I inherited this from my mother, grandmother, uncles, aunt, mother first cousins. In the past I was afraid of this disease, but today I go about my day, take my meds say my prayers and leave the rest to God. I know I will leave this world one day therefore I plan on enjoying every moment that God gives me with my one and only child. My child makes me smile. I love you Justin❤️🥰🥳😇🙏
I am the sane situation...my 2 kids give me strength ....but some days nights...i cry alone because i am fraid ..if i live them...alone... I hope believe in GOD...
Sorry for your lost! And same for you Alex!! Seeing these stories just remind me how thankful we all should be to be here! I was just told I need a transplant because of my hcm
You guys who lost people from this I’m sorry.. I’m 19 and I was diagnosed with this when I was 15 but doctors never took it seriously and I kept hearing it wasn’t really a serious thing (I was clearly lied to) but this year I’ve had chest pain all year I swear, so thank you for sharing because now I’m gonna get it checked out again ❤️😞
Today my dad got diagnosed with it and I just figured out that the worst that could happen is that he could die. Many people have tried to tell him how to manage it but he’s not listening. Im really worried about him. Praying for him rn
My very healthy 45 year old Airforce son passed suddenly on the way home from his morning run Aug 2 2023. He ran his whole life. The veterans hospital missed all his complaints.
My dad passed away of HCM when I was four months old and im the only child of his out of 4 that has the same condition is him but my is called hypertrophic obstructive cardiomyopathy, I found out when I was 14 and I’m almost 16, last year February I had an ICD implanted in me and ever since it’s been rough. And in a way I feel special because the gene chromosome that caused my hypertrophic obstructive cardiomyopathy I’ve been told that me and only one other person in the entire world have that same gene.
I’m going to the ER now. I had an ECHO recently and have this. For eight years I’ve been blacking out and passing out, becoming severely out of breath and having chest pressure and pain. For the past five days, I’ve been unable to brush my hair or fix my pillow without sending my heart rate to at least 130. I stood up to open the window next to my bed and it shot from 70 to 160 in those three seconds. I can’t live like this anymore- but this is only a little worse than my “normal” state. I can be up for five to sometimes fifteen minutes on good days, but will pass out if I push it, plus I dry heave as I recover over the next ten minutes. The confusing factor is that my doctors diagnosed me with Non Length Dependent Small Fiber Neuropathy eight years ago with skin biopsies. I developed full body burning, dizziness, pounding heart, weakness, fasciculations, spreading numbness, neuropathic itch suddenly nine years ago. I believed, and still believe, that I ALSO have Neuropathic POTS. My digestive system is an issue on the same lines, and it may be complicating my breathing, too! No one I know has such severe POTS, or so regular and unstable. Now my kidneys are also going bad, which I know can go with the heart issue if genetic. My GFR dropped from 59 to 51 in four months. My doctor never warned me they were slipping until this. I also found they suspected I’d had a recent heart attack but didn’t tell me, and I’m not being treated nor do we have a plan except a follow up blood test in a few weeks. I was told to exercise “more” though I’m extremely intolerant to exercise and becoming too hot. In fact when I stood up to walk out with my doctor, I blacked out and walked into the wall, so she asked me if I was okay. I said “no, that’s what I’ve been telling you.” Then she offered me a wheelchair…. 🤷🏼♀️
Thank you for making me understand more my illness. I am from the Philippines and sadly they don't do myectomy surgery here and even if they do, I can't pay for my surgery. I was diagnosed 2015, HoCM with severe MR. I am very worried because I can even feel skipping of my heartbeat.
Very informative video, thanks for uploading it 🙂 I had my 1st stemi heart attack at 30 & again this year at 34 , they reckon I have this genetic condition Factor 5 Leiden. When I had a stress/ultrasound test the other day they said hypertrophic during the test, but they didn't tell me what that meant. They want me to wait until the 9/1/20 to see the cardiologist for the results 😕I just want to know what's going on because my dad died of a heart attack when I was 3 weeks old. I'm trying avoid that fate at this age & learn about my heart issues, so I can better manage it. This was video was very helpful in explaining it 🙂
@@giovannamoro8564 I'm ok thanks for asking 🥰I haven't had anymore heart attacks since my previous comment. I've just been extremely tired & going to regular hospital appointments. How are you???
@@LouieTzepher my fiancée was 24 when he died, my father was 55. They both had the same condition. It’s genetic, effects predominantly men. Both our families have it in our genetics
@@vandemanferretstasmania.ni9576 That just scared me, I am 28 and I have it. Looking at treatments as we speak but now that your fiancé died at 24 from it…. Makes me think I should probably stop thing being young gives me the upper hand in this.
