Adrenal Insufficiency | My Story | Symptoms of Adrenal Insufficiency | Living with a chronic illness
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- เผยแพร่เมื่อ 17 เม.ย. 2020
- This is not a medical video. This is my story, the symptoms I had and a description of how I felt before I was diagnosed with Adrenal Insufficiency. The aim of this video is to give encouragement to those who are on the journey to diagnosis and to help others understand people who have these symptoms or disease.
My addrenal insufficiency was so advanced that I was having many Addison's symptoms. I have come back from the brink of hell with loads of vitamin A and adrenal glandular extracts. What I haven't come back from is my hatred for doctors, and their complete and utter indifference, incompetence and arrogance to help. I lost decades of my life and I always mourn for that.
It is important to know that without vitamin A the adrenals and thyroid cannot produce hormones. Liver is the best you can eat. Vegetables do not have vitamin A. Most people cannot convert beta-carotene to the active form. It can actually be toxic.
Do not eat dairy in the morning. The speed up the thyroid which makes the Adrenals suffer. Practically destroys them. This is what causes POTS. The heart going like crazy with minor exertion is because the adrenals cannot keep up with the thyroid. Sugar will do the same.
Do not believe the doctors and don't trust them. Blood test also don't work.
I’m miserable and I blame doctors for it all. I’m not typically a depressed person but I am becoming depressed at this point. Feeling useless and hopeless will make one depressed.
My doctor was so incompetent, he couldn’t even diagnose my Graves until I took myself to a cardiologist 7 years later. Since my thyroidectomy, the heart racing got better but I still feel horrible and my thyroid numbers are normal now. It has to be something else. Pretty sure people think I’m just a hypochondriac. Doctors have no answers but I don’t believe I’ve been going to the correct specialists. I finally made myself an endocrinologist appointment after being told for years a primary care doctor can just treat my Graves. I wish I had gone to a specialist before and maybe they would have me figured out by now.
I have three kids and they’re the reason I’m still here. I can’t shower without my heart rate going up to 150. Just standing up causes it to race as well and my blood pressure drops. I’m so weak I can barely reach across to grab my water off the table beside me. If I stand in one spot more than a couple minutes, I’d surely pass out. So, I just never do that. I have to sit down no matter where I am. Standing in line at Wal mart? Not me. I have to squat down oftentimes. If I’m having a better day, I can just move around back and forth to keep from passing out.
I have constant headaches that torment me. 2 BC powders a day for those. The nausea is awful but I have to say I don’t have vomiting spells nearly as often as I used to. When I do have a dizzy/vomiting spell, I can’t describe how horrible it is. It’s like the sickest a person can imagine being.
I’m dizzy or lightheaded daily. Walking up the stairs is like a huge feat and I can’t breathe by the time I make it up 7 steps and my heart races of course. The falling asleep sitting up makes me look like an addict to some I’m sure. Constantly tired but I feel better in the evenings and can’t sleep. Or, because I sometimes have energy at night, I want to get a few things done during that time. Mornings are a nightmare.
I’m a useless mother at this point. I want so badly to be a good mom again. Thankfully, my kids are teenagers and understand I feel awful. My husband wants to divorce me I’m pretty sure. He lacks empathy on any level and I resent him for the lack of care he’s shown me.
I hope and pray my doctor figures something out for me in February at my appointment. I’m not saying I have this disease but it’s the only one I have every single symptom of, except high potassium. My potassium has been low recently. I have also considered POTS but I am not sure it covers all my symptoms.
Anyway, I just needed to share with someone. Typing all of this up makes me feel better. I have no one to talk because I live out of state away from family. I have my older daughter but it isn’t fair to dump things on a 16 yr old.
If anyone reads this and prays, please pray for me. I feel like giving up. Thank you.
@@BS-dq1kzI can relate! Many of us can relate!! Everything is autoimmune which means nothing! To me it means that there is an unknown virus that triggers our immune system to thinking that something is attacking our body!! I’ve had so many tests over the years and nothing shows up! I was never sick, never tired, ( this kind of tired from the autoimmune diseases is a very Ugly tired, not a good tired feeling)😔 After the birth of my third baby daughter I continued to care for my family as usual but I developed a fever out of no where! I mean it was horrid! My husband working out of town I had no one to help! Plus who wants to help when you might have a contagious disease? My two baby girls slept with me so that I could have easier access to caring for them! After a few weeks my fever broke and I was my old self!🙏 Then 4 months later I was hurrying around the house getting my kids ready and expecting company and I started with lightheadedness so bad and fatigue unbearable!! After many tests and bloodwork I am in perfect health, they can find nothing wrong!! THEN THE DRS ASK “ ARE YOU DEPRESSED??????? YES IM DEPRESSED BECAUSE I DONT KNOW WHATS WRONG WITH ME!!! I pray for you and all of us that can find Joy in our lives again and find a cure or medicine to help us cope!! I pray constantly for God to get me through another day and I try to get things done even though it’s a struggle! The only alternative is to stay in bed all day and feel useless or get up and do things even though our bodies say we can’t! I forgot to add, my two daughters that slept with me both ended up being diagnosed with MS in their early twenties!! 😓🙏❤️
I diagnose myself too. Paid for blood work at a private clinic because no doctor in the regular Healthcare system would even sign off on specific blood work for me. It's absolutely insane. You cna die from addison's disease. If you suffer for too long.
Thanks for making this video. I've been going thru this for many many years and feel I'm at my end. Starting to get these "thick" toxic headaches now and feeling EXTREMELY unwell which I didn't think could get worse than my normal flu-like feelings. My flanks hurt, lower back hurts, my legs don't work like they used to, I can barely get up from the floor. I feel so weak and fatigued, can't get enough salt, constantly dehydrated no matter how much I drink. Just got done asking a Dr about adrenals again and made sure I mentioned that I don't go to the Dr anymore unless it is extremely bad because the stress of getting over another failed visit where no one helps me is too much for me to overcome...so for her to please know this is serious. Well, I had nausea, diarreah, and weird thigh pain on both thighs along with ab pain and lower back pain and exhaustion for this dr visit. They did just normal bloodwork (CBC and CMP) which came back pretty much normal and now nothing from them. Western Medicine has failed me completely. My body feels like it's dying. I really hope this is the end, tbh. I have "adrenals/hydrocortisone" written on my body in the event I go into a coma and also a letter next to my bed saying "eff you" to all the drs who refused to help me. This is torturous. I know some of you can identify with this post.
SoooSad, I’m going through the same! 😢
@@carolynwightman4022 😪
If you can, order an at home cortisol test. Bring the results to a doctor, or sometimes the company will send them. I used Let’s Get Checked, but it’s a blood test. You can also get saliva tests and possibly urine tests. My doctor referred me to an endocrinologist, when he saw the result. If doctors won’t order a test, you can do your own, if you can afford $50-150. Mine was about $75.
I have and it shows adrenal fatigue. Only drs don't recognize it and my NP just had me taking supplements which dont seem to help. Prob is my sodium is actually sometimes above range these days and I'm wondering if it's bc I drink so much salt water to help with fatigue or if it's something else. I just don't know anymore.
@@lisakoenig21 Hi, do you believe in subliminals messeges? I can help you
I'm still going through that now! Luckily I found a doctor that told me about adrenal fatigue and helped me tons. I was also diagnosed with POTS and there's some symptom overlap. The exhaustion and brain fog was definitely the worst!! The medical gaslight though...😤
I believe it helps a lot if one has money and/or has an aura at the doctor's office as if one is armed and ready to take any measures if not treated properly or sent to the right doctor.
It helps with most of them. For that hopefully one has some other people by their side to support them or even a whole gang.
Otherwise like you said, the medical gaslighting becomes a game in and of itself.
