45 with heart failure. Just got a pace maker Implanted 2 months ago. Always tired, can’t sleep, don’t feel like doing anything anymore. Been very emotional lately and scared. Trying to muster the energy to even go for a walk and now unsure if this pace maker may hAve been a good thing. Great story I just watched I guess I’m not alone. Need me some heart failure friends 😊 feel free to reach out. Best of luck to all 🙏❤
Fatigue is a big part of heart failure & it seems (to me) unless you bring it up, medical professionals sort of brush it aside or at least don't educate enough on it. I'd finally gotten my cardio to acknowledge the fatigue & stamina issues I have were expected when his nurse came in a short bit later & asked me if I'd put my veggie garden in yet. I looked at her like she'd lost her mind & told her I got all I can do to wash a sink of dishes. 🤣 Gardening? My flower beds look like a jungle.🙃🙄 I'm 59 & was diagnosed 22 months ago. Everyone is different. Symptoms can be different & how you tolerate them can be different. Just as how you react to the diagnosis can be different. If you're having issues sleeping ..... are you feeling anxiety at night? (not uncommon) My family doctor told me to not be surprised if I had some issues with depression & anxiety at first and to not be afraid to contact her for help. So far I've coped pretty well on both counts minus a moment here & there but it's nice to know she's got my back if I need it. I just get up every day & do what I can when I can and let what I can't go. Some days I can manage quite a bit. Other days getting out of the chair is a challenge. I used to exist on less than 6 hrs a night........these days I average 8 or more & can take a 4 hr nap or fall asleep in my chair. I've found it's less depressing to go with the flow. 🥰❤ It takes some adjustment hon, both physically & mentally. ❤❤
Oh thank you for saying the words I’ve been thinking. Your garden looks like mine, I wake up after about three to four hours, have go to the bathroom ( thanks Lasix) then I cake go back sleep, I’m 76 ( yes, I’m old) but until,last spring I had no idea, I spent ten years taking care of my husband who has Parkinson’s , including the house, the cars, yard, shopping for our food, I take care of getting and making him take his meds, shower, do all those things he won’t or can’t do. I thought was why I got short of breath, I already had a bad back from helping him over our 56 years of building, rooms, homes, yards. I worked in healthcare but didn’t pay attention to my health, others came first. I get the all I can is wash the dishes in sink”. My home is mess, I haven’t clean months, no energy, no money to pay others. I don’t care anymore, about much of anything. Hubby is in hospice, he is hanging, bless him. He is now forgetful of even much of our life together. I’m always thirsty( got watch my intake of fluids, damn!) I never really got to retire, I retired to take care of him. Never will get travel like I wanted.
@@bakokat6982 Sorry to hear this..I truly hope you get the best care you need and gain your energy and desire to do the the things you once was able to do. Traveling is something I always wanted to do also especially with my heart failure diagnose. I would love to enjoy any bit of life I have left. I’m not suppose to drink alcohol but I can’t help not having my red wine it’s what relaxes me hopefully not adding more damage to myself 🤞anyhow best of luck to you my friend
So you have heart disease? Am so sorry. What if I tell you there's a cure.. Don't worry. Everything will be just fine okay,. Message me on wassap now. +2347050497271
Im 56 and got diagnosed with CHF after a life changing car accident. Been an eye opener. I have changed everything in my life. No more toxic people, healthy eating, meditation, mindfulness. I didnt have symptoms like most people. It was in my arms. I am grateful for this. Knowing im not alone. Some people around me dont take it seriously. Because i look ok. I know its progressive. But i live everyday and try to visualize my heart getting better. Went to cardiologist after my 6 month testing and its gotten better by 10%. Im going to keep doing this and moving forward. I have trouble sleeping with CHF (heart arythmia)and i have full body chronic pain. everytime i feel my heart struggling i get anxiety. Feeling like im going to die. Im grateful for having such an amazing doctor and cardiologist. They have been so supportive and the heart failure nurse also. I pray for anyone living with HF. ❤ Ty for sharing this video again.
My mom just got diagnosed with heart failure a few weeks ago it’s hard to deal with but this video gives me hope. We’re taking it one day at a time and I’ll be there with her every step of the way.
I'm with you my friend I'm freaking out and I can't hand it anymore my moms doctor diognosed her with AF but she struggles to breath at times I'm so worried that doctors haven't given her enough attention and miss diognosed her or just isn't informing us 😭
@@Random_Butts Edema in legs(Liquid in legs), Breathlessnes, tired, change of color in nails(Terry nails, nail clubbing, red spot in the lunula), pain in the chest, lightheadness, nausea, edema in lungs(Liquid in lungs), a very rare symptom is also ascitis(Edema in the abdomen), changes in the quantity of urine you produce, high sodium in blood test.
I have a Dog, a Lab who is 5 years now, and I have heart failure.. Stage 4.. From last two years.. Now m 35... My only wish is to survive till the time he is there... He is my baby. Can't leave him alone...
Hey I totally get you, I'm gonna have to go to the hospital tomorrow due to some heart issues I'm having but my dog really worries me too. Just hang in there my friend
This video is how I feel 99% of the time but I lost my husband 10 weeks ago to brain cancer, today I had an echo and my EF was 25%, knew I hadn't been the best lately but I was shocked and now worry so much for my son's. Trying to stay positive. Thank you
Hi ma'am, Im also a HF man but let us pray and trust God that We can conquer and go back to normal in God's time. Iam on a plant based diet sometimes I eat fatty fish and skinless chicken for protein, also exercise moderately like walking and always take meds on the same time. I know God will help us all!. keep on faith!. also stay away from negative thoughts even if it's hard just have faith.
