Spending DAYS in the ER. Banned From a Hospital Room. Life Support Discrimination. Life with a Vent

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  • เผยแพร่เมื่อ 26 พ.ย. 2024

ความคิดเห็น • 90

  • @LifewithaVent
    @LifewithaVent  3 หลายเดือนก่อน +14

    Clarification to the video: Some hospitals require patients who use ventilators to be in the intensive care unit (ICU). However, the hospital where this situation occurred does NOT require people who use ventilators to be in the ICU. I have been to this hospital before and am usually placed in a regular hospital room (unless I am critically ill and my medical issue requires ICU level care).
    To understand where the disagreement occurred regarding me needing an ICU room, let me explain the bed assigning process in this hospital.
    In the hospital, there is a hospital employee who is responsible for assigning beds to patients. This person, who I will call the bed assigner, collects information from every hospital floor about which beds in the hospital are available. When a bed becomes available, the bed assigner looks at the list of people who need a bed.
    When a match is made, the bed assigner reviews the information about the patient to make sure the correct type of bed is being assigned. For example, if the doctor requests the patient receive an ICU bed, there must be justification for this need.
    All bed assignments must agree with hospital policy. For example, if hospital policy states a person with a certain medical condition needs a certain type of hospital room, the bed assigner MUST assign a bed based on the hospital policy, even if it disagrees with the doctor’s request.
    Once the patient is approved for the bed, the patient’s information is sent to the charge nurse in the unit. The charge nurse has the responsibility to assign the patient a bed and a nurse. If the charge nurse refuses the patient, the patient remains on the bed wait list. Then, the next person who is eligible for that bed is assigned to the unit.
    Here is where the issue arose. The doctors stated I needed a regular hospital bed. The bed assigner, after reviewing my medical case and hospital policy, also agreed I needed a regular hospital bed. When a regular bed became available, I was assigned to that unit. The charge nurse accepted me as a patient, assigned me a bed and assigned me a nurse.
    Upon arriving on the unit, the nurse informed me she refused to be my nurse because I required too much care. The charge nurse was contacted and agreed with her nurse. I was pulled from that unit and placed back on the hospital bed wait list. The charge nurse placed a block on my chart which prevented me from being accepted by any other regular hospital unit. The only units which she said could accept me as a patient where the ICUs.
    There was no evidence in my medical chart that I needed ICU level care. Moreover, hospital policy stated I could be in a regular hospital bed. Thus, the bed assigner kept my bed status as needing a regular hospital bed. Now, since no charge nurse on a regular hospital bed unit would accept me as a patient, I remained indefinitely on the hospital bed wait list and spent my hospitalization in the emergency department.

    • @jacksonrees
      @jacksonrees หลายเดือนก่อน +2

      Well said. Good explanation.

  • @SpicyBricy
    @SpicyBricy 19 วันที่ผ่านมา +8

    I would climb the ladder of administration to prevent this in the future. As an RN of 37 years, I have NEVER thought I could refuse to care for someone without then being terminated!! It's utterly ridiculous and unacceptable.

    • @LifewithaVent
      @LifewithaVent  19 วันที่ผ่านมา

      Thank you so much for sharing. I appreciate the insight.

  • @agquaproductions9361
    @agquaproductions9361 3 หลายเดือนก่อน +12

    You are not a burden. You are a joy. And some of the nicest people can work in hospitals but the bad ones are just ughhh.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you for sharing. I appreciate your kindness.

  • @Maggiemae33
    @Maggiemae33 3 หลายเดือนก่อน +13

    Thank you so much for being the light you are❤

  • @Jilly_Neutron
    @Jilly_Neutron 3 หลายเดือนก่อน +13

    I stumbled upon your videos very recently and have appreciated listening to you and your perspective. I used to be a CNA in long-term care and hospice (your "why I'll never go on hospice" video is how I found you) and now work in clinical research, so I feel I have some "insider," but hopefully non-biased, information to add. Over time, and especially over the pandemic, hospital nursing ratios have been increased. There are many reasons for this: overestimation on time saving from new technology, an overall shortage of skilled nurses willing to work bedside, private equity taking over many hospitals and trying to increase profits, greater burden of disease in the population overall, etc. Then we add onto this that nurses have also now been criminally prosecuted for medical errors they've made, rather than looking at the system that led to those human errors as a way of prevention. Now there is an essential part of the healthcare system stretched to their limits and scared. I can understand that nurse's fear of having a seemingly more complex and higher risk patient to care for. Yes she should have listened, but she also should not have been put into a position where, even if your level of care was slightly higher than what the ED nurse said, she would not have been able to handle the extra load. The system is broken and we need to advocate for both education (which you do so wonderfully) and changes to benefit everyone.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you so much for sharing. That is great insight. I really appreciate your comment.

