I’d love to see Dr. Pavlova … my rheumatologist was awful to me, didn’t want to see me in person, didn’t believe my symptoms were real. Instead she reduced me to tears, and made me fight to be tested. Turns out it was Dermatomyositis, thankfully my dermatologist pushed to get me tested and is helping me find a new rheum. Such a horrible process. Care, compassion, and good bedside manner goes so far with patients who have chronic illness.
Primum non nocere is unknown in Rheumatology. They feel too exalted to bother with fully informed consent. They are the most entitled and paternalistic doctors around. Many of them love to degrade their patients. I suppose that makes it easier to rationalize the damage they do. I am bitter about rheumatology and I’m actually holding my tongue here lol. For dermatomyositis you might want to investigate a combination of boswellia turmeric & ginger. Ginger is anticoagulant so you may need to be a bit careful. No you do not need your physicians permission to take supplements but I would strongly recommend that you consult a knowledgeable sympathetic pharmacist if you are on prescription meds. Other supplements such as pine bark grapeseed and green tea may also be helpful.
There is nothing worse than a doctor that doesnt actually believe you. I've been through this. He never asked further questions, he never ordered more tests. He just said... nahhh, its nothing. (and got paid for this "diagnosis") I felt terrible, i started questioning myself. Maybe i was exaggerating? Maybe im being weird. Turns out he was wrong and i was right to be suspicious about it. Worst feeling ever.
@@brucedeo1981 Hey George I hope you are feeling better now and I couldn’t agree more with you! I believe there’s a lot of great doctors out there but like ever field you still have some rude ones. I’ve definitely had my fair share which is why there’s nothing wrong with getting a second opinion and finding that right doctor for you who doesn’t just treat you as another number. Wishing you the best!
@@akg1649 I agree. I have watched physician struggle with the insurance companies, constantly changing policies and laws. It's no wonder they burn out.
We need more people joining the medical field. There's lots of good, smart people out there. We need them joining the medical field to be people like Dr Siobhan.
I know I wish my doctors were like this I wouldn’t be in bad health if these Doctor I keep getting worse over time by the time I’m done my body will be shutting down
i was diagnosed with RA at 19 yrs old. i'm so glad you decided to go into rheumatology! i have a feeling i'll learn a lot more about my illness from you than any doctors i've seen irl lol
I too wish I had a good doctor. An infectious disease specialist tested and diagnosed me with Sjogrens. My Ro and La are negative so other docs dismissed me. The Early Sjogrens Panel confirmed my diagnosis. Sjogrens is so much more than dry eyes but doctors act like it’s nothing! It causes damage and can lead to lymphoma!! I wish all doctors cared to get properly educated for their patients’ sake.
i got diagnosed at 25 but apparently had it sense i was 14 no doc could figure out what i had but im not an easy patient because im so phobic of needles.
@@mamashiraz I hear you. I had to make a decision to stay with a bad doctor or find a new one. And a lot of non-chronically ill/disabled people have no idea just how daunting of a task that is. I'm in the US & I have private ins through my parent bc I'm under 26-- so I knew that if I didn't start at least trying as soon as possible, one day I might really suffer for it. So I looked. It took me 3 months of calling everyone I could to find someone in-network that was taking new patients before I got two appointments. First one I booked was in 8 months but really close to where I live, the second was in 3 but pretty far away. I kept both just in case, but the 3 month one went beautifully. So now I have a new Rheumatologist who understands me and my needs as a CI & disabled person. I guess what I'm trying to say is that, even if you know you'll have to wait years to see them, start looking now. Because when the day comes it might change everything for the better. Good luck. I know things are really really awful right now, but future you will thank you. And the way I see it is that the farther out the appointment, the more time I have to save up $. And I can always cancel if I find someone better, sooner. I wish you well. You deserve exceptional care.
@@noctusowl I did ! Though unfortunately I had to go through two doctors for reasons worse than not learning enough. First one moved, second one didn't respect my bodily autonomy. But I'm on #3 now and her and her team are great! I usually go to the internet (reputable, accurate, and verifiable info only, of course) if I have specific questions, but sometimes there's stuff you just won't think to ask, especially when you're chronically ill/disabled and have so much medical stuff to think about and meds to take. So I agree, it's so important to have a Dr. that can tell you what you won't even think to ask!
Hearing how compassionate you all are warms my heart. I always feel I'm bothering my rheumatologist but it isn't like I wake up and decide to have active disease. She's very kind to me and it seems you're so wonderful for your patients too! Thanks for being you!
My mom has rheumatoid arthritis, and it’s an awful painful disease. Thank you so much for doing what you do. Because of doctors like you, she got a little bit of her quality of life back ❤️❤️
I have RA and have struggled to find a good rheumatologist in my area!! My symptoms appeared 12 years ago and I have so much permanent damage. It’s so rough and I can honestly say that the chronic fatigue is almost worst than the pain!!! It’s so cool to see it from the doctors perspective!! ❤️
My daughter has RA. As mentioned in the vlog, she has issues with her heart. She had to have a mitral valve replacement when she was 27. She then had to go on warfarin, but it was a struggle to get her inr levels within the normal range. Last year she needed more surgery when they found a blood clot around the valve. Before they could operate, she had a stroke, and then had to have open hear surgery 2 days later. They replaced the valve with a pigs valve. Her surgery went well but they had to place her in an induced coma for a week, then she had her second stroke. She fought back and after 8 weeks at the steoke rehabilitation unit, she was finally well enough to go home. Not a lot of people realise theres more to arthritis than swollen joints.
@@lynneanthony168 shes doing as well as can be expected. She will never be fully recovered. The heart valve lasts 7-10 years, so she will most definitely require more open heart surgery.
Hi Caroline! I’m so sorry to hear about your daughter’s strokes and needing surgery :( I can only imagine how scary that was for you and her. I’ll be praying for her! I myself not just last week had a stroke scare with my sickle cells disease. I had no idea that RA could cause all theses serious complications as well. Thank you sharing your story and educating us! Sending you well wishes and love! 💗
@@elisabethdixie thankyou! A lot of people dont realise that theres a lot more to RA than inflammation and painful joints. I hope you are feeling better after your scare last week.
I have RA and use injectable DMARDS and Biologics and mostly have the RA under control…. love watching your clinics to see the “behind the scenes”, since I know how much goes into patient treatment. Another educational and cool video❤️
I’ve been diagnosed with rheumatoid arthritis since I was 21 (now almost 24), with symptoms still before then. I love seeing this! It’s so relatable, kinda like seeing behind the scenes lol
This video brought my heart so much joy. I nursed my mum for 14 years who died from lupus sle, crest and sclerederma complications and I now 39 have had, psoriatic arthritis, fibromyalgia, osteoarthritis and kyphoscoliosis since I was 27. I am on MTX-inj, salasopyryn and tremfya - inj plus topirimate. Watching you thrive and work so happily in this field, brings my heart joy. It's so wonderful to know amazing doctors continue to join this interesting and intriguing field.