Same here diagnosed with heart failure. These meds seem to help me but it all depends on what exactly you have. My ejection fraction is also at 25% for past 3 yrs I have a pace maker and also taking meds called Entresto & Farxiga this helps me stay out of hospital. Best of luck my friend 🤗
Hang in there. Its scary. I was at 33% scary to hear. I'm sorry for your loss. My brother has brain cancer and it's so hard. I feel for you. I only have one son he's 22 and I make sure I tell him everyday how much I love him. We have to stay as positive as we can. Even though it's not always that easy. Hugs ❤ I'm praying for you to heal 😊
The lady in white with the short hair , thank you. A very positive message. I have had heart failure for 10 years and it has changed me radically. I was full of life and full of plans but they dropped by the wayside. I changed many things but I still try to stay positive. It can be hard and unfortunately there is no magic bullet nut taking it one day at a time works right now.
OMG! I’m way older, 72, and just diagnosed. It started a yr ago with a slow rise in BP, and just terrible fatigue. Then a year later breathing problems that caused Respiratory Failure and heart failure with cardio conversion followed by cardiac ablation. Has not worked. I’m getting up there and lived a very full adventurous life.my grandfather died of heart failure and my mother heart problems. So I’m OK. Signed a DNR, no chest cracking or intubation for me. But to see these young people is heartbreaking!!! This is so completely unjust. I know the world is not fair, but suffering from a genetic defect is crushing. My only goal in all this is not to suffocate to death as my friend’s husband did on his death. That’s all. Just go as my mom did with a peaceful good death.
I’m 42, was diagnosed 3 years ago on Christmas Day at 30-35%. Just found out this morning I dropped to 10-15%. I knew something was off with the fatigue that was taking over. Didn’t think I would lose 15% in a little over a year. Whichever way this plays out you don’t have to live in its shadow. One day at a time is all you can do.
I found out 2 months ago that I have heart failure. I have faith, but I'm only human so I'm scared. I haven't told anyone outside of my sister and 1 friend in another state that I don't talk to often. I feel alone I am alone I don't have kids I'm single and now I'm damaged. I don't tell people because I do not want to be the "broken" friend i dont want people who otherwise have no time for me to rush over just to get one last look at me so I stay to myself. I'm not a drinker nor do I smoke still this happened to me overall I feel really well I'm not tired or fatigued . This video gives me hope that i can still live a good life.
You definitely are not alone. I do not drink or smoke I eat well too. No drugs. It's something they don't even know how I got it. Maybe COVID or meds I was taking for chronic pain after car accident. I got off all that also. I only take heart meds now. I got rid of toxic people. I can't handle stress anymore. So I meditate and try the best I can to be calm. I am praying for you to heal. Just remember you are not alone. Sharing really helps me. And if they don't care or want to listen. Maybe they're not good for you. ❤ 😊
Hope this finds you well. Just take it one day at a time and find joy whenever and wherever you can. It’s true that none of us have an expiration date, but we all will die one day. People who were completely healthy this morning with seemingly a long life ahead of them are gone now due to an unforeseen circumstance such as an accident or a health issue they knew nothing about. So live your life one day at a time , enjoy as much as possible. Sit outside and just take in the sights and sounds and aroma of nature. Relax. Talk to God. Keep your mind engaged in hobbies such as reading or puzzles and games. Anything maybe you were too busy to do in the past, take the opportunity to do now, whatever it is. TV, videos or music. Please take care of yourself and follow your doctor’s advice as much as possible. And above all NEVER give up. You never know what might be on the horizon in terms of medical advances in medicine or procedures. May God bless you!
I am in the same boat but I refuse to give up or give in. I am now going to do the portable oxygen route so I can get out and about, plus I am following a very strict dietary restriction routine: NO SALT EVER, limit your fluid intake. How are you now??
I'm 29 and found out 4 months ago that I have heart failure when my EF was at 17%. I have high pain tolerance and so all I thought previously was I'm just tired when I was pretty much gasping for air. Now, my EF is at 31%. Still very low, but still trying to live a normal every day.
I’m at the point where I can’t do anything. Unfortunately I moved to an area that has horrible doctors which caused my heart failure to get worse. I need to be able to exercise to strengthen my heart but I can’t exercise
i have had recurring CHF but it hit me full blown in August. Do you watch your fluid intake? DO NOT EAT SALT!!!! I cannot stress that enough. Are you on oxygen? There are simple exercises you can do surely.
@@earthangel614 From my experience with having heart failure, I don’t intake too much fluid because it tends to fill my lungs up making it difficult to breathe. Remember having heart failure things are not functioning like they use to but drinking less fluid has really helped me with the my breathing
Same here I plan to exercise.. I say it everyday to myself that I’m going to exercise tomorrow and tomorrow comes and go. For some reason I just can’t my legs on stationary bike just feels like they burning have to stop in like 3 mins of peddling😫
I'm 41 and was just diagnosed with diastolic dysfunction grade 2 , and all I think of is my children! I'm trying to stay strong but it's hard ! Its only been 3 days since my diagnoses! on the outside I look ok, but I'm crying and terrified inside!! 😢
Precious Loves Lopez and can i ask how did they diagnose you from a Echocardiogram? They told me back in 2016 my left ventricle was thick and that i might have hfpef same thing you have and what symptoms do you have? And whats your EF thank you and prayers!