Basically one has to come with certain information ready at hand and appear like a bully.
Or if one is not in a situation like that, then prepare for the doctor's appointment gather strength, take time and eat properly and come with some ready made list of symptoms and demands.
Basically as if one is fighting for the life of their child.
If you don't mind can you point which symptoms overlap?
💜🙏. Thank the Lord for brighten days ahead. Step by step.
Thanks for sharing ur story!! So glad u found answers!! ❤
God bless you sweetheart ! I’m sorry sorry you have gone through that! Prayers for your healing ❤🙏
Thank you. I needed to hear this so much. I'm so tired.
Thank you for the video! My case is very similar. My whole life had to crash and I almost died until I got any help. Even then I had to order the final blood tests myself to make the doctors believe me. I was then very close to dying and was put in emergency care. I’m now 12 weeks pregnant but have gotten zero help in assisting me and the baby!!! Even at the emergency 3 weeks ago when I came in and was worried of both having a miscarriage and an adrenal crisis they just said you look fine. The baby had heartbeats two weeks ago and I’ve been begging to get help with checking my cortisol and thyroid. Yesterday I found out that the baby’s heart had stopped. Probably due to the lack of cortisol. I’m
beyond devastated and can’t believe how this isn’t more of an awareness in the medical system. I’m suppose to wear a wristband but even so, no one cares!
I am so sorry for your loss. I understand what you are going through. I have been there twice with my heavenly babies. That feeling of helplessness and that you haven’t been cared for or listened to by medical professionals. This may not be relevant but there has been a link to genetic mutations and these diseases. I myself have a mthfr mutation which causes clotting issues and miscarriages. No doctor could tell me for certain why I miscarry but I believe it is due to these issues. All of my live pregnancies I was on serrapeptase and when I wasn’t taking it I would always miscarry early (missed miscarriage) For all five of my pregnancies I was never medicated with cortisol so I am not sure. Again, I am not a doctor. If you believe that the cortisol was the issue than go with your gut but there may be more going on. Maybe get some genetic tests done. Specifically MTHFR genetic mutation. I pray you find some answers. Take care.
@@JessicaHearsey i am supprised about serrapeptase because i discoverd it by Chance and anytime i stop taking it, I feel like my Hormone mechanisms doesn't work properly. Can you please explain a bit further what it does for the body plesse?. Thanks for sharing your Story, it has really helped
Beautiful Messages I agree. I also feel like my body doesn’t work properly without it. Mostly (from what I understand) is that it stops inflammation . For me it helped with fibroids, endometriosis, scarring from d and c, blood clotting issues/miscarriage and obviously inflammation with all of my auto immune diseases-meaning my antibodies levels were less and not attacking my body as much. I don’t understand it enough to know how it reacts with my hormones. Sorry. I just know life is better with it. If you watch my mthfr and missed miscarriages video, I explain it a bit more.
Find a functional medicine/naturopathic Dr for this. This is your best option
Me too ! I’m going through this and I’m so frustrated and tired
My husband has some of your symptoms. He is low energy, feels depressed. He has celiac disease. I have been giving him a adrenal gland support supplement called Adrenomend by Douglas laboratories. It is GF. It works well for him when we remember to take it. I'm praying that you are healed and can reclaim your life with your family!!!
I just watched your video and am sitting here in tears, you have my story
Thank you for sharing your story ❤
Thank you for sharing your story! I can relate to your story about Drs saying it's in your head when you know something isn't right.I am still on my journey but I suspect my problems are hormone related, specially Addison's. Anyways, thank you for giving all of us hope!!! ❤️
I pray for your healing.
I'm so glad you're okay and so sorry for all you went through! I hope the medical field becomes far more educated on adrenal insufficiency soon!
Thank you so much for sharing your precious information about your condition. Love,Mehrunnisa.
I have had my adrenal function tested a few years ago, and it was very low but being diabetic my doctor concentrated on that not the adrenal issue. I still often feel like I'm living in a fog. I need to follow this up. Thanks for this video
How good for you to post your experience with Addison here! Seems many people watching this recognise your symptoms. Me too; having Hashimoto's and Addison. Sometimes it's such a heavy struggle to keep on continuing with everything you're not doing (as to fatigue). Three weeks ago I started to fear I'd end up in a nursery home, as I am living on my own. A TCM (Chinese approach) therapist nudged me and my body onto the right path, feeling much happier afterwards. I had a new appointment made immediately and am looking forward to going to see her again in a week. I am not saying this is a means for everyone though and I'm not a doctor either. Although sometimes the doctors give me a feeling of well....not finding anything wrong with me and me thinking I know my body a lot better than them all together. I am now reading a book on sodium bicarbonate as a means to better many ailments (Marc Sircus it is I believe). Amazing. All good luck to you Jessica!
Hi..thanks for sharing..I'm an open minded dr..have just made this diagnosis on myself a few days ago..no blood tests yet done but colleagues want me to get my head scanned...I have extreme tiredness and sleepiness on minimal exertion as well as dehydration. Legs turn to jelly soon after standing or eating...no hypertension or diabetes..only ibs historically..luckily I had read about this a few yrs ago and treated a few patients..so I managed to fit the symptoms together...dont forget adaptogen and vit b c zinc n magnesium too..hope someone benefits. God bless u all.
I am 66 and was first diagnosed with Mitral Valve Prolapse syndrome with dysautonomia at age 37. I also had a lot of (not full fainting) but standing up and in the beginning stages of fainting, and would immediately grab the couch or chair to sit back down. I was diagnosed with fibromyalgia and then MS., and several other autoimmune diseases. I was put on a no grain, not sugar (even abstaining from fruit and juices) no processed foods, no dairy, eating routine. I was 80% better in 2 months and my cholesterol plummeted over 120 points in that time as well. My body inflames horribly if i eat the least bit of anything within these restrictions. 4 Years ago, I was in what was considered the final deadly stages of Lyme disease. I could not eat, got down to 80 lbs on a 5'5" frame. I used a natural tincture to begin my healing on that. Then my Welness Dr gave me a leaky gut protocol and that was a real life saver, but my diet remains in that limited state and I have three baskets of nutrients I am suppose to take to get myself on an even balance and that alone is taxing.
I try to rotate them but I am exhausted from the entire routine.
If I begin to lose my balance I have to get back on CBD for awhile.
I have been told I have adrenal issues, but now refuse to go to an M.D. because they are closed minded and hateful.
I hope something can come about to help, but I am totally against Big Pharma so it would have to be natural.
dr I highly suggest checking your b12 too . Seems to be a pattern (before a blood test be off supplements or energy drinks containing b12 for about a week )
@@pamscarr8696
Hold on to your health, keep fighting, don't lose hope, sounds like you have had some things right.
Also there might be even better doctors around, that can advise you better.
Or maybe, just in case, moving to a warmer location where one feels better in general might help. Having nature, forests, good air, good water might help as well.
@@TheShamurajaok
@@tinyty6570I agree to optimal levels b12 + iron inflam checks
Beginning my journey of addressing this issue and already getting resistance from doctors 😢 looking for answers. Thank you for sharing ❤
Thank you so much for opening up about your journey! I have similar symptoms, though not as severe. As I have a history of Graves disease, my endocrinologist had just ordered tests for steroid hormones / adrenal insufficiency. Hoping to get answers soon. I wish the journey to diagnosis was easier for everyone. It sucks to be passed on from one specialist to another without answers, as I've experienced. I'm glad you're starting to feel better and I wish the best for you and your family hereon!
Thank you for your comment. Unfortunately, most people need to get to there worst before getting a diagnosis. Hoping you are one of the lucky ones to get diagnosed before almost dying. All the best on your health journey.
