My baby boy is suffering from infantile spasms as well. He's 2 and isn't evening crawling yet. Right now he's eating mainly formulas because he can barely eat. Thanks for the video. It gives me a glimmer of hope.
@@jennyferparedes1404 really? I'm sorry you have to go through with this. My son is almost 3 years old, and he's still battling with seizures. The ketogenic diet didn't help him unfortunately. He's doing well other than his seizures. He's just itch crawling, trying to pull himself up, and he says "Mama".
@@saradorris3554 I would like to contact you more privately but I don't know how. We tried special therapy called Vojta therapy and it was very helpful. You can research a bit and see if it is something for your son or not and if you have any questions please feel free to contact me. We can help each other. My boy is still in his way to crawl but he is not yet able to sit by himself from lying position. He is 2 years old.
I'm glad the doctor was on board about the nutritional as aspect. I feel modern medicine works be so much more powerful if it were balanced. Most doctors just dismiss the fact healing can take place thru diet, herbs or anything besides synthetic medication. I'm so glad Santi is doing better and that your shared this story.
Don't get me started on the keto diet. that shit almost killed me.. If you want to lose fat, get the Agoge diet in my honest opinion, it worked great for me
Guys I have see in my country when someone has Epilepsy they give his iron like some kind of unharmable metal pcs your door KEY or raw iron pcs etc anyone heard about it ? Once I saw it by myself with my eyes few min later patient was back to normal condition if you every hear about kindly reply Thank you
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
It is not possible to follow the keto diet long term and stay healthy. I tried it, and it was awful. I recommend the Agoge diet though, because it's diverse and will help you get rid of fat without starving yourself.
Dont listen to these people keto is an excellent choice for a lot of different health concerns including mental health, "Agoge diet" is just some website they're paying comments and likes for
Guys I have see in my country when someone has Epilepsy they give his iron like some kind of unharmable metal pcs your door KEY or raw iron pcs etc anyone heard about it ? Once I saw it by myself with my eyes few min later patient was back to normal condition if you every hear about kindly reply Thank you
LORD GOD JESUS YOU ARE AWESOME! THANK YOU FATHER, SON, HOLY SPIRIT FOR MAKING PROGRESS IN THIS CHILD'S AND FAMILY'S LIFE. LORD YOU NEVER FAIL TO AMAZE! TO YOU FATHER BE THE HONOR AND GLORY IN YOUR SON'S HOLY NAME JESUS CHRIST. WE CONTINUE TO PRAY FOR THIS FAMILY AND MANY OTHERS RIGHT NOW. IN JESUS NAME AMEN. as people God has allowed the body to use natural means to heal itself and this video is proof of how the Lord created a perfect work in us. TO GOD BE THE GLORY AMEN!
I use for my son cocnut oil, mct oil. Sometimes extra virgin olive oil. No other oils are good. Eat leafy greens, fatty fish like salmon and ling cod. Cold water fish is fatty. Avacodo, cream, butter. Use zucchini instead of pasta, Shell fish, fatty meat like duck, goose, lamb. Sugar and carbs are not good for ppl with seizures. Sardines have lots of omega 3. Need this. Watch Dr Eric Burg on you tube to explain keto lifestyle and what properties the food has and how it helps. All the best.
Everything has lots of carbs amd sugar in the american diet. Do away with sugars and high amounts of carbs. Especially for babies!! I too am an Epileptic and have been getting my life back through the carnivore diet! God bless!!
My son has drop attacks, and he glazes off to the side. No face interaction. He is 19month old. Not talking. We will start his keto diet soon. I just want to know how your son is doing now? God bless you and him!
Will this be applicable for kernicterus as well? Please do answer me.my son is suffering from kernicterus he is now 6 months old . Only God knows my pain.
Hi, my son was cured from sickle cell with the help of a great doctor who helped me cured my son with his effective herbal medicine which I ordered. He can also help you if you are interested.