I have heart failure and brain hemorrhage and fucking blood clots travelling through veins since 2017 . Done medication of homeopathy arnica montana. Then i found weed. It gives me hope. Smoked a lot for 6 months and Quit. Smoke maybe once a month now. Overall still beating
My godfather has this. Last month he started getting fluid. Hes on tthe fluid pills now and hes tired a lot. Im afraid I will lose him because he's older. It reakky sucks.
im definitely the 1st lady and the lady in white wrt to dealing bc some days i feel fine and other days jeez it hits home a bit more i think if you a mom you honestly just want to get your child to adult stage with you in their lives and when you feel ill on a day thats a real scary thought of what if because tiredness with heart failure is on a complete different from just had a busy day and add flu like symptoms skipped beats high blood yes its changes your outlook on life
I'll be 58 next month and just found out- I was told and believed that I was suffering from long covid for the last year or two. I've also had a cardio doc for 2 years and he never ran a blood test or stress test. my bp was uncontrolled by meds yet he said " its better than it was, see you in six months". two weeks ago I woke up short of breath, I thought it was a panic attack so went to see my GP, who ran a blood test and suspected CHF. told me to have a stress test with cardio doc. Doc office said "you already have an appointment next March! WTF? got a new doc now, already had an angio, and he tells me if I do what he says (diet, meds, exercise) I could live another 5 years as if thats good news. all I can really do is laugh at this point
I'm 47.. I had a defibilator and a wisdom tooth extracted.. I had no idea I was supposed to have antibiotics 3 to 5 days prior to the extraction, and I wasn't given any.. It caused an infection in my blood, and heart..so unfortunately I'm in CHF.. Ugh
My mum was diagnosed and we’ve been trying our best to support her - I hope you too have people supporting you through this - I can’t imagine how hard it must be ! Sending love your way !!! ❤
@@beccichatter How is she now? I hope you all are doing well. 😢 I live abroad and heard that my dad has accute/chronic heart disease, I'm super scared and bothered about it. 😭💔
Sending you positive vibes. U didn't do anything wrong. They think I might have got it from COVID or meds I was taking. Seems to be more of this going around my cardiologist said. Meditation works for me. I visualize my heart getting better. And me being healthy. I have my days but I eat well, no smoking,drugs or anything bad also I got rid of toxic people in my life. That was a game changer. I find it's helping slowly. I was at 33% now I'm at 44% a year later. Just do your best. That's all you can do. Sending you positive vibes ❤❤
I'm 24 and I really think I have this but I'm not diagnosed and I'm scared I have a 9 month old daughter and another baby due in a few months. My athletic abilites have continually declined and I'm always tired and my girlfriend doesnt understand why
How are you now? I'm 26 and for the last month I experience all the symptoms and now simply walking is extremely fatiguing for me. Just stay at home. Doctors are useless, fucking bastards. Been to ER a dozen times, they do the same type of examinations, ECG, blood tests, chest x-ray - everything is normal but I feel extremely weak and chest pains all the time, anxious, coughing, vertigo and dizziness... No hope left for them. Waiting times are atrocious here in Ireland, even to get to my General Practitioner to collect my heart CT exams I have to wait 4 weeks!! It's insane. I hate these doctors
Depends how extreme ur at . Me I wear out easy I get chest pains when I over do . I can't work out . I swell up. I take water pills everyday and heart pills blood pressure pills the older you get longer u have it you can feel your body say no you can't do this . So I don't push myself anymore to make others happen. I get echo every 6 mths covid I had to wait a yr . So listen to your body don't push urself to make other happy . I had more angry people than feeling sorry for me . They were angry I couldn't do what I've done in past . Like work . I did for awhile and I can't anymore . Not going to happen people are use to me go go go .. And they didn't take it good my family my friend all I got was you can do it keep going can't you go back to work now ? Like no get over it I'm done . Let me do what I want when I can do it . But Everything gets harder as yrs go on .So I never had anyone feel sorry for me . To this day they want me to work and be my old self . I knew it was my heart before le my heart Drs knew. Kept saying it was anxiety I saw 3 heart Dr one for 7 yrs straight kept saying wasnt my Heart idiot . Finally was sent to A new Heart Dr and by then my heart was at 5 percent if my Rheumatologist hadn't sent me to Cardiolagist upstairs I'd be dead . Went to hospital next visit. 4 yrs ago . It effects your other organs when your heart doesn't pump right .so you need to go in and make sure all is well .But I laughed when they told me cuz I knew I was right .smh .I was lucky and that's all they kept telling me in hospital you were lucky .And I kept telling my family it was my heart everyone nd Dr said it was Anxiety F them .lol I don't have anxiety I do now but I've been complaining about chest pains legs pains fatigue since 2003 so yeah Dr are just pull pushers for anxiety .If your lucky you get a Good Dr my ruemo Dr Panahi saved my life . I love him .😘💖 And my New Heart Dr. My family felt bad really when they knew I was right they should know I'm never wrong maybe 2 percent of the time I'm wrong . Out of 100 .