I have obstructed HCM and am on a type of Beta Blocker that actually lowers my heart rate. Doc says if the heart beats at 180 bpm and something lets go, I won’t be happy. So by restricting the beating to a lower rate, when I have my heart attack, he figures they can save my life more readily. In the meantime, he told me to start working on my bucket list. I have lost my career because of this, so I have time to do just that. And I am. Live every day as if it is going to be your last.
Please accept jesus into your life as your savior. He really can save us. I have a heart condition so I really know how you feel. God loves you, more than you know, and he's right there for you anytime you ask him to be. I'm also here if you need someone to talk to. Much love and I am praying for you. ❤
That's not why you are on a Beta blocker. They are used in HCM patients to give the stiffer/thickened heart more time to fill improving blood flow. Also the less forceful contractions reduce accelerations in the blood that suck the mitral valve into the flow of blood out of the left ventricle. This also improves blood flow.
Really wish my doctors would listen and find out what’s wrong with my heart for real they said I have Cardiomyopathy, Afib, heart failure, & heart murmurs and as it explained in the video if I was to walk to my garage I’m very out of breath. I’m very irritated that saint peters hospital isn’t helping much and just giving me lasix for fluid build up yes they work but it’s not everything I need at this point. I feel like it’s the heart issues they explained maybe I gotta show my doctor this
My sister in law has been diagnosed with HOCM 2 months ago. She had the feet edema 45 days after her delivery. We have become shuttle cock between doctors. Hardly find two surgeons here at Lahore Pakistan who has an experience on this but they are still in a fix stating surgery might be life threatening. Here both ventricles are hypertrophic with fibrosis starting
My simptoms Are: Fatigue Lightheadedness when standing up or during physical activity sometimes even when im just being still Dizzyness same as the lightheadedness part Insomnia Unintentional weight loss Random nausea Not being hungry Pressure and discomfort in my heart area/chest Feeling Like my heart is skipping beats I think i might heart palpitations but they sometimes hurt My heart rate is higher than it should be exsample when i go from sitting to standing my heart rate jumps between 30-100bmp depends on the day just in general my heart is beating too fast Im allways out of breath allways i can’t walk up two sets of stairs and i start breathing Like i ran a maraton and whenever i do PE and we have to run two laps around the Court it feels Like a elephant is on my chest and i feel Like im going to faint any second and i fainted once a few months back during a violin lesson I Had a EEG Done but it was Like 10-30-60 seconds of a EEG and back then a few months ago i didnt have these heart simptoms also i read somewhere that sometimes these episodes Are almost impossible to see on a EEG Because theyre just not happening in that moment i Had a Brain mri scan everything is Okay i Had a blood check everything is fine im NOT anemic and im NOT lacking anything that Would cause these simptoms Im not too worried but i just want to get these tests over with and get diagnosed so that i can get some kind of treatment to help me be normal again im waiting for my dad to schedule all of the appointments i have left such as a tilt table test and a 3 minute test where i run on a treadmill and they check my heart under stress i guess idk i think i might have cardiomyopathy i dont know What kind but i do know that i cannot deal with the heart discomfort any longer its Like being on the verge of a heart attack every once in a while and the palpitations Are Like stronger every time it feels Like so Yea im not letting myself get too worried
I'm having the exact same symptoms as you. It feels like I don't know if I'm going to wake up alive the next day all the time. Please let me know if you got your results
@@mfaye5549 i got my results and they found nothing apsolutely nothing my symptoms have maninly resolved but the cause might have been anxiety so Please get checked out were different people
I've HCM and had a septal myectomy performed by Dr Per Wierup in january 2017 in Lund Sweden. 1 of my 3 sons inherited the sickness. Joakim died only 31 years old of sudden cardiac arrest 2 month ago. Why him and not me. I'm devastated 😭
Technology and science has come along ways. HCM has taken so many of my family members and now passed on down to me from my mother to her mother to my great grandmother…aunt uncles cousins. It has devastated my family, but thank God with new inventions it will help me and many more in my family…😊♥️
I would love to know if I can be treated, iv been in Atrial fibrillation and an MRI showed Hypertrophic cardiomyopathy. I used to play a high standard of football but always felt like I couldn't breathe and go on like the other guys, the doctor's linked asthma? I know it's ruining my life for sure I'm only 26
KingHados I have shortness of breath right now and I sometimes get dizzy but then that dizziness goes away and then it comes back sometimes and then goes away idk what it is it’s probably cause I’m always in bed or in my gaming chair because of this whole quarantine thing
My son is sick in dcm disease when he is 1 years old.A attack is happened in those time.The doctors told that there is no treatment in the world for dcm patient.I went to india for my babies treatment. But my baby is better than before.His medicine is running now.I want to know my child is cure one day.The doctors don't told me that my child is fully cure those days.please suggest me.