  • @amypearsall
    @amypearsall 3 หลายเดือนก่อน +7

    I like what you said about, ' (you) could be angry or upset, but are choosing to educate others through videos.' Take care!

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you so much.

  • @NNN-en9vg
    @NNN-en9vg หลายเดือนก่อน +5

    You are such a beautiful human. I’m sorry that you go through so much. U such a strong hearted person. I pray u reach your goals in life. ❤

    • @LifewithaVent
      @LifewithaVent  หลายเดือนก่อน +3

      Thank you so much.

  • @brandiecrisp8385
    @brandiecrisp8385 23 วันที่ผ่านมา +1

    Thank you so much for your wonderful educational videos! My son was born with down syndrome and had profound medical issues. I am his voice and his advocate, as he is nonverbal. Sometimes, in my frustration at the lack of understanding of others, commonly medical professionals, I can get kind of heated. I really really appreciate your comment about educating people rather than getting upset. Your videos are such a wonderful learning experience for me.

    • @LifewithaVent
      @LifewithaVent  23 วันที่ผ่านมา

      Thank you so much for sharing. I am things can be frustrating at times. Your son is very fortunate to have you as his voice and advocate. Thank you for all your kindness.

  • @nesthi
    @nesthi 3 หลายเดือนก่อน +5

    That's awful that you felt like that. But I'm glad you are in a better place today! Have a good rest of the weekend! 🥰🐿💙

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +2

      Thank you so much.

  • @karenpollicina8582
    @karenpollicina8582 3 หลายเดือนก่อน +3

    My late husband had complex medical problems also with a trachy. I had nurses,that came daily but I looked after him 20 hours a day.With 2 nights of a nurse sleep over.Every hospital visit ended up days in the Emergency department because no ward wanted to take a trachy.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you so much for sharing. I am sorry you and your late husband went through so much. My heart breaks thinking about everything you-all must have endured.

  • @rsalva6803
    @rsalva6803 10 วันที่ผ่านมา

    I am so sorry this happened to you. I am an RN in an IMC unit where we take care of patients with trach and vents. I would have loved to work with you and be my patient because I know I could learn a lot from you. Take care - RN from Las Vegas

    • @LifewithaVent
      @LifewithaVent  10 วันที่ผ่านมา +1

      Thank you so much. I appreciate your kindness.

  • @schizoaffectivemind5984
    @schizoaffectivemind5984 หลายเดือนก่อน +5

    Hospitals can be a nightmare!

    • @LifewithaVent
      @LifewithaVent  หลายเดือนก่อน

      Thank you for sharing.

    • @schizoaffectivemind5984
      @schizoaffectivemind5984 หลายเดือนก่อน

      @@LifewithaVent Your welcome, I hope you are having a good day!🙂

    • @LifewithaVent
      @LifewithaVent  29 วันที่ผ่านมา +1

      @@schizoaffectivemind5984 I am having a good day. I hope you are also having a good day.

  • @SoriahsASMRTingleWonderland
    @SoriahsASMRTingleWonderland 19 วันที่ผ่านมา

    You are amazing and I am so sorry this happened to you. That is horrible. Some people are angry all day of every day. Stay happy and cheerful. By the way, your voice is wonderful. You should really think about doing voice over or even audibles. You would be so good at it. ❤

    • @LifewithaVent
      @LifewithaVent  19 วันที่ผ่านมา

      Thank you so much. I appreciate your kindness.

  • @agquaproductions9361
    @agquaproductions9361 3 หลายเดือนก่อน +1

    Subscribed. Love your perspective and your channel.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +2

      Thank you so much.

    • @JerseyLynne
      @JerseyLynne 24 วันที่ผ่านมา +2

      Mee too !!!