Doctors are gifts from god. Any kind of arthritis is painful I'm glad you spot light rheumatology. Doctors like you bring a sense of comfort. I also think it's so amazing you have almost 1million subscribers and you don't run ads on your videos. Your love for helping mankind brings faith back into humanity.
I’m a medical assistant student doing my clinicals before graduating in a couple weeks and I’ve gotten to work in the rheumatology clinic a few times and I love it!! I have so much respect for not only the rheumatologists I work with, but also rheumatologists all around. You do so much for patients who suffer with so much everyday pain. I also have so SO much respect for rheumatology patients. I can’t even begin to imagine what they’re going through and they have always been my sweetest patients I’ve had so far. To the rheumatologists out there, thank you so much for the incredible work you do!! And to the rheumatology patients, never give up, although living with a rheumatologic disease may be excruciating and highly difficult, YOU still matter and are worth so much!!
If you do more Rheumatology videos I would LOVE to see a video talking about Ankylosing Spondylitis, especially in younger patients. I think it's a really fascinating (and terrible) disease. My partner was diagnosed in his early twenties and it was hard to convince doctors to do any kind of tests/send him to a rheumatologist because he was otherwise young and healthy so I think advocating for treatment in younger patients would be really helpful.
I love how doctors are showing us the behind the scenes. It really helps humanize the profession. Also I can live vicariously through the vids. Being a doctor was my childhood dream.
I love my RA doctor, she saved me. I was in so bad shape when I went to see her for the first time, I was taking so many pain killers for 2 months before I got my appt. and that day we had a snow storm and I got a call from her office, if I was going to make it and I said I could not miss it. I had tears in my eyes when the doctor saw me, I was so happy and she was the only one who can take this pain away and able to walk my children to school again. Thank you for choosing to be a RA doctor, I have so much respect for you 💕🇵🇦🇨🇦🙏🏾
I have seronegative RA, treated for almost 20 years, and thanks to doctors like you, I have been able to still walk and use my hands. Thank you for showing others that RA isn’t just a name for bad arthritis and that it’s different from OA in many ways. Over the years, it’s been hard to explain to others that I can’t diet and except use my way out of this chronic disease. Thanks to good medicine and good science, we are able to live better than ever with autoimmune disease.
I was so glad when you said you were going to be a rheumatologist. My first experience with a rheum was horrible, but I have an amazing rheumatologist now. I have psoriatic arthritis, currently on Remicade after failing Methotrexate, Cimzia, and Symponi Aria. Humira worked for me but insurance stopped covering it. Good luck with your continued education and practice. You'll be an amazing Rheumatologist.
As a multiple chronic illness patient and a health professional, I love watching your videos, but I adore the colours all through the clinic, it makes a huge change to the clinical white white white you seem to see everywhere
You were born to be doctor!!! I love your videos and how much you care about your patients and co-workers! I always look forward to new videos. Stay safe!
I'm on remicade. A biologic. Had this dammed disease for over 20 years now. Good to see your channel doing so well. I'm learning stuff from your channel.
My dad was hit with arthritis like a ton of bricks. He was at a college football game and suddenly couldn't walk. This was in 2004. He tried dozens of therapies, injectable, intravenous, pills, he was miserable. But finally, the rheumatologist found the right combination and 17 years later he lives with manageable arthritis. Pain can make life miserable, doctors like you are so important. Thank you!
I worked in medicine for 49 yrs before having to medically retire. I LOVE your attitude! Your passion to help is so refreshing to see. I was dx w/ Ssc (diffuse systemic scleroderma). This autoimmune is rare and is no fun to have. There is no cure but we have meds that can help us w/ the joint pain, lung issues and other internal organ issues. My disease was discovered by a blood test checking for arthritis. Keep up that great work and attitude, you will go many great places with your profession. PS: I have had wonderful physicians caring for me and I have been seen at the Univ of WA Medical Center where they have a scleroderma clinic, so the providers are aware of the complexity that this disease causes us to deal with.
I have had a very interesting rheumatology journey that started overseas and featured the same hospital system where you are, and I was treated incredibly well. After many tests and scans, I was diagnosed with RA and now it is under control. Thank you for caring well for your patients with the same kindness and care that I have received from my rheumatologists!
I'm sure this will save a life by sharing this information and introduce to you DR AZAKA CURE REMEDIES on TH-cam who cured my disease which I'll rather be private about, I was cured from HPV with his herbal medicine, I wasn't really expecting a herbal medicine to be as effective as I experienced, my test results proves that I've been cured from HPV , and you can as well Contact him and be free from any kind of infections or diseases , I'm pretty much certain you'll all thank me later
I've said this so many times but I love it so much you're in rheumatology!!! I love how I can see the behind the scenes of the type of doctor I see for my lupus
I had swollen knees JUST like the photo in the thumbnail, and they suspected juvenile rheumatoid arthritis for me. In the end, I was diagnosed with Crohn’s Disease and am currently on methotrexate for my joints. This video basically explained a lot of that and just proves how it takes a lot of different people to make a diagnosis!!
Ditto for me except when my knee would swell, no doctor could explain why. It wasn’t until I was in my 40’s that I was diagnosed with JA/RA. I took methotrexate but was immediately taken off because of liver blood test results. I then went on enbrel and had an allergic reaction. I was then put on Humira. I didn’t feel any different…..still in a lot of pain…went off of it due to a sinus infection and haven’t gone back on because I was nervous about being on an immunosuppressant during covid…but I felt fine the whole time. Got the vaccine and the second shot immediately caused flares that I’ve been having for a month now. I dont like my rheumatologist and found another but can’t be seen until October 😦
@@lm3049 you should look into intermittent fasting. I was diagnosed in 2013 with rheumatoid arthritis. I refuse to take immunosuppressants. So of course my doctor did not want to see me again 🙄 so I did my own research and have been intermittent fasting for years. Now I'm only eating 1 meal a day (took a couple years to get here) and have no more pain and all my blood test came back great 😁 I've never felt better
I have ra since I was 39 years old.I'm now 48 years old.in California USA.doctors just blow me off.you have given me more info than any doctors. Thank you.
As an RA patient, I appreciate my rheumatologist so much. She listens to me and I feel like we’re a team trying to keep this beast under control. Immediately after my RA diagnosis, she started aggressively treating me to minimize joint damage. She thoroughly explained the medications she prescribed me and addressed all my concerns. I am really happy I found a great doctor because you hear so many horror stories. I’m sure you’re going to be equally as awesome as my doctor. ❤️
This video may be old now but seeing you work is so wholesome. I have JIA and I have such a hard time finding a doctor that truly listens to me. I have to fight for treatment evaluations, injections etc.. it’s exhausting enough to be chronically ill 😢
I have PSA and boy was it a struggle to get diagnosed and finally treated! I’m glad rheumatology is your passion and you are helping the most by listening to your patients!
my mom was diagnosed with RA in 2001 and was put on methotrexate to treat it! unfortunately she had an adverse reaction and was diagnosed with pulmonary fibrosis…. in 2016 after other heath problems she declined and in 2018 received a double lung transplant in toronto! just this week she signed the list and is now waiting a second double lung transplant! a whole new journey but my family will get through this !!!! thank you for your videos, as a nursing student i learn so much and it’s nice seeing videos that relate to my mom as well!!!!
