Dr Jacob Teitelbaum talks about SHINE Protocol, New CFS/Fibromyalgia Treatments & Safeguards
ฝัง
- เผยแพร่เมื่อ 28 พ.ค. 2024
- @DrTcomprehensive is one of the world's leading ME/CFS, Fibromyalgia and POTS physicians and shares his experience and insights regarding ME/CFS treatments and Fibromyalgia treatments as well as POTS treatments including the SHINE protocol.
Dan & Dr Teitelbaum discuss their common ground on the pathogenesis of Fibromyalgia and Chronic Fatigue Syndrome, treatment approaches and delve into specifics around stubborn difficulties with sleep, hormonal cycles and much more.
Dan Neuffer asks Dr Teitelbaum about specific aspects of his S.H.I.N.E. protocol as well his research about new treatments for Fibromyalgia and ME/CFS. We also discuss the release of Dr Teitelbaum's fourth edition of "From Fatigue to Fantastic"
Timestamps:
Introduction 0:00:00
Podcast Disclaimer 0:04:20
Starting the discussion; how the health care system works - no proof does not mean no evidence 0:04:38
Dr Teitelbaum's personal experience with CFS 0:08:21
Dr Teitelbaum's latest research into Polypetide porcine serum for CFS/Fibromyalgia. 0:09:41
What about restoring sleep for stubborn CFS/Fibromyalgia cases? 0:13:20
How to approach medications and supplements for ME/CFS & Fibromyalgia safely. 0:18:57
Why do ladies experience CFS/Fibromyalgia flare-up around their monthly cycle? 0:20:21
Are blood tests or saliva tests are better for testing hormones? 0:24:37
Dr T talks about Thyroid hormone and the reliability of tests. 0:25:55
Dan reflects on people with CFS/FMS that have benefit from thyroid hormone 0:27:36
Dan asks about guidance on female hormone supplementation and supplementing with other hormones like DHEA and pregnenelone. 0:28:07
Dan asks about PCOS in relation to CFS/Fibromyalgia. 0:30:05
Dan asks if people recover from Hashimoto's. 0:31:18
Dan asks about pregnancy triggering fibromyalgia flare-ups and recoveries. 0:33:03
Dan asks about orthostatic intolerance and POTS and the use of salt vs potassium. 0:36:50
Dan asks about infections & going down CFS/Fibro treatment rabbit holes. 0:42:00
Dan asks again about having evidence for pathogens and infections. 0:46:40
Dan talks about the 'circuit breaker' - ANS dysfunction causing ME/CFS/Fibromyalgia/POTS 0:54:31
Dan & Jacob discuss the 'right approach' for recovery from ME/CFS/Fibromyalgia/POTS & ANS dysfunction being central - the value of a multi-lateral approach. 0:55:49
Dan raises the issue of the PTSD in relation to ME/CFS & Fibromyalgia. 1:02:00
Dan asks how Dr Jacob Teitelbaum's beliefs have changed based on experience. 1:04:29
Dan asks Dr Teitelbaum about people who ask "am I different - can I recover from CFS & Fibromyalgia?" 1:09:01
Dan asks Dr Teitelbaum if he found that people can't recover and then they try again and succeed. 1:11:55
Dr Jacob Teitelbaum shares his closing advice about recovery from ME/CFS & Fibromyalgia. 1:13:21
For show notes, resources, subscription details of Dr Jacob Teitelbaum's latest book release and other links visit here:
cfsunravelled.com/episode4
UNDERSTAND MORE with my book CFS Unravelled: Get Well By Treating The Cause Not Just The Symptoms Of CFS, Fibromyalgia, POTS And Related Syndromes visit my website here: cfsunravelled.com/cfs-unravel...
or on Amazon directly here: www.amazon.com/dp/0987509837
LEARN about the ANS REWIRE Recovery Program:
ansrewire.com/info-request/
LINKS:
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**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content is opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional’s diagnosis and treatment. Only a physician or other licensed health-care professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare providers if you have any questions regarding a medical condition.
The best video you have done so far. I will be listening to this over and over. A wealth of helpful information. This has given me a lot to think about. Thank you so much, Dan. Keep making videos. Your voice is needed. God bless you.
