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I think you can have most controls on most cars. Just need a good converter

Thank you kindly

Sorry I only speak English?

Cambridgeshire

Thanks mate. I love my car. It’s a beast!!

Thanks, Mercedes V Class

Thanks. Very rarely. In 5 years I’ve scraped I hide speed bump once. It has air suspension so when parallel parking I raise the height up. Same applies for speed bumps. I can raise suspension.

Sorry I wish I could help.

Thanks!

@@thesmartchap Do you like Moon, I m Founder MMHe3 pls cheek and all the Best

@@czjmaster ??

@@thesmartchap Yes, is my game nick, real my name is Jaroslaw Janicki, Thanks

Thanks 👍

No probs Ross ❤

Hi. It’s a car. It uses space drive. Hope this helps

Hi Andrew I have no concerns regarding the lift, although following a recent accident my overall confidence is less currently reverse now as I said yeah that's smashing my head is better than front of my head should a lift fail. LOL. There is a emergency hand pump for you to operate the lift manually.

Standard Mercedes height.

Cheers

@@thesmartchap 👍👋

There is a lift under vehicle.

@@thesmartchap Obviously I see the lift, I also have a lift. From the video I think you have changed the floor of your vehicle, am I wrong? What is the height between the floor and the roof to enter?

@@MBdip90 right sorry. Lewis Reed converted the floor from front to back

@@MBdip90 no extra height. I’m quite short.

Hi,sounds like a nice vehicle. I have same lift and conversion. My vehicle is being repaired after a big crash.

​@@thesmartchap Thanks for replying, hope you didn't suffer too serious injuries. I'm only guilty of scratching my Kia while it was in my garage I had built for it down the left hand side as room is tight in places (I surround the vehicle with too many of my acquisitions) and when the Permobil F5 is reversed the rear carsters turn quickly and forced the rear end in too close couldn't move it in any direction with out causing more damage than I already had. Most is slowly being polished out. All the best from NZ and hope you have your vehicle back soon.

Thank you

Afraid it’s the one thing that doesn’t work.

And that is really too bad...

No afraid not

Hi. This merc base model at the time was £45k GBP The adaptations cost circa £125k GBP. Car is insured for £184k GBP Car is currently smashed up

Thank you what is just the hand controls sorry I wasn’t very clear.

@@jacobfulltv space drive is around £30k per input device. So like £60k to brake / gas and steer.

@@thesmartchap thank you so much for your time .

Hope you’re ok. How did u smash it? I’m c4/5 sci and hopefully going to learn soon, I’m going for a medical assessment on 12th of march 🤞. I really liked the video and the van. I’ve a transporter atm bit tight for head room. ( front seat passenger)

Contact Braun?

@@thesmartchap As far as I am aware, Braun’s UVL won’t fit a Metris in the US.

@@altondelane7798 what’s a metris

@@thesmartchap The Mercedes Metris is the US version of the Mercedes V-class or Vito model

@@altondelane7798 they look terrible compared to European model. But you can order a wav in USA

Hi, yes I have had no issues, speed bumps usually ok but I drive with care. The lift I think is www.amf-bruns-mobility.com/products/lift-systems/k70/ I believe

Thank you

Sorry just saw this

I will do one soon

Thanks 🤗

for sure

Hi. Are you in the UK?

@@thesmartchap yeah

@@AaronGGAMING ok so first port of call is to contact Motability and they do a driving assessment to identify your ability and adaptations required. Then you can apply for a grant or buy your own vehicle and adapt it.

@@thesmartchap thanks

Hi. Thanks for comment. I’d watch all of my videos and you’ll see the incremental improvements. But I’ll do a new update soon.

@@thesmartchap If you can give me any Advice and tips for child so it wil good for my child Thanks

@@shahnawazalam7708 my day 28 video has some general life hacks

Thank you - my funding package is a bit unique and complicated - not too sure what Motability are funding currently.

@@thesmartchap to be honest I’m not sure what Motabilty will fund and how my PHB might tie in! I’ll look at it more closely but your video is really helpful. Thanks.

@@Porshesmiles message me on FB or similar and I can chat a bit more.

