My better half has started his journey today and so it's a tense, exciting and also worrying time for us. But this gives hope. Thanks for sharing. Also great news on strength etc.
Hi new to your channel, nice to have ran into you, I suffer with FSHD muscular dystrophy, I had not heard of this and I’m progressing rapidly 🥲thank you for sharing, if been extra weak no appetite no sleep I’m very nervous lots of anxiety, just soooo tired n week, think I’ll definitely talk to my doctor about this medicine.
Very happy to hear your seeing/ feeling improvement. I got the child onset, I’m 46 now n already need 24/7 care, I’m also weak in my neck and arms aswell. Do you seem to have any anxiety? Good to see your still so active 👏🏼🙏🏼 I want that energy. I’m drained, barely eat , my children feed me but sometimes it’s so hard to swallow. Just get nauseous. Iv had many other test done and everything is normal so I don’t understand if what I’m experiencing is the muscular dystrophy just hitting me hard now or what?🤷🏻♀️ any advice?
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My better half has started his journey today and so it's a tense, exciting and also worrying time for us. But this gives hope. Thanks for sharing. Also great news on strength etc.
Thanks. I’m glad these are of use. You’ll be completely fine. There are no horror stories that I’m aware of. Good luck.
Hi new to your channel, nice to have ran into you, I suffer with FSHD muscular dystrophy, I had not heard of this and I’m progressing rapidly 🥲thank you for sharing, if been extra weak no appetite no sleep I’m very nervous lots of anxiety, just soooo tired n week, think I’ll definitely talk to my doctor about this medicine.
Very happy to hear your seeing/ feeling improvement. I got the child onset, I’m 46 now n already need 24/7 care, I’m also weak in my neck and arms aswell. Do you seem to have any anxiety? Good to see your still so active 👏🏼🙏🏼 I want that energy. I’m drained, barely eat , my children feed me but sometimes it’s so hard to swallow. Just get nauseous. Iv had many other test done and everything is normal so I don’t understand if what I’m experiencing is the muscular dystrophy just hitting me hard now or what?🤷🏻♀️ any advice?
Sorry just saw this
Enjoyed this,
Good to see you mate. Great update! Can we have another one? I hope you're keeping well
You had any update on this? How has it improved?
I will do one soon
You’ll be bench pressing her soon mate 💪
Or you 🤪