It's getting harder... | IVIG Continued

What questions do you have about IVIG that you want me to answer in my next vlog?? Let me know in the comments!
Here is how IVIG infusion 2 and 3 went. These infusions have definitely gotten harder, but it's all for the best, right? #AllInTheNameOfHealing
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First IVIG Vlog: • My First IVIG Infusion...
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Hi, I'm Victoria! I live with chronic illness and share my journey to healing. I work hard to raise awareness around illness and disability. I'm also a holistic health and wellness blogger, so I share my tips on living a non-toxic or low-toxic lifestyle, delicious and healthy food for those with intolerances or allergies, and how I balance healing with life. I hope you'll join my little corner of the internet :)

[@VictoriaHealing]

Thank you all for the continued support! Here is an update on how IVIG is going. Leave any questions you want me to answer about IVIG in my next vlog and I'll be sure to address those.

[@kristiv83]

You're a, trooper. So glad to see you share this...I've got a friend that has a rare disorder and Lyme as well and she's hardcore w/her Ivig treatments. Best to you always on your healing, journey. Love your channel...especially watching ya cook/shop/prep...I hope to be there again, someday. It's so important to be intuitive w/ your, body and you certainly are in tune with, that! 💚💚💚💚😚💕

[@VictoriaHealing]

Thank you! Yes, I try hard to listen to my gut and what my body is telling me it wants and needs. Not always easy, but it's always right and when I do listen it pays off.

[@richrocketlll]

Good luck with treatments. I've been on IVIG for 10+ years. Its helped me more than I could say. I am in the process of a reduction once again to see if I can get off it. Its been rough at times but it has worked for my CIDP. I am on my second port. Make sure that the port is cared for and used correctly. IVIG and port manufacture have contacts that can advise on proper care and use of each. Stay positive and good luck.

[@AbuSaud0077]

Hi Richard
Hope you fill good, me too I had ICDP AND foot drop in booth leg AND filling bad in my live.
Can you please till me after how many cycle of IVIG YOU GOT IMPROVE?
I already complete 2 cycle of IVIG and no improvment, i loss my balance during walking.

[@richrocketlll]

@@AbuSaud0077 I improved with the first treatment some. But with each treatment I showed improvement. After several the improvement leveled off then it became more of a maintenance dose. My dose is .5 grams per kilogram body weight x 4 days. Every 3rd week. I have been on this dose for over 10 years. I tried a reduced dose but had problems within a few days. My foot drop improved but reflex did not. Still have numbness in feet and hand. But I can walk on my own. If I can help with any question just ask. I will try to explain the best I can.

[@AbuSaud0077]

@@richrocketlll dear Richard, thanks for reply with Hope to Be in good helth.

[@rogoforjohnthreethirty]

Praying for you to be feeling better and yes ultimate healing. 🙏🙏🙏

[@VictoriaHealing]

Thank you so much!

[@smadm2437]

Thanks for sharing xxx please do more on your living arrangements; you mentioned a tour of your pantry? I too am moving as need more space for my routine so would love to hear more about how you organise your space for treatments etc. xxx

[@VictoriaHealing]

Thanks for the support! Great idea, once i move and am organized I will do a tour of how I organize everything treatment wise.

[@smadm2437]

Lemons 'N Lyme Hi Victoria! Am confused...why are you moving from your place in Denver? I missed something! Thx x

[@mireyarincongomez3120]

How you decide to have and IVIG infusion, is it working?
Thank you for sharing your story.

[@AbuSaud0077]

Hope you fill better after the first time IVIG, I will start with it in next week to treater my lag weakness

[@kdcbattlecreek]

I have SPS, and the Dr. says the protocol is either 4-6 or 6-12 weeks. It sounds like you're having one a week? How long did this last?

[@joshbachman7706]

Karen Cooper I too have SPS along with Cerebellar Ataxia. I just had my third infusion... now my kidneys are absolutely killing me. Do you have any reactions afterwards?

[@sonnysolan3327]

Hi
Thanks so much for you ch have gotten so much important info because of you. My son is 19 and has CIDP. Are you having any issues with getting you IVIG’s due to a shortage?

[@bengreek9723]

If your pathogen load is still in nooks and crannys then it makes sense that ivig will cause more symptoms going after them...

[@VictoriaHealing]

Yup, today at the doc they said I might be flaring up the Lyme which isn't necessarily bad, just need to stay on top of things

[@thatnorachick]

Awesome video I follow you on Instagram as well I was just wondering how do you cope with the fear of trying different treatment methods I don't know if I have Lyme yet but I do have all the symptoms of both Lyme and chronic fatigue syndrome so I love watching your videos but I'm terrified to try new treatments because I'm so sensitive to medications and even natural supplements so I was just wondering how you cope with trying different things and how they may affect you?

[@VictoriaHealing]

Such a great question! I often feel more excited then scared when starting new treatments (although I do get nervous) because i want to heal and find something that works. I'm more nervous when starting new meds and supplements. For me, it's best not to research too much and look at the side effects etc. before hand. I start something on a calm week and on a day when I know I can be at home to rest if needed. I usually do some anxiety reducing techniques or deep breathing before taking the new med/supplement or going in for the new treatment. I always give something 4-10 days (unless side effects are too extreme) because many times it's an adjustment period and I just have to kind of get through the uncomfortable first few days of a new treatment.