Right? It’s like even the thought of making something to eat can feel like too much sometimes. Some days just picking what to eat is exhausting, let alone actually making it! Glad I’m not the only one who feels this way. Thanks for chiming in, Jane-makes me feel less alone in the struggle!
Thank you for sharing this. My family is trying to be sweet by asking me what I want for my birthday and what restaurant we should go to etc… but I’m in a flare, my brain is foggy and I can’t find the right words right now. I don’t feel like I can make any decisions. I finally told my husband that I just need to go to bed… that I can’t think right now. I’m sorry to hear you’re in a flare and in pain. Take care of yourself, Daniela! 💗
Oh, Debra, I can so relate to that foggy, overwhelming feeling when you're just stretched too thin. It’s so sweet that your family wants to make your birthday special, but I totally get how even just the thought of making a decision can feel like too much during a flare. Sometimes, just saying "I need rest" is the best (and only) answer we can give. I'm really glad you let your husband know you just needed to rest, that can be such a hard thing to say but is so important. Thank you for sharing with me, too. Take care of yourself, and don’t be hard on yourself for needing this time. You deserve all the kindness and care, especially from yourself. 💕
AHHH just got home from work with my back and arms and muscles burning. ( I'm the hairstylist) It's after 4:30 and I'm going to eat and go to bed. Ugh.. hugs from Michigan.
Oh man, I feel that exhaustion through the screen! Being a hairstylist is no joke, so much time on your feet and constantly using your arms. I can only imagine how much that burns by the end of the day. Sounds like bed and some serious rest is the only plan for tonight. Sending hugs back from here, and I hope you can recharge. Hang in there, you’re doing amazing work, even if it totally wipes you out some days!
I have had 2 bad flares this week. I feel so stupid because I can’t talk. Anyway taking it easy today and feel a little better. Hope you feel better soon. Stay safe!
Flares are so brutal, and it’s hard not to feel frustrated when they mess with basic things like speaking. Taking it easy sounds like exactly what you need right now. Hang in there, and know you’re not alone in this.
I'm with you on the struggles, I keep having flare-ups because I did way too much the past two weeks, and everything hurts on top of having a hard time thinking and talking clearly. I'm so tired, and I am having such a hard time getting things done today. Rest day for sure!!
It’s so easy to push ourselves too hard when we’re feeling a little better, and then bam, a flare-up knocks us down again. The brain fog and body pain combo is just the worst. I’m so glad you’re taking a rest day, it sounds like you’ve more than earned it. Sometimes doing nothing is the hardest but most needed thing we can do. Hang in there, and let yourself fully recharge, you’ve got this! 🌸
Daniela, I know what you mean when you say working with the pottery exacerbated your symptoms. Lately, my flares with my costochondritis have been really bad and the pain now spreads into my back and arms and both left and right sides of back and chest. Doing the simplest things now causes so much pain. It hurts to breathe. Plus with my husband's failing health, the worry and stress for him is compounding it. I always feel better watching your videos. You are so real and genuine and you push through as hard as it is. Thank you for making these videos as I know they take a lot of time and energy, but please know how much you help me to keep going. Some days are so hard. Love and Hugs to you dear lady.🫂🫂💝💝 Geri
Oh, Geri, I’m so sorry to hear about all you’re going through. Costochondritis flares are absolutely brutal, and then adding in the stress and worry about your husband’s health, that’s so much for one person to carry. I completely understand how even the simplest tasks can feel overwhelming when the pain is that intense. I’m so touched that my videos bring you some comfort and strength, your support really keeps me going, too. Please know that you’re not alone in this, and on those really hard days, we’re in this together. Sending so much love and gentle hugs right back to you. ♥️
