Nathan Berman some foods do taste different than their gluten free versions, or at least I’ve heard from family members. Cake is apparently drier than cake that contains gluten, and the ingredients aren’t the same in the food obviously so it does have a different taste. Plus there are foods I’ve never had before because it’s really hard to find a gluten free version. I’ve never in my life had mozzarella sticks, or a soft pretzel. I’m just saying that gluten free food isn’t the same. Also yeah, I know that it’s hard for people egg and milk free. I get it. But the severity of people’s reactions to gluten can differ and be almost or as bad as an allergy reaction. As for me if I eat even the smallest amount of gluten, I will barf for hours upon end and most likely become dehydrated and need IV fluids. This happened at my b-day party in front of all my friends which sucked, but l know it’s not that hard. I just kinda feel alone as the only person in my entire school that is gluten free.
Nathan Berman mozzarella sticks do have gluten, they are literally coated in bread crumbs, or at least in my country. Trust me, I know this stuff, I’ve been gluten free for over 7 years. Idk it’s just routine to me now, but I kind of wish I could do things like buy lunch at school, and not worry about getting sick so easily
I also have celiac disease. I have known that I have had it since I was 6. I will be going to college in the fall and it was really difficult to pick a school because of location and what was around the college!!!! I completely understand your struggle!!!
Ye me too, but I also got diagnosed when I was a baby and I'm 15 now so ye, I'm still not used to it I get scared when I go on a school trip or a party or restaurant
I’ve had it since I was 1 or 2 but I wasn’t diagnosed until 5 and I wish I could remember what real food tastes like. I ate gluten today by accident and I barfed 11 times. Also I modeled for a while as a toddler and booked a lot of jobs, unfortunately at 3 I stopped because I was starting to look sick and I still didn’t look too healthy until about 6 or 7. I hate celiac disease and I wish that there was a cure.
Maddie's Random Videos I was just diagnosed at 30 and cut gluten immediately and I still don’t have it under control 😞 I’m mexican/Italian my diet was all gluten lol it was a killer
That must’ve been terrible, I’m Italian too and I used to eat a lot of pizza and pasta, luckily there are gluten free alternatives but I’m not sure if they taste the same as the gluten ones, it’s been 7 years
Yeah. I feel like I have been held back by so much in life. After recovering from the disease life became easier and all of the sudden I could think and see clearly. All of the sudden I could keep up mentally and physically with others
I know how you feel. I just found out about it the past few years and I have been misdiagnosed for 20 years! They were telling me that I was just a hypochondriac and I had to go through the embarrassments of being sent to multiple different types of psych doctors that would say that they were sure they felt that I am not lying or trying to get the attention that they think I want. Damn, that is not the kind of attention that anyone would choose from due to the fact that it is not a visible thing to say yes it is right there... I'm sorry you weren't diagnosed earlier either. May you have great health in your future ❤️✨🌍
i have it as well i actually found out a couple of months ago... i’m 14, .... i have been on a gluten free diet for about 2 months and still have symptoms but i am taking medicine and getting better!! it’s hard but it gets easier over time
What kind of medications are you taking? I was diagnosed a year ago and been on the gluten free diet but I am still experiencing a lot of symptoms and any help can go a long way
Andretti 96 the other symptoms you are experiencing might not be from gluten? I was doing a gluten free diet and still experienced pain, I now avoid wheat, gluten, oats, soya, mil, dairy etc Try cut out some other food
@@georgiamya Did you have pale stools? I went gluten free but I got pale stools still wth. I'm thinking dairy might be the culprit so I'm.now trying to go dairy free. I just want normal stools 😭
I’m 17 I found out I had it in May of this year. I went in to the hospital with terrible stomach pains and flu like symptoms in January, I spent like 3 days in and out of the ER and finally they checked me in the fourth day bc they were like something’s wrong you don’t just have the flu. They had already tested me a twice and they concluded that I had been extremely constipated. So they sent me home with meds for constipation but i could barely hold them down. I went back they gave me ketamine after giving me this citrus drink for constipation, which ended up tearing my stomach apart as I was already experiencing acid reflux and vomiting and these ppl were like your just constipated. (I knew it wasn’t just constipation and I was pissed bc they were lolly gagging while I’m in immense pain) And my pain in my stomach was unbearable to the point where my mom thinks I’m dying and low key so did I honestly I would’ve rather died than experienced that pain and that time. So we go back and they are like okay let’s get you checked into the hospital bc clearly it’s not just constipation. With all these test they’ve already taken they still didn’t know what was wrong with me, and they were convinced that I had a virus of some sort. The testing came back and concluded that I had Norovirus, which is similar to the flu just a little more intense. However the doctors believed their was still something wrong with my stomach bc they had never seen anyone with that bad of pain and only have Norovirus. So we went to a specialist, and I had to do a colonoscopy to see if I had any ulcers that would cause pain. Well we did it and he found symptoms and signs of celiac disease but couldn’t confirm that without and actual celiac test. So I had to eat all this gluten for like a month before doing the test to see if I had it but bc of Covid-19, everything shutdown after that so I didn’t find out until May and I did these tests before mid March.
Something that’s helped me with celiac disease is going onto a low carb diet. I had the least amount of joint pain, stomach pain, acid reflux, etc. on that diet.
