I have epilepsy and it is horrible. I have no pain when I have the seizures, but when I become concious it is painful and I am tired and confused. I wish they would find a cure for epilepsy.
I have epilepsy and I actually shared this with my home health aid. I’m not embarrassed if I have a seizure in public. There’s nothing I can do and whatever people think doesn’t concern me because I know what it is. Trouble for me comes from the fact that aside from friends, family just gets embarrassed by them.
In 2014 I was diagnosed with neurocystecercosis that causes seizures and it has literally destroyed my life. I’ve suffered from recurring shoulder dislocations to hurting my head due to sudden falls. But I’m fighting it out. Not sure how long I will survive. But I’ve promised myself that I will battle it out till my last breath. My wife and even few friends have ridiculed me for my seizures which I have no control over other than taking medication and following certain lifestyle rules. To all the people who have this medical condition. Please fight on. One day you will see the light at the end of the tunnel.
I’m 51 and have been experiencing seizures for the first time. When they first started (8 or 9 months ago) my family decided to push me away because they thought I was going crazy. So not only was I terrified of what was happening to me and my life, I was completely alone. This has definitely been a Huge learning experience for me. Epilepsy is probably the last thing I would have thought about. The pain of needing the support of my family, yet they all ostracized me for a damn medical condition I can’t control. Incredible. Thank you so much for sharing your story with us. It is so helpful to hear about other people who also have this, as well as knowing that I am really not alone in my struggles.
One of of the questions that was answered incorrectly. The question was "Do seizures hurt?" The response was "Thankfully, No" I have Focal Sensory seizures that secondarily generalize to motor (only on the right side of the brain). I am completely conscious during the tonic-clonic phase and the pain is excruciating and often find myself wishing to lose consciousness. Still, because of doctors like Dr. Lowennstein a better future is possible.
THAT IS NOT TRUE I HAVE EPILEPSY AND HAVE HAD IT FOR 51 YEARS WHEN I GO IN TO A SEIZURE IT HURTS LIKE HELL WOMEN HAVE TOLD ME IT LOOKS LIKE LABORE PAINS.
@@claircooper999me too. I always lacerate my tounge. I have split open my chin multiple times when I fell like a rock before seizing and even broke 2 teeth. It is definitely painless. I still feel like my body n my eyes r hurting so much....
I have had epilepsy and siezures my entire life. I think that if I hadnt been diagnosed with it and I hadnt known I had it, I would have come to overcome this. This "disiease is depressing. But if you look up, " Famous people with epilepsy," you will not BELIEVE which people pop up!!Be proud to have epilepsy. Wear it like a crown. And fight it. And I thank Dr. Resnick. THANK YOU!!!
Epilepsy is no crown! If you had it, you would take that crown off and toss it out of the window and hope no one finds it and returns it to you. I can’t drive because of this “crown”. It takes away your independence.
I have had adult onset epilepsy for almost 10 years, I am on Keppra and Tegretol. At first I was only on Keppra but it didn't help, when tegratol was added it was like a miracle. I went from up to 10 complex partial seizures a day to none🤞. Now I only get nocturnal seizures, maybe a day seizure if im extra stressed and tired about once every few months, at least I think as I don't remember just before I have a seizure, only the aura. Its not near as bad as it used to be and now I can live a semi normal life as before it was only sleep and seizures all day. Also wow I really thought this doctor was having real seizures during his lecture. Very convincing!
Because ot all seizures are the obvious "fall on the ground and start convulsing" you see on TV. They can be as subtle as spacing out for brief moments.
My seizures are not described here. For 25 years, I whent to the emergency room 3 or 4 times a year (sometimes more) with what felt like heart attacks. Serve chest pain, shortness of breath, confusion and cold sweats. Electrocardiogram, Blood tests, Echocardiogram, and Stress ECG were all normal. In short, nothing wrong with my heart. And then, the last time I whent to the emergency room, one doctor asked me to explain in detail what happened before, during and after the event. Upon listening to my description, She said I was having epileptic seizures. I was flabbergasted, how could that be? I don’t loose consciousness, I don’t go into spasms, but I do loose the ability to breath for a few seconds during the initial stages of the event and, once the pain subsides, I feel extreme fear and anxiety, I was also having frequent dejavú and severe depression. She said my manifestation is called Ictal chest pain and it is incredibly rare hence, the difficulty in diagnosis. I have been on lamotrigine for 11 months, the starting dose was 100mg/day. I am now on 250mg/day and so far, I am seizure free.
Please spread the awareness about epilepsy, especially the variations, epilepsy is not just "grand mal" siezures. Way to many things are attributed to psychology, when it is basically a neurological dysfunction.
What a brilliant lecture! Being just a lay person I thought I'd struggle to understand but Dr Lowenstein certainly is a gifted teacher and I found it fascinating. Temporal lobe epilepsy seems to run in my family & he has answered a lot a questions.
This was BY FAR the best explanation 👏, I have a temporal lobe epilepsy with simple and complex. Tonic clonic & "tonic clonic while sleep with no visual affects, currently 1st to be diagnosed" this video explanation about temporal lobe and others is absolutely helpful for realization of certain moment when your personal doctor would never act out what you do
People with epilepsy are not crazy. This is actually still a really common misconception. Seizures happen when there are localized neuronal misfirings, and when people come out of seizures they are perfectly fine. It's not like they need to be institutionalized or anything. People with epilepsy, when not having seizures, are, normally, just as functional as someone without.
I was never fine after seizures. They completely fried my personality and memory for at least 7 months. I'm lucky to be able to talk again because of all the times I chewed completely through my tongue. So glad I'm done seizing!
@Dorris Tammy As an epileptic, I respectfully ask you peddle your “cure” to another crowd. People with epilepsy deal with years of seeking the right meds and some never get full control. To everyone else… ignore this dorris, they do not know what they speak of. Edit: they are talking herbal medicine… they are a crazy person.
That was the case for me the first 5-10 years or so, I felt a really weird scary da je vu feeling then kinda felt pulled into a tunnel. I woke up a minute or two later really confused and only remembered the strange sensation before hand, but it all came back pretty back.. They happen pretty consistently every year around 1-2 a year but they definitely started getting worse every time. Now I go into what's called Status Epilepticcus which is when I don't come out of the seizures on my own. It usually takes the paramedics 10-20 min to get there (if someones there to call them). and drug me out of it. By that time Im always in critical condition they the put in the intubation tube down into the lungs/IV if they can find a spot while I'm shaking /catheter/. I wake up in the hospital not knowing who I am or where I am or my own address. Its SCARYY Now I have severe memory loss and inexplainable bouts of fear or anxiety So be careful plz. Just because it seems like he's ok now PLZ keep a watchful eye. Im to the point where if happens again I may literally not make it. They had to put 6mg of Lorazepam in me before It would stop this time. They said that alone is a dose someone can overdose from
@@evansmith6944 When you say "done" is there something that cured you? Seriously curious. I was diagnosed as epileptic about 6 yrs ago. Before that, never had one in my life, no family history, nothing.
Great video. I like coming across how people educate whether it’s the public or medical students about certain conditions, in this case epilepsy. My mother is a nurse who works in the oncology department, so she has seen her fair share of cancer patients with different conditions. I was one of those people when you thought of a seizure, you think of the most common one grand mal seizures. I was diagnosed with epilepsy when I was about 20. But it was complex focal seizures. I had no idea what those were and the neurologist informed us that my eye condition optic nerve hypoplasia besides blindness and motor skills that need occupational therapy, people with this condition can develop or get epilepsy at any age. Seriously thought it was just panic attacks. My mom was one of those Tough love people, my sister would always pretend to be sick, so she would always say things like stop feeling sorry for yourself, but she pointed it out and I thought she was making a bigger deal out of it. I would be in the shower not know what happened and hear her pounding on the shower door and yell at her to stop and why she’s screaming and she said, you’re not responding to me. I think you’re having seizures. It was interesting to find out. A few years after that, I went to get a guide dog, she’s not seizure Train, she picked that up on her own. My current neurologist mentioned the possibility of your blood pressure and how your blood smells different when you’re having a seizure or what you do when you’re having an aura and those are things my dog probably picks up on. She stopped me from things like possibly about to cross the street, I thought one time she wanted water and she pulled me off into the grass and I sat down and took off my backpack and then had an aura and then my seizure. Obviously really exhausted after it happened, found her whining and licking my face. A couple of other times when it happened, she got somebody’s attention, I remember regaining full consciousness and somebody talking to me and I told them what it was. Anyway, I just like the really in-depth explanation especially for people out there who really don’t understand the condition or what it’s like to have epilepsy.
Thanks, I'm a 45 year old recently diagnosed with epilepsy. I had masses of fits as an infant - young child, and 'grew' out of it. I don't think it went away, I just think the tonic clonics seizures ceased but the absence and focal seizures persisted. Thanks again for giving me so many so many 'ha ha' moments.
Yeah like a lot people have epilepsy so they have seizures that can be diagnosed. Although they understand the pain and the severity. So I hope when they take the medicine for treatment.
Every time I have a seizure, my head feels like Mount Rushmore and my body feels like the Sierra Nevada. That hurts. I've lived with it for 51 years and have gone through 3 surgeries on my right temporal lobe. Still have seizures even after surgery. Though I wish I didn't have epilepsy, I am glad that I have two older cousins with epilepsy who I can look up to as role models. I'm the complex case in the family and can laugh at it. I try to find humor in my epilepsy. Sometimes it is not easy. Certain jobs are not available to me, yet others are. My secret "desire" to be an astronaut or an airplane pilot is a non starter (lol). Driving is a no no for me. I have public transportation to get around the city.
It's such an amazing video, professor! By giving a totally different way of approaching to your lecture, you facilitated my imagination about this difficultly comprehensive topic. Tomorrow, I'm starting my 4-week practice at hospital. Thanks a bunch!
Im a 31 year old guy and I just started having seizures when I was 27, and now ive had epilepsy for a few years. Starting to get more controlled with meds... still a really shitty thing to have come out of nowhere. Enjoy life always
This video was brilliant, thank you for sharing it. I was diagnosed with Juvenile Myoclonic Epilepsy when I was 12, and recently had my first tonic clonic seizure, it really does help to have an understanding of what is happening. This has also given me a possible direction for where I want my studies to take, as I found it to be extremely interesting. So thank you very much.
I too hv Juvenile Myoclonic Epilepsy since when I was 14, started hv generalized tonic clonic, and atonic seizure. It sucks but it is mostly controlled
It's amazing how many physicians and even neurologists in my town still do not understand the different types of epilepsy. This video was incredible and provided me with a lot of information. will you be doing a new one that covers the newer classifications of epilepsy?