I love these videos. I was diagnosed with Sjogren's Syndrome around the time you said you were going to be a rheumatologist. I've never heard much on rheumatology before but it makes me so glad when I see these videos pop up. ❤
Yayyyy from seeing you be a med student to be a specialist in internal med and your aspired rheumatology, it gives me goosebumps and mad inspiration ❤❤
As someone who has their first rheumatologist appointment in 3 weeks, this made me less nervous to see the enthusiasm you and your colleagues have for getting answers for your patients and making them feel better. Thank you for sharing!
When I was diagnosed with RA in 1993, the prognosis was what is shown at 4:17 and I was devastated. Saying that it's best to be aggressive with treatment right away is crucial. Thanks to many great doctors and biologics, I only have suffered minimal damage. Love seeing the behind the scenes of the process, Siobhan! 💜💜💜
I was diagnosed with RA in Nov. 2015. I had been working in healthcare for about 6 years and was familiar with the side effects of methotrexate. I declined all medications because I was a newlywed and wanted a child at some point. I found out I was pregnant in Jan. 2016 so I never took any meds. Pregnancy really gave me relief from the RA. About 8 weeks after giving birth to twins, the RA symptoms returned. I waited 3+ years to start treatment and was prescribed the entire RA med collection (prednisone, sulfasalazine, methotrexate, humira, and vitamins). Within 2 months, I was in the ER for cellulitis and shingles. Since then, I stopped all pharmaceuticals and now manage with taking collagen peptides and Melaleuca vitamins and minerals.
As a Sjogrens patient who just delivered my second child, I am so happy to hear your passion and love for supporting this special group of patients! Having amazing care partners makes the journey a lot more manageable! Thank you for all you do!
I'm sure this will save a life by sharing this information and introduce to you DR AZAKA CURE REMEDIES on TH-cam who cured my disease which I'll rather be private about, I was cured from HPV with his herbal medicine, I wasn't really expecting a herbal medicine to be as effective as I experienced, my test results proves that I've been cured from HPV , and you can as well Contact him and be free from any kind of infections or diseases , I'm pretty much certain you'll all thank me later
Seems like a great team there!! Wish my rheumatologist team was like this - I did not have 'high enough' inflammation markers so I was told it was in my head and was given a referral to a psychologist. Made me leave their office in tears only with a offer to xray my wrists to 'prove there's nothing wrong.' Got a fibromyalgia diagnosis after months and months of battling for a second opinion. Only took me 5 years to finally get an answer haha. You will be changing peoples lives by showing this amount of care and compassion.
This is so awesome! Thank you 🙏. I do have a question, do you ever treat Lupus patients And if so would you ever show us a lupus patients and how you would go about treating a lupus patients in a video?
I have an amazing rheumatologist but if I didn’t have her I’d be tracking you down. I love your charming personality and the way you actively listen to your patients.
I am so proud of you and your team. I hope you keep that great attitude over the years and not let the negative people bring you down. I'm just an old guy but I love what you are doing for your patients. Keep up the great work and attitude!! Thank You!!
Agree that the support staff are AMAZING! The amount of time it would take to organize and follow-up on everything without them would be so overwhelming. I swear the secretary in our family medicine clinic has 4 different ears she can listen with at the same time with the amount of multi-tasking she is able to accomplish. Great video!
So excited for doctors like you and future of empathetic doctors especially in rheumatology! Us women EDSer, small fiber neuropathy, RSD/CRPS, dysautonomia/sjogrens, fibro, mast cell activation disease peeps need doctors like you. It's not ok how often we get written off for years on end. 😿 ivig and dupixent have been game changers for me!
I am so excited to find these videos! I too have had really bad experiences and rheumatology and so has my sons. They were diagnosed with juvenile rheumatoid arthritis and then until we found a rheumatologist at children's hospital, they were treated like crap by other doctors. Children can't make up the pain they go through and they can't make up fevers and joint swelling! I was diagnosed with lupus before they were ever diagnosed with anyting and I've had three doctors confirm it and now I have a doctor after 30 years trying to tell me that I don't have it. The joint destruction in my body is becoming horrific and she's trying to say that it is osteoarthritis! I have a high ANA titer and there is inflammation in my body and in the joints. My right hand joints are now destroyed and I didn't even know it until she x-rayed them and now it has attacked my thumb joint it is a nightmare and it happened within a 4 month. I don't think osteoarthritis would warp my hands the way this stuff is warping me. So I want to say that I am grateful for this video and for your efforts to treat all of us with autoimmune problems as human beings who need love care and healing and information! Keep going sweetheart and I am really glad that you are doing this and it would be great to be your patient! You are going to be a fabulous doctor!
Hi there! I’d love to see more talk about psoriatic arthritis when you’re next talking rheumatology if possible! I have PSA and I see so much more talk/awesomeness for RA. Particularly with pregnancy. Maybe comparing the differences between the two diseases? Love your work.
This style of video is my favourite! I love your manner Siobhan and Dr Pavolva sounds like such a great mentor. I have ankylosing spondylitis, I use injectable bDMARDs and am hoping for a pregnancy in the future, so this was lovely to see.
I have had RA since I was 7 (33 years now!) and I wish you were my RA doctor. I love your bedside manner. Xeljanz has been my miracle drug that helps the most (along with hydroxychloroquine). I am able to work full-time as a licensed mental health therapist and do everything that I have wanted to do in life.
Serious woman power going on! I love seeing everyone working together. I’ve had some horrible doctors and will only go to my family doctor unless it’s an emergency. Wish there was more out there like you ladies 💚
Your journey and attitude is so empowering. This is helpful to see how much our healthcare workers go through to make us better! Thanks for everything you do for us on you tube, and your patients! Your great attitude is contagious!!
I have RA, and have been on Prednisone and Methotrexate for a few years now. To supplement I've tried infusions and injectables, but was stressing out about it majorly due to a fear of needles, so I currently take another newer medication that has been working really well. My biggest problem has been synovitis in my left knee that makes walking difficult. My rheumatologist is really great though, and it's good to see people in the field who are really passionate about helping.
I'm not looking to be a doctor, but I do suffer from MCTD with arthritis as a big part of it -- I appreciate your videos because it helps me to understand my disease more and I also love seeing the care that you & other doctors you work with treat your patients with!
I absolutely love your enthusiasm and your dedication to your field. I bet your enthusiasm is infectious and those around you are very happy to work with you. I'm glad that you appreciate the administration staff. I think you are an awesome doctor.