    • @LifewithaVent
      @LifewithaVent  23 วันที่ผ่านมา

      @@JerseyLynne Thank you.

  • @maxitosh8465
    @maxitosh8465 2 หลายเดือนก่อน

    Your so good to shine the light on such things.....

    • @LifewithaVent
      @LifewithaVent  2 หลายเดือนก่อน

      Thank you so much.

  • @LiamODonovan-l6e
    @LiamODonovan-l6e 3 หลายเดือนก่อน +1

    I'm glad you are better. Love you're better

  • @sallydavidcallumcaleigh
    @sallydavidcallumcaleigh 2 หลายเดือนก่อน +1

    Same here. I’m always in the ICU by policy but am always their easiest patient.

    • @LifewithaVent
      @LifewithaVent  2 หลายเดือนก่อน

      Thank you for sharing. I am glad you are their easiest patient.

  • @tomsclim72
    @tomsclim72 3 หลายเดือนก่อน +2

    Sorry to hear about your experience. Unfortunately being human, there are people who wear uniforms but it is not service above self but the self preservation comes first for these people. The Florence Nightingale oath just tossed into the drain...sighh. anyway hope things worked out eventually?

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน

      Thank you so much for sharing. Yes, everything worked out. I got the treatment I needed in the emergency department and was eventually able to go home.

  • @iamhappy_peach
    @iamhappy_peach 3 หลายเดือนก่อน +1

    Im so sorry to hear about your experience. I hope this wont happen again..

  • @GretchenParker-horselove
    @GretchenParker-horselove 3 หลายเดือนก่อน +3

    That's ridiculous they shouldn't have banned you from your hospital room just because you're on a ventilator. Sending spoons so you feel better. My chronic illness warrior❤

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you so much.

  • @jacksonrees
    @jacksonrees หลายเดือนก่อน +1

    Hi,
    We’ve communicated before. I’m retired from being an Emergency Nurse and Paramedic; my specialty was Airway Management & Respiratory.
    I feel for you and your uncomfortable & stressful stay in the ED. May I share some insights?
    It sounds as if you were intended for a “regular” room; probably/possibly not a High Dependency Unit. The General Duty Nurse, possibly not long in experience, and perhaps already stressed by her load & responsibilities, clearly was freaking out from ‘dictionary’ definitions in the Staffing Manual and minimal confidence with teach care & trach emergencies (the truly frightful possibility). This is the deciding factor.
    May I suggest having the admitting physician involve the Nursing
    Supervisor at the start to pave the way. It should make a great difference.
    The Safety Factor is the most important point. In the ED, there is always an Emergency Physician & Emergency Nurses capable of dealing with any airway problems and summoning ENT, Anesthesia, Respiratory Svcs.
    Alas, that means all the problems of that environment for you. Perhaps, it could be explained that despite your current medical issue, if you were at home-you would be self-care anyway. You are only there fo the other treatments. Combined with a pre-alert to ED, ICU, ENT, Respiratory of potential special emergency care for you for them to respond forthwith.
    I know that had that ward nurse accepted you, you would not only have been the easiest patient but she would have herself learning a great deal from you!!!
    [You’ll notice my usage of “Emergency Nurse” & “Emergency Physician” rather than ED or ER. The Mission is taking care of the emergency wherever it is, whether hospital, helicopter, ambulance, disaster site, or wilderness. I hope you won’t mind this more descriptive usage rather than the formerly used ‘ED’ or ‘ER’.]
    Great idea to have the noise-canceling headphones! If you need a waffle mattress, be sure to bring it for long stays or ask for one!

    • @LifewithaVent
      @LifewithaVent  หลายเดือนก่อน +1

      Thank you so much. I appreciate all the information. I will keep this all in mind if I am ever in this situation in the future. Thank you for the very detailed response. It is very helpful.

  • @GoFishOffice
    @GoFishOffice 3 หลายเดือนก่อน

    That's so annoying my friend. Please stay well ❤

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you for sharing.

  • @SunnySunfish-s9m
    @SunnySunfish-s9m 3 หลายเดือนก่อน

    My mother who has ALS is on ventilator and also feeding tube has ran into this problem several times. Because of the vent she would have to be in ICU. Once when the ambulance was taking her to the hospital the driver called the hospital to say that they were bringing a vent patient. The hospital told the driver to not bring her there. Just one of many issues we've ran into with service. It's sad. No help for those who need it the most.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +1

      Thank you for sharing. I am so sorry to hear about these challenges. It is heart-breaking.

