Day In The Life w/ a T1D Toddler
ฝัง
- เผยแพร่เมื่อ 14 ต.ค. 2024
- Hi all! Here is a Day In The Life with us! Mom of 3 with a T1D toddler. This is a genuine depiction of what our daily life looks like. Any questions, please comment below!
I might do a weekly or daily vlog if you guys are interested! This was fun, but also extremely time consuming, so we'll see!
I don't like how the sugar is still dropping even tho your cramming food in your face it's scary for me I can imagine how you feel with little bit. I just want to say your amazing Mama ❣️ And don't worry about the clothes being folded, it's a full time job taking care of Addie's T1D. And if not one other person gets that, just know I see you and completely understand. It's hard being an adult and dealing with diabetes, but dealing with a toddler who doesn't have a full range of words to tell you if she feels funny because her sugars are high or low that's a whole nother level! Much Love from The Alexander's ❤️💞
You said it just right! I rarely comment on videos, but I literally spoke out loud, "Mama your folded laundry is the last thing to worry about. And whomever says anything is crazy" She is an amazing Mama.
Yeah, because the sensor shows you data from about 15 minutes ago, of course it can’t show instantly how it goes up again 😅
Quickly becoming my favorite channel to tune into - your openness and vulnerability is so refreshing! Thank you for letting us in on your journey with Addie and your family. I also fully appreciate you sharing taking antidepressants ❤
Please don’t let what you watchers say upset you. I am a T1D for many years and some days you do everything perfect and your bs goes out of whack. Those who don’t walk our walk have no right to talk. Diabetes is a tricky disease. You do an amazing job and kids with T1 have to eat! Even if it’s nuggets. Better something than nothing. Love y’all.
Waking up to a low is so annoying! I don’t like being woken up to drink juice but i know it is going to keep me alive. We all support you and Addie! Being a T1D Mum is hard but it’s all about keeping them healthy. We love you guys! Keep strong! Don’t give up!
Why not start vlogging
Especially when u can’t get back to sleep
@@sugarlilylps6238 omg yeah… I could NOT fall asleep last night!
same i hate late night lows and i try to get my sugar up so fast i end up overcorrecting then wakeing up to a high wich i think might be the same amount of aggravation im still working on that.
Yeah, my daughter is always only low in the middle of the night, it’s so annoying waking up from the alarm and then have to wake her up to trink some juice … she is only 17 month and when we wake her up it’s really hard to bring her back to sleep =____=
I’m an EMT, and I love the way you are so kind to your daughter! Awesome job handling her!
Such a good mommy. I’m diabetic and hate drinking juice when I’m tired. I get her vibe! Cutie! My granddaughter has that same shirt! 💙
Thank you so much for this video. My 3 year old was diagnosed last Monday and it’s been a lot mentally. Currently trying to understand the highs and remaining patient for when they can determine his actual dose. It’s been tough mentally some days. He gets his pod in 2 weeks so this was a bit of good news for me. I just want my kid back.
I got my pod not too long ago. What my doctor didn’t tell me is that there is a training that needs to be done before the first pod goes on and that the insulin dosages will be shared with you by your trainer at that time. The training is super simple and they walk you through programming your PDM, setting up your glook and podder central accounts, and setting up/applying the first pod.
I am constantly feeling like I am doing something wrong when my daughter goes low or high, it get so frustrating. So thank you for showing addie's numbers, it helps me remember it's not my fault. We are still dealing with the honeymoon phase, so it just kills me when I've done the same thing for days on end and everytime it does something different. Thank you
Please do more videos showing blood sugars throughout the day. I find it fascinating to see insulin working.
I know it’s difficult to manage and I can see that you are working hard to care for her, but as a diabetes educator, you should seek nutritional counseling from your endocrinologist. The food you are feeding her is not nutritious or nutrient dense which is causing her blood sugar to be all over the place. Feeding her higher fiber and more complex carbs will help this.
I was worried too that I didn't see any healthy snacks like fruit, fiber and protein.