You are exactly how I aim to be each time I see patients. I am currently doing my internship year in Mexico, so basically it's still basic education to become a general physician. You are a great inspiration with your dedication, good-natured spirit and passion for your work. Keep it up! Greetings from Querétaro!
I'm so excited to watch and learn how things work behind the scenes, being a woman who suffers from RA I'm hanging on every word you say. So refreshing to see your enthusiasm for knowledge and desire to help give your patients the best quality of life. I'm also very interested in RA and pregnancy. Can't wait to see more. Xo
I love my rheumatologist, but not her office staff who are slow, rude, and never refill my Rx correctly. I'm currently without meds for 2 weeks because of them. So I'm encouraged to see such a friendly office.
You are the perfect human to be a rheumatologist. You are so kind and patient when explaining conditions. Do you guys diagnose and treat fibromyalgia? Thanks for your videos!!
It so refreshing to see someone taking Rhumatoidology seriously , I have sjogrens it took me over 2 years to find it went thru so much pain and even was accused of being “mentally ill” because my regular routine bloodwork kept coming back normal. finally someone ran a simple AI panel and there it was. now fast forward 6 years I’ve been having new health issues and again I can’t get the drs to listen . I’m so frustrated. I wish all drs were as caring as you and didn’t write their patients off . When my sjogrens was confirmed upon receiving my results the office was celebrating because the needed my blood for research . It was a miserable feeling being told I had a disease that’s not curable and the people giving you the new are excited and happy about it . Never addressed my pain, Nw Ed addressed my fatigue didn’t explain what it was or what was going to happen to me . I never went back . and now I’m stuck in the same position cuz my dr is writing me off as “anxiety” or age . Im in my 30’s 🤦🏼♀️I don’t even know what to do anymore .
My mother has very very severe ra. Her RF is in the 500's. No joke. She's tried every DMARD and biologic. She's had to be on prednisone for 10+ years. Methotrexate nearly killed her. Her previous rheumatologist was unwilling to try anymore ra meds for her because she's such a risk. She's been hospitalized about 10 times since her methotrexate toxicity in 2017. She now has a new rheumatologist who is willing to try a new biologic, Actemera. 3 weeks down and no infection or serious side effects. 🤞
My older brother had juvenile rheumatoid arthritis. He was on prednisone and methotrexate. He was in a wheel chair for three years, and at one point it was so bad that he was put on chemotherapy. He was REALLY sick. A good portion of his and my childhood where spent in hospitals. He is in remission now, thank goodness, but he was in so much pain when he was sick.
@@kbrown4138 I’m happy to say he is medication free. When he was sick, he stopped growing completely, and when he got better, he had a massive growing spurt and now he’s super tall. We suspect that the hormones from puberty helped him. It’s still a bit of a mystery.
I love your channel. As a medical student, I totally enjoy them. They are also super educative. Keep it on Doc. I’m Nigerian 🇳🇬 but I currently live and study in The Philippines 🇵🇭
I love this! It's a treat to see you at the beginning of your rheumatology career! Your patients and co-workers will be blessed to have you for two years in that clinic. And Dr. Pavlova will love you!
@@MsStina84 Ahh, thanks. I've been watching Siobahn a long time and lose track of exactly where we are. :-) I hope I'm still watching in 10-20 years from now!
This seems like such a fantastic clinic to work at! Your colleagues seem so positive and radiant❤️ So happy your speciality has lead you to this position
I am so glad you went into Rheumatology! I see a pediatric rheumatologist for enthesitis related juvenile idiopathic arthritis. I am glad I have a pediatric rheumatologist near me since there are not many. Grateful for what you do and I hope we can find cures to JIA! Would you be able to talk a little bit about seeing JIA patients after they transition to adult rheumatology?
Hi ! I am sorry you have JIA and hope you have it under control! Where are you from? You said that there are few pediatric rheumatologists in your country , I want to become one, in Romania. I am wondering how many doctors and patients there are , worldwide.
@@AndreeaTrandafirFlagshipMed I live in the US and there are only about 350-400 pediatric rheumatologist here which we are lucky to even have that many, but some states still do not have a single one! I am sure it’s a great field of medicine and there needs to be more research done to help fight pediatric rheumatic diseases!
@@sophiestefancic2448 Yes, I think there is plenty room for research, I hope I will contribute some day to this ! Hope to hear great news about your JIA!
I also see a Pediatric rheumatologist and I also hope we can find cures. I've had symptoms since a couple years after birth but wasn't diagnosed till over a decade later. Glad to have a rheumatologist as well. I'm so grateful for her as I know there's so many people out there struggling with no help or cure for their diagnosis. Stay Strong! 💕
@@dianaa.1100 Unfortunately, we are just beginning to see this kind of diseases that not many doctors are aware of. I am excited to see the evolution of medicine! Hope you are doing well! Stay healthy
it’s so nice that the doctors you work with act with you to show us everything!
I agree! 4:08 seeing the delivery and tone of next steps is important for patient-dr relationships to build trust
I’d love to see Dr. Pavlova … my rheumatologist was awful to me, didn’t want to see me in person, didn’t believe my symptoms were real. Instead she reduced me to tears, and made me fight to be tested. Turns out it was Dermatomyositis, thankfully my dermatologist pushed to get me tested and is helping me find a new rheum. Such a horrible process. Care, compassion, and good bedside manner goes so far with patients who have chronic illness.
I am sorry you went through this! I am glad you have a diagnosis so its symptoms can be controlled!
Primum non nocere is unknown in Rheumatology. They feel too exalted to bother with fully informed consent. They are the most entitled and paternalistic doctors around. Many of them love to degrade their patients. I suppose that makes it easier to rationalize the damage they do. I am bitter about rheumatology and I’m actually holding my tongue here lol. For dermatomyositis you might want to investigate a combination of boswellia turmeric & ginger. Ginger is anticoagulant so you may need to be a bit careful. No you do not need your physicians permission to take supplements but I would strongly recommend that you consult a knowledgeable sympathetic pharmacist if you are on prescription meds. Other supplements such as pine bark grapeseed and green tea may also be helpful.
Thank you, so informative.
There is nothing worse than a doctor that doesnt actually believe you.
I've been through this.
He never asked further questions, he never ordered more tests.
He just said... nahhh, its nothing. (and got paid for this "diagnosis")
I felt terrible, i started questioning myself. Maybe i was exaggerating? Maybe im being weird.
Turns out he was wrong and i was right to be suspicious about it.
Worst feeling ever.
@@brucedeo1981 Hey George I hope you are feeling better now and I couldn’t agree more with you! I believe there’s a lot of great doctors out there but like ever field you still have some rude ones. I’ve definitely had my fair share which is why there’s nothing wrong with getting a second opinion and finding that right doctor for you who doesn’t just treat you as another number. Wishing you the best!
The world needs more physicians like this. 😀
I think many start out like this and then get burnt out and/or hearts harden.
Definitely agree with you. Shes just so warm and bright. You can be more inspired to be come a doctor and can help many lives.