Lately I’ve been trying to keep healthy cereal, nonfat plain yogurt, red or black grapes, blueberries, and ripe bananas in my home. Black grapes are my favorite fruit but they are only available in stores for a short season. Blueberries are out of season right now so I can buy frozen ones to keep for a rainy day. I’ll thaw 2-3 days worth for when I’m waiting for the bananas to ripen. As the berries thaw they release this delicious liqueur that flavors my yogurt or the milk in my cereal. Frozen blueberries are said to be healthier for you than those big expensive ones sold by a famous company, there is less sugar. I used to put both bananas and blueberries in my cereal or yogurt but I recently learned that adding bananas nullifies all the good things that are in blueberries, so I’ll try to have them on alternate days. Carbs like potatoes and bread are a definite temptation for me so I try to use wild rice and brown rice instead. Eating healthy is definitely a struggle when you’re exhausted and in a great deal of pain. The recipe you made looks delicious and healthy. When I was a child my mother always cooked extra pasta for spaghetti and a day or two later she would brown it in butter and scramble eggs and ham into it for a delicious, quick supper. That’s not too bad if you use whole wheat pasta and take it easy on the butter. I hope you’re feeling better now. That was very a very helpful example you set by going out into your garden and getting some sunshine and Vitamin D. Sometimes it’s hard to just get up and put one foot in front of the other, but it can be a big help so long as you keep your activity at a moderate level and take frequent breaks. This was a welcome video and we’re grateful for it. I hope that some of my food tips will help you and your viewers. Your clothes always look so comfortable and soft, and that’s another great way for a sufferer to show some self-love. Thanks again for your channel and your Substack newsletter. I look forward to them all the time. Lately I’ve cut back on my screen time and I’ve been getting a lot more sleep, but I know you have a new post on Substack and I’ll be reading it soon. Thanks for all your hard work. Be well, my friend. Sending you hope and big hugs!❤❤❤
I’m always so touched by the thought and care you put into your comments. You’ve created such a balanced and thoughtful approach to eating healthy, even when it’s not easy. I love the idea of thawing frozen blueberries and letting them release the juice. And the memories of your mom’s pasta leftovers turned into buttery, delicious meals made me smile, such a comforting tradition! I really appreciate your kind words about the video and your encouragement. You’re so right. it can be such a struggle just to get moving some days, but sunshine and small steps really do make a difference. Your reminder about keeping activity at a moderate level and taking breaks is spot-on. It’s all about pacing ourselves, something I am not very good at. I’m so glad the Substack newsletter has been something you look forward to, that means the world to me! Thank you for all the love and encouragement you always bring here. Sending you so much gratitude, hope, and the biggest hugs back! ❤️❤️❤️
I am struggling with fatigue. The fatigue is just taking over my days. I miss living my life. Doing things that I enjoy. Just being me. I hate trying to cook. I end up just standing, staring at the cupboards and the brain fog just leaves my mind blank. I tend to end up eating very small amounts of food as the fatigue/pain leaves me feeling nauseous. Thank you for sharing with us. It helps to know I'm not just being weird. This is all normal for fibromyalgia and ME/CFS. Sending you lots of love and hugs XxXxXxXxXx
I hear you so much on this. The fatigue and brain fog are just relentless, aren’t they? Thank you for sharing this because honestly, it’s comforting to know we’re not alone in this weird, exhausting experience. It really is “normal” for what we’re going through, though it’s anything but easy. Sending you so much love and gentle hugs right back! Just being here, sharing, and being honest about it all shows so much strength. 💜
I don't know how Canada got so lost. The idea of harm reduction originally came from Vancouver. In the last 2 years has put a billion dollars towards home care. Let this message find you and you finding answers.
If your flair happened on November 1st? Your next will be on December 3rd. That was my first in 2012 December. If these things are true at least someone noticed this hellish rhythm. If any of this is true? Take stock our inner monster could be Beatable
Simple whole baked chicken recipe. Put zero ingredients on the outside of the bird. A little olive oil garlic es add shallots black pepper and more than usual salt goes on the inside. S this destroys the difference between dark and white meat
Watching Canadian healthcare videos on TH-cam perhaps a glimmer of hope. The radical doctor who changed healthcare in Ontario and Canada. Palative home Care. I have an idea what you're thinking about a home hospice. The social worker explains it to me this way. Instead of waiting endlessly for a pain pill are the physical and occupational therapy is I need. Sign up for hospice and those things will be here tomorrow. I'm doing it I have no choice I'm too beat s up from the system
Great vid! Making his eyes roll back as he immerses in bliss, it's a mind-blowing experience, I did what I mentioned last week and the look on his face says it all, I learned the exact moves following Jevie Hindlerg’s advice. After go’ogling her latest it all keeps getting crazier!
