a wife and three children. In some ways it feels that my stroke journey is a bit unique as the doctors found white spots on my brain from my MRI. My stroke doctor couldn't explain what those white spots were. So he referred me to the MS specialist. At the MS specialist appointment, they did a few tests to see if I had any symptoms of MS which I didn't have any at that appointment. So the MS specialist said we would monitor the white spots with another MRI. I had another MS specialist appointment earlier this year to discuss the MRI results which indicate that the white spots are still there but haven't increased in number or size. I've been wondering as to why did I have a stroke in the first place as I hardly drink and smoke and don't have high cholesterol. The MS specialist was awesome as now I will be doing more testing in the next few months and hopefully have some answers. Also, I find it hard to talk to others about my stroke journey who haven't experienced a stroke. Any advice would be great
It sounds like your journey has been complicated. Mental health changes can happen because of the area of the brain that was affected or because of the after effects. Having a stroke is traumatic and can significantly change your life. Have you been able to access counseling or mental health therapy to help you cope?
@@PostStrokeOrg Thank you. I've just started to access therapy for my mental health. Although I was on antidepressants before my stroke. I'm wondering if those antidepressants might have been a factor in causing my stroke. Again any advice or information would be helpful.
❤,thanks a lot
@bhavaniganesh7555 So welcome! ❤️
Best advice//; never give uo
Thanks
Thank you SO much for supporting Post Stroke!! ☺️
I have lost many people along my journey after my stroke, Hialeah Hospital Team was not very friendly and helpful. It seemed I was expected to know what to do.
❤👍 Thanks you
❤️❤️
My loved one is recovering physically, but his memory deficits and speech deficits don’t seem to be improving. How do I help him regain his short-term memory?
I am 10 years now, post stroke. But I am still have difficulty in walking & speaking. I have a canes ( quad & single), & xtern AFO to use. May I know your suggestions to me, ma'm Elyse
Taking my time to get better with my independane
❤️
❤❤❤❤❤
one thing OTs will never tell you never ask then to help you put on a jacket! thier policy is the patient needs to learn how not to depend on others, and need to do things themselves
How many years does it take to be healed after stroke?
My father is having low bp now from 3 days
Occipital brain i lost 60 percent of vision. Its 4 months ..will it gradually return?
@kittimoore9034 Thank you for your comment. I'm sorry to hear about your recent stroke and vision loss. It depends on the type of vision loss. Some visual field cuts (like homonymous hemianopsia) may or may not get better. I'd recommend reaching out to your neurologist or a neuro eye specialist to get a better understanding of the type of vision loss you have and what they anticipate as far as recovery of your vision ❤️
❤
@purpose8141 ❤️
using e-stim can regain arm and leg mobility?
@markargeldeguzman6360 E-stim may help but always talk with a doctor or therapist to make sure that it's right for you. And it shouldn't be the only thing you're doing to improve movement!
Mam please help me
@RubysKitchen-ie6bo I read your other comments. I would recommend reaching out to your father's doctor if he is having any type of health change, like low blood pressure!
Love your channel. Would love to have you on my podcast. Let me know if interested. It's called A Stroke of Good Misfortunes.
@MZacharyTX Thank you so much for the kind words! Please email me at elyse@post-stroke.org Would love to learn more about what you do!
Thank you for everything you do!!
@Hoytbuff Of course! ❤️
I’m so grateful for your channel 🩷 thank you so much.
Thank you for the kind words ❤️
Thanks!
Thank you SO much for your contribution to Post Stroke!! ❤️
❤
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