@@akg1649 I agree. I have watched physician struggle with the insurance companies, constantly changing policies and laws. It's no wonder they burn out.
We need more people joining the medical field. There's lots of good, smart people out there. We need them joining the medical field to be people like Dr Siobhan.
I know I wish my doctors were like this I wouldn’t be in bad health if these Doctor I keep getting worse over time by the time I’m done my body will be shutting down
The Queen has uploaded. You motivate me every time i watch you work. Its so therapeutic.
Hi Nina - that makes my day, thanks!
That's how I feel! :)
Don’t forget the king 🎉
Dr Pavlova seems like such an encouraging and energetic mentor. Glad you have someone great helping you along your path!
I love when the Drs play along with the videos!!
Dr pavlova seems so enthusiastic great team
Nothing makes me feel like a million bucks than seeing your sweet videos
Exactlyyyyy
aw thanks Brian! Great to see you!
i was diagnosed with RA at 19 yrs old. i'm so glad you decided to go into rheumatology! i have a feeling i'll learn a lot more about my illness from you than any doctors i've seen irl lol
I too wish I had a good doctor. An infectious disease specialist tested and diagnosed me with Sjogrens. My Ro and La are negative so other docs dismissed me. The Early Sjogrens Panel confirmed my diagnosis. Sjogrens is so much more than dry eyes but doctors act like it’s nothing! It causes damage and can lead to lymphoma!! I wish all doctors cared to get properly educated for their patients’ sake.
Change doctor if you don't learn from them or the rest of the team.
i got diagnosed at 25 but apparently had it sense i was 14 no doc could figure out what i had but im not an easy patient because im so phobic of needles.
@@mamashiraz I hear you. I had to make a decision to stay with a bad doctor or find a new one. And a lot of non-chronically ill/disabled people have no idea just how daunting of a task that is. I'm in the US & I have private ins through my parent bc I'm under 26-- so I knew that if I didn't start at least trying as soon as possible, one day I might really suffer for it. So I looked. It took me 3 months of calling everyone I could to find someone in-network that was taking new patients before I got two appointments. First one I booked was in 8 months but really close to where I live, the second was in 3 but pretty far away. I kept both just in case, but the 3 month one went beautifully. So now I have a new Rheumatologist who understands me and my needs as a CI & disabled person.
I guess what I'm trying to say is that, even if you know you'll have to wait years to see them, start looking now. Because when the day comes it might change everything for the better. Good luck. I know things are really really awful right now, but future you will thank you.
And the way I see it is that the farther out the appointment, the more time I have to save up $. And I can always cancel if I find someone better, sooner. I wish you well. You deserve exceptional care.
@@noctusowl I did ! Though unfortunately I had to go through two doctors for reasons worse than not learning enough. First one moved, second one didn't respect my bodily autonomy. But I'm on #3 now and her and her team are great!
I usually go to the internet (reputable, accurate, and verifiable info only, of course) if I have specific questions, but sometimes there's stuff you just won't think to ask, especially when you're chronically ill/disabled and have so much medical stuff to think about and meds to take. So I agree, it's so important to have a Dr. that can tell you what you won't even think to ask!
Hearing how compassionate you all are warms my heart. I always feel I'm bothering my rheumatologist but it isn't like I wake up and decide to have active disease. She's very kind to me and it seems you're so wonderful for your patients too! Thanks for being you!
I am an RN and have SLE so love the Rheumatology videos.
Can I just say how adorable Dr. Pavlova is? I love her accent too!
My mom has rheumatoid arthritis, and it’s an awful painful disease. Thank you so much for doing what you do. Because of doctors like you, she got a little bit of her quality of life back ❤️❤️
What kind of treatments? Every time my mom goes to the doctor about her RA they give her more pain killers. Just incompetency.
I have RA and have struggled to find a good rheumatologist in my area!! My symptoms appeared 12 years ago and I have so much permanent damage. It’s so rough and I can honestly say that the chronic fatigue is almost worst than the pain!!! It’s so cool to see it from the doctors perspective!! ❤️
Dr.Pavlova seems like an amazing mentor and someone who you can talk openly with. So supportive!
Just like her energy and enthusiasm in every video. It makes me cheerful
My daughter has RA. As mentioned in the vlog, she has issues with her heart. She had to have a mitral valve replacement when she was 27. She then had to go on warfarin, but it was a struggle to get her inr levels within the normal range. Last year she needed more surgery when they found a blood clot around the valve. Before they could operate, she had a stroke, and then had to have open hear surgery 2 days later. They replaced the valve with a pigs valve. Her surgery went well but they had to place her in an induced coma for a week, then she had her second stroke. She fought back and after 8 weeks at the steoke rehabilitation unit, she was finally well enough to go home. Not a lot of people realise theres more to arthritis than swollen joints.
I hope your daughter is doing well now. x
@@lynneanthony168 shes doing as well as can be expected. She will never be fully recovered. The heart valve lasts 7-10 years, so she will most definitely require more open heart surgery.
Hi Caroline! I’m so sorry to hear about your daughter’s strokes and needing surgery :( I can only imagine how scary that was for you and her. I’ll be praying for her! I myself not just last week had a stroke scare with my sickle cells disease. I had no idea that RA could cause all theses serious complications as well. Thank you sharing your story and educating us! Sending you well wishes and love! 💗
@@elisabethdixie thankyou! A lot of people dont realise that theres a lot more to RA than inflammation and painful joints. I hope you are feeling better after your scare last week.
I have RA and use injectable DMARDS and Biologics and mostly have the RA under control…. love watching your clinics to see the “behind the scenes”, since I know how much goes into patient treatment. Another educational and cool video❤️
I’ve been diagnosed with rheumatoid arthritis since I was 21 (now almost 24), with symptoms still before then. I love seeing this! It’s so relatable, kinda like seeing behind the scenes lol
This video brought my heart so much joy. I nursed my mum for 14 years who died from lupus sle, crest and sclerederma complications and I now 39 have had, psoriatic arthritis, fibromyalgia, osteoarthritis and kyphoscoliosis since I was 27. I am on MTX-inj, salasopyryn and tremfya - inj plus topirimate. Watching you thrive and work so happily in this field, brings my heart joy. It's so wonderful to know amazing doctors continue to join this interesting and intriguing field.
Doctors are gifts from god. Any kind of arthritis is painful I'm glad you spot light rheumatology. Doctors like you bring a sense of comfort. I also think it's so amazing you have almost 1million subscribers and you don't run ads on your videos. Your love for helping mankind brings faith back into humanity.
I’m a medical assistant student doing my clinicals before graduating in a couple weeks and I’ve gotten to work in the rheumatology clinic a few times and I love it!! I have so much respect for not only the rheumatologists I work with, but also rheumatologists all around. You do so much for patients who suffer with so much everyday pain. I also have so SO much respect for rheumatology patients. I can’t even begin to imagine what they’re going through and they have always been my sweetest patients I’ve had so far. To the rheumatologists out there, thank you so much for the incredible work you do!! And to the rheumatology patients, never give up, although living with a rheumatologic disease may be excruciating and highly difficult, YOU still matter and are worth so much!!
