Gez you have consistently maintained the light that you ignited for so many as we all navigate our way towards the end of the tunnel. Thank you so much!
Great to see you receiving well deserved acknowledgement for your incredible contributions to moving the needle forward for so many people, Gez. This isn't limited to PASC - the entire ME/CFS/Fibro/Chronic Lyme community is finally being recognized by mainstream docs and you have been a big part of this growing awareness.
Not to mention the many of us with other sorts of autoimmune diseases. Every little bit of anti inflammatory info is a boon to. all who listen, learn, research more. Gez is lifting all of our boats
Thank you, Gez! I hope you didn't crash too hard after this conference. Between the travel and the panel alone, you've more than earned a good rest! Hopefully you've made some more contacts that will utilize not only your personal experience, but also your connection to us in the longhaul community.
Gez I remember being so comforted by your videos in the fall of 2020. So amazing that you were able to do all of that while being ill. Thanks for all that you do.
Thank you so much! Having just come from a dismissive doctor’s phone call, it was incredibly reassuring to hear of the steps others are trying to take to unlock the mystery of what many are suffering from. This channel has brought me peace in the waiting and steps to attempt so many times! Thanks again!
Thank you all! So pleased to see a group of our champions of truth and of reducing human suffering discussing the issues and findings in public. I'm proud of you Gez. You represented all of us today on the panel.
Gez,thank you. I've been following you for a long-haul time. Even before I got Covid19 last Aug. 😪 It's the fatigue physical & mental that is destroying my life. God bless you ❤️.
Thank you, Gez. It’s been a pleasure to be in this shi*** situation with you! When I’m down or I have a flare-up with the symptoms, I always watch your videos. I have been suffering from an extreme flare-up in the last few days. Seems like I developed M.E. Honestly, I don’t see the difference between Post-Covid and M.E at the moment in my case. 13 months in this nonsense. I can’t work. I can’t do mental or physical activities without having a flare-up in symptoms. These symptoms always appear 24-48h later. Devastating disease. As I said, you have been saving the lives of people with your work! Thanks again!! Take care!
I really enjoyed this panel discussion and look forward to seeing more, and was especially proud of you being there, Gez. Your hard work on everyone's behalf is so appreciated!
I've had pretty severe ME/CFS, Lyme, autoimmune conditions for over a decade. I just had my consult with Dr Patterson and start my meds tomorrow! I'm thankful for the awareness that LC had brought to debilitating chronic illnesses like ME/CFS. it's taken everything from me and I'm hoping this treatment will help me and so many of us. Keep fighting guys, you've got an army behind you and fighting with you🙏💙
@@beckhaut1 hey, well its going slow haha. So I started on pravastatin and Maraviroc. I already deal with insomnia but my insomnia got even worse on the meds pretty quickly, so I figured out the pravastatin makes it worse. I deal with worse insomnia during hormone changes during the month and since statins stop your liver from producing cholesterol, and cholesterol makes pregnenolone. And pregnenolone converts into Estrogen, Testosterone, Cortisol and a few others, I think my natural dips in hormones PLUS the decrease id say in hormones due to the statins made my insomnia much worse. That's my best guess because from what I've seen statins don't directly mess with melatonin like some things can. Soooo, I'm now slowly increasing Maraviroc again, by itself. I've taken it for a little over a week and am up to 3/4 of a pill once a day. I'm so sensitive to things, so I figured wiser to go slow with these meds. I don't feel any better and have had no side effects from the Maraviroc so far. I wouldn't expect to see any improvement until Im on a good dose for months. I'm still hopeful but just more obstacles to figure out because I sure can't function on a couple hours of sleep!!😄 are you doing the treatment too?
We need more national news coverage and pressure to states/ congress to help these patients. I am an MD and would be more than happy to voice my opinion. Our healthcare system is an absolute joke and no physicians understand the debilitating hour by hour affects. Especially the gut inflammation which creates a whole host of issues. I would be happy to be a spokes person and help you in anyway I can.
Thank you, just doesn't seem to convey my gratitude for your dedication and all the research along with the man hours that you clearly put into your podcasts . Please know that you and your work are/is keeping many of us from going under - no pressure there then 😄. THANK YOU 🙏
Thank you so very much, sir, for posting this for encouraging to know that others can relate, and that these things are for real appreciate you all very very much
I’m so thankful I found you. This discussion is great. None of my “specialists” know anything. So disheartening. Glad you are doing what you do. Keep it up! ❤️
Great video. I started the Patterson protocol today for my post vaxx long haul. Hopefully the mainstream medical community will begin to recognize the issues with post COVID and post vaxx patients.
@@alexc7857 Still titrating up on a couple of the meds and I was unable to continue taking Maraviroc to due liver inflammation. That said, I am doing better. Brain clarity is much better and some of my visual issues are better as well. Hopefully this trend continues.
Fantastic again, Gez! I'm being treated for lyme but was perceiving long covid for more than a year beforehand. I'm still not sure what I'm dealing with, so this intersection discussion is greatly appreciated! Congrats on being recognized for being a pioneer here, and thank you for continuing your work on it all. Cheers!
I made a comment a while back on experimenting with water fasting to combat my Long Covid. I was suffering with debilitating fatigue and PEM that would leave me unable to do the laundry. Breathlessness, the lot. Life felt on hold for the best part of a year. I did a 3 day water fast (with salt/electrolytes), and can now happily say my condition is cured. Resolved 95% within a week of the fast, brief minor recurrence of very mild fatigue for a few days here and there, now 100% gone. Just a case of rebuilding strength and cardio now. Can do full strength training sessions as per pre Covid, no PEM to speak of. I’d highly recommend people to try this, with proper research and advice from a doctor. Any questions, I’ll do my best to help. May everyone recover as fast as possible. Cheers 🙂
Thanks for the tips, I have been doing intermittent fasting and not eating for 16 hours and slowly have felt better. How did you go about doing the water fast? I know the body really cleans out your system when you fast but I am scared to do A water fast because I barely have any energy throughout the day, and a whole day of no food seems very tough. I’ve been dealing with this long Covid for about nine months now, reply would be awesome.
@@DA-nk1yy Hi There 🙂 Yes, a prolonged fast can be quite challenging, but a lot of it is in your head. Starting it is the hardest! I would say, if you haven't already tried one, first do a one day fast, e.g go to bed after dinner, fast the whole of the following day, and don't eat till breakfast. That will give you the experience you need to do a longer fast. From the literature, it seems like 3 days (72hrs) is the sweet spot for max benefits with fewer risks.
@@DA-nk1yy I knew that fasting might help when I was struggling with Long Covid also, and I kept putting it off as my body felt so drained and I didn't want to 'add another stressor' by restricting my diet. Now I just wish I'd done it sooner. As long as you take salt and electrolytes, and refeed very slowly at the end of the fast, you should be fine. That said, check with a doctor if you have any other serious medical issues, and make sure you get the dosages right for your salts. Easiest to do it over a weekend or in a safe place where you can relax through it. You might get a bit cranky in the first day or so!