She should give baby some vegetables and sprouts wheat In India we start giving kids veggie fruits and wheat at the age of 1
I know the mother is so hardworking.. But I don't like her grocery shopping.. Those things r loaded with sugar.. Not good for this beautiful child.. I don't want to spread negativity.. But I really like this baby😘... So I suggest you veggies n high fiber diet
With type 1 diabetes you can have meat, chicken, eggs and cheese free, u dont need to use insulin, my two kids had type1 diabetes and now we managed to reverse it alhamdulillah
@@snowflaketurtle7849you never ever reverse T1… T2 you can.
My ten year old has T1D and it's very hard for me and her yes you are doing a great job
Food management is the most difficult part. Much harder than tests and injections. I’d love to see you outside getting sunshine & vitamin D. I don’t mean post. I mean it’s just makes such a difference to anyone in challenging situations. Remember your challenges are normal. You are fantastic mom. No parents is not overwhelmed by this. Accept it step by step, and wipe away each last step as you move forward. No self judgement. Just dedication. I understand all fresh food for a family your size is much more expensive than prepared food. Every day is a new one. You will grow into this same as she does. I’m so impressed with how dedicated to her regiment you are.
I found your channel by watching shorts. I immediately subscribed. I've never heard of the insulin pumps you're talking about. Pretty interesting. Btw you have a beautiful family :)
You are the best mommy and Addie is the bravest little girl. I admire you both.
Just watching your day made me tired and I’m a sathm to 3 kids! Wow your a super mom!
Hats off to you. You're an angel to her.
Looks like a full day keeping on top of things. Drinking juice really early in the morning or really late at night for low blood sugar definitely gets annoying sometimes. She's a happy little thing 😊
You're right, the clothes will always need folding.😂 I always put my children first.❤❤❤❤
Such a good mama! Love you addie!
Wow, I give any parents credit, but especially those with a child that has a chronic illness... So important to stay on top of those sugars! So glad that newer technology is helping!!
You are an amazing mother god bless u and your precious family
I also was concerned with the selected groceries bought, didn’t see one healthy item or meal in the cart. I’m sure it’s super tough but I feel like mama is way too lenient with her on letting her do whatever she wants, yes it sucks to do the site changes all the time, but I feel like you could def have more control over the constant highs and lows. My dad made us sit down and eat what was given to us, no dessert before dinner, if you know that by her taking one bite of pizza and a bunch of frosting means you’ll have to give her more food later like the cookies you give her … why not just be more disciplined with her and don’t let her eat a bunch of sugar and candy snacks and make her eat her meat and veggies…. Also and I’m sorry to keep going on but I promise I’m only saying these things to try
and help, but letting her run off all the time especially taking off down the street is cause for disaster. Being more stern with her will help you be more in control of her behavior.
You are not the only one that are concerned about the poor diet that the little lady has.
To much processed and unhealthy foods.
@@elisahernandez8466 Were you aware they with with a dietician? Are you that person? Is this your child? If the answer is no to both... Knock it off
@@elliesouza717 I have diabetes, and I’m not taking any medications, you know what?, because I have a healthy diet, even for healthy people is not recommended eat frozen food the whole time.
My 4 year old is T1 and I had the same concern but the dietician recommend they have carbs and what they would normally eat because their bodies are still growing.
@@chuckc662 there's a difference between carbs and healthy carbs. It's pretty cruel to deny carbs to kids anyways but looking at what this kid ate all day, i fail to see where she gets her vitamins from which is much harder to keep up than carbs. You'll find carbs in a lot of foods really.
We second that emotion. We're praying for you all the time and know we understand you mommy. Mr. and Mrs. Byron.. 👫👋
What a dedicated dad
Having diabetes and having had a toddler, I can visualize how hard your hourly life must be! It is Moms like you are the superwoman of Moms! I know this must wear on your psyche and your body! In essence to people who don't understand what THIS MOTHER deals with imagine having a newborn for 2 or 3 years, you can't sleep soundly bc you have to CONSTANTLY check blood sugar. I Want you to know supermom I am proud of you!,
This is a genius idea changing her pod and Dexcom when she sleeps
Addie is soo cute ❤️
You are a great mother ❤️
How 😍cute is she 💘. God bless her and mom and fsmily.