Thank you so much! I'm seeing an endocrinologist on Friday! Your symptoms are exactly the same as mine! All these years I've let family, friends & doctors tell me that I'm lazy and that I'm drug seeking for my abdominal pain. It has become so bad for me that I only shower twice a month because of the exhaustion and pain it causes. I do use baby wipes every day on important parts. So I'm not dirty. I never leave my bed. I've been in the hospital twice in the past 12 months.. They didn't check my cortisol levels. My labs showed everything else that points to this. They just labeled me from the start so they didn't look. I can't live this way anymore!😭
@@barrismith8930 I begged my doctor to take my blood to check for "Functional B12 deficiency". And he found it! I was correct!!! I have to begin Vitamin B12 injections as soon as possible! .......
The reason why we are waiting is because I TESTED positive for Covid19 last week and I'm immunocomprimised and still very sick. So as soon as it is reasonable to begin treatment, we will. I am so relieved 😌 that I was actually listened to by my doctor. I am guessing this will change my life.
I think you are a brave and admirable person who must have felt terribly let down and neglected by the medical community. I am so glad that your disorder has been properly diagnosed and treated. It saddens me when I hear about poor diagnosticians who don't listen to their patients and write them off as nutcases. God bless you for sharing and every best wish to you and your children.🌷💜
“Poor diagnosticians”
Are you kidding !!! Don’t you understand those “doctors” did these terrible things to ALL THESE GOOD PEOPLE !!
They poisoned them and then
My adrenal insufficiency manifested itself as a side effect of cancer immunotherapy. My oncologist recognized it at an appointment in which he did not even know who I was until my wife joined us. I had digressed to the point that I could not walk without a cane or my wife’s support. Fortunately my oncologist recognized the rare side effect and prescribed hydrocortisone,
;since then I have had to learn how to live with adrenal insufficiency and am still learning. Don’t let the doctors hold you back. Darlington, South Carolina USA
Same here.am still finding it hard to decide what is immunotherapy related or cortisol related.am on hydrocortisone and I feel so much better.
Same. Adrenal insufficiency due to immunotherapy for breast cancer.
You made me cry when you said you were ready to say goodbye to your kids,I feel like that and I have a 3months old baby with other 3kids
This is a great and very informative video.
Thank you for sharing.
Thank you for sharing your story.
Thank you 😊 for your information ❤
I am so sorry 👀 it you so long to find out. My doctor thought I just wasn‘t willing to work and was pretending to be sick. At that point I was skinny, brown, weak, exhausted, dizzy, sick, could not concentrate… I googled my symptoms and went to another doctor who checked me for Addison‘s and the results were a catastrophe. He sent me to an endo then and the latter just looked at me and put me on hydro before taking my blood again. It was like you experienced it, I felt much better within days.
This „It is in your head thing“ is so dangerous. I could have died as well and at least one of my friends with Addison‘s as well. I had Hashimoto‘s before, but it didn‘t affect my life to be honest.
I had the same experience some years later before I got diagnosed with CFS/ME. One said again, it was in my head, but thank God the others I met confirmed that despite my health issues, my mental health is fine. Then it was my menopause, but it hadn‘t started. And then I found a doctor who finally diagnosed me with ME.
So I know how you feel. It must have been a very hard time with so many kids. I could only conceive after starting with hydrocortisone. I don‘t know if I could have coped. No wonder you passed out so often.
I didn‘t get the last bit about hormones, as I am German and brain-fogged, but maybe it might help you if I write down what I am taking:
First hydrocortisone, mostly 30 mg a day, I tried to cope with less, but it didn‘t work.
Fludrocortisone, of course, for the blood pressure.
L-Thyroxin for my Hashimoto.
Vitamin D because I don‘t have enough.
I tried DHEAs, it is somehow linked to the sexual hormones, I forgot, but it is not really measurable in my blood. The only thing happening was greasy hair plus acne like in puberty so I stopped taking the tablets.
Nothing for ME, tried everything that might help with different Fatigues, did not help.
What I find helpful, as I am really intolerant to heat since having Addison’s is a cooling vest for the summer which I can wear under my clothes. You wet it and while drying on your body, it will keep you cool.
Warm wishes from Germany, take care 🍀
You are so right about adrenals. Since there is no actual easy way to get help on the medical system. You must take action yourself. You are so smart.
You are so kind. Thanks.
Thank you for sharing your story. It's a shame it takes the medical profession so long to figure out the problem sometimes, and we get told it's all in our head, etc. Good for you to keep fighting, I'm sorry you had to go through so much pain before finding the answer.
Thanks for sharing so candidly about this illness. My sister has it too. She's never shared openly about it with me, and I didn't feel led to pry. Now I can see some of the severity of what she may have gone through. Your story is parallel to her's in many ways. Doctors seemed clueless to detect what was causing her illness.... Took a long time and lots of tests and persistent effort to finally get a diagnosis. So glad you all have persevered and found the right treatment!
The 'medical' doctors are doing the damage to children (vaccines) about 30 vaccines for new borns back in the 1980's. Its poisoning the USA citizens, an bioengineered attack against the USA by the enemy countries (china, russian, iran).
Thank you for sharing your personal battle with adrenal fatigue. I am not alone. Your feelings of imminent death is exactly how I was feeling until very recently. The apathy of clueless doctors, wrong diagnoses, etc. all my own experience. I hope the hydrocortizone treatment Ill be starting soon will be the answer. I need my life back.
Thank you for your comment. There is a lot of misinformation with these diseases. You are not alone. Life can be so good. I’ve been diagnosed for a year now and things look so much better. Keep hoping, keep pushing. Sooner or later a good doctor will come along and you will get your answers.
@@JessicaHearsey im not sure what's going on with me but its like iv got low energy and when i lay down for bed i sleep not so good but when i wake up im feeling really scared and i don't know why all it makes me feel like is im going to die. Is that kinda what you went through?
Adrenal insufficient here also, by way of bilateral adrenalectomy years 23 yrs ago and 2 yrs ago had a pituitary tumor removed. I’m on the same meds, but most days just get by. Thankful for my endocrinologist truly. Thank you for sharing your journey. Stay well🌹
There is a connection, that with age the pituitary gland( and the thyroid) has to work more to even out the lesser functions of the adrenals.
I hope I can supplement and strengthen all three of them, before they get too exhausted.
And of course the support of the gut problem has to be maintained.
Thank you for your video. You really helped.
I started feeling the shoulder weakness almost 4 years ago and I wouldn't have known anything was wrong until I took up dancing and within a year I would feel the same way you feel..I know that feeling with the heart...like a bowl of jello is shaking inside your chest and you can feel it in the back of your throat...it's an easy one for us to diagnose...theirs no way you can you can't come to that conclusion when you feel like we do all day everyday
Im so glad you are feeling better and received the proper diagnosis. I am so surprised to did not have a adrenal crisis having the flu and not being on your stress dose or any dose of hydrocortisone and fludrocortisone. I think some of your viewers are confusing adrenal fatigue and addisons disease which as you know are two very different things. I am not sure if you know about NADF it's the National Adrenal Disease Foundation but they are a great resource! I hope you continue to feel well!
I am still not sure when me passing out or “shutting down” becomes an adrenal crisis. What I mean is, where is the line? When does it turn from one to the other? I am pretty sure I had several adrenal crisis’ before diagnosis. Especially in the hospital when they couldn’t figure out how why my blood pressure was dangerously low and I was essentially dying.
Yes I agree. A lot of my viewers do confuse adrenal fatigue with Adrenal insufficiency. Not even comparable really is it?
Thank you for your comment. I think it is important that people know the difference. I even get people I talk to in day to day life that confuse it too. Thanks for the well wishes.
