I really appreciate your story. I am so lost with my husband. It's a bit comforting to hear that someone else has these experiences. Thank you for sharing.
These are all so familiar with my mom. You should never feel guilty or bad for being upset sometimes. It's hard for a non-clinician and you loved her which made it more difficult. Music is my mom's saving grace too! Good old gospel music. She loves it.
You are a good man taking care of your wife like that. It breaks my heart seeing my grandad (and aunty) losing patience and being bitter all the time at my grandma with dementia..
Yes, it is hard for the spouse to comprehend. My brother-in-law was the same way. But he got professional counseling to help him take a different attitude.
Ty for sharing your story. I have been helping my mom take care of my dad with alzheimers and frontotemporal atrophy. Yes we get upset when behaviors happen years prior before a diagnosis. We knew something wasn't right but never got a clear diagnosis until last year. We are only human. You are an amazing man to take care of your wife.
Wonderful husband. We are going through it with 84 yr old mum and before meds from hospital psych ward we hated daily sundowning. Son and I went to room locked door just to find peace from her madness! She screamed, hit, wouldn’t do anything we asked. Horrible. Thank goodness for psych meds. Ok costs 6,500$ mo memory care we cannot afford it and she hoarded her home so no way we could get rid of property to get Medicare help.
This literally describes my father's condition. He's 62 but he's been declining for about 3 years, but it's been slowly going for about 6 years (at least). It started before we knew it was starting. He's at a board and care place now, but for a couple years he was living on his own. He did okay for a while but his hygiene declined, he kind of quit eating (despite prepping meals for him each week) and he'd go for walks around the neighborhood... I'd visit him each weekend to make sure he would change his clothes and I'd clean his house. He spent most of his time in front of the TV and then he got to the point he couldn't figure out how to turn it on or change the channel. His sleep schedule was completely screwed up and he would usually sleep on the couch. Towards the end of him living on his own, I had to physically help him shower. He started to become incontinent and that's when we decided to move him into a 'home'... It's so expensive and his disability barely covers half. He had a little bit of money saved up and I already refinanced his house. he's been in the 'home' for about 6 months and they take good care of him and I see him every weekend. He's walking a lot slower, he's really hunched over now and can't easily get in/out of the car when I take him to lunch. He usually repeats the same few words over and over again, but it seems like he doesn't really know he's saying the words. His words are, food, milk, juice, fish, bush, poop and my name and my siblings names. He'll be eating food and keep repeating it. I know he's not actually hungry, but it seems more involuntary than anything. I've been handling his finances for the last three ish years and making sure he pays the bills and I got his house rented out. It's stressful, but I want to make him as comfortable as I can through his final stages of this disease. He worked so hard and raised four kids and always played by the rules. It really sucks he can't enjoy his golden years
I watched a friends mother decline and die with what they called at the time alzheimers. It had to be FTD. She had hallucinations, obsessed with pictures. Wandered off regularly. Told the family conflicting stories. I think they found out because she was telling one daughter something different than the other, and they started arguing over what she had told them, and then realized something was going on. Then they started going to the dr with her and getting everyone involved. I remember her as a very acute woman, smart and strong willed. It was very sad to see the decline.
I am a caregiver here in israel, and dealing with person with dementia is not easy. My first employer have dementia and every night she's shouting and i need to be patient all the time. There are nights that i can't sleep because she's shouting all night. I need to help her to calm herself. I need to play music sometimes just to relax her.. But it didn't work sometimes.. But i love my first employer so much and its very hard for me when she passed away.. Soon i will be uploaded my tribute video for her.. And hope you everyone will visit my youtube for my journey as a caregiver in Israel.. Godbless everyone🥰
A brain scan would be essential, and these days a test for unwanted brain proteins also. You might well need a referral from a GP, and they should be able to start the ball rolling.
Is there a medication that helps keep the person calm..the changes in mood from happy to aggressive are very challenging. I just wished he would stay calm.
The right prescriptions are important. It's too hard on everybody to see a loved one freak out because they don't understand what's going on with themselves! It's hard on everyone involved!
I AM 70 THE WOMAN IN MY LIFE IS 53 AND IS IN REALLY A REALLY BAD PLACE DOESN'T REMEMBER EVEN THINGS AS UNABLE TO WALK AND I HAVE KNOW ONE TO HELP SO I CAN UNDERSTAND AND YES ANGER REAALY BAD
I really appreciate your story. I am so lost with my husband. It's a bit comforting to hear that someone else has these experiences. Thank you for sharing.
Thank you so much for sharing your story. You are clearly a kind and wonderful husband.
These are all so familiar with my mom. You should never feel guilty or bad for being upset sometimes. It's hard for a non-clinician and you loved her which made it more difficult. Music is my mom's saving grace too! Good old gospel music. She loves it.
You are a good man taking care of your wife like that. It breaks my heart seeing my grandad (and aunty) losing patience and being bitter all the time at my grandma with dementia..