@@DA-nk1yy So short answer on how to do it is: get your essential electrolytes ready ( potassium, salt, magnesium, calcium) understand the right dosage by reading Rob Wolf's article on fasting and electrolyte dosage online (do a quick google search for this. Be particularly careful not to overdose on potassium!), and then set aside 3 days in a comfortable place to fast, ideally not when you are working. Do a 1 day fast a few weeks beforehand if you have no experience with it to prepare yourself. Drink lots of water with regular, small amounts of your electrolytes. Take gentle walks and relax. Don't stuff yourself at the end of the fast or you can shock your body; slow,gentle reintroduction of small amounts of low sugar foods.That's it! I really hope this helps you recover 🙂
I've not got the energy to watch this all the way through right now. But I wanted to say well done on getting out there and sitting on a panel discussion. How was PEM for you afterwards? I hope you are doing ok. Look forward to watching this over the next couple of days
I replayed sections many times to let it “sink in”. I I’m one of those medicine has abused and neglected since the early 80’s. I had at least three big viral infection, and then a tick bite with bulls-eye that wasn’t properly treated, (too little too late due to the Lyme ignorance of the time) and 10 years of worsening health later, was diagnosed with Fibro. Then Fibro/ME/CFS, eventually disabling me from work, or a normal life. At the beginning of 2020 I sat with my mother in law while she was in the hospital (three extremely hard days for me) and three weeks later I suddenly came down with severe Pnuemonia that when I put my hand on my forehead I would start to see stars-black out in seconds. Also, I’d break out in sweat and would throw up, if I didn’t drop my hand immediately. I could not raise my hand to wash my hair and even getting into the shower made my heart rate go to 160 and the spinning stars would come so I’d have to get out and lie down. I went to the ER and X-rays showed collapsed right lung/severe pneumonia. But they sent me home with meds for pneumonia. I lost taste and smell, could only move once in the morning and once at night to the bathroom. If it was only me I would not have eaten or drank at all. But my daughter and her boyfriend got soup, water, for me and all the holistic items I could think of that might help, and it was the Earth Fare Bronchial Syrup every 4 hours that kept me from going back to the ER! When the dosing time was up, it was like a 10 year old was sitting on my chest. The syrup helped me breathe easier if I stayed still. My body hurts 24/7 anyway, but my throat pain was awful. I recovered from the pneumonia but my chronic symptoms were worse than ever with some additions, especially the neurological pain, as my whole left side was affected, as if I had a stroke, with painful neuropathy and numbness that hurts, I know that sounds like and oxymoron, but if your foot was falling asleep but then someone sat a dresser on it before it was completely numb, that is how my left side felt. With Covid blowing up right as I had this, but no testing available, and the town I was in at the time being a very international/tourist town, I believe it was Covid. And that I was lucky with all my risks, that I didn’t have to be in the hospital and ventilated. I’ve been hospitalized many times feeling LESS ill, but for whatever reason that time, I’m glad they sent me home. But my daughter became very I’ll right after me and her boyfriend less so. She also depended on the syrup and my nebulizer to breath, as I did. It wasn’t long until we were in National lockdown, and ever since we have stayed isolated and have not gone to the doctors where the “sick people go” just in case it wasn’t Covid we had and might contract it. The doctors never helped me with my chronic pain, devastating fatigue, or anything related anyway. Any meds they ever gave me except for pneumonia always made me worse. So not going was a relief because it was too hard, anyway, and always ended with me being either furious, harmed by malpractice, or hopelessly sad because they just are humiliating and hurtful to your souls, they think because they don’t understand a “cookie-cutter, easily explained problem, why then, you must be just “somatic”! Ughhh. Fast forward to Feb 1, my daughter became very tired and with a bad sore throat, by day three she couldn’t talk. She Went to test and was positive, unfortunately, and the worst part is she suffered so greatly, bad enough normally to be in the hospital, but still able to breathe, thank God. She was still testing positive three weeks later and no let up until the fourth week and finally negative, with the worst symptoms letting up gradually, except some never left, and now has several Long Covid symptoms and can’t work due to her mind being Swiss cheese, because her work is in financial investments and has lots of laws and quick thinking involved, and she can’t stay out of the bathroom. I had been watching you, Gez, very hopefully and appreciatively since you started, but now I watch for my Baby, I need her to NOT live my life of pain and suffering every dang day, and I am trying to find answers. We just started on the antihistamines two days ago. I’d really like to try things you guys talked about on the panel, but some need a doctor. I made a teledoc appt with my newly assigned doctor but the first time they can see me is weeks away from now. And I highly doubt they will be updated on the latest knowledge, but I’m going to try. I so wish I could see the doctors on your panel that know about chronic auto immune issues and Covid-Long Covid! Those people are Blessed to have someone trying for them and believing them. We can’t THANK YOU enough for getting the attention soooo needed for All of us, and I pray for you and Dr Asad’s complete recovery every day!
Thank you for participating and getting this information to us! I could have listened to this panel for many more hours. :) My test from Dr Patterson is coming in today. I’m looking forward to seeing what turns up.
Thanks Gez. I too had CFS/ME post -viral illness after glandular fever at a similar age to you and now LC. I am sorry to hear that you are still struggling and with new post-Omicron issues too. Have you seen the talk by Dr Anthony Leonardi "The T Cells are not alright". On Kashif Pirzada's TH-cam Channel. Worth a watch. Also might give some other possible clues to help us Long Haulers in the form of exercises for the thymus to help with increasing naive t cells. I did read some research that found people that cycle in their older years produced more t cells and had reduced atrophy of their thymus. For us Long Haulers who cannot do much exercises maybe the qi gong/yoga exercise thymus tap/thump might help get our thymus and t cells going again.
@@TheBushRanger. 10 years before I felt back to the consistent energy levels I had pre glandular fever, but I was able to work and exercise long before that just had relapses along the way which became less frequent and less severe. Probably lasted longer because I didn't know so kept trying to push through at first and the doctors were no help. Once I read and understood more I modified my behaviour to pace better, nutrition and exercise etc.. to help recovery.
2 years in for me. Its been a nightmare. Curious about your thoughts regarding oxygen supplementation as tissue is deprived of oxygen. And thank you so much for everything you are doing. I'm so grateful for all the information you are sharing.
1.5 year for me and I still can't smell and taste properly, it's nightmare for me too. I see only bad news because if it's brain damage it won't reverse complately...
May I ask what you mean by tissue deprived of oxygen? I've been having muscle pains/spasms for 3 months post Covid and no doctor can figure out what's wrong. I took the Incell panel and have 3 markers that are high. sCD40L and VEGF and IL-8. Were you experiencing any of this? Also, what is HBOT? Thanks
This was amazing 👏 thanks for all you do. I had covid March 2020 after just finishing treatment for Lyme disease. I had long haulers covid for 18 months. I was finally feeling better but got reinfected 2weeks ago. Scared I'll have to go through long haul again.
Thank you, thank you!! You were right here in NY!! So close by... Gez I keep you in my prayers man. I thought by now someone could have cured you and the rest could follow. So we carry on. It was great to see Lyme in the mix now!! I’ve had that since 1999. Cov screwed me up w my Lyme. I’m coming on a year now. My memory is quite bad. Headaches much less. Fatigue much the same. Huge love to you and this awesome community you have created. You are so appreciated and loved ❤️
Thank you Gez, it is the most informative channel for my particular circumstances, with post viral, autoimmune, Lyme information combined with up to-date understanding of long covid. It really helps and gives more directions to explore. Got an idea how to explain new series of symptoms, which I never had before in many years of flare ups, such as events of low blood pressure.
I have been suffering with PASC for 24 months…and it’s quite exhausting to don’t see an end to it. What a fantastic panel!! You have clarified so many questions I had on my own personal research journey to be able to understand what’s happening in our bodies for PASC to last for such a long time.. thank you all!! 🤲💚 Thank you so much for sharing and being there for all of us Gez !! 🙏 I wish you the best!! 🍀🤞
Thanks for the work. Hopefully we get a cure befire its to late for me. 2 years now of this crap. Im hurting, tired, and brain fog 2 years. I cant believe i didnt loose my job yet.
Thank you again and again Gez, for your valuable efforts since the beginning of the pandemic, for your research, for your vids and again for uploading this. Bless you.
Well done Gez and thank you so much for you good work. Now I have to say I’m going crazy, knowing that there are doctors who are helping lang haulers and I am still only getting blank eyes from doctors here in The Netherlands. "We don’t know, what causes it”., Hearing Dr Paterson anDr. Horowitz say “We know what causes fatigue, know what causes brain fog, we know what causes joint and muscle pain” And naming treatments to help patients, honestly makes me cry. I have been suffering greatly for over two years. I need help badly. But am unable to find any.
My story, 35 years old. I had dizziness for 2-3 months. Weakness and tingling in the left leg and vision problems. Extreme insomnia that still lasts as well as episodes of moderate anxiety. I did an MRI/MRA. Everything is ok about the brain. There is hope for all of us.
Thanks very much for posting this. Its really helpful to know that medics are trying to find a cure for this nightmare condition. Two years on I still can't live anything like the normal healthy active lifestyle I had previously. We sufferers need hope.
People are realizing the government doesn’t really care enough to listen. And we feel The same with many doctors. It’s good to see doctors pay attention.
