Fibromyalgia: IT'S REAL, It's Manageable, What You Can Do
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- เผยแพร่เมื่อ 15 ก.พ. 2012
- The symptoms of fibromyalgia include long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues. Dr. Andrew Gross, UCSF Rheumatology Clinic Director, discusses fibromyalgia and how to manage the syndrome. Recorded on 11/15/2011. [3/2012] [Show ID: 23155]
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I've had it for about 23 years now. The ONLY thing that helps are painkillers yet docs are always wary of giving them because of addiction. I could CARE LESS ABOUT ADDICTION as long as I CAN GET UP, OUT, & FUNCTION. It's sooooo frustrating. This plus friends & family sometimes thinking that I'm faking sickness because I "look fine!" ARGH
try a SIBO test + SIBO & Leaky Gut Treatment + combo of plant based diet :)
Adderall helps me focus too. Enough to help me remember to take my medication.
Doctors gave me awful drugs that ruined my life plus you cannot get off them 😫😫
@@francesgillotti1378 why can't you get off them?
I feel the same way. I was given pain meds. But used it only when the pain was bad. It made life easier. Took for years and it helped. Now I cannot get any so I get to live my life in pain.
This man absolutely nailed what it’s like to have Fibromyalgia. It’s so frustrating when your doctor is ignorant of Fibromyalgia and thinks it’s “all in your head”. There is so much more to Fibromyalgia than people know.
It is all in our heads. That’s where the pain center IS. Ours doesn’t work properly.
Lyrica is my answer,the only thing that helps fibro. Seeing a pain management doctor is an answer.
33 eww e a
@@patricianeal9382 my pain management Dr. is terrible. You are not treated as an individual
Apparently we need to lose weight, according to this presentation.
I cried in between watching this because it’s hard enough to come to terms with it all then to be discounted by family and friends with all kinds of advice as though they are medical doctors. I feel validated by this video and my current doctor is amazing. It has taken years to get the support I need. The anxiety & frustration that comes with it can be unbearable some days. At least I can now share this with people for better understanding and hopefully support. It is both isolating and debilitating in so many ways. But I have faith that if I can at least focus on managing it then I can get somewhere with it. I live one day at a time now and even the slightest change in plans can be overwhelming. I pray all who suffer from FM get the support they need. Thank you for this.
Wow. Powerful story. 💜
Thank you for sharing your thoughts.
I would not be able to get through each day without prayer, so thank you again.
Prayers to you, also. 🙏
One note... this presentation is about somewhat outdated, so keep researching the latest developments coming out.
Example:
Fibromyalgia IS now considered an auto-immune disorder.
Fibromyalgia has now been linked to Mitocondrial disregulation.
Fibromyalgia and diet are integral. Low inflammation diet can improve symptoms.
There is going to be much more attention given to the study of FMS due to Long-Covid, which seems to be related.
There is still much to be appreciated in this presentation- especiallyin the areas you pointed out. I just know there is better info out there now.
If you'd like some suggestions, I'd be happy to give them to you.
Best wishes.
In addition to what the person said before me, having Fibro and living a "managable" life is no picnic. It's still tough. Give yourself some slack and know you are living with constant pain and exhaustion that others don't endure. Constant. They won't ever understand. Educate them but don't get upset that they don't get it. Just go easy on yourself. Good wishes and keep moving forward.
R F Sultana
So very well said!!!! Thank you!
I'm glad they finally realize it's autoimmune. They have known this for at least 10 years. But apparently they didn't let any of my pain specialists know. Also here in Utah rheumatologists don't take fibromialgia patients. I am really angry about it. I have ever so often asked my doctor if there were some developments and was always told no. Finding out that certain supplements might help would have been good to know in the past. I'm always in pain, it goes from bad to worse.
It's about time 😢
Those of us who suffer untestable , unprovable illnesses are at the mercy of the medical profession.
I am 67 and it started when I was a child.
So there was not a label until recent history.
So many people suffer from this group of symptoms.
I thank the Lord for Doctors like you who listen to and believe their patients.
I've seen many doctors had many tests over the years.
Been to alternative therapists spent so much money.
I've learnt a lot about nutrition and that has been my best help ..not a cure.
I have spent my life in bed with visits to the 'outside' world pretending I'm normal then back to bed.
I send my love and prayers out to you all who are suffering so much.♥️🙏
That has been my life for the past 14 years. I had a pinched nerve in my rectum and under the neck of my bladder caused by migrated metal hardware. The doctors saw the clips on an MRI back in 2008 when I could not longer sit. They covered it all up and said I had a rare form of bipolar and vulvodynia.
I was 51, a medical professional who had been working in the best hospital in my province for 30 years. I was of sound mind and I was very very fit.
I did all the advocacy for myself by finding doctors who knew about what I had....pudendal nerve entrapment. I had to hire a registered nurse consultant to advocate for my life sparing surgery. No doctor or specialist I saw would help me. They misrepresented the truth in all their consult notes. The fraud was over the top!
I’ve had the clips removed nine and ten years too late. Doctors disabled me because they didn’t listen to me. They made the diagnosis up!
you have just described my life visits to outside world for few hours trying to look and act normal and then collapse back in bed few days to pay for trip out. Have had diagnosis near 30 years cfs and fms. Have had few good docs and few very bad ones. many natural things and vitamins help way more then any of the many drugs they tried me on over the years. A good husband the most help. and friends. Massage has helped a lot, still have lots pain, but do not feel all stiffened up, old age is sure no help tho. Makes everything way worse.
Did you have a normal, happy childhood or was it stressful?
My nan died at your age she had it and severe arthritis she almost broke the record for the most replacements in her body I think her wee body couldn’t take it any longer and I too have it and my mum I’ve had it since a child too. The growing pains were excruciating .
@@donnasaathoff1220 My childhood was ok I did not get along with my mom only my Dad and I were friends. Think mom hated everyone and she made our lives hell in so many ways. We had nice home and car and Catholic school which I hated. Many have had way worse. It was like walking on egg shells not to get Mom started, so was more stressful then should be, but no beatings or starving. Stress comes in many packages and I think they are right, stress is a killer. It wears out your heart and soul and body. I ended up getting psychology degees to try figure out what makes people tick. Am sure was from growing up with mom.
Everybody says you just need to get out but you can't to tired in pain, tired don't sleep bowel trouble chest pain headaches I've got it all
I was diagnosed in 1988, at age 27. During the prior several months, I had my second baby son, moved twice, and had a melanoma removed from my left shoulder. I read that your body’s overreaction to a traumatic event could trigger fibromyalgia. I believe that is true. I explained to one doctor that I felt like I had been beat up! Just touching my hair hurt. I went into some kind of remission over the next few years. Then, at almost 42, I had my daughter. The fibromyalgia flared up again. But it calmed down, I think because my husband and I were so happy to have our daughter. Then, in 2012, my husband’s mom died. We were at her house when she passed away at home. My daughter was 11. Then, about a year later, we lost our oldest son in a car accident. I was 54 and my daughter was 12. My pain flared back, plus vertigo and other symptoms. A few months after we lost our son, our daughter started complaining about pain. She would be so tired that she wouldn’t want to go to social functions. Her hands hurt. Even her face hurt. She had trouble sleeping and wanted to lay down all the time. Her memory was getting bad. I knew myself what was happening to her. She had been through so much at a young age. I told her that I thought she had fibromyalgia, like me. She was shocked and cried but I told her I was there for her and together we could deal with it. We, of course, took her to the doctor for a check up and tests to make sure it wasn’t anything else. All her tests came back, “normal”. Her doctor said, ‘Oh, it’s just depression’. That’s the same runaround I had got to begin with. Now, she’s 19 and still suffering from it, like I am, at 61, but we support each other and my husband supports both of us. He’s been through a lot too, of course, but his constitution is so different from ours. He can deal with stress and loss so much better than we can. Now, it’s near the end of 2021, and all of us has been dealing with the pandemic stress. I’m the caregiver right now for my parents. And I’ve been dealing with right shoulder/upper back pain for awhile now. The first doctor I went to ‘diagnosed’ me from across the room, without even looking at my back or anything! The second doctor ordered a CT, because he thought it was my liver. All good results, not even any fatty liver, and he said blood results were great. He did order a MRI for my shoulder. There was a mixup there. (Nobody listens!) Finally, I have the test scheduled for a week from now. Worried about what it might be. But I’ve been doing some research and I think it may be extreme flare ups from fibromyalgia. I’m going ahead with the tests, of course…… I do know that my daughter and I have both benefited from what we eat: REAL food. We hardly ever have anything processed and we cook at home. The effort it takes we think pays off in the long run. We eat lots of vegetables and no seed oils or food that contains them. We also have lowered our carb intake over the last three years or so to no more than about 75 to 100 grams a day. Most days, it’s a lot less. We don’t eat pasta at all; bread only about twice a month. We get the most nutrient dense kind we can find. We eat fish, meat, nuts and some fruit, too. I think we have really benefited from eating this way. I don’t have any other health problems except for what I mentioned. I don’t take any medicine except for a VERY occasional pain med when I need it. My daughter has to be feeling extremely bad before she will take any medicine. We both like very warm showers. They help. And I like a hot bath when I hurt really bad. And the drier the weather is, the less pain we have….. I hope the best for all who suffer from whatever they are going through. :)
Thank you for the tips. My daughter was diagnosed with it at Primary Children's Hospital in Salt Lake City. I knew what she has as I have it. 7 people in my family has or had it.