@@JessicaHearsey that's why it's so important that we educate anyone who will listen! My son also has Addisons Disease and as you know sadly his story is similar to your story. Doctors just don't know and it can be so upsetting. I am glad you are living a healthy normal life and listen to your body. My son does as well. He has a very physical job and just works with the cues his body gives him like when to take more hydrocortisone. I am grateful for people like you sharing your story. Best.
Thankyou Jessica for your video I have just been diagnosed so it’s nice to know there are other people or there 🥰
Thanks for your comment. It was really hard when I was trying to find a diagnosis. There were no videos to help me. I wanted to make sure that others had a video to help them.
@@JessicaHearsey Thankyou for your reply it’s interesting to hear other people’s journeys with their health I can’t believe that I have been diagnosed with three things this year diabetes, respiratory failure and now this . . I didn’t know anything about the affects or about the subject matter. It was really helpful for me to understand how it is and especially videos of real people with the same diagnosis
@@unsolvedcasesandnews unfortunately, people like us tend to come with packages of autoimmune diseases. It’s like the “rich get richer.” You will find your balance. I know it can seem too impossible initially but one day you will look back and see how well you have managed to balance it all. Take care.
@@JessicaHearsey thank you Jessica this is so true they absolutely do come with a selection of diseases. Some diseases seem to come hand in hand. Most days, I'm very optimistic, but on the odd days, I'm just struggle. What do you enjoy doing during your spare times ? I hope you have a good day. Thank you for the message 💬 😀
@@unsolvedcasesandnews when I have a spare moment (which is rare because busy or need to rest) I love reading, bushwalking, writing songs. We also do a lot of renovating which is kind of a love hate relationship at then moment.
Thank you 🙏🏼
Thank you for sharing.
It took since 2009 to 2016 for them and after so many symptoms, they tested my thyroid and found Addisons. It's been a struggle. Doctors DO NOT take it seriously. I havr had several pass out attacks at work. It's embarrassing. I adore you. ♥
Thank you for sharing your story! God bless you! I’m so happy you have been diagnosed. How long were you having symptoms before you started getting to the point you were fainting?
Wish a great health 🙏❤️
Had to self diagnose as well. After years of trying to get doctors to order a CT or MRI of the brain I finally applied enough force to get an MRI. Brain tumor, following surgery resulted in pituitary loss and I have worse symptoms now. But... I'll live longer so, that's good.
Wow, I have also had a hell of a time getting a brain CT or MRI ordered. Still haven't had one. Why is it so hard lol.
Thank you for mentioning mthfr genotype, others can go find out if they have thst too. They would need active folate not the normal folate supplementation. It's also called the 5-mthfr and it's best to just inject it and get a boost.
I'm dealing with some of those symptoms. I have flares every couple months where my blood pressure gets low, last flare yesterday was 88/53 with a 57 BPM and I have stomach pain and gallbladder pain and just generally feel cold and exhausted like I'm running hypothyroid. Even though today after the extra salt and a Prednisone I had yesterday I feel like I'm borderline hyper and I feel really warm.
Getting ready to have tests to check for it in about two weeks because I already have a hashimoto's and hypothyroidism diagnosis.
I had a lot of the same symptoms except fainting from June last year on. I still have some of them come up at times and I’m still trying to figure out how to get better completely if possible. The latest thing I’ve started on is called the Root Cause Protocol by Morley Robbins. I don’t know if it’ll solve it since I’ve only been doing it for about a month, but I did have a doctor tell me that I have some of the beginning signs of iron overload and that can affect adrenal function, so that’s why I’ve decided to try it. We’ll see how it goes.
I have the same issue. The hormone deficiency could be with testosterone, dhea, progesterone. A urine test confirmed this for me as well as chronic adrenal insufficiency
Thank you for this video! I was just like you, every doctor jumped to anxiety or depression. Finally a Nurse Practitioner believed me, and ran very thorough bloodwork. My cortisol was low. I was sent to an Endocrinologist, and I passed the stimulation test. However, my cortisol was still low. I was diagnosed with Adrenal Insufficiency and treated with Cortef. It has helped immensely, but it is still a struggle some days. I have Raynaud's, and I was told by my Endocrinologist that these kinds of diseases so often come in twos. I wish there was more light shed on this disease because it can be unbelievably debilitating!
Malorye M thanks for you comment. It is so encouraging to see that there are medical professionals out there who do listen and who do believe us. Yes, unfortunately, those with auto immune diseases tend to get several in their life time. I have 4 diagnosed auto immune and two more that I believe I have. It’s just our reality. It also astounds me how one tiny problem in our bodies amounts to great debilitation. All we can do is try to live our best lives and trust that greater good will come from this.
After watching this video. Jessica you saved my life i am going through the same symptoms and situation i will be definitely go tomorrow to endocrinologist and check my adrenal insufficiency.
I’m so glad you recognised your symptoms. That why I made the video. Thanks for your comment. All the best finding treatment and good health.
I have same symptoms
My doc think everything in my head she said it’s just anxiety 😥
@@karamjitkaur9666 keep looking for a doctor who believes you. You know there is something wrong, then keep pushing.
i was going through much of same symptoms for a long time, it was CT scan of my GI system that found a small nodule on my adrenal gland that got me thinking its was adrenal related. i've been taking small doses of a mostly clean adrenal supplement with freeze dried adrenal, by small i mean i break the dose into 2 or 3 smaller doses. its done wonders for me even clearing up 2 year old lung fluid issues, mental fatigue is much better, energy levels better I issues are almost gone, etc. my blood work isnt supportive of adrenal issues but after years of mental fatigue i have no desire of stopping treatment unless i can find another cause. im in the states where healthcare is hard and expensive and usually i'm ignored, maybe i'll get MRI of pituitary gland in Mexico or Asia when i visit there in a few months
FREEZE DRIED a clean adrenal sup i dont get it ? What do you mean and how do you get this ? for swelling five years ago they gave me dexamethisone and destroyed my life. still waking with shaking depression fatigue fog like death and takes hours to come out of it a little better as its hard to explain . Nurse who gave me dexamethisone steroid said i don't know but this might be very bad for me and i did not understand what she ment in any way. likedoctor knew what he was doing but gets 4000 dollars a shot.
I have Addisons Disease with Hypothyroidism and I have been experiencing those same symptoms you described but along with feeling weak in my legs and arms I would smell a chemical smell coming off my body and nobody else could smell it. I have been looking to see if someone has been dealing with the same issues because doctors look at me like I have 4 heads when I describe it. Thank you for your video. I am 55 and have been dealing with this since 2002.
Sorry that you have been dealing with this for so long and that the doctors don’t seem to be listening. It is interesting about the chemical smell. I wonder if anyone else here has experienced this?
@@JessicaHearsey The older I get the crysis spells get worse. I drive a tractor for a living and the long hours do not help. I know a lot of people who have this disease are on disability because the flair ups are rough. Disability would be a last resort for me.
@@JessicaHearsey I am being tested for this tomorrow, my initial cortisol was slightly low. I have had weight loss, heavy legs & arms, weakening muscle strength, brown darkening on my hands and gums also the palms of my hands that come & go. Ironically, I also keep getting weird smell which seems to be coming off my body and I am so clean and into fragrances, so I always smell good and sometimes when I get that quick whiff I ask myself is this in my head?
Thanks for sharing you did encourage me
your symptoms were similar to what i had and i had more symptoms. Each day i felt i wont be living any longer. No doctors knew what it was even after being in hospital for a month until i went to Singapore where the doctor admitted me. They diagnosed me right. Since then i have been on hydrocortisone. Got my life back
How does the hydrocortisone make you feel? Can you think more Cleary and is your brain fog gone. What about your fatigue and energy are they better?
Thank you for sharing your story! I've been feeling many of these symptoms for years. But all my tests always come out normal, even though I feel horrible, it's frustrating. I'm going to look into seeing an endocrinologist.