I have had epilepsy since I was seven years old. I am now fifty two. My seizures are "controlled" for the most part. Unless you have epilepsy you don't know how it can affect your life. There are many jobs that you can't have. I always wanted to be a pilot. Can't do that. Aircraft mechanic. No. Work on a cruise ship. Don't think so. Surgeon. Out of the question. I understand why I can't do this. It doesn't make it any easier to take. Last year I was so exited that I was going to Disneyland. I went on one ride and I was hit by a "aura". It is hard to explain but it's sort of like a mini seizure. Spent all that money and then I had to go home. My life would be so different if I didn't have epilepsy. But hey, what you gonna do.
Either do I. I just happened to have an aura when I had just gone on my first ride. It would have been impossible for me to spend the rest of the day at Disneyland. I hope I don't come off all gloom and doom about having epilepsy. Depending on the severity of your seizures you learn to live with it. The job I have would fire me if they found out I had a seizure. And I work for the government. In my case The Persons With Disabilities Act doesn't come into play. For the most part my seizures are controlled. My life would have gone down a much different path if I did not have it.
Thank you so much for this my son Christian was born in 2008 one year after this video. He has suffered from absence seizures for most of his childhood these have now expanded into tonic seizures as he sleeps. This is the first time (despite numerous Drs appointments) that I have grasped what is happening with him. His seizures have yet to be controlled but we are hopeful. Many thanks from Australia
I did a burst cerebral aneurysm in 2001 that should have killed me outright. Partial complex seizures affecting memory, deja vu, momentary blackouts of up to 2 minutes. These started in 2014 at age 63. I must say, I find mine extremely interesting and having never had seizures before I can now understand a little bit how other seizure sufferers have to try to live their lives. I have done much reading these past 4 years. I watched this lecture through its entirety. Thanks for posting it. Sad to say, yes, I see my seizure progression getting worse. Been on Keppra 500 mg per 12 hours for 4 years. Had to quit driving, which would be really nice to be able to do in my retirement years. Yes, I would love to have one of my episodes watched by a medical doctor, preferably an epilepsy specialist, but has not happened, yet.
DieHard10901 I had somewhat similar issues. I got epilepsy in December 2012 from allergic reaction to prescription Tramadol with never having a history of seizures myself or anywhere in my family. I was on Keppra the first 4 years, but I started stuttering, losing my vocabulary, stopping speaking in mid-sentence. Kept telling my neurologist something was wrong. He kept telling me it was “all in my head” and I needed to see a psychologist. Dumped the jerk and went to the epilepsy department at the Medical University. They admitted me to the ICU, which is where they have a special room and bed for epilepsy/seizures that has an EEG and a special padded bed so that you don’t get hurt while you are taken off your current anti-seizure medication. This was done to get a diagnostic EEG for me because my previous neurologist never had a clear diagnostic EEG. Discovered I was having absence seizures during the time I was stuttering and stopping talking mid-sentence( they started the EEG while I was still on my full dose of Keppra). This really scared me because my previous neurologist had let me drive for years. My new epilepsy doctor put me on new medicine, and his criteria for driving was more than just the state standard of being seizure free for so many months. After the required number of months waiting period he did EEGs, and only when I had a clean EEG would he let me drive. I feel much safer driving knowing I have a clear EEG. If you can get to a Medical University or find a hospital that has an epilepsy department I would highly recommend you do that. Good luck and God bless.
Thank you so much. I'd love to say "Where have you been all of my life" LOL Have had seizures all of my life, and had 2 surgeries. Your teaching is inspiring. Hopefully, your students shall pick up your great interest, caring, honour, and humour. Please take care. You are a gentleman and a scholar.
Amen! My epilepsy does not rule me either! Even with uncontrolled epilepsy for 20 years, it didn't rule me. I just let my doctors do their best to help me control my seizures.
I only have the absence type of seizure, where 15 mins passes by without me knowing what happened or what I did ! And it gets worse if I don't take medicine even for half a day!
@@redaben8883 I have that same problem an it is starting to really sucks i have been taking medication for as long as l remember an now I think my epilepsy went away but I keep passing out for about 15 minutes off life every time. How do you deal with this? May I ask
@@crayfish4722 For the moment I take Carbamazepine (Tegretol 400) and Lamotrigine (Lamogine 50) and I can feel their efficiency and at the same time their heavy side effects (Hangover moods). My doctor discovered recently a solution for my partial seizures which is to double the dose. I feel I'm living with a 20kg head! And about passing out, it's rare for me to happen, and the last time was a disaster. What triggers my passing outs is the: Taking medicines in an unregulated way Or not to take medicine or take morning medicine on an empty stomach. PS : i apologize for my english vocabulary, as I just woke up with a Mjolnir head. Good luck fighting this pathology. Never give up!
I was severely epileptic for 8 years because of a brain injury. Up to 10 seizures a day. All the meds and a VNS implant did nothing for me. Until I tried human growth hormone. Within 3 days of using it the seizures stopped. Tapered off my meds and had implant removed years ago. I have met others that hgh stopped their seizures also. This needs to be looked into
@@baywatch5034 everyone's epilepsy is different so what works for one may not work for another. My epilepsy was from a brain injury. Used human growth hormone and it put a stop to all my seizures.
How many IU's? That's interesting. I've heard of trenbolone stopping people's seizures completely as well. The issue is it's so toxic that it's a massive trade off longevity wise. Although I'd easily take 30 years off my life to never have a seizure again.
To be a counterpoint to commenters saying that they have epileptic seizures that are untreatable I am offering a different story. I was successfully diagnosed with having suddenly developed repeating tonic clonic seizures while studying multiple all-nighters for midterms in college. After the doctor interviewed me during the diagnosis they came to the conclusion that years prior to these other major events I was probably suffering from absence seizures. In school prior to college these absence mals were originally diagnosed as my being an inattentive student. Blamed on my own failure to concentrate. I was treated with anti-seizure medication. Even the smallest amount of the medication proved 100% effective and with zero side effects. So here is the success story.
I was diagnosed with epilepsy at 12 y/o; and from what I’ve heard, it runs in The Family (records available upon request pending redaction). I have also heard that I have an congenital astigmatism, or from the other side of The Family that, ‘I have some congenital deafness’; fortunately, my Neurologist says to just take some Valium when I get up & before bed, and I’m pretty good.
Footnote regarding sciroccos of skin:I suspect that, The lecturer is thinking about the mechanics of living bodies (I loved working in the archeology lab at school (see:TheDecameron😏/😉)) rather than the linguistic coding of the hieroglyphic/hieratic/Coptic/etc. notations indicating that these records are regarding Pts post-mummification.
Regarding interruptions of consciousness: it is rather more a matter of where the localization of the cascading-dysrythmia(induction of “bilious headache”) is in relation to the C-v split in the broader NS.
sir.thank u very very much. this is my first time i sat and did not even get up once till the lecture was over...it was so so interesting...thank u once again.....wish all my staff explains like the way u explained.
I was diagnosed just 2 weeks ago with right temporal lobe epilepsy. When I got home, I started to do my own research because the doctors that I seen during my five day stay in the hospital seem to have gotten their medical license out of a crackerjack box. I had to beg just to see a neurologist at the hospital. They basically got the diagnosis and said “you’re being discharged” i said “not without seeing a neurologist I will sit right here, I as the patient would like answers on this drug you are giving me and have this diagnosis explained to me.” They finally let me see this neurologist who came in like I ruined his busy day. This is a palling to me. I was disgusted and still am disgusted. Now I get to go see that same neurologist that told me I wasn’t a candidate because there’s not many neurologist that take my insurance or even in my small town. Long story for sure but I’m sure others have been through similar instances and my heart goes out to you all. I knew nothing about epilepsy, but had been having seizures since a major accident in 2020. I was rushed to the hospital finally after having five seizures back to back and again kept there for five days waiting for an MRI. They basically ran my insurance up and made me wait five days for an MRI, which is blasphemous. I had an EEG that said the diagnosis of epilepsy and a vascular loop on my 8th cranial nerve. Months ago I went to a ears nose throat doctor and he diagnosed me with the vascular loop on the 8th cranial nerve. He stated I needed to see a cognitive dissonance therapist but said I wasn’t a candidate for a neurologist. You can imagine my anger that grew inside me. I said to him “I would like to see a neurologist!” He then told me to leave his office and I did. 10 mins later a neurologist called me and said we don’t treat vascular loops, I told him I had multiple injuries from a major accident being ran over 3 times by a truck and trailer in 2020. He hung up on me. I was disappointed and let down a month later I end up in a hospital with epilepsy. Now I am. candidate for a neurologist. 🤔 As I stated I got home and started to do lots of research finding out there was over 40 different kinds of epilepsy. Called the hospital back, trying to figure out which of the epileptic, seizure diagnosis is I had. Nobody would tell me I also found in biblical text, where Jesus healed the boy with epilepsy in Mark 9:17-27 and other stories of epilepsy. There are many ways to help you deal with your epilepsy, but yet no cure other than to cure your own mind. That does not mean don’t see a doctor, or watch these educational videos. It simply means to go inside of oneself to find the root cause of any illness. Today I go for my check up at my MD to get a referral for a neurologist even though the hospital stated I needed to follow up with one immediately. They didn’t give me a referral. In America our healthcare system is crashing and has been crashed for sometime. It’s really hard to deal with medical system, especially when our government has its hands all in it. I pray this gives hope to those who have seizures they are very scary. They are like outer body experiences. When he said some thing about smelling phantom smells I get those and sometimes before a seizure., I can actually stop the seizure by saying out loud what I’m smelling. it has helped it keeps me conscious and then I do slower breathing. Not deep inhalation or deep exhalation to hyperventilate to cause a seizure but slow breathing. Thank you for this video. I am now finding it is a sacred disease and I have a lot of sacred inside of me just like all of you. God put a cure for everything here. We just have to find what works for us.
Whollysmokes! I'm sorry for your horrible experience...I also hate how we get limited care bc of our insurance. My friend says, at least they pay for your stuff, and i tell him, "but i have to go to the bottom of the barrel team !" ...and they look down on ppl like me...not cool! But i must say...at least here in a big city, there is potential to find a cutting edge specialist...eventually,
This was a interesting as a 60 yr old living with Epilepsy for almost 40 yrs, got a couple recommendations: stop consuming aspartame or lots of sugar/sweets. Both can lower seizure threshold. I had seizures that were excruciating! Tonics that started at my feet and moved up my body, griping me like a 20FT boa constrictor. My legs stiffening, my abdomen, I can't breath! Suddenly I want it to go up and end my pain. Then I'm unconscious.