7 years ago l used to wake in great pain each day and have to hold onto furniture to get to the bathroom. Getting dressed was agony and the only relief from the pain was swimming or floating in a bath of water. My doctor diagnosed me with Fibromyalgia. I tried everything painkillers antidepressants exercise nothing but floating in water gave any relief. I researched and found a doctor in America who recommended coming off all simple carbs and only eating healthy foods. No sugar no refined foods low carb plenty of vegetables. No toothpaste instead l used bicarbonate of soda to brush my teeth. No muscle pain creams. Using only the purest product on my skin. Dove soap e45 moisturiser only tresemme shampoo and conditioner being some of the products that l could use. After a year my symptoms improved and l started eating bread and sweets occasionally and the pain returned so I got back to my strict diet. A year later I was a stone lighter and pain free and since then have gradually returned to a normal diet. I'm still careful about food in that l eat very healthily but can have a treat now and then. My doctors say that they've never heard of anyone having Fibromyalgia and recovering. Family and friends thought I was a bit crazy despite seeing for themselves how much better I was and now they say that l couldn't have had Fibromyalgia in the first place! All l know is that l took my cure into my own hands and am now pain free. I wish the same for you and your daughter. Its worth a try you have nothing to lose except excess weight and possibly Fibromyalgia. The theory is that in order that your muscles can recover from Fibromyalgia they need to rest and take a break. But because this is not understood, muscles are constantly being fired up and overloaded through sugar peaks from unrefined carbs and sugar and body products body creams toothpaste shampoos etc. Once these products are removed your body has a chance to heal itself. It might never recover enough to cope with simple carbs ever again and your pain might be controlled rather than gone altogether. Better anyway that the totally debilitating daily pain that comes with Fibromyalgia. All the best.
Thanks for sharing. I happen to come across Dr. Gross' video and from his definition of fibromyalgia n listening to what he said about this condition, I realized exactly what I have been experiencing since the onset of the pandemic.
I wish both you n your daughter continued success with your diet n feeling better.
@@deliafox7547 Many of us are feeling more stress during this pandemic. That could be one factor that is related to pain and fatigue. Harsh weather conditions and aging may also play a role. At least, that is what I experience.
Cannabis oil is the best painkiller for me that is all I take
I have Fibromyalgia and feel undescribable. I've had it sinçe I was twenty years old. I also was diagnosed with chronic fatigue syndrome. I struggle everyday just to exist. My pain never stops. I take Tramadol for mine. Thank God for Tramadol, I know I would probably be in a wheelchair if it wasn't for it. It's sad there's no cure for Fibromyalgia and all disease. I really believe there is a cure for all disease. I'm so sick of Fibromyalgia sometimes I want to give up. Sometimes I feel as if my whole body is lead. Fibromyalgia is very real. People if you don't have Fibromyalgia thank God everyday you wake up and before you go to bed.
Have you ever had your insulin tested, or just sugar levels/A1C? An excellent study showed the correlation between insulin resistance & fibro is way too strong to not get a fasting insulin test. A1C was found to only be 27% accurate, btw, mostly because of another study that demonstrated Red blood cells lifespan could range 81 days all the way to 146 days! Google search "erythrocyte lifespan" if you really believe your A1C numbers are fine
Dora I hope you saw my comment. You're likely insulin resistant, which can be reversed with healthy lifestyle changes like whole food + water intake, strength training, good sleep. Grow your own food 😊
Same here but i can't take tramadol,the one and only time i took it,i felt so wierd, weak and sleepy for hours
Dr. Andrew Gross,
You have explained Fibromyalgia perfectly. Your demeanor and approach to Fibromyalgia is phenomenal. I have only met a few doctors that possess this heartfelt demeanor.
Thank you for being so understanding and explaining this horrible disease.
I agree. I even showed this to my doctor today. Pretty complete as far as Im concerned.
Do you want demeanor or a doctor that keeps up with the latest research? The good doctor is quite behind on his research regarding Fibromyalgia ( autoimmune disease in general, Unfortunately).
Agree
@@lucyterrier7905 if it was an autoimmune disease, it would not be termed a syndrome; which means of unknown cause.
as a pharmacist afflicted with this syndrome for years before cured, i suggest you keep reading and research more for true help.
in dr Broda Barnes book, Hypothyroidism: the unsuspected illness written back in the 70's, he showed the correlation of untreated hypothyroidism and the widespread pain of FM. as a suffer from the 90's, until 2009, when a dr finally verified after 10 years worth of other multiple drs, i did indeed suffer from hypothroidism. once getting on naturethroid, then forced to armour thyroid since fda destroyed naturethroid company, my 18 plus tender points went away, as well as my 24 hr/7 days a week headaches and tmj. it is well worth reading his book.
dr R Paul St Amand book using guiafenisin treatment back in the 90's also helped move my sluggish thick toxins in my lymphatic systems. doing photomagnetic light therapy with oxygen helped in the 2000's.
in 2009, treating my hypothroidism took care of it.
my lymphatic system is still sluggish, so i still continue a lower dosage of mucinex.
@@lucyterrier7905 I suspect you are referencing Andersons recent research and it does not conclude that fibro is an autoimmune condition. It suggests and the study requires replication and validation. And perhaps Dr Gross should not be judged in keeping up with research on a video recorded 11 years ago. It was current then and is still 99% so.
Just getting medical providers to finally begin to treat it as a neurosomatic, not a psychosomatic illness is a relief. I am 71, had it for fifty years and diagnosed for thirty-five years. Any complaints about this video has not suffered long enough to be grateful the medical community is BEGINNING to educate themselves. Even the Mayo Clinic in Phoenix, Arizona does not yet have specialty physicians for it. Even nearly a decade after this video, we are still struggling with untrained medical providers. Get pro active fibro folks. It is our own responsibility to take the best we can do day by day. I am not cured yet I am much better than when diagnosed over three decades ago.
at 71 you probably had polio and other vaccines. i am convinced it's from vaccines (for the most part, i know there are triggers).
@@lynneburroughs1599 From reading the book The Hot Zone, I learned that those early vaccines from the 50s and 60s were using monkey cells injected into humans. Could FM actually originate as a zoonotic disease?
Mine was triggered by repeated trauma for 30 years. My PTSD hasn’t healed in spite of last 20 years of peace. I tried EMDR. Hard to find competently trained people.
I agree ,I'm 63 suffering for years!
Could try taking Niacinimide 600 mg per day. We are apparently mostly deficient. Very inexpensive. It helped me within days..
There may be a post-infectious fibromyalgia phenomena sometimes, for example in people who have the Epstein-Barr virus,
The problem with sleep is the pain from fibromyagia kept me from getting to deep stages of sleep. I woke up more tired than before. My brain lost the ability to go to sleep. During normal sleep, the body repairs itself and has many functions that it must carry on each night. When we keep waking up from the pain, it can’t do that. STRESS usually starts the process and builds over time. Decreasing stress anyway you can helps. I found soaking in warm Epsom salts (like 2 pounds) in the tub and no soap) before going to bed helps. .
