Thank you for stopping by Niquita. It's amazing how many women have both conditions but sometimes doctors don't know much about EDS and it all goes undiagnosed. I hope you've had experiences that have been positive.
I had severe endometriosis which led to a hysterectomy at 22. This was long before I’d ever heard of the conditions I have, which are vascular and hypermobile EDS, POTS, and MCAS. I’ve seen dozens of doctors and am still fighting to find any doctor here that knows anything about these conditions. They also caused me to wake up legally blind in a way that glasses or surgeries can’t help as well as having a subarachnoid hemorrhage on Easter Sunday of 2021.
I have both as well, yesterday I stumbled upon a headline saying Halsey, the singer, also has both disorders and was looking for a link, from there I got curious. Thank you for this video, I truthfully don’t understand what goes on in my own body well enough, thank you for helping me educate myself!
Thank you for taking the time out to comment and encourage. I believe that it is very important, as a patient to educate ourselves about our conditions. It helps us to be able to work with ourselves better and advocate better with our doctors who seem over-worked and dismissive - personally I find myself having to push some doctors to get answers and then there are some who are very helpful. Good luck on your journey.
I’m so happy I stumbled upon your channel. Everything you mention makes so much sense. I currently am diagnosed with stage 4 endo but I highly suspect I’m suffering from heds as well. Thank you for the informative videos
Hi Alicia, I'm so glad that you've found my channel helpful. It's amazing how much is connected and once that connection is made by the doctors, so many of our other symptoms begin to make sense. Thank you for taking the time out to leave a comment.
Hi Lily! Thank you so much - I'm really glad that it's been helpful to you. And thank you for dropping by and leaving a comment. It encourages me to keep at it. :)
I have Endometriosis and suspected EDS type 3 as well. I found progestins made me more likely to sprain, strain and dislocate. I wonder if progesterone drop before period could be implicated in a worsening of symptoms. Anemia could also contribute. thanks for sharing :)
Anaemia in itself makes functioning tougher especially when you have painful periods and heavy bleeding. I'm not aware of the progesterone and anaemia connection with EDS though, but then again, I'm not a specialist medical professional. But sometimes, with the way EDS is, I'm not surprised of its connection with any medical condition!!
It's interesting that you say that, because my symptoms started to get really bad during the luteal phase of my cycle(7-10 days before period) and then again during ovulation. My symptoms clustered based on my cycle.
Hi Nayana, I've done a blog post on doctors who help treat my endo - I hope it helps: allthingsendometriosis.com/doctors-treat-endometriosis-adenomyosis/
I’ve seen many people with dysautonomia and endometriosis. I am one of them. Do you know if these 2 illnesses are related? Why do they appear at the same time?
Hi Claudia, that's a great question. I did some quick research and found that women with dysuatonomia/POTS are four times more likely to have endometriosis. Why and how that is? To answer that I need to do a bit more research and I will - hopefully will make a detailed video on it. Thank you for this question :)
@@FootprintsNoBoundariesByShruti Yes, it would be very interesting to know. My personal guess is that since dysautonomia means automatic bodily functions go out of whack, I think this might lead to the immune system getting confused and attacking endometrial cells that get into the uterus rather than clearing them up as it normally should. Of course, this is just my guess and something that makes sense to me... since I believe i did not have Endo long before I was diagnosed with dysautonomia. Maybe when my ANS started going crazy my endo started as well.
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Thank you for sharing I have both aswell too. It's great to bring awareness. Xx
Thank you for stopping by Niquita. It's amazing how many women have both conditions but sometimes doctors don't know much about EDS and it all goes undiagnosed. I hope you've had experiences that have been positive.
I had severe endometriosis which led to a hysterectomy at 22. This was long before I’d ever heard of the conditions I have, which are vascular and hypermobile EDS, POTS, and MCAS. I’ve seen dozens of doctors and am still fighting to find any doctor here that knows anything about these conditions. They also caused me to wake up legally blind in a way that glasses or surgeries can’t help as well as having a subarachnoid hemorrhage on Easter Sunday of 2021.
I have both as well, yesterday I stumbled upon a headline saying Halsey, the singer, also has both disorders and was looking for a link, from there I got curious. Thank you for this video, I truthfully don’t understand what goes on in my own body well enough, thank you for helping me educate myself!
Thank you for taking the time out to comment and encourage.
I believe that it is very important, as a patient to educate ourselves about our conditions. It helps us to be able to work with ourselves better and advocate better with our doctors who seem over-worked and dismissive - personally I find myself having to push some doctors to get answers and then there are some who are very helpful.
Good luck on your journey.
I’m so happy I stumbled upon your channel. Everything you mention makes so much sense. I currently am diagnosed with stage 4 endo but I highly suspect I’m suffering from heds as well. Thank you for the informative videos
Hi Alicia, I'm so glad that you've found my channel helpful. It's amazing how much is connected and once that connection is made by the doctors, so many of our other symptoms begin to make sense. Thank you for taking the time out to leave a comment.
Well FML. Thank you
I am so grateful for your blog and this video, both of which have been so so helpful to me on my journey. I cannot thank you enough.
Hi Lily! Thank you so much - I'm really glad that it's been helpful to you. And thank you for dropping by and leaving a comment. It encourages me to keep at it. :)
I have Endometriosis and suspected EDS type 3 as well. I found progestins made me more likely to sprain, strain and dislocate. I wonder if progesterone drop before period could be implicated in a worsening of symptoms. Anemia could also contribute.
thanks for sharing :)
Anaemia in itself makes functioning tougher especially when you have painful periods and heavy bleeding. I'm not aware of the progesterone and anaemia connection with EDS though, but then again, I'm not a specialist medical professional. But sometimes, with the way EDS is, I'm not surprised of its connection with any medical condition!!
It's interesting that you say that, because my symptoms started to get really bad during the luteal phase of my cycle(7-10 days before period) and then again during ovulation. My symptoms clustered based on my cycle.
Thank you
You're welcome :)
Who is ur doctor... Pl share the details... I have been suffering for a long time...
Hi Nayana, I've done a blog post on doctors who help treat my endo - I hope it helps: allthingsendometriosis.com/doctors-treat-endometriosis-adenomyosis/
Mam,
Iam eds patient
If you possible you can help me......
I’ve seen many people with dysautonomia and endometriosis. I am one of them. Do you know if these 2 illnesses are related? Why do they appear at the same time?
Hi Claudia, that's a great question. I did some quick research and found that women with dysuatonomia/POTS are four times more likely to have endometriosis. Why and how that is? To answer that I need to do a bit more research and I will - hopefully will make a detailed video on it.
Thank you for this question :)
@@FootprintsNoBoundariesByShruti Yes, it would be very interesting to know. My personal guess is that since dysautonomia means automatic bodily functions go out of whack, I think this might lead to the immune system getting confused and attacking endometrial cells that get into the uterus rather than clearing them up as it normally should. Of course, this is just my guess and something that makes sense to me... since I believe i did not have Endo long before I was diagnosed with dysautonomia. Maybe when my ANS started going crazy my endo started as well.
Iam eds patient madam