  • @tahishalewis130
    @tahishalewis130 3 หลายเดือนก่อน

    Thanks for sharing

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน

      Thank you for watching.

  • @susanoshaughnessy943
    @susanoshaughnessy943 3 หลายเดือนก่อน +5

    In our hospital, a person on a ventilator is required to be in the ICU. And, the hospital is responsible for that pt’s care - even if it’s something they manage at home. I can’t just bring my medications from home and self administer them, for example. So, at our hospital, they would not allow you to self manage your vent care. They might allow you to do your own trach care - supervised by staff - but ultimately they are responsible. so, if you got a mucous plug for example or an infection, they would be responsible if anything happened to you. I understand your point of view that this is your regular self-care, but I also understand the point of view that the hospital is responsible for you while you’re in their care. I’m sorry it’s so complicated. 😢

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +4

      Thank you so much for sharing. I have been admitted to hospitals in which patients who use ventilators are required to be in the ICU. However, this is not the policy at this hospital. The only times I have been in the ICU at this hospital have been when I was critically ill and required high level care for my medical issue. During all other hospital admissions, I have been in a regular hospital room.
      The hospital bed assigner (who makes sure all hospital policies are being followed) along with the doctors all agreed I belonged in a regular hospital room. The nursing staff disagreed and blocked me from getting a regular hospital room. When a bed assigner gives a room to a patient, if falls to the charge nurse to assign the patient a room and a nurse. If the charge nurse does not assign the patient a room, the patient cannot go to that unit and remains on the wait list.
      If the bed assigner would have agreed with the nurses that I needed ICU level care, I would have been assigned a bed in the ICU. However, the bed assigner disagreed with the nursers request and believed based on information provided by the doctors (and following hospital bed assigning policy) that I only required a regular hospital room and the services provided in a regular hospital room. This is where the gridlock came into play. I was assigned to be in a regular hospital room by my doctors and the bed assigner, but no charge nurse would give me a bed in a regular hospital room Thus, I remained indefinitely on the bed wait list, and I spent my entire hospitalization in the emergency department.

    • @JerseyLynne
      @JerseyLynne 24 วันที่ผ่านมา +2

      ​@@LifewithaVentIt's so sad to hear about nurses who quit using their heads. They should be the patient's advocate.

    • @LifewithaVent
      @LifewithaVent  23 วันที่ผ่านมา +1

      @@JerseyLynne Great point.

  • @jenniferj2456
    @jenniferj2456 26 วันที่ผ่านมา +7

    The hostility shown to you by the nurse sounds like it has some other basis. At a minimum, that nurse should be fired for conduct unbecoming.

    • @LifewithaVent
      @LifewithaVent  26 วันที่ผ่านมา

      Thank you for sharing. I appreciate the insight.

    • @teijaflink2226
      @teijaflink2226 14 วันที่ผ่านมา +2

      She kind of sounded over worked

    • @LifewithaVent
      @LifewithaVent  14 วันที่ผ่านมา

      @@teijaflink2226 Thank you for sharing.

  • @donaldrack
    @donaldrack 3 หลายเดือนก่อน +2

    They really get freaked out by us, don't they?

  • @kathleentaylor8840
    @kathleentaylor8840 2 หลายเดือนก่อน

    There are government contracts that get awarded to citizens for educational projects, where they take performance bids, like sharing a demo track in the music recording industry, and I think many of your videos would qualify for a demo round to those government agencies, plus the medical device sales industry, plus narrating children’s books.

    • @LifewithaVent
      @LifewithaVent  หลายเดือนก่อน

      Thank you for sharing. I appreciate all the information.

  • @jeffgrant6914
    @jeffgrant6914 7 วันที่ผ่านมา

    You should have filled a lawsuit against them for discrimination

    • @LifewithaVent
      @LifewithaVent  7 วันที่ผ่านมา

      Thank you. I appreciate the insight.

  • @nikicarrie4071
    @nikicarrie4071 28 วันที่ผ่านมา +1

    Bc if she didn't and if something went wrong she could loose her nursing license

    • @LifewithaVent
      @LifewithaVent  28 วันที่ผ่านมา

      Thank you for sharing.