Thanks for the kind feedback Kim. More Wisdom from the Other Side coming soon. ;)
Thanks Dan & Dr. Teitelbaum, with your help I'm on my way to recovery.
I JUST received the book From Fatigued to Fantastic & it's packed with TONS of info.
I'm getting excited about life again. I wish I had this info as a child & teen with ME/CFS & when my Mom was going through medical issues.
Dr. Teitelbaum's wink, smile & words of encouragement at the end made me smile & I now have Happy Tears!
Thanks again!
Wow this is gold. I have long read about Dr Teitelbaum and some of his work, I tremendously appreciate hearing him speak directly, and bring so much personal and medical experience to bear. Thank you Dan.
This doctor is fantastic! Thank you Dan and Jacob for sharing all this information and hope :-)
Beautiful analogy from Dr Jacob Teitelbaum at 56 mins. This will open your eyes to understand what is going on.
I am reading Dr Teitlebaum's book, From Fatigued to Fantastic. What a breath of fresh air & a wealth of practical knowledge. I have had FMS & CFS for 4yrs. One of the initial Drs treating me, could not give me a diagnosis, Relied solely on a myriad of bloodctests, finally suggesting that I learn to live with it, & it would help if I lost some weight! I live in the Eastern Goldfields of Western Australia, & health care can be problematic
I am getting so much from this book & am familiarizing myself with the SHINE protocol which my current Dr is open to
Thank you so much for your dedication to your profession.
Would be interested to hear how he deals with the super sensitive population who can’t take anything. But I guess that would be a whole episode in itself! Great to hear someone finally talking about the female cycle. I know that hormones would help me if I could tolerate them.
Same here! I am not bedridden but Lots of supplements would actually send me to bed by making me crash. He talked about multivitamin. I cannot take it. I was able to before but I haven’t been able for 3 years now and I don’t know if it’s because my cortisol is too low or some other reason. How can we get better by supplementing if we are too sensitive to supplements ? Or how can we find what nutrient we are missing that will allow us to tolerate the rest ?
Add your questions to the website and I'll try to get Dr T to answer them there: cfsunravelled.com/episode-4-dr-jacob-teitelbaum-shares-his-research-and-experience/
For me tiny steps up in vitamins
*Anyone tried his "Recovery Factors"?*
As someone with RA, CFS, POTS, gut problems, and PTSD... all occurring inside of 1 year..... every bit of it is related... it is all connected to the brain, trauma, and unchecked stress and anxiety. The final straw such as flu, Lyme, infection or whatever, is just that, the final straw... not the year or decades of perfect storm brewing that you pushed through. Thanks Dan. You have solved it I believe.
Glad the explanation for the cause resonated with you. Now transform that knowledge into little steps to move you towards recovery and go beyond just treating the symptoms! ❤️ Find YOUR way!
It must be exciting to know that you can heal :-) When I was completely disabled and bed bound with ME, CFS, POTS, Fibro, MCS, etc I had no idea that healing was possible. I was only exposed to people who were like me and some had been bed bound for 30 years. I was disabled for 8 years and then I found healing on my own by doing lots of research and studying all the doctors (and lay people) who were working on these conditions. I was able to heal through detoxing the body and brain and getting off all pharmaceuticals and replacing everything in my life with natural equivalents. I didn't find out about Dan and his methods until after I healed and I'm very impressed with him and his program. I wish you the best!
@@IceLynne that is very inspiring! Thanks!
@@FreshAgenda how are you now
Love that this video has the chapter markers 👍🏻❤️
Im sat in tears listening to this, i oray i get to the other side x
Keep listening to recovery interviews to inspire you to move forward: cfsunravelled.com/cfs-fibro-recovery-stories/
It was wonderful to listened to, you guys get it. My maternal grandmother, mother, only sibling/sister, me and and my granddaughter (she also had diabetes type 1 since infancy) had/have Hashimoto (in gran and mums day it was called something beginning with M. My paternal grandmother had hyperactive thyroid and had surgery in her middle years and my dad developed hypothyroidism in old age. There are other autoimmune diseases in addition to mine and sisters fibromyalgia. Me and my daughters are hyper mobile, causing pain and other symptoms. Quite a legacy. I’m struggling and frustrated after 3 + decades diagnosed and being a carer to lovely hubby 30 years after an accident (RSD/CRPS) Wish I lived nearer, I’m in wales but will look both of you up and about online options to connect. I swim in the sea all year round, that helps me keep moving and is uplifting.
