My Chronic UTI Journey : Scarlett Howard
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- เผยแพร่เมื่อ 14 ก.ย. 2021
- In this episode Scarlett Howard discusses her journey with chronic embedded UTI. Joined by Dr Cat Anderson, Scarlett discusses living with the condition and the severity of the debilitating daily symptoms.
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I don’t know if it will help anybody, but I was suffering from recurring UTI and constant pain even after the antibiotic treatment; the pain was not going away. I was losing all my hope but I gave one doctor a chance, and it turned out that I actually had bacterial vaginosis, which was causing the constant pain and the recurring UTIs. Once I started to treat the bacterial vaginosis, all the pain went away. So actually, in many cases, the pain after or before peeing is caused by vaginal issues rather than UTI. So if you are having those kinds of problems, ask the doctor to examine your vagina also. I hope this helps.
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
Thank you for sharing this. I went on holiday and came back with a uti in 2019 that never went away. Our stories are so similar. I waited 1 year with a diagnosis of interstitial cystitis. I got worse before I saw Dr. Bundrick who's test showed high loads of klebsiella esbl, e.coli and enterococcus.
I've been in treatment with long term antibiotics for 15 months (iv invanz and macrobid) and I just started feeling 95%. So scared that coming off antibiotics will put me back to square 1 as the bacteria is likely still hiding. But I'm not giving up hope. Sending you every ounce of well wishes.
I have the same issue as you. I’ve been through IV antibiotics many times infection ongoing since 2020. I just ordered a copper water bottle as copper kills bacteria as well. I’ve tried everything. I mean everything.
I sympathize with you. I had this for 26 years. When I prayed to the Father for discernment he showed me to eliminate ALL traces of grains, sugars, starches and sweet fruits. Eat a keto style diet. You have carbohydrate intolerance and the bugs love it.
Same and almost instant relief
I just cried so much watching what you've been through :( . I know how it feels mentally to be in pain and nobody knows/believe what you have is real. You try to hide it because you are ashamed to constantly having to run to the bathroom. I have a SIBO for now 20 years because of school bullying (long story short) and it's ruinning my life and since it's not life threatening, I tried to live through it but some days are harder than others. In France no doctors believes my condition exists since there are so little studies done on the subject. It's starting now to receive awareness because everybody talks about microbiota being important and everything, but it's kind of 20 years too late for me :( .
Thank you so much for making this video. You are a brave, beautiful lady. There are thousands of us suffering with this awful, debilitating condition. We are being badly let down by the medical profession. We need better testing, better treatment options and a CURE ! Money needs to be spent on this - it is ruining lives. Some of us can no longer tolerate the high dose, long term antibiotics and there is nothing else available for us. I have felt very close to ending my life on many occasions. We need change NOW!
Brilliant! Took me 8yrs to get my diagnosis. Its a disgrace that uti tests aren't fit for purpose! Good luck with your healing x
Scarlett. I'm so sorry you've suffered in this way. You spoke my truth so eloquently. I've been suffering with chronic uti's since I was 2 years old. I've have surgeries, my ups and downs (my 20s were the worst until menopause.) Now, at 56, I've had to stop doing the work I love and basically just take each day as it comes. As you've described, the pain is horrific. Doctors don't take you seriously and there doesn't seem to be enough research happening. I too have found support through an embedded chronic uti facebook group. I will hold you in my heart and pray that we all find an answer to end this debilitating illness. Thank you for all that you do to bring this to public awareness. I've been so shy about being vocal regarding my illness. You give me strength to perhaps shout it from the ceilings so that someone actually does something to help and that those suffering don't feel so alone.
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
Thank you for sharing this 💛
Just one point of clarification - UTIs can be a life threatening condition.
Untreated UTIs can and do lead to kidney infections (I've had 2) and sepsis for a number of people. UTIs can easily kill women and the elderly (for whom symptoms often get mistaken for dementia).