I'm 12 and I was diagnosed when I was 18 months old so people who recently got diagnosed with it at least u get to remember what gluten food tasted like ik the change might be harder for you but be happy u got to experience gluten food
Yes and no, I’m 17 and was recently diagnosed, knowing what things with gluten tastes like can make it harder bc it can be extremely difficult to ignore certain cravings and getting off that lifestyle can be harder as well however I do understand your viewpoint bc there’s foods you’ve never gotten a chance to try
The sad truth.. I was diagnosed when i was 35 yrs old..im in stage 3 of the disease (4 stages btw) They say i have the silent type All my vitamins and minerals are low Stopped gluten it really made a difference.. I feel alot healthier.. Just shop groceries on your own, bring your own snackd to a party, pack ur lunch and enjoy all foods that are free of gluten. GET WELL SOON 🤗
i have cileac disease.I was starting to have stomach pain too....i got it when i was 8. I have to eat gluten free stuff. If i eat gluten my stomach would hurt really badly even if i ate a tiny little peice. Thats how bad my case is. Edit: Woah I was being rude. This was a year ago- sorry if I was being rude lmao and sorry for my bad spelling- bro looking back at this im just-
Years ago In Summer I experienced severe abdominal pain with vomiting. As a objective thinker I was looking for cause and I did a great observation and did an experiment. I solve that situation and never I experience that abdominal pain and vomiting. Is very simple.
@@sxxgg. Why? There are so many options with gluten free. You can basically eat what you were eating before just with different kinds of flours such as rice flours, or potato flours...
I can help you because is not such thing as celiac disease. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
39 male. had calcium deposits in shoulder. had surgery for that. soon after had constant dull achey pain, with occasional intense stab pain in liver gallbladder area. blood work showed very high sensitivity to gluten. I had headaches all the time, canker sores, sore joints. I usually eat decent and workout but I know I was consuming tons of gluten. I feel the malabsorption of calcium caused the deposits in my shoulder which was excrucitating. I dealth with 2 years of brain frog as well. been gluten free 6 months. or at least 98% and I feel decent. headaches are gone and my head feels clear. cankers sores are way less apparent. I still have a weird pain in the gall bladder liver area tho. not as bad as it was but its still there. I notice it most in bed.
Considering over time celiac disease can cause schizophrenia like symptoms why do we not test for celiac disease before diagnosing someone as schizophrenic? I have been studying the effects of celiac disease and keep finding situations and individuals that are getting therapy and medication for hallucinations and insomnia. Problem is these individuals had severe celiac disease that went untreated for over a decade. I have also met individuals that were diagnosed with fibromyalgia when in reality it was celiac. Considering we can test for celiac can a professional in the industry explain to me why this isn't explored in mental health considering it can cause so many mental health symptoms? Anxiety, depression, insomnia, hallucinations and fatigue are common complaints in patients with untreated celiac disease and contribute to lower quality of life. While aspects of these conditions may improve within a few months after starting a gluten-free diet, some patients continue to suffer from significant psychological morbidity. Psychological symptoms may affect the quality of life and the dietary adherence. Health care professionals need to be aware of the ongoing psychological burden of celiac disease in order to support patients with this disease. Please note I am in no way trying to promote a gluten free diet for mental health. I am trying to promote medical testing before giving certain diagnoses to individuals that will effect them in the long term.
Years ago In Summer I experienced severe abdominal pain with vomiting. As a objective thinker I was looking for cause and I did a great observation and did an experiment. I solve that situation and never I experience that abdominal pain and vomiting. Is very simple.
@@Alex-wx8be David Muresan Years ago In Summer I experienced severe abdominal pain with vomiting. As a objective thinker I was looking for cause and I did a great observation and did an experiment. I solve that situation and never I experience that abdominal pain and vomiting. Is very simple.
I got celiac when I was in 1st grade.. At first I felt like everything was so unfair! I could not get any food from school. And it was more difficult for my family to help me. Gluten free food is so expensive! To get gluten free bread at a restraunt it is like $3 it just bothers me....
Cookie cat With milk there are lots of gluten free donuts on the market if you know where to look. I think the big thing is transitioning out of eating things that contained gluten that you loved and just switching over to a more Paleo Diet, where you're not eating grains at all. But I will admit that I have purchased the gluten free donuts from Sprouts before, and then I look at the ingredient listing and I realize I don't want to be putting that stuff in my body. A lot of the gluten free products are just as junky as standard products. But I feel ya.
George Vessey I got it when I was 7. Every single class birthday I sat alone and bored. Every dinner my family has I cannot eat the bread. On school trips I get grilled chicken or just barely salad. When I eat something with little to no gluten my stomach hurts worse than anything ever. People think I’m just doing it to be trendy so they aren’t careful about it like with allergies. It’s not the worse situation but it still sucks
I have celiac disease that doesn’t react to gluten free diet, the symptoms I experience are becoming more and more painful as I try new medications and I fear they will continue to get worse
I was diagnosed at 3 months old. I'm 15...I still get the "Oh I'm gluten free too. *Goes and eats bread* but it only gives me a stomach ache." Like bruhh that's not celiac...that's gluten intolerant. Get it right
well i was diagnosed when i was 10 after having a biopsie after a year a dieting the doc said i m ok nd i can cut the diet i did until i got a lot worse i got back to the diet after checking with another doc when i was 19 now i m 21 nd no one really cares about my celiac or understands i have been eating nothing but white rice the last two years some vegies here nd there it s kinda not easy my parents think it s not a big deal nd they shouldn t waste money on my diet while i m still in uni full time nd not allowed to work i sell some portraits when i can to try to get some gluten free food i have a lot of health issues but no one really believe my parents keep telling me that it s no big deal nd i should stop it ( i wish i could) i m just lost in some part of my life i wanna work hard for a better future but i can t really i m just too tired too sick too hungry all the time when i try too hard i end up collapsing
I was diagnosed in November 2017 the symptoms was very embarrassing I occasionally feel sick & throw up but for some reason I never take it seriously over the past few years I've had some pizzas, ham & cheese sandwiches using normal bread but other times I use gluten free bread & other products I'm just wondering if I could possibly do more unknown damage if I'm not careful its got me worried & concern I've just gotta tell myself no more food containing any wheat which isn't easy 2 do
Unlike people that are gluten sensitive and they get sick after eating something with gluten in it, they are not damaging their small intestines as those with Celiac Disease. Those with Celiac, every time they eat something with gluten, they are damaging the Villi in the small intestine. The Villi helps get the nutrients out of the food eaten. Over time, the gluten destroys the Villi and it is as if you are eating nothing which can lead to anemia, as well as increases your chances of a Lymphoma developing which is a cancer. Take CD seriously, you may not think it is a big deal because you can't see the state of your small intestines on a daily basis yourself and you are just feeling sick for a few days. You have to do everything possible to avoid gluten if you want to live as long as possible. I was just diagnosed last week at the age of 47. So it is a huge adjustment for me since apparently everything I have enjoyed eating in my life contains gluten. I just looked at the food in my pantry, all of it has gluten. I love pizza, baked Mac & Cheese, PB sandwiches, lasagna, bread, cookies, sesame bread sticks, hell, I ate a lot of ramen noodles too. So, now I have to change everything I eat and look for ways to do what I can to still enjoy food and be around for my family as long as I can be. Take care of yourself. 😊
Im from pakistan. I have celiac from childhood . I diagnosed myself now .iam 27 now ... i went to doctors with my symptoms but no one helped me ... they said im healthy .. and i was not ... my brain functioning was very poor ... now i eat gluten free and im getting healthy ...