Im not diagnosed but im hoping to get answers to why im suddenly dizzy lightheaded naouseous faint weak etc. All the simptoms line up to cardiomiopathy i Had a tilt table test Done im still waiting for the results if it ends up being nothing or pots syndrome i will go get a echocardiogram just in case as i do tend to have quite intense chest pain and pressure and when im doing harder physical activity Like running it feels Like There’s a elephant on my chest
Thank you, this is great information I believe I have that. I am 28 and don’t have any symptoms but my heart pumps blood at 35 percent and my doctor did confirm that this is what I have.
I'm going to talk to the cardiologist I already have a heart murmur. Congestive heart faluire and now my heart is enlarged. I do have a werid chest pain getting winded like someone poked me with a needle a a little extra tired after work and if I get up to fast sometimes lite headed
What I don't understand is that this condition seems to be the major cause of death among athlets . why they don't get tested with the eco-cardiogram ? Shouldn't it be made mandatory?
I suffer from hypertrophic cardiomyopathy and l will so anything in my power to be able to have this surgery. Does anybody know approximately the cost of this procedure?
I have hypotrophic cardiomyopathy aswell and I’m grateful that I’m alive I’m only 15 years old and I have this condition,I’m sorry for anyone who died to this
bemtheboi I’m doing ok for now and I do get chest pains and some of them caused me to go into hospital and they changed my medication a few times and every time they change my medication I have to stay in hospital for one or two days to see how I go on them and I’m on two different types of medication for it it’s called verapamil and disopyromide I’m on the highest dose for it and my heart condition stops me from what I want to do but I do the things I can
If my LV obstruction HCM causes sudden cardiac arrest, can I be resuscitated? I know resuscitation is rarely successful but is there evidence that resuscitation can restart my heart and save my life or is there no chance I will survive arrest?
There's a chance resuscitation can work. There are a few cases of young athletes surviving a HCM related SCA. Either way, don't worry about it too much. You're not very likely to suffer SCA unless you stress your heart too much.
@@Jesus-ji8dh Still, you probably should be exercising. Just get an assessment from your cardiologist on the severity of your HCM. Unless your HCM is severe, your cardiologist should help you devise an exercise plan that is gentle on your heart and won't push it too far.
In India South part an old traditional practitioner giving siddha medicine for all types of cardiac problems...i saw some good results in coronary artery diseases and Atrial enlargement conditions...but we should take allopathic medicine along with that...
I' m from India ,i don't understand enough what u said in whole video but understand 1 thing that u have enough experience in cardiomyopathy surgery, actually my 3year old child suffering from cardiomyopathy and myocardiatis, any 'suggestion' that u want to give me
Jesus wants to heal you, he has been gradually healing me from my condition. He loves you and your child more than you know. I am praying for your child. I recommend you go to the doctor and see what they can do for your child aswell.
I have HCM and with an Autistic son. The daily challenge is unthinkable. I wish death come to me soon but then looking at my innocent sweetest boy and my dearest wife I gather all my strength to continue living. Life is wonderful yet so cruel.
Life is wonderful and life is a lesson, after every storm the sun always shines. Keep that in mind. Wishing you all the best for the future, make your son proud!
yourZ Me too but had open heart surgery to correct this. Like the doctor in the video said, they do 2 - 3 septal myectomy surgeries a day. I had mine done at Mayo Clinic in MN (just closer to me). It’s a relatively simple procedure...just scary because it’s your heart. Best of luck‼️
*I was diagnosed with HCM in late 2017 and got implanted with S-ICD in Feb 2018. My heart muscle thickness is 33mm which is bigger than I have ever seen in any HCM folk I met but my cardiologist says there is no need of myectomy yet :/ Can someone tell me what can I do? 33mm is quite a big size.*
@@hamzamalik6075 Hey, I am going to turn 34 next month so I was 31 when I was diagnosed. I got my gene tested and yes, mine is genetic, runs in the family, unfortunately. Father, grandfather all gone young.
yeah but … if causation is via high, blood pressure and sedentary lifestyle. illicit drugs,medication,statins,beta blockers were never in the equation. You have a good chance of fixing it yourself? I have dropped 80 pounds (250 down to 170). all salt, sugar and processed meats have been eliminated from my diet … Cycling will be my tool of choice to bring my resting heart beat down to 55 or lower. Expand lung capacity (rowing) and you’ve created an athlete’s heart. You now have a chance
HCM is mostly inherited ie runs in families. Often septal predominant. It’s a filling problem. On the other hand, LVH can be of any cause like high blood pressure/ aortic stenosis, because of which left ventricle has to pump against high resistance. So it thickens
@@Chaddest_Maximus Correct. They'd be extremely likely to see it on echo. It's a good imaging technique. There is a small chance there is some hypertrophy that was not seen on the echo that would show up on a heart MRI, bc the MRI shows greater detail of certain tissues. My father was suggested to have HCM from echos and other heart testing but still needs an MRI to officially rule it out or not.