My basic conclusion from this video is that there are two diagnostic tools that will help someone identify which flavour of long COVID they have: - cytokine/immunology panel (blood) - gut microbiome analysis (stool) Does anyone know how to get these tests in the UK? How was your experience? did you learn anything? Thanks again Gez 🙇
@@robertharris4661 thanks. Glad to hear you were able to get it, and get some clues at least. Sorry that there's no doctors at the moment though. Keep going; we'll crack this.
5 weeks after testing negative from covid my cough got worse, experiencing fatigue, random stomach pains, body pain and weakness, on and off sore throat and when I got home from work I feel like I'm having a fever, but upon checking my temperature it is normal. Is this long covid?
Very informative. Now what , how do we get better? What and how long before any drugs help coming for us? You are doing GREAT on representing long covid community
I have post COVID syndrome, my Doctor's will not even discuss any of this. Only willing to say it is inflammatory issue which does not help me. I am angry. They will not listen to this or others related to this. Seem to have No Interest at all. I hate to think this, but I wish they had it.
Take the supplement stack recommended in one of Gez's films, and add NAC, melatonin and antihistamine. If already doing so, go on low histamine diet and cut out grains.
Hey Gez, thanks for this, very interesting conference! When will documents related to this conference be published? Or if they’re available already, where can they be found?
Thanks for all your videos Gez. This was kindve double Dutch for me but still very informative. I follow you on Twitter and have just recently discovered your videos. Thank you! May I ask, it took a year for the fatigue to disappear in regards to your glandular fever, did you also suffer PEM? I’ve long hauled 25 months, suffer horrific fatigue & PEM after my booster in December 21.
Gez, you did really well making the flight and participating, especially with jet lag. I hope that it didn't knock the stuffing out of you, and you got home ok.
I really enjoyed seeing some aspects of the gut micro biome being discussed in this panel because it’s a huge part of what I am dealing with my long haul symptoms. If other viewers of your channel would like to raise their glutathione levels they need to take 200mg / daily of N-acetyl-cysteine which they can get directly from supplements. It’s used in healing crohns IBD type chronic issues that’s how I know about it! Xoxo Leah
Excellent video!! Thank you all for your hard work in trying to help us!! I'm still trying to find a doctor to help me, it's not easy to find a doctor that believes in long covid patients.
Gez, I would like to ask you, if I may, for a link to the figure you cited that only 22% of Long Haulers tested positive for antibodies. I would love to use that figure in petitioning my infectious disease specialist to rethink his rule-out of covid after my negative antibody test 90+ days post-acute illness, which has barred me from all long haul studies and clinics. TIA!
It’s from my own patient led research - I discuss it here: th-cam.com/video/8pHfsmX467s/w-d-xo.html You may also find these links helpful! twitter.com/ahandvanish/status/1432411002688184320?s=21 twitter.com/ahandvanish/status/1490500134010081281?s=21
Thanks Gez and nice work providing the much needed patient perspective. I am wondering if there was any discussion or awareness of Dr. Wentzel’s work around the Kynurenine pathway and Nicotinic Acid. Do you still see that approach as a viable therapeutic option? Thanks! Joe
I wanted to mention that I've been watching Med Cram TH-cam videos, especially the ones about Melatonin, infrared sunlight and its healing properties. I've started taking Melatonin with good effect for the exhaustion, and I've been going out in the later afternoon sun to help restore my cellular metabolism. I've also been watching the 'Low Carb Down Under' channel, with Dr Paul Mason and Peter Brukner who discuss the effects of sugar on inflammation, and how low consumption of sugar, low carbohydrate, and therefore low blood insulin, causes a reduction in inflammation. I've been following this to improve my cognitive function, heal the brain injury, and reduce the brain fog. It's very interesting and the doctors discuss the real research findings, busting the propaganda that we've been told for years about "healthy eating", the fake food pyramid, etc.
What now after 1 week of taking it brought final full restoration to pre-COVID status for energy/health/blood pressure/breathing (except having less fitness from 7 months of no sports) was Vesugen (Russian peptide bioregulator that regenerates blood vessels, especially capillaries).
Thank you for posting this. There is so much information in this video. The gut connection discussion has really hit home with me. I have extreme gut issues and can feel that is where my anxiety comes from. Gez, are you taking anything for your gut? Probiotic that is working for anyone?
I had 6 months barely able to eat, which triggered me to try a ‘reset’, which I did with a version of 5:2 fasting. As a well person, and an athlete, I’d never been able to fast at all, but my nervous system was so wrecked/ ground to a halt, that I wasn’t even hungry. This almost immediately fixed that aspect (within 2 weeks was eating again) alongside brewing my own kombucha all that summer and drinking a small glass before every meal. Probiotic drinks didn’t help, just gave me severe gas and gut pain. A year later, I suffered almost 2 months of nausea after the booster jab, along with worse POTS and the return of Covid toe! I didn’t have much energy to fix it this time but managed to do it by attempting a 2 day fast, after seeing someone on Twitter say they had to do 72hrs to reset themselves. I noticed, like many people, that by 24hrs fasting, my gut pain had gone and I felt the best I’ve felt for a long time. It’s not totally perfect now, but I just had my Biomesight gut biome LC study returned-confirming I’m doing the right things and my gut is 89% ‘good’. A result after having my whole system deconstructed for the last 23 months! I have mentioned to several doctors that this is the only thing I have been able to fix-if only fasting could help dysautonomia, lung damage, brain damage, tissue hypoxia etc etc
@@browneyedgirlFL67 I take MegaSpore through Microbiome Labs. It's the first probiotic I've taken that doesn't leave me horribly bloated. A doctor who had experience with long Covid suggested it to me.
Awesome conference, thank you! Now could Gez please translate into everyday language for the rest of us? No joke! These are brilliant researchers but the subject is dense.
these injections would cure deficiencies of these vitamins at least short term,. It is certainly no a cure all for long covid as many are not deficien t.
@@fabulousdoc curing B12 deficiency and keeping people at an optimal level would enable the body to repair itself better, also what is classed as B12D optimal level for one person isn't the same for somebody else, the more damage you have in your body the more B12 you're going need for DNA synthesis. NICE guidelines are to only test for B12 if macrocytosis is present is leaving many people with B12 deficiency, all the symptoms that you're seeing in long covid come before the anemia they are looking for? Correct me if I'm wrong I believe we are seeing higher homocysteine levels in people with long covid this can be a red flag for B12D ? Sorry I am dyslexic and don't write well.
It seems like a Q&A session was about to take place. I’m wondering if that content is available? Also, I’m hearing more and more patient testimonials about stem cell therapies helping them. InCellDx is adamantly against them. I’m curious about what you’ve heard Gez?
My own experience I am 70 yrs old but in previous very good health no medical probs. Very active, vegetarian non smoker, former nurse. I took every precaution in the first year - I live alone so it was easy and then went for the vaccines. Vacc 1 (Feb 2021)made me feel like I had the flu for about 2 weeks. The medical centre was super careful about social distancing and keeping patients apart. Very reassuring. Vacc 2 (May 2021) was a nightmare. The medical practice allowed up to 50 people in the waiting room and some had no masks. I think I caught covid on the same day as I had vacc 2. Almost overnight I was bed-ridden. I did not have a cough or a temperature so I just assumed it was a reaction to the vacc. I had all over body pain, bowel problems, brain fog, blurred vision and problems sleeping. After a few months I realised my sense of smell was affected - could smell body fluids on people, and became hypersensitive to smells of all kinds. It was truly dreadful. Couldn't find anything about it online so assumed it was all in my mind. Booster vacc in November 2021 - I wish I had never had. There was a huge crowd in the medical centre and I think I caught Omicron from these people. Fatigue, nightmares, poor memory, pain all over, brain fog, sleepless, depressed, unable to follow any sort of normal life. Still feel like this. Now I have developed eye problems and such muscle pain I can hardly walk on bad days. My question to any expert is: has anyone researched the effects of having the vaccines and catching the virus at the same time? I now feel I am old and disabled and am going to lose my sight - which is not how I assumed the end of my life would be.