Ma'am, kernicterus is a totally different thing, it's caused by accumulation of a substance (results from the breaking down of red blood cells) in the brain and has to be treated by phototherapy which makes this substance easy to be excreted by the kidney into the urine... These are two different entities. And if it happens at this age (6 months after delivery) then it's something that needs a treatment of the underlying cause and not due to another entity which is caused by a physiological process commonly occuring in newborns. I know that this comment is old and most likely your lovely son is doing just fine (god willing) but just in case someone else with the same thing reads your comment. Go to the doctor... Most of pediatric problems are easily treated if early diagnosed and managed. 🌹
The main reason I started dieting was to get rid of cellulite, however keto made it unbearable... That's why I tried the Agoge diet and it worked great
Hello my son has been diagnosed with epilepsy from he was 3 months old and it has been so hard for me. He's only a year old now and since then he was placed on Depakene and nothing seems to change. He has only gained alot of weight and he still have seizures numerous times of day every day, also he is not able to do anything for himself not even sit up or roll over....I have grown so tired of crying and suffering watching my child go through all this and all because i was mistreated by nurses. I need someone to talk to or some help to talk to someone because i really have no one to turn to and im depressed and sad because i can't get the help i need.... Please someone help!!!!
Hello mam. My son also had his epilepsy @3 months and now he is 10 months. Immediately after diagnosing seizure in him I started treatment for him. Doctor gave him a steroid for one and a haf months along with pyridoxin and levetiracetem. Bt seizures were not arrested. Again I had another situp with doctor and he introduced my baby vigabratin. After consuming that my son became very normal. Now no more seizures. But under medication. Kindly go to the best doctor and start treatment for your son.. Otherwise it will lead to a big consequences
@Dorris Tammy I have diabetes n iv no cure , so I don't know where you got your information.my brother has it aswell.54 years n no cure n iv only had it for 3 years.if there was a cure my brother would have done what ever it takes to do so.please I'm not at all being nasty I'm.just dumb founded to read what you have stated. Have a good day x alanna
My appologies I didn't read all your comment but iv no reason to think both.myself n.my brother can be cured of diabetes n the rest of the world would be much healthier without it but diabetes is just growing n its not slowing down at all.im so happy that your information has helped you, but its just not a common thing.all the very best alanna
Luke Hemps my son also suffering from west syndrome seizures, since we found he was 6 months old, And now soon he gonna be 3 years old, but still he have same think happens maybe 10times in 24 hours, I found that you suggest cbd oil ,, is that cannabis oil ? And I appreciate if you explain me how to use it..
Anjali Das I m from Nepal, but I live in Japan. Anjali jee, we still trying with medicine and also went to the so many hospital’s.. but still. He have seizures, we don’t know what we should do... anyway thank you for your advice
How I wish you'd like to take the chance of using another prescribe medication to cure seizure and some other disease with herbal medication I never believed it at first but finally It helped solve seizure for me and not only me. I can recommend him any day anywhere u can also contact him jimmymantzkyat@gmail I wish for good health to all of us specially to the lil baby's.
Most of these diets are very punishing to the body, some are outright dangerous. For me, only *Agoge diet* showed great results and was easy to adhere to.