@@Chaddest_Maximus Did you have an EKG as well? There is research that suggests people with HCM who have a normal EKG are at a much lower risk of sudden death than the average HCM patient. So even if you end up having HCM, if there is a normal EKG, it should be milder.
@@Chaddest_Maximus That's interesting. I would get another EKG if it was yrs ago and a heart MRI as well. You need to get this ruled in or out by a professional.
@@Chaddest_Maximus I'm not trained in medicine, I only know some things about HCM through researching it online. The left atrium stuff, idk if that has anything to do with HCM or not. HCM usually causes left ventricular hypertrophy, I'm not sure if issues with the left atrium and ventricle are related or not or common in HCM. But I am not an expert.
My echo test results shows 12mm ivsd and 12mm lvpwd.. Is it normal??? Normal value shown in that result report is 06mm to 11mm...but some reports shows less than 13 is normal... Pls rply anyone.. Pls...
I inherited this from my mother, grandmother, uncles, aunt, mother first cousins. In the past I was afraid of this disease, but today I go about my day, take my meds say my prayers and leave the rest to God. I know I will leave this world one day therefore I plan on enjoying every moment that God gives me with my one and only child. My child makes me smile. I love you Justin❤️🥰🥳😇🙏
I hope you're doing okay. Have a great day/ night. ❤️
What meds are you taking for it, may I ask? I take BP meds
I am the sane situation...my 2 kids give me strength ....but some days nights...i cry alone because i am fraid ..if i live them...alone...
I hope believe in GOD...
That is an excellent attitude. I have dilated left ventricle aswell as afib. I have a similar attitude to you. God bless you 🙏♥️
@@dr.dreamergreece5803 il say a prayer for you. Stay positive.🙏🙏♥️
My Best friend died from this, a month ago. He was only 31 :(. I will miss you my Brother. RIP.
Idk why Im learning about it. Just had to know. :/
Nutritional deficiency in cardiomyopathy. Here by the Dr.
th-cam.com/video/UNSib4OA-k0/w-d-xo.html
DeenanTheKemon I my husband just died from this a month ago 😔 he was only 29 now I’m here learning from it.
@@AleAlmanza007 I'm so sorry I have this and I need to get help
Sorry for your lost! And same for you Alex!! Seeing these stories just remind me how thankful we all should be to be here! I was just told I need a transplant because of my hcm
You guys who lost people from this I’m sorry.. I’m 19 and I was diagnosed with this when I was 15 but doctors never took it seriously and I kept hearing it wasn’t really a serious thing (I was clearly lied to) but this year I’ve had chest pain all year I swear, so thank you for sharing because now I’m gonna get it checked out again ❤️😞
Today my dad got diagnosed with it and I just figured out that the worst that could happen is that he could die. Many people have tried to tell him how to manage it but he’s not listening. Im really worried about him. Praying for him rn
My very healthy 45 year old Airforce son passed suddenly on the way home from his morning run Aug 2 2023. He ran his whole life. The veterans hospital missed all his complaints.
@@dorybennett7471 Im so sorry for your loss.
Came here for information after undergoing an ECG and I found much more.
My dad passed away of HCM when I was four months old and im the only child of his out of 4 that has the same condition is him but my is called hypertrophic obstructive cardiomyopathy, I found out when I was 14 and I’m almost 16, last year February I had an ICD implanted in me and ever since it’s been rough. And in a way I feel special because the gene chromosome that caused my hypertrophic obstructive cardiomyopathy I’ve been told that me and only one other person in the entire world have that same gene.
I’m going to the ER now. I had an ECHO recently and have this. For eight years I’ve been blacking out and passing out, becoming severely out of breath and having chest pressure and pain. For the past five days, I’ve been unable to brush my hair or fix my pillow without sending my heart rate to at least 130. I stood up to open the window next to my bed and it shot from 70 to 160 in those three seconds. I can’t live like this anymore- but this is only a little worse than my “normal” state. I can be up for five to sometimes fifteen minutes on good days, but will pass out if I push it, plus I dry heave as I recover over the next ten minutes.
The confusing factor is that my doctors diagnosed me with Non Length Dependent Small Fiber Neuropathy eight years ago with skin biopsies. I developed full body burning, dizziness, pounding heart, weakness, fasciculations, spreading numbness, neuropathic itch suddenly nine years ago. I believed, and still believe, that I ALSO have Neuropathic POTS. My digestive system is an issue on the same lines, and it may be complicating my breathing, too! No one I know has such severe POTS, or so regular and unstable.
