Dr Lux on Infantile Spasms

[@ali1583]

My one year baby due to hypoxia have brain cystic encephalomalacia he is not smiling and social Eye contact I start his treatment under pedia neuro physician still same condition

[@kristinesaavedra9903]

Hi doc! We need help for my nephew because he was diagnosed with infantile spasm but the medicine is not available in the Philippines. Besides, we cannot afford to buy it because we are poor.
We really need your help for this little angel.

[@hollyregan358]

Hi. I'm looking at getting some help for my son. I believe there is something wrong with him and watching these videos and doing research I think he has baby spasms, we have been in hospital with him for the last week and none of the doctors or nurses are listening to me and are saying I'm just a first time mother worrying as they clearly don't have the experience with this. His eyes some times roll in the back of his head, he throws his legs and arms up in his sleep and when he is awake and crys after, his breathing sometimes goes funny and there is more things going on. Can someone recommend a doctor in the UK we can take him to please? He is only 9 weeks old. Thank you

[@lisacomerford9691]

Currently In hospital with my 7 week old having spasms, doctor thinks silent reflux but I refuse to take that as a diagnosis and said I wanted an eeg done to rule out more serious things, I finally got eeg today after 5 days we get results tomorrow, but the hospital would of glady sent us home with just a diagnosis of reflux, only I stood my ground,
Go back through A&E exaggerat if you have to just to put your mind at rest

[@devasenat6781]

How is your son now?
My baby is also 9 weeks old. Doing same things in sleep. Please reply. Worrying so much

[@wheredtheygo2002]

@@lisacomerford9691 hi. I know this was last year but was everything okay?

[@tweetmusa3503]

Is newborn screening can detect that syndrome?

[@rosalinabadua923]

No...

[@arhamali4050]

Thanks you Dr for posting l am from Pakistan and my daughter wo is 3 year's old suffering from infantile spams problem as per neuropdiatric advance we are giving him medicine as vigabatrin sabril and my daughter spams are not stopped yet could you please me through which we can stop spams please help me

[@jolandahulstein6658]

Try to prevent a lack of sleep and fever symptoms in your child as much as you can because they are provoking the spasms. We never went out late at night and made sure our son was always in bed at time for his naps. Suppress fever immediately with aspirine, or paracetamol that is suited for infants and small children, but be sure to stick to the instructions on the package. My son had infantile spasms, but outgrew it at six years old with the help of medication and the above tips. He is now a gymnasium student, 17 years old. Good luck, and all the best for your child 🌻🌻

[@nadiashirazi3925]

What treatment Ur child had.did he have any development delays

[@nadiashirazi3925]

@@jolandahulstein6658 what was the cause of infantile spasm in Ur son.plz do let me know

[@jolandahulstein6658]

@@nadiashirazi3925 no my son does not have any left over effects of the epilepsy. But, you can never be sure how things would have been if he would not have suffered from the spasms.
Epilepsy is often hereditary or can be caused by brain trauma. (For example an accident or lack of oxygen during labor.)In our case, it runs in the family. At that time I also considered putting my son on a keto diet. You can look into that option for your child, it can give good results. All the best, happy to answer your questions let me know, jo

[@nadiashirazi3925]

@@jolandahulstein6658 thnx alot Jo for Ur answer. What treatment Ur son had

[@summerday8256]

Could some of these cases be caused by vaccinations

[@loomoo7263]

Summer Day no🙃

[@loomoo7263]

Summer Day it just develops unfortunately but rarely,

[@ambot-kinsa-ni]

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