I would recommend getting a salivary cortisol test done. It’s a 24 hour test, regular test thru the endocrinologist are not accurate. I had to order mine myself from quest diagnostic in Washington since my own specialist would not do it. Now I finally know that my cortisol levels have been extremely low for a while now
These damn so called Doctors have a lot to answer for! I’ve been struggling now with all these symptoms for the past 2 months. For the first time in my 35 years of working, have I ever had to take 3 weeks off due to total exhaustion, near loss of consciousness (whilst driving a vehicle also), severe heart palpitations, 7 trips to emergency, pain in my body from head to toe, only for some Numpty doctor to tell me I need a mental health plan to see a psychologist. They ask me if I have anxiety issues, HELL yeah I have anxiety issues cos I’m about to drop DEAD any second!!!!!!!
Deanne Jones I feel your pain. Ask to do a insulin intolerance test in a hospital. This was the only way I got them to finally take me seriously (when I had test results)
Jessica Hearsey Thanks Jessica, I feel an 8th emergency trip coming up soon as I feel like death and will ask for this test 🙂
I’m very appreciative of videos like yours
Thank you for your comment. You’re very kind.
The medical industrial complex's failure to properly research and diagnose and treat diet and microbiome and sleep and vital nutritional deficiency issues (including those related to Vitamin D3 and Vitamin K2 and Magnesium deficiencies as well as iatrogenic prescription medication usage) is a major reason why psychiatric iatrogenesis is a primary contributor to the third leading cause of death in the U.S. (which is iatrogenesis in general). If the U.S. spent just a fraction of the over $40 billion each year it spends just on iatrogenic psychiatric drugs alone, for properly researching the issues discussed in this and related TH-cam presentations we would probably, Lord willing, achieve an absolute revolution in medical efficacy improvement and iatrogenesis reduction.
Thomas Steven Roth, MBA, MD
Christian Minister for Biblical Medical Ethics, and therefore, Scientific and Religious Refugee from the Clinical Practice of Psychiatric Standards of Care
They actually know about D3.
In Germany it was a given in earlier years to advise the mother to give her children a high dosis of vitamin d3. Now it is considered as high, back then it was considered normal levels.
It was seen as a necessary part of their development, and from what I heard from the doctor talking about this - he said that kids were growing up robust because of that. It built the immune system.
Later on the dosis was declared as too much and not even necessary. This is how we ended up at a point, where now the medics and pharmacist advise only to take it at a very low potency. If any.
He said that they have the statistics, that all kinds of immune diseases and other unnecessary stuff went up, because of the immune system.
I've been going through adrenal fatigue (HPA axis stress dysfunction.) it's been horrific. This is a sixth year and I'm finally coming out the other side. No help from doctors, I had to find out things myself. crazy covid didn't help. Thankfully I didn't get the clotshot in my already struggling body. I have to take things very slow. it's been a crazy ride and cost me a fortune trying to get my body back. I'm using cannabis in coconut oil now and I'm finally feeling good again. I still get bad shaky days but they are getting less and lasting less. I probably will never fully get my strength back but I'm 77. so expected. I will admit there were times, because it went on and on, that I didn't care if I'd died, it was so horrible. But I am better so be strong, LOVE YOUR BODY especially when it is struggling. Treat it as you would a sick child, with tender love. it will respond accordingly.❤❤❤
Wow, you hit the symptom descriptions right on. Exactly how I felt and feel. Was diagnosed with low cortisol as well as macro adenoma.
Luckily my cortisol came back up post surgery. Good luck and thank you for the video!
Thank you for posting your experience. Having a lot of symptoms and only recently starting different tests for adrenal insufficiency. Results are not yet in. I'm pretty convinced it's either Addison's or Lyme disease. Any of the testing I've received has come only after years of suffering and doctors telling me there's nothing wrong and patronizing me in appointments. Any testing I have recently had has occurred because I've become SO incredibly sick, basically pleading with doctors to consider various tests. In some cases, my pleading for help or for a closer look at the bizzare results in my blood work was interpreted as my "being belligerent". My last trip to the ER, the doctor clearly had no interest in examining me and conducted a perfunctory physical exam while literally rolling his eyes. He told me there's nothing wrong with me and, if there's anything wrong, I should be seeing my GP. I asked a few questions about my symptoms and about his exam and he refused to answer my questions. I had blood work from a recent doctor's appointment and asked how they to compare with the er blood tests. He literally refused to answer my questions repeatedly stating one phrase: "this is something you should discuss with your GP." I have been in this ER several times, two times for me, and a few other times with family members. This was not a busy day at the ER. There were very few people in the waiting room and many of the beds in the adjoining areas were empty and no other bed in my area was occupied, meaning, there was no pressure for this doctor to rush or run off to go see another patient. He had time to talk with me, but he just refused. He clearly had a bone to pick in that I had gone to the ER for what he thought was no serious problem. I asked if the ER had results from my blood test. Again, he said, "these are questions for your GP." I replied, "But I'm here now and you're in front of me as a trained physician. Can you just look at my test from three days ago and see how it compares with the blood tests from here?" Silence. I asked, "Are my ER blood test results even completed? Did you see them?“ Silence. Complete silence with the ER doctor crossing his arms and rolling his eyes at the effing ceiling, now even refusing to LOOK at me. I said, "It is customary and polite to respond when someone asks you a question. I answered the questions you asked me at the start of this exam. Why do you feel you don't have to answer mine??“ Silence. Again, I asked, and yes I was frustrated and spoke loudly, "Can you just at least tell me if you have seen my previous blood test and if it compares with the current results you have taken today?!?“ He stood up and said, "I don't have to stand for this abuse" and walked out. I stayed put (15 minutes or so) until two nurses came by. I told them what happened and asked them to please ask the doctor to come back into the room and for them to stay in the room with me while I asked my basic questions. They spoke with him, but he refused. The ER report included a description from this doctor and the supposed exam he gave me. It was clearly some sort of cut-and-pasted "all is normal" description including observation of normal saliva in my mouth, though he never once asked me to remove my mask. The kicker was the last sentence that said, "the patient became belligerent, thus ending the exam." I've always intended to write the hospital a letter to describe this horrendous and belittling treatment I received while at the ER. I just never had the chance to do it because I've been so tired.. but, guess what, I clearly was motivated by your descriptions of improper diagnoses and have finally put my most recent ER experience into words. So I'm going to doing some cut-and-pasting of my own and finally send my complaint letter to the hospital, requesting an apology from the doctor and a redaction of the last sentence of his exam description. And I will write the hospital every single week until I get an answer. By the way, I'm very thankful for those two nurses who spoke with me after the ER doctor stormed off. At least they gave me some anti-nausea medicine and a few sample packs to take home with me. It is just a tragedy to think of how many people are not being cared for (CARE!!) by so-called medical professionals. I've had symptoms for 12 years now and I'm finally getting some answers, not because of what doctors have done for me, but because I've recently invested every waking moment I've had (practically ignoring my children) in order to find out what the f is wrong with me. Where is the art of Clinical testing? Why aren't the physical symptoms described by the patient allowed to speak for themselves and propel the diagnosis and treatment? Also an interesting fact from this particular trip to the ER, the intake nurse was also really kind. At one point, she leaned over to another nurse sitting behind the reception desk and asked, "She looks yellow. What do you think?“ Maybe had the ER doctor could have noticed my yellow complextion had he stopped rolling his eyes for a moment to consider actually caring for me as a patient. What we need is a book that teaches patients how to actively and effectively pursue medical care when repeatedly faced with uncaring medical personnel. Thank you so much for letting me get this off my chest. It's heartbreaking to know that you had to go through so many different doctors to finally get some answers. I wish you ever-increasing health and joy.