Now my kidneys are also going bad, which I know can go with the heart issue if genetic. My GFR dropped from 59 to 51 in four months. My doctor never warned me they were slipping until this. I also found they suspected I’d had a recent heart attack but didn’t tell me, and I’m not being treated nor do we have a plan except a follow up blood test in a few weeks. I was told to exercise “more” though I’m extremely intolerant to exercise and becoming too hot. In fact when I stood up to walk out with my doctor, I blacked out and walked into the wall, so she asked me if I was okay. I said “no, that’s what I’ve been telling you.” Then she offered me a wheelchair…. 🤷🏼♀️
Thank you for making me understand more my illness. I am from the Philippines and sadly they don't do myectomy surgery here and even if they do, I can't pay for my surgery. I was diagnosed 2015, HoCM with severe MR. I am very worried because I can even feel skipping of my heartbeat.
How are you now?
Very informative video, thanks for uploading it 🙂 I had my 1st stemi heart attack at 30 & again this year at 34 , they reckon I have this genetic condition Factor 5 Leiden. When I had a stress/ultrasound test the other day they said hypertrophic during the test, but they didn't tell me what that meant. They want me to wait until the 9/1/20 to see the cardiologist for the results 😕I just want to know what's going on because my dad died of a heart attack when I was 3 weeks old. I'm trying avoid that fate at this age & learn about my heart issues, so I can better manage it. This was video was very helpful in explaining it 🙂
3 years have gone by . How do you feel ? Are you ok now ? I truly hope so .
@@giovannamoro8564 I'm ok thanks for asking 🥰I haven't had anymore heart attacks since my previous comment. I've just been extremely tired & going to regular hospital appointments. How are you???
@@iinspiredmantic2301 i'm ok thanks . I'm so glad you 're ok too.
I don’t know you. But I’m so glad to see your comment after three years. It’s 5:30am here and I’m tearing up 😭
@@modernnomad7250 me too bro
My fiancé was 24 with no symptoms, was never sick, didn’t drink or smoke. Was very active and healthy, my father made it to his 50’s
So he died at 50 from it?
@@LouieTzepher my fiancée was 24 when he died, my father was 55. They both had the same condition. It’s genetic, effects predominantly men. Both our families have it in our genetics
@@vandemanferretstasmania.ni9576 Man, that sucks. Some people live a long life with it, it's not a death sentence, but man...Sorry to hear this.
My condolences . Keep your head up and keep strong for them.
@@vandemanferretstasmania.ni9576 That just scared me, I am 28 and I have it. Looking at treatments as we speak but now that your fiancé died at 24 from it…. Makes me think I should probably stop thing being young gives me the upper hand in this.
Thank You Dr. Smedira!
Wonderful imformation
Doing good work Doc
Whos here to see how did Caleb from bratayley caused him a heart attack
Ashley Quintana Dimas me !!
Omg same
HCM is uncommon but cardiac arrest from HCM is even more so. It is very treatable ... I’m benefiting from septal myectomy surgery ‼️
Me I need to see what happened how it happens so I could be in peace.and if they knew faster they could have done this and Caleb would be alive
Ashley Quintana me and I was so surprised because I have the same condition as him
I have obstructed HCM and am on a type of Beta Blocker that actually lowers my heart rate. Doc says if the heart beats at 180 bpm and something lets go, I won’t be happy. So by restricting the beating to a lower rate, when I have my heart attack, he figures they can save my life more readily. In the meantime, he told me to start working on my bucket list. I have lost my career because of this, so I have time to do just that. And I am. Live every day as if it is going to be your last.
Please accept jesus into your life as your savior. He really can save us. I have a heart condition so I really know how you feel. God loves you, more than you know, and he's right there for you anytime you ask him to be. I'm also here if you need someone to talk to. Much love and I am praying for you. ❤
That's not why you are on a Beta blocker. They are used in HCM patients to give the stiffer/thickened heart more time to fill improving blood flow. Also the less forceful contractions reduce accelerations in the blood that suck the mitral valve into the flow of blood out of the left ventricle. This also improves blood flow.
Excellent information!
Really wish my doctors would listen and find out what’s wrong with my heart for real they said I have Cardiomyopathy, Afib, heart failure, & heart murmurs and as it explained in the video if I was to walk to my garage I’m very out of breath. I’m very irritated that saint peters hospital isn’t helping much and just giving me lasix for fluid build up yes they work but it’s not everything I need at this point. I feel like it’s the heart issues they explained maybe I gotta show my doctor this
My sister in law has been diagnosed with HOCM 2 months ago. She had the feet edema 45 days after her delivery. We have become shuttle cock between doctors. Hardly find two surgeons here at Lahore Pakistan who has an experience on this but they are still in a fix stating surgery might be life threatening. Here both ventricles are hypertrophic with fibrosis starting
bro what happened now ??