After watching this panel i believe both my vaccine 1 and delayed vaccine 2 caused a cytokine storm of reactivation of some virus Ebv, Covid, mono, M.E., or lyme/tick borne disease/virus.. is it posible that is what happened in your case?
@@margaretskinner1416 I think you could be right. I went from one day being fine to total physical meltdown in 24hours. I once had a post viral episode that I believe gave me fibromyalgia but back then (2000) my GP didn't believe the fibro existed and sent me for Alzheimer's testing (!!!) then I was diagnosed as clinical depression because there didn;t seem to be any other solution to my extreme fatigue and chronic pain - 'all in the mind' sort of thing. My first two vacs were Astra Z then the booster was Pfizer - I often wonder if this was a good plan. And when I went for all 3 I was asked 'Have you tested positive in the past ten days?' I assumed it was asked to protect the nurses and the crowd in the waiting room. This now seems a pertinent point. I may have had symptomless covid so I never went for testing. I felt well at both times when I turned up. If I caught it in the waiting area for the 2nd and 3rd vaccs the covid symptoms were lost in the physical reaction I was experiencing as I assumed it was my idiosyncratic response that was making me ill but that it would pass. I did seem to recover from 1 and 2 but the booster has been a whole other story. Did you have a booster? Have you recovered?? There is so much more to this than we yet know, and now it feels like the topic of covid has been dropped totally. There seems little will to accept long covid or other factors and goodness knows how we will be able to pay for potential treatments for long haul. God luck with your own case.
Feel like I am just dying a slow and painful death. Nothing seems to work and the pain and spasms wont go away. Keep fearing without help some day soon will be my last. Not sure if these things are fatal or not but sure could use some help
Thank you Gez! Without your work (when you will be feeling as rubbish as most of us!) there would be an awful lot of us whose mental health, as well as their physical health, would be much worse.
I appreciate and learn from all your sessions on various aspects of this debilitating hell. Would it be possible to recap in layman's terms. Targeting specific areas for treatment on a cellular level is what I WISH FOR.
They have to understand the science of what is going on for each symptom...and later the drug companies make rx. But they have mentioned several OTC supplements like ALA, Glutathione, NAC (google them)....and they arent necessarily a cure but they help the body do what things are going awry. They may help or may not help...just depends on each person. Since this vid is 2 yrs old, you have probably figured some out.
Gez, would you consider doing a film on effects of extreme diets that have potentially helped people with MECFS and in turn may help us? Things like veganism, paleo, keto, carnivore, etc?
Probably a long shot, I got diagnosed POTS + low BPM ( heart rate 40 sleep ) all post covid since December 2021. So I am fairly new to all this information. Does anyone here had/have same problems? Greetings from Vietnam.
Thank you for information ..but who can give us proper medication...sufferring from last 12 months and have swollon lymphnodes in neck and armpits from last 12 months.
Did you happen to get swollen lymph nodes after vaccination? I had them painfully bad for about a month after Pfizer1 and SEVEN months of h.e.double hockey sticks after Pfizer2. From under my arms and on my chest, mostly left side where I got the shot. I also tasted an “I.V.” taste/smell after both. The first one made my chin feel like it had a weight hanging from it for about an hour along with the taste/smell.
I had swollen lymphnodes due to Covid and before vaccination. Vaccination make more worst..and doesnot improve till then.. couldnt lift even 100g weight..painful both hands and neck all the time..cant sleep on left side...any help? please Or medication?😥😥
Thank you so much for your valuable work. Despite it's very complex and not very clear in my mind, Your videos are the ones that answers best to post covid issues. I desperately was looking for answers about post covid hypoglycemia, under 60 (every morning after some efforts). I still don't understand what could be the real issue in the body to lower glucose? emboly ? (link with aerobic and anerobic paths). I'll focus more on all your videos and review "the energy budget & reactions for ATP production" . But thank you, I know at least where to dig more.
Excellent video from Gez as usual. I've taken the Cytokine 14 panel and have high levels of VEGF and sCD40L and IL-8 is near above level. I've been having excrutiating muscle pains and spams for 3 months now. My C Reactive protein level was 15.3 at one point but down to 4.4 now. I'm having a problem finding a doctor that will work with me on the video consultation and pretty much just tossed the lab results aside since they don't know what they're looking at. I need help soon. I'm not sure if it's dysautonomia or what but feels just like my muscles are hypoxic and not getting oxygen or nutrients or something. So much pain every day. The only thing he agreed to give me was H1 antihistamine (hydroxyzine) which seems to help somewhat.
Gez you have consistently maintained the light that you ignited for so many as we all navigate our way towards the end of the tunnel. Thank you so much!
Thank you Aine!
Thank you very much, Gez! For not letting us down in this long, hard time! 🙏❤
Great to see you receiving well deserved acknowledgement for your incredible contributions to moving the needle forward for so many people, Gez. This isn't limited to PASC - the entire ME/CFS/Fibro/Chronic Lyme community is finally being recognized by mainstream docs and you have been a big part of this growing awareness.
Not to mention the many of us with other sorts of autoimmune diseases. Every little bit of anti inflammatory info is a boon to. all who listen, learn, research more. Gez is lifting all of our boats
Bless you, Gez, and the rest of the panel who continue unraveling this terrible puzzle!
Thank you, Gez! I hope you didn't crash too hard after this conference. Between the travel and the panel alone, you've more than earned a good rest! Hopefully you've made some more contacts that will utilize not only your personal experience, but also your connection to us in the longhaul community.
Just about survived the jet lag but it was a bit rough!
Gez I remember being so comforted by your videos in the fall of 2020. So amazing that you were able to do all of that while being ill. Thanks for all that you do.
Thankyou Gez, following from your start in 2020, you have and are still helping so many . Forever grateful .
Thank you so much! Having just come from a dismissive doctor’s phone call, it was incredibly reassuring to hear of the steps others are trying to take to unlock the mystery of what many are suffering from. This channel has brought me peace in the waiting and steps to attempt so many times! Thanks again!
My doctor is the same way
Thank you Gez. You are a real gift to this community.
As per Anamaria - your continued and dedicated focus is a boon to the Long Haul community. Genuine thanks.
Thank you Jag!
Keep the information flowing. The answers are coming step by step. 👍
They are indeed!
Thank you all!
So pleased to see a group of our champions of truth and of reducing human suffering discussing the issues and findings in public.
I'm proud of you Gez.
You represented all of us today on the panel.
Gez,thank you. I've been following you for a long-haul time. Even before I got Covid19 last Aug. 😪 It's the fatigue physical & mental that is destroying my life. God bless you ❤️.
This is such a wealth of knowledge. Thank you all for doing this!
Thank you, Gez. It’s been a pleasure to be in this shi*** situation with you! When I’m down or I have a flare-up with the symptoms, I always watch your videos. I have been suffering from an extreme flare-up in the last few days. Seems like I developed M.E. Honestly, I don’t see the difference between Post-Covid and M.E at the moment in my case. 13 months in this nonsense. I can’t work. I can’t do mental or physical activities without having a flare-up in symptoms. These symptoms always appear 24-48h later. Devastating disease.
As I said, you have been saving the lives of people with your work!
Thanks again!!
Take care!
@@Beekind799 how do you increase glutathione levels? Just supplement?
Can we take a “bio available reduced L-Glutathione” version?
Look after yourself Viktor! And wishing you a speedy recovery.
I really enjoyed this panel discussion and look forward to seeing more, and was especially proud of you being there, Gez. Your hard work on everyone's behalf is so appreciated!
Thank you Erika! Sorry for the slow reply
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Thank you so much for being a part of this and posting this for us to see!! May the Lord bless you!!
I've had pretty severe ME/CFS, Lyme, autoimmune conditions for over a decade. I just had my consult with Dr Patterson and start my meds tomorrow! I'm thankful for the awareness that LC had brought to debilitating chronic illnesses like ME/CFS. it's taken everything from me and I'm hoping this treatment will help me and so many of us. Keep fighting guys, you've got an army behind you and fighting with you🙏💙
How is your treatment going?