  • @JunesTravels
    @JunesTravels 3 หลายเดือนก่อน

    I think her cruise videos are on her other channel

  • @aliciamando
    @aliciamando 3 หลายเดือนก่อน

    We had a similar situation with my trach 8 year old

    • @AndrewBouvier-ix8ot
      @AndrewBouvier-ix8ot 3 หลายเดือนก่อน

      Omg thats horrible :(

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน

      @aliciamando I am so sorry to hear this.

  • @olddudesteve4983
    @olddudesteve4983 3 หลายเดือนก่อน +2

    This video is Out of sync (I must protest), if you’re on a Cruise than all videos should be cruise-related - Anxiously awaiting Part three of your Cruise - not something that happened “several years a-go” 😅😅, hope you’re having a Great time.

    • @dorisirving2270
      @dorisirving2270 3 หลายเดือนก่อน +2

      You have to go to her other channel for cruise related videos

    • @amypearsall
      @amypearsall 3 หลายเดือนก่อน +3

      'Protest' is rather strong; this channel is all about being on a ventilator. Her other channel covers other things. Other video creators do the same, as far as having videos lined up for when they are on vacation.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน +2

      @olddudesteve4983 The cruise video series contains about 12 videos. This translates into 12 weeks of videos. I do not have 12 additional videos about cruising to post on this channel. I may post one or two videos about cruising to this channel.

  • @ilovemyservicedog8862
    @ilovemyservicedog8862 หลายเดือนก่อน

    If the nurse refused to take you, why didn’t they just then send you to the ICU

    • @LifewithaVent
      @LifewithaVent  หลายเดือนก่อน +2

      My medical needs did not require me to be in the ICU. Both my medical doctor and the hospital bed assignor agreed I needed to be in a regular hospital room. My medical case did not necessitate me being in the ICU. The hospital is extremely busy and often the ICUs are completely full. If I would have gone to the ICU, that meant someone else who really needed an ICU bed would have been stuck in the emergency department.

  • @PIA-tj5hc
    @PIA-tj5hc 25 วันที่ผ่านมา +1

    What hospital was this? Absurd

  • @ScientistPrepper
    @ScientistPrepper 3 หลายเดือนก่อน

    OMG. How crazy. And funny video.

  • @tetra3ne56scur3
    @tetra3ne56scur3 3 หลายเดือนก่อน

    The fact that you were banned from the hospital room *doesn’t not make any sense*
    Hospitals are suppose to care
    Like I said, what kind of hospital is this? You were being screwed up in the hospital still by lousy nurses and doctors

    • @sarahdore7884
      @sarahdore7884 3 หลายเดือนก่อน +1

      It is crazy but it’s because most ventilated patients are critically ill and thus in ICU so regular floor nurses don’t know how to take care of a tracheotomy or ventilator. This situation where she can care for herself isn’t typical. Hospitals are so worried about safety and making sure they won’t face litigation I’m not surprised they wouldn’t change their policy on short notice or make an exception

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน

      @tetra3ne56scur3 The issue was not the hospital; it was the nursing staff. The nursing staff decided I could not be in a regular hospital room, even though I am almost always in a regular hospital room (unless I am critically ill and my medical issue requires ICU level care). The hospital and doctors agreed I should be in a regular hospital room. However, the nurses refused the accept me as a patient. Due to this gridlock, I remained on the bed wait list indefinitely, and I spent my hospitalization in the emergency department.

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน

      @sarahdore7884 Thank you for sharing. This hospital does not have a policy that patients who use ventilators must be in the ICU. I have gone to this hospital many times and am usually in a regular hospital room. Hospital policy stated I could be in a regular room. The nursing staff decided that since I was on a ventilator, I was too much work. They refused to accept me as a patient. As a result, I remained on the bed wait list indefinitely.

    • @sarahdore7884
      @sarahdore7884 3 หลายเดือนก่อน

      @@LifewithaVent oh wow I’m sorry, that must have been so frustrating. It too bad when fear comes before taking care of a patient. Staying in the ER is terrible!

    • @LifewithaVent
      @LifewithaVent  3 หลายเดือนก่อน

      @@sarahdore7884 Thank you for your support.