@Dorris Tammy not true can’t cure all I have tried all the all natural organic so for my type of epilepsy there is no cure meds lessen the seizures but does not cure it for me for some people Who have different types of seizures or illnesses it may work for but in my case been there done that
I was told the same absolutely devasted news that my child would by 60-90% moderately profoundly mentally retarded when he was 5 mths old. And this was in Minneapolis at Children's Hospital by a very well respected and experienced neurologist. Negative MRI, hypsarrythmia on EEG, he was in the idiopathic or cryptogenic group, meaning no underlying cause was found for Infantile Spams or West's Syndrome as it is known outside the US. NOW THIS IS EXTREMELY IMPORTANT. YOU MUST, MUST, MUST HAVE COURAGE, TIME IS OF THE ESSENCE BECAUSE WITH EACH SEIZURE THERE IS A REGRESSION OF SKILLS. Anybody that would tell you differently is not respecting how devastating this condition can be. This is not a common disorder, so it's not reaearched a whole lot like other forms of epilepsy is, zo getting on top of the seizures is imperative, especially according to what parents see. NO PUSSYFOOTING AROUND. COME OUT SWINGING WITH THE HEAVY ARTILLERY. That means, ACTH or Acthar gel, same thing. INJECTABLE. HAVE COURAGE, to do this. If this seems terrible, I want you to think of all the parents at this very moment thst there is nothing more that can be done, znd your child will die. YOU ARE NOT IN THAT SITUATION!! Take strength in that and have the courage to give that injection and send those seizures directly to hell where they belong. Klonoprin and other sedative like meds are ok for other seizure disorders, but they don't carry the devastating brain destruction that IS does. Vigabratrin or Sabril, same med, can work but it has a horrible side effect, it permanently causes tunnel vision. ACTH causes kids to blow up like a balloon, acne, super irritability, diarrhea, hypertension, rectal yeast overgrowth, elevated glucose, bacterial pneumonia, and it's injected intramuscular in the thigh. BUT HERE'S THE GOOD NEWS, ALL OF THAT IS TEMPORARY. WHEN ACTH is weaned off those side effects disappear. Treatment lasted 4 months total for us. He was having 3-4 episodes per day when started, and after 1st injection of ACTH no more and never resumed. COURAGE PEOPLE!!!! Now why my son has some learning disabilities, HE CAN DRIVE! He has his own car, works at a grocery store and will be starting a community college program in a few months, his IQis 88. Now can you imagine if I has chosen Vigabratrin for him, he would not be able to drive, if I had done Klonopin or Keto diet where seizures were not completely controlled how much more debilitated he may have become? Who knows, but do you want to take that chance. In my opinion ACTH is what should be used initially to treat IS, STOP THOSE SEIZURES IN THEIR TRACKS IMMEDIATELY. AND DON'T LET ANY PHYSICIAN TELL YOU OTHERWISE. It should be used with a diuretic like furosimde, an anti hypertensive like atenolol or vasotec, and antifungal like diflucan, and an antibiotic for pneumonia, you should have a pediactric blood pressure machine at home and also urine test strips for glucose monitoring. Some meds may not have to be given everyday.By default you have now become a warrior, that is what I have learned in the last 19 years. Start occupational therapy, physical therapy, speech therapy right away, DONT LET ANY PHYSICIAN TELL YOU OTHERWISE. My son has been in the school program since age 7 months, first in home, and then added clinic based services, at the same time. He was a fulltime job. My son was discharged from neurology at age 5, because he was basically a missuse of the pediatric neurologist's time, those appts are needed for kids that have real ongoing issues and need meds after all. This highly respected neurologist said, in my 25 years of practice I've never seen a child with IS do this well cognitively and functionally, I got a little loud and defensive. This same MD had told me to not seek interventional services till kindergarten. I did the exact opposite not only for Lucas but for myself. I had to know that I was doing all that I possibly could and if Lucas was to be mentally retarded as predicted, it wouldn't be because I hadn't done everything in my power to decrease the devastating effects of IS. I reminded the MD That my son's progress is first due to ACTH stopping the seizures from the first injection and long term because we didn't let any opportunity pasd him by for improving the outcome. I told him please remember that the next time parents come in and are given the diagnosis of IS and those anguishing statistically prognosis. While my son has been extremely fortunate to be in the cryptogenic group and responded immediately to ACTH, this will not be the outcome fore all children, take faith in doinh all you can to disrupt what IS is predicted to do. Only do other meds and keto when ACTH has failed, do keto in conjunction with ACTH. Don't give Vigabratrin and permanently damage your child's sight uneless it's a court of last resort. GIVING A PILL OR LIQUID ORALLY IS EASIER, I BEG YOU TO DO ACTH FIRST. It's the strongest most effective drug stop seizures hands down.
Hello, I am a medical doctor specialized in special children, if you need please contact me at whatsapp number: +393711582355, so let's talk about your son.
Thank you for setting side your time writing this important information. iam having same issue exactly with my son iam hoping get your email to ask you few things . iam sick getting unhealthy due watching my son daily going true seizures. please help me I appreciate it
Y’all would best just to turn these comments off because it’s just a honey pot for people trying to sell scam diets as cures and they are attracted to these videos to pray on anyone they can.
