What bother me is there are millions of us with chronic fatigue syndrome who have suffered for years, myself near 30. Life lost to this monster from hell. I feel if we were listened to and taken more seriously we would be so much further ahead with answers for at least fatigue. But we were shunned and made fun of and insulted. Was all in our head! Thru time I facilitated a support group for 23 years at our hospital for it and have my own study published in the Journal of Musculoskeletal Pain in 2000. So many of us have waited so long for help and answers. Surely for fatigue we could look at studies already published years ago on cfs fatigue as a baseline to get a leg up on at least the fatigue part of long covid. Just a sugestion.
I agree with you. CFS should have been investigated decades ago. Throughout human history viral infections have claimed higher percentages of the population than in modern history. It might be possible that thanks to the advances in modern medicine, we might have higher survival rates after an infection, but in a way perhaps we have "cheated" death and now we have to live with the consequences of having survived past our prime. Anyway, I think the most important thing is to support the long haulers and ensure they are not shunned the way CFS patients were. The long hauler community should find support within the CFS community. We need to unite.
Have either of you tried reducing your exposition to endocrine disruptors, the time it takes for your endocrine system to regain control of your immune system?
I like the approach of Becky. So you folks are making great progress as a loose team but you need to speed your efforts up not slow down with long trials. Many are sick and have now present support from Primary Care. You have presented tools that can be used now to establish DSM for long Covid and thus get help from the health care system for all the millions of disabled. Some urgency please?
@@davidmoorman731 I get what you're trying to say but how can you rush something that has no known longevity and may just resolve naturally in some while dragging on (for years?) in others.
If SARS COV2 better replicate at low tissue temperature (at TWiV Nr 659 at min29 Christian Drosten indicate that)may be low body temperature increase viral replication and persistent replication?
That would be an interesting premise to pursue, as both my DIL and I have thyroid conditions, and during COVID our temps dropped rather than resulting in fever, and we were the sickest ones in our cohort. I would be very interested in any follow-up to this ...
@@carolpetersen635 Low body temperature not only increase SARS COV2 replication (theoreticaly - after data from TWiV 659 at min29) but also I see at dropp of perifereal blood ,from patients after SARS COV2 infection,agglutination at low temperature. At microscop I see erytrocyte aggregation like coin rolls. Theoreticaly that can induce increasing blood viscousity at relative low temperature. To avoid that, may be acetylcysteine can be used
Please be careful with Hyper B oxygen used on already highly stressed low count mytocondria. More damage to existing mytocondria is possible. Effort to rebuild populations of depleted mytocondria should be investigated. Your analytical equipment can show this right Becky? That is the low active level of Mytocondria associates with fatigue and less fatigue as populations are improved.
Many people with so called Long COVID are really suffering from Chronic Fatigue Syndrome and it’s disregulating effects on your parasympathetic and sympathetic systems. High inflammatory effects cause damage to your adrenals and thyroid both which help regulate our autoimmune systems. Without detoxification techniques and replenishment of vital minerals, vitamins and grandulars to rebuild the endocrine and autonomic nervous systems these people do very poorly. Main stream medicine is focused on all the wrong markers and are sending these patients to neurologists and rheumatologists who are using dirty drugs to treat symptoms while ignoring the underlying causes. Lots of naturopathic things can be done to effectively treat these patients without using drugs.
If ,,low temperature agglutinine,, occur oxigenotherapy must use more warmed oxigen mix. If blood viscousity increase , theoreticaly acetylcysteine ( NAC,ACC)can be used.?
Suppose that ,,low temperature agglutinine,,occur after SARS COV2 infection, like after mycoplasmatic pneumonia ,and induce capillary subobstruction at low temperature.
Before been released from infected hyjaked cell coronaviruses catch a lypidic part of hyjaked cell membrane to built viral envelope. Theoretically some cross reacting antybody against viral envelope can cross react with cell membrane receptors. That can explain why I see erytrocyte aggregation like coin rolls at low temperature. If at periferial circulation blood temperature decrease,that can increase blood viscousity and cappilary subobstruction.(?)
sounds very simular to chronic fatigue syndrome, its just not fatigue that we suffer with it. thats why its called a syndrome because of so many other factors that plague us besides fatigue. But alas no help for us.,have waited 30 yrs myself, many others the same.
@@safeeffective385 Yes of course it is. That would be why I caught Covid after attending an unmasked event.... Many years ago surgeons scoffed at the idea that they should not be allowed to smoke when doing surgery or even wash before... And I'm sure you'd be happy to have an operation done by unmasked medical staff..
@@safeeffective385 Erm I wasn't vaccinated so hey, how about that! What happens if you sit opposite someone with a cold and they sneeze? A. You risk catching it or B. Nothing cos colds are just made up by big pharma to sell remedies? Would you travel to am African country without getting vaccinated against the serious diseases that can actually kill you or are they just all part the Dane theatre too? You never responded about the surgery question. Masked or unmasked medical staff? How lucky do you feel...?
What bother me is there are millions of us with chronic fatigue syndrome who have suffered for years, myself near 30. Life lost to this monster from hell. I feel if we were listened to and taken more seriously we would be so much further ahead with answers for at least fatigue. But we were shunned and made fun of and insulted. Was all in our head! Thru time I facilitated a support group for 23 years at our hospital for it and have my own study published in the Journal of Musculoskeletal Pain in 2000. So many of us have waited so long for help and answers. Surely for fatigue we could look at studies already published years ago on cfs fatigue as a baseline to get a leg up on at least the fatigue part of long covid. Just a sugestion.