Taking MAGNESIUM tablets everyday helps. We are all low in magnesium. Malic acid can also help to get the lactic acid out of your muscles. Mild physical movements help. To improve your ability to sleep get out in sunlight every morning for a half hour. Turn off all light in the early evening before bedtime. Just like nature does if we were living outside. This is the way to release the brain chemicals like melatonin that prepare us to sleep. Get up every morning even if you are tired. Eat the most healthy food you can manage. No chemical additives! Our pain comes from tightness in the muscles along our energy meridians. Put 2 tennis balls in a sock and tie the end of the sock. Put it behind the base of the neck. Lie on this for a few minutes. If it hurts, you found the right spot. Move it down your spine to all the spots that hurt. You can also place it on lower back, side of the hips, wherever. You could also do acupuncture. That can take many treatments and does cost some money unless you have insurance that covers it. Everything else is free. I would not recommend any drugs as they cause other problems and really do not work, at least not for me. Drink plenty of water. These things all helped me. Takes time.
I suffered 20+ years w/severe fibro. I was finally diagnosed after all the tests you mentioned. After being in bed, my feet hurt to walk on them. Couldn’t fully open or close hands. I called it “the slap down“ after any type of exercise. It’s normal to feel sore after exercise but I couldn’t walk or move because of the pain. I started eating Keto and intermittent fasting 3 years ago. Lost 65 lbs and NO MORE FIBRO!!! All gone! Have others reported this?
Rebecca...the Keto diet has more vit.D in it...maybe this is the big answer...with int.fasting.I must try it.
@@niciv.n.8747 I think that it is lower inflammatory response to some foods. Also, when you don’t use as much insulin because you aren’t eating so many carbs, insulin is also inflammatory, and so the pain goes down. Water retention also goes away.
Me 🙋♀️ a good friend of mine had the same result.
@@liznichols4916 oh that is so good to hear! I think that there’s something called hyper insulinemia which basically means using too much insulin causing body wide inflammation.
@@rebeccaarcher5139 I believe it! I also feel that processed seed oils are a big trigger for me.
Having the diagnosis of Fibromyalgia can also be a disadvantage because doctors stop taking other conditions seriously and miss another disease!!! That happens every day!
A real problem, with several conditions... i know someone with diabetes type 1 who has not had her other medical issues taken seriously for years
Also as one ages, more fun like add Osteoporosis, osteoarthrtis, & more when you add all the FM symptoms, wow..... I have multiple problems after having this for over 33 years & almost every treatment under the sun & being over 65, I'm back to 30 years ago with the laws re medical treatments in our state... I can't get more than 9 migraine pills a month, let alone anything They have me on nothing for pain now after 25 years of what worked for me, except Tylenol arthritis & other legal things, which I found & researched all by myself. I thought I made headway after being a guinea pig for "teaching docs". The laws of the land chsnged criteria for treating pain.. now, laws changing re sleep meds which they're trying to take away & cure it. A new batch of doctors want to & have tried me on the same things that I told them didn't work or made me ill the 1st time. It took years of trials to find out what did work, now back to square 1. My grandfather was a doctor for a small town. I participated in a national conference, Educational support in the 90's...My observation...what about us "long haulers"? I got ill in 1988... we have gone back in time in many ways from my perspective. Well now they're sending me to an acupuncturist except I've been a final exam for a whole school of them & to a sleep center who can figure out that fibromyalgia has a sleep disorder attached to it...lol. Oh well...at least there is still a talk about it & new books...but same old same old...nothing new really, I had hope, but not now, DIY.
Yes. As a fibro patient, you must pay close attention to your symptoms. Get used to how the pain feels, because it can blind you to new symptoms which might be a new diagnosis requiring treatment.
I'm able to tell which pain is fibro, which is myofascial, and which is arthritis-based. Thankfully, as I seem to be collecting medical diagnoses more and more quickly as I age.
I absolutely agree, I have been suffering since 2009
Or the opposite could happen. You could be diagnosed with something else, and have Fibromyalgia. Luckily, I was diagnosed not long after I was diagnosed with Ankylosing Spondylitis. I had an EMG test to confirm it.
When I went to get evaluated they treated me like a drug seeking addict I just live with it! I was SO HUMILIATED!
Do not worry too much do breathing ex in fresh air and simple stretches ,dailly10 min walk watch laughing club in your TH-cam,h you will lmprove
This video is a very accurate presentation of what I have been experiencing for 20 years. My normal life was over at 16-17 years old. I couldn't function anymore. It took me 15 years to get diagnosed, being dismissed over and over again as a psychosomatic case.
MY FIBRO TIPS :
- Sleep whenever sleepy, without being interrupted, as long as your body needs it. Don't sleep in pitch black room so the brain distinguish between day and night. Good sleep will prevent fatigue, brain fog and irritability.
- Take a lot of breaks (more time resting than doing).
- Don't do anything that is painful (will definitely pay for it later).
- In the morning, while lying in bed, apply electric hot pad (as hot as you can without burning yourself) on painful areas to help relax the muscle and stretch painful areas while warming it with hot pad until the pain becomes manageable (can take 5 minutes or hours depending on the level of pain), before getting up otherwise the pain remains throughout the whole day.
- Pandiculation is your friend. More pandiculation = less pain.
- Eat fruit and vegetable to not get constipated.
- Go to number 2 as soon as you feel the need to avoid incontinence later.
Thank you Dr. Gross for your great work of research and presentation. Thank you to everyone who participated in making this video available : University of California, cameraman, movie editor, uploader, TH-cam etc.
Hi Melinda, can I add another tip? Like many chronic syndromes, fibro has strong ties to insulin resistance/Hyperinsulinemia from their lifestyle.
*The solution* would be to get a fasting insulin test first, healthy is
I was diagnosed in 1992. My whole body basically felt bruised but I could deal with it. In 2016, I had a knee replacement and it traumatized my body and sent my fibromyalgia into hyperdrive. I ended up going to Mayo Clinic in Rochester Minnesota. I had gone into a Centralized Sensitivity Syndrome and was going through hell. Fibromyalgia is not a figment of your imagination. I was an Emergency Room nurse and heard over and over how these people who said they had it were “nut jobs!” I never told anyone I had it because of that. I didn’t even tell my orthopedic surgeon before my knee surgery. I did later but it didn’t help the fact that the damage was done. The CSS is under control but increased stress can begin to wake it up so I have to remember that. It’s basically focusing and breathing to control your emotions when that happened. Anyway, I just wanted to share part of my story.
Could you explain this syndrome to me? Thank you in advance ❤️🌿❇️❤️
It's a good story. There is something Mayo missed but you don't have to. You'll need a trigger point injectionist. I'm without pain yet have fibromyalgia. Jordan
Was the knee successful or less than that?
@@j.mcconnell5260 I think for the most part my surgery was successful as far as the joint goes, it was due to the trauma to my body that it exacerbated to the point where I ended up at Mayo for answers. I had the option of retrying Knee Ablation or the Neurostimulator to help with targeted pain. I didn’t want to go through the Ablation again even though he said they do a better job at Mayo than where I had it done locally. It’s very painful.
@@verlindaallen6299 What happens during the active CSS (Centralized Sensitivity Syndrome) is all senses* increase 10 times. Hearing, Smell, Pain, Touch, Eyes are sensitive to light, I was hypersalivating,. It was like every sensation was on high alert and I had the awful feeling of impending doom. That was scary. I didn’t want to even try to sleep for fear I wouldn’t wake up. Extreme nausea as well. After being seen in the ER a few times, I finally got a doctor who was super nice as was his nurse and guided me to Mayo for help. I am an Emergency Room nurse (retired now) and I will tell you I didn’t receive any compassionate care until that doctor and nurse. I never treated my patients like the way I was treated. It makes you cry let me tell you! And by my own Co-workers! That was the worst. I thank God for that doctor and nurse. I hope I answered your question.
My wife has fibromyalgia, watching this video has helped me better understand what she is experiencing and was very informative. Most family doctors don't have this level of expertise regarding fibromyalgia.
Look into Earthing Grounding. On TH-cam any video with Clint Ober.
The Earthing Movie
The Grounded Documentary
And any other video with Clint Ober.
@@lorettaroberts4995 have you tried any of the bedding sheets?? Does it help?
@@babycoleangel Yes, I have the sheets and pillow cases. They are a little expensive but my husband can't stand how the mats make you sweat more. He just started grounding a few months ago.
