Amy's story

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  • เผยแพร่เมื่อ 9 ก.พ. 2025

ความคิดเห็น • 11

  • @hectorandjudidesautels1457
    @hectorandjudidesautels1457 6 ปีที่แล้ว +4

    Thank you Amy for such an informative video. I have never heard of this condition before, but you explain it very well for everyone. Good luck to you and your family. x

  • @elenahernandez1442
    @elenahernandez1442 2 ปีที่แล้ว

    Thank you for sharing your story. I would love know how she's doing now?

  • @ali1583
    @ali1583 ปีที่แล้ว

    My one year baby due to hypoxia have brain cystic encephalomalacia he is not smiling and social Eye contact I start his treatment under pedia neuro physician still same condition

  • @thedrzrule
    @thedrzrule 6 ปีที่แล้ว +2

    Hello amy i have two children suffering from infantile spasms but i live in Pakistan
    Child 1 male age 2 years 5 months with global Developmental delay and no vision (can't see)
    He was finally treated with steroid after 1 years of spasm as many conventional anti epileptics were tried before that.
    Child 2 daughter 1 year 1 month old started to IS at 6 months but we started her on steroid but she also lost her vision / IS stopped but she can't apply force on her feet will some developmental delay

    • @soniaali5547
      @soniaali5547 4 ปีที่แล้ว +1

      How are ur children now? From Pakistan fsd.

    • @thedrzrule
      @thedrzrule 4 ปีที่แล้ว

      @@soniaali5547 permanently disabled bed ridden cannot sit both, boy age 4years 6months, girl 3 years 1month
      I hope u dont have such problem.

    • @soniaali5547
      @soniaali5547 4 ปีที่แล้ว

      My czn has an adhd baby. THSTS WHY I AM HERE FOR SEARCHING THIS. He is very agressive. May ALLAH GIVE UR CHILDREN A HEALTHY LIFE.
      MY SISTER IS A SPECIAL EDUCATION TEACHER. N SHE TECHES BLIND CHILDREN.

  • @kimalonzo3363
    @kimalonzo3363 ปีที่แล้ว

    Sweet little curly top!❤😊