@audry Blessman What do you think what has caused Lyime or Adrenal problems. i know as i bet a million People have the same symtems turned away. Have you taken Steroids like Prednisone dexamethisone triamcinolone Creams? Adrenal Damage is sure to be the cause as they get big money injectiing steroids. Did you know FDA never approved steroids ? Having the same problems with shaking waking Depression confusion and other problems still after 1 injection of dexamethisone steroid for swelling from poison ivy. Doctor ordered and nurse warning me directly that they are worried and the danger of taking this injection. i did not understand and took it as the nirse said ok but i don't know if what this can or will do to you. My family doctyor said i was steroid induced cushings syndrome as a very healthy person but no longer. for 2 years i went through the worse Steroid psychoses and recovery 5 years later is very little. Dexamethisone induced adrenal shut down or adrenal corisol Insaficencey is horrid. my doctor very kind but does not know how to treat it because its very dangerous and causes more damage. unless your adrenals are done with ? You would be an induced Addisons patient taking hydrocortisone human made hormone STEROID for the rest of your life ending up with Osteoporosis. my Doctor said many bad doctors in this country as i replyed really like i did not know? New England Doctors are stoping the treatment of steroids all together unless mandatory . not all but many no longer give this poison do to so many people home sick in agony confusion. How dare them give this out still wile not approved by FDA. lyme disease would be the last bet but how are you Doing now 5 Months later and i wish and hope you Got some real help ? Endocrinologist don't seem to do well with what they are trained for. i hear to many problems with them and why i won't go is they are to quick to put you back on the poison that got you sick in the first place. If feeze dried helped you so much why would you end up in the E/R? Hope you found the right doctor.
Have you got any new news or diagnoses since you wrote this? I strongly believe I have adrenal insufficiency and can't get ANY Dr to do tests much less entertain the idea of my adrenals being what's making me so sick. I feel EXTREMELY unwell these days and I literally feel like I'm about to die.
Hi, did you find any answers? I too keep searching for answers as I've been I'll over 10 years and I'm in my early 30s with children. I have recently found out about the parathyroid (not the thyroid) being similar to all these symptoms and with your yellowing skin that could be another indicator. Maybe something you can look into. I hope you've found some help! X
I've been suffering with fatigue for37 years and doctors just say it's all in my head. But I think it's my adrenals so im just going to take adrenal support vitamins and read a book called adrenal resolution to fix myself!
So few doctors think of endocrine problems, and it is common for people with them to have gone through a plethora of medics and being told ther is nothing physically wrong before anyone thinks of any endocrine tests. I think medical students and general doctors should be made much more aware of this.
I teared up along with you x
Ps what did you say at 9.15? Was it a growth hormone deficiency?
Great video, thank you for sharing!
I was suffering progressively worse(but seemingly random) symptoms for about 10 years before being diagnosed with Addison's at 27; after being hospitalized twice in a month with Norwalk Virus. I'm now 36 and I was diagnosed with Hashimoto's a year ago.
Do you still experience brain fog?
Do you have any memory issues?
Stay strong and carry on 😊
Yes I still get brain fog and lots of memory issues. Not all the time though.
Interesting, this sounds very similar to my symptoms and experiences which im currently trying to figure out, I also have hormonal deficiencies and its strange but i also have red hair
Hi Jess I have the same condition as you & I've had many of the same symptoms too. Normal cortisol levels are between 20 & 60 when I was tested my cortisol lvl was 2 dangerously low! My adrenal insufficiency is because I have panhypopituitarism which means all your pituitary hormones are extremely low. If it's hypopituitarism it means a few are low. You really should have your endo test for this condition bc you may have other hormones that need replaced if you do have this condition!
Thanks for your comment. My endo tested me for everything :)
This made me cry 😢it sounds like me I saw an Endocrinologist last week just waiting my fingertips are strangely wrinkly too x
Sorry I made you cry. I hope your endo gives you some answers. It’s so hard to just wait…
Thank you for your story and video. I’m hypothyroid but thyroid medication alone wasn’t doing much so I took the 24 hour saliva cortisol test and it came back very low. I was put on hydrocortisone and it has really helped with anxiety and fatigue but I felt there was still something else wrong. So I ordered aldosterone (reference range 0-30) and mine came back 11. My doctor is very open and is willing to work with me but I was curious of other people aldosterone numbers. When you have an AI diagnosis is aldosterone very low on the reference range? Again, thank you for the video. It’s the only place I’ve heard someone say “I’m not really here.” I know the feeling
Ur story is very similar to mine im hypoyhyroid and wasnt feeling well even with the medication until ended up having adrenal crisis and then got diagnosed with Addison.now im on levothyroxine and hydrocortisone. I have not checked the aldosterone yet but im doing pretty fine with these too.guess some of us do have normal range of aldosterone at the very beginning their diagnose and will start to reduce with time.so keep that in mind
@@deemmut1178 same here 5 years of these symptoms and just now I was told hypothyroidism. Extreme fatigue and anxiety. I just started levothyroxine 25mcg. I pray it works. I wake up feeling so sick and fatigued every single day it’s horrible. It just lingers all day long. Can’t enjoy my life at all. Does that sound similar ?
Dr Berg has great info on adrenal fatique on utube
Adrenal fatigue is not the same as adrenal insufficiency.
I've just watched it !
Adrenal fatigue isn’t a thing. Perhaps people in the beginning stages of adrenal injury are the ones who get diagnosed with adrenal fatigue. Feeling symptoms, but still not bad enough for levels to be completely off. I think if people with Addison’s had consistent testing in the beginning would show up.
Adrenal insufficiency is Addison’s disease. If cortisol goes to low like diabetes it will cause a crisis and be life threatening. It needs a MD not a chiropractor like Dr Berg.
I'm going through this now all the same symptoms except no vomiting. I have had crohns disease for years 12 bowel surgeries. I pretty much lived on prednisone for years finally got off it but was put back on it for something else. I was down to 8mg and got a secere bronchial infection so my dr. Put me on a 40 mg taper dose twice q couple of months ago she took me down fast 10mg every 3 days both times when I got to 10 I started having severe mid back pain. I was diagnosed with diabetes in May my sugars are all over the place high thrn really low I take 4 shots of insulin a day. I have been trying to get the drs. To test jy cortisol level as I realky believe I have adrenal insufficiency. I can't find qn endocrinologist none around here are taking new patients. I'm still working on that. I don't think I have ever felt so defeated in my life. I'm scared something bad is going to happen to me before I get tested or in to see an endocrinologist. At times I feel like I'm dying I feel so bad it's very hard to describe it. It's not a good feeling. Thank you for sharing your story I don't feel so alone.
You sound like the perfect candidate to have AI as well. It wouldn’t surprise me. Yes getting in to see a doctor can be so frustrating and usually the ones who are available, you don’t want to see. Keep looking and try explaining your situation to secretaries of the doctors. sometimes they are heartless and sometimes they push you through. I felt that way too. That something bad was going to happen before you get help. I have no words of encouragement for that because I have found that to be the hardest time of my life. The only thing I can say is to keep hoping that you will get your answers.
@@JessicaHearsey I just was diagnosed with secondary adrenal insufficiency Thursday I knew I had it.
Hey! This is off the wall but try reading the book The Water of Life by Armstrong. Heals many things.
I am on iron pills but never fainted. Instead I found my way to a bed...all the time. My blood pressure is high randomly and I grow annoying facial hair which is an adrenaline gland malfunction. I also have messed up menstruation and ovulation. Also related. Gotta get diagnosed...something is up with my glands.
Great video I your story. I also have addisons disease I was born with it I'm 50 year old male I take the same steroids your taking. The only bad thing about taking these meds for a long time I have early stages of osteoporosis so they do a bone density test every 2 years. Thanks and take care.