Hi, I am from pakistan as well. My daughter is diagnosed with celiac disease. She is 3 can I have your number to discuss how did you fight with celiac? Thanks
@@zeeshansarwar4764 sir i suggest you to do your research extensively ... read out the latest studies . find a very good doctor and dietian ... make sure they are real good professionals . What i m doing is just being gluten free ... and exercising ... iam 3 months in it will take 6 months to 5 years to repsair my intestines ...
Primal Instinct hi bother I’m from India. I’m also 27 and I think I have this disease for very long time. I have all the symptoms and I’ve been thin guy my entire life. Gaining weight seems impossible. Were you also facing weight loss problem? If so did you see any improvement after going gluten free. Thanks for your answer.
been having so many problems with my stomach... so many tests... no diagnosis... started eating gluten free and i feel SO MUCH BETTER. yikes do i have celiac’s? no idea. gluten allergy? no idea. just know i can’t eat gluten now :(
I can help you because is not such thing as celiac disease just ignorance. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
@@MsDnTa Have you give up the gluten free diet? My Dr doesn't believe anything I say so I self diagnosed and my acne and stomach pain are gone but I still get pale stools. Do you still get pale stools even after going gluten free? I don't know If it's my liver or the gluten damage. Also what's DH? 💖
@@rses916 dermatitis herpeteformis! it’s a skin condition that is generally associated with celiac/severe gluten intolerance. i had it for over a decade and just thought it was eczema, but when i went completely GF it went away. immediately confirmed my suspicions of at LEAST gluten intolerance. whenever i get glutened they pop back up, too. i had pale stools for probably a month after going strictly GF; but I am VERY careful with my diet as to avoid any symptoms. my stool has gone back to normal, but it did take a while. it has to do with your intestines healing. i even had to replace pans/cookware because they would still make me very sick. i know it feels really dismissive to have doctors basically tell you you’re crazy; but just go GF if they won’t test you. DO NOT go GF if they say that they will test you, or else you can get a negative result and they won’t do an endoscopy (that is what happened to me :(...) you won’t regret it; i feel like i can actually live my life now. since i don’t have an actual diagnosis; i just tell people that i’m either severely allergic to gluten (even tho that isn’t really a thing, most people understand allergies are dangerous) or extremely gluten intolerant
even the doctor doesn t take it that seriously in ma country the first one made me stop the diet the second one said a lil gluten wouldn t kill u i m just lonely in an empty world with hands pushing me all sides but can t see anyone near
Do you need monthly checkups for celiac disease? I just don’t eat gluten. It was so hard for me but I lost SO MUCH WEIGHT it’s a super great, healthy lifestyle! 👍
I'm in my 2nd week of gluten free diet, but I feel bad, every night I get some kind of "attack", It's not really attack but I feel everything around me is faster and I start to forget stuff and I get so many question's in my head about world and everything(I know it sounds crazy), but it goes away after few hours and It has been happening to me for about 1 week, I googled a bit and and I found out that these syptoms are something called "brain fog", did anyone had same withdraw symptoms after going gluten free or it's just me ?
yes I've been diagnosed 2 days ago that I have celiac and my stomach never pain but I have different symptoms and there's others many differents symptoms :(
@Mary Austin is hello Mary Just the confirm I am celiac Are you sure those herbal helped you please I am a mother of 3 kids, I am very tired with this illness 😣
Don't worry dude !! You will be fine soon...It's been more than 10 years of my diagnosis :) At first, you will feel everything quite difficult and annoying but gradually, everything will fall in place. Sooner or later this disease will teach you a lot of lessons in life...just be strong :)
You young ones should be grateful to have been diagnosed with celiac disease at a young age before the disease could do more damage to your body. I was diagnosed with celiac disease 3 years ago when I was in my 40s. Do I like a gluten free diet...no way...the food is expensive, fattening, and not very nutritious. I feel like I never eat. However, there are people with bigger problems than mine in the world....so that let's me keep things in perspective. Hopefully, one day, they'll be able to find a cure for celiac disease.
I have celiac too. I got diagnosed at around 5-6. I’m 12 now. It sucks because my god why can’t people just put frosting on the god damn gluten free pop tarts it’s not that hard sjsjshshs
I am the same as you. Except I am not coeliac but I can’t have gluten either. As I said I’m not coeliac but I am gluten intolerant😭😭😭 So I do get the same pains as you but yours are a tiny bit worse....
Siara The PuppyCorn it is not close to the same. Gluten intolerance is something that people choose because it makes them feel better. Celiac disease causes my instestines to not absorb any forms of nutrition when I eat gluten. So please don’t say that they are very similar or even remotely close to being the same. The only thing in common is the lack of gluten.