@@babycoleangel And yes the sheets help too
@@lorettaroberts4995 Thank you for answering...truly appreciate your help!
Thank you Doctor, finally someone who knows what I've been experiencing. May GOD Bless you. I was in grad school, 1991 when I developed chronic fatigue syndrome which developed into fibromyalgia after being in a car accident. I'm 71 yrs old now and still trying to make the adjustments to living with this.
Very insightful explanation of this "invisible" disease I am suffering from for a long time. The hardest isn't always the disease itself, but rather people's ignorance and prejudice cause it doesn't show on the outside. Thanks for this video!
💯
Tina, please get a fasting insulin test. Most fibro is likely caused by insulin resistance (from lifestyle choices). Fasting insulin should be under 7 if you want to be healthy. Actually- even more than just fibro- most chronic diseases are coming from insulin resistance. A Lack of strength training, eating& drinking sugary/processed foods and alcohol or fructose will catch up with you. These cause chronic inflammation and organ damage
@@Acts-1322 She is 100 percent correct . Thank you
It's Invisible for some doctors because they don't know enough but it's real for those who feel
@@LoriLeeSurfCityTemptations 3
I’ve had fibromyalgia my whole life. It was when I was about four years old a doctor told my mother there was nothing wrong with me and what I needed was a good spanking. I suffered in silence nearly my entire life in 1994 I was diagnosed with fibromyalgia. I’m wondering now if the lack of understanding contributed to my heart attacks. Funny thing there was a bitch of a doctor at ER who yelled at me while I’m having a heart attack told me I needed a hot bath and it was all in my mind. Then the last doctor I saw at ER a totally different approach , he asked me how severe was my pain , I didn’t know how to answer, he looked at me and said I guess you’ve never had a pain free day in your life have you? I’m glad there’s some acknowledgement in this talk. Some doctors still dismiss fibromyalgia. Some doctors can be incredibly cruel and dismissive. It’s true I did have an unnecessary gall bladder operation and it hasn’t helped in the slightest. I hope in time there will be a cure or better understanding. I’m nearly 60 years old and I’ve never had a pain free day in my life.
I listened to the entire video. I have fibromyalgia and osteo arthritis. I found Dr. Gross to be very informative and learned from his presentation.
arthritis is the issue.
there's a strong correlation (at least 3 studies showing good data) between arthritis, anxiety & Fibro with insulin resistance or even diabetes. Toss out the A1c to diagnose it but instead get a fasting insulin+ C-peptide. Your insulin should be
I suffered from fibromyalgia from ‘88 to ‘97. My life while my children were small consisted of getting them to school, doing a few chores then lying on the couch till they came home. My house was a disaster. My daughters learned to look after themselves and cook.
I was involved in a study here at the university of Saskatchewan in early ‘97 and ironically it made me worse and forced me to find something - anything to get better.
I ended up following a regime from a naturopathic book designed to “cure” allergies. My diet consisted of foods that would have been on the table in 1900. No preservatives no additives. I also took out caffeine and sugar. I added basic vitamins and tons of probiotics. In three months I was feeling better than I had since I was 20. My doctor told me fibromyalgia wasn’t curable but acknowledged I “could be in remission”. I was interviewed during follow up to the original study. Out of at least 100 people three of us actually improved AFTER the study but I was the only one who got 100% better. Most people did not get better during the study. The study involved specific exercises. Aquacise in warm water on the other hand did help.
All thanks to Dr Obinyan on TH-cam,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚.
Interesting. Thanks.
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This man has explained more in the 20 plus yrs that any other dr or rheumatologist has ever explained and everything he’s explaining is spot on terrible debilitating illness….Thank you so glad I came across this video
Btw, on top of vitamin deficiencies, there's a strong correlation (at least 3 studies showing good data) between Fibro & insulin resistance or even diabetes. Toss out the A1c to diagnose it but instead get a fasting insulin+ C-peptide. Your insulin should be
Thank you for giving this professional, clear, and comprehensive review. It really helps validate the mystery for people like me who were once normal and active and then after a spinal trauma not only have to try to bravely live with this mess, but also have to endure the uninitiated comments such as “you don’t look like you have pain?”
Look into Earthing Grounding. On TH-cam any video with Clint Ober.
The Earthing Movie
The Grounded Documentary
And any other video with Clint Ober.
That's what they say about Lupus too. We look great while inside organs are dying. 🙄😒🤨😂
I watch/listen to TH-cam 'Rife Frequencies' for pain, Fibro, kidneys, eyes and nerve healing and other different things. Put the heading in, it pops up. They have helped me. Even Lyme. Diatomaceous Earth and Fibe for Lyme too
Yes I hear you! My family is the worst ones...I'm 70 ext week and was diagnosed in 2000 but was treated before that for suspected fibromyalgia. By the time I was 40 I was disabled. Couldnt function or make it to work all week due to severe fatique. My life revolves around fibro. Recently an article said the medical community suspects "leaky gut" as causing fibro but have yet to jear anymore. Told my doctor but most doctors just treat the symptoms so you wont ever get better. You CAN tell sometimes when someone is in pain by their eyes...they look glassy. I tell people who say you dont look sick....I may look fine but I'm not fine! The fatigue is almost as bad as the pain! Make sure any meds you take that make you drowsy are taken at night if possible. Now doctors are taking away the pain meds. They say due to addiction and how many shipments are stolen! So we are punished? Doctors have no backup plan either! They are pushing medical marijuana hard! It will be interesting to see the outcome of that. I'm due to have hip replacement soon and my doctor says she'll remove all opiod pain meds such as oxycodone. I wont make it a week like that. They try and tell you they dont help!!!??? I don't buy it! They DO help! These doctors should stand up for us! I hope they're prepared for the onslaught of pain patients, aggitated, angry people and suicides that will come with their actions. I believe the elites for New World Order want this as they want to rid the world of those with chronic pain, the handicapped, the homeless and the elderly! I read this in 2008 under Obama. Hopefully this all gets turned around before that happens! I've stepped away from almost all family now. Except funerals and weddings. I'm done with their nasty comments. They've had 25 years to learn about fibromyalgia. I feel too crummy to do or go anywhere. I'm much happier this way. Good luck to you and may God show us his healing powers. He did this for me after a prayer to him one night! For 3 days I was totally pain free! My husband noticed the change. I would have missed it otherwise! I remembered the prayer and smiled and thanked God for it. I saw a vision of myself as a toddler and felt like what it was like to be healthy and pain free. I truly believe this is what God has in store for us! It gives me hope! I've had quite a few incidents like this since the 80's. If this is how it will be sign me up!
Guess we'll see!
Please read my msg 4 down. It might help you feel hopeful! Thnx!
at 71 its great to finally hear someone tell me he knows me..
my dr just shakes his head w no suggestions...10 years ago I could keep my house and my businesses running smoothly, now i can barely get out of bed in the morning fro. the physical aches...I dont enjoy anything anymore because I cant ger far from home and I cant do the day to day maintenance of my life by myself...therefore depression heaps on the pile and I swear Id end it all if I didnt have my pets that need me...whkm I can barely tend to because of the physical pain...so it's a vicious circle...glad to finally have someone tell me "it's not in your head"...now if I could find someone local 🙃
Wish he could do an updated version. This is the absolute BEST video I’ve seen on fibromyalgia
Manageable? Is this the the way to live? Normalising living with 100s of symptoms not knowing which one would attack when?
Many conditions are the type that must simply be endured because there is no cure. A psychiatrist once told a group of us that we need to celebrate the pain because when we are dead we will have no pain. It is a difficult concept to accept but very useful and changes the relationship to pain. Diversion therapy is quite useful because we can only focus on one thing at a time.
Look into Earthing Grounding. On TH-cam any video with Clint Ober.
The Earthing Movie
The Grounded Documentary
And any other video with Clint Ober.
Listening to this makes me cry! It is 2021 soon to be 2022 still I suffer! All who wants to deny us meds, pray you just a week of my pain!
I respect all doctors.
I will not write a long comment.
I suffered from Fibromyalgia after my husband told me over the phone that he had a mistress and he wanted a divorce out of the blue after 29 years together.
I suffered all these symptoms. At the highest peak of pain, it was all over my body and even showering, the water just touching my skin would make me cry in pain.