Dan, great interview, Dr. Teitlebaum is awesome! Your thoughts on how much of this is directly relevant to the same or similar symptoms in long haul covid??
Some people suggest that long haul covid is simply PVFS (ie. ME/CFS). Others suggest that there are additional complications in the body from Covid. Certainly it appears that some long-haulers are benefitting from ME/CFS treatments to recover, so the PVFS connection would appear to be valid. Whether there are significant additional complications in some people, or not, perhaps still needs to be established.
I love Dr T!!!! So happy to see this connection with you, Dan!!!🙏🏻🙏🏻👍👍👍
This is Huge, too of my favorite heroes :) i started by reading the works of Dr Teitelbaum then enrolled in Ans rewire so this is a major episode for me .
thank you Dan and Jacob.
Amazing talk so informative life saving information sending my gratitude 🙏
Can I please know the vitamin powder doc was talking about. God bless and thank you.
Thank you
Wow that was wonderful--thank you both!! So much great info. I'm currently doing Dan's amazing Re-Wire program (I've been ill with this off and on for 20 years--it started when I had a newborn baby and was living in a mold-infested apartment--very stressed out--long story), and I'm learning so much and feeling better little by little, day by day...finally excited about the future! Cheers!💖😊
PS--I use oil of oregano for infections, and high-quality Kratom for pain and help with sleep--they work pretty well for me...I like to use plant-based, all-natural help if possible.👍🏼
Thanks for the positive feedback Karen. Great to see have a more positive outlook.
Hi Karen, I'm also on the ANS Rewire program and it's going great so far. For the first time in 6 1/2 years my nervous system is starting to feel normal again. Keep at it! We will get there! I will make a recovery, I just know it. Now just to keep working on improving my sleep...🙏
@@patrickhall7884 thanks!! Yes--getting good sleep is a huge challenge for me! But I'm getting there--just have to apply all the great ideas that are given in Dan's program, and with maybe some other little things that help, along the way--best wishes to you on your recovery!💖
Does the Keaton have many side effects for me it's the pain
Love Dr. T but, you can see he didn't get the brain training portion. I can't take the Energy Revitalization System because it makes me feel agitated. I can't retrain my brain like that unfortunately. And this stinks because his book offers SO much hope.
Have you looked into breathing exercises for the vagus nerve? I know we all get so tired of whacky, useless suggestions but if your response system is so prone to an agitated state it may be worth looking into. I find it beneficial for being able to relax and thats something i used to find very difficult. Best wishes 💜🦋
If you have a hypothalamus pituitary injury do the recommendations still hold
Thanks so much to both of you--such a wealth of information from two of my favorite voices in the ME/CFS recovery field. I love his metaphors! You asked great questions and we got some helpful advice in Dr. T's answers! I'm so grateful for your work.
You both are truly changing people's lives for the better. I am left with a feeling of hope--that making a bunch of small improvements can really add up to a meaningful recovery.
Glad you enjoy it!
Thank you for doing this interview, Dan and as someone on the ANS Rewire right now I was mindful about your thoughts on supplements etc when watching. I found many of the analogies used very useful. I have been trying unsuccessfully to get the sheet Dr T mentioned on POTS, as it was the pulse oximeter I bought for Covid that pointed me to the fact that I most probably have this. Can you advise please if there is anything of interest in this over what is in your own program?
Hi Liz - I haven't seen the sheet as yet. Post your question on the podcast website here and I will try to get Dr T to respond. cfsunravelled.com/episode-4-dr-jacob-teitelbaum-shares-his-research-and-experience/
Best line "exceeding expensive" treatments etc.
I love you dr Titlebaum ,you actually called me once after I left you a voicemail ,what I would give to have you as my dr ,iv fought cfs for decades ,are you still taking patients ? I hope you’re not retired ! But you are Inhawaii !!