Because the cause of stomach pain is exposure of the abdomen to cool condition, which is the room temperature, the digestive system walls may become irritated and the acidic content create the pain/burning and maybe vomiting. The solution is to use special clothes with layers of sauna suit which does not allow the air to go through to cool the body. Layers are. next to skin cotton, synthetic, cotton, plastic/sauna suit, any material, plastic, and pants. In winter I use two layers of plastic and in summer just one. I use such layers all over my body and on my legs and head. I use those layer day and night 24/7 and at my 75 years I feel like at 30. These very days I do observation about foods and I found so far: 1) Sugar (is 10) make body cells sensitive and irritated which may create viral infections with inflammations. 2) I found bread (is 5) less dangerous to eat. 3) Milk has 3 and 0 means no irritation for cells. 4) I use to drink for several years olive oil because will make the cell membrane more elastic but I found that this oil will make cell sensitive and irritated. 5) What we eat and are not foods such as mustard and salt in touch with an irritated tissue, especially in urinary tract, will create the sensation of burning with urination urgency. My clothes help also to reduce the urination urgency.
@Mary Austin is Very good for you. I do not use any substance to cure diseases. I am looking for cause of that condition and eliminate it and that is cure. A herb may force the nerves responsible for that symptom not to send signal to brain. or ex: pain killer attack the brain not to feel that pain. It is like you'll beat a child crying for food and will stop crying.
i just found out i’m celiac today, i’m starting to have a really bad stomach ache and it hurts so incredibly bad please someone that knows how to calm it help
I had celiac since i was 1 but ai wasnt diagnosed till I was 8 ( 2 years ago ) I hate it but like it. I hate because the food is EXPENSIVE ! You cant it cake , if you eat it you can puke other stuff. Its wierd cause me my brother and sister were diagnosed but my brother and me dont have like dknt feel anyting when we eat but my sister has a stomach ache
I can help you because is not such thing as celiac disease. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
I can help you because is not such thing as celiac disease just ignorance. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
@@ambitiouslovebee6097 Yes I will do for free such help. You have to call me at 360-572-4847 and to find a way to meet. I have a in Camano Island Washington state a foundation to help people to cope with diseases.
Yes....especially in restaurants when asking for gluten-free options, I feel ashamed mostly because i know that there are people that are "faking" having celiac
Easy EASY? It’s not just like that. Gluten is in everything, and you’re not just cutting out gluten you’re cutting out everything that’s touched it or have had a chance to touch it
Listen. It’s NOT easy, I’m celiac and I gotta admit it hurts my heart a bit and I wonder what life really is without having this freaking disease :p Every single gluten free food is so expensive and it’s unfair on my opinion
I was diagnosed with Celiac disease back in May of 2018. I was diagnosed as an adult. The gluten free diet has been crucial for my well being.
happy for ya dude welcome to the club 🤜🏼🤛🏼
Nick Holzemer I was Diagnosed at 7 months
Hi, what symptoms of this disease have you got ?
I have trpuble gaining weight and was suggeates tonget checkdd for celiac
I have celiac diease and i hate it , like its so unfair . Plus the gluten free food is so expencive . I have just been diognosed .
Abbie Rees BOO it will get better this is my 3 year having it
Things will get better don’t worry God is with us all helping us everyday!
It’s been 7 years since I was diagnosed, wish I could remember what real food tastes like
Nathan Berman some foods do taste different than their gluten free versions, or at least I’ve heard from family members. Cake is apparently drier than cake that contains gluten, and the ingredients aren’t the same in the food obviously so it does have a different taste. Plus there are foods I’ve never had before because it’s really hard to find a gluten free version. I’ve never in my life had mozzarella sticks, or a soft pretzel. I’m just saying that gluten free food isn’t the same. Also yeah, I know that it’s hard for people egg and milk free. I get it. But the severity of people’s reactions to gluten can differ and be almost or as bad as an allergy reaction. As for me if I eat even the smallest amount of gluten, I will barf for hours upon end and most likely become dehydrated and need IV fluids. This happened at my b-day party in front of all my friends which sucked, but l know it’s not that hard. I just kinda feel alone as the only person in my entire school that is gluten free.
Nathan Berman mozzarella sticks do have gluten, they are literally coated in bread crumbs, or at least in my country. Trust me, I know this stuff, I’ve been gluten free for over 7 years. Idk it’s just routine to me now, but I kind of wish I could do things like buy lunch at school, and not worry about getting sick so easily
I also have celiac disease. I have known that I have had it since I was 6. I will be going to college in the fall and it was really difficult to pick a school because of location and what was around the college!!!! I completely understand your struggle!!!
Thuse ur parents have it how it causes to u
I have celiac and I have had it for 5 years. It definitely has an impact on restaurants, party’s, vacations, and friends houses
I have no friends so I’m fine. lol
Ye me too, but I also got diagnosed when I was a baby and I'm 15 now so ye, I'm still not used to it I get scared when I go on a school trip or a party or restaurant
Tell me about it!
I’ve had it since I was 1 or 2 but I wasn’t diagnosed until 5 and I wish I could remember what real food tastes like. I ate gluten today by accident and I barfed 11 times. Also I modeled for a while as a toddler and booked a lot of jobs, unfortunately at 3 I stopped because I was starting to look sick and I still didn’t look too healthy until about 6 or 7. I hate celiac disease and I wish that there was a cure.
Maddie's Random Videos I was just diagnosed at 30 and cut gluten immediately and I still don’t have it under control 😞 I’m mexican/Italian my diet was all gluten lol it was a killer
That must’ve been terrible, I’m Italian too and I used to eat a lot of pizza and pasta, luckily there are gluten free alternatives but I’m not sure if they taste the same as the gluten ones, it’s been 7 years
inih i wish there was a cure cuz i still have it since 2012
NzA_Maddiee that’s the same with me...
