Syngap Research Fund's motto is Collaboration. Transparency. Urgency. Mike and Ashley are 100% hyperfocused on staying true to that, and their mission of finding treatments toward Syngap1! My confidence is high that they'll be successful in achieving this goal for our children!
Hello, I'm a brazilian father and my son he's got the SYNGAP1 disorder, which was diagnosed last year. He's 10 years today and will be 11 in december. Untill I watch this video I had the sensation that I and my family were alone in this world, living a nightmare each day. While we love him from the heart we struggle to deal with his condition, and to us is like if everyday is harder and tougher than the previous day.
Syngap Research Fund's motto is Collaboration. Transparency. Urgency. Mike and Ashley are 100% hyperfocused on staying true to that, and their mission of finding treatments toward Syngap1! My confidence is high that they'll be successful in achieving this goal for our children!
Hello, I'm a brazilian father and my son he's got the SYNGAP1 disorder, which was diagnosed last year. He's 10 years today and will be 11 in december. Untill I watch this video I had the sensation that I and my family were alone in this world, living a nightmare each day. While we love him from the heart we struggle to deal with his condition, and to us is like if everyday is harder and tougher than the previous day.
Wow, three years later. What a ride.
You guys rock!
soy de Perú y tengo a mi niña de 7 años con este sindrome de syngap1 recien diagnosticada.
Mike -- add a Donate button to this video!
How do we do that?
Buenas noche tengo mi hijo le acábaron de decretar está enfermedad como hago para unirme al grupo
Donde se encuentra usted en qué país hay grupos en fb