I am praying
Calcium channel blockers are enough for HCM.?
Hello o have this pain. For one year I need belp
Where are you from ??
I think beta blockers are the medication.
My simptoms Are:
Fatigue
Lightheadedness when standing up or during physical activity sometimes even when im just being still
Dizzyness same as the lightheadedness part
Insomnia
Unintentional weight loss
Random nausea
Not being hungry
Pressure and discomfort in my heart area/chest
Feeling Like my heart is skipping beats
I think i might heart palpitations but they sometimes hurt
My heart rate is higher than it should be exsample when i go from sitting to standing my heart rate jumps between 30-100bmp depends on the day just in general my heart is beating too fast
Im allways out of breath allways i can’t walk up two sets of stairs and i start breathing Like i ran a maraton and whenever i do PE and we have to run two laps around the Court it feels Like a elephant is on my chest and i feel Like im going to faint any second and i fainted once a few months back during a violin lesson
I Had a EEG Done but it was Like 10-30-60 seconds of a EEG and back then a few months ago i didnt have these heart simptoms also i read somewhere that sometimes these episodes Are almost impossible to see on a EEG Because theyre just not happening in that moment i Had a Brain mri scan everything is Okay i Had a blood check everything is fine im NOT anemic and im NOT lacking anything that Would cause these simptoms
Im not too worried but i just want to get these tests over with and get diagnosed so that i can get some kind of treatment to help me be normal again im waiting for my dad to schedule all of the appointments i have left such as a tilt table test and a 3 minute test where i run on a treadmill and they check my heart under stress i guess idk i think i might have cardiomyopathy i dont know What kind but i do know that i cannot deal with the heart discomfort any longer its Like being on the verge of a heart attack every once in a while and the palpitations Are Like stronger every time it feels Like so Yea im not letting myself get too worried
I'm having the exact same symptoms as you. It feels like I don't know if I'm going to wake up alive the next day all the time. Please let me know if you got your results
@@mfaye5549 i got my results and they found nothing apsolutely nothing my symptoms have maninly resolved but the cause might have been anxiety so
Please get checked out were different people
How do you know if you inherit HCM?
I've HCM and had a septal myectomy performed by Dr Per Wierup in january 2017 in Lund Sweden. 1 of my 3 sons inherited the sickness. Joakim died only 31 years old of sudden cardiac arrest 2 month ago. Why him and not me. I'm devastated 😭
So sorry 😞
I'm so sorry for your son . Of course you're devasted .dear young man of yours . It's such an injustice .please take care of yourself .
Im very sorry to hear this. I am praying for you. I'm here if you need someone to talk to. 🙏❤️
Technology and science has come along ways. HCM has taken so many of my family members and now passed on down to me from my mother to her mother to my great grandmother…aunt uncles cousins. It has devastated my family, but thank God with new inventions it will help me and many more in my family…😊♥️
Dear sir iam HCM paticnt ur best suggestion hcm problem surgery and icd please tell me sir 🙏🏼
I have it---Would need to go to your clinic.
How are you doing?
I would love to know if I can be treated, iv been in Atrial fibrillation and an MRI showed Hypertrophic cardiomyopathy. I used to play a high standard of football but always felt like I couldn't breathe and go on like the other guys, the doctor's linked asthma? I know it's ruining my life for sure I'm only 26
Watch this Dr video.
th-cam.com/video/UNSib4OA-k0/w-d-xo.html
how r u?
My shortness of breath is random i went hiking at didnt have it at all.
I do a small jug and its takes me minutes to get back my breath
KingHados I have shortness of breath right now and I sometimes get dizzy but then that dizziness goes away and then it comes back sometimes and then goes away idk what it is it’s probably cause I’m always in bed or in my gaming chair because of this whole quarantine thing
Hana!znkdjzzjzjzkzmzmzmz!zmzmxmxmxxm!xxnxmxmxmxmxmxnx!xnxmnxmx kvality vo
How do I get in touch with these Doctors?
Through their website: my.clevelandclinic.org/health/treatments/17461-septal-myectomy
how is this treatment called? anyone? :)
myomectomy
@@mohdsahilsaifi thank you!
i inherited hcm now i am taking care of this my doctors gave me madications
Watch this Dr video on nutrition and cardiomyopathy.
th-cam.com/video/UNSib4OA-k0/w-d-xo.html
Are you ok now?
Hopefully you’re okay
Same here!! I hope yours is stable
My son is sick in dcm disease when he is 1 years old.A attack is happened in those time.The doctors told that there is no treatment in the world for dcm patient.I went to india for my babies treatment. But my baby is better than before.His medicine is running now.I want to know my child is cure one day.The doctors don't told me that my child is fully cure those days.please suggest me.