You're an amazing Mom 💞
I see people making comments about the food choices but I don’t think there that bad the nuggets were even organic she’s just a kid that’s a normal kid diet
My 4 year old was diagnosed about 2 months ago. The lows while they’re sleeping is always the worst to deal with.
Talk about folding clothes, seeing you have to take care of this precious baby girl. I usually leave clothes in the basket when they come out of the dryer. Y husband irons his clothes that I would hang up and weren’t wrinkled so I figured why waste the time folding and hanging stuff up they were going to get ironed anyways. You are an amazing mom with everything you go through not just with Addie but two other and a hubby.
I agree with you that folding clothes is a waste of time I'd rather be doing anything else but at the same time if you just take the clothes and shove them in a drawer they get all wrinkly and everything and then you have to spend time ironing them unless you're going to walk around and wrinkle clothes when you go out the door and anyway on another subject your daughter I think has the best mom to care for her and she's so cute and I myself and not diabetic but my doctor has told me that if I don't change my diet and the way I eat I will end up with diabetes My husband has it and he don't listen to the doctor and stick to his diet and about once a year ago he wouldn't blind in his eyes for 6 months and couldn't work not 100% blind but blind to the point where all they can see was blur
Does anyone else’s comments dim loads when watching these videos? The video looks super bright and everything else dim… don’t know if it’s just my phone, but it’s only on this channel 😅
Her sugar is all over the place. The food her mother is giving her is concerning and has NO nutritional value. Mom needs to consult with a dietician and get educated.
Consodercalso her liver might be at risk sometimes doabetes can be an underlying cause of a toxic liver due to bad eating habits and is a good idea to start adding whole foods for her
No words...god bless her good health
Complicated but mom and dad got her
Diabetic people are mighty used to being pricked.
That's why the young lass slept through it. 😄😄😄😄😄😄😄😄😄😄😄😄🎉
Looks like a bunch of processed crap. I completely respect the parents but I have watched a ton of her shorts and i have yet to see a wholesome healthy meal given to this baby
Amen!
It’s really interesting how others do it. I am just a little bit shocked, that she eat so much wheat and sugar(especially juice with over 180, that confused me a little), would explain why her blood sugar is that unstable, but I know, it’s hard with children, cause most children don’t eat everything and of course I don’t want to judge, everyone should do it, like it’s best for them … I just didn’t expect it 😅
And dad really should look more after her blood sugar, that’s dangerous 🫣
And about the laundry: who cares, do it the way you feel comfortable with … it doesn’t hurt anyone, if the laundry isn’t folded 😂
Awwww so sweet!
Love you baby 🥰🙌
God bless you for doing what you and always being pleasant and calm. You are a good Mom. The Lord will be with you and your child and keeping on keeping on day after day
God bless, I will be praying for yall. Always
i know diabetes sucks i have had is scenes i was 5 or 6 and it dose get better but its so hard to stay in range but us diabetics love all of you type one moms and dads for helping and supporting us keep thriving and have a blessed life!!!!!
For those of you in the comments talking about the food choices, my sons T1 and they recommend giving kids a regular diet as they need ALL nutrients to continue to grow and this includes carbs. Relax
Do you consider what she bought at the grocery store a regular diet? Just curious...
Dear Mommy I know this vid is a year old but maybe you can still use my advise! Walking or doing something while having a higher blood sugar is not the best option to get it down sometimes because when we don’t have enough insulin in our body it will work the opposite way, and get the BS to go higher instead of going lower.. and it also burns our system.. sometimes it’s just best to chill out on the couch.. I wish my parents and school had this info when I got diabetes back in 95 as a 7 year old.. love how well you take care of your chiquita❤ God bless you🤲🏼❤️❤️
Not everyone sugar reacts the same way sometimes exercise works for my daughter and sometimes it don’t
You’re a great mama
I watch all you're all videos 🤗🤗🤗
I got type 1 diabetes aswell my omnipod beeps really loud which is annoying I have autism adhd anxiety I take medicine about 6 times per day I have one for breakfast one for dinner and one for tea and two for bedtime then hayfever medicine
Love you Addie ❤️❤️😘
I am glad she’s eating her pancakes and sausage. 🙂
Dear sugar patient baby with tough life hard working and more more care baby 😔
Beacuse my baby also type 1 diabetes 😔😔
❤
I would really like to bottle her energy and take a shot of that. ❤
Love the ditl.