Just a heads up, Teitlbaum may be cutting edge but he is also a vulture. He'll charge 3,000 a visit and $900 a followup. He moved his family to hawaii and working only half weeks. Its nasty the way he exploits the CFS/Fibro , but I cannot deny his research is cutting edge
The clinics he headed a decade ago were a scam. They did a cookie cutter approach to his book.
While I know he didn’t start those clinics he was on their board of directors I believe.
It caused me great harm and was mostly a complete waste of money.
Ur absolutely right! The guy named Roger murphee of Alabama, he has a book. He wants $397 for a consult not covered by insurance. Smart guy though 🤔🙏👍💕😥
Seriously, $3000 a visit and $900 follow up... I just started watching a second TH-cam video with Dr. Jacob Teitlbaum and couldn't wait to watch more, now I'm totally turned off knowing he charges so much for a visit. Ludacris...
Hi .. can you make the transcript for this interview available?
@CFS Unravelled Dan, I think it would be enough if you could at least add the automatic subtitles to the video. People from the whole world are watching your videos. We are not all English native speakers. ;)
They weren't available for some strange reason, but we have managed to enable them now, so you should be able to see them. Hopefully that is helpful.
@@CFSUnravelled1 Awesome. Thanks!
Fabulous
Thank you so much. I wish you should have covered the chronic migraines and RLS that are related to CFS/ME or fibromyalgia. Great interview. Thank you once more.
What about sjorsen syndrome? It causes similar symptoms to me/cfs. My mouth eyes etc are very dry.
I was especially intrigued by the Polypeptide porcine serum - known as Recovery Factors. Unfortunately - aside from the price of the supplement (which I was willing to pay) - the vendor site charges $15.00 for flat rate shipping, for one (one month supply) bottle.~ This stopped me in my tracks.Does anyone know of a vendor here in the USA? I live in Hawaii.Would really like to try this out.
Collect it direct off Dr t
Are recovery factors any good for pain not just fatigue
Thank you both for the resources you have shared. Can I ask a question, why do you think all medical websites claim there is only a 5% recovery rate? This stat stick with me always and it has driven my depression over the past several months. Your opinion on this would be really interesting
Seconded
That is so destructive isn't it! If you post your question in the comments section on the website, I, I hope to have Dr T answer the question shortly. cfsunravelled.com/episode-4-dr-jacob-teitelbaum-shares-his-research-and-experience/
yeah, that 5% number made me desperately try to find other causes, like long covid or MS or celiac, because I was trying to avoid the despondency of having CFS. (I did get long covid later on top of the CFS , probably from the Pfizer booster, or maybe it was the booster greatly exacerbated the CFS?) At my low points I'd rather have cut off one of my legs than have this illness because I thought it was permanent. And then when nothing else panned out, and I had a bad PEM crash, and finally serendipitously met a functional medicine doctor, I could acknowledge that it was CFS. I'm seeing the doctor next week, probably about starting hormone therapy, and I'm planning on starting the ANS Rewire program too.
I knew my cfs was infection driven. I haven't responded to any brain training or if I did the circuit breaker didn't stay on which included mickel therapy, the fibro guy, John sarno and dnrs. Nutrition has played part in keeping me sort of stable. I have herx reactions scaps on head lyme em rash etc etc
Oxygen therapy will help you it kills bugs
I'm a post menopause Senior woman and tried the bio-identical hormone sub-Q inserted pellets with an MD. We began with just estrogen as I like to just introduce 1 new thing at a time to determine the results. My body did not like it at all, had bleeding spotting that did not go away and my breasts were so tender it hurt to even wear my bra. I could not wait for the end of the typical 4 months for the pellet to dissolve. What is the protocol for Senior women regarding hormones?
Please post your question on the website ( link in other comments or the description) and I will ask Dr T to answer it tomorrow.
Dr. Teitelbaum said something about the moments when the CFS gets better, this can give you insight into what is causing it. My CFS always disappears for 1-2 days after I have the flu or something similar. First I feel terrible, then when the flu is over, there is a short period of time where I am completely symptom free.
I take a lot of supplements. Most led to only minor improvements, but recently I switched to a very high dose of Vitamin B12 and it increased my energy dramatically. Does this give any clues?
Thanks for the podcast, it was very informative!
Well, it's easy to get lost in the details here. So it's quite normal to have flu symptoms with flare ups and to have these kind of episodes. The key is addressing the illness as a whole, not just the symptoms! That is why I seek to focus people on resolving ANS function whilst supporting the body for healing.