Yes, it is hard for the spouse to comprehend. My brother-in-law was the same way. But he got professional counseling to help him take a different attitude.
Ty for sharing your story. I have been helping my mom take care of my dad with alzheimers and frontotemporal atrophy. Yes we get upset when behaviors happen years prior before a diagnosis. We knew something wasn't right but never got a clear diagnosis until last year. We are only human. You are an amazing man to take care of your wife.
Thank you for sharing and helping to raise awareness. You have courage and a kind heart.
Wonderful husband. We are going through it with 84 yr old mum and before meds from hospital psych ward we hated daily sundowning. Son and I went to room locked door just to find peace from her madness! She screamed, hit, wouldn’t do anything we asked. Horrible. Thank goodness for psych meds. Ok costs 6,500$ mo memory care we cannot afford it and she hoarded her home so no way we could get rid of property to get Medicare help.
This literally describes my father's condition. He's 62 but he's been declining for about 3 years, but it's been slowly going for about 6 years (at least). It started before we knew it was starting. He's at a board and care place now, but for a couple years he was living on his own. He did okay for a while but his hygiene declined, he kind of quit eating (despite prepping meals for him each week) and he'd go for walks around the neighborhood... I'd visit him each weekend to make sure he would change his clothes and I'd clean his house. He spent most of his time in front of the TV and then he got to the point he couldn't figure out how to turn it on or change the channel. His sleep schedule was completely screwed up and he would usually sleep on the couch. Towards the end of him living on his own, I had to physically help him shower. He started to become incontinent and that's when we decided to move him into a 'home'... It's so expensive and his disability barely covers half. He had a little bit of money saved up and I already refinanced his house. he's been in the 'home' for about 6 months and they take good care of him and I see him every weekend. He's walking a lot slower, he's really hunched over now and can't easily get in/out of the car when I take him to lunch. He usually repeats the same few words over and over again, but it seems like he doesn't really know he's saying the words. His words are, food, milk, juice, fish, bush, poop and my name and my siblings names. He'll be eating food and keep repeating it. I know he's not actually hungry, but it seems more involuntary than anything. I've been handling his finances for the last three ish years and making sure he pays the bills and I got his house rented out. It's stressful, but I want to make him as comfortable as I can through his final stages of this disease. He worked so hard and raised four kids and always played by the rules. It really sucks he can't enjoy his golden years
Good man and husband, peace.
God bless you on your journey. Mine ended last August with our Dad. You definitely have to laugh when you can.
I watched a friends mother decline and die with what they called at the time alzheimers. It had to be FTD. She had hallucinations, obsessed with pictures. Wandered off regularly. Told the family conflicting stories. I think they found out because she was telling one daughter something different than the other, and they started arguing over what she had told them, and then realized something was going on. Then they started going to the dr with her and getting everyone involved. I remember her as a very acute woman, smart and strong willed. It was very sad to see the decline.
They are lost. Bless them. 😔
I am a caregiver here in israel, and dealing with person with dementia is not easy. My first employer have dementia and every night she's shouting and i need to be patient all the time. There are nights that i can't sleep because she's shouting all night. I need to help her to calm herself. I need to play music sometimes just to relax her.. But it didn't work sometimes..
But i love my first employer so much and its very hard for me when she passed away.. Soon i will be uploaded my tribute video for her.. And hope you everyone will visit my youtube for my journey as a caregiver in Israel..
Godbless everyone🥰
I heard it works best if it's the sort of music they adored as a teen and young adult
Do you think a brain scan from Dr Amen would be a good way to diagnose?
A brain scan would be essential, and these days a test for unwanted brain proteins also. You might well need a referral from a GP, and they should be able to start the ball rolling.
Is there a medication that helps keep the person calm..the changes in mood from happy to aggressive are very challenging. I just wished he would stay calm.
Yes, there are MANY adjustments to be made
The right prescriptions are important. It's too hard on everybody to see a loved one freak out because they don't understand what's going on with themselves! It's hard on everyone involved!
I AM 70 THE WOMAN IN MY LIFE IS 53 AND IS IN REALLY A REALLY BAD PLACE DOESN'T REMEMBER EVEN THINGS AS UNABLE TO WALK AND I HAVE KNOW ONE TO HELP SO I CAN UNDERSTAND AND YES ANGER REAALY BAD
Thank you
You sure she was the schizophrenic one…??.?
Just sayin’
Sounds like this husband was always in " a hurry"
That's a very unfair comment. This very good man has shared how he had to slow down. He's a beautiful soul.
Debi Barrington Bitch
Yeah cos he had to earn money you horrible bitch
If you have never done what he's doing, perhaps you are unaware what it's like to do total care for a full grown adult. Your remark is unkind.
Some jobs, you'll always be in a hurry. I've done that. It's unfair on the family, gut so is getting yourself sacked.