I just healed mine in a week with a mostly meat based diet. I'm AMAZED it actually worked. Terrible awful burning and yes glass shards when you urinate. The only thing you have to lose is pain if it works for you!
Thank you for making this video.
So proud of you and thinking of you always ❤️❤️
I teared up watching this. You are so brave and wonderful. My UTI got worse and put me in a wheelchair, and doctors everywhere in my country were telling me that there was no cure. I'm doing much better now, but not cured yet.
Wow
Hey girl how are you now??
Thank you for helping me understand Scarlett and thank you Ella x
Thank you for your story
so sorry you have suffered at such a young age it is so horrible.
We have every right to complain. I would rather have an illness where I either get better or die than this. I also have severe TMD since 20 years told and between the two this is hardly a life.
I'm watching this 1 year into treatment at Harley Street clinic and I can't thank you enough for sharing your story far and wide. If it wasn't for the support group you mentioned I would probably still be suffering today or *Trigger warning* I genuinely think i would have taken my own life by now. Thank you for making me feel less alone in how much pain and loneliness this illness and the neglect of healthcare "professionals" has caused. I really hope that this video changes more than a few minds and gives GPs and urologists the wake up call they needed long before now. Although there is no definite cure or long term relief from cUTI I want to share with anyone reading this that after 1 year on daily antibiotics, Hiprex and holistic healing I am now symptomless about 95% of the time. Though I am not finished treatment yet and it could be a while til I can come off long term antibiotics, I hope that others are able to get the relief I have and know that there is hope. To anyone struggling to cope with this condition please know you are not alone and it can get better x
Kate, please can you share which antibiotics you’re on and what dosage? Thank you so much for sharing your story x ♥️
@@Ida-Adriana I am currently on 200mg trimethoprim twice daily and 1g Methenamine Hippurate (Hiprex) 3x daily. Before trimethoprim I was taking 100mg Nitrofurantoin 2x daily but switched as long term use of Nitrofurantoin increases risk of neuropathy as a side effect
@@Bunnnnnnnyyyyyy hi Kate I was suffering with this for months. And anti biotics didn't work. I then went the natural route and found desert harvest aloe vera. Its stops the pain and burning and is completely naturally. You can Google for testimonials. Hope your doing better.
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
I also have chronic uti and it’s ruined my life for the last 2 years.
The pain is unbearable.
I’m in treatment with Dr Bundrick and doing much better but antibiotics can’t seem to clear all of it. I can’t wait to get fulguration to completely clear out all the embedded bacteria.
I hope you feel better soon Scarlett. Thank you for sharing ❤️
I am with this same doctor and been on the antibiotics for 2 years now. did you get the fulguration? did it help? I am sure he is going to tell me to do this as well. is it covered by insurance? is it outpatient? sorry so many quesitons
@@tinklebelle4792 yes, it's helped so much! 5 months post op now, definitely recommend. I had to pay for it privately as in NZ don't have insurance. Hope you feel better soon x
Hi Ally! How r u now?? Are you off all abx since fulgration ? Is procedure safe n where did you get it?? Am only two months in n worry I’m too far gone. I struggle to tolerate abx
I also had fulguration in Lima-Peru in a clinic named Urozen, It worked.
Thank you for sharing your story! I’m four months post fulguration with DrB. I still feel exactly the same, sadly. Hopefully one day things will get better.
Omg 😫 needed to hear this! Can’t wait to see a specialist, every three months without fail. 🙄
Have been the same for two years in pain and watched this don’t feel so alone thank you
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
Mine uti has never gone it's been there 15 years it's destroyed my life it's never ending
🧡🧡🧡 Sophie thankyou for sharing you're story/life I hear you ,see you,feel you . Its a horrific condition ! xxx
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
Thank you for making this video; I relate to every word you said in this video no one understands what it is like for us I’ve only been dealing with this for just 10 months and it’s awful. Sometimes I pray to die as I loose hope that I will ever get better. But listening to others stories really helps me. Hope that you are able to beat this thing!