Epilepsy is still has no cure even in 2023...technology has nothing to do with seizures...treatment like surgeries... even this could not remove the unknown cause of epilepsy. May God be merciful with all of those who suffered and died due to epilepsy without any cure, and May God be merciful with all those daring attendants who cares and stay close with those who are suffering from epilepsy. Watching your dear one while he/she having seizures and after his seizures finish and you still keep on staying together with an epileptic patient so that he could get his conscious back in normal is very painful for the attendant. Both epileptic patient and his/her attendant faces the same type of depression. My father has epilepsy from last 08 years. I am his attendant from last 08 years.....i cannot tell anyone my own mental condition by dealing with my father's epilepsy which still has no cure at all. Please pray for me and my father
I have had adult onset epilepsy for almost 10 years, I am on Keppra and Tegretol. At first I was only on Keppra but it didn't help, when tegratol was added it was like a miracle. I went from up to 10 complex partial seizures a day to none🤞. Now I only get nocturnal seizures, maybe a day seizure if im extra stressed and tired about once every few months, at least I think as I don't remember just before I have a seizure, only the aura. Its not near as bad as it used to be and now I can live a semi normal life as before it was only sleep and seizures all day. Also wow I really thought this doctor was having real seizures during his lecture. Very convincing!
My criticism of this and most descriptions of (generalized) seizures is that an individual loses all consciousness. I can still hear and feel during a grand mal, and Dr. William Bell has documented 2 cases of people who can as well. More research needs to be done!
I can attest to this. At least for some of it, I can feel my legs start to shake, my mind tell me I'm having a seizure, hear the voices around me, and feel when I hit the ground. I've become more conscious thru them with age.
I can still hear too unless I lose consciousness. It's hilarious how many Drs and nurses steady keep asking me questions in the middle of a seizure. I'm like, I'm kind of busy here. Lol
I have both focal and generalised seizures. Sometimes my focal seizures are simple (as I remember them) and then they can turn complex, and then they can turn generalised.
I make that crazy exhaling noise. Actually apparently I cuss and yell then make the crazy noise and spasm. He got it close but the spasms per minute are way more. Like your getting electrocuted. Its a hell of a work out
As a child and young person, I suffered from epilepsy, though not very severely. I may have had 10-12 seizures in total, others are far worse off. But I found the first seizure interesting. It was a Sunday morning, and I was having breakfast with my parents and two brothers. I was 8-9 years old. Suddenly, my mother lifted my shirt and said, "Goodness, boy, you have rubella!" She had noticed my rash. The next thing I remember is lying in my bed. I think my father must have carried me to the bed. My parents, shocked as they were, had called for an ambulance. What happened to me?
I have had GMS for some time, and YES, they got worse as I got Older. I was 20 when I had my 1st Seizure. I'm now 55, and they increased over time. Very good Lecture, Professor! This is the 1st time I got more info on my condition!
I actually learn a lot from this video. I've had seizures since I was 20. I suffered 2 other major seizures later on. I take Dilantin for my treatment. A lot of the contents is reaffirmation of the causes of these seizures that I had. I thank Dr. Lowenstein for this lecture. I really understand now and wish I could had known earlier these causes.
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I wish my epilepsy would go away almost daily because when people find out they automatically think your mentally challenged and talk down to you and it causes a lot of anger for me and I end up blowing up on someone who didn't actually mean any harm they are just ignorant about epilepsy and it has cost me my career I was a part time forklift op. and I was a driver for the United States Postal Service and now I have nothing and I have to take low paying jobs or lie about my condition and that puts myself and the people I work with at risk but what other options do we have but to be homeless
stfuitsnotthatbad - Sorry. Most people do not understand this condition. I don't tell anyone unless it is absolutely necessary. It's really no one's business. Medication has made me have a very short temper when least expected so I have to be on guard all the time now in how I communicate with others and overly careful to be polite and loving. If I feel I'm getting pissed off, I need to stay away from people until I calm down or I'll rip someone a new one and it will be a negative experience and counterproductive. I never used to be like this until I started taking this medication. I had to retire from my stressful profession because it was a bad fit for epilepsy and exacerbated my temper. Trying to find something Zen I can do to make some money and be at peace. Making sure to get enough physical exercise and stay busy all the time with hobbies. Wanting to get off this R/X at some point. Diagnosed w/ LT Lobe epilepsy at 55. Lovely.
Pls remember not to take Alcohol and cut down Sugary items. And don't sleep on your tummy. Try not to sleep alone and take sufficient rest. God Bless You..
@@mikeloke9632 You are exactly correct. Both Alcohol and sugary foods I have found lead to imbalance of the blood sugars and/or temperament the following day.
It is ridiculous. I’m also visually impaired and my eye condition optic nerve hypoplasia gives people a risk to develop epilepsy and the neurologist who I met for the first time brought that up and mentioned a bump on my pituitary gland. I didn’t know I was having seizures because they weren’t the common ones that people hear about, thankfully my mom is a nurse and she noticed them. But still, it’s bad enough when somebody talks down to you because they think blind people are mentally retarded, then they witness the seizure and it gets even worse. What would she like to eat? Can she come and insert whatever you want here because I don’t want to talk directly to the person with a disorder or disability? It’s really insulting. Yes we have bills to pay and kudos to anybody who wants to be the happy part time cashier, but I did not study music education to do that.
Thank u my son has generalized chronic seizure from brain tumor he is 18 and i wish everyone can be cured thank u so much sir is the brain tumor surgery a good choice an a success
After seeing myself go through the physical part of it I think its important to know the differences between seizures. I have come close to death many times in clusters of grand mals and it is extremely brutal to see for all around, and when I cluster it goes on for days sometimes. The tape lasted six hours just going in and out till it ran out. Freaky to see your self with eyes open and never remember a bit of it. Then babel on for days or weeks even a month or more before I remember my name.
Epilim and Lamactol medication has changed my life. Epilepsy appeared out of nowhere in my life appeared at 26 trial and error for 6 years through different medications my new medication has stopped them completely so far! They were on a daily if not every few days seizures from minor to the serious 5 min period torn apart tounge and cheeks blood everywhere total unconsciousness until hours later not knowing who I am, where I am or the date. Dejavu was scary seeing myself from above and seeing incidents like they've happened before yet they never did happen. 1 year seizure free couldn't be happier to live a normal life and be accepted to the society once again.
hello i also have a seizure disorder here is my story When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. as i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist. At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i have an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so I have all of the symptoms of Aspergers but lack any sort of understanding math as a result I have no understanding of money and never really learned my basic math facts.(I am just learning them now in college which for most Aspergers people they are gifted with math abilities ) I also have orthotic issues due to my seizures I also have a processing disorder. I have low gross motor control and other motor issues as well. When was 19 my father died, and it seems I have had a relapse if that is possible. I still have my absence seizure but it is not enough to put me on meds . When I was thirteen I had EEG and my seizures showed up as misfired neurons and the Dr. called them "flurries" so here is what my flurries are typically like I will become very spacey i can not interact with my surroundings I also felt locked in to place. I am completely aware my vision becomes like a tunnel and thing start to move or vibrate on there own for me an absent seizure lasts one second with is rare but these flurries can last 5-10 minutes.
Sophie Palmer-Doran holy crap our stories are so similar! the entire first paragraph is & was me... diagnosed at 5, triggers are flashing lights (also stress & lack of sleep). Medication for me I started becoming immune after taking depakote for almost 20 years. Only meds that worked. The day my dad passed, I had a breakthrough seizure. It was too emotionally overwhelming. Currently I take a high grade CBD oil & the myclonic ticks I started having last month, I’ve been free of for the last few days now.
@@celissewillis9399 i just did an update to my story enjoy hello i also have a seizure disorder here is my story When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. as i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist. At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i have an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so I have all of the symptoms of Aspergers but lack any sort of understanding math as a result I have no understanding of money and never really learned my basic math facts.(I am just learning them now in college which for most Aspergers people they are gifted with math abilities ) I also have orthotic issues due to my seizures I also have a processing disorder. I have low gross motor control and other motor issues as well. When was 19 my father died, and it seems I have had a relapse if that is possible. I still have my absence seizure but it is not enough to put me on meds . When I was thirteen I had EEG and my seizures showed up as misfired neurons and the Dr. called them "flurries" so here is what my flurries are typically like I will become very spacey i can not interact with my surroundings I also felt locked in to place. I am completely aware my vision becomes like a tunnel and thing start to move or vibrate on there own for me an absent seizure lasts one second with is rare but these flurries can last 5-10 minutes.
I have temporal epilepsy. I've watched this several times. Epilepsy being a "sacred" disease is an affront to me. When I have a seizure I'm often transported, against my will, to a reality designed by Hieronymus Bosch combined with a few elements from my personal experience. When I have a seizure everything feels more real than reality itself. The audacity of this gentleman saying my condition is "Sacred" is just so far off the mark that for me it is offensive. For me epilepsy is like being dropped into the pit of hell without a parachute and having someone telling me the breeze on the way down is exhilarating.
I just see it as almost seeing another reality....sucks I have to spams or my auras cause me to sweat so much and almost feint but the overwhelming feelings and the " beings " i see and the fact I have seen them or felt them so many years ago i forgot that when it happens its so completely overwhelming...so when you have those "dreams" that you know are real events...just prepare for them....start seeing the clues...... blah blah... wtv.. had it since birth .. just my opinion..good luck to you....
I have temporal lobe epilepsy and well and it's definitely not sacred! Mine are like very short, very intense panic attacks with deja vu or sometimes jamais vu(the opposite) and then falling off of a cliff into nothingness. Hardly what I would call sacred!
By equalising the grey matter and white matter in the brain through proper systematic breathing excercise like agathiyar breathing excercise will it help for brain related problems to progress
I’m kind of on the fence about it. Most of the the time it’s a horrible experience and many cultures consider it a form of demonic possession and are booted out. But there are some cultures that look at them like shamans. Now there are things called ecstatic seizure auras and they’re almost a religious/spiritual experience for others. A famous writer Fyodor Dostoevsky suffered from them and he actually said he would give up years of his life for the experience. I’ve had a couple myself but I usually get Jamais vu and extreme fear. I get the feeling I’m some place I shouldn’t be and there is someone or something that doesn’t want me there. The ecstatic ones though I felt like I was being pumped full of energy and I was maxing out. I also got the feeling that I was going to learn the meaning of the universe and why im here. Then I finally blacked out into my complex partial seizure.