I heard on a panel of doctors discussing Fibro and one of them was a naturopathic doctor.
At the last second of the show he blurted out: “ some patients find relief when they take SAMe.
I went to the health food store and bought it.
It pulled away all the fog, depression and pain within a week.
I stopped it and the symptoms came back.
I started taking them right away again and finished the bottle then bought another one and after two bottles in all, I stopped and it was gone for GOOD. I have been free of it since 2007. We are in 2023.
I can assure you that it is certainly due to trauma and depression as the doctor said. It creates havoc at all levels everywhere in the body.
I pray you also find relief and cure in that supplement that is natural and safer than medications.
All the rest of the advice on activities like walking, stretches etc are excellent.
God Bless All our doctors. ❤️🙏🏻
Your are strong. Keep going. I just searched for SAMe. Can you please share the dosage. I found a 200mg bottle here in Germany.
Thank you! Most test trials on patients are based on the strength of 400 but you should start with 200 and if after 3 days if you see no significant change then double the dose.
An important note however is that you should never take SAMe if you are on any kind of antidepressant.
I’ve had Fibromyalgia since way back to when it was called “It’s all in your head”. I used to have pain meds but my Dr took them all away. Now I feel like I’m just waiting for the day when I die because of the pain, I’m not able to do much of anything anymore. No human should be made to live like this! I have tried many things to help including Delta 8.
Try keto diet, you'll see the difference
@@fasou292 Thanks. I’ve been doing keto for 3 years and it does help but not the miracle I was hoping for
It's happened to me, my dr keep telling me it's just in my head and when I had the ct it shows I have asteo arthritis and spread widely in my body, and now I feel I,m in hell.
Pain Management is a medical specialty. I have been in treatment for seven years and can't imagine life without it.
@@sleuthingsandy 😢😢😢😢😢
Fibromyalgia has taken over my body! It has ruined my life! Nothing helps! You explained it exactly right! If I get through a few things When I get home I literally crawl into a ball and the pain is so bad that my body and mind shuts down and I'm knocked out for a few hours! It literally takes your breath away! You can't concentrate on anything if you have an abundance of pain! It's like every muscle in my body was beat upon! I sit in bed all the time!
Hi Cheryl so sorry to hear that your symptoms are so bad but I know exactly where you are coming from. This damn condition changes who you are too.
All thanks to Dr Obinyan on TH-cam,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚
Pressing on those spots feels like pressing on a persons bruise.
You know it! 🤯
And it takes several minutes for the pain to stop throbbing.
Look into Earthing Grounding. On TH-cam any video with Clint Ober.
The Earthing Movie
The Grounded Documentary
And any other video with Clint Ober.
Been diagnosed without the tender spots
When you suffer from irritable bowel syndrome you never know if you can go anywhere. Going in pool whilst having diarrhoea not good. How can you go and exercise when you can't get out of bed.
They all say exercise loose weight this and that but no one can help or understand that is hard even to get out off bed. It’s so frustrating that this shitty invisible thing no one can understand the way we really feel. Past 5 years I’m not living I’m just barely existing. Missing time with my kids , probably soon loosing my job too.Why even live ...
I've been on Lyrica, tramadol and trazadone for about 16 years with great relief. I also stay fit.
Good news.
Ive had fibromyalgia for years. Interestingly, I noticed that when I would mow the grass on my riding mower, I would experience relief from leg pain which I attributed to vibration from the mower. Based on that, I invested in a vibration platform and experienced the same effect. This is my personal experience and I found it relaxed my muscles. Other folks may not have the same outcome but its worth trying.
Just got a theragun recently and I've had less muscle pain, I think due to the vibration. When my husband places the theragun on my shoulder trigger points, I can feel my shoulder muscle completely relax.
@@xislis6037 Thats great that you are getting some relief.
@@xislis6037 I live alone- no family- and cannot reach the spots that hurt the most 😞
Tried the Thera gun.
The pain was terrible.
Check into med beds i think you would benefit from them.
I’m so sorry for all the people who is sick with that problem
I love the way he explains things. I have fibromyalgia and I learned allot from him!
YOU ARE INCREDIBLE.THROUGH THE YEARS I AM "PRACTICING" THE FIBRO. THERE IS NOTHING YOU DID NOT SPEAK ABOUT. I GOT IT AFTER A EMMOTIONAL TRAUMA. HANDLING MY PAINS WITH EVERY POSSIBLE WAY. THANK YOU AGAIN
This is my life. Im so sad that it took so long to be diagnosed but so glad I have an answer. I've been to each of the specialist he mentioned for the reasons mentioned, and a few additional docs. 10 yrs, a bunch of co-pays and medications later, a Rheumatologist put it all together.
FM is a call for extreme self care I feel and those who have lead traumatic lives and never acknowledged the mental stuff, it can feel like a lot of rage in the body. A fellow sufferer pointed this out to me. Now I journal a lot of stuff I’ve not processed properly in my life. CPTSD feels like a contributory factor. I wish to keep learning about this for myself and hopefully find ways to help others in the form of support. May we all find peace and support with FM .
I totally agree with You. I'm recently after 23 yrs of FM and countless attempts to find healing and relief , Im realizing and learning that my CPTSD with other traumas in life are the culprits and leaning that way in healing ... now after all this my family still has doubts and I'm so sensitive to the meds Dr's prescribed that have had bad side affects and pain meds are affecting me too in a mentally mood kind of way , that family think I'm intoxicated when it's the meds.. I am stuck with no choice but to be living with FM on my own devices of trying to eat better, vitamins, choose to be home often, not overthink anything, to rest , to lay down, to pretend I'm not in pain all over my body.. All I can say is that I'm absolutely worn out. Prayers to everyone 🙏
Absolutely!
What I need is not more advice about diet, excercise and sleep, it's how to turn off my brain's constant fight or flight mode!
I wish doctors would educate themselves in fibromyaliga
This has been such a blessing to listen and the comments. I finally do not feel like I am not the only person with all of this. Have been feeling so overwhelmed with all of these different symptoms and seeing how they are all part of fibromyalgia.
Thank you, thank you for this amazing video and all of the comments. They have been so helpful to see how all of pain and discomforts are all related.
I remember one Rhemotologist tell me FM is caused by unfit muscles! I was very active but pain from running, weight training now is intolerable. I can barely walk now the next day. FM was why I could no longer do the things I loved to do. I kept hurting myself now from the lack of mobility after I start moving around more. I get stiff from repetitive movement.
Wow, I felt like you followed my whole Fybromyalgia experience through my life, lymes, multiple tests with nothing wrong, terrible all over pain, sleep issues, cybalta, Lyrica etc, nerve studies, exercise, diet, everything! If you want to understand a loved one with this, listen to this. Cymbalta made me too loopy for my job working with numbers plus I had to take it everyday and my pain wasn't horrible everyday. So, it would have taxed my liver and system daily when that was not needed for me. I got my dr to give me limited, liw dose vicadin so I can take a half pill on really bad days. I also noticed, not always, that my worst days are before a weather change. Once it rains, its less, but I can often tell weather will be changing in a day without a weather report. So, occasional opiods for movement stopping days,, over the counter aleve on bad days, and nothing on other days. Not getting enough sleep makes it worse for sure. Great talk. It was right on. Just curious about inflamation and its role.
I thought I was the weather man lol the barometric pressure is awful.I can tell by pain and oh my after sundown the pain is worse. I hope we all get better.
Finally someone that gets it. This gentlemen nailed it from the all over muscle, joint pain to feeling like having to urinate constantly & waking up feeling like you've been put through a meat grinder. He's so spot on that you'd think he's living with it. It's constant pain & begging for help.
I got lyme disease at 5 yrs old and I have not been the same since and have only gotten worse after "getting better ". I'm 36 now. I was diagnosed with fibromyalgia about 5yrs ago and am now on gabapentin. The medication has helped me live again. I still have severe pain but it allows me to deal with it better. I also was diagnosed with severe social anxiety. I dont think the anxiety causes the pain, I think the pain causes the anxiety.
DANIEL Baker; your right the pain can cause anxiety.