Every hour he having a bad seizure he will know when he going to what is omg stand for he can not know when if he have to go to the bathroom to poop and pee are taking a shower have a serizuer how old is your son
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
Bless his little heart and all of the other people commenting that their babies are going through this too... My prayers are with all of you...
Almighty God I pray to cure all men , women and children who suffer from seizure's . Please cure them Lord......
Ok
Amen
Amen
My baby boy is suffering from infantile spasms as well. He's 2 and isn't evening crawling yet. Right now he's eating mainly formulas because he can barely eat. Thanks for the video. It gives me a glimmer of hope.
Dear Sara, how is your boy now? I am going through the same.
@@jennyferparedes1404 really? I'm sorry you have to go through with this. My son is almost 3 years old, and he's still battling with seizures. The ketogenic diet didn't help him unfortunately. He's doing well other than his seizures. He's just itch crawling, trying to pull himself up, and he says "Mama".
@@saradorris3554 I would like to contact you more privately but I don't know how. We tried special therapy called Vojta therapy and it was very helpful. You can research a bit and see if it is something for your son or not and if you have any questions please feel free to contact me. We can help each other. My boy is still in his way to crawl but he is not yet able to sit by himself from lying position. He is 2 years old.
That would be nice!
Head drops and staring off dazed look and eye blinking are seizures too glad he doing better with Keto diet
I'm glad the doctor was on board about the nutritional as aspect. I feel modern medicine works be so much more powerful if it were balanced. Most doctors just dismiss the fact healing can take place thru diet, herbs or anything besides synthetic medication. I'm so glad Santi is doing better and that your shared this story.
Don't get me started on the keto diet. that shit almost killed me.. If you want to lose fat, get the Agoge diet in my honest opinion, it worked great for me
great diet plan, just got mine
Guys I have see in my country when someone has Epilepsy they give his iron like some kind of unharmable metal pcs your door KEY or raw iron pcs etc anyone heard about it ? Once I saw it by myself with my eyes few min later patient was back to normal condition if you every hear about kindly reply Thank you
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
It is not possible to follow the keto diet long term and stay healthy. I tried it, and it was awful. I recommend the Agoge diet though, because it's diverse and will help you get rid of fat without starving yourself.
Dont listen to these people keto is an excellent choice for a lot of different health concerns including mental health, "Agoge diet" is just some website they're paying comments and likes for
Guys I have see in my country when someone has Epilepsy they give his iron like some kind of unharmable metal pcs your door KEY or raw iron pcs etc anyone heard about it ? Once I saw it by myself with my eyes few min later patient was back to normal condition if you every hear about kindly reply Thank you
Bless you for sharing your story. God bless your son, I hope he is getting better and better.
LORD GOD JESUS YOU ARE AWESOME! THANK YOU FATHER, SON, HOLY SPIRIT FOR MAKING PROGRESS IN THIS CHILD'S AND FAMILY'S LIFE. LORD YOU NEVER FAIL TO AMAZE! TO YOU FATHER BE THE HONOR AND GLORY IN YOUR SON'S HOLY NAME JESUS CHRIST. WE CONTINUE TO PRAY FOR THIS FAMILY AND MANY OTHERS RIGHT NOW. IN JESUS NAME AMEN.
as people God has allowed the body to use natural means to heal itself and this video is proof of how the Lord created a perfect work in us. TO GOD BE THE GLORY AMEN!
Same same happening with my daoughter..
Mine son have epilepsy since he was 1years 5 month. It was very hard for me to see him each day hv the seizure
God bless this beautiful baby boy ❤
Same problem my son' also facing 😔
Let it go. Rest in peace.
My baby suffering from epilepsy please i wanted treatment. How should I contact to the same doctor
Awwww poor baby and this reminds me of Cameron Boyce ❤️
Same situation with my son, he is 2.6 years old.. please tell me the diet plan for him....
I use for my son cocnut oil, mct oil. Sometimes extra virgin olive oil. No other oils are good. Eat leafy greens, fatty fish like salmon and ling cod. Cold water fish is fatty. Avacodo, cream, butter. Use zucchini instead of pasta, Shell fish, fatty meat like duck, goose, lamb. Sugar and carbs are not good for ppl with seizures. Sardines have lots of omega 3. Need this. Watch Dr Eric Burg on you tube to explain keto lifestyle and what properties the food has and how it helps. All the best.