When I had my septal myectomy at 24, they told me I was about 3x the normal thickness!
We lost our 30 year old daughter in March 2024. She went to sleep and didn’t wake up. She had no symptoms. How I wish we had known!
So sorry for your loss! 🙏🏽
I'm suffering and have been in hospital for 3 days . Let's see what they say .
Update?
أه ، الله يعافيك يا رزان
Im not diagnosed but im hoping to get answers to why im suddenly dizzy lightheaded naouseous faint weak etc. All the simptoms line up to cardiomiopathy i Had a tilt table test Done im still waiting for the results if it ends up being nothing or pots syndrome i will go get a echocardiogram just in case as i do tend to have quite intense chest pain and pressure and when im doing harder physical activity Like running it feels Like There’s a elephant on my chest
Thank you, this is great information
I believe I have that. I am 28 and don’t have any symptoms but my heart pumps blood at 35 percent and my doctor did confirm that this is what I have.
How are you now?
Septal thickness normal range???
12mm
I'm going to talk to the cardiologist I already have a heart murmur. Congestive heart faluire and now my heart is enlarged. I do have a werid chest pain getting winded like someone poked me with a needle a a little extra tired after work and if I get up to fast sometimes lite headed
An enlarged heart could be a different kind of cardiomyopathy called dilated cardiomyopathy or DCM for short.
What I don't understand is that this condition seems to be the major cause of death among athlets . why they don't get tested with the eco-cardiogram ? Shouldn't it be made mandatory?
Mine is at the Apex.
I suffer from hypertrophic cardiomyopathy and l will so anything in my power to be able to have this surgery. Does anybody know approximately the cost of this procedure?
In 2008 my ivss and ivssd was 20 mm and 17 mm
In 2020 it was 12 mm and 8 mm
Am I normal now??
100% cured and normal
@@varuny109 now again tested on 3/6/2022
25 mm and 22mm
@@hindrepublican438 how I went from 20 & 17 mm in 2008 to 12 & 8 mm in 2020. And how it jumped back. Have u had myectomy and do u have an icd
@@hindrepublican438 how are you doing
I have hypotrophic cardiomyopathy aswell and I’m grateful that I’m alive I’m only 15 years old and I have this condition,I’m sorry for anyone who died to this
Daniel Fatah are you for real? How are you doing right now?
And what does it feel to have this?
bemtheboi I’m doing ok for now and I do get chest pains and some of them caused me to go into hospital and they changed my medication a few times and every time they change my medication I have to stay in hospital for one or two days to see how I go on them and I’m on two different types of medication for it it’s called verapamil and disopyromide I’m on the highest dose for it and my heart condition stops me from what I want to do but I do the things I can
Daniel Fatah how long have you had this?
bemtheboi I’ve had it all my life but I only found out in 2017 that I have it
If my LV obstruction HCM causes sudden cardiac arrest, can I be resuscitated? I know resuscitation is rarely successful but is there evidence that resuscitation can restart my heart and save my life or is there no chance I will survive arrest?
There's a chance resuscitation can work. There are a few cases of young athletes surviving a HCM related SCA. Either way, don't worry about it too much. You're not very likely to suffer SCA unless you stress your heart too much.
@@NoobieToob like exercising too hard ?
@@Jesus-ji8dh Yup, anything that will push your heart rate to absolute maximum.
@@NoobieToob OK thank you
@@Jesus-ji8dh Still, you probably should be exercising. Just get an assessment from your cardiologist on the severity of your HCM. Unless your HCM is severe, your cardiologist should help you devise an exercise plan that is gentle on your heart and won't push it too far.
Couldn't we increase efficiency by trying many other type s?
In India South part an old traditional practitioner giving siddha medicine for all types of cardiac problems...i saw some good results in coronary artery diseases and Atrial enlargement conditions...but we should take allopathic medicine along with that...
I was diagnosed with HCM in 2014. Im have to wonder that after undergoing this surgery if the muscle wall grows back? Does anyone know?
No the muscle can't regenerate after surgery
My heart muscle thickness is 21.6 mm do i need to worry now?
Now how are you?
I' m from India ,i don't understand enough what u said in whole video but understand 1 thing that u have enough experience in cardiomyopathy surgery, actually my 3year old child suffering from cardiomyopathy and myocardiatis, any 'suggestion' that u want to give me
Jesus wants to heal you, he has been gradually healing me from my condition. He loves you and your child more than you know. I am praying for your child. I recommend you go to the doctor and see what they can do for your child aswell.
@@mfaye5549 Thank you dear, for your best wishes.