The same thing happened with me..I had high blood pressure for over a whole decade..I wasn't taking the meds like I should have..if I had listened maybe I wouldn't be in the shape I'm in now..I try to exercise but my doctors say donr overdo..I'm used to go go go..then when I retired from work..I just sat around and ate. Another thing ..the few friends I had moved from around me..and my family is across country..and I became depressed..I gained weight and then by the time I quit smoking and drinking and lost weight..I couldn't move like I wanted. I'm trying to be active but I get so tired and I feel like it's damn if I do and damn if I dont..I don't want to ever go back to being as huge as I was in weight..and I hope it ain't too late for me..I'm 67 years old now and I'm just gonna keep on trying and not give up.. if it wasn't for the cardiologist I saw in november that told me I had heart failure..I had no idea..I would probably be dead now. I pray to God to please let me live to be really old like my mom did she made it to almost 90..I got my grown kids and my grandkids and other family members as well as myself to live for..even if I.didnt think of it before.
@lori4291 Your story intrigues me. I'm a Dutchman (living in the Netherlands) and experience (well, in fact it feels like suffering) symptoms that are heart failure. Shortness in breathe, dizy, chest pains, arrhytmia, high blood pressure, foamy white slime, fatigue, confusion, anxiety, oedema et cetera. This for approx. 6 months now. I went to my home doctor. Because of a burnout I had in 2015, she said it was stress related. I had one ECG that turned out to show an arythmia /bradycardia. Homedoctor persisted its stress related. I just got worse and worse. Also experience difficulties with peeing and many other symptoms. Went to a cardiologist. On an - external - echo my heart seems to pump properly. Nevertheless, I understood that it could also be a stiffer heart muscle which isnt visible /HfPef. My cardiologist want willing to research this. Over here, in the Netherlands, there hardly is time for a decent consultation. All about insurance. This just more than terrible. I cant function anymore at all. I was a vital man in the age of 42. I'm wondering what you would recommend to do. Looking forward to your response. .much appreciated.
Wow I am sooooo similar after a life changing car accident I kept saying something isn't right! I have chronic pain from this car accident and After 7 years I lost alot of weight and I do have a great family doctor. She sent me to a cardiologist because my heart sounded weird. Finally she checked. I was getting the same. It's anxiety. I felt anxious all the time. So they gave me meds for this. Which made it worse. Nothing helped. As soon as I went on the HF meds I was soo much better with hardly any anxiety. Go figure. I get it when I sleep but they've upped my meds for that. I am just waiting for that to work hopefully. I got rid of toxic people. That didn't even care about my diagnosis. Like oh u can live with that. I don't talk to anyone that wasn't healthy for me. I feel such a relief! Life is so precious. I do everything for my health and I've gotten better by 10% I'm at 44% after a year. I will never be in another relationship that isn't healthy for me. And those who want me to be like I was I've said bye bye. And they all fell out of my life quickly. I'm sending you positive vibes and we are not alone ❤😊we got this
I am told that after a heart attack 5 years ago my heart now works at 25%. I have no symptoms. I walk miles a day not tired or anything. I knew that after the heart attack my heart took damage. My cardiologist for the last 5 years never explained how much damage. He retired so I have a new Doctor that has ran all these test. He put me on Entresto and is suggesting a pace maker probably will be needed. I am 54 and plan on retiring in a year to Mexico. Mexico has great health care, but cardiologist usually only in the bigger cities with private hospitals that are as good or better than most of ours here in the states. Now I'm thinking about is the pace maker needed? How much will the treatment cost in the future? Can I really retire with these costs and no insurance with no job. @JeseniaRodriguez-Ic5or how are you doing with your pace maker?
![[MV] A leap of faith...ความเชื่อใจครั้งสุดท้าย (From "Petrichor the series")](http://i.ytimg.com/vi/U1piZH2CNXA/mqdefault.jpg)
45 with heart failure. Just got a pace maker Implanted 2 months ago. Always tired, can’t sleep, don’t feel like doing anything anymore. Been very emotional lately and scared. Trying to muster the energy to even go for a walk and now unsure if this pace maker may hAve been a good thing. Great story I just watched I guess I’m not alone. Need me some heart failure friends 😊 feel free to reach out. Best of luck to all 🙏❤
What makes you unsure of the pace maker ? My dad is unsure of getting one
Fatigue is a big part of heart failure & it seems (to me) unless you bring it up, medical professionals sort of brush it aside or at least don't educate enough on it. I'd finally gotten my cardio to acknowledge the fatigue & stamina issues I have were expected when his nurse came in a short bit later & asked me if I'd put my veggie garden in yet. I looked at her like she'd lost her mind & told her I got all I can do to wash a sink of dishes. 🤣 Gardening? My flower beds look like a jungle.🙃🙄 I'm 59 & was diagnosed 22 months ago.
Everyone is different. Symptoms can be different & how you tolerate them can be different. Just as how you react to the diagnosis can be different.
If you're having issues sleeping ..... are you feeling anxiety at night? (not uncommon) My family doctor told me to not be surprised if I had some issues with depression & anxiety at first and to not be afraid to contact her for help. So far I've coped pretty well on both counts minus a moment here & there but it's nice to know she's got my back if I need it.
I just get up every day & do what I can when I can and let what I can't go. Some days I can manage quite a bit. Other days getting out of the chair is a challenge. I used to exist on less than 6 hrs a night........these days I average 8 or more & can take a 4 hr nap or fall asleep in my chair. I've found it's less depressing to go with the flow. 🥰❤
It takes some adjustment hon, both physically & mentally. ❤❤
Oh thank you for saying the words I’ve been thinking. Your garden looks like mine, I wake up after about three to four hours, have go to the bathroom ( thanks Lasix) then I cake go back sleep, I’m 76 ( yes, I’m old) but until,last spring I had no idea, I spent ten years taking care of my husband who has Parkinson’s , including the house, the cars, yard, shopping for our food, I take care of getting and making him take his meds, shower, do all those things he won’t or can’t do.