Hi Daniela. Have you ever heard of the starch solution?...if not, there is a lot of available information and amazing results about it on the internet and youtube. Daniela, try to give something a chance for a couple of months and evaluate yourself. What does it take half a year compared to the time you already have? :) I wish you a lot of strength and determination. 🙂
When Obama destroyed pain treatment in the beginning some were e recommending getting on methadone on a low dose. Suboxone too. I consider both substandard and hideous but here we are this is the world and which we find ourselves
Hey James! I appreciate you taking the time to share your thoughts. It’s such a tough and frustrating topic when it comes to pain management and how policies have affected access to proper care. I hear you on how exhausting it is to navigate all this, especially when it feels like the world has made it harder for people like us who deal with chronic conditions every single day. It’s like we’re left to just fend for ourselves, and that can feel so isolating. Also, I didn’t scrub your comments, I value every single one of them, truly. I’ll make sure I go through everything you’ve shared today. You always bring so much perspective and passion to the table, and that’s something I deeply respect. Keep sharing your voice, it matters so much. Sending strength and support your way, my friend! ❤️
I always love it when you post!🤍
Yay! Thank you!
Ditto here. Exactly about trying to fix something to eat.
Right? It’s like even the thought of making something to eat can feel like too much sometimes. Some days just picking what to eat is exhausting, let alone actually making it! Glad I’m not the only one who feels this way. Thanks for chiming in, Jane-makes me feel less alone in the struggle!
Thank you for sharing this. My family is trying to be sweet by asking me what I want for my birthday and what restaurant we should go to etc… but I’m in a flare, my brain is foggy and I can’t find the right words right now. I don’t feel like I can make any decisions. I finally told my husband that I just need to go to bed… that I can’t think right now. I’m sorry to hear you’re in a flare and in pain. Take care of yourself, Daniela! 💗
Oh, Debra, I can so relate to that foggy, overwhelming feeling when you're just stretched too thin. It’s so sweet that your family wants to make your birthday special, but I totally get how even just the thought of making a decision can feel like too much during a flare. Sometimes, just saying "I need rest" is the best (and only) answer we can give. I'm really glad you let your husband know you just needed to rest, that can be such a hard thing to say but is so important. Thank you for sharing with me, too. Take care of yourself, and don’t be hard on yourself for needing this time. You deserve all the kindness and care, especially from yourself. 💕
AHHH just got home from work with my back and arms and muscles burning. ( I'm the hairstylist) It's after 4:30 and I'm going to eat and go to bed. Ugh.. hugs from Michigan.
Oh man, I feel that exhaustion through the screen! Being a hairstylist is no joke, so much time on your feet and constantly using your arms. I can only imagine how much that burns by the end of the day. Sounds like bed and some serious rest is the only plan for tonight. Sending hugs back from here, and I hope you can recharge. Hang in there, you’re doing amazing work, even if it totally wipes you out some days!
I have had 2 bad flares this week. I feel so stupid because I can’t talk. Anyway taking it easy today and feel a little better. Hope you feel better soon. Stay safe!
Flares are so brutal, and it’s hard not to feel frustrated when they mess with basic things like speaking. Taking it easy sounds like exactly what you need right now. Hang in there, and know you’re not alone in this.
I'm with you on the struggles, I keep having flare-ups because I did way too much the past two weeks, and everything hurts on top of having a hard time thinking and talking clearly. I'm so tired, and I am having such a hard time getting things done today. Rest day for sure!!