~I have left temporal lobe epilepsy, and was diagnosed in 1993 at mayo clinic in Jacksonville, Florida. I'm 58 now, the full convulsive unconscious seizure event kind of episodes are few thank goodness.. but extremely bad when it does happen . Last two I had were in 2011 & 2019.. I know of one incident of conscious seizure of a day/ evening period of time when I was unaware of my actions but functional and only reason I know of it happening is a man I was dating told me something I had did and said while at his mom's house and I laughed told him yeah right, he kept insisting he wasn't kidding , after a while I got an annoyed since I knew id never do what he said I did and it wasn't funny enough or funny at all so why in hell was he not letting it go and shutting up ..I got upset and told him to stop.! Around this moment as I recount it best I can but embarrassed by it so much I try to block it out, I guess it hit me OMG ..NO.. as id been told about these kind of seizures by neurologist but insisted id not had those and thought I hadn't but now I see how I have indeed and I'm still not sure how many , when and where as not remembering means just that and unless somebody points out something you said or did on that day or time, you just don't ever know which terrifying to me ! It has kept me feeling AFFRAID to go places, go out in public , etc afraid of saying or doing some crazy things or embarris g myself not knowing I am or my friends thinking wrong of me for doing I don't know what since I really don't and it's socially crippled my life ..I'm the poster child for hermit s, misfits and introverted antisocial people.. in past I've had people act as if they dislike me really hard ore without cause but I now wonder was there one? I've not driven in years due to crashing into trees that nearly died in 1997 and had serious injuries .. I love rhe idea of sindthing positive coming from my affliction ..and I do hear clearly from The Holy Spirit and wish I had energy and skill to describe in way you wouldn't doubt me, but i cant without ramvling on even more..as my X husband (married 27 yrs) said ti me once "YOUR MIDDLE NAME SHOULD BE GET TO THE DAMN POINT" .. I have had premonitions and supernatural type of events/ incidents that I would tell my husband at time of a flash fast sudden vision hearing seeing something or name of hwy siren etc then days or week or few ..some unexpected odd time we would live out the scene and it freaked him out but I'm glad he saw it and being skeptical as he was and is , I knew I wasn't crazy when he once said "the craziest shit happens to you". And he said it in a fear stressed out not amused voice .. anyway..that's all I can say for now , esp. since Sasha chewed up my dollar tree reading glasses , she's my dog and friend and I'm unable to catch many typos and can't see and do t even know what I'm saying ..I hope whomever got this far could make out most of it . P.S. UPDATE EDIT.. I also have Asperger's syndrome or a.k.a. High Functioning Autism . I wasnt diagnosed with the epilepsy or the Autism until 1993-94 when i was 28 & 29 but explains a couple of odd events happened as child that they called sleep walking falling off bed , etc. Confusion bloody nose in middle of night ir memory if slamming my own face down on corner of table hard as possible ..broken swikken bloody nose and some recallof what happen but couldnt as young kid explain it so adopted parents blamed it on sleep walking or falling off bed..im thinking of one event i have some clear recall of , even though i was maybe 6 yrs old or so ..it hapoened in camper at RV park in Panama city beach floridda .. and in 2011 i wass slamming my head hard as i could on table but screami g stop but i did it but didnt want to and i wasnt in drivers seat ..it delt like sonething was making me try to kill me ..thats only 2 times i remember this kund of tbing but hordifying left me ashamed confused and feeling i wasnt able to tell tbis ..i feel weird sharing it now ..but it id what it is and im an honest ooen book precise and clear in my interactions with people.. but crazy stuff it sounds like im embellishing but nooo..if anything imdown playing it ..it saddens and shames me . Peace & Blessings to You all wherever you are .. Cindy from Athens, Georgia USA
I have nocturnal seizures, only feel terrible pain when i wake up....used to have migraine alot but not anymore.... Last i had ....i was on amoxicillin and also had short nights..... guess those are things i need to really check well
I have my first seizure at 7 year old..next episode at 17 and two convulsions in 22 age..now l am in 38..suffering from major depression. After 22 I used to take valgress cr 300 for 15 years..and now stops medication only take antidepressant antidepressant
I had epilepsy ,now its gone dormant..I took medicines for five years continious.It is curable if you take medicines (70% time) and with watched food.Also self- indulgence with mediation reduced my seizures..
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. And you are either in jolly old England or Pakistan with high humidity and low atmospheric pressure. Gotta move to Las Vegas, NV or Palm Springs, CA
I have epilepsy and it hurts like hell when I go in to it tell I come out of it my seizures have been studied at USLA in LA over 51 years doctors have proved they are seizures they told me it is very rare to have pain.
I was diagnosed at 14. Meningitis at 6mos.....as a child I felt "wierd" at times, never said anything. Others noticed at 14 yrs old. I'm now 42. It got worse as I got older. No driving, fired from a job (whole nother story ). Seizures can be daily, weekly, monthly....different all the time. My husband and I have 4 planned pregnancies with healthy kids and a lot of high dose meds. VNS helps when I get auras, it reduces Seizures, but not close to eliminating.
Sounds alot like my story! Meningitis (bacterial) when I was a baby I survived it but aquired epilepsy (tonic clonic) soon after. was on phenobarbital for awhile then around 10 or 12 years old was told I "outgrown my seizures" but now I know I was still having seizures just not the falling down and jerking ones .
barbs19788 Since I was 10 years of age and now I am 62 My seizure is not the one that the person pass out with jerkins. I don't know if it is petite maul or partial seizure. I have relatives from father side who suffered from seizure. Keep in touch barbs
Nyck461 I had my first seizure when i was 20 and am now 36. I have the classic grand mal seizures which I'm pretty sure you're well aware of. What meds are u on and can u drive?
When I have advanced focal seizure that I can remember one part my body druping and I can't talk but can hear people but can't respond last like 1 to 2 minutes
I have seizures any time I get exposed to too much EMF. I'm home bound and usually the only place I go to is a doctor's office. So, I seize as soon as I roll through the door. It's kinda fun to freak out the staff.
PossiblyDamned, has it skipped your mind that this is a neurologist speaking to first year medical students? What they most need to know at this point is how seiz. look and what is going on in the brain so that they can relate it to everything else they have learned. The deeper understanding they will get as more experienced students and hopefully become interested specialists. The understanding of the brain and the cure for epilepsy goes hand in hand b/c epilepsy is a dysfunction in the brain.
@spiketail94 I have had epilepsy for 11 years now with 2-4 seizures per day, but I have never felt any pain from it. Have you discussed this with your doctor?
Unfortunately have frontal lobe epilepsy looking at this video see I ether have frontal or temporal lobe just now I got scare tissue on my brain I bust my head at 5 years old
My seizures comes whenever I injured my bone ..I just can't tolerate bone pain n it trigger seizures and due to this I don't feel like going out..I'm tired of this ..like even if my leg hit by some stone on roads I'm like ok it's gonna happen again
I have this sadness came to me out of the blue stress i think Still comes anywhere my dog looks after me but sometimes ill go wake up smashed up and i don't know At this moment im walking around i look like ive been in a fight its so arwful
Dhia Oshaish it depends. Many children outgrow epilepsy, so don’t give up hope. I’m 60 years old, I got Epilepsy 6 years ago because of an allergic reaction to the prescription drug Tramadol. Older people like me who get epilepsy later in life will usually have it for the rest of their life.
My niece has seizures. What type of seizures/epilepsy do you have? Did ever have an abnormal MRI? Sorry for blunt questions,we're just at a loss with this and trying to find as much info as I can on this. Any response will be greatly appreciated.
Very interesting! But I miss the points of "side effects" he mentioned. The doctor said to me, it would "isolate some regions " of the brain to prevent seizures. But is it also isolating other important waves of the brain?
I have epilepsy and it is horrible. I have no pain when I have the seizures, but when I become concious it is painful and I am tired and confused. I wish they would find a cure for epilepsy.
Tell me about it....i wish sometimes i never woke up.
Look at it like a new start every time , lol
It sucks…
I too have it and it is manageable, what type of epilepsy you have?
@@goradutta1 Genetic Generalized Grand Mal Seizures. I was born with it.
I have epilepsy and I actually shared this with my home health aid.
I’m not embarrassed if I have a seizure in public. There’s nothing I can do and whatever people think doesn’t concern me because I know what it is. Trouble for me comes from the fact that aside from friends, family just gets embarrassed by them.
In 2014 I was diagnosed with neurocystecercosis that causes seizures and it has literally destroyed my life. I’ve suffered from recurring shoulder dislocations to hurting my head due to sudden falls. But I’m fighting it out. Not sure how long I will survive. But I’ve promised myself that I will battle it out till my last breath. My wife and even few friends have ridiculed me for my seizures which I have no control over other than taking medication and following certain lifestyle rules.
To all the people who have this medical condition. Please fight on. One day you will see the light at the end of the tunnel.
Your wife's a bitch then
I’m 51 and have been experiencing seizures for the first time. When they first started (8 or 9 months ago) my family decided to push me away because they thought I was going crazy. So not only was I terrified of what was happening to me and my life, I was completely alone. This has definitely been a Huge learning experience for me. Epilepsy is probably the last thing I would have thought about. The pain of needing the support of my family, yet they all ostracized me for a damn medical condition I can’t control. Incredible. Thank you so much for sharing your story with us. It is so helpful to hear about other people who also have this, as well as knowing that I am really not alone in my struggles.
One of of the questions that was answered incorrectly.
The question was "Do seizures hurt?" The response was "Thankfully, No"
I have Focal Sensory seizures that secondarily generalize to motor (only on the right side of the brain). I am completely conscious during the tonic-clonic phase and the pain is excruciating and often find myself wishing to lose consciousness.
Still, because of doctors like Dr. Lowennstein a better future is possible.
Yes,,, and I have deeply lacerated my tongue,, this is very painful and the only reason I know I've had a seizure during my sleep....
No, after. Muscles hurt 🙏🏽1× Weekly💔
THAT IS NOT TRUE I HAVE EPILEPSY AND HAVE HAD IT FOR 51 YEARS WHEN I GO IN TO A SEIZURE IT HURTS LIKE HELL WOMEN HAVE TOLD ME IT LOOKS LIKE LABORE PAINS.
@@claircooper999me too. I always lacerate my tounge. I have split open my chin multiple times when I fell like a rock before seizing and even broke 2 teeth. It is definitely painless. I still feel like my body n my eyes r hurting so much....
i am still learning all of this but yet i do experience kinds of pain impossible to describe
I have had epilepsy and siezures my entire life. I think that if I hadnt been diagnosed with it and I hadnt known I had it, I would have come to overcome this. This "disiease is depressing. But if you look up, " Famous people with epilepsy," you will not BELIEVE which people pop up!!Be proud to have epilepsy. Wear it like a crown. And fight it. And I thank Dr. Resnick. THANK YOU!!!