That is the same with me
I am 11 years old and I was diagnosed at 8 such an inspiring vid😄
I am celiac disease 😣
Same but I was diagnosed at 7
@@muzzaa8671 now are u eating gluten
Czns Colony I’m eating gluten freee now cuz I’m celiac
@@muzzaa8671 it's so difficult
I found out I'm Celiac just last week. I wish I knew sooner.
What was you symptoms?
Me too!!
Yeah. I feel like I have been held back by so much in life. After recovering from the disease life became easier and all of the sudden I could think and see clearly. All of the sudden I could keep up mentally and physically with others
I know how you feel. I just found out about it the past few years and I have been misdiagnosed for 20 years! They were telling me that I was just a hypochondriac and I had to go through the embarrassments of being sent to multiple different types of psych doctors that would say that they were sure they felt that I am not lying or trying to get the attention that they think I want. Damn, that is not the kind of attention that anyone would choose from due to the fact that it is not a visible thing to say yes it is right there... I'm sorry you weren't diagnosed earlier either. May you have great health in your future ❤️✨🌍
i have it as well i actually found out a couple of months ago... i’m 14,
.... i have been on a gluten free diet for about 2 months and still have symptoms but i am taking medicine and getting better!! it’s hard but it gets easier over time
What kind of medications are you taking? I was diagnosed a year ago and been on the gluten free diet but I am still experiencing a lot of symptoms and any help can go a long way
There’s no medicine?
Andretti 96 the other symptoms you are experiencing might not be from gluten? I was doing a gluten free diet and still experienced pain, I now avoid wheat, gluten, oats, soya, mil, dairy etc
Try cut out some other food
@@georgiamya Did you have pale stools? I went gluten free but I got pale stools still wth. I'm thinking dairy might be the culprit so I'm.now trying to go dairy free. I just want normal stools 😭
Which meds?
I've had it just 3 months ago i'm still trying to get used to it coz it sucks like fr and at the same time it ain't that bad you can deal with it
I have it too.. Only discipline and God's help is our salvation.
I’m 17 I found out I had it in May of this year. I went in to the hospital with terrible stomach pains and flu like symptoms in January, I spent like 3 days in and out of the ER and finally they checked me in the fourth day bc they were like something’s wrong you don’t just have the flu. They had already tested me a twice and they concluded that I had been extremely constipated. So they sent me home with meds for constipation but i could barely hold them down. I went back they gave me ketamine after giving me this citrus drink for constipation, which ended up tearing my stomach apart as I was already experiencing acid reflux and vomiting and these ppl were like your just constipated. (I knew it wasn’t just constipation and I was pissed bc they were lolly gagging while I’m in immense pain) And my pain in my stomach was unbearable to the point where my mom thinks I’m dying and low key so did I honestly I would’ve rather died than experienced that pain and that time. So we go back and they are like okay let’s get you checked into the hospital bc clearly it’s not just constipation. With all these test they’ve already taken they still didn’t know what was wrong with me, and they were convinced that I had a virus of some sort. The testing came back and concluded that I had Norovirus, which is similar to the flu just a little more intense. However the doctors believed their was still something wrong with my stomach bc they had never seen anyone with that bad of pain and only have Norovirus. So we went to a specialist, and I had to do a colonoscopy to see if I had any ulcers that would cause pain. Well we did it and he found symptoms and signs of celiac disease but couldn’t confirm that without and actual celiac test. So I had to eat all this gluten for like a month before doing the test to see if I had it but bc of Covid-19, everything shutdown after that so I didn’t find out until May and I did these tests before mid March.
Something that’s helped me with celiac disease is going onto a low carb diet. I had the least amount of joint pain, stomach pain, acid reflux, etc. on that diet.
@@kailyn766 did you experience pale stools?
I was diognosed 6 years ago! although i am not able to eat as many food choices, it helps me to be healthy!
I'm 12 and I was diagnosed when I was 18 months old so people who recently got diagnosed with it at least u get to remember what gluten food tasted like ik the change might be harder for you but be happy u got to experience gluten food
Katherine Eagle that’s a very good point ^^
Yes and no, I’m 17 and was recently diagnosed, knowing what things with gluten tastes like can make it harder bc it can be extremely difficult to ignore certain cravings and getting off that lifestyle can be harder as well however I do understand your viewpoint bc there’s foods you’ve never gotten a chance to try
Gluten free food is so god damn expensive and I really want this to change :( it’s so unfair being celiac
The sad truth.. I was diagnosed when i was 35 yrs old..im in stage 3 of the disease (4 stages btw)
They say i have the silent type
All my vitamins and minerals are low
Stopped gluten it really made a difference.. I feel alot healthier.. Just shop groceries on your own, bring your own snackd to a party, pack ur lunch and enjoy all foods that are free of gluten. GET WELL SOON 🤗
i have cileac disease.I was starting to have stomach pain too....i got it when i was 8. I have to eat gluten free stuff. If i eat gluten my stomach would hurt really badly even if i ate a tiny little peice. Thats how bad my case is.
Edit: Woah I was being rude. This was a year ago- sorry if I was being rude lmao and sorry for my bad spelling- bro looking back at this im just-
Hey, how is the life without gluten?
@@zeeshansarwar4764 Just... Depressing.
Years ago In Summer I experienced severe abdominal pain with vomiting. As a objective thinker I was looking for cause and I did a great observation and did an experiment. I solve that situation and never I experience that abdominal pain and vomiting. Is very simple.
@@sxxgg. Why? There are so many options with gluten free. You can basically eat what you were eating before just with different kinds of flours such as rice flours, or potato flours...
@@Alex-wx8be You dont understand.