@@beckhaut1 hey, well its going slow haha. So I started on pravastatin and Maraviroc. I already deal with insomnia but my insomnia got even worse on the meds pretty quickly, so I figured out the pravastatin makes it worse. I deal with worse insomnia during hormone changes during the month and since statins stop your liver from producing cholesterol, and cholesterol makes pregnenolone. And pregnenolone converts into Estrogen, Testosterone, Cortisol and a few others, I think my natural dips in hormones PLUS the decrease id say in hormones due to the statins made my insomnia much worse. That's my best guess because from what I've seen statins don't directly mess with melatonin like some things can. Soooo, I'm now slowly increasing Maraviroc again, by itself. I've taken it for a little over a week and am up to 3/4 of a pill once a day. I'm so sensitive to things, so I figured wiser to go slow with these meds. I don't feel any better and have had no side effects from the Maraviroc so far. I wouldn't expect to see any improvement until Im on a good dose for months. I'm still hopeful but just more obstacles to figure out because I sure can't function on a couple hours of sleep!!😄 are you doing the treatment too?
Can’t wait to watch! Have learned so much from your channel. Thank you!
Thank you Aimee!
We need more national news coverage and pressure to states/ congress to help these patients. I am an MD and would be more than happy to voice my opinion. Our healthcare system is an absolute joke and no physicians understand the debilitating hour by hour affects. Especially the gut inflammation which creates a whole host of issues. I would be happy to be a spokes person and help you in anyway I can.
Thank you, just doesn't seem to convey my gratitude for your dedication and all the research along with the man hours that you clearly put into your podcasts . Please know that you and your work are/is keeping many of us from going under - no pressure there then 😄. THANK YOU 🙏
Thank you for your support Dee!
Thank you so very much, sir, for posting this for encouraging to know that others can relate, and that these things are for real appreciate you all very very much
You have been such a huge lifeline for me! I cannot thank you enough!
Thank you Angela!
He sure is giving me hope.
I’m so thankful I found you. This discussion is great. None of my “specialists” know anything. So disheartening. Glad you are doing what you do. Keep it up! ❤️
Thank you Susan!
Great video. I started the Patterson protocol today for my post vaxx long haul. Hopefully the mainstream medical community will begin to recognize the issues with post COVID and post vaxx patients.
How is your treatment going? Thanks, hope it is going well.
@@beckhaut1 The meds are kicking my ass. Hopefully it gets better soon.
@@1cavscout160 how is it now?
@@alexc7857 Still titrating up on a couple of the meds and I was unable to continue taking Maraviroc to due liver inflammation. That said, I am doing better. Brain clarity is much better and some of my visual issues are better as well. Hopefully this trend continues.
@@1cavscout160hello, how are you now? Did you recover? Hope so! Thanks
Fantastic again, Gez! I'm being treated for lyme but was perceiving long covid for more than a year beforehand. I'm still not sure what I'm dealing with, so this intersection discussion is greatly appreciated! Congrats on being recognized for being a pioneer here, and thank you for continuing your work on it all. Cheers!
Thank you Daniel! Best of luck in your recovery.
Thank you for all of your efforts in support of those with long covid!
Thanks Chris!
I made a comment a while back on experimenting with water fasting to combat my Long Covid. I was suffering with debilitating fatigue and PEM that would leave me unable to do the laundry. Breathlessness, the lot. Life felt on hold for the best part of a year. I did a 3 day water fast (with salt/electrolytes), and can now happily say my condition is cured. Resolved 95% within a week of the fast, brief minor recurrence of very mild fatigue for a few days here and there, now 100% gone. Just a case of rebuilding strength and cardio now. Can do full strength training sessions as per pre Covid, no PEM to speak of. I’d highly recommend people to try this, with proper research and advice from a doctor. Any questions, I’ll do my best to help. May everyone recover as fast as possible. Cheers 🙂
Thanks for the tips, I have been doing intermittent fasting and not eating for 16 hours and slowly have felt better. How did you go about doing the water fast? I know the body really cleans out your system when you fast but I am scared to do A water fast because I barely have any energy throughout the day, and a whole day of no food seems very tough. I’ve been dealing with this long Covid for about nine months now, reply would be awesome.
@@DA-nk1yy Hi There 🙂 Yes, a prolonged fast can be quite challenging, but a lot of it is in your head. Starting it is the hardest! I would say, if you haven't already tried one, first do a one day fast, e.g go to bed after dinner, fast the whole of the following day, and don't eat till breakfast. That will give you the experience you need to do a longer fast. From the literature, it seems like 3 days (72hrs) is the sweet spot for max benefits with fewer risks.
@@DA-nk1yy I knew that fasting might help when I was struggling with Long Covid also, and I kept putting it off as my body felt so drained and I didn't want to 'add another stressor' by restricting my diet. Now I just wish I'd done it sooner. As long as you take salt and electrolytes, and refeed very slowly at the end of the fast, you should be fine. That said, check with a doctor if you have any other serious medical issues, and make sure you get the dosages right for your salts. Easiest to do it over a weekend or in a safe place where you can relax through it. You might get a bit cranky in the first day or so!
@@DA-nk1yy So short answer on how to do it is: get your essential electrolytes ready ( potassium, salt, magnesium, calcium) understand the right dosage by reading Rob Wolf's article on fasting and electrolyte dosage online (do a quick google search for this. Be particularly careful not to overdose on potassium!), and then set aside 3 days in a comfortable place to fast, ideally not when you are working. Do a 1 day fast a few weeks beforehand if you have no experience with it to prepare yourself. Drink lots of water with regular, small amounts of your electrolytes. Take gentle walks and relax. Don't stuff yourself at the end of the fast or you can shock your body; slow,gentle reintroduction of small amounts of low sugar foods.That's it! I really hope this helps you recover 🙂
@@minituremarvelshello, how are you now? Completely recovered? Hope so for you. Thanks 😊
I've not got the energy to watch this all the way through right now. But I wanted to say well done on getting out there and sitting on a panel discussion. How was PEM for you afterwards? I hope you are doing ok. Look forward to watching this over the next couple of days
PEM wasn’t as bad as i feared!
I replayed sections many times to let it “sink in”. I I’m one of those medicine has abused and neglected since the early 80’s. I had at least three big viral infection, and then a tick bite with bulls-eye that wasn’t properly treated, (too little too late due to the Lyme ignorance of the time) and 10 years of worsening health later, was diagnosed with Fibro. Then Fibro/ME/CFS, eventually disabling me from work, or a normal life. At the beginning of 2020 I sat with my mother in law while she was in the hospital (three extremely hard days for me) and three weeks later I suddenly came down with severe Pnuemonia that when I put my hand on my forehead I would start to see stars-black out in seconds. Also, I’d break out in sweat and would throw up, if I didn’t drop my hand immediately. I could not raise my hand to wash my hair and even getting into the shower made my heart rate go to 160 and the spinning stars would come so I’d have to get out and lie down. I went to the ER and X-rays showed collapsed right lung/severe pneumonia. But they sent me home with meds for pneumonia. I lost taste and smell, could only move once in the morning and once at night to the bathroom. If it was only me I would not have eaten or drank at all. But my daughter and her boyfriend got soup, water, for me and all the holistic items I could think of that might help, and it was the Earth Fare Bronchial Syrup every 4 hours that kept me from going back to the ER! When the dosing time was up, it was like a 10 year old was sitting on my chest. The syrup helped me breathe easier if I stayed still. My body hurts 24/7 anyway, but my throat pain was awful. I recovered from the pneumonia but my chronic symptoms were worse than ever with some additions, especially the neurological pain, as my whole left side was affected, as if I had a stroke, with painful neuropathy and numbness that hurts, I know that sounds like and oxymoron, but if your foot was falling asleep but then someone sat a dresser on it before it was completely numb, that is how my left side felt. With Covid blowing up right as I had this, but no testing available, and the town I was in at the time being a very international/tourist town, I believe it was Covid. And that I was lucky with all my risks, that I didn’t have to be in the hospital and ventilated. I’ve been hospitalized many times feeling LESS ill, but for whatever reason that time, I’m glad they sent me home. But my daughter became very I’ll right after me and her boyfriend less so. She also depended on the syrup and my nebulizer to breath, as I did. It wasn’t long until we were in National lockdown, and ever since we have stayed isolated and have not gone to the doctors where the “sick people go” just in case it wasn’t Covid we had and might contract it. The doctors never helped me with my chronic pain, devastating fatigue, or anything related anyway. Any meds they ever gave me except for pneumonia always made me worse. So not going was a relief because it was too hard, anyway, and always ended with me being either furious, harmed by malpractice, or hopelessly sad because they just are humiliating and hurtful to your souls, they think because they don’t understand a “cookie-cutter, easily explained problem, why then, you must be just “somatic”! Ughhh.