AMEN to this sweet little boy
Amazing!
Everything has lots of carbs amd sugar in the american diet. Do away with sugars and high amounts of carbs. Especially for babies!! I too am an Epileptic and have been getting my life back through the carnivore diet! God bless!!
My son has drop attacks, and he glazes off to the side. No face interaction. He is 19month old. Not talking. We will start his keto diet soon. I just want to know how your son is doing now? God bless you and him!
Ok?
Sorry
I Bet That's Hard Work
You present the ketogenic diet is though it's new, but I read about it in middle school; it was in my textbook.
Will this be applicable for kernicterus as well? Please do answer me.my son is suffering from kernicterus he is now 6 months old . Only God knows my pain.
Hi, my son was cured from sickle cell with the help of a great doctor who helped me cured my son with his effective herbal medicine which I ordered. He can also help you if you are interested.
Ma'am, kernicterus is a totally different thing, it's caused by accumulation of a substance (results from the breaking down of red blood cells) in the brain and has to be treated by phototherapy which makes this substance easy to be excreted by the kidney into the urine... These are two different entities. And if it happens at this age (6 months after delivery) then it's something that needs a treatment of the underlying cause and not due to another entity which is caused by a physiological process commonly occuring in newborns.
I know that this comment is old and most likely your lovely son is doing just fine (god willing) but just in case someone else with the same thing reads your comment.
Go to the doctor... Most of pediatric problems are easily treated if early diagnosed and managed.
🌹
My Doughtier has a Epilepsy does any one know for her treatments please share your ideas with me
thank you my babu have the same sighn what should i do
But can it completely be treated
Awww, poor sweets,
It's not nice to see someone have a seizure
PLEASE !! PRAY 2 OUR LORD GOD/IN THE NAME OF JESUS CHRIST !! U HAVE 2 BELIEVE !! MIRACLES HAPPEN !!!!
The main reason I started dieting was to get rid of cellulite, however keto made it unbearable... That's why I tried the Agoge diet and it worked great
The Agoge diet is really something different, it just works.
💗
Everyone watch this little boy defy the odds
Hello my son has been diagnosed with epilepsy from he was 3 months old and it has been so hard for me. He's only a year old now and since then he was placed on Depakene and nothing seems to change. He has only gained alot of weight and he still have seizures numerous times of day every day, also he is not able to do anything for himself not even sit up or roll over....I have grown so tired of crying and suffering watching my child go through all this and all because i was mistreated by nurses. I need someone to talk to or some help to talk to someone because i really have no one to turn to and im depressed and sad because i can't get the help i need.... Please someone help!!!!
Hello mam. My son also had his epilepsy @3 months and now he is 10 months. Immediately after diagnosing seizure in him I started treatment for him. Doctor gave him a steroid for one and a haf months along with pyridoxin and levetiracetem. Bt seizures were not arrested. Again I had another situp with doctor and he introduced my baby vigabratin. After consuming that my son became very normal. Now no more seizures. But under medication. Kindly go to the best doctor and start treatment for your son.. Otherwise it will lead to a big consequences
Awww he looks like my baby he is suffering too.. plz share with me kitogenic diet chart plz
Yaa...plz share
Its the ketogenic diet. Look up Dr. Ken Berry on youtube. He tells all about it.
The Keto diet must absolutely be started and closely monitored by a physician.
Pls dont try without consulting a dietitian
I just found out that I have epilepsy and I'm really scared. Although I'm taking up my meds, fear is still in my mind.
@Dorris Tammy I have diabetes n iv no cure , so I don't know where you got your information.my brother has it aswell.54 years n no cure n iv only had it for 3 years.if there was a cure my brother would have done what ever it takes to do so.please I'm not at all being nasty I'm.just dumb founded to read what you have stated. Have a good day x alanna
My appologies I didn't read all your comment but iv no reason to think both.myself n.my brother can be cured of diabetes n the rest of the world would be much healthier without it but diabetes is just growing n its not slowing down at all.im so happy that your information has helped you, but its just not a common thing.all the very best alanna
Awwww I am so sorry is horrible to live with ❤️
I have epilepsy to
My son is also suffering with this😢
have you looked into CBD oil? it doesn't have side effects and is used medically in many places:) i wish you all the best!!