Patients need passionate doctors like you 😊
I love Dr Pavlova’s style. Walking into that office would immediately make me feel comfortable.
If you do more Rheumatology videos I would LOVE to see a video talking about Ankylosing Spondylitis, especially in younger patients. I think it's a really fascinating (and terrible) disease. My partner was diagnosed in his early twenties and it was hard to convince doctors to do any kind of tests/send him to a rheumatologist because he was otherwise young and healthy so I think advocating for treatment in younger patients would be really helpful.
I love how doctors are showing us the behind the scenes. It really helps humanize the profession. Also I can live vicariously through the vids. Being a doctor was my childhood dream.
I love my RA doctor, she saved me. I was in so bad shape when I went to see her for the first time, I was taking so many pain killers for 2 months before I got my appt. and that day we had a snow storm and I got a call from her office, if I was going to make it and I said I could not miss it. I had tears in my eyes when the doctor saw me, I was so happy and she was the only one who can take this pain away and able to walk my children to school again. Thank you for choosing to be a RA doctor, I have so much respect for you 💕🇵🇦🇨🇦🙏🏾
It is so obvious that you love your job and helping people. Watching your videos always puts a smile on my face. Thank you for all you're doing 💜
This is by far the best and my favorite video of Violin MD. Talk about positive energy :)
This is the type of doctor I want. She loves her job, she is professional, and I would never feel embarrassed with her she is such a sweetheart ❤
Dr.Pavlova is so sweet!!!! 🥺
I have seronegative RA, treated for almost 20 years, and thanks to doctors like you, I have been able to still walk and use my hands. Thank you for showing others that RA isn’t just a name for bad arthritis and that it’s different from OA in many ways. Over the years, it’s been hard to explain to others that I can’t diet and except use my way out of this chronic disease. Thanks to good medicine and good science, we are able to live better than ever with autoimmune disease.
I just saw her today and now I'm obsessed with her channel
I was so glad when you said you were going to be a rheumatologist. My first experience with a rheum was horrible, but I have an amazing rheumatologist now. I have psoriatic arthritis, currently on Remicade after failing Methotrexate, Cimzia, and Symponi Aria. Humira worked for me but insurance stopped covering it. Good luck with your continued education and practice. You'll be an amazing Rheumatologist.
As a multiple chronic illness patient and a health professional, I love watching your videos, but I adore the colours all through the clinic, it makes a huge change to the clinical white white white you seem to see everywhere
You were born to be doctor!!! I love your videos and how much you care about your patients and co-workers! I always look forward to new videos. Stay safe!
I'm on remicade. A biologic. Had this dammed disease for over 20 years now.
Good to see your channel doing so well.
I'm learning stuff from your channel.
My dad was hit with arthritis like a ton of bricks. He was at a college football game and suddenly couldn't walk. This was in 2004. He tried dozens of therapies, injectable, intravenous, pills, he was miserable. But finally, the rheumatologist found the right combination and 17 years later he lives with manageable arthritis. Pain can make life miserable, doctors like you are so important. Thank you!
I worked in medicine for 49 yrs before having to medically retire. I LOVE your attitude! Your passion to help is so refreshing to see. I was dx w/ Ssc (diffuse systemic scleroderma). This autoimmune is rare and is no fun to have. There is no cure but we have meds that can help us w/ the joint pain, lung issues and other internal organ issues. My disease was discovered by a blood test checking for arthritis. Keep up that great work and attitude, you will go many great places with your profession. PS: I have had wonderful physicians caring for me and I have been seen at the Univ of WA Medical Center where they have a scleroderma clinic, so the providers are aware of the complexity that this disease causes us to deal with.
Wish rheumatology offices were more common.
I have had a very interesting rheumatology journey that started overseas and featured the same hospital system where you are, and I was treated incredibly well. After many tests and scans, I was diagnosed with RA and now it is under control. Thank you for caring well for your patients with the same kindness and care that I have received from my rheumatologists!
Thank you so much for choosing the field of Rheumatology!
I'm sure this will save a life by sharing this information and introduce to you DR AZAKA CURE REMEDIES on TH-cam who cured my disease which I'll rather be private about, I was cured from HPV with his herbal medicine, I wasn't really expecting a herbal medicine to be as effective as I experienced, my test results proves that I've been cured from HPV , and you can as well Contact him and be free from any kind of infections or diseases , I'm pretty much certain you'll all thank me later
I love how colorful the clinic is!! 😍. It gives the clinic such a happier vibe.
I've said this so many times but I love it so much you're in rheumatology!!! I love how I can see the behind the scenes of the type of doctor I see for my lupus
I had swollen knees JUST like the photo in the thumbnail, and they suspected juvenile rheumatoid arthritis for me. In the end, I was diagnosed with Crohn’s Disease and am currently on methotrexate for my joints. This video basically explained a lot of that and just proves how it takes a lot of different people to make a diagnosis!!
I have Juvenile Arthritis (even though I’m now 19😅). I was diagnosed at age 11 :(
Same story for me as well. Issues with my joints.. then got diagnosed with Crohns.
Ditto for me except when my knee would swell, no doctor could explain why. It wasn’t until I was in my 40’s that I was diagnosed with JA/RA. I took methotrexate but was immediately taken off because of liver blood test results. I then went on enbrel and had an allergic reaction. I was then put on Humira. I didn’t feel any different…..still in a lot of pain…went off of it due to a sinus infection and haven’t gone back on because I was nervous about being on an immunosuppressant during covid…but I felt fine the whole time.
Got the vaccine and the second shot immediately caused flares that I’ve been having for a month now. I dont like my rheumatologist and found another but can’t be seen until October 😦
@@lm3049 you should look into intermittent fasting. I was diagnosed in 2013 with rheumatoid arthritis. I refuse to take immunosuppressants. So of course my doctor did not want to see me again 🙄 so I did my own research and have been intermittent fasting for years. Now I'm only eating 1 meal a day (took a couple years to get here) and have no more pain and all my blood test came back great 😁 I've never felt better
Is the methotrexate hard on you? Does its work?
I have ra since I was 39 years old.I'm now 48 years old.in California USA.doctors just blow me off.you have given me more info than any doctors. Thank you.
As an RA patient, I appreciate my rheumatologist so much. She listens to me and I feel like we’re a team trying to keep this beast under control. Immediately after my RA diagnosis, she started aggressively treating me to minimize joint damage. She thoroughly explained the medications she prescribed me and addressed all my concerns. I am really happy I found a great doctor because you hear so many horror stories. I’m sure you’re going to be equally as awesome as my doctor. ❤️
This video may be old now but seeing you work is so wholesome. I have JIA and I have such a hard time finding a doctor that truly listens to me. I have to fight for treatment evaluations, injections etc.. it’s exhausting enough to be chronically ill 😢
I have PSA and boy was it a struggle to get diagnosed and finally treated! I’m glad rheumatology is your passion and you are helping the most by listening to your patients!