Thanks for your comment. Is there anything we can do or take that will prevent osteoporosis later on or is it just something we will have to deal with?
Yes talk to your doctor I take a supplement by New Chapter brand it's a calcium supplement to make my bones stronger.thanks and take care.
@@manuelsanchez9236
If vitamin d deficiency is not corrected - calcium gets drawn out of the bone too much.
Vit D and calcium work in tandem. Only by taking vid d3 ( and K2 for that matter)
One can make sure that calcium gets absorbed from the gut.
If one doesn't take K2 together with d3, I was told by a private doctor, that the calcium gets deposited in the wrong place.
So please admonish your doctor to take these important, but actually well known facts, into account when treating your osteoporosis.
Or take these supplement by yourself - as high of a dosis of Vit d3 that you can get and the amount of K2 does not have to be proportionate to D3, but better read up on that once again.
Also a good team is Vit d3, K2 and Magnesiumcitrate.
Hi Jessica, thank you soooo much for this video. After I had my baby I had severe postpartum depression and anxiety. I never saw a doctor because I thought I could fix it myself. BAD IDEA. it got to the point where I had adrenaline rushes to my brain that I can literally feel the surges. Insomnia came after that. I didn’t sleep for three days after that. I was losing it. My body then just crashed and I felt the same symptoms you ha: and then some. I’m curious, did you have sleep problems as well?
Yes I do have sleep problems. I also believe I had postpartum psychosis with my second. I have always had postpartum depression and prenatal depression for all of my pregnancies. I still have sleep problems now. Never as bad to not sleep for 3 days. I tend to swing from being so exhausted to wanting to sleep all the time to still being exhausted but having insomnia (mostly related to anxiety) I sometimes take phenergan or melatonin to help me sleep because if I don’t get a good night sleep I go into a crisis. Sometimes I have to take these if I had to take my hydrocortisol late in the day as well. Not sure if this helps anything.
How are you now???
@@JessicaHearsey Yes, sleep is one of the big pillars.
I have found cbd quite good.
Also St John's Wort - maybe also during the day, if one feels would up
Valerian, Pasiflora and in the long run I believe adaptogens helped a bit.
Wishing everyone to be healthy and thriving.
"I can't throw one foot in front of the other" is what I say. People also accused me of being drunk" I get you all the way. I can't absorb information.
Thank you for sharing. My symptoms seem to be very similar to yours. I had some strange frequency scan done (don't know how legit it was) on me and one of the main problems that came up was severe adrenal fatigue. Was hell on earth, struggled to lift my arms, legs, struggled to breath, felt like my heart was not beating properly, felt like I was going crazy. There was no way in hell I could work, driving out was courage itself because I was afraid of passing out. In the beginning I felt like I was dying, literally wrote down a will. I can understand the floppy legs. Arms would go numb at night. Climbing a flight of steps took me about 15 minutes of heavy breathing. Lost huge amount of weight suddenly. Also had to add salt to my water otherwise my body would not absorb it. I had recently gotten out of a cult so had no medical aid. My husband would not help me either because having the cult mentality (Church of Scientology) he thought I was making myself sick . We are divorced now (yay!) Am still not 100 but much better thanks to vitamin drips and keto. Took 3 years. But after hearing your story I feel that maybe I should go an endocrinologist as well.
Definitely go see an endo as soon as possible. You sound like you have Adrenal Insufficiency. Don’t wait for symptoms to get worse. Now that you are free from the cult, do you have any support around you? Someone to help you get to see doctors etc? Having people who believe you and can support you is imperative to getting better.
As I am still quite a newly diagnosed person. I thought I would put the question out there. Does anyone have any suggestions for people who are trying to be diagnosed? What tests they should ask for? Etc. I am getting a lot of questions and I wanted to open it up to the community as we would have a collective wealth of knowledge beyond what I have.
I have understood that you have to ask for a salivary cortisol test. If your doctor doesn't order you to do this, he/she probably doesn't know about it. Some doctors, especially natural medicine doctors who know about this, ask you 4 or 2 times a day to obtain results of cortisol levels during the day, because cortisol levels are not the same during the day, unfortunately many conventional doctors do not know about this issue or in many small countries they are not done in laboratories, search the internet for cortisol in saliva curve to get an idea of how the curve should be of cortisol.
myself have this problem but it is not yet ''official'' or solved yet because in my country these tests are not done, soon I think I will send my saliva sample so they can do .meanwhile I'm going to start with natural treatments to see how it goes
@@rujensleymercelina2866 Millions suffering from the pratice they give patients for simple swelling. Dexamethsisone indused adrenal shut down is murder a doctor in boston Massachusetts said. i believe him because of a doctor giving me a injection for swelling from poison ivy. 5 years ago . 2 years of the prse psychoses and today till waking in a death like feeling shaking confusing and sleeping only 5 hours because woken from this horrible shaken. nothing they will do because they know steroids would suly kill me taking it to rase or level cortisol. 5 years and very very little recovery from that poison. i found out the FDA never approved steroids. Dexamethisone prednisone
Hello,
Thankyou for sharing your story with us.
I have been having similar symptoms. I was on a wait list for 6 months to see an endocronologist and when i seen him he told me my symptoms are from depression and anxiety and that he will tell my gp to refer me onto to a psycologist! Seriously i feel so down about this as im unwell and need testing and a diagnosis. My gp wont order any tests cause he said its upto the endocronologist to do that 🤦♀️ so you said you did a insulin test, which other tests did you do?
I did blood work (which didn’t show anything but it might for you) looked at my cortisol levels and aldosterone levels. We also did a stress test with a cardiologist (which showed my blood pressure plummet during the exercise, instead of going up) this was a good indicator that it wasn’t a heart problem but a cortisol problem. I also wore a heart monitor for a week because they really should rule out any heart problems first.
@@JessicaHearsey thanks for your reply. I did a bloodtest for my cortisol which showed up that it was high but my docter didnt request any tests just said its probaly stress. I have done a stress test and it came back okay. Im seeing my gp today to ask for a bloodtest to check for adrenal antibodies since he wont give me the dexamethasone suppresion test.
I have hashimotos and am hypothyroid so i wonder if part of my symptoms are from that.
Do you mind me asking what medication the docter gave you to feel better and also do you have to keep getting bloodtests or not?
@@nmc9929 I take hydrocortisone and fludrocortisone. I am also taking PTU for my thyroid.
@@JessicaHearsey thanks. Do you need to be on that medication for life and are you feeling alot better now?
@@nmc9929 yes for life. Except for PTU because my thyroid fluctuates.
I’m having similar symptoms! My Dr won’t listen, just blows me off! Why is this such a familiar story with doctors these days? 😮What is happening to the medical profession ❓
I am an addict in recovery. I have had to fight tooth and nail to get them to check my endocrine system. I was admitted and I looked at what they said in my charts and the lies and false acquisition they wrote basically saying I relapsed and was messed up.... I have 3yrs clean, later my cortisol was a 2 and I was diagnosed. Now who is going to believe me over the doctors charting in the future that I didnt relapse, I was in a Addisons Crisis
Also I didn’t get told yet which adrenal insufficiency I have 🤷♂️ I’m worried if it’s addisons or secondary or the pituitary tumor and there’s no way to know till my last blood test . It confirmed both times I have a adrenal issue but the next test will tell more in depth of which I’m assuming . I take 7 pills at 12am with food then the next day only drink water before test
My doctor wrote me a script for cortisone tablets because of low cortisol I haven't taken them because I'm worried that I'll be dependent on them so I'm just taking glandulars but having issues currently. I really don't want to take hormones. I've been dealing with a lot dizziness.