I thought was why I got short of breath, I already had a bad back from helping him over our 56 years of building, rooms, homes, yards. I worked in healthcare but didn’t pay attention to my health, others came first. I get the all I can is wash the dishes in sink”. My home is mess, I haven’t clean months, no energy, no money to pay others. I don’t care anymore, about much of anything. Hubby is in hospice, he is hanging, bless him. He is now forgetful of even much of our life together.
I’m always thirsty( got watch my intake of fluids, damn!) I never really got to retire, I retired to take care of him. Never will get travel like I wanted.
@@bakokat6982 Sorry to hear this..I truly hope you get the best care you need and gain your energy and desire to do the the things you once was able to do. Traveling is something I always wanted to do also especially with my heart failure diagnose. I would love to enjoy any bit of life I have left. I’m not suppose to drink alcohol but I can’t help not having my red wine it’s what relaxes me hopefully not adding more damage to myself 🤞anyhow best of luck to you my friend
Have the damn red wine. It’s good for you
So nice to hear from other people. I don't feel so alone now
So you have heart disease? Am so sorry. What if I tell you there's a cure..
Don't worry. Everything will be just fine okay,. Message me on wassap now. +2347050497271
@@lordaturehealingandcuremir1176 is it really ??dont play around like that if you just playing
Pro trick : you can watch movies at Flixzone. I've been using it for watching a lot of movies during the lockdown.
@Mohamed Cristian yup, I have been using Flixzone for months myself :D
Same here
Im 56 and got diagnosed with CHF after a life changing car accident. Been an eye opener. I have changed everything in my life. No more toxic people, healthy eating, meditation, mindfulness. I didnt have symptoms like most people. It was in my arms. I am grateful for this. Knowing im not alone. Some people around me dont take it seriously. Because i look ok. I know its progressive. But i live everyday and try to visualize my heart getting better. Went to cardiologist after my 6 month testing and its gotten better by 10%. Im going to keep doing this and moving forward. I have trouble sleeping with CHF (heart arythmia)and i have full body chronic pain. everytime i feel my heart struggling i get anxiety. Feeling like im going to die. Im grateful for having such an amazing doctor and cardiologist. They have been so supportive and the heart failure nurse also. I pray for anyone living with HF. ❤ Ty for sharing this video again.
My mom just got diagnosed with heart failure a few weeks ago it’s hard to deal with but this video gives me hope. We’re taking it one day at a time and I’ll be there with her every step of the way.
I'm with you my friend I'm freaking out and I can't hand it anymore my moms doctor diognosed her with AF but she struggles to breath at times I'm so worried that doctors haven't given her enough attention and miss diognosed her or just isn't informing us 😭
Pls tell mee what was the symptom
@@Teelee97 pls tell me what is the symptom
@@Random_Butts Edema in legs(Liquid in legs), Breathlessnes, tired, change of color in nails(Terry nails, nail clubbing, red spot in the lunula), pain in the chest, lightheadness, nausea, edema in lungs(Liquid in lungs), a very rare symptom is also ascitis(Edema in the abdomen), changes in the quantity of urine you produce, high sodium in blood test.
@@lucario2188 ok thank you and take Care
I have a Dog, a Lab who is 5 years now, and I have heart failure.. Stage 4.. From last two years.. Now m 35... My only wish is to survive till the time he is there... He is my baby. Can't leave him alone...
Hey I totally get you, I'm gonna have to go to the hospital tomorrow due to some heart issues I'm having but my dog really worries me too. Just hang in there my friend
My 14 years old brother is suffering grade 4 😢 may
@@Lolvideo1232 what were his symptoms
Hey how's dog
These people are heroes
This video is how I feel 99% of the time but I lost my husband 10 weeks ago to brain cancer, today I had an echo and my EF was 25%, knew I hadn't been the best lately but I was shocked and now worry so much for my son's. Trying to stay positive. Thank you
I wish you the best.
Prayers. I lost my wife last year then diagnosed with CHF. It is lonely sometimes
Hi ma'am, Im also a HF man but let us pray and trust God that We can conquer and go back to normal in God's time. Iam on a plant based diet sometimes I eat fatty fish and skinless chicken for protein, also exercise moderately like walking and always take meds on the same time. I know God will help us all!. keep on faith!. also stay away from negative thoughts even if it's hard just have faith.
Same here diagnosed with heart failure. These meds seem to help me but it all depends on what exactly you have. My ejection fraction is also at 25% for past 3 yrs I have a pace maker and also taking meds called Entresto & Farxiga this helps me stay out of hospital. Best of luck my friend 🤗
Hang in there. Its scary. I was at 33% scary to hear. I'm sorry for your loss. My brother has brain cancer and it's so hard. I feel for you. I only have one son he's 22 and I make sure I tell him everyday how much I love him. We have to stay as positive as we can. Even though it's not always that easy. Hugs ❤ I'm praying for you to heal 😊
My father currently has heart failure and cancer. Trying to stay positive.
Thank You for this Video
It's helped me to start dealing with my C.H.F. a bit differently, and to Never Give Up 🙂🙌👏
Wow..these people are amazing!.
