Follicular Lymphoma: Everything You Need to Know

แชร์
ฝัง
  • เผยแพร่เมื่อ 24 ส.ค. 2024

ความคิดเห็น • 112

  • @vanillathunder3024
    @vanillathunder3024 ปีที่แล้ว +17

    50yr old male here officially diagnosed about 4 months ago, but the diagnoses answered a lot of questions about why I’d been feeling so badly. It’s been a LONG time since I’ve felt myself. Anyway, after 3 chemo treatments I was expecting to feel even a little bit better but my symptoms have gotten worse. Mostly overall fatigue, body pain (muscle and joint), weird body temp stuff (like being absolutely freezing for no reason)and those damned night sweats. Last night I went through 4 tshirts and had to change my sheets because the sweat was soaking the towel I laid under me. It doesn’t help that , like I said above, I get freezing cold. It’s a nightmare. Anyway, I know everyone is different and this disease hits people in different ways but I have respect for anyone that has to deal with this BS.

  • @giannimolluso5846
    @giannimolluso5846 15 วันที่ผ่านมา +1

    Im 55 years old and I was diagnosed with Stage 3 Follicular Lymphoma. I had 4 treatments of Rituxan only and going for my follow up PET scan soon.

  • @ChiyaQT
    @ChiyaQT 3 ปีที่แล้ว +27

    my mom has follicular lymphoma stage 3. she is almost on her 3rd dose of antibody/chemo i really hope she pulls through

    • @GA-fz2wt
      @GA-fz2wt 3 ปีที่แล้ว +17

      Hi,. I was diagnosed stage 4 & in the bone marrow, Follicular lymphoma aged 42,after chemo, 2 year maintenance I got into remission, this was in 2016. Its very maintainable. Best wishes to your mum. 💟

    • @ChiyaQT
      @ChiyaQT 2 ปีที่แล้ว +27

      @@GA-fz2wt just want to update you. she beat it. its all gone. im so happy

    • @GA-fz2wt
      @GA-fz2wt 2 ปีที่แล้ว +1

      @@ChiyaQT Fantastic news to hear! Well done. 💪🤝🙏💚

    • @hiddenname98594
      @hiddenname98594 2 ปีที่แล้ว

      @@ChiyaQT what were her symptoms?

    • @neiceycurl
      @neiceycurl 2 ปีที่แล้ว

      That's awesome. What was her treatment. I have not been diagnosed but I have multiple swollen lymph nodes in my stomach so they think it could be that. I have a biopsy next week.

  • @iamyou8416
    @iamyou8416 8 ชั่วโมงที่ผ่านมา

    Just had a biopsy. Waiting on the results. Been 24 days so hoping no news is good news.

  • @Hamigal
    @Hamigal 2 ปีที่แล้ว +6

    I was just diagnosed 2 days ago with NHL.....I'm listening

  • @jennas17
    @jennas17 10 วันที่ผ่านมา +1

    My mom was just diagnosed with B-cell follicular lymphoma grade 1.

  • @Mickielicious
    @Mickielicious 6 ปีที่แล้ว +12

    Thank you. These videos are the best that I've seen on TH-cam about lymphomas

  • @robbieharley1480
    @robbieharley1480 4 ปีที่แล้ว +14

    Thanks for a very informative videos I have been diagnosed with NHL and this has helped me gain more info.

    • @user-oc4od4sv7l
      @user-oc4od4sv7l 4 หลายเดือนก่อน

      How are you doing know

  • @sheilapatterson4140
    @sheilapatterson4140 3 ปีที่แล้ว +11

    I have appreciated this video Thankyou I have been in remission now for over 10 years. So be hopeful

    • @thickasabrick1000
      @thickasabrick1000 3 ปีที่แล้ว +1

      What kind of treatment did you get .

    • @sheilapatterson4140
      @sheilapatterson4140 3 ปีที่แล้ว +1

      chemotherapy and two years follow up of retuximab.

    • @GA-fz2wt
      @GA-fz2wt 3 ปีที่แล้ว +1

      Hi, great to hear this.
      Can I ask what stage you were diagnosed at 10 years ago?

    • @sheilapatterson4140
      @sheilapatterson4140 3 ปีที่แล้ว +1

      @@GA-fz2wt I was at stage 4 at the time. I had eight sessions of chemo and 2 years of rituximab infusion.

    • @GA-fz2wt
      @GA-fz2wt 3 ปีที่แล้ว +1

      @@sheilapatterson4140 oh I had the same treatment regime as you, 5 years ago. Currently receiving donors IV immunoglobulin infusions every 4 weeks for the past 2 years as well, due to immuno surpression, I'm always ill with repeated infections.
      I'm also Stage 4 Follicular. So it's very encouraging to know.
      Thanks for your reply. Best wishes to you. 💚

  • @wmpopper
    @wmpopper 4 ปีที่แล้ว +6

    Much Appreciation and Thanks.

  • @lisabullock7461
    @lisabullock7461 4 ปีที่แล้ว +4

    Very good information thank you

  • @KeepinYouUp07
    @KeepinYouUp07 3 ปีที่แล้ว +7

    Can MRNA technology be used to treat or prevent cancer? It's time for cancer treatments & research to get the same funding the MRNA covid vaccines did.