Fast forward to Feb 1, my daughter became very tired and with a bad sore throat, by day three she couldn’t talk. She Went to test and was positive, unfortunately, and the worst part is she suffered so greatly, bad enough normally to be in the hospital, but still able to breathe, thank God. She was still testing positive three weeks later and no let up until the fourth week and finally negative, with the worst symptoms letting up gradually, except some never left, and now has several Long Covid symptoms and can’t work due to her mind being Swiss cheese, because her work is in financial investments and has lots of laws and quick thinking involved, and she can’t stay out of the bathroom. I had been watching you, Gez, very hopefully and appreciatively since you started, but now I watch for my Baby, I need her to NOT live my life of pain and suffering every dang day, and I am trying to find answers. We just started on the antihistamines two days ago. I’d really like to try things you guys talked about on the panel, but some need a doctor. I made a teledoc appt with my newly assigned doctor but the first time they can see me is weeks away from now. And I highly doubt they will be updated on the latest knowledge, but I’m going to try. I so wish I could see the doctors on your panel that know about chronic auto immune issues and Covid-Long Covid! Those people are Blessed to have someone trying for them and believing them.
We can’t THANK YOU enough for getting the attention soooo needed for All of us, and I pray for you and Dr Asad’s complete recovery every day!
This entire video was very fascinating and I wish more covid coverage was this in depth.
Informative and helpful! Thank you for your work and making this accessible to those of us continuing to deal with Long Covid challenges!
Thank you Gez, very interesting conference. Thank you for being the voice of the long haulers !
Thank you Anke!
Thank you so much for everything you`re doing for us Gez!
I cant handle It anymore. 14 months long hauler. My brain feels damaged. Tried many things to heal myself. This is silent torture.
Hang on in there! I seem to be worse in the winter, so looking forward to spring.
So proud of you Gez! And to represent tie the UK!! Hope you are kind to yourself after this amazing conference.
Gez, I have so much appreciation for you and your work. I thought I was crazy before I found your channel. Thank you 💟
God bless you Dr. Osaoji you’re doing a great job for humanity.Thank you so much for all you’ve done for me and my household
Thank you for participating and getting this information to us! I could have listened to this panel for many more hours. :)
My test from Dr Patterson is coming in today. I’m looking forward to seeing what turns up.
Hey char I submitted my blood work yesterday. How long did it take? Me and my naturopath and waiting as well.
@@lukesmith3283 I just got the kit today. I will draw blood and mail it tomorrow. I hope you get your answers quickly!
@@charramsayroberts thanks same to you. I’m suffering, a lot of symptoms
Thanks Char!
@@lukesmith3283 Mine only took about 5 days
Thanks Gez. I too had CFS/ME post -viral illness after glandular fever at a similar age to you and now LC. I am sorry to hear that you are still struggling and with new post-Omicron issues too.
Have you seen the talk by Dr Anthony Leonardi "The T Cells are not alright". On Kashif Pirzada's TH-cam Channel. Worth a watch. Also might give some other possible clues to help us Long Haulers in the form of exercises for the thymus to help with increasing naive t cells. I did read some research that found people that cycle in their older years produced more t cells and had reduced atrophy of their thymus. For us Long Haulers who cannot do much exercises maybe the qi gong/yoga exercise thymus tap/thump might help get our thymus and t cells going again.
How long did your cfs last Lucy? Thanks
@@TheBushRanger. 10 years before I felt back to the consistent energy levels I had pre glandular fever, but I was able to work and exercise long before that just had relapses along the way which became less frequent and less severe. Probably lasted longer because I didn't know so kept trying to push through at first and the doctors were no help. Once I read and understood more I modified my behaviour to pace better, nutrition and exercise etc.. to help recovery.
2 years in for me. Its been a nightmare. Curious about your thoughts regarding oxygen supplementation as tissue is deprived of oxygen. And thank you so much for everything you are doing. I'm so grateful for all the information you are sharing.
HBOT certainly helped me!
1.5 year for me and I still can't smell and taste properly, it's nightmare for me too. I see only bad news because if it's brain damage it won't reverse complately...
So sad
May I ask what you mean by tissue deprived of oxygen? I've been having muscle pains/spasms for 3 months post Covid and no doctor can figure out what's wrong. I took the Incell panel and have 3 markers that are high. sCD40L and VEGF and IL-8. Were you experiencing any of this? Also, what is HBOT? Thanks
@@quack599 what is the service in Ireland Duckie? I'm in Belfast and looking to access similar
This was amazing 👏 thanks for all you do. I had covid March 2020 after just finishing treatment for Lyme disease. I had long haulers covid for 18 months. I was finally feeling better but got reinfected 2weeks ago. Scared I'll have to go through long haul again.
Patterson not helpful treats the immunology, no treatments,Dr Horowitz gives medicines to be used, that's helpful..
Thank you, thank you!! You were right here in NY!! So close by... Gez I keep you in my prayers man. I thought by now someone could have cured you and the rest could follow. So we carry on. It was great to see Lyme in the mix now!! I’ve had that since 1999. Cov screwed me up w my Lyme. I’m coming on a year now. My memory is quite bad. Headaches much less. Fatigue much the same. Huge love to you and this awesome community you have created. You are so appreciated and loved ❤️
Thank you Christine!
Thank you Gez, it is the most informative channel for my particular circumstances, with post viral, autoimmune, Lyme information combined with up to-date understanding of long covid. It really helps and gives more directions to explore. Got an idea how to explain new series of symptoms, which I never had before in many years of flare ups, such as events of low blood pressure.
@@Beekind799 thanks, I will try it and see what happens.
Thank you Irena - wishing you the best!
@@RUNDMC1 thanks!
Wow, survived 4 pandemics to this moment of hope and purpose. Light and love to all of you.
I have been suffering with PASC for 24 months…and it’s quite exhausting to don’t see an end to it.
What a fantastic panel!!
You have clarified so many questions I had on my own personal research journey to be able to understand what’s happening in our bodies for PASC to last for such a long time.. thank you all!! 🤲💚
Thank you so much for sharing and being there for all of us Gez !! 🙏
I wish you the best!! 🍀🤞
Best of luck in your recovery Rayma!
Thank you ☺️
Thanks for the work. Hopefully we get a cure befire its to late for me. 2 years now of this crap. Im hurting, tired, and brain fog 2 years. I cant believe i didnt loose my job yet.
Me too. Brain fog
@@harryjohnthorburn8006 nahd infusions or orally help a great deal as well as iv ozone therapy
Thank you again and again Gez, for your valuable efforts since the beginning of the pandemic, for your research, for your vids and again for uploading this. Bless you.
Well done Gez and thank you so much for you good work. Now I have to say I’m going crazy, knowing that there are doctors who are helping lang haulers and I am still only getting blank eyes from doctors here in The Netherlands. "We don’t know, what causes it”.,
Hearing Dr Paterson anDr. Horowitz say “We know what causes fatigue, know what causes brain fog, we know what causes joint and muscle pain” And naming treatments to help patients, honestly makes me cry.
I have been suffering greatly for over two years. I need help badly. But am unable to find any.
Thank you so much Gez! Can't wait to watch it. Any idea how recent it is?
This is last week!
@@RUNDMC1 That's brand new then! Thank you for sharing this with us. I hope you doing well these days!
thank you all for this!
My story, 35 years old. I had dizziness for 2-3 months. Weakness and tingling in the left leg and vision problems. Extreme insomnia that still lasts as well as episodes of moderate anxiety. I did an MRI/MRA. Everything is ok about the brain. There is hope for all of us.
Thank you Gez for getting this up.
It would be great to get a copy of the slides.