I am so happy to see you branching into what you love to do!! Bonessss!!
my mom was diagnosed with RA in 2001 and was put on methotrexate to treat it! unfortunately she had an adverse reaction and was diagnosed with pulmonary fibrosis…. in 2016 after other heath problems she declined and in 2018 received a double lung transplant in toronto! just this week she signed the list and is now waiting a second double lung transplant! a whole new journey but my family will get through this !!!! thank you for your videos, as a nursing student i learn so much and it’s nice seeing videos that relate to my mom as well!!!!
Tu es une personne en or , les médecins et spécialistes devraient tous être passionnés comme toi ! ♥
I love these videos. I was diagnosed with Sjogren's Syndrome around the time you said you were going to be a rheumatologist. I've never heard much on rheumatology before but it makes me so glad when I see these videos pop up. ❤
Yayyyy from seeing you be a med student to be a specialist in internal med and your aspired rheumatology, it gives me goosebumps and mad inspiration ❤❤
As someone who has their first rheumatologist appointment in 3 weeks, this made me less nervous to see the enthusiasm you and your colleagues have for getting answers for your patients and making them feel better. Thank you for sharing!
Man, I’m loving Dr. Pavlova’s vibe. She’d be a great doctor to have!
When I was diagnosed with RA in 1993, the prognosis was what is shown at 4:17 and I was devastated. Saying that it's best to be aggressive with treatment right away is crucial. Thanks to many great doctors and biologics, I only have suffered minimal damage. Love seeing the behind the scenes of the process, Siobhan! 💜💜💜
Have you had to change meds a lot? What are you on now? thanks!
I was diagnosed with RA in Nov. 2015. I had been working in healthcare for about 6 years and was familiar with the side effects of methotrexate. I declined all medications because I was a newlywed and wanted a child at some point. I found out I was pregnant in Jan. 2016 so I never took any meds. Pregnancy really gave me relief from the RA. About 8 weeks after giving birth to twins, the RA symptoms returned. I waited 3+ years to start treatment and was prescribed the entire RA med collection (prednisone, sulfasalazine, methotrexate, humira, and vitamins). Within 2 months, I was in the ER for cellulitis and shingles. Since then, I stopped all pharmaceuticals and now manage with taking collagen peptides and Melaleuca vitamins and minerals.
As a Sjogrens patient who just delivered my second child, I am so happy to hear your passion and love for supporting this special group of patients! Having amazing care partners makes the journey a lot more manageable! Thank you for all you do!
I'm sure this will save a life by sharing this information and introduce to you DR AZAKA CURE REMEDIES on TH-cam who cured my disease which I'll rather be private about, I was cured from HPV with his herbal medicine, I wasn't really expecting a herbal medicine to be as effective as I experienced, my test results proves that I've been cured from HPV , and you can as well Contact him and be free from any kind of infections or diseases , I'm pretty much certain you'll all thank me later
as someone with juvenile arthritis, it’s so cool to see this!
Seems like a great team there!! Wish my rheumatologist team was like this - I did not have 'high enough' inflammation markers so I was told it was in my head and was given a referral to a psychologist. Made me leave their office in tears only with a offer to xray my wrists to 'prove there's nothing wrong.'
Got a fibromyalgia diagnosis after months and months of battling for a second opinion. Only took me 5 years to finally get an answer haha.
You will be changing peoples lives by showing this amount of care and compassion.
This is so awesome! Thank you 🙏. I do have a question, do you ever treat Lupus patients And if so would you ever show us a lupus patients and how you would go about treating a lupus patients in a video?
Having been diagnosed with RA at 19, I find it relaxing and educational to watch your rheumatology videos!
I have an amazing rheumatologist but if I didn’t have her I’d be tracking you down. I love your charming personality and the way you actively listen to your patients.
I am so proud of you and your team. I hope you keep that great attitude over the years and not let the negative people bring you down. I'm just an old guy but I love what you are
doing for your patients. Keep up the great work and attitude!! Thank You!!
Agree that the support staff are AMAZING! The amount of time it would take to organize and follow-up on everything without them would be so overwhelming. I swear the secretary in our family medicine clinic has 4 different ears she can listen with at the same time with the amount of multi-tasking she is able to accomplish. Great video!
It’s awesome that you have the other doctors participating, it really enhances the video experience. Almost like being there in person.
So excited for doctors like you and future of empathetic doctors especially in rheumatology! Us women EDSer, small fiber neuropathy, RSD/CRPS, dysautonomia/sjogrens, fibro, mast cell activation disease peeps need doctors like you. It's not ok how often we get written off for years on end. 😿 ivig and dupixent have been game changers for me!
I am so excited to find these videos! I too have had really bad experiences and rheumatology and so has my sons. They were diagnosed with juvenile rheumatoid arthritis and then until we found a rheumatologist at children's hospital, they were treated like crap by other doctors. Children can't make up the pain they go through and they can't make up fevers and joint swelling! I was diagnosed with lupus before they were ever diagnosed with anyting and I've had three doctors confirm it and now I have a doctor after 30 years trying to tell me that I don't have it. The joint destruction in my body is becoming horrific and she's trying to say that it is osteoarthritis! I have a high ANA titer and there is inflammation in my body and in the joints. My right hand joints are now destroyed and I didn't even know it until she x-rayed them and now it has attacked my thumb joint it is a nightmare and it happened within a 4 month. I don't think osteoarthritis would warp my hands the way this stuff is warping me. So I want to say that I am grateful for this video and for your efforts to treat all of us with autoimmune problems as human beings who need love care and healing and information! Keep going sweetheart and I am really glad that you are doing this and it would be great to be your patient! You are going to be a fabulous doctor!
Hi there! I’d love to see more talk about psoriatic arthritis when you’re next talking rheumatology if possible! I have PSA and I see so much more talk/awesomeness for RA. Particularly with pregnancy.
Maybe comparing the differences between the two diseases?
Love your work.
This style of video is my favourite! I love your manner Siobhan and Dr Pavolva sounds like such a great mentor.
I have ankylosing spondylitis, I use injectable bDMARDs and am hoping for a pregnancy in the future, so this was lovely to see.
I have had RA since I was 7 (33 years now!) and I wish you were my RA doctor. I love your bedside manner. Xeljanz has been my miracle drug that helps the most (along with hydroxychloroquine). I am able to work full-time as a licensed mental health therapist and do everything that I have wanted to do in life.
Serious woman power going on! I love seeing everyone working together. I’ve had some horrible doctors and will only go to my family doctor unless it’s an emergency. Wish there was more out there like you ladies 💚
Your journey and attitude is so empowering. This is helpful to see how much our healthcare workers go through to make us better! Thanks for everything you do for us on you tube, and your patients! Your great attitude is contagious!!