Shit I wish I had her doctor
Stanford doctors... Yup so did I. However I'm pretty sure they are pricey.
I have celiac diease. This is so disgusting and painfull. 😭😭😭 Hope so.. one day god will help us🙏🙏🙏
I have celiac disease and honestly its not the worst thing on earth. There are many things that are replaced. Some things can be unfair
I was diagnosed in February last year. but i never had any stomach pain, or symptoms still today
I can help you because is not such thing as celiac disease. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
39 male. had calcium deposits in shoulder. had surgery for that. soon after had constant dull achey pain, with occasional intense stab pain in liver gallbladder area. blood work showed very high sensitivity to gluten. I had headaches all the time, canker sores, sore joints. I usually eat decent and workout but I know I was consuming tons of gluten. I feel the malabsorption of calcium caused the deposits in my shoulder which was excrucitating. I dealth with 2 years of brain frog as well. been gluten free 6 months. or at least 98% and I feel decent. headaches are gone and my head feels clear. cankers sores are way less apparent. I still have a weird pain in the gall bladder liver area tho. not as bad as it was but its still there. I notice it most in bed.
did you have pale stools
Considering over time celiac disease can cause schizophrenia like symptoms why do we not test for celiac disease before diagnosing someone as schizophrenic?
I have been studying the effects of celiac disease and keep finding situations and individuals that are getting therapy and medication for hallucinations and insomnia. Problem is these individuals had severe celiac disease that went untreated for over a decade. I have also met individuals that were diagnosed with fibromyalgia when in reality it was celiac. Considering we can test for celiac can a professional in the industry explain to me why this isn't explored in mental health considering it can cause so many mental health symptoms? Anxiety, depression, insomnia, hallucinations and fatigue are common complaints in patients with untreated celiac disease and contribute to lower quality of life. While aspects of these conditions may improve within a few months after starting a gluten-free diet, some patients continue to suffer from significant psychological morbidity. Psychological symptoms may affect the quality of life and the dietary adherence. Health care professionals need to be aware of the ongoing psychological burden of celiac disease in order to support patients with this disease. Please note I am in no way trying to promote a gluten free diet for mental health. I am trying to promote medical testing before giving certain diagnoses to individuals that will effect them in the long term.
We got a call 3 days ago after a blood test and I was diagnosed with celiac disease... IDK what to do...
Years ago In Summer I experienced severe abdominal pain with vomiting. As a objective thinker I was looking for cause and I did a great observation and did an experiment. I solve that situation and never I experience that abdominal pain and vomiting. Is very simple.
There's not much you can do other than change your diet. And be grateful you got diagnosed instead of guessing. What were your symptoms?
I would like to talk with you. my phone is 360-572-4847
@@Alex-wx8be
David Muresan Years ago In Summer I experienced severe abdominal pain with vomiting. As a objective thinker I was looking for cause and I did a great observation and did an experiment. I solve that situation and never I experience that abdominal pain and vomiting. Is very simple.
David Muresan are you lying
I got celiac when I was in 1st grade.. At first I felt like everything was so unfair! I could not get any food from school. And it was more difficult for my family to help me. Gluten free food is so expensive! To get gluten free bread at a restraunt it is like $3 it just bothers me....
i have celiac disease..... and it sucks!!! I hate it! I can't eat donuts or any food with wheat! 😭 whenever I eat wheat i have rashes and it hurts 🤕
Cookie cat With milk there are lots of gluten free donuts on the market if you know where to look. I think the big thing is transitioning out of eating things that contained gluten that you loved and just switching over to a more Paleo Diet, where you're not eating grains at all. But I will admit that I have purchased the gluten free donuts from Sprouts before, and then I look at the ingredient listing and I realize I don't want to be putting that stuff in my body. A lot of the gluten free products are just as junky as standard products. But I feel ya.
Grow up it isn’t that bad
George Vessey I got it when I was 7. Every single class birthday I sat alone and bored. Every dinner my family has I cannot eat the bread. On school trips I get grilled chicken or just barely salad. When I eat something with little to no gluten my stomach hurts worse than anything ever. People think I’m just doing it to be trendy so they aren’t careful about it like with allergies. It’s not the worse situation but it still sucks
Great little video. Thanks.
I have celiac disease that doesn’t react to gluten free diet, the symptoms I experience are becoming more and more painful as I try new medications and I fear they will continue to get worse
Try going completely grain and dairy free, optimize mineral and vitamin deficiencies. Especially Vitamin D.
do you experience pale stools? I'm gluten free but I can't have normal stools somehow In goinf to die wth😭😭
I was diagnosed at 3 months old. I'm 15...I still get the "Oh I'm gluten free too. *Goes and eats bread* but it only gives me a stomach ache." Like bruhh that's not celiac...that's gluten intolerant. Get it right
Damn yeah. you're fortunate you go diagnosed so early. yeah celiac is way more than a stomach ache. However sometimes there can be no symptoms.
I was diagnosed at 7 months. I am 11 but still.
@@Alex-wx8be is pale stool part of the symptoms? I got rid of gluten but I have pale stools still.
Who are saying “get it right” too?