The lady in white with the short hair , thank you. A very positive message.
I have had heart failure for 10 years and it has changed me radically.
I was full of life and full of plans but they dropped by the wayside.
I changed many things but I still try to stay positive.
It can be hard and unfortunately there is no magic bullet nut taking it one day at a time works right now.
When you diagnosed ,how much was ejection fraction?
You're healthy. My uncle lived for only 4 years with heart failure despite all treatment and life style change
Cheryl Krafft's attitude & energy is inspiring ❤️
This makes me appreciate my life. Even though i might be a risk of having heart failure also. God forbid.
OMG! I’m way older, 72, and just diagnosed. It started a yr ago with a slow rise in BP, and just terrible fatigue. Then a year later breathing problems that caused Respiratory Failure and heart failure with cardio conversion followed by cardiac ablation. Has not worked.
I’m getting up there and lived a very full adventurous life.my grandfather died of heart failure and my mother heart problems. So I’m OK. Signed a DNR, no chest cracking or intubation for me. But to see these young people is heartbreaking!!! This is so completely unjust. I know the world is not fair, but suffering from a genetic defect is crushing.
My only goal in all this is not to suffocate to death as my friend’s husband did on his death.
That’s all. Just go as my mom did with a peaceful good death.
I can definitely relate. I am a mom with heart failure and I struggle to keep up with my kids.
Plz have regular exercise and change lifestyle
Sorry ey.
I’m 42, was diagnosed 3 years ago on Christmas Day at 30-35%. Just found out this morning I dropped to 10-15%. I knew something was off with the fatigue that was taking over. Didn’t think I would lose 15% in a little over a year. Whichever way this plays out you don’t have to live in its shadow. One day at a time is all you can do.
Were you taking medicine or how was your condition being treated during that time? I hope you are doing okay 🙏❤️
Sending you positive vibes ❤
I found out 2 months ago that I have heart failure. I have faith, but I'm only human so I'm scared. I haven't told anyone outside of my sister and 1 friend in another state that I don't talk to often. I feel alone I am alone I don't have kids I'm single and now I'm damaged. I don't tell people because I do not want to be the "broken" friend i dont want people who otherwise have no time for me to rush over just to get one last look at me so I stay to myself. I'm not a drinker nor do I smoke still this happened to me overall I feel really well I'm not tired or fatigued . This video gives me hope that i can still live a good life.
You definitely are not alone. I do not drink or smoke I eat well too. No drugs. It's something they don't even know how I got it. Maybe COVID or meds I was taking for chronic pain after car accident. I got off all that also. I only take heart meds now. I got rid of toxic people. I can't handle stress anymore. So I meditate and try the best I can to be calm. I am praying for you to heal. Just remember you are not alone. Sharing really helps me. And if they don't care or want to listen. Maybe they're not good for you. ❤ 😊
Same here
I hope these people are still alive.
Me too ey.
got diagnosed yesterday after 3 days in hospital, cant lie it was the scariest experience of my life, now comes the coping part....
I Had A Pacemaker Put In 2 Yrs.Ago. Also Have Neuropathy. Every Day Is A Challenge But I'm Thankful To Still Be Living At The Age Of 64.
I'm stage 4. Can hardly do anything now. Have to pay complete strangers to help me.
If you see this can you please answer .. I just so alone ...
Keep going!
Hope this finds you well. Just take it one day at a time and find joy whenever and wherever you can. It’s true that none of us have an expiration date, but we all will die one day. People who were completely healthy this morning with seemingly a long life ahead of them are gone now due to an unforeseen circumstance such as an accident or a health issue they knew nothing about. So live your life one day at a time , enjoy as much as possible. Sit outside and just take in the sights and sounds and aroma of nature. Relax. Talk to God. Keep your mind engaged in hobbies such as reading or puzzles and games. Anything maybe you were too busy to do in the past, take the opportunity to do now, whatever it is. TV, videos or music. Please take care of yourself and follow your doctor’s advice as much as possible. And above all NEVER give up. You never know what might be on the horizon in terms of medical advances in medicine or procedures. May God bless you!
Pray pray pray and
I am in the same boat but I refuse to give up or give in. I am now going to do the portable oxygen route so I can get out and about, plus I am following a very strict dietary restriction routine: NO SALT EVER, limit your fluid intake. How are you now??
How are you know?
I am 54 and been diagnosed with LVSD but hey ho life goes on full respect t to all those in the video
What's LVSD?
It’s left ventricular systolic dysfunction ,I’m still alive and kicking since my post 😂
@@jasonparfitt5936 hows your E.F from the time you diagnosed sir?
@@vonbrianquitara4010 a bit erratic ,up to 35 from25 then crashed to 19 .
@Jason Parfitt, have you did life changes, healthy diet sir and exercise sir?, so you mean yours in 19% as we speak?..
They are amazing!
I'm 29 and found out 4 months ago that I have heart failure when my EF was at 17%. I have high pain tolerance and so all I thought previously was I'm just tired when I was pretty much gasping for air. Now, my EF is at 31%. Still very low, but still trying to live a normal every day.
I’m at the point where I can’t do anything. Unfortunately I moved to an area that has horrible doctors which caused my heart failure to get worse. I need to be able to exercise to strengthen my heart but I can’t exercise
i have had recurring CHF but it hit me full blown in August. Do you watch your fluid intake? DO NOT EAT SALT!!!! I cannot stress that enough. Are you on oxygen? There are simple exercises you can do surely.