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
Thank you Scarlett. I’m experimenting with serrapeptase and Nattokinase, while on cephalexin for ten days. I hope it will make a difference
I cant stop crying!! I also suffer from cuti and this is soo hard to deal with..
It’s horrible
For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!!
You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤
Dr Howard Shubiner
Nicole Sachs (Spotify podcast)
Dan Buglio (Pain Free You) on TH-cam
❤
Thanks 🙏🙏🙏
Scarlett, have you tried phage therapy with Eliava? I'm waiting for a custom phage now for Raoultella Terrigena (very simialr to Klebsiella). It should be ready in 4 weeks. They have standard preparations such as intesti phage and pyo phage that you could try it. It works against common strains of bacteriia that cause UTIs.
I feel your pain I have had chronic bladder infection for 15 years still on going and I have excruciating pain now going through a flare up swimming pool makes it worse and hot weather makes it worse. I know exactly what your going through I'm suffering the same pain as you
There is a new antibiotic coming out soon called gepotidacin, it's for UTI's. Completely new class of antibiotics. :) Also, have you ever looked into Phage Therapy? It can be very successful in hard-to-treat cases. Bacteriophages are viruses that ONLY infect bacteria. You may want to look into it, and look at Eliava Phage Therapy center. Hope that helps :)
This is so relatable, I hope there’s more help out there and a cure!
I have been with Harley street for 6 months now having up and down days.
Currently going through a flare and I just hope we can all get back to normal 🥲
It’s so crazy because I never ever had a UTI and last year I had my first that never left!
I never heard about this condition before shows how much the world needs to be educated about it.
I’m curious about dietary changes for this condition? By the way I just want to HUG you and all the women who are suffering with this. It’s really so so hard!
diet changes may temporarily reduce irritation but wont help the root cause which is damage from bacterial infection
I’ve been going through this for 10 years. I’m now 27 years old. I recently (past year) heard about bacterial biofilm. I’m worried about antibiotic resistance.
I truly Love your Glasses )
I’m crying 😢 right now because I’m in treatment w dr Bundrick on long term
Antibiotics:/ he said fulguration probably would be good for my trigone area and I’m on augmentin 2x
Did you have the fulguration? !
Hey girl how are you doing now ?
I have heard kal d-mannose powder it has worked for many in other videos
But only those utis caused by e.coli bacteria
I sick of being in pain too I feel I want my bladder removed coke alcohol irritate me I did flush out my uti once some years ago by drinking 6 bottles of 2L. For 2 weeks it's not easy drinking that much but it came bk then when I had a baby it went for 2 years and came bk. But the pregnancy was excruciating I can't work normal either you are me . I'm in excruciating pain again now
Hi, we would love to get an update. How are you currently?
Did you try diet for IC and low carb?
Is there any update on your condition?
I m so sorry you are going through this. I was diagnosed with Ic but also get utis. Have you tried d mannose for utis as well as oil of oregano and garlic which are natural antibiotics. You also need to rebuild your gag layer with oral gags. My personal opinion after years of suffering is that antibiotics only make things worse because the bacteria becomes stronger and more resistant and so you enter a viscous circle. You also need to take loads of probiotics because antibiotics kill all the good bacteria in your gut making you prone to getting utis. You also have to make sure your vaginal microbiom is balanced because if there are not enough good bacteria there you lack the first defence system the bacteria encounter before making there way to the bladder. You must also cure your diet...no sugar or dairy products because they feed bacteria.
exactly! that antibiotic road is not for me neither . I am sad just watching all the meds and hearing of this suffering . I am seeing improvement also with also fasting , intermittent ,waterfast and dryfast . wishing you well
The antibiotic road did not help me either.
How do you rebuild you gag layer?
Hi Scarlet . I am not in the medical profession i am just an ordinary human.but have ever tried a cup of Sage tea ? May be once a day.