I agree with you that the pain causes anxiety. The realities of having constant pain that noone can see and most don’t believe plus not being able to take care of yourself fully (work, socialize, self care, clean house, clean car, prepare healthy meals, no capacity for social bonding leisure activities) one thing that has helped me express my reality of my limits in an way that is understandable by others is Marshall Rosenberg’s Nonviolent Communication-a language of life book and finding a practice group. There are also videos on TH-cam if you want to get a taste of what it’s all about. Nonviolent communication.
I actually had a tick bite then rocky spotted fever. Then boom I am still unwell over 10 years later. This video has made me feel so confident in my doctor's ( multiple doctors) diagnosis. I def share these types of information with family so they can understand. Thank you for making this video.
Honey you have lyme disease and co infections get tested through a special lab.
Could be FM plus Tarlov cyst. Increasingly seeing Lyme and Tarlov. Know nothing about Lyme treatment. Tarlov is very treatable. Treating Tarlov means zero pain FM. Epidural steroid injection protocol only. Takes only two specific procedures 6 times per year.
Please get checked for Lyme, you CAN get blood tests done though they may be expensive. A tick bite triggering all of this is the most obvious sign of Lyme.
My aches and pains subsided when I started taking high dose vitamin D3 with K2 and reduced stress in my life. My vitamin D was 18- too low. Getting it up over 50 really helped . I had horrible migraines as well. When I’m consistent in taking my D vitamin, thyroid meds, and get enough sleep - I do not experience this debilitating illness.
I think you were vitamin d deficient which can mimic some symptoms of fibromyalgia but if you had fibromyalgia simply taking vitamins and thyroid meds wouldn’t change anything.
Are you going outside for more vitamin D?
@@j.williams8118 I’ve been trying to. I still have a inconvenient schedule . I know this would be more advantageous than solely taking V-d.
@@girlinterrupted9145 I know that it's hard. I am glad you are doing your best with the Vitamin D
All thanks to Dr Obinyan on TH-cam,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚.
Every time I went to the doctor with this for 25 years they said I had a mild grade fever, until I finally found this on Wikipedia 7 years ago and brought it to my doctor. Honestly it was a relief just having my doctor BELIEVE me. She did the test and I was debilitated for the rest of the day, but I KNEW what was wrong😊
I think this is a great video. He explains fibro thoroughly as though he is speaking to someone who knows nothing about it. Hopefully that is helpful to those who day fibro isn't real. My family doctor has been incredible through my 15 years of having fibro. I'm on Cymbalta, have flexiril for muscle spasms and they work, plus I take tramacet for pain. It works better for me than just the plain tramadol. I am allergic to all the other pain meds. I walk my dog a few times a week. I am also incorporating yoga into my weekly life. I have done Tai chi before and since he mentioned it, I will start again. My family has been very supportive which is a huge factor in living with fibro.
Had it for 17 years, been tested for everything under the sun. White blood cell count has been out since this started. I lost my partner and went into a long term depression and that was when pains started erupting and never went away. I have flare ups that cause me to isolate at home and it's hard to maintain friendships. I've been prescribed many of the drugs mentioned they don't help too much. I need valium to sleep. I've noticed some foods make it worse like sweets, cream, pasta, bread etc all the addictive foods i guess, so I'm wondering if it's time to try a radical diet change. I think some of our issues are auto immune and I've found dietary suggestions. God, I feel so bad for everyone in this boat. It's the worst. And when nobody believes you or understands it feels just terrible. If you read this, I believe you and I'm sorry you are suffering so badly. May we find a path to healing soon 💛💛🌞🌞🌼🌼
Read No Grain, No pain. Dr. Peter Osborne
I find that diphenhydramine and aspirin or ibuprofen, followed by chocolate and hot tea makes me feel a little better. No, I'm afraid it probably isn't treating the illness, but chocolate is always welcome in my home. It tends to disappear really quickly, though. Still better than the crap shoot methodology I've gotten from doctors.
I know exactly where you’re coming from.I’ve been there for years. I get a little relief buy staying on the Keto way of eating. Nothing seems to help. I live in constant pain everyday and no relief. My doctors won’t prescribe pain medicine either because he’s afraid of addiction. I also have MS so maybe that’s how I have to live. I hope you get a break soon. 🤗🤗
I have not had a pain free day for 30 years. Pain meds help, however, the DEA keeps that locked down because of illegal users, and they see to a appear more important. I get just enough relief to take the edge off so I don't go screaming. Still have days I can't function. It is a sad existence
ive been in this situation for a year tested everything imaginable. no answers yet drugs help but have major side effects
My family has this my son,brother and l ,l cry with pain ,sometimes you rather die than the pain but l live to help my son who is disable.
Every person who has been diagnosed with fibromyalgia should have this talk easily available to them through their medical provider. It is the best I have ever heard! I have had fibromyalgia for 40+ years and diagnosed with Type 2 diabetes 9 years ago. I am a warrior
Everything single thing you've said is exactly what I've been experiencing, right down to the anxiety and the past traumatic abusive situations I've endured. Listening to you was like listening to a friend I've never had. Now I know what to do.
Thank you 💛
Can you get your fasting insulin test? Healthy is below 7. a low insulin lifestyle greatly helps pain. (Whole foods, water, strength training 💪 + cardio ) Fibro was found to be strongly correlated with insulin resistance / Hyperinsulinemia & magnesium deficiencies.
Your allergic to Glyphosate it builds up over time and ruins your life and the docs say it’s something else so they can supply you pills to not fix you but make the allergy less painful and manage the problem with a bandaid instead of fixing you if they fix you they loose there income ! Peripheral neuropathy cilia disease and fibromyalgia ext… are all from eating or absorbing Glyphosate ! It’s in all wheat grains nuts seeds all cereals anything that has to be dry or not have bugs on it at the grocery store. Docs said I had these things so I threw out there meds and started systematically quitting everything I loved till only washed rice and water and wow runnin and jumpin now no pain at all anywhere, and yes I added back to my diet till I found the problem. There’s no such thing as non diabetic peripheral neuropathy fibro your algia celiac ext ……. I cook everything I eat myself I only shop in the meat and veggies isle wearing rubber gloves and wash everything and my intake is protein fat oil minerals and my BMI fluctuates between 5% and 6% Body fat 6’5” tall @155 lbs. and zero pain ! Glyphosate don’t forget and bamboo toxin removing foot pads and Castor oil pulling get this Chemical out of your body like I did and bring Happiness Back into your Life. Don’t be any doctors Cash Cow !
Thank you for giving such an honest and balanced overview of what fibromyalgia is and how to treat it. I learnt a lot from your lecture.
Omg he's spot on with all the symptoms it's truly hell it changes your quality of life big time and it's horrible that there's ppl and Drs that don't believe it's real like it's all in our heads , I'm glad they are doing more research. To all my fellow spoonies I send you hugs and well wishes😢💖
The worst Thing I ever did was go on meds. I can't believe this was 10 years ago. Good video.
This is the best video I’ve seen regarding info for Fibro. Thank-you so much!
Thanks, now I know how I got fibromyalgia. My mom passed and I went into an anxiety and depression.
This is the best video I have seen in a LONG time. I have been diagnosed with fibromyalgia by a rheumatologist, and Dr. Gross amazingly listed most, if not all of my symptoms. The tender points was one of the tools he used on me. At first, they thought it might be RA and then lupus. I have some control over it but it is a major factor in my life. Glad for help like Dr. Gross. I've lived with this disease for thirty years.
I lost my husband of over 47years and lost my sister December 23 I've been sick ever since
I’m watching this video 11 years after it was posted & im around 15 minutes in & I’ve genuinely learned more in that short time frame than I ever have from my GP & Rheumatologist in the last 5 years. It’s such a sad reality to accept that even since this video was posted 11 years ago that the medical community here in the UK are still not even close to gathering the understanding that this gentleman clearly possesses about this condition. Information like this will change peoples lives & perspectives yet we need to find it here on TH-cam & not at the doctors office or rheumatologist visits 🤷♀️
What is it about the medical community & fibromyalgia? Why do they choose to look the other way? Why isn’t there more research & education? Why isn’t there more funding for research? It’s like a dark ominous mystery condition that the medical professionals here in the UK are almost frightened to address & approach it correctly. It’s strange but more so heartbreaking! My conclusion is that it is a condition/disease that affects mostly women & women are not the sex that the medical community like to invest in when it comes to research. I would hedge a confident bet that more funding for research is put into erectile dysfunction than it ever will be pumped into research for fibromyalgia. I also think that women are often told that they are hysterical (not directly most of the time but indirectly). I often wonder if this was a condition that affected predominantly men would we have more answers by now? Thank you so much for this video you have made me feel validated completely & I’ve yet to watch the rest & im sure it will completely change my life by the time I’m finished watching until the end. The part that resonated with me the most & compelled me to write this comment was when you said people will often go to the doctors suspecting that they have Lyme disease. I was a trail runner prior to being kicked down by fibromyalgia & I often plucked ticks out every other day & didn’t give it a second thought until I started to get sick & Lyme disease was the diagnosis I was sure I would receive. Apparently I don’t have it (based on 1 blood test). I’m trying to accept my fibromyalgia diagnosis as I can’t afford further testing & second opinions from other medical professionals but your video has sure helped to find that acceptance. Thank you! Thank you! Thank you! 🙏
Thank you very much for your most informative and understanding lecture on Fibromyalgia.