Thanks very much for posting this. Its really helpful to know that medics are trying to find a cure for this nightmare condition. Two years on I still can't live anything like the normal healthy active lifestyle I had previously. We sufferers need hope.
People are realizing the government doesn’t really care enough to listen. And we feel The same with many doctors. It’s good to see doctors pay attention.
My basic conclusion from this video is that there are two diagnostic tools that will help someone identify which flavour of long COVID they have:
- cytokine/immunology panel (blood)
- gut microbiome analysis (stool)
Does anyone know how to get these tests in the UK? How was your experience? did you learn anything?
Thanks again Gez 🙇
I got the blood panel and showed 3 markers that were high. Still having issues getting a doctor to work with me though
@@robertharris4661 thanks. Glad to hear you were able to get it, and get some clues at least. Sorry that there's no doctors at the moment though. Keep going; we'll crack this.
BIomesight did mine-they have a big discount for their long haulers study
@@robertharris4661 where did you get the test done Robert?
@@ryanh4707 They give a list of providers in your area. Mine was done in Austin
5 weeks after testing negative from covid my cough got worse, experiencing fatigue, random stomach pains, body pain and weakness, on and off sore throat and when I got home from work I feel like I'm having a fever, but upon checking my temperature it is normal. Is this long covid?
A superb and informative video created by you and the amazing guests. Thank You so much for keeping us up to date fully informed.
Very informative. Now what , how do we get better? What and how long before any drugs help coming for us? You are doing GREAT on representing long covid community
I have post COVID syndrome, my Doctor's will not even discuss any of this. Only willing to say it is inflammatory issue which does not help me. I am angry. They will not listen to this or others related to this. Seem to have No Interest at all. I hate to think this, but I wish they had it.
So sorry to hear how much you’re struggling :(
Take the supplement stack recommended in one of Gez's films, and add NAC, melatonin and antihistamine. If already doing so, go on low histamine diet and cut out grains.
Amazing continued work Gez. Grateful you spoke on the panel and shared with us
Thanks James!
Thank you for sharing this fascinating session.
Hey Gez, thanks for this, very interesting conference! When will documents related to this conference be published? Or if they’re available already, where can they be found?
Perhaps contact @drdavidbrady on twitter!
Will you provide resources for testing and create a list of doctors that follow this protocol?
Thanks for your work Gez!
Thanks for all your videos Gez. This was kindve double Dutch for me but still very informative. I follow you on Twitter and have just recently discovered your videos. Thank you! May I ask, it took a year for the fatigue to disappear in regards to your glandular fever, did you also suffer PEM? I’ve long hauled 25 months, suffer horrific fatigue & PEM after my booster in December 21.
Hi Luna. I got awful PEM from certain things during the post EBV PVFS but I could tolerate a much higher activity level than I can now
Gez, you did really well making the flight and participating, especially with jet lag. I hope that it didn't knock the stuffing out of you, and you got home ok.
I did - thanks Caroline! The trip was right on the back of catching (and recovering from) Omicron too!
I did - thanks Caroline! The trip was right on the back of catching (and recovering from) Omicron too!
I really enjoyed seeing some aspects of the gut micro biome being discussed in this panel because it’s a huge part of what I am dealing with my long haul symptoms. If other viewers of your channel would like to raise their glutathione levels they need to take 200mg / daily of N-acetyl-cysteine which they can get directly from supplements. It’s used in healing crohns IBD type chronic issues that’s how I know about it! Xoxo Leah
Excellent video!! Thank you all for your hard work in trying to help us!!
I'm still trying to find a doctor to help me, it's not easy to find a doctor that believes in long covid patients.
So sorry to hear of your experiences Jojo - you’re right gaslighting is a real thing
Thank you Gez. Just managed to finish this. Congratulations on remaining articulate on on point!
Thank you!
Gez, I would like to ask you, if I may, for a link to the figure you cited that only 22% of Long Haulers tested positive for antibodies. I would love to use that figure in petitioning my infectious disease specialist to rethink his rule-out of covid after my negative antibody test 90+ days post-acute illness, which has barred me from all long haul studies and clinics. TIA!
It’s from my own patient led research - I discuss it here: th-cam.com/video/8pHfsmX467s/w-d-xo.html
You may also find these links helpful!
twitter.com/ahandvanish/status/1432411002688184320?s=21
twitter.com/ahandvanish/status/1490500134010081281?s=21
Thanks Gez and nice work providing the much needed patient perspective. I am wondering if there was any discussion or awareness of Dr. Wentzel’s work around the Kynurenine pathway and Nicotinic Acid. Do you still see that approach as a viable therapeutic option?
Thanks!
Joe
We didn’t discuss that on the day but I absolutely see that as viable and important.
Add to that the work of the open medicine foundation
Fantastic group, findings, and video; thank you from a new subscriber.
Awesome - thank you Mark!
I wanted to mention that I've been watching Med Cram TH-cam videos, especially the ones about Melatonin, infrared sunlight and its healing properties.
I've started taking Melatonin with good effect for the exhaustion, and I've been going out in the later afternoon sun to help restore my cellular metabolism.
I've also been watching the 'Low Carb Down Under' channel, with Dr Paul Mason and Peter Brukner who discuss the effects of sugar on inflammation, and how low consumption of sugar, low carbohydrate, and therefore low blood insulin, causes a reduction in inflammation.
I've been following this to improve my cognitive function, heal the brain injury, and reduce the brain fog.
It's very interesting and the doctors discuss the real research findings, busting the propaganda that we've been told for years about "healthy eating", the fake food pyramid, etc.
Great to hear you’ve been doing better Caroline!
I've had to go on a low histamine diet.
@@robertharris4661 same - very helpful! very healing! I am so much better after 1 year!
What now after 1 week of taking it brought final full restoration to pre-COVID status for energy/health/blood pressure/breathing (except having less fitness from 7 months of no sports) was Vesugen (Russian peptide bioregulator that regenerates blood vessels, especially capillaries).
What is this? Can you tell more about it?
Thank you for posting this. There is so much information in this video. The gut connection discussion has really hit home with me. I have extreme gut issues and can feel that is where my anxiety comes from. Gez, are you taking anything for your gut? Probiotic that is working for anyone?
Yes I’m taking the Phyto-V probiotics
I had 6 months barely able to eat, which triggered me to try a ‘reset’, which I did with a version of 5:2 fasting. As a well person, and an athlete, I’d never been able to fast at all, but my nervous system was so wrecked/ ground to a halt, that I wasn’t even hungry. This almost immediately fixed that aspect (within 2 weeks was eating again) alongside brewing my own kombucha all that summer and drinking a small glass before every meal. Probiotic drinks didn’t help, just gave me severe gas and gut pain.
A year later, I suffered almost 2 months of nausea after the booster jab, along with worse POTS and the return of Covid toe! I didn’t have much energy to fix it this time but managed to do it by attempting a 2 day fast, after seeing someone on Twitter say they had to do 72hrs to reset themselves. I noticed, like many people, that by 24hrs fasting, my gut pain had gone and I felt the best I’ve felt for a long time.
It’s not totally perfect now, but I just had my Biomesight gut biome LC study returned-confirming I’m doing the right things and my gut is 89% ‘good’. A result after having my whole system deconstructed for the last 23 months! I have mentioned to several doctors that this is the only thing I have been able to fix-if only fasting could help dysautonomia, lung damage, brain damage, tissue hypoxia etc etc
@@RUNDMC1 I checked them out but I don’t think they are available in the US 😩
@@browneyedgirlFL67 I take MegaSpore through Microbiome Labs. It's the first probiotic I've taken that doesn't leave me horribly bloated. A doctor who had experience with long Covid suggested it to me.
@@nabarg75 is it helping?
Awesome conference, thank you! Now could Gez please translate into everyday language for the rest of us? No joke! These are brilliant researchers but the subject is dense.
Subject is most definitely dense!
Thank you Gez you’ve certainly helped me over the last 2 years.
Thanks Annie - I hope you’re doing a bit better :)
@@RUNDMC1 better than some but not 💯thanks
Your the best man, you keep our hope alive. I hope your doing well.
Can't wait for your book!
Thanks Travis!