TheNinjagrl101
I had it since I was nine and on tegretol now
Epilepsy is no crown! If you had it, you would take that crown off and toss it out of the window and hope no one finds it and returns it to you. I can’t drive because of this “crown”. It takes away your independence.
I have had adult onset epilepsy for almost 10 years, I am on Keppra and Tegretol. At first I was only on Keppra but it didn't help, when tegratol was added it was like a miracle. I went from up to 10 complex partial seizures a day to none🤞. Now I only get nocturnal seizures, maybe a day seizure if im extra stressed and tired about once every few months, at least I think as I don't remember just before I have a seizure, only the aura. Its not near as bad as it used to be and now I can live a semi normal life as before it was only sleep and seizures all day.
Also wow I really thought this doctor was having real seizures during his lecture. Very convincing!
Can I ask you how it’s possible to not know you have epilepsy?
Because ot all seizures are the obvious "fall on the ground and start convulsing" you see on TV. They can be as subtle as spacing out for brief moments.
My seizures are not described here.
For 25 years, I whent to the emergency room 3 or 4 times a year (sometimes more) with what felt like heart attacks. Serve chest pain, shortness of breath, confusion and cold sweats.
Electrocardiogram, Blood tests, Echocardiogram, and Stress ECG were all normal. In short, nothing wrong with my heart.
And then, the last time I whent to the emergency room, one doctor asked me to explain in detail what happened before, during and after the event.
Upon listening to my description, She said I was having epileptic seizures. I was flabbergasted, how could that be?
I don’t loose consciousness, I don’t go into spasms, but I do loose the ability to breath for a few seconds during the initial stages of the event and, once the pain subsides, I feel extreme fear and anxiety, I was also having frequent dejavú and severe depression.
She said my manifestation is called Ictal chest pain and it is incredibly rare hence, the difficulty in diagnosis.
I have been on lamotrigine for 11 months, the starting dose was 100mg/day. I am now on 250mg/day and so far, I am seizure free.
Please spread the awareness about epilepsy, especially the variations, epilepsy is not just "grand mal" siezures. Way to many things are attributed to psychology, when it is basically a neurological dysfunction.
What a brilliant lecture! Being just a lay person I thought I'd struggle to understand but Dr Lowenstein certainly is a gifted teacher and I found it fascinating. Temporal lobe epilepsy seems to run in my family & he has answered a lot a questions.
This was BY FAR the best explanation 👏, I have a temporal lobe epilepsy with simple and complex. Tonic clonic & "tonic clonic while sleep with no visual affects, currently 1st to be diagnosed" this video explanation about temporal lobe and others is absolutely helpful for realization of certain moment when your personal doctor would never act out what you do
Mr Lowenstein is a great teacher and one can see he's a nice man too...
olivier l
People with epilepsy are not crazy. This is actually still a really common misconception. Seizures happen when there are localized neuronal misfirings, and when people come out of seizures they are perfectly fine. It's not like they need to be institutionalized or anything. People with epilepsy, when not having seizures, are, normally, just as functional as someone without.
I'm absolutely not perfectly fine after my seizures, I'm fucked up for two three days afterwards
I was never fine after seizures. They completely fried my personality and memory for at least 7 months. I'm lucky to be able to talk again because of all the times I chewed completely through my tongue. So glad I'm done seizing!
@Dorris Tammy As an epileptic, I respectfully ask you peddle your “cure” to another crowd. People with epilepsy deal with years of seeking the right meds and some never get full control. To everyone else… ignore this dorris, they do not know what they speak of. Edit: they are talking herbal medicine… they are a crazy person.
That was the case for me the first 5-10 years or so, I felt a really weird scary da je vu feeling then kinda felt pulled into a tunnel. I woke up a minute or two later really confused and only remembered the strange sensation before hand, but it all came back pretty back.. They happen pretty consistently every year around 1-2 a year but they definitely started getting worse every time. Now I go into what's called Status Epilepticcus which is when I don't come out of the seizures on my own. It usually takes the paramedics 10-20 min to get there (if someones there to call them). and drug me out of it.
By that time Im always in critical condition they the put in the intubation tube down into the lungs/IV if they can find a spot while I'm shaking /catheter/. I wake up in the hospital not knowing who I am or where I am or my own address. Its SCARYY
Now I have severe memory loss and inexplainable bouts of fear or anxiety
So be careful plz. Just because it seems like he's ok now PLZ keep a watchful eye. Im to the point where if happens again I may literally not make it. They had to put 6mg of Lorazepam in me before It would stop this time. They said that alone is a dose someone can overdose from
@@evansmith6944 When you say "done" is there something that cured you? Seriously curious. I was diagnosed as epileptic about 6 yrs ago. Before that, never had one in my life, no family history, nothing.
Great video. I like coming across how people educate whether it’s the public or medical students about certain conditions, in this case epilepsy. My mother is a nurse who works in the oncology department, so she has seen her fair share of cancer patients with different conditions. I was one of those people when you thought of a seizure, you think of the most common one grand mal seizures. I was diagnosed with epilepsy when I was about 20. But it was complex focal seizures. I had no idea what those were and the neurologist informed us that my eye condition optic nerve hypoplasia besides blindness and motor skills that need occupational therapy, people with this condition can develop or get epilepsy at any age. Seriously thought it was just panic attacks. My mom was one of those Tough love people, my sister would always pretend to be sick, so she would always say things like stop feeling sorry for yourself, but she pointed it out and I thought she was making a bigger deal out of it. I would be in the shower not know what happened and hear her pounding on the shower door and yell at her to stop and why she’s screaming and she said, you’re not responding to me. I think you’re having seizures. It was interesting to find out. A few years after that, I went to get a guide dog, she’s not seizure Train, she picked that up on her own. My current neurologist mentioned the possibility of your blood pressure and how your blood smells different when you’re having a seizure or what you do when you’re having an aura and those are things my dog probably picks up on. She stopped me from things like possibly about to cross the street, I thought one time she wanted water and she pulled me off into the grass and I sat down and took off my backpack and then had an aura and then my seizure. Obviously really exhausted after it happened, found her whining and licking my face. A couple of other times when it happened, she got somebody’s attention, I remember regaining full consciousness and somebody talking to me and I told them what it was. Anyway, I just like the really in-depth explanation especially for people out there who really don’t understand the condition or what it’s like to have epilepsy.
I cried , and this man is amazing . Thank you for teaching me all this info .
I have a couple friends have it but this once did afraid but now I know what it is
Thanks, I'm a 45 year old recently diagnosed with epilepsy. I had masses of fits as an infant - young child, and 'grew' out of it. I don't think it went away, I just think the tonic clonics seizures ceased but the absence and focal seizures persisted. Thanks again for giving me so many so many 'ha ha' moments.
This is my story aswell.✌
I just wanted to say thanks Dr. Lowenstein for your dedication to explaining these things in a mannor the average person can understand.
Yeah like a lot people have epilepsy so they have seizures that can be diagnosed. Although they understand the pain and the severity. So I hope when they take the medicine for treatment.
Every time I have a seizure, my head feels like Mount Rushmore and my body feels like the Sierra Nevada. That hurts. I've lived with it for 51 years and have gone through 3 surgeries on my right temporal lobe. Still have seizures even after surgery. Though I wish I didn't have epilepsy, I am glad that I have two older cousins with epilepsy who I can look up to as role models. I'm the complex case in the family and can laugh at it. I try to find humor in my epilepsy. Sometimes it is not easy. Certain jobs are not available to me, yet others are. My secret "desire" to be an astronaut or an airplane pilot is a non starter (lol). Driving is a no no for me. I have public transportation to get around the city.
thanks for not getting behind the wheel!
Have you tried Electromagnetic tretment.??
SIR if u don't mind but can you tell me what motivated you and how you fought with your will to have the confidence to face society as epilectic
@@saketsharma672 what do you mean, when you say "...the WILL to face society as epileptic..." ? Not sure I get your meaning.
Thank you for sharing. I am curious to know what type of jobs are available for you??
It’s not the arithmetic that we’re trying to do, typically, as it is the precognitive calculations that we tend to carry.
It's such an amazing video, professor! By giving a totally different way of approaching to your lecture, you facilitated my imagination about this difficultly comprehensive topic. Tomorrow, I'm starting my 4-week practice at hospital. Thanks a bunch!
Im a 31 year old guy and I just started having seizures when I was 27, and now ive had epilepsy for a few years. Starting to get more controlled with meds... still a really shitty thing to have come out of nowhere. Enjoy life always
What was going on existentially in your life when the first seizure happened. Any difficulty with existence ?
This video was brilliant, thank you for sharing it. I was diagnosed with Juvenile Myoclonic Epilepsy when I was 12, and recently had my first tonic clonic seizure, it really does help to have an understanding of what is happening. This has also given me a possible direction for where I want my studies to take, as I found it to be extremely interesting. So thank you very much.
I too hv Juvenile Myoclonic Epilepsy since when I was 14, started hv generalized tonic clonic, and atonic seizure. It sucks but it is mostly controlled
It's amazing how many physicians and even neurologists in my town still do not understand the different types of epilepsy. This video was incredible and provided me with a lot of information. will you be doing a new one that covers the newer classifications of epilepsy?
Thank you for this video. It has given me a much better understanding of my epilepsy, knowledge is power.
I have had epilepsy since I was seven years old. I am now fifty two. My seizures are "controlled" for the most part. Unless you have epilepsy you don't know how it can affect your life. There are many jobs that you can't have. I always wanted to be a pilot. Can't do that. Aircraft mechanic. No. Work on a cruise ship. Don't think so. Surgeon. Out of the question. I understand why I can't do this. It doesn't make it any easier to take. Last year I was so exited that I was going to Disneyland. I went on one ride and I was hit by a "aura". It is hard to explain but it's sort of like a mini seizure. Spent all that money and then I had to go home. My life would be so different if I didn't have epilepsy. But hey, what you gonna do.
I always go to Disneyland as an epileptic I don't let seizures spoil everything.
Either do I. I just happened to have an aura when I had just gone on my first ride. It would have been impossible for me to spend the rest of the day at Disneyland. I hope I don't come off all gloom and doom about having epilepsy. Depending on the severity of your seizures you learn to live with it. The job I have would fire me if they found out I had a seizure. And I work for the government. In my case The Persons With Disabilities Act doesn't come into play. For the most part my seizures are controlled. My life would have gone down a much different path if I did not have it.
Right now I'm weaning off keppra
Greencloud8 good luck! I'm on Keppra and Lamictal
+BujoldComa78 What is an "aura"? Is that the feeling you get before you get a seizure?
Thank you so much for this my son Christian was born in 2008 one year after this video. He has suffered from absence seizures for most of his childhood these have now expanded into tonic seizures as he sleeps. This is the first time (despite numerous Drs appointments) that I have grasped what is happening with him. His seizures have yet to be controlled but we are hopeful. Many thanks from Australia
Need to update this.