Just because test come back normal does not mean you don't have adrenal insufficiency. Ask for more tests. I did the glucose intolerance test (in the hospital) and it showed how I responded to stress all while in the hospital.
Did the specialist determine that you have secondary adrenal insufficiency solely based on blodtest or was it after the ACTH stimulation test ? I am going private since I can not wait for the NHS to help me and trying to find out what test to have done. Thanks for all your info a great help.
All my blood tests came back as normal. It was only after I did the glucose intolerance test were they measured my cortisol and growth hormone in the hospital that I was given the diagnosis “secondary adrenal insufficiency” or “ATCH deficiency”
@@JessicaHearsey Thank you so much!
@@JessicaHearsey is the test safe ?
@@devinpeirce7152 not really. Your body is put under stress to see how it responds. I went into adrenal crisis. That’s why you have to do it in a hospital. They can give you a quick dose of cortisol and sugar.
@@JessicaHearsey what caused your adrenal insufficiency?
Do you ever suffer from stroke-like migraines things? So traumatic. I'm begging for help now im having all this ;) thank you such a great video!
I use to get a lot of migraines. I haven’t had for a few years now as I changed my diet a lot. I am gluten free, dairy free, soy free and I try to limit cane sugar, msg and modified or packaged food. Sorry this doesn’t help you much right now.
exact same symptoms i am experiencing from last 6 yrs
Hey how are you now
How many mg of Hydrocortison are you taking daily? Thanks
I have Addison's and Hashimoto, my doc told me I have anorexic and bullimia. That didn't make sense. I didn't have any of those two eating disorders.
I too was told that I had anorexia. The doctors should not just look at the facts of how much or how little we are putting in our bodies. Anorexia is also psychological and people with adrenal insufficiency do not have the same fear or anxiety about gaining weight/loosing weight. This just shows how ignorant some doctors are.
Time to get a new Dr love.
@@JessicaHearsey exactly, my doctor didn't understand Addison's at all. He also diagnosed me with depression and put me on medication for depression. I met this doctor at ICU. He refused to discharge me until I start taking the antidepressants. My husband told him that he will take care of me and he sent some other doctor to discharge me. All the doctors approved of me leaving except the doctor who misunderstood my situation. This particular doctor traumatized me 😥 for life. I spent 9 days in ICU because of him.
Creative Fun how awful to be at the mercy of someone who is so ignorant. Good on your husband for sticking up for you. I wonder how many people have been misdiagnosed with depression and have this or have depression that could be fixed?
Doctors are thick.
My auyervedic doctor told my adrenal glands are secreting low ,I didn't care about that ,Cox it's new but as time goes my symptoms are getting worse ,like light headiness ,fatigue&low appetite esp my face is dark even some of my friends &relatives noticed that how dark I became ,when I told the doctor my symptoms ,they are telling it's just folic acid issues ,I don't know what to do ,I'm afraid of admitted to emergency ward one day 😥
Hello
Hope you are doing fine.
I am probably having most of the symptoms,skin tanning, low blood pressure , extreme fatigue and muscle pain and heart pounding as well.
My endo checked my cortisol level at 8:00 am in morning and it was in Normal.
Is it still possible to have Addison with normal cortisol level,if yes what all test could be done
Ask for them to do glucose intolerance test in the hospital. Where they measure your stress response by measuring cortisol throughout the test. It’s a bit dangerous but that is how i got my diagnosis.
do you feel better now? I heard that DF is chronic you can’t be normal I hope isn’t right may gad heal and help us
Every day is different and I have learnt to go with the flow rather than get frustrated. Some days I can’t do much and other days I feel like a normal person. I’m not sure what “DF” is. Maybe my brain isn’t working today but could you please explain?
What tests did you run. I'll go to the labs myself these Drs are useless telling me I'm fine. I have celiac and I'm going to get tested for hashimoto and Addison but I don't know what to check for Addison.
DUTCH TEST saved my life! Just got diagnosed today with adrenal insufficiency..
They usually test cortisol in the morning (which doesn’t show anything really) and then if that is normal they go “oh well, nothing wrong with you then. “Have some antidepressants..” so basically I pushed until they did the glucose tolerance test in a hospital where they measure your body’s reaction to stress. They measure cortisol through out the test and that is how I got my diagnosis with Secondary Adrenal insufficiency even though my symptoms fit better with Addisons. This is a complex set of diseases and no two people are the same. So hard to get a diagnosis. Just keep pushing until you find the right doctor/ right tests.
@@murieltamayo9556 what’s dutch test ?
@@JessicaHearsey o went to hospital and doctor said they “dint test for cortisol in the hospital “
@@devinpeirce7152 you can order Dutch test online. It's a kit. Where they take your urine and saliva and you send it back to them. I'm planning to take it next month
What medication did she say at the end? The ones that helped her?
Hydrocortisone called hysone and fludrocortisone called floninef
I have every single one of these symptoms.
A few different diseases can have similar symptoms to this. For example POTS. Have you started to get tests done?
@@JessicaHearsey diagnosed with pots but pots doc and cardiologist think it's addisons
@@JessicaHearsey my sodium and blood sugars are always low on labs.
How much hydrocortisone did you start taking.
Hi, hope you are well. Is the glucose intolerance test the same as the ATCH test?
I believe so but I am not 100% sure.
I thought that I suffer from it until i heard this video.
Now I assume that I am not.
Perhaps I am resistant to cortisol, but would it not feel quite similar?
I’m sorry, I’m not really sure. I hope you find some answers.
The mineral corticoid shouldn't need to be given if it's secondary cortisol adrenal insufficiency. Aldosterone is a different pathway, should only need the cortisol for your adrenal insufficiency.
I suspect I have secondary adrenal insufficiency from long term cortisone stopping them after years . So I should only get aldosterone and not cortisone ?
Please can you guide me with blood tests... Should I go for ACTH stimulation test or just ACTH level test first
They did general blood tests first and then when that came back as “normal” I then did the ACTH stimulation test in hospital.
I tested for cortisol and ACTH test it came normal ... Should I also do aldosterone
Why is every story the same when it comes to the doctors. "Its all in your head " this is medical mell practice this should not be happening in this day and age its unacceptable. I was ignored for years aswell and even with a diagnosis the doctors are still useless.
Josh Whitney it seems to be the norm to almost die before getting a diagnosis. This is why these stories need to be shared. We need to prevent people going through what we went through. I agree the doctors are not being trained well in Adrenal diseases. Keep sharing your stories people!
@@JessicaHearsey we need a home cortisol testing device. This would change people's lives so drastically. The fact that we are guessing is rediculous its 2020 there are people living in space rite now. Test device would practically stop adrenal crisis all together. The economic impact would be staggering. There is a device being worked on in Houston Texas tech university. Real time cortisol pump/tester. It was patented in 2015.
@@joshwhitney7463 agreed... There is way too much guessing when it comes to these kinds of diseases.
There are more and more practitioners specializing in women's health and these diseases are mostly prevalent in women.
I will go on the hunt for one.
I wish everyone the best in finding the right doctors or forcing them to do the right tests! ;)
So you didn’t feel thirsty but felt dehydrated ? And when you tested your blood sugar on glucose meter was it low ?
I rarely ever feel thirsty, even now on medication. I have to remind myself to drink. I need to drink a good 3-4L per day to stay hydrated and these drink all need to have something in them (lemon or salt and juice or tea etc) I have always had low blood sugar levels except right after eating something really sweet. This would shot down very quickly sooner than it should and I become hypoglycaemic quickly. I have found ways to manage my blood sugar now.
@@JessicaHearsey oh wow ok thanks . I sometimes feel like I have low blood sugar , but my sugar levels are within normal levels when I test it in on my glucose meter, it’s the strangest thing
Same