Your explanation on how to manage the pain was so helpful, It has given me the confidence to believe in myself again.
My best wishes for 2022 to you and your family, from Maria, Dublin Ireland
I have had fybro for 33 years now. I was told by so many Dr's. that is was all in my head, or that it was stress from being a new mom. I finally got a diagnosis after going to a university hospital rather than local Dr's. and rheumatologist.
Since I have lived with this disease for so long, I already knew the info contained in this video. I watched it though because I was so happy to see a compassionate Dr. that recognizes fybro is real and can greatly impact your quality of life both physically and mentally. I am grateful for you Dr. Gross and this informative video, so that others won't have to go through what I did and so many others to finally get a proper diagnosis, but most importantly to just be believed that this is real and not "all in their heads", and you can do things to try to feel better and cope.
I have found as I age my symptoms have gotten a lot worse. So I need to really focus even more on the strategies mentioned in this video.
I was seeing the decline in my pain level after every trauma in my life and did not know that this is what it would leading to thank you for your Insight
Absolutely wonderful presentation. It was delivered with clarity and care. I loved it and thank you for this which has been of great help to provide clear information fir this disturbing disease which ribs you of your spirit and zest for life.
This has been extremely useful, interesting and validating for me. My own GPs do not know what to do with me and so I have been left to fend for myself. You seem to have such empathy with this life wrecking condition. Thank you.
I have been diagnosed with fibromyalgia, years ago. Lots of ppl. Think it is a fake illness so I don't often tell anyone. The best part of your video (to me) was when you said you aren't a fan of narcotics for this. I am in recovery and I can say I hate those drugs. They ruin lots of lives. 20 years for me was a fight to get what I needed just to be normal. So, long story short, it's like saying, okay I can give you these pills for your pain but I have to give you another disease. How many patients would still want them? So, thanks for being diligent! I wish more ppl would listen to this video. I learned a lot that I never knew. Thanks!!
Wow! Incredibly informative talk! You’ve put into words what people have told me for years is all in my head.
Finally the Doctors are talking about this! I have been living with this for 15 years.I was diagnosed from the Mayo Clinic. There isn’t a symptom that I haven’t had. You live about 1/2 of your life,the other half you are inside your home in pain,waiting for the worst to pass.Right now ,I have been in bed for 5 days with debilitating headaches, chronic fatigue,over all bad flu symptoms! If I feel good for two or three days,then it soon starts it’s cycle all over again with another set of different symptoms.It’s hell to live with,and I take good supplements,eat right,doesn’t matter!
Look into Earthing Grounding. On TH-cam any video with Clint Ober.
The Earthing Movie
The Grounded Documentary
And any other video with Clint Ober.
I continued to say, "me too!" My husband came in and asked, "who are you talking to?" We then watched the video together. Both nodding yes as if this physician interviewed me and is reporting what he heard me report during his assessment!
This man described my life.
This Is the best overall presentation on fibre and related issues that I have come across--highly recommended.
Look into Earthing Grounding. On TH-cam any video with Clint Ober.
The Earthing Movie
The Grounded Documentary
And any other video with Clint Ober.
Thank you Dr Gross for understanding FM and explaining it to the public.
I was totally convinced that I had fibromyalgia (and I may actually have it though the symptoms have lessened). I then realized that my body was reacting to aspartame and, as more than one doctor noted, I may have had aspartame poisoning). Why that 'poison' is still allowed in foods is amazing.
I had it so bad. ... I was in my 40s and walked like I was in my 90s. I had all the symptoms (and still have pains)? But, if anyone is ingesting anything with aspartame in it, please stop! I can almost guarantee you that much of your pain will subside. When I stopped drinking Diet Coke (I was only drinking 1 can a day), within a month, I had gotten back to about 80% of my normal life. Doctors need to stand up against aspartame! They knows it's bad but I never hear them speak out against it.
What were the symptoms you had?
@@ingritfigueroa5812 Mostly tired and muscles pains like arthritis so bad it was hard to even walk. I walked very slowly and my whole body hurt. I could barely stand to be touched. I was only in my mid 40s. My husband was 10 years younger so it was pretty hard on him. I went to several doctors during that time and none of them could figure out what it might be. When they wanted to start doing the same tests over again on me just to see if they might have missed something, I called quits on it!! My sister came across an article with the same symptoms I had, and it stated that they were from ingesting aspartame so I immediately stopped and I got better pretty quickly. (Which sadly was a couple years after my divorce.)
Wow think I’ll give this a try, I drink x 6 cans a day Of Pepsi max.
@@fionamarsh2251 If it has aspartame in it, that might help you. Give it a month or so. Let me know. Good luck!!
@@pegatheetoo1437 I will try, I don’t drink hot drinks and pretty rubbish with water so will be a struggle but it’s worth a good go x
One of the best and most accurate talks on fibromyalgia I've seen. My fibro went hand in hand with endometriosis. I even had a total hysterectomy. Sadly it didn't stop the pain but it has improved. I took myself off painkillers 5 years ago. Started learning about central sensitization.
I had severe endometriosis in early 20s, 3 abdominal surgeries ending w hysterectomy/my whole reproductive parts removed age 28. Began having symptoms around 40, diagnosed by rheumatologist with fibromyalgia in 2000. Very difficult to find physicians who 1) accept it as "real" disorder 2) have any clue how best to treat & 3) since they are mostly clueless prefer not to treat since it makes them feel woefully incompetent. So where does that leave us? I also sreuggled w IBD in my 30s. My sister also had endometriosis and now battles lymphoma. My mom died of breast cancer at age 36. Any connections here, familialy? Genetic predisposition?
Jenni,I had Centralized Sensitization Syndrome. It was awful. I wouldn’t wish it on anyone. At Mayo Clinic I had to go to classes and then you have the $40,000.00 opportunity to stay up there for treatment. I couldn’t afford that so I did my best at home with DVDs they gave me. I pray no one has to go through that.
I appreciate this concept of Mini Medical school. This doctor is trying to help us with Fibro, by educating us about this disease.
Respect to Dr. Gross for being thorough AND for enduring an hour and a half of trying to speak through the selfish person who, instead of stepping outside, COUGHED FOR AN HOUR AND A HALF
I believe fibromyalgia is really stored trauma.. ask most sufferers if they have had any traumatic experiences in their life and most will say yes. I have body or muscle armoring from cPTSD that has disabled me and was told it was fibromyalgia 35 years ago. But it's not. I can feel that I hold my muscles very tight from being stuck in the freeze response of trauma. My pain doctor and therapist agree that it's muscle armoring but very few doctors know anything about it. They better start learning because there are a lot of people like me. If you've been diagnosed with fibro, read about muscle armoring.
For you that may be true. But it is not true for everyone. That is the problem. When someone finds something that works for them they then transfer that to every other patient. What you are learning is good. But not true across the board.
It’s like our bodies can’t let themselves unwind. The signal to RELAX is stuck. It is exhausting trying to find solutions for so many short circuits randomly shooting off. I listen to family members tell me about their covid experiences…& there are too many similarities to ignore here. I also DO suspect that my symptoms surfaced and flared after the surgeries / grief stages in my life. Kinda Like fires/ flood cycles in our current climates. Can’t seem to cope with changes as easily as most.