I did a burst cerebral aneurysm in 2001 that should have killed me outright. Partial complex seizures affecting memory, deja vu, momentary blackouts of up to 2 minutes. These started in 2014 at age 63. I must say, I find mine extremely interesting and having never had seizures before I can now understand a little bit how other seizure sufferers have to try to live their lives. I have done much reading these past 4 years. I watched this lecture through its entirety. Thanks for posting it. Sad to say, yes, I see my seizure progression getting worse. Been on Keppra 500 mg per 12 hours for 4 years. Had to quit driving, which would be really nice to be able to do in my retirement years. Yes, I would love to have one of my episodes watched by a medical doctor, preferably an epilepsy specialist, but has not happened, yet.
DieHard10901 I had somewhat similar issues. I got epilepsy in December 2012 from allergic reaction to prescription Tramadol with never having a history of seizures myself or anywhere in my family. I was on Keppra the first 4 years, but I started stuttering, losing my vocabulary, stopping speaking in mid-sentence. Kept telling my neurologist something was wrong. He kept telling me it was “all in my head” and I needed to see a psychologist. Dumped the jerk and went to the epilepsy department at the Medical University. They admitted me to the ICU, which is where they have a special room and bed for epilepsy/seizures that has an EEG and a special padded bed so that you don’t get hurt while you are taken off your current anti-seizure medication. This was done to get a diagnostic EEG for me because my previous neurologist never had a clear diagnostic EEG. Discovered I was having absence seizures during the time I was stuttering and stopping talking mid-sentence( they started the EEG while I was still on my full dose of Keppra). This really scared me because my previous neurologist had let me drive for years. My new epilepsy doctor put me on new medicine, and his criteria for driving was more than just the state standard of being seizure free for so many months. After the required number of months waiting period he did EEGs, and only when I had a clean EEG would he let me drive. I feel much safer driving knowing I have a clear EEG. If you can get to a Medical University or find a hospital that has an epilepsy department I would highly recommend you do that. Good luck and God bless.
Thank you so much. I'd love to say "Where have you been all of my life" LOL Have had seizures all of my life, and had 2 surgeries. Your teaching is inspiring. Hopefully, your students shall pick up your great interest, caring, honour, and humour. Please take care. You are a gentleman and a scholar.
This was such an excellent lecture. Learned so much and really made the science palpable. I really feel for everyone dealing with epilepsy!
I am epileptic I have all types of seizures...........but I own it It cannot rule me
Amen! My epilepsy does not rule me either! Even with uncontrolled epilepsy for 20 years, it didn't rule me. I just let my doctors do their best to help me control my seizures.
I only have the absence type of seizure, where 15 mins passes by without me knowing what happened or what I did ! And it gets worse if I don't take medicine even for half a day!
@@redaben8883 = Aye, find them like some sort of frightening 'Deja Vu' experience!
@@redaben8883 I have that same problem an it is starting to really sucks i have been taking medication for as long as l remember an now I think my epilepsy went away but I keep passing out for about 15 minutes off life every time. How do you deal with this? May I ask
@@crayfish4722
For the moment I take Carbamazepine (Tegretol 400) and Lamotrigine (Lamogine 50) and I can feel their efficiency and at the same time their heavy side effects (Hangover moods).
My doctor discovered recently a solution for my partial seizures which is to double the dose. I feel I'm living with a 20kg head!
And about passing out, it's rare for me to happen, and the last time was a disaster. What triggers my passing outs is the: Taking medicines in an unregulated way
Or not to take medicine or take morning medicine on an empty stomach.
PS : i apologize for my english vocabulary, as I just woke up with a Mjolnir head.
Good luck fighting this pathology. Never give up!
I’ve auras that involve colors. I see a different pallet of colors and feel a goosebump. Very similar to some dry wind.
Best lecture Ive heard in a long while, I'm a nursing student and this helped me out a ton!
I was severely epileptic for 8 years because of a brain injury. Up to 10 seizures a day. All the meds and a VNS implant did nothing for me. Until I tried human growth hormone. Within 3 days of using it the seizures stopped. Tapered off my meds and had implant removed years ago. I have met others that hgh stopped their seizures also. This needs to be looked into
bro how did you do it ? please help i need a cure also thank you po !
@@baywatch5034 everyone's epilepsy is different so what works for one may not work for another. My epilepsy was from a brain injury. Used human growth hormone and it put a stop to all my seizures.
How many IU's? That's interesting. I've heard of trenbolone stopping people's seizures completely as well. The issue is it's so toxic that it's a massive trade off longevity wise. Although I'd easily take 30 years off my life to never have a seizure again.
To be a counterpoint to commenters saying that they have epileptic seizures that are untreatable I am offering a different story. I was successfully diagnosed with having suddenly developed repeating tonic clonic seizures while studying multiple all-nighters for midterms in college. After the doctor interviewed me during the diagnosis they came to the conclusion that years prior to these other major events I was probably suffering from absence seizures. In school prior to college these absence mals were originally diagnosed as my being an inattentive student. Blamed on my own failure to concentrate. I was treated with anti-seizure medication. Even the smallest amount of the medication proved 100% effective and with zero side effects. So here is the success story.
A lightning storm in my brain which conjures memories from the multiple lives I am experiencing in the multiverse
I feel the same exact way ❤ When I have a seizure it’s an all knowing feeling, and I am both everywhere and nowhere all at the same time.
@@Cece_1227ecstatic seizure auras
I was diagnosed with epilepsy at 12 y/o; and from what I’ve heard, it runs in The Family (records available upon request pending redaction).
I have also heard that I have an congenital astigmatism, or from the other side of The Family that, ‘I have some congenital deafness’; fortunately, my Neurologist says to just take some Valium when I get up & before bed, and I’m pretty good.
Footnote regarding sciroccos of skin:I suspect that, The lecturer is thinking about the mechanics of living bodies (I loved working in the archeology lab at school (see:TheDecameron😏/😉)) rather than the linguistic coding of the hieroglyphic/hieratic/Coptic/etc. notations indicating that these records are regarding Pts post-mummification.
Regarding interruptions of consciousness: it is rather more a matter of where the localization of the cascading-dysrythmia(induction of “bilious headache”) is in relation to the C-v split in the broader NS.
Dr Daniel Lowenstein, I am great fan of you. Have learned much from your videos on TH-cam. Great lecture, thanks for sharing it on TH-cam.
sir.thank u very very much. this is my first time i sat and did not even get up once till the lecture was over...it was so so interesting...thank u once again.....wish all my staff explains like the way u explained.
An awesome lecturer and lesson too!
I was diagnosed just 2 weeks ago with right temporal lobe epilepsy. When I got home, I started to do my own research because the doctors that I seen during my five day stay in the hospital seem to have gotten their medical license out of a crackerjack box. I had to beg just to see a neurologist at the hospital. They basically got the diagnosis and said “you’re being discharged” i said “not without seeing a neurologist I will sit right here, I as the patient would like answers on this drug you are giving me and have this diagnosis explained to me.” They finally let me see this neurologist who came in like I ruined his busy day. This is a palling to me. I was disgusted and still am disgusted. Now I get to go see that same neurologist that told me I wasn’t a candidate because there’s not many neurologist that take my insurance or even in my small town. Long story for sure but I’m sure others have been through similar instances and my heart goes out to you all. I knew nothing about epilepsy, but had been having seizures since a major accident in 2020. I was rushed to the hospital finally after having five seizures back to back and again kept there for five days waiting for an MRI. They basically ran my insurance up and made me wait five days for an MRI, which is blasphemous. I had an EEG that said the diagnosis of epilepsy and a vascular loop on my 8th cranial nerve. Months ago I went to a ears nose throat doctor and he diagnosed me with the vascular loop on the 8th cranial nerve. He stated I needed to see a cognitive dissonance therapist but said I wasn’t a candidate for a neurologist. You can imagine my anger that grew inside me. I said to him “I would like to see a neurologist!” He then told me to leave his office and I did. 10 mins later a neurologist called me and said we don’t treat vascular loops, I told him I had multiple injuries from a major accident being ran over 3 times by a truck and trailer in 2020. He hung up on me. I was disappointed and let down a month later I end up in a hospital with epilepsy. Now I am. candidate for a neurologist. 🤔 As I stated I got home and started to do lots of research finding out there was over 40 different kinds of epilepsy. Called the hospital back, trying to figure out which of the epileptic, seizure diagnosis is I had. Nobody would tell me I also found in biblical text, where Jesus healed the boy with epilepsy in Mark 9:17-27 and other stories of epilepsy. There are many ways to help you deal with your epilepsy, but yet no cure other than to cure your own mind. That does not mean don’t see a doctor, or watch these educational videos. It simply means to go inside of oneself to find the root cause of any illness. Today I go for my check up at my MD to get a referral for a neurologist even though the hospital stated I needed to follow up with one immediately. They didn’t give me a referral. In America our healthcare system is crashing and has been crashed for sometime. It’s really hard to deal with medical system, especially when our government has its hands all in it. I pray this gives hope to those who have seizures they are very scary. They are like outer body experiences. When he said some thing about smelling phantom smells I get those and sometimes before a seizure., I can actually stop the seizure by saying out loud what I’m smelling. it has helped it keeps me conscious and then I do slower breathing. Not deep inhalation or deep exhalation to hyperventilate to cause a seizure but slow breathing. Thank you for this video. I am now finding it is a sacred disease and I have a lot of sacred inside of me just like all of you. God put a cure for everything here. We just have to find what works for us.
Whollysmokes! I'm sorry for your horrible experience...I also hate how we get limited care bc of our insurance. My friend says, at least they pay for your stuff, and i tell him, "but i have to go to the bottom of the barrel team !" ...and they look down on ppl like me...not cool!
But i must say...at least here in a big city, there is potential to find a cutting edge specialist...eventually,
Very many thanks indeed professor, an exceptional and highly informative video, I just wish you were my Dr, seriously
Thank you for this video! This has been the best resource of understanding for me so far on this journey with my son. Thank you...
Thank you this is a great source of information, I am a student nurse and have found your talk very helpful.
This was a interesting as a 60 yr old living with Epilepsy for almost 40 yrs, got a couple recommendations: stop consuming aspartame or lots of sugar/sweets. Both can lower seizure threshold.
I had seizures that were excruciating! Tonics that started at my feet and moved up my body, griping me like a 20FT boa constrictor. My legs stiffening, my abdomen, I can't breath! Suddenly I want it to go up and end my pain. Then I'm unconscious.
Can we update this with the 2023 technologies and treatments?