Just watched your account of your uti, I’ve had blood in my urine for a year uti,s symptoms pain when peeing burning every time I pee, I do a urine test comes back negative for bacteria. I’ve been on a course of chemotherapy for an autoimmune condition that has not helped the urine blood had an ear infection and I’ve developed tinnitus. Could you just list what drugs they’ve given you to make you feel better? This has been horrible and nothing’s helping many thanks . x
Do you inject UROMUNE or do you take it orally?
💕
This is my story....
Have you tried fasting ?
I have the same problem, but unfortunately I did not find a good doctor who understands me, I am from Saudi Arabia
Artemis Clinic in Harley Street, London, does virtual consultations. Also Dr Brundrick in Louisiana, USA. Good luck!
@@prudencel1652 How much do you pay for appointment? And how much do the antibiotics cost?
@@Ida-Adriana you will need to contact the clinics directly for pricing. You can Google the names of the clinics I mentioned.
There is also a Facebook support group called 'chronic/embedded UTI' with around 15k members which contains a lot of information about this type of condition.
I was suffering from utis for 6 months. Didnt want to take the anti biotic route so researched. D mannose worked but even better is desert aloe vera capsules. Amazing godsend all pain is gone and can eat what I want now.
Hello Scarlett! I saw your video, and I am thinking a lot about writing You. I can decide not easily, say I sg to You. First of all I understand you, I had UTI when I was child. I know how doctors examine and heal this problem. I know about nothing about Chronic UTI, but I had operation too when I was child, which solve the problem to my whole life. I would like to suggest you, try to talk about your doctor, because for children the operation prevent the bactarial back- going to the kidneis. And I do not know, I am not a doctor, but my experiences people can recover, and I do not know in adult life how could the doctors help in such way. If you can get the operation tour, and doctors make it in adult life too, you can leave the pills after some time. I tried to help You and I understand You! I do not have already had problem since then. So I think you should talk about it witg your doctors, could you help in such way to recover and be better! (You are not alone, I do not know will I have family too. My partner is very patient with me. I wish you if you did not have a partner, find sy to understand You.)
try functional medicine I am sure this can be turned around look at biofilms
10000% agree, immediately after hearing "infection's hiding in a wall in the lining of the bladder" (whatever it's supposed to mean) I thought of biofilm
Hi girl, did you try low carb diet? Higienism? Only plants and vegetals, avocado, sometimes fish. You can find information in Cala Cervera diet (is in spanish but you can translate) also I have some links for share about another people that cure in a natural way, maybe is helpfull
Just stop! That’s not helpful at all, I’ve tried all that bullshit, this is a chronic embedded UTI, not a joke. You think if it was as simple as low carb and ‘higienism’ does anything to this, you’re extremely mistaken and it’s not helpful to throw glib ‘advice’ around, when women are already told this is in their heads. Really not helpful.
I know what's your going threw
Has anyone tried fulgaration?
I want to, I’m just trying to save up enough. It’s my dream to get it and be cured and pain free.
Marnie has and she’s doing so well now (from her latest updates) I will be going to the same doctor in Turkey to have Fulguration in the near future. I know a few ladies have gone and have been doing well. I’ve had this for 15 years. Ive missed out on so much and I need this to be over. X
@@ThatBlackDog I would like to aswell but I’m wondering how long does it keep you pain free for? Not much evidence!!!
@@user-jb3yh7ez7c well it burns out the infection that antibiotics may not be able to reach, there is studies showing that whilst in bio films the bacteria can survive being left in bleach for more that 24 hours so anti b’s may not be able to reach them so fingers crossed it would be a perm solution unless it happened again
i have now!
I don't feel human I have no sex life
You are so brave
I am too suffering with chronic
There is help out here unfortunately
Orthodox does not work
You HAVE to try a functional.medicine or a natropath nutritionist who specialises in functional medince
They look at the cause if what is going on
It's the antibiotics that are cause the problems
It's all about building up the microbiome in the gut
Please look into
Invivo health care call them xxxx ,