Luke Hemps my son also suffering from west syndrome seizures, since we found he was 6 months old, And now soon he gonna be 3 years old, but still he have same think happens maybe 10times in 24 hours, I found that you suggest cbd oil ,, is that cannabis oil ? And I appreciate if you explain me how to use it..
@@rajlama6600 where you from...If u r from India I'll suggest you a medicine
Anjali Das I m from Nepal, but I live in Japan. Anjali jee, we still trying with medicine and also went to the so many hospital’s.. but still. He have seizures, we don’t know what we should do... anyway thank you for your advice
@@rajlama6600 do you have any Idea when you will come Nepal
That seems rather restrictive, the idea that he has to be on this diet and it will be so until his seizures stop.
My daughter is also suffering wd it.
How old is he?
What is diet for one year baby also suffering epilepsy
How I wish you'd like to take the chance of using another prescribe medication to cure seizure and some other disease with herbal medication I never believed it at first but finally It helped solve seizure for me and not only me. I can recommend him any day anywhere u can also contact him jimmymantzkyat@gmail I wish for good health to all of us specially to the lil baby's.
Its called the Ketogenic Diet.
Look up Dr. Ken Berry on youtube, he teaches all about the keto diet
Ketogenic... another good resource is Chris Kresser
Most of these diets are very punishing to the body, some are outright dangerous. For me, only *Agoge diet* showed great results and was easy to adhere to.
Try CBD oil, trust
Who let James Bond villain Jaws be a neurologist?
I'm on keto because of seizures
Give your child a vegetarian D H A, Omega 3 and gamma oryzanol capsule
Can it be given to a 8 months old baby?
@@drasmaparveen5988 Yes 50 mg DHA, 50 mg Omega 3. Break the capsule and mix in 2 - 4 sppons of food and feed the baby.
@@HarshJain-it2bg Thank you so much
cute baby
CBD oil Cannabis 💗💗💗💗
Where to find it?
How to use cannabis oil? Can you plz explain?
I’m suffering with it since I was born
God bless you
That was sad
He’s so cute 😊
I have seizures to I'm on a diet as well my diet is a PKU diet meat triggers my seizures protein triggers my seizures so I have no protein at all
I have three types of seizures epilepsy
@Dorris Tammy not true can’t cure all I have tried all the all natural organic so for my type of epilepsy there is no cure meds lessen the seizures but does not cure it for me for some people Who have different types of seizures or illnesses it may work for but in my case been there done that
I was told the same absolutely devasted news that my child would by 60-90% moderately profoundly mentally retarded when he was 5 mths old. And this was in Minneapolis at Children's Hospital by a very well respected and experienced neurologist. Negative MRI, hypsarrythmia on EEG, he was in the idiopathic or cryptogenic group, meaning no underlying cause was found for Infantile Spams or West's Syndrome as it is known outside the US.
NOW THIS IS EXTREMELY IMPORTANT. YOU MUST, MUST, MUST HAVE COURAGE, TIME IS OF THE ESSENCE BECAUSE WITH EACH SEIZURE THERE IS A REGRESSION OF SKILLS. Anybody that would tell you differently is not respecting how devastating this condition can be. This is not a common disorder, so it's not reaearched a whole lot like other forms of epilepsy is, zo getting on top of the seizures is imperative, especially according to what parents see. NO PUSSYFOOTING AROUND. COME OUT SWINGING WITH THE HEAVY ARTILLERY. That means, ACTH or Acthar gel, same thing. INJECTABLE. HAVE COURAGE, to do this. If this seems terrible, I want you to think of all the parents at this very moment thst there is nothing more that can be done, znd your child will die. YOU ARE NOT IN THAT SITUATION!! Take strength in that and have the courage to give that injection and send those seizures directly to hell where they belong. Klonoprin and other sedative like meds are ok for other seizure disorders, but they don't carry the devastating brain destruction that IS does. Vigabratrin or Sabril, same med, can work but it has a horrible side effect, it permanently causes tunnel vision. ACTH causes kids to blow up like a balloon, acne, super irritability, diarrhea, hypertension, rectal yeast overgrowth, elevated glucose, bacterial pneumonia, and it's injected intramuscular in the thigh. BUT HERE'S THE GOOD NEWS, ALL OF THAT IS TEMPORARY. WHEN ACTH is weaned off those side effects disappear. Treatment lasted 4 months total for us. He was having 3-4 episodes per day when started, and after 1st injection of ACTH no more and never resumed. COURAGE PEOPLE!!!!