It’s so easy to push ourselves too hard when we’re feeling a little better, and then bam, a flare-up knocks us down again. The brain fog and body pain combo is just the worst. I’m so glad you’re taking a rest day, it sounds like you’ve more than earned it. Sometimes doing nothing is the hardest but most needed thing we can do. Hang in there, and let yourself fully recharge, you’ve got this! 🌸
Daniela, I know what you mean when you say working with the pottery exacerbated your symptoms. Lately, my flares with my costochondritis have been really bad and the pain now spreads into my back and arms and both left and right sides of back and chest. Doing the simplest things now causes so much pain. It hurts to breathe. Plus with my husband's failing health, the worry and stress for him is compounding it. I always feel better watching your videos. You are so real and genuine and you push through as hard as it is. Thank you for making these videos as I know they take a lot of time and energy, but please know how much you help me to keep going. Some days are so hard. Love and Hugs to you dear lady.🫂🫂💝💝 Geri
Oh, Geri, I’m so sorry to hear about all you’re going through. Costochondritis flares are absolutely brutal, and then adding in the stress and worry about your husband’s health, that’s so much for one person to carry. I completely understand how even the simplest tasks can feel overwhelming when the pain is that intense. I’m so touched that my videos bring you some comfort and strength, your support really keeps me going, too. Please know that you’re not alone in this, and on those really hard days, we’re in this together. Sending so much love and gentle hugs right back to you. ♥️
@@tt_looking_glass Thank you so so much Daniela! You are a blessing to my heart!💝💝💕💕
the brain fog and difficulty speaking can be so frustrating
Thank you so much, Jessie! Sending all the love right back to you! 💕
Lately I’ve been trying to keep healthy cereal, nonfat plain yogurt, red or black grapes, blueberries, and ripe bananas in my home. Black grapes are my favorite fruit but they are only available in stores for a short season. Blueberries are out of season right now so I can buy frozen ones to keep for a rainy day. I’ll thaw 2-3 days worth for when I’m waiting for the bananas to ripen. As the berries thaw they release this delicious liqueur that flavors my yogurt or the milk in my cereal. Frozen blueberries are said to be healthier for you than those big expensive ones sold by a famous company, there is less sugar. I used to put both bananas and blueberries in my cereal or yogurt but I recently learned that adding bananas nullifies all the good things that are in blueberries, so I’ll try to have them on alternate days. Carbs like potatoes and bread are a definite temptation for me so I try to use wild rice and brown rice instead. Eating healthy is definitely a struggle when you’re exhausted and in a great deal of pain. The recipe you made looks delicious and healthy. When I was a child my mother always cooked extra pasta for spaghetti and a day or two later she would brown it in butter and scramble eggs and ham into it for a delicious, quick supper. That’s not too bad if you use whole wheat pasta and take it easy on the butter.
I hope you’re feeling better now. That was very a very helpful example you set by going out into your garden and getting some sunshine and Vitamin D. Sometimes it’s hard to just get up and put one foot in front of the other, but it can be a big help so long as you keep your activity at a moderate level and take frequent breaks. This was a welcome video and we’re grateful for it. I hope that some of my food tips will help you and your viewers. Your clothes always look so comfortable and soft, and that’s another great way for a sufferer to show some self-love.
Thanks again for your channel and your Substack newsletter. I look forward to them all the time. Lately I’ve cut back on my screen time and I’ve been getting a lot more sleep, but I know you have a new post on Substack and I’ll be reading it soon. Thanks for all your hard work. Be well, my friend. Sending you hope and big hugs!❤❤❤
I’m always so touched by the thought and care you put into your comments. You’ve created such a balanced and thoughtful approach to eating healthy, even when it’s not easy. I love the idea of thawing frozen blueberries and letting them release the juice. And the memories of your mom’s pasta leftovers turned into buttery, delicious meals made me smile, such a comforting tradition!
I really appreciate your kind words about the video and your encouragement. You’re so right. it can be such a struggle just to get moving some days, but sunshine and small steps really do make a difference. Your reminder about keeping activity at a moderate level and taking breaks is spot-on. It’s all about pacing ourselves, something I am not very good at.
I’m so glad the Substack newsletter has been something you look forward to, that means the world to me! Thank you for all the love and encouragement you always bring here. Sending you so much gratitude, hope, and the biggest hugs back! ❤️❤️❤️
They haven't taken it down yet please look
there is a plant apt free for phone, I had poison ivy growing next to my comphrey
Oh no, that’s rough! Hope you got it cleared out without too much hassle, poison ivy is no joke! 🌱
I am struggling with fatigue. The fatigue is just taking over my days. I miss living my life. Doing things that I enjoy. Just being me.