I agree with you. CFS should have been investigated decades ago. Throughout human history viral infections have claimed higher percentages of the population than in modern history. It might be possible that thanks to the advances in modern medicine, we might have higher survival rates after an infection, but in a way perhaps we have "cheated" death and now we have to live with the consequences of having survived past our prime. Anyway, I think the most important thing is to support the long haulers and ensure they are not shunned the way CFS patients were. The long hauler community should find support within the CFS community. We need to unite.
anyone suffering vision problems post covid infection ?
I am ! But im Post vaccine....
Hello ...can you tell me what are the solución ?? I m with long COVID since 8 months ...
I'm also in lc
Have either of you tried reducing your exposition to endocrine disruptors, the time it takes for your endocrine system to regain control of your immune system?
I like the approach of Becky. So you folks are making great progress as a loose team but you need to speed your efforts up not slow down with long trials. Many are sick and have now present support from Primary Care. You have presented tools that can be used now to establish DSM for long Covid and thus get help from the health care system for all the millions of disabled. Some urgency please?
@@RockStar-lk2zz Might I recommend Google Translate?
@@davidmoorman731 I get what you're trying to say but how can you rush something that has no known longevity and may just resolve naturally in some while dragging on (for years?) in others.
If SARS COV2 better replicate at low tissue temperature (at TWiV Nr 659 at min29 Christian Drosten indicate that)may be low body temperature increase viral replication and persistent replication?
That would be an interesting premise to pursue, as both my DIL and I have thyroid conditions, and during COVID our temps dropped rather than resulting in fever, and we were the sickest ones in our cohort. I would be very interested in any follow-up to this ...
@@carolpetersen635 Low body temperature not only increase SARS COV2 replication (theoreticaly - after data from TWiV 659 at min29) but also I see at dropp of perifereal blood ,from patients after SARS COV2 infection,agglutination at low temperature.
At microscop I see erytrocyte aggregation like coin rolls.
Theoreticaly that can induce increasing blood viscousity at relative low temperature.
To avoid that, may be acetylcysteine can be used
Please be careful with Hyper B oxygen used on already highly stressed low count mytocondria. More damage to existing mytocondria is possible. Effort to rebuild populations of depleted mytocondria should be investigated. Your analytical equipment can show this right Becky? That is the low active level of Mytocondria associates with fatigue and less fatigue as populations are improved.
Many people with so called Long COVID are really suffering from Chronic Fatigue Syndrome and it’s disregulating effects on your parasympathetic and sympathetic systems. High inflammatory effects cause damage to your adrenals and thyroid both which help regulate our autoimmune systems. Without detoxification techniques and replenishment of vital minerals, vitamins and grandulars to rebuild the endocrine and autonomic nervous systems these people do very poorly. Main stream medicine is focused on all the wrong markers and are sending these patients to neurologists and rheumatologists who are using dirty drugs to treat symptoms while ignoring the underlying causes.
Lots of naturopathic things can be done to effectively treat these patients without using drugs.
If ,,low temperature agglutinine,, occur oxigenotherapy must use more warmed oxigen mix.
If blood viscousity increase , theoreticaly acetylcysteine ( NAC,ACC)can be used.?
Suppose that ,,low temperature agglutinine,,occur after SARS COV2 infection, like after mycoplasmatic pneumonia ,and induce capillary subobstruction at low temperature.
There is no recovery has been found. So title is misleading.
Before been released from infected hyjaked cell coronaviruses catch a lypidic part of hyjaked cell membrane to built viral envelope.
Theoretically some cross reacting antybody against viral envelope can cross react with cell membrane receptors.
That can explain why I see erytrocyte aggregation like coin rolls at low temperature.
If at periferial circulation blood temperature decrease,that can increase blood viscousity and cappilary subobstruction.(?)
Headache/migraines, brain fog, depression/anxiety, nausea, vomiting, diarrhea, LOSS OF SMELL AND TASTE, coughing, tachycardia/POTs, chest pain, fatigue, seizures/tremors, vision disturbances, palsies, tinnitus, shortness of breath, muscle and joint aches, skin rash, immune cell activation, changes to bone marrow and white blood cells, changes in menstruation, lung scarring/coughing, atrophy of saliva glands leading to sore/dry throat, numbness, tingling, nerve pain, hair loss...
= 5mm radiation exposure symptoms
= “Long Covid” symptoms
All this and more could be yours for just a few maskless rides on public transport..!
sounds very simular to chronic fatigue syndrome, its just not fatigue that we suffer with it. thats why its called a syndrome because of so many other factors that plague us besides fatigue. But alas no help for us.,have waited 30 yrs myself, many others the same.
@@hebejeebee The masking is nothing more than political theatrics intended to scare more into jabbing up.
@@safeeffective385 Yes of course it is. That would be why I caught Covid after attending an unmasked event....
Many years ago surgeons scoffed at the idea that they should not be allowed to smoke when doing surgery or even wash before... And I'm sure you'd be happy to have an operation done by unmasked medical staff..
@@safeeffective385 Erm I wasn't vaccinated so hey, how about that!
What happens if you sit opposite someone with a cold and they sneeze? A. You risk catching it or B. Nothing cos colds are just made up by big pharma to sell remedies?
Would you travel to am African country without getting vaccinated against the serious diseases that can actually kill you or are they just all part the Dane theatre too?
You never responded about the surgery question. Masked or unmasked medical staff? How lucky do you feel...?
Sounds like vaccine injuries