@@CFSUnravelled1 Hi Dan, I think you misread my question. I was not talking about having flu-like symptons, but about having the actual flu and then the CFS disappearing completely for some reason. And I wanted to know if that gives any indication of what the underlying cause is.
Thanks!
@@AntaresA OK I hear you. Well, it's my assertion that the underlying cause of CFS is ANS dysfunction, even though it may be triggered by many things. As to the reason for the improvement after a flu (which I imagine would be a rare occurrence), I am not sure.
@@AntaresA finally someone that feels better after flu or cold.... same thing here. It’s like if my body is busy with the cold that it doesn’t have the right time to attack itself or do the wrong thing ....
i think sarah myhill gives an explanation of this. she specialises in the severe and complicated cases from a low cost medical viewpoint. i followeed her advice before i found dan. her stuff stopped me being bedridden. its a really good sign you get symptoms from normal colds n flu by the way, means u have the energy to produce those symptoms that fight the flu virus. i would GUESS theres some hold-over and a temp boost for ur immune system suppressing something 'lowgrade' such as candida, SIBO, mould, leaky gut etc etc that isnt a virus
I have read his book! The good doctor doe#n’t quite get it!!
As someone doing the ANS desire program I found I had to stop watching this as it seemed a bit contrary to the ‘treat the cause not the symptoms’ mantra. I found myself starting to really focus on all these complex treatments, which is perhaps not helpful.
I get where you are coming from. As you know, we encourage getting treatments to support the body's recovery and to reduce the pressure on the nervous system. However, it is so important to approach this in a way that is not stress provoking. I appreciate your comment.
I thought that too... welcome to Supplement Boot Camp.... nah
@@CFSUnravelled1 Very well put. :)
Sleep is where I really need help for my healing. I'm on the ANS Rewire and going well, but my excessive dreaming each night leaves me quite exhausted each day. Have tried CBD and melatonin as per the video but only makes the dreaming worse. Wondering how to improve this area? All the SSRIs I've tried didn't quell the excessive dreaming either.
Interesting about the dreaming - would be great to get Dr T's comments here.
Have you tried avoiding sensory input such as TV, tablets and phones for a period of time to see if that would help? Try writing down thoughts and perhaps drawing images to see if that would calm you night time mind?
@@CFSUnravelled1 Thanks Dan. Yes would love to here what the Dr says.
to me, this tells me that theres alot going on in ur subconscious mind, or that you are stimulating your mind 'too much'
the subconscious communicates with us in symbolic language, so look for the themes in ur dreams. my most common ones stem from overwhelm and worry.
i got addicted to smoking weed for a while n that killed my dreams, cos i wasnt doing anything mentally during the day, just zoning out daydreaming, processing the emotional side of life events
i dont know what priapism is however
Dr T will likely review some of the questions on the website - so feel free to copy and paste it there: cfsunravelled.com/episode-4-dr-jacob-teitelbaum-shares-his-research-and-experience/
Any luck Metformin?
I'm really against taking any prescribed medications and antibiotics. Ozone, hydrogen peroxide, and molecular hydrogen inhalation (browns gas) would be so much better to treat people.
Very informative and great interview, but I disagree with his take on salt. The response to sodium depends on race/genetics. Those of African descent tend to be more salt sensitive. Show me a family full of hypertensives and I will show a family of salt sensitive individuals.
Interesting. So when they reduced their salt intake, did the hypertension resolve?
@@CFSUnravelled1 Yes, In my case as well as my parents. I'm very lean, so insulin resistance was not the issue. Many of my clients of African descent achieve optimal BP only after adjusting sodium intake even after significant weight loss and carbohydrate restriction.
@@CFSUnravelled1 - every adult in my family, thin or fat, on both sides of my family, has high blood pressure. Going on the Paleo diet, which allows no added salt, did not reduce my blood pressure and it's caused me to crave salt for the first time in my life. It did reduce the amount of swelling in my ankles though and I'd previously been told that was all caused by my varicose veins. Excellent video, thanks.
When these people fail to include EDS in there it loses all credibility imo. 90% of Me/CFS have collagen defect