I have endometriosis and psoriatic arthritis, along with fibro... Speaking with women who also have endometriosis, they believe their endo was a result of trauma... I've heard autoimmune diseases are a result of trauma... I'm sure muscle mirroring can be one of the "coping mechanisms" the body does to deal with trauma being a symptom of fibro... The body is so complex, yet everything manages to be "connected" somehow
It's an interesting hypothesis. It can't begin to explain all cases, since our bodies are so individual and also so complex, but definitely worth a exploring.
I am one of those. I had to be always ready to be beaten or molested. When this happens to you as an infant also the result is the same. I’m glad my father is dead now and I moved to another country so my mother couldn’t access me to harm me. She’s 85 now and still hurts, children, animals and any living thing she can access.
If your child had MS and hadcto have daily arduous muscle massage. Empathy is natural..
Its same with a fibro patient. Empatheitic support and cheering them on goes a longvway.
Wow that introduction to fibromyalgia was so me like 100% I feel like I wrote that and sent it to him and asked him to read it out loud amazing
Having to go thru a battle a couple of times a year with medical people who are telling you what you feel and what is going to help YOU. If they don't agree, with them they all but tell you you are making it up. At 79 I am getting closer to the end of my battle that started in my late 30's..
Th know it all attitude of medical people is infuriating. Being condescended to patronised almost bullied refused chances to try things then not being told of stuff that could have helped sooner. Then when frustration or anger is detected its see a psychiatrist. Not ever do they think theryre attitude caused the frustration.
I love this. I was the first person given a fibromyalgia diagnosis at Emory over 30 years ago. My mother, her mother, and I had the same symptoms. I was lucky to have a wonderful husband who believed my pain even before I was diagnosed. His words to the doctors as they explained how unpredictable my ability to do different tasks was "my wife never has to do anything she doesn't feel like doing with or without pain."
Evelyn Coleman: what a wonder husband you have. I was not that lucky.
I am sorry you were misdiagnosed. Don't you find it strange that you, mother & grandmother have FM? The Dr is quite behind on his research. You need to find someone up on research. Your team of doctors are missing something crucial. It could be a systemic infection. Many cross the placenta. I was very sick with a Borrelia infection. Our daughter contracted it via placenta & just 2 years ago we found out my mother has the same systemic infection. I had gotten it from her. She had just lived with her various pains, rashes, restless legs etc most of her life by just treating her symptoms. We were all properly treated & we are all symptom free.
Funny, my family doctor would not send me to Emory, because the doctor made all the female patients cry. Instead he sent me to a pain clinic in Peachtree City. My fibro symptoms started at age 9. I'm 66, and still living with it. 40 years ago, a car wreck ruined my spine for life. 15 yrs. Ago got osteoarthritis too. Covid hit 3 yrs. Ago, got blood clots, left me with post thrombotic syndrome. Live long enough, you'll get everything. Not to mention 10 surgeries along the way.
Just found this video. I’m been suffering tus for 6 years now and this video finally is giving me some hope. Thank you doctor, you covered all my questions
This video is absolutely on point! Thank you for spreading awareness...
Would love an update to see what new information is available ten years on 😊 very good presentation
Good video, thank you. Hope many general practitioners learn more about it. Also, a deeper look at chronic stress as a trigger, managing that has been really helpful for me.
I'm only 23, but have had this since I was 8... Hard to believe it's been 15 years since I first noticed these pains. I was only officially diagnosed when I was about 19, but my family always knew because it's genetic for us.
Still doing my best to get by. Using a cane to more evenly spread the strain of walking, up through my arms and upper back, has saved my legs and lower back every day. Sometimes I use a wheelchair at home or on trips, though. I'm surrounded by loved ones who believe me and have a nurse who helps me. It's still hard to handle, especially as the cold season comes in. The cold makes the aches themselves worse, but after a point I go numb from it and I welcome that sometimes 😅
I hope there will be more complete relief in my lifetime but I'm still grateful for the meds I've found that help (gabapentin). Stay active, care for your body. We're all doing our best.
But this is 10 years old!! How come there are still doctors thinking this is not real? Insane. And did they find out more?
What an awesome video!! Finally a Dr. gets it!! I'm so glad she is still researching!!!
It's a "he", not a she.
I’m so so happy to come across your video on Fibromyalgia.I went for years not exercising afraid it would cause more harm.Thank u so very much for that information that I will set up each week to follow.Bless u.
Really enjoyed this video,fibromyalgia explained very well!
I stretch and do yin yoga before and after work ,weights a couple of times a week and do 20-30 mins walking.I have had to change so much to manage this condition and sadly it has cost me my social life.
I eat well and my advice to anyone is ..when you are really having those bad days..eat better! It’s so easy to let your partner grab a take out for ease,but it’s the worst thing to do! I’m so sensitive to foods when I’m bad and I took photos to remind myself what happens.
I won’t take meds,but do take a huge stack of supplements and often trial different things.
I still have the stress in my life that has caused this Illness,but I have to support a loved one with their illness. So I am still struggling and often have negative thoughts running through my mind constantly. I have come up with a mantra and I am going to focus my mind with this ,when I catch myself thinking negatively. 🤞
I'd love to develop a virtual reality program that would actually take the pain from people who have fibromyalgia (or other nasty painful conditions) and give it to the doctors and also to people who have negative views about those of us who seek treatment for the never ending pain and discomfort. To make sure the doctors can help us they really need to feel the pain for at least 6 weeks. I don't think they would last one day before they were seeking treatment.
My biggest problem is that I am also diagnosed with bipolar spectrum disorder, TMJ Disfunction and coeliac disease. The TMJ and fibromyalgia flare-ups I experience often make the bipolar worse, and then I get stuck in a downward spiral.
If only we could walk in each other's shoes
I'd be happy if people (doctors and others) would just believe that my pain, tiredness, discomfort, depression and many other symptoms are real. I am often told I am lazy and don't want to work or to get better when actually I long to work, to feel useful again, etc.
Thankyou for your comment as it has encouraged me to keep trying through a difficult pain/ tummy upset flare-up.
I have learnt much about myself in the years since I first experienced chronic pain (1999 I was diagnosed with TMJD after an accidental injury to my jaw).
I have also learnt to be more empathetic with people who tell me they are experiencing pain or constant discomfort.
May you be blessed with improving health and time each day to enjoy living (I'm assuming you are watching this video because you or someone you love is diagnosed with Fibromyalgia or suspect it).
Anyone: please look after yourself, be your own best advocate and find the moments every day to enjoy something you love and be grateful for them.
Blessings, Dot
I am 62 years old with fibromyalgia and i can tell you it is so painful. I had to retire way before i was ready. I was diagnosed in 1998 and the dr just dont know how to treat it. I dont care about addiction find a cure for this painful disease. It destroyed my life completely. I was a nurse and just couldnt concentrate so i left nursing which i loved my job.
I am 63 and had to retire early too due to fibro arthritis and other things.i do understand
@Sharon Ezell I had to have a spinal fusion with disc replacement I was in surgery for 4 hours plus need both knees replaced. Smh.take care
I hear you .when you hurt 24 7 you take whatever to try to get out of pain.terrible condition. Take care
Very interesting and informative
I’m blessed not to have this condition but know friends are suffering from this
It must be so debilitating
Ive had it for 30 years. Its so nice finally having it talked about. And know that im not alone. I really havent found anything that works. Never sleep. Yes so extremely tired all the time. No concentration.
It's hell may God help you 😘
Thank you, you just explained my body and my life . I am now age 61 and have been suffering for years. Thank you again.
I am 63 and have suffered for many years too.i do understand
Its so good to hear you talk about this as i have never new what this was all about .Thankyou
This video is 💯% on point. Only those suffering with this condition, can appreciate its contents. Thank you, Dr. for sharing. 🙏🏽For all of us who are struggling to cope with it, just to get through a 24 hour day. 😢
Thank you needed this as I am flagging a little in my multi- disciplinary actions against my fibro. It's good to have a little reminder to keep up all the things that work when done in combination. I totally agree that each of us is an individual who needs to find our own pathway of management, it's not easy to do but worth it. I wish good luck and perseverance to all of you watching this because you too suffer. 🍀🤞💜
Since there's a strong correlation between insulin resistance & fibro... eating only whole foods especially veggies & water not processed foods or soda/juices/sweet tea/sports drinks, and strength training several times a week long term greatly reduces pain. Good luck, stay healthy!