Undiagnosed celiac disease cause stomach problem and chest pain....?
well i was diagnosed when i was 10 after having a biopsie after a year a dieting the doc said i m ok nd i can cut the diet i did until i got a lot worse i got back to the diet after checking with another doc when i was 19 now i m 21 nd no one really cares about my celiac or understands i have been eating nothing but white rice the last two years some vegies here nd there it s kinda not easy my parents think it s not a big deal nd they shouldn t waste money on my diet while i m still in uni full time nd not allowed to work i sell some portraits when i can to try to get some gluten free food i have a lot of health issues but no one really believe my parents keep telling me that it s no big deal nd i should stop it ( i wish i could) i m just lost in some part of my life i wanna work hard for a better future but i can t really i m just too tired too sick too hungry all the time when i try too hard i end up collapsing
I was diagnosed when I was 4 I am now 12 I have one of the worst cases of it I become paralysed and my immune system shuts down
I was diagnosed in November 2017 the symptoms was very embarrassing I occasionally feel sick & throw up but for some reason I never take it seriously over the past few years I've had some pizzas, ham & cheese sandwiches using normal bread but other times I use gluten free bread & other products I'm just wondering if I could possibly do more unknown damage if I'm not careful its got me worried & concern I've just gotta tell myself no more food containing any wheat which isn't easy 2 do
Unlike people that are gluten sensitive and they get sick after eating something with gluten in it, they are not damaging their small intestines as those with Celiac Disease. Those with Celiac, every time they eat something with gluten, they are damaging the Villi in the small intestine. The Villi helps get the nutrients out of the food eaten. Over time, the gluten destroys the Villi and it is as if you are eating nothing which can lead to anemia, as well as increases your chances of a Lymphoma developing which is a cancer. Take CD seriously, you may not think it is a big deal because you can't see the state of your small intestines on a daily basis yourself and you are just feeling sick for a few days. You have to do everything possible to avoid gluten if you want to live as long as possible. I was just diagnosed last week at the age of 47. So it is a huge adjustment for me since apparently everything I have enjoyed eating in my life contains gluten. I just looked at the food in my pantry, all of it has gluten. I love pizza, baked Mac & Cheese, PB sandwiches, lasagna, bread, cookies, sesame bread sticks, hell, I ate a lot of ramen noodles too. So, now I have to change everything I eat and look for ways to do what I can to still enjoy food and be around for my family as long as I can be. Take care of yourself. 😊
Im from pakistan. I have celiac from childhood . I diagnosed myself now .iam 27 now ... i went to doctors with my symptoms but no one helped me ... they said im healthy .. and i was not ... my brain functioning was very poor ... now i eat gluten free and im getting healthy ...
Hi, I am from pakistan as well. My daughter is diagnosed with celiac disease. She is 3 can I have your number to discuss how did you fight with celiac?
Thanks
@@zeeshansarwar4764 sir i suggest you to do your research extensively ... read out the latest studies . find a very good doctor and dietian ... make sure they are real good professionals . What i m doing is just being gluten free ... and exercising ... iam 3 months in it will take 6 months to 5 years to repsair my intestines ...
@@primalinstinct3134 thanks for your quick reply.
Primal Instinct hi bother I’m from India. I’m also 27 and I think I have this disease for very long time. I have all the symptoms and I’ve been thin guy my entire life. Gaining weight seems impossible. Were you also facing weight loss problem? If so did you see any improvement after going gluten free. Thanks for your answer.
Me bi Pakistan sy houn lahore sy mujy gluten free food ni milta jldu
I have celiac and I just got diagnosed and it’s been really hard because I am a picky eater
been having so many problems with my stomach... so many tests... no diagnosis... started eating gluten free and i feel SO MUCH BETTER. yikes do i have celiac’s? no idea. gluten allergy? no idea. just know i can’t eat gluten now :(
I can help you because is not such thing as celiac disease just ignorance. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
did you have pale stools?
@@rses916 yup; basically white and also had DH. still no actual diagnosis though so i’ve kinda given up with testing for it
@@MsDnTa Have you give up the gluten free diet?
My Dr doesn't believe anything I say so I self diagnosed and my acne and stomach pain are gone but I still get pale stools.
Do you still get pale stools even after going gluten free? I don't know If it's my liver or the gluten damage.
Also what's DH?
💖
@@rses916 dermatitis herpeteformis! it’s a skin condition that is generally associated with celiac/severe gluten intolerance. i had it for over a decade and just thought it was eczema, but when i went completely GF it went away. immediately confirmed my suspicions of at LEAST gluten intolerance. whenever i get glutened they pop back up, too. i had pale stools for probably a month after going strictly GF; but I am VERY careful with my diet as to avoid any symptoms. my stool has gone back to normal, but it did take a while. it has to do with your intestines healing. i even had to replace pans/cookware because they would still make me very sick. i know it feels really dismissive to have doctors basically tell you you’re crazy; but just go GF if they won’t test you. DO NOT go GF if they say that they will test you, or else you can get a negative result and they won’t do an endoscopy (that is what happened to me :(...) you won’t regret it; i feel like i can actually live my life now. since i don’t have an actual diagnosis; i just tell people that i’m either severely allergic to gluten (even tho that isn’t really a thing, most people understand allergies are dangerous) or extremely gluten intolerant
that moment when your name is isabella and you got a blood test a few days ago and you might have celiac disease check!!
even the doctor doesn t take it that seriously in ma country the first one made me stop the diet the second one said a lil gluten wouldn t kill u i m just lonely in an empty world with hands pushing me all sides but can t see anyone near
hey where are you from wanna chat?I also have gluten allergy and I feel super lonely.
I was diagnosed when I was a baby so I don't acctually know what happened lol.
My grandad and dad also has it too
Do you need monthly checkups for celiac disease? I just don’t eat gluten. It was so hard for me but I lost SO MUCH WEIGHT it’s a super great, healthy lifestyle! 👍
ToastJK .O G ...
I have celiac disease, i was born with it and it sucks. I just got sick today and threw up everywhere because I ate gluten pasta on accident
I'm in my 2nd week of gluten free diet, but I feel bad, every night I get some kind of "attack", It's not really attack but I feel everything around me is faster and I start to forget stuff and I get so many question's in my head about world and everything(I know it sounds crazy), but it goes away after few hours and It has been happening to me for about 1 week, I googled a bit and and I found out that these syptoms are something called "brain fog", did anyone had same withdraw symptoms after going gluten free or it's just me ?
are you vegan?