I have HCM and with an Autistic son. The daily challenge is unthinkable. I wish death come to me soon but then looking at my innocent sweetest boy and my dearest wife I gather all my strength to continue living. Life is wonderful yet so cruel.
Life is wonderful and life is a lesson, after every storm the sun always shines. Keep that in mind. Wishing you all the best for the future, make your son proud!
Caleb died this way 😭😭😭😭😭😭
I have this
Me too I'm scared
What our the symptoms of this?
can one of you with it please contact me
yourZ Me too but had open heart surgery to correct this. Like the doctor in the video said, they do 2 - 3 septal myectomy surgeries a day. I had mine done at Mayo Clinic in MN (just closer to me). It’s a relatively simple procedure...just scary because it’s your heart. Best of luck‼️
Nutritional deficiency in cardiomyopathy. Dr video
th-cam.com/video/UNSib4OA-k0/w-d-xo.html
I hope Asher from all American won’t die from this
*I was diagnosed with HCM in late 2017 and got implanted with S-ICD in Feb 2018. My heart muscle thickness is 33mm which is bigger than I have ever seen in any HCM folk I met but my cardiologist says there is no need of myectomy yet :/ Can someone tell me what can I do? 33mm is quite a big size.*
Get a second opinion and maybe a referral to the Cleveland clinic
@@kpatelv607 Hey, thank you. I live in the UK, not the US so that won't be possible "/ but I will surely work on the second opinion.
@@waq4s hey bro what your AGE and do you get this disease. Is there is genetic ???
@@hamzamalik6075 Hey, I am going to turn 34 next month so I was 31 when I was diagnosed. I got my gene tested and yes, mine is genetic, runs in the family, unfortunately. Father, grandfather all gone young.
Brother ... I live in India , can I have your number ... M inherited with dis disease last year .. doctor said to implant aicd ... I need to talk ...
treatment only propranolol and myomectomy
Oh, I’ll be 65 in two months. You can do it.
Who remembers of him?
I am also suffering from HCM
I can't move 😞 my breathing problem is gonna high day by day
Plz somebody tell it will be cure or not 😞
Stupid heart, I exercise vigorously few time a week, this condition is causing me to have to slow down.
We can!
yeah but … if causation is via high, blood pressure and sedentary lifestyle. illicit drugs,medication,statins,beta blockers were never in the equation. You have a good chance of fixing it yourself? I have dropped 80 pounds (250 down to 170). all salt, sugar and processed meats have been eliminated from my diet … Cycling will be my tool of choice to bring my resting heart beat down to 55 or lower. Expand lung capacity (rowing) and you’ve created an athlete’s heart. You now have a chance
Lucky me
This scares the crap out me. I have LVH. I think this is the last video I will watch.
There's another less invasive procedure known as alcohol septal ablation.
@Americanviking9032 have checked again, how is your condition right know??
We real can
How hypertrophic cardiomyopathy differs from left ventricular hypertrophy??
HCM is mostly inherited ie runs in families. Often septal predominant. It’s a filling problem. On the other hand, LVH can be of any cause like high blood pressure/ aortic stenosis, because of which left ventricle has to pump against high resistance. So it thickens
@@bunnyboo2130 can bp medicines improve lvh?
1 in 500? 😱
Yup, it's crazy common and most will never experience symptoms or know.
@@Chaddest_Maximus Correct. They'd be extremely likely to see it on echo. It's a good imaging technique. There is a small chance there is some hypertrophy that was not seen on the echo that would show up on a heart MRI, bc the MRI shows greater detail of certain tissues. My father was suggested to have HCM from echos and other heart testing but still needs an MRI to officially rule it out or not.
@@Chaddest_Maximus Did you have an EKG as well? There is research that suggests people with HCM who have a normal EKG are at a much lower risk of sudden death than the average HCM patient. So even if you end up having HCM, if there is a normal EKG, it should be milder.
@@Chaddest_Maximus That's interesting. I would get another EKG if it was yrs ago and a heart MRI as well. You need to get this ruled in or out by a professional.
@@Chaddest_Maximus I'm not trained in medicine, I only know some things about HCM through researching it online. The left atrium stuff, idk if that has anything to do with HCM or not. HCM usually causes left ventricular hypertrophy, I'm not sure if issues with the left atrium and ventricle are related or not or common in HCM. But I am not an expert.
We're forgetting about what kind of creature is worth it. I guess God says it. So both bots and girls
So we need to stop them before they're ready.
My echo test results shows 12mm ivsd and 12mm lvpwd.. Is it normal??? Normal value shown in that result report is 06mm to 11mm...but some reports shows less than 13 is normal... Pls rply anyone.. Pls...
Easy bro those results are completely normal
you are not getting older you are getting sicker. Change your diet ASAP.