Long covid shares vertically all the same symptoms of B12 defiency so maybe B12 injections (hydroxycobalamin) folate and B6
these injections would cure deficiencies of these vitamins at least short term,. It is certainly no a cure all for long covid as many are not deficien
t.
@@fabulousdoc curing B12 deficiency and keeping people at an optimal level would enable the body to repair itself better, also what is classed as B12D optimal level for one person isn't the same for somebody else, the more damage you have in your body the more B12 you're going need for DNA synthesis.
NICE guidelines are to only test for B12 if macrocytosis is present is leaving many people with B12 deficiency, all the symptoms that you're seeing in long covid come before the anemia they are looking for? Correct me if I'm wrong I believe we are seeing higher homocysteine levels in people with long covid this can be a red flag for B12D ? Sorry I am dyslexic and don't write well.
It seems like a Q&A session was about to take place. I’m wondering if that content is available? Also, I’m hearing more and more patient testimonials about stem cell therapies helping them. InCellDx is adamantly against them. I’m curious about what you’ve heard Gez?
Can’t comment specifically on the stem cell therapies. We ran out of time for the Q&A!
My own experience I am 70 yrs old but in previous very good health no medical probs. Very active, vegetarian non smoker, former nurse. I took every precaution in the first year - I live alone so it was easy and then went for the vaccines. Vacc 1 (Feb 2021)made me feel like I had the flu for about 2 weeks. The medical centre was super careful about social distancing and keeping patients apart. Very reassuring. Vacc 2 (May 2021) was a nightmare. The medical practice allowed up to 50 people in the waiting room and some had no masks. I think I caught covid on the same day as I had vacc 2. Almost overnight I was bed-ridden. I did not have a cough or a temperature so I just assumed it was a reaction to the vacc. I had all over body pain, bowel problems, brain fog, blurred vision and problems sleeping. After a few months I realised my sense of smell was affected - could smell body fluids on people, and became hypersensitive to smells of all kinds. It was truly dreadful. Couldn't find anything about it online so assumed it was all in my mind. Booster vacc in November 2021 - I wish I had never had. There was a huge crowd in the medical centre and I think I caught Omicron from these people. Fatigue, nightmares, poor memory, pain all over, brain fog, sleepless, depressed, unable to follow any sort of normal life. Still feel like this. Now I have developed eye problems and such muscle pain I can hardly walk on bad days.
My question to any expert is: has anyone researched the effects of having the vaccines and catching the virus at the same time? I now feel I am old and disabled and am going to lose my sight - which is not how I assumed the end of my life would be.
Sending you Healing prayers 🙏🏼🍀🙏🏼
After watching this panel i believe both my vaccine 1 and delayed vaccine 2 caused a cytokine storm of reactivation of some virus Ebv, Covid, mono, M.E., or lyme/tick borne disease/virus.. is it posible that is what happened in your case?
@@margaretskinner1416 I think you could be right. I went from one day being fine to total physical meltdown in 24hours. I once had a post viral episode that I believe gave me fibromyalgia but back then (2000) my GP didn't believe the fibro existed and sent me for Alzheimer's testing (!!!) then I was diagnosed as clinical depression because there didn;t seem to be any other solution to my extreme fatigue and chronic pain - 'all in the mind' sort of thing.
My first two vacs were Astra Z then the booster was Pfizer - I often wonder if this was a good plan. And when I went for all 3 I was asked 'Have you tested positive in the past ten days?' I assumed it was asked to protect the nurses and the crowd in the waiting room. This now seems a pertinent point. I may have had symptomless covid so I never went for testing. I felt well at both times when I turned up. If I caught it in the waiting area for the 2nd and 3rd vaccs the covid symptoms were lost in the physical reaction I was experiencing as I assumed it was my idiosyncratic response that was making me ill but that it would pass. I did seem to recover from 1 and 2 but the booster has been a whole other story. Did you have a booster? Have you recovered?? There is so much more to this than we yet know, and now it feels like the topic of covid has been dropped totally. There seems little will to accept long covid or other factors and goodness knows how we will be able to pay for potential treatments for long haul. God luck with your own case.
@@wildhorses6817 Bless you.
Thank you 🙏!!
Thanks Kim!
Feel like I am just dying a slow and painful death. Nothing seems to work and the pain and spasms wont go away. Keep fearing without help some day soon will be my last. Not sure if these things are fatal or not but sure could use some help
Thank you Gez! Without your work (when you will be feeling as rubbish as most of us!) there would be an awful lot of us whose mental health, as well as their physical health, would be much worse.
Thank you Judith! Hope you’re doing ok :)
I appreciate and learn from all your sessions on various aspects of this debilitating hell. Would it be possible to recap in layman's terms. Targeting specific areas for treatment on a cellular level is what I WISH FOR.
Great work yet again, Gez!!
Thanks Alex!
Please have a Cure, treatments for us
I've suffered so long. I can't suffer whole life like this
They have to understand the science of what is going on for each symptom...and later the drug companies make rx. But they have mentioned several OTC supplements like ALA, Glutathione, NAC (google them)....and they arent necessarily a cure but they help the body do what things are going awry. They may help or may not help...just depends on each person. Since this vid is 2 yrs old, you have probably figured some out.
What are mass cell symptoms, refering to the need for antihistamines
www.mastcellaction.org
Gez, would you consider doing a film on effects of extreme diets that have potentially helped people with MECFS and in turn may help us? Things like veganism, paleo, keto, carnivore, etc?
I’d certainly consider it but I’ve not found a good enough evidence base yet to build a film on!
Probably a long shot, I got diagnosed POTS + low BPM ( heart rate 40 sleep ) all post covid since December 2021. So I am fairly new to all this information. Does anyone here had/have same problems? Greetings from Vietnam.
This is really common Rémy!
Thank you for information ..but who can give us proper medication...sufferring from last 12 months and have swollon lymphnodes in neck and armpits from last 12 months.
I’ve got those same swollen lymph nodes
Did you happen to get swollen lymph nodes after vaccination? I had them painfully bad for about a month after Pfizer1 and SEVEN months of h.e.double hockey sticks after Pfizer2. From under my arms and on my chest, mostly left side where I got the shot. I also tasted an “I.V.” taste/smell after both. The first one made my chin feel like it had a weight hanging from it for about an hour along with the taste/smell.
I had swollen lymphnodes due to Covid and before vaccination. Vaccination make more worst..and doesnot improve till then.. couldnt lift even 100g weight..painful both hands and neck all the time..cant sleep on left side...any help? please Or medication?😥😥
FLCCC telehealth
Thank you so much for your valuable work. Despite it's very complex and not very clear in my mind, Your videos are the ones that answers best to post covid issues.
I desperately was looking for answers about post covid hypoglycemia, under 60 (every morning after some efforts).
I still don't understand what could be the real issue in the body to lower glucose? emboly ? (link with aerobic and anerobic paths). I'll focus more on all your videos and review "the energy budget & reactions for ATP production" .
But thank you, I know at least where to dig more.
What's the best thing to take for vascular inflammation?
Acid reflux?
Fatigue?
I'm suffering lightheadedness/rocking dizziness/off balance issues for 9 months post covid. Does that mean I have high sCD400l and VEGF?
Excellent video from Gez as usual. I've taken the Cytokine 14 panel and have high levels of VEGF and sCD40L and IL-8 is near above level. I've been having excrutiating muscle pains and spams for 3 months now. My C Reactive protein level was 15.3 at one point but down to 4.4 now. I'm having a problem finding a doctor that will work with me on the video consultation and pretty much just tossed the lab results aside since they don't know what they're looking at. I need help soon. I'm not sure if it's dysautonomia or what but feels just like my muscles are hypoxic and not getting oxygen or nutrients or something. So much pain every day. The only thing he agreed to give me was H1 antihistamine (hydroxyzine) which seems to help somewhat.
Sorry to hear you’re struggling so much to get help Robert :(
Does anyone have a link to dr. Horowitz's protocol??
How would treat someone with herpes virus 2 that is also a long hauler? Or what signs will you look for to confirm a reaction of herpes?
Fluvoxamine can induce serotoninergic syndrome that include hipertermia.
May be high tissue temperature have some antiSARS COV2 effect?