@@lindaintexas1145 hi my dad just got diagnosed. How do you recommend to adjust the liquid intake? And why? Anything helps
@@earthangel614 From my experience with having heart failure, I don’t intake too much fluid because it tends to fill my lungs up making it difficult to breathe. Remember having heart failure things are not functioning like they use to but drinking less fluid has really helped me with the my breathing
Same here I plan to exercise.. I say it everyday to myself that I’m going to exercise tomorrow and tomorrow comes and go. For some reason I just can’t my legs on stationary bike just feels like they burning have to stop in like 3 mins of peddling😫
I'm 41 and was just diagnosed with diastolic dysfunction grade 2 , and all I think of is my children! I'm trying to stay strong but it's hard ! Its only been 3 days since my diagnoses! on the outside I look ok, but I'm crying and terrified inside!! 😢
Praying for you. Please allow your support system to be there Even If it's one person. Your gonna make it through this
@@terrahumphrey9455 thank you I appreciate this comment.
@O. moghrabi this gives me hope. I'm 41 and I have so much more life to live! Thanks for this uplifting message ❤
Praying for you God Bless
Precious Loves Lopez and can i ask how did they diagnose you from a Echocardiogram? They told me back in 2016 my left ventricle was thick and that i might have hfpef same thing you have and what symptoms do you have? And whats your EF thank you and prayers!
I have heart failure and brain hemorrhage and fucking blood clots travelling through veins since 2017 . Done medication of homeopathy arnica montana.
Then i found weed.
It gives me hope.
Smoked a lot for 6 months and
Quit.
Smoke maybe once a month now.
Overall still beating
Did weed help with anything?
My godfather has this. Last month he started getting fluid. Hes on tthe fluid pills now and hes tired a lot. Im afraid I will lose him because he's older. It reakky sucks.
How's he now?
im definitely the 1st lady and the lady in white wrt to dealing bc some days i feel fine and other days jeez it hits home a bit more i think if you a mom you honestly just want to get your child to adult stage with you in their lives and when you feel ill on a day thats a real scary thought of what if because tiredness with heart failure is on a complete different from just had a busy day and add flu like symptoms skipped beats high blood yes its changes your outlook on life
I'll be 58 next month and just found out- I was told and believed that I was suffering from long covid for the last year or two. I've also had a cardio doc for 2 years and he never ran a blood test or stress test. my bp was uncontrolled by meds yet he said " its better than it was, see you in six months". two weeks ago I woke up short of breath, I thought it was a panic attack so went to see my GP, who ran a blood test and suspected CHF. told me to have a stress test with cardio doc. Doc office said "you already have an appointment next March! WTF? got a new doc now, already had an angio, and he tells me if I do what he says (diet, meds, exercise) I could live another 5 years as if thats good news. all I can really do is laugh at this point
God bless u all❤!I'm watching on behalf of my uncle! Don't fear! But know Jesus and he'll protect u
Thank you 🙏
I'm 47.. I had a defibilator and a wisdom tooth extracted.. I had no idea I was supposed to have antibiotics 3 to 5 days prior to the extraction, and I wasn't given any.. It caused an infection in my blood, and heart..so unfortunately I'm in CHF.. Ugh
Wow
Damn all the best
23 with heart failure
My mum was diagnosed and we’ve been trying our best to support her - I hope you too have people supporting you through this - I can’t imagine how hard it must be !
Sending love your way !!! ❤
How are you now I’m 20 and just got diagnosed don’t know what stage it is yet tho but cause was hypertension I had from 2021
@@beccichatter How is she now? I hope you all are doing well. 😢 I live abroad and heard that my dad has accute/chronic heart disease, I'm super scared and bothered about it. 😭💔
I’m 33 and I’m so scared because I just had a baby and I’ve always been so healthy I don’t know what I’ve done wrong
Best wishes! Your not alone
Sending you positive vibes. U didn't do anything wrong. They think I might have got it from COVID or meds I was taking. Seems to be more of this going around my cardiologist said. Meditation works for me. I visualize my heart getting better. And me being healthy. I have my days but I eat well, no smoking,drugs or anything bad also I got rid of toxic people in my life. That was a game changer. I find it's helping slowly. I was at 33% now I'm at 44% a year later. Just do your best. That's all you can do. Sending you positive vibes ❤❤
I'm 24 and I really think I have this but I'm not diagnosed and I'm scared I have a 9 month old daughter and another baby due in a few months. My athletic abilites have continually declined and I'm always tired and my girlfriend doesnt understand why
How are you now? I'm 26 and for the last month I experience all the symptoms and now simply walking is extremely fatiguing for me. Just stay at home. Doctors are useless, fucking bastards. Been to ER a dozen times, they do the same type of examinations, ECG, blood tests, chest x-ray - everything is normal but I feel extremely weak and chest pains all the time, anxious, coughing, vertigo and dizziness... No hope left for them. Waiting times are atrocious here in Ireland, even to get to my General Practitioner to collect my heart CT exams I have to wait 4 weeks!! It's insane. I hate these doctors
Depends how extreme ur at . Me I wear out easy I get chest pains when I over do . I can't work out . I swell up. I take water pills everyday and heart pills blood pressure pills the older you get longer u have it you can feel your body say no you can't do this . So I don't push myself anymore to make others happen. I get echo every 6 mths covid I had to wait a yr . So listen to your body don't push urself to make other happy . I had more angry people than feeling sorry for
me . They were angry I couldn't do what I've done in past . Like work . I did for awhile and I can't anymore .