Can you have this disease without stomach pain?
yes I've been diagnosed 2 days ago that I have celiac and my stomach never pain but I have different symptoms and there's others many differents symptoms :(
Yes Im celiac and if I get gluten in my body It don’t hurt EVERY single time but very often. But even tho it doesn’t Always hurt it ruins my body.
@Mary Austin is hello Mary
Just the confirm I am celiac
Are you sure those herbal helped you please
I am a mother of 3 kids, I am very tired with this illness 😣
@Mary Austin is Thank God you are fine, which country he is from, I am very tired I need this help because I can’t cope with this illness 🤞🏻
@Mary Austin is please I need your help
I am a mother of 3 kids
I have celiac disease I just got diagnosed it sucks it really sucks.
Don't worry dude !!
You will be fine soon...It's been more than 10 years of my diagnosis :)
At first, you will feel everything quite difficult and annoying but gradually, everything will fall in place.
Sooner or later this disease will teach you a lot of lessons in life...just be strong :)
Getting my bloodtests this friday :3 I have no idea what else this could be
Chemist Deco how’d it go??
I got mine done today and I’m so tired of my symptoms I hope I figure out what it is haha :)
You young ones should be grateful to have been diagnosed with celiac disease at a young age before the disease could do more damage to your body. I was diagnosed with celiac disease 3 years ago when I was in my 40s. Do I like a gluten free diet...no way...the food is expensive, fattening, and not very nutritious. I feel like I never eat. However, there are people with bigger problems than mine in the world....so that let's me keep things in perspective. Hopefully, one day, they'll be able to find a cure for celiac disease.
I have celiac too. I got diagnosed at around 5-6. I’m 12 now. It sucks because my god why can’t people just put frosting on the god damn gluten free pop tarts it’s not that hard sjsjshshs
I am the same as you. Except I am not coeliac but I can’t have gluten either. As I said I’m not coeliac but I am gluten intolerant😭😭😭 So I do get the same pains as you but yours are a tiny bit worse....
Siara The PuppyCorn it is not close to the same. Gluten intolerance is something that people choose because it makes them feel better. Celiac disease causes my instestines to not absorb any forms of nutrition when I eat gluten. So please don’t say that they are very similar or even remotely close to being the same. The only thing in common is the lack of gluten.
Kyndra Griffin a tiny bit worse.. a lot more worse dude
Because the cause of stomach pain is exposure of the abdomen to cool condition, which is the room temperature, the digestive system walls may become irritated and the acidic content create the pain/burning and maybe vomiting. The solution is to use special clothes with layers of sauna suit which does not allow the air to go through to cool the body. Layers are. next to skin cotton, synthetic, cotton, plastic/sauna suit, any material, plastic, and pants. In winter I use two layers of plastic and in summer just one. I use such layers all over my body and on my legs and head. I use those layer day and night 24/7 and at my 75 years I feel like at 30. These very days I do observation about foods and I found so far: 1) Sugar (is 10) make body cells sensitive and irritated which may create viral infections with inflammations. 2) I found bread (is 5) less dangerous to eat. 3) Milk has 3 and 0 means no irritation for cells. 4) I use to drink for several years olive oil because will make the cell membrane more elastic but I found that this oil will make cell sensitive and irritated. 5) What we eat and are not foods such as mustard and salt in touch with an irritated tissue, especially in urinary tract, will create the sensation of burning with urination urgency. My clothes help also to reduce the urination urgency.
@Mary Austin is Very good for you. I do not use any substance to cure diseases. I am looking for cause of that condition and eliminate it and that is cure. A herb may force the nerves responsible for that symptom not to send signal to brain. or ex: pain killer attack the brain not to feel that pain. It is like you'll beat a child crying for food and will stop crying.
i just found out i’m celiac today, i’m starting to have a really bad stomach ache and it hurts so incredibly bad please someone that knows how to calm it help
stop eating gluten.
Also do you have pale stools?
i was diagnosed wid celiac in 2012 when i was a kid
I had celiac since i was 1 but ai wasnt diagnosed till I was 8 ( 2 years ago ) I hate it but like it. I hate because the food is EXPENSIVE ! You cant it cake , if you eat it you can puke other stuff. Its wierd cause me my brother and sister were diagnosed but my brother and me dont have like dknt feel anyting when we eat but my sister has a stomach ache
I can help you because is not such thing as celiac disease. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
I hate the people that say *im going on a gluten free diet to lose weight.* or *i can only eat gluten sometimes..* it’s so annoying and rude!
I can help you because is not such thing as celiac disease just ignorance. Stomach ache is easy to cure. I have a foundation to cope with diseases and I know the cause of those pain. If you think I am not crazy contact me.
David Muresan can you help me please
@@ambitiouslovebee6097 Yes I will do for free such help. You have to call me at 360-572-4847 and to find a way to meet. I have a in Camano Island Washington state a foundation to help people to cope with diseases.
Yes....especially in restaurants when asking for gluten-free options, I feel ashamed mostly because i know that there are people that are "faking" having celiac
Hookworms allowed to consume gluten again.
It's easy to treat. All you have to do is avoid gluten. It's a good thing people can be tested for this.
John Simms excuse me, ITS NOT FREAKING EASY
Easy EASY? It’s not just like that. Gluten is in everything, and you’re not just cutting out gluten you’re cutting out everything that’s touched it or have had a chance to touch it
Listen. It’s NOT easy, I’m celiac and I gotta admit it hurts my heart a bit and I wonder what life really is without having this freaking disease :p Every single gluten free food is so expensive and it’s unfair on my opinion
Any body from India ?
Avoid all grains!
Only problem with celiac is money
Celiac is so fucking disturbing
@Mary Austin is now u r taking gluten again
@Mary Austin is I mean have u started taking gluten again
@Mary Austin is so where could I get that herb
I have this & gluten food is too expensive so I suffer.