I have RA, and have been on Prednisone and Methotrexate for a few years now. To supplement I've tried infusions and injectables, but was stressing out about it majorly due to a fear of needles, so I currently take another newer medication that has been working really well. My biggest problem has been synovitis in my left knee that makes walking difficult. My rheumatologist is really great though, and it's good to see people in the field who are really passionate about helping.
Swollen joints are familiar to me. I have lupus and get swollen wrists from time to time. Very thankful for my rheumatologist.
I'm not looking to be a doctor, but I do suffer from MCTD with arthritis as a big part of it -- I appreciate your videos because it helps me to understand my disease more and I also love seeing the care that you & other doctors you work with treat your patients with!
I absolutely love your enthusiasm and your dedication to your field. I bet your enthusiasm is infectious and those around you are very happy to work with you. I'm glad that you appreciate the administration staff. I think you are an awesome doctor.
You are exactly how I aim to be each time I see patients. I am currently doing my internship year in Mexico, so basically it's still basic education to become a general physician. You are a great inspiration with your dedication, good-natured spirit and passion for your work. Keep it up!
Greetings from Querétaro!
Love your enthusiasm!! And I agree!! Can't work without the admin people, HCAs, housekeeping, porters, volunteers etc!!
So interesting to watch your training! I am a Rhuematology registrar (resident) in the UK!
Your smile lights up the room to compliment the happy paint colors!
I'm so excited to watch and learn how things work behind the scenes, being a woman who suffers from RA I'm hanging on every word you say. So refreshing to see your enthusiasm for knowledge and desire to help give your patients the best quality of life. I'm also very interested in RA and pregnancy. Can't wait to see more. Xo
I spend a lot of time in primary care doing annual rheumatology reviews so it's cool to see what happens on the other side.
I just quit seeing my rheumatologist when I was pregnant, it’s glad you can still do something for some pregnant women.
love these videos! have been watching since you were introducing yourself as a 1st year resident!
oh wow, thanks for joining me on this journey Lindsey - hard to believe i'll be saying "i'm a 5th year resident" in just a few weeks!!
@@ViolinMD Do you think you'll feel confident to work unsupervised after July 1st 2022?
I love your blazer! Your attending is fantastic! I love when they give you confidence and free range to make decisions!
I love my rheumatologist, but not her office staff who are slow, rude, and never refill my Rx correctly. I'm currently without meds for 2 weeks because of them. So I'm encouraged to see such a friendly office.
You are the perfect human to be a rheumatologist. You are so kind and patient when explaining conditions. Do you guys diagnose and treat fibromyalgia? Thanks for your videos!!
It so refreshing to see someone taking Rhumatoidology seriously , I have sjogrens it took me over 2 years to find it went thru so much pain and even was accused of being “mentally ill” because my regular routine bloodwork kept coming back normal. finally someone ran a simple AI panel and there it was. now fast forward 6 years I’ve been having new health issues and again I can’t get the drs to listen . I’m so frustrated. I wish all drs were as caring as you and didn’t write their patients off .
When my sjogrens was confirmed upon receiving my results the office was celebrating because the needed my blood for research . It was a miserable feeling being told I had a disease that’s not curable and the people giving you the new are excited and happy about it . Never addressed my pain, Nw Ed addressed my fatigue didn’t explain what it was or what was going to happen to me . I never went back . and now I’m stuck in the same position cuz my dr is writing me off as “anxiety” or age . Im in my 30’s 🤦🏼♀️I don’t even know what to do anymore .
My mother has very very severe ra. Her RF is in the 500's. No joke. She's tried every DMARD and biologic. She's had to be on prednisone for 10+ years. Methotrexate nearly killed her. Her previous rheumatologist was unwilling to try anymore ra meds for her because she's such a risk. She's been hospitalized about 10 times since her methotrexate toxicity in 2017. She now has a new rheumatologist who is willing to try a new biologic, Actemera. 3 weeks down and no infection or serious side effects. 🤞
My older brother had juvenile rheumatoid arthritis. He was on prednisone and methotrexate. He was in a wheel chair for three years, and at one point it was so bad that he was put on chemotherapy. He was REALLY sick. A good portion of his and my childhood where spent in hospitals. He is in remission now, thank goodness, but he was in so much pain when he was sick.
@@kbrown4138 I’m happy to say he is medication free. When he was sick, he stopped growing completely, and when he got better, he had a massive growing spurt and now he’s super tall. We suspect that the hormones from puberty helped him. It’s still a bit of a mystery.
I love your channel. As a medical student, I totally enjoy them. They are also super educative. Keep it on Doc. I’m Nigerian 🇳🇬 but I currently live and study in The Philippines 🇵🇭
It’s so cool to see your career evolve! I’m so happy for you! Thank you for all of your videos and sharing your life! Keep them coming👍🏽🎉
I love this! It's a treat to see you at the beginning of your rheumatology career! Your patients and co-workers will be blessed to have you for two years in that clinic. And Dr. Pavlova will love you!
Just over a year left of her fellowship now.
@@MsStina84 Ahh, thanks. I've been watching Siobahn a long time and lose track of exactly where we are. :-) I hope I'm still watching in 10-20 years from now!
I want to be a student of Dr Pavlova now!!!
Watching this video just makes my day there's so much positive energy! Love it!
This seems like such a fantastic clinic to work at! Your colleagues seem so positive and radiant❤️ So happy your speciality has lead you to this position
I was studying rheumatology this afternoon and this video helped me so much to understand better the diseases!! Thanks!!
I am so glad you went into Rheumatology! I see a pediatric rheumatologist for enthesitis related juvenile idiopathic arthritis. I am glad I have a pediatric rheumatologist near me since there are not many. Grateful for what you do and I hope we can find cures to JIA! Would you be able to talk a little bit about seeing JIA patients after they transition to adult rheumatology?
Hi ! I am sorry you have JIA and hope you have it under control!
Where are you from? You said that there are few pediatric rheumatologists in your country , I want to become one, in Romania. I am wondering how many doctors and patients there are , worldwide.
@@AndreeaTrandafirFlagshipMed I live in the US and there are only about 350-400 pediatric rheumatologist here which we are lucky to even have that many, but some states still do not have a single one! I am sure it’s a great field of medicine and there needs to be more research done to help fight pediatric rheumatic diseases!
@@sophiestefancic2448 Yes, I think there is plenty room for research, I hope I will contribute some day to this ! Hope to hear great news about your JIA!
I also see a Pediatric rheumatologist and I also hope we can find cures. I've had symptoms since a couple years after birth but wasn't diagnosed till over a decade later. Glad to have a rheumatologist as well. I'm so grateful for her as I know there's so many people out there struggling with no help or cure for their diagnosis. Stay Strong! 💕
@@dianaa.1100 Unfortunately, we are just beginning to see this kind of diseases that not many doctors are aware of. I am excited to see the evolution of medicine!
Hope you are doing well! Stay healthy