I hate trying to cook. I end up just standing, staring at the cupboards and the brain fog just leaves my mind blank.
I tend to end up eating very small amounts of food as the fatigue/pain leaves me feeling nauseous.
Thank you for sharing with us. It helps to know I'm not just being weird. This is all normal for fibromyalgia and ME/CFS.
Sending you lots of love and hugs XxXxXxXxXx
I hear you so much on this. The fatigue and brain fog are just relentless, aren’t they? Thank you for sharing this because honestly, it’s comforting to know we’re not alone in this weird, exhausting experience. It really is “normal” for what we’re going through, though it’s anything but easy. Sending you so much love and gentle hugs right back! Just being here, sharing, and being honest about it all shows so much strength. 💜
I don't know how Canada got so lost. The idea of harm reduction originally came from Vancouver. In the last 2 years has put a billion dollars towards home care. Let this message find you and you finding answers.
Tarlov cyst represents hell in its own right. Unlike fibromyalgia though it's treatable.
If your flair happened on November 1st? Your next will be on December 3rd. That was my first in 2012 December. If these things are true at least someone noticed this hellish rhythm. If any of this is true? Take stock our inner monster could be Beatable
Remember your tarlov cyst is in the sacrum making sitting a problem
Simple whole baked chicken recipe. Put zero ingredients on the outside of the bird. A little olive oil garlic es add shallots black pepper and more than usual salt goes on the inside. S this destroys the difference between dark and white meat
You can eat the chicken if you do it within 24 hours you don't have to refrigerate
I can't remember if I ever told you. My perineural cyst is s1 like you
Aloe vera increases nutrient assimilation 5,000 % NIH
Protein shakes are a go to for me especially on bad days
Thanks for the tip!
Watching Canadian healthcare videos on TH-cam perhaps a glimmer of hope. The radical doctor who changed healthcare in Ontario and Canada. Palative home Care. I have an idea what you're thinking about a home hospice. The social worker explains it to me this way. Instead of waiting endlessly for a pain pill are the physical and occupational therapy is I need. Sign up for hospice and those things will be here tomorrow. I'm doing it I have no choice I'm too beat s up from the system
Please look now Daniela before they take it down
Great vid! Making his eyes roll back as he immerses in bliss, it's a mind-blowing experience, I did what I mentioned last week and the look on his face says it all, I learned the exact moves following Jevie Hindlerg’s advice. After go’ogling her latest it all keeps getting crazier!
Hi Daniela. Have you ever heard of the starch solution?...if not, there is a lot of available information and amazing results about it on the internet and youtube. Daniela, try to give something a chance for a couple of months and evaluate yourself. What does it take half a year compared to the time you already have? :) I wish you a lot of strength and determination. 🙂
Hey Kati! Thanks for the suggestion and the encouragement 😊 I Appreciate you looking out for me! 🌟
@@tt_looking_glass You are always welcome.🙂
Alphabet as in an organization should stay far away from survivor health videos
Work in the puppy into all videos might help
When Obama destroyed pain treatment in the beginning some were e recommending getting on methadone on a low dose. Suboxone too. I consider both substandard and hideous but here we are this is the world and which we find ourselves
Good morning Daniela instead of scrubbing my comments as usual. They are spread out within the thread please read every comment I posted today
Hey James! I appreciate you taking the time to share your thoughts. It’s such a tough and frustrating topic when it comes to pain management and how policies have affected access to proper care. I hear you on how exhausting it is to navigate all this, especially when it feels like the world has made it harder for people like us who deal with chronic conditions every single day. It’s like we’re left to just fend for ourselves, and that can feel so isolating.
Also, I didn’t scrub your comments, I value every single one of them, truly. I’ll make sure I go through everything you’ve shared today. You always bring so much perspective and passion to the table, and that’s something I deeply respect. Keep sharing your voice, it matters so much. Sending strength and support your way, my friend! ❤️
Do you have hypomobility
@Truerealism747 I'm confused are you asking me?
I think he/she is asking me. To answer the question, I do not have hypermobility. Doctors do not believe I have EDS.