Now why my son has some learning disabilities, HE CAN DRIVE! He has his own car, works at a grocery store and will be starting a community college program in a few months, his IQis 88. Now can you imagine if I has chosen Vigabratrin for him, he would not be able to drive, if I had done Klonopin or Keto diet where seizures were not completely controlled how much more debilitated he may have become? Who knows, but do you want to take that chance. In my opinion ACTH is what should be used initially to treat IS, STOP THOSE SEIZURES IN THEIR TRACKS IMMEDIATELY. AND DON'T LET ANY PHYSICIAN TELL YOU OTHERWISE. It should be used with a diuretic like furosimde, an anti hypertensive like atenolol or vasotec, and antifungal like diflucan, and an antibiotic for pneumonia, you should have a pediactric blood pressure machine at home and also urine test strips for glucose monitoring. Some meds may not have to be given everyday.By default you have now become a warrior, that is what I have learned in the last 19 years. Start occupational therapy, physical therapy, speech therapy right away, DONT LET ANY PHYSICIAN TELL YOU OTHERWISE. My son has been in the school program since age 7 months, first in home, and then added clinic based services, at the same time. He was a fulltime job. My son was discharged from neurology at age 5, because he was basically a missuse of the pediatric neurologist's time, those appts are needed for kids that have real ongoing issues and need meds after all. This highly respected neurologist said, in my 25 years of practice I've never seen a child with IS do this well cognitively and functionally, I got a little loud and defensive. This same MD had told me to not seek interventional services till kindergarten. I did the exact opposite not only for Lucas but for myself. I had to know that I was doing all that I possibly could and if Lucas was to be mentally retarded as predicted, it wouldn't be because I hadn't done everything in my power to decrease the devastating effects of IS. I reminded the MD That my son's progress is first due to ACTH stopping the seizures from the first injection and long term because we didn't let any opportunity pasd him by for improving the outcome. I told him please remember that the next time parents come in and are given the diagnosis of IS and those anguishing statistically prognosis.
While my son has been extremely fortunate to be in the cryptogenic group and responded immediately to ACTH, this will not be the outcome fore all children, take faith in doinh all you can to disrupt what IS is predicted to do. Only do other meds and keto when ACTH has failed, do keto in conjunction with ACTH. Don't give Vigabratrin and permanently damage your child's sight uneless it's a court of last resort. GIVING A PILL OR LIQUID ORALLY IS EASIER, I BEG YOU TO DO ACTH FIRST. It's the strongest most effective drug stop seizures hands down.
Hello, I am a medical doctor specialized in special children, if you need please contact me at whatsapp number: +393711582355, so let's talk about your son.
Is there anyway yo contact you i have a much similar situation and i need someone to talk to
@@katiibrown2082 yes pls I am interested as well thank you for this comment
Thank you for setting side your time writing this important information. iam having same issue exactly with my son iam hoping get your email to ask you few things . iam sick getting unhealthy due watching my son daily going true seizures. please help me I appreciate it
Y’all would best just to turn these comments off because it’s just a honey pot for people trying to sell scam diets as cures and they are attracted to these videos to pray on anyone they can.
Hey
Every hour he having a bad seizure he will know when he going to what is omg stand for he can not know when if he have to go to the bathroom to poop and pee are taking a shower have a serizuer how old is your son
Adoption?
😔😢
@Dorris Tammy uhh ya good? You keep commenting the same thing in each comment lmao
DrObahistoricalherbs
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy
The Agoge diet is really something different, it just works.