Not going to happen people are use to me go go go .. And they didn't take it good my family my friend all I got was you can do it keep going can't you go back to work now ? Like no get over it I'm done .
Let me do what I want when I can do it . But Everything gets harder as yrs go on .So I never had anyone feel sorry for me . To this day they want me to work and be my old self . I knew it was my heart before le my heart Drs knew. Kept saying it was anxiety I saw 3 heart Dr one for 7 yrs straight kept saying wasnt my Heart idiot . Finally was sent to A new Heart Dr and by then my heart was at 5 percent if my Rheumatologist hadn't sent me to Cardiolagist upstairs I'd be dead . Went to hospital next visit. 4 yrs ago . It effects your other organs when your heart doesn't pump right .so you need to go in and make sure all is well .But I laughed when they told me cuz I knew I was right .smh .I was lucky and that's all they kept telling me in hospital you were lucky .And I kept telling my family it was my heart everyone nd Dr said it was Anxiety F them .lol I don't have anxiety I do now but I've been complaining about chest pains legs pains fatigue since 2003 so yeah Dr are just pull pushers for anxiety .If your lucky you get a Good Dr my ruemo Dr Panahi saved my life . I love him .😘💖 And my New Heart Dr. My family felt bad really when they knew I was right they should know I'm never wrong maybe 2 percent of the time I'm wrong . Out of 100 .
The same thing happened with me..I had high blood pressure for over a whole decade..I wasn't taking the meds like I should have..if I had listened maybe I wouldn't be in the shape I'm in now..I try to exercise but my doctors say donr overdo..I'm used to go go go..then when I retired from work..I just sat around and ate. Another thing ..the few friends I had moved from around me..and my family is across country..and I became depressed..I gained weight and then by the time I quit smoking and drinking and lost weight..I couldn't move like I wanted. I'm trying to be active but I get so tired and I feel like it's damn if I do and damn if I dont..I don't want to ever go back to being as huge as I was in weight..and I hope it ain't too late for me..I'm 67 years old now and I'm just gonna keep on trying and not give up.. if it wasn't for the cardiologist I saw in november that told me I had heart failure..I had no idea..I would probably be dead now. I pray to God to please let me live to be really old like my mom did she made it to almost 90..I got my grown kids and my grandkids and other family members as well as myself to live for..even if I.didnt think of it before.
@lori4291
Your story intrigues me. I'm a Dutchman (living in the Netherlands) and experience (well, in fact it feels like suffering) symptoms that are heart failure. Shortness in breathe, dizy, chest pains, arrhytmia, high blood pressure, foamy white slime, fatigue, confusion, anxiety, oedema et cetera.
This for approx. 6 months now.
I went to my home doctor. Because of a burnout I had in 2015, she said it was stress related.
I had one ECG that turned out to show an arythmia /bradycardia.
Homedoctor persisted its stress related.
I just got worse and worse. Also experience difficulties with peeing and many other symptoms.
Went to a cardiologist. On an - external - echo my heart seems to pump properly. Nevertheless, I understood that it could also be a stiffer heart muscle which isnt visible /HfPef.
My cardiologist want willing to research this. Over here, in the Netherlands, there hardly is time for a decent consultation. All about insurance.
This just more than terrible.
I cant function anymore at all.
I was a vital man in the age of 42.
I'm wondering what you would recommend to do.
Looking forward to your response. .much appreciated.
Wow I am sooooo similar after a life changing car accident I kept saying something isn't right! I have chronic pain from this car accident and After 7 years I lost alot of weight and I do have a great family doctor. She sent me to a cardiologist because my heart sounded weird. Finally she checked. I was getting the same. It's anxiety. I felt anxious all the time. So they gave me meds for this. Which made it worse. Nothing helped. As soon as I went on the HF meds I was soo much better with hardly any anxiety. Go figure. I get it when I sleep but they've upped my meds for that. I am just waiting for that to work hopefully. I got rid of toxic people. That didn't even care about my diagnosis. Like oh u can live with that. I don't talk to anyone that wasn't healthy for me. I feel such a relief! Life is so precious. I do everything for my health and I've gotten better by 10% I'm at 44% after a year. I will never be in another relationship that isn't healthy for me. And those who want me to be like I was I've said bye bye. And they all fell out of my life quickly. I'm sending you positive vibes and we are not alone ❤😊we got this
Is she still alive?
How many stagers with heart failer
Anyone here at Stage 4 ???... Got some questions
All thanks to doctor Alued on TH-cam who cure me from heart disease thank you #doctoralued
O my god
I am told that after a heart attack 5 years ago my heart now works at 25%. I have no symptoms. I walk miles a day not tired or anything. I knew that after the heart attack my heart took damage. My cardiologist for the last 5 years never explained how much damage. He retired so I have a new Doctor that has ran all these test. He put me on Entresto and is suggesting a pace maker probably will be needed. I am 54 and plan on retiring in a year to Mexico. Mexico has great health care, but cardiologist usually only in the bigger cities with private hospitals that are as good or better than most of ours here in the states. Now I'm thinking about is the pace maker needed? How much will the treatment cost in the future? Can I really retire with these costs and no insurance with no job. @JeseniaRodriguez-Ic5or how are you doing with your pace maker?
I’m 33 and I’m so scared because I just had a baby and I’ve always been so healthy I don’t know what I’ve done wrong