Pero, cuantas veces al dia hay q cambiarle el aparatito?
Y come cosas con azucares y precocinados?
Creo que lo tiene que cambiar cada 72 horas el aparato de la insulina y el medidor de glucosa cada semana.
Respecto a la comida hay varias personas comentando que están preocupados por la dieta de La Niña y yo soy una de ellas, como puede darle tan mal de comer si La Niña está enferma, lo único saludable que le dio en todo el día fue el plátano, ni un solo vegetal en todo el día, al contrario puras galletas, jugos, pizzas congeladas, pobre niña.
Ohooooo i don't speak english
I mean i am not more understand english language 🤐but some understand ☺
I'm on same pump cried when you put on her stomach I got diabetes my sugar 1000 coma how is she now I hope doing good stay in touch please
Hi, feeling bad for what a baby has to go through. If u don't mind me asking, can this be cured? I'm from a different part of the world and not much aware about these. Sorry if it is a wrong question.
It's depend on the patient , irregular lifestyle and again level is high
@@priya-wt4srI understand! An elderly person or an adult going through this is somewhat acceptable, but it's upsetting to see what a baby has to go through. I have experienced the same situation with my father, so it's connected.
Usually you can’t cure type 1 diabetes
No cure to diabetes
@@Tony-is9pmHow could you have experienced a similar situation with your father, if you haven’t heard much on this disease? I’m confused by your two differing statements.
Type 1 diabetes is something people are born with, it happens all over the world. There’s no cure.
Do you find addies blood sugar goes up with grapes as I know it effects friends and families who are t1d
2:52 *when I don’t have my phone*
I am so early today
"her sugar is low so we gave her juice"
Later "her sugar is still high so here she is having juice"
WTF
Addie time❤
Brave girl
We are curious what type of juice do you give her?
I mean mother life very responsible life
I know how it feels a I'm a diabetic too
I Remove The old Dexcom G6 For Tomorrow
I Use T1D Day In My Life For Shopping
My son and my daughter has T1d And its hard they are twins
And they fight me so much to switch anything
I also have it and I’m 8 yrs old when I was five that’s when I got it. Also there’s this thing were you can meet other diabetic kids etc also my mum and brother and grandma have it. So as I was saying that you can meet the other diabetics so yeah also can you pin me pls if not that’s totally fine also you can. Meet the kids that are ALSO diabetic there’s under sevens eights and over then you can meet them there on the beach etc etc. so yeah that’s my story and my mums and brothers me and my other family members were just talking about diabetes then HE GOT DIAGNOSED at the hospital crazy right? I. Knowwwww bruv my mum got it when she was 15 my brother got it a yr ago so he’s 18 now but he was seventeen when he got it my uncle I forgot to tell sorry. But idk when he got it but then my grandma got it when she was seven. Anyways byeee stay safe guys😊❤
Did they say anything about glucose tablets?
The poor girl is so young.
Certainly not helping her with the bad nutrition choices. I suggest educating yourself.
I suggest recognizing this isn't your child and that you aren't nearly as smart as you think you are. She has a diabetic team, including dietitians and I am certain you are not one of them
@elliesouza717 Doesn't mean she is following their advice. Also if you post a video to the whole internet, then people have a right to comment their opinions.
@@jenniferpastrana45and most of them say not to restrict food so her kid is fine
How much children do u have?