@@thesmartchap thanks … will do 😃👍

I’m much weaker than you so you can definitely drive. You’ll be surprised at vehicle options.

@@HighTen_Melanie they can do all sorts of things. I’ve seen a Mercedes with a slightly adapted roof for a tall person.

@@HighTen_Melanie I’d talk to Lewis Reed for the base vehicle. Darren there is very innovative. Then Steering Developments for the controls.

Thanks. All good.

Hope you are well too

Hi. It’s entirely up to the individual but the guidance I had was in the morning after breakfast. As the drug has to be chilled I figured morning are better as I wouldn’t have to factor taking it with me if I was out for the day.

Sorry 😞 I missed this. I think morning is best.

Or you 🤪

Thanks. I’m glad these are of use. You’ll be completely fine. There are no horror stories that I’m aware of. Good luck.

Hi. We are similar age. Good to hear from you! I’ve had ongoing stomach issues for 2 years and two men similar age both type2 are experiencing the same. It could be a more fundamental SMA symptom. I’d speak to a professional. I’ve not had diarrhoea although one or two days in 45 days since starting I’ve gone very quickly. No weakness really except after exercise. On the whole I feel very good. Tired from doing more but greater energy. Only side effect for me is headaches

Glad to know that you have had no issues. I spoke to my neurologist and she said that quite a few people are having digestive/diarrhoea issues but she didn't know if this was temporary or permanent. I may start taking more protein as some people have said that helps. I need to do something because over the past year my SMA seems to have gotten slightly worse and Lockdown hasn't really helped and possibly made things worse. Let's hope that Risdiplam works for us all.@@thesmartchap 's

@@Laughing-Madman yes lockdown limited me. I’ve just started swimming again for first time since March 2020. The gravity neutral resistance is great for our weak muscles and the breathing in water is good for respiratory. Feel free to connect on Instagram. I’m not far out of London 🤙🏻

I went swimming a few years ago but found it difficult to breathe with the water pressure on my chest and the water in most swimming pools is too cold for me. I like very hot water. I will message you on Instagram.@@thesmartchap

@@Laughing-Madman there is a good hydro pool in Stevenage.

Thanks. I’m planning on doing another update this week and some other videos.

Hi Amy. Thanks for your message. I’m just keen to help people on the same journey. Which hospital? Did you receive the blue book? Roche need a blood test to administer second prescription. Check with your neurologist. Also in six months you have to repeat the tests you took to get drugs. Although I’m wondering if you went to similar consultant my friend did who seemed to cut several corners.

@@thesmartchap Cheers Ross, I'm under Kings hospital in London. I was given no further info or details on bloods and 6 month follow ups so I shall query with my neurologist, thanks for flagging. On a different note while I'm here haha... was wondering have you had any sciatica like pain at all? I hit 30 and have had severe nerve pain in my legs now for 2 years (no previous issues at all so came as a shock) which I can't get to the bottom of, frustrating as I'm on strong pain killers which cause weakness so are masking any Risdiplam gains I may have. Anyway sorry for my life story but was wondering if you had experienced anything similar, thanks

@@amydunne1779 my friend goes there. They gave it to her with no assessment. It’s really poor. Roche need to know the baseline. 2 check ins with deterioration can lead to EAMS being cancelled. I’m so surprised they didn’t baseline anything.

@@amydunne1779 sorry I didn’t open the full comment. No sciatica pains. I just have bad stomach issues and lots of wind :-)

@@thesmartchap thanks Ross, I had no idea about that, I have a call with my neurologist Monday so I shall definitely be querying this. I'll be following your progress on here, best of luck with everything

Hi, great to hear from you. I like hearing from other people with SMA. I am one month today. So you are two months ahead of me. I am just awaiting some confirmation about my bloods and when I have an update I will gladly do a pre-video explaining this as I think you are right it is worth sharing. Have you experienced any gains? Thanks for your support and subscribing. Hoping this drug has amazing progress for you to

@@thesmartchap No noticeable gains, besides stronger voice, more energy, and chewing easier/aspirating less. I think overall, I'm happy with these very simple gains but I'll be excited to see long term benefits in a year or two. Hope you're doing well, can't wait to see more from you!