Great educational video
I was asking myself the same question
Epilepsy is still has no cure even in 2023...technology has nothing to do with seizures...treatment like surgeries... even this could not remove the unknown cause of epilepsy. May God be merciful with all of those who suffered and died due to epilepsy without any cure, and May God be merciful with all those daring attendants who cares and stay close with those who are suffering from epilepsy. Watching your dear one while he/she having seizures and after his seizures finish and you still keep on staying together with an epileptic patient so that he could get his conscious back in normal is very painful for the attendant. Both epileptic patient and his/her attendant faces the same type of depression.
My father has epilepsy from last 08 years. I am his attendant from last 08 years.....i cannot tell anyone my own mental condition by dealing with my father's epilepsy which still has no cure at all. Please pray for me and my father
Thanks for this video I have suffered with varying epileptic seizures from mild to server epilepsy or petimal to grand mal this information helps
I have had adult onset epilepsy for almost 10 years, I am on Keppra and Tegretol. At first I was only on Keppra but it didn't help, when tegratol was added it was like a miracle. I went from up to 10 complex partial seizures a day to none🤞. Now I only get nocturnal seizures, maybe a day seizure if im extra stressed and tired about once every few months, at least I think as I don't remember just before I have a seizure, only the aura. Its not near as bad as it used to be and now I can live a semi normal life as before it was only sleep and seizures all day.
Also wow I really thought this doctor was having real seizures during his lecture. Very convincing!
My criticism of this and most descriptions of (generalized) seizures is that an individual loses all consciousness. I can still hear and feel during a grand mal, and Dr. William Bell has documented 2 cases of people who can as well. More research needs to be done!
Then you're not having a full grand-mal seizure.
I can do the same and it made it much harder to diagnose me too.
I can attest to this. At least for some of it, I can feel my legs start to shake, my mind tell me I'm having a seizure, hear the voices around me, and feel when I hit the ground. I've become more conscious thru them with age.
I can still hear too unless I lose consciousness. It's hilarious how many Drs and nurses steady keep asking me questions in the middle of a seizure. I'm like, I'm kind of busy here. Lol
@Sandra Caraveo; You can be very aware, just not able to communicate that awareness.
Here's a suggestion... How about not having that "stride gum" ad come up before this great info on epilepsy... Hello flickering lights!!!
I have both focal and generalised seizures. Sometimes my focal seizures are simple (as I remember them) and then they can turn complex, and then they can turn generalised.
They also always occur during ovulation.
It hits hard when the professor says, 'but then again we still don't know why...'.
I make that crazy exhaling noise. Actually apparently I cuss and yell then make the crazy noise and spasm. He got it close but the spasms per minute are way more. Like your getting electrocuted. Its a hell of a work out
As a child and young person, I suffered from epilepsy, though not very severely. I may have had 10-12 seizures in total, others are far worse off.
But I found the first seizure interesting. It was a Sunday morning, and I was having breakfast with my parents and two brothers. I was 8-9 years old. Suddenly, my mother lifted my shirt and said, "Goodness, boy, you have rubella!" She had noticed my rash. The next thing I remember is lying in my bed. I think my father must have carried me to the bed. My parents, shocked as they were, had called for an ambulance. What happened to me?
I have had GMS for some time, and YES, they got worse as I got Older. I was 20 when I had my 1st Seizure. I'm now 55, and they increased over time. Very good Lecture, Professor! This is the 1st time I got more info on my condition!
I actually learn a lot from this video. I've had seizures since I was 20. I suffered 2 other major seizures later on. I take Dilantin for my treatment. A lot of the contents is reaffirmation of the causes of these seizures that I had. I thank Dr. Lowenstein for this lecture. I really understand now and wish I could had known earlier these causes.
Parietal also processes peripheral/liminal awareness into conscious algorithmic constructs in human perception, no?
I’m sorry disagree with the MD, but my last epilepsy episode makes me feel hitted by a truck. Weeks with muscle pain.
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Same with me, I always feel battered for a couple of weeks after a tonic clonic seizure, sometimes I put my back out.
Try mct oil
VERY GOOD LECTURE .Would like to know more about latest developments in treatment.My son is 21 and undergoing treatment in Mumbai India
I wish my epilepsy would go away almost daily because when people find out they automatically think your mentally challenged and talk down to you and it causes a lot of anger for me and I end up blowing up on someone who didn't actually mean any harm they are just ignorant about epilepsy and it has cost me my career I was a part time forklift op. and I was a driver for the United States Postal Service and now I have nothing and I have to take low paying jobs or lie about my condition and that puts myself and the people I work with at risk but what other options do we have but to be homeless
stfuitsnotthatbad - Sorry. Most people do not understand this condition. I don't tell anyone unless it is absolutely necessary. It's really no one's business. Medication has made me have a very short temper when least expected so I have to be on guard all the time now in how I communicate with others and overly careful to be polite and loving. If I feel I'm getting pissed off, I need to stay away from people until I calm down or I'll rip someone a new one and it will be a negative experience and counterproductive. I never used to be like this until I started taking this medication. I had to retire from my stressful profession because it was a bad fit for epilepsy and exacerbated my temper. Trying to find something Zen I can do to make some money and be at peace. Making sure to get enough physical exercise and stay busy all the time with hobbies. Wanting to get off this R/X at some point. Diagnosed w/ LT Lobe epilepsy at 55. Lovely.
Pls remember not to take Alcohol and cut down Sugary items. And don't sleep on your tummy. Try not to sleep alone and take
sufficient rest. God Bless You..
@@mikeloke9632 You are exactly correct. Both Alcohol and sugary foods I have found lead to imbalance of the blood sugars and/or temperament the following day.
It is ridiculous. I’m also visually impaired and my eye condition optic nerve hypoplasia gives people a risk to develop epilepsy and the neurologist who I met for the first time brought that up and mentioned a bump on my pituitary gland. I didn’t know I was having seizures because they weren’t the common ones that people hear about, thankfully my mom is a nurse and she noticed them. But still, it’s bad enough when somebody talks down to you because they think blind people are mentally retarded, then they witness the seizure and it gets even worse. What would she like to eat? Can she come and insert whatever you want here because I don’t want to talk directly to the person with a disorder or disability? It’s really insulting. Yes we have bills to pay and kudos to anybody who wants to be the happy part time cashier, but I did not study music education to do that.
File for disability. I got it after 6 years. Use a lawyer who only collects if u win
Thank u my son has generalized chronic seizure from brain tumor he is 18 and i wish everyone can be cured thank u so much sir is the brain tumor surgery a good choice an a success
After seeing myself go through the physical part of it I think its important to know the differences between seizures. I have come close to death many times in clusters of grand mals and it is extremely brutal to see for all around, and when I cluster it goes on for days sometimes. The tape lasted six hours just going in and out till it ran out.
Freaky to see your self with eyes open and never remember a bit of it. Then babel on for days or weeks even a month or more before I remember my name.
How have you got on these past 10 years?
He is good! His seizure descriptions and his conversational demos are very good. Interesting and so useful.
u r not only a good teacher but a good actor too:)
Epilim and Lamactol medication has changed my life. Epilepsy appeared out of nowhere in my life appeared at 26 trial and error for 6 years through different medications my new medication has stopped them completely so far! They were on a daily if not every few days seizures from minor to the serious 5 min period torn apart tounge and cheeks blood everywhere total unconsciousness until hours later not knowing who I am, where I am or the date. Dejavu was scary seeing myself from above and seeing incidents like they've happened before yet they never did happen. 1 year seizure free couldn't be happier to live a normal life and be accepted to the society once again.
hello i also have a seizure disorder here is my story When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. as i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist.
At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i have an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned
The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so I have all of the symptoms of Aspergers but lack any sort of understanding math as a result I have no understanding of money and never really learned my basic math facts.(I am just learning them now in college which for most Aspergers people they are gifted with math abilities ) I also have orthotic issues due to my seizures I also have a processing disorder. I have low gross motor control and other motor issues as well.
When was 19 my father died, and it seems I have had a relapse if that is possible. I still have my absence seizure but it is not enough to put me on meds . When I was thirteen I had EEG and my seizures showed up as misfired neurons and the Dr. called them "flurries" so here is what my flurries are typically like I will become very spacey i can not interact with my surroundings I also felt locked in to place. I am completely aware my vision becomes like a tunnel and thing start to move or vibrate on there own for me an absent seizure lasts one second with is rare but these flurries can last 5-10 minutes.
Sophie Palmer-Doran holy crap our stories are so similar! the entire first paragraph is & was me... diagnosed at 5, triggers are flashing lights (also stress & lack of sleep). Medication for me I started becoming immune after taking depakote for almost 20 years. Only meds that worked. The day my dad passed, I had a breakthrough seizure. It was too emotionally overwhelming. Currently I take a high grade CBD oil & the myclonic ticks I started having last month, I’ve been free of for the last few days now.
@@celissewillis9399 i just did an update to my story enjoy hello i also have a seizure disorder here is my story When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. as i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist.
At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i have an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned
The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so I have all of the symptoms of Aspergers but lack any sort of understanding math as a result I have no understanding of money and never really learned my basic math facts.(I am just learning them now in college which for most Aspergers people they are gifted with math abilities ) I also have orthotic issues due to my seizures I also have a processing disorder. I have low gross motor control and other motor issues as well.
When was 19 my father died, and it seems I have had a relapse if that is possible. I still have my absence seizure but it is not enough to put me on meds . When I was thirteen I had EEG and my seizures showed up as misfired neurons and the Dr. called them "flurries" so here is what my flurries are typically like I will become very spacey i can not interact with my surroundings I also felt locked in to place. I am completely aware my vision becomes like a tunnel and thing start to move or vibrate on there own for me an absent seizure lasts one second with is rare but these flurries can last 5-10 minutes.
I have temporal epilepsy. I've watched this several times. Epilepsy being a "sacred" disease is an affront to me. When I have a seizure I'm often transported, against my will, to a reality designed by Hieronymus Bosch combined with a few elements from my personal experience. When I have a seizure everything feels more real than reality itself. The audacity of this gentleman saying my condition is "Sacred" is just so far off the mark that for me it is offensive. For me epilepsy is like being dropped into the pit of hell without a parachute and having someone telling me the breeze on the way down is exhilarating.
I just see it as almost seeing another reality....sucks I have to spams or my auras cause me to sweat so much and almost feint but the overwhelming feelings and the " beings " i see and the fact I have seen them or felt them so many years ago i forgot that when it happens its so completely overwhelming...so when you have those "dreams" that you know are real events...just prepare for them....start seeing the clues...... blah blah... wtv.. had it since birth .. just my opinion..good luck to you....