    • @thanhoaidoan9315
      @thanhoaidoan9315 ปีที่แล้ว

      Dịch sang tiếng việt nam

    • @sickboy8682
      @sickboy8682 3 หลายเดือนก่อน

      mRNA tech has caused more cancer than it has cured. I'd wait on that one a while!

  • @marietolley6550
    @marietolley6550 2 ปีที่แล้ว +9

    This is super helpful. I have an ENT appointment soon and I have a cervical lymph node swollen. Idk how long it’s been swelled but I found it on March 9th. It does hurt some days but others it doesn’t. Some days it’s firm and others it’s not. It’s so confusing

    • @mrl6863
      @mrl6863 2 ปีที่แล้ว +1

      Good luck. I hope it turns out to be ok. X

    • @maeri6040
      @maeri6040 2 ปีที่แล้ว +1

      Omg same… and similar timeline.

    • @damien69666
      @damien69666 ปีที่แล้ว +1

      What happened?

  • @Ladybird22373
    @Ladybird22373 2 ปีที่แล้ว +5

    I have a lump in my groin . It is small . But has grown slightly in 6 weeks . My dr told me to monitor it for 3 months . But I’m worried .

    • @artisansportsman8950
      @artisansportsman8950 ปีที่แล้ว +1

      Please get a second opinion, you can't be too carfull.

    • @Ladybird22373
      @Ladybird22373 ปีที่แล้ว +3

      @@artisansportsman8950 it actually became infected & I needed it drained last week . But the DRs wasn’t really interested in me saying I had this for 3 months. I feel much better but I’ve still a lump . They just brush you off

  • @annconforti9294
    @annconforti9294 2 ปีที่แล้ว +6

    What does it take to get a diagnosis? I have many swollen lymph nodes on my neck, my armpit, inside of my elbow, behind my knees. I have been dismissed by 2 Dr basically and the ER.

    • @IKIDIF
      @IKIDIF 2 ปีที่แล้ว +2

      Biopsy

    • @iamyou8416
      @iamyou8416 8 ชั่วโมงที่ผ่านมา

      It’s taken me 15 years 😢

  • @thebloodclinic563
    @thebloodclinic563 3 ปีที่แล้ว +1

    Really usefull

  • @be2anhtwhynotsmile219
    @be2anhtwhynotsmile219 6 ปีที่แล้ว +7

    Our family just discovered our loving 70-year-old mother is dx with follicular lymphoma-stage 2, just 6 months ago she was dx with chronic HepB with cirrhosis, osteoporosis, along with a few other chronic reversible diseases that we have been working on reversing with a strong plant-based diet, with no animal products. My family weighs my opinion high because I worked as a clinical hospital pharmacist and the only one with any medical knowledge. Because my mother has cirrhosis and NHL, I would like to ask for a second opinion for an expert pathologic review but ideally would like to find an oncologist that can help my mother recover in a natural way, without any harsh treatments. As a pharmacist in a clinial setting, i've seen the effects of immunosupressants, some saving lives, and some not so much-- I know my mother's weak body cannot handle any more medications. Would this be possible?

    • @LymphomaResearchFoundation
      @LymphomaResearchFoundation  6 ปีที่แล้ว +3

      Hello!
      Thank you for your message-- LRF is here to help. At your earliest convenience please contact our Helpline at (800) 500-9976 or helpline@lymphoma.org. Our trained professionals are available Mon-Fri to answer any questions you may have about your mothers diagnosis, available treatment options for her and even connect you or your mother with a buddy who has been through a similar situation.
      All the best,
      LRF

    • @martinmusondasinyangwe1853
      @martinmusondasinyangwe1853 8 หลายเดือนก่อน

      Hi what are you contact details

    • @martinmusondasinyangwe1853
      @martinmusondasinyangwe1853 8 หลายเดือนก่อน

      I am in Zambia, need to share information for advise

  • @reederang
    @reederang 3 ปีที่แล้ว +7

    Music is unnecessary and detracts

  • @holliss5
    @holliss5 3 ปีที่แล้ว +4

    I have two cancers non Hodgkin lymphoma and thyroid carcinoma,I had a hemi thyroid operation and have been told that I have to have the other side removed, as I also have lymphoma. The consultants can't decide which one is the most important. I am very upset about this I feel abandoned

    • @CONTINOUSLYABUNDANT
      @CONTINOUSLYABUNDANT 3 ปีที่แล้ว +1

      Well damn Beryl. I am here for you. How’s your support team? I’m sorry this is happening and I’m sending well wishes. You got this. Hopefully you’re beginning the process of having both treated.

    • @holliss5
      @holliss5 3 ปีที่แล้ว

      Thanks I've had the first R chop treatment for the lymphoma

  • @yudelifilpo5462
    @yudelifilpo5462 ปีที่แล้ว +1

    Wuaklindo jesu lebendiga Lisensiado. Jolje. Etamo edimwsion keestamos

  • @DoubleGauss
    @DoubleGauss 7 ปีที่แล้ว +18

    I am hoping that once CAR-T is approved (later this year) and the technology continues to mature, CAR-T will become standard induction therapy even for non chemo refractory indolent lymphoma. There's a good chance that for many patients it will be an outright cure.

    • @Writingwhatever
      @Writingwhatever 6 ปีที่แล้ว +4

      There have