Can I ask her something
I was eat separate from my mum only light food bcoz i was wirh hepatitis a. You need separate her to eat not with all. Stop buy sugar think cookies. She cannot not eat if u give on all family. My mom and me make cookies cakes in homes.
She is so dang cute! It makes up for all the stupid I have to see.
Child abuse to feed a child this much trash in a day. Absolutely SCARY.
Watch Dougherty Dozens, They're worser, don't judge this family.
Dear all things are sugar free??
No. Not only no need for them to be, but she requires then sometimes
Too much junk food tbh.
Not your daughter and not her dietitian, tbh
@elliesouza717 lol ok? She's not helping her condition. And I'm not wrong for stating the obvious. If sugar is making you sick, you think the answer is consuming the WORST from of sugar possible???(processed) And everyone supporting this is just as bad. She should be removing all this junk food and giving her natural occuring sugars like fructose for ex. if she needs the sugar. Only in America people respond to bad health with food that causes more bad health. Shame
Stop.🛑 her mom is responsible for her and not you. You’re also not her dietitian.
@Ella.swifte I don't care, I said what I said. It's still junk, that's a fact not up for debate
@elliesouza717 I don't care, I said what I said. It's still junk, that's a fact not up for debate
Hy baby
I enjoyed with you're a day
Maybe feeding real food and not processed shit all day long would be a nice place to start.
Yes, I agree. However, I also have diabetic two year old. Toddlers are very picky and it can be difficult to get them to eat healthy. At some point they have to eat because they need carbs and low blood sugars are dangerous. So, with that being said, sometimes whatever a diabetic toddler will eat is good enough for the time being. I offer mine fruits and vegetables constantly. If he eats it great, if not we move on.
@@HhMeno1 you are so right my 4 year old Daughter was just admitted for type 1 diabetes and she’s a VERY PICKY EATER.. And the doctors said not to worry as long as she gets the correct carbs she will be fine , so far day 3 and all she will eat is grilled cheese on wheat in the hospital and grapes and they say it’s okay. We will focus more on different things when we get home. But for now they say we are fine.❤
@@sunflowerbeauty5469 yes she will be ok. It's terrifying right now I know for you. We are 5 months in and it's still hard but we are getting better. Watch out for lows, keep juice and crackers on hand. My son eats grilled cheese, pizza and Mac and cheese and sometimes chicken nuggets. He eats nature valley granola bars and fiber brownies. That's about it. You will learn what foods spike her sugar and what don't. Try and get a Dexcom. You will do fine Momma. Have any questions just let me know.
Maybe realize she has a dietitian so has real, professional advice and not just some random person's opinion
@@elliesouza717 I’m 100% sure nobody who is obese has a dietician for their kid - anyone who willingly is obese but takes care of their kids nutrition is a joke (just like all of you in the comments)
I think you should get more money and toys and the money is for you and the toys is for the 👶 baby OK!!!!🙎
What?
Don't give her sweet food
Stop telling her what to do
The only food in the whole video was the sausage. It was all factory products made for profit. Then their profits grow exponentially through the pharmaceutical arm as this abomination called food keeps the population sicker and sicker. Anyone defending this "diet" is in denial.
@@user-us1vg3bp9v Conspiracies help no one
Are you her dietitian? Did you know that sometimes she had to have them? No and no
@@elliesouza717 How do you know I'm not? Are you
She is still nursing at her age?
So what
SLOW DOWN HER SCREEN BCOZ SHE WILL BLIND, MAKE 50 OR LOW PERCENTS LIGHT.
She is not gonna go blind
Hey ask your doctor for oncology it fir eating it help trust me
Trust you? A complete stranger? Why would anyone trust you? She's has a doctor, a dietitian, actual professional and they aren't you. That's who you trust, not some wingnut on TH-cam
So stop saying that or crying
U don't let a child drink laying down they could joked
She does just fine this way
i once got too full and felt sick, i had to drink 2 cartons of orange juice. not fun lmao
edit: i noticed you didnt add her bg when you bolused just added carbs? if you add the bg then it gives you the amount to bring your bg down because the machine knows your hgh/low ect.