I have temporal lobe epilepsy and well and it's definitely not sacred! Mine are like very short, very intense panic attacks with deja vu or sometimes jamais vu(the opposite) and then falling off of a cliff into nothingness. Hardly what I would call sacred!
By equalising the grey matter and white matter in the brain through proper systematic breathing excercise like agathiyar breathing excercise will it help for brain related problems to progress
I’m kind of on the fence about it. Most of the the time it’s a horrible experience and many cultures consider it a form of demonic possession and are booted out. But there are some cultures that look at them like shamans. Now there are things called ecstatic seizure auras and they’re almost a religious/spiritual experience for others. A famous writer Fyodor Dostoevsky suffered from them and he actually said he would give up years of his life for the experience. I’ve had a couple myself but I usually get Jamais vu and extreme fear. I get the feeling I’m some place I shouldn’t be and there is someone or something that doesn’t want me there. The ecstatic ones though I felt like I was being pumped full of energy and I was maxing out. I also got the feeling that I was going to learn the meaning of the universe and why im here. Then I finally blacked out into my complex partial seizure.
~I have left temporal lobe epilepsy, and was diagnosed in 1993 at mayo clinic in Jacksonville, Florida. I'm 58 now, the full convulsive unconscious seizure event kind of episodes are few thank goodness.. but extremely bad when it does happen . Last two I had were in 2011 & 2019.. I know of one incident of conscious seizure of a day/ evening period of time when I was unaware of my actions but functional and only reason I know of it happening is a man I was dating told me something I had did and said while at his mom's house and I laughed told him yeah right, he kept insisting he wasn't kidding , after a while I got an annoyed since I knew id never do what he said I did and it wasn't funny enough or funny at all so why in hell was he not letting it go and shutting up ..I got upset and told him to stop.! Around this moment as I recount it best I can but embarrassed by it so much I try to block it out, I guess it hit me OMG ..NO.. as id been told about these kind of seizures by neurologist but insisted id not had those and thought I hadn't but now I see how I have indeed and I'm still not sure how many , when and where as not remembering means just that and unless somebody points out something you said or did on that day or time, you just don't ever know which terrifying to me ! It has kept me feeling AFFRAID to go places, go out in public , etc afraid of saying or doing some crazy things or embarris g myself not knowing I am or my friends thinking wrong of me for doing I don't know what since I really don't and it's socially crippled my life ..I'm the poster child for hermit s, misfits and introverted antisocial people.. in past I've had people act as if they dislike me really hard ore without cause but I now wonder was there one? I've not driven in years due to crashing into trees that nearly died in 1997 and had serious injuries .. I love rhe idea of sindthing positive coming from my affliction ..and I do hear clearly from The Holy Spirit and wish I had energy and skill to describe in way you wouldn't doubt me, but i cant without ramvling on even more..as my X husband (married 27 yrs) said ti me once "YOUR MIDDLE NAME SHOULD BE GET TO THE DAMN POINT" .. I have had premonitions and supernatural type of events/ incidents that I would tell my husband at time of a flash fast sudden vision hearing seeing something or name of hwy siren etc then days or week or few ..some unexpected odd time we would live out the scene and it freaked him out but I'm glad he saw it and being skeptical as he was and is , I knew I wasn't crazy when he once said "the craziest shit happens to you". And he said it in a fear stressed out not amused voice .. anyway..that's all I can say for now , esp. since Sasha chewed up my dollar tree reading glasses , she's my dog and friend and I'm unable to catch many typos and can't see and do t even know what I'm saying ..I hope whomever got this far could make out most of it .
P.S. UPDATE EDIT..
I also have Asperger's syndrome or a.k.a. High Functioning Autism . I wasnt diagnosed with the epilepsy or the Autism until 1993-94 when i was 28 & 29 but explains a couple of odd events happened as child that they called sleep walking falling off bed , etc. Confusion bloody nose in middle of night ir memory if slamming my own face down on corner of table hard as possible ..broken swikken bloody nose and some recallof what happen but couldnt as young kid explain it so adopted parents blamed it on sleep walking or falling off bed..im thinking of one event i have some clear recall of , even though i was maybe 6 yrs old or so ..it hapoened in camper at RV park in Panama city beach floridda .. and in 2011 i wass slamming my head hard as i could on table but screami g stop but i did it but didnt want to and i wasnt in drivers seat ..it delt like sonething was making me try to kill me ..thats only 2 times i remember this kund of tbing but hordifying left me ashamed confused and feeling i wasnt able to tell tbis ..i feel weird sharing it now ..but it id what it is and im an honest ooen book precise and clear in my interactions with people.. but crazy stuff it sounds like im embellishing but nooo..if anything imdown playing it ..it saddens and shames me .
Peace & Blessings to You all wherever you are ..
Cindy from Athens, Georgia USA
I would like to talk to u I have epilepsy and has alot of the same experiences
Because of this informative video I now know what kind of seizures I was getting.
Thank you so much 😊
I have nocturnal seizures, only feel terrible pain when i wake up....used to have migraine alot but not anymore....
Last i had ....i was on amoxicillin and also had short nights..... guess those are things i need to really check well
Thank you..if people understood more about Epilepsy..Can Environments cause Seizures..
I have my first seizure at 7 year old..next episode at 17 and two convulsions in 22 age..now l am in 38..suffering from major depression. After 22 I used to take valgress cr 300 for 15 years..and now stops medication only take antidepressant antidepressant
I had epilepsy ,now its gone dormant..I took medicines for five years continious.It is curable if you take medicines (70% time) and with watched food.Also self- indulgence with mediation reduced my seizures..
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. And you are either in jolly old England or Pakistan with high humidity and low atmospheric pressure. Gotta move to Las Vegas, NV or Palm Springs, CA
Phosphorus and ion channels my next goal of understanding. Thanks from a mum of a post MENINGITIS child with siezures. Appreciated your lecture.
Thank you for this video you've answered SO MANY questions
I have epilepsy and it hurts like hell when I go in to it tell I come out of it my seizures have been studied at USLA in LA over 51 years doctors have proved they are seizures they told me it is very rare to have pain.
TheEEG is needed in the ER,been there twice two different hospitals with a seizure but the EEG was not there.
9liv3 Cat ER docs are not trained to read an EEG. Also, it's not a quick test - they use various stimuli to attempt to trigger a seizure.
Summer Gemmell also you can only have 4 hours of sleep when you have to have a EEG.
fantastic video, great instructor, thank you
I was diagnosed at 14. Meningitis at 6mos.....as a child I felt "wierd" at times, never said anything. Others noticed at 14 yrs old. I'm now 42. It got worse as I got older. No driving, fired from a job (whole nother story ). Seizures can be daily, weekly, monthly....different all the time. My husband and I have 4 planned pregnancies with healthy kids and a lot of high dose meds. VNS helps when I get auras, it reduces Seizures, but not close to eliminating.
Sounds alot like my story! Meningitis (bacterial) when I was a baby I survived it but aquired epilepsy (tonic clonic) soon after. was on phenobarbital for awhile then around 10 or 12 years old was told I "outgrown my seizures" but now I know I was still having seizures just not the falling down and jerking ones .
what a wonderful vedio..a perfect way o teaching...thx for this vedio
i wish i never had epilepsy
So do I.
And me too but this is not a choice
Nyck461
how long have u had epilepsy?
barbs19788 Since I was 10 years of age and now I am 62
My seizure is not the one that the person pass out with jerkins. I don't know if it is petite maul or partial seizure.
I have relatives from father side who suffered from seizure.
Keep in touch barbs
Nyck461
I had my first seizure when i was 20 and am now 36. I have the classic grand mal seizures which I'm pretty sure you're well aware of. What meds are u on and can u drive?
Something else that needs to be addressed is mental illness and epilepsy. Bi polar goes hand in hand w epilepsy. That’s a double whammy for sure.
What a wnderful explaination
When I have advanced focal seizure that I can remember one part my body druping and I can't talk but can hear people but can't respond last like 1 to 2 minutes
Yes! I just felt that the other day for the first time, although I have been seizure free for over 18 months.
Is there any evidence that epilepsy is related to electromagnetic fields?
I think So!
Mene Tekel interesting theory. Let's do some research. 😃
I have seizures any time I get exposed to too much EMF. I'm home bound and usually the only place I go to is a doctor's office. So, I seize as soon as I roll through the door. It's kinda fun to freak out the staff.
Right now, im experiiencing partial seizure, doc L, can i recieve covid 19 vax?will it worsen my situation ? Will it go back to grand mal seizure ?
PossiblyDamned, has it skipped your mind that this is a neurologist speaking to first year medical students? What they most need to know at this point is how seiz. look and what is going on in the brain so that they can relate it to everything else they have learned. The deeper understanding they will get as more experienced students and hopefully become interested specialists. The understanding of the brain and the cure for epilepsy goes hand in hand b/c epilepsy is a dysfunction in the brain.
That's My Doctor! lol He's been my doc for 10 years and he's good.
lucky you
@spiketail94 I have had epilepsy for 11 years now with 2-4 seizures per day, but I have never felt any pain from it. Have you discussed this with your doctor?
Unfortunately have frontal lobe epilepsy looking at this video see I ether have frontal or temporal lobe just now I got scare tissue on my brain I bust my head at 5 years old
My seizures comes whenever I injured my bone ..I just can't tolerate bone pain n it trigger seizures and due to this I don't feel like going out..I'm tired of this ..like even if my leg hit by some stone on roads I'm like ok it's gonna happen again
I have this sadness came to me out of the blue stress i think
Still comes anywhere my dog looks after me but sometimes ill go wake up smashed up and i don't know
At this moment im walking around i look like ive been in a fight its so arwful
I got seizures from watching TV , school and i have also a vulnerability to the computer
is eplipsy incurable? :(
my brother was just diagnosed with eplipsy 3 weeks ago, is there no hope already?
Dhia Oshaish it depends. Many children outgrow epilepsy, so don’t give up hope. I’m 60 years old, I got Epilepsy 6 years ago because of an allergic reaction to the prescription drug Tramadol. Older people like me who get epilepsy later in life will usually have it for the rest of their life.
My niece has seizures. What type of seizures/epilepsy do you have? Did ever have an abnormal MRI? Sorry for blunt questions,we're just at a loss with this and trying to find as much info as I can on this. Any response will be greatly appreciated.
Interesting and informative lecture
Very interesting! But I miss the points of "side effects" he mentioned. The doctor said to me, it would "isolate some regions " of the brain to prevent seizures. But is it also isolating other important waves of the brain?
wonderful lecture!! thanks
I have epilepsy, not bipolar disorder! What is the similarity there!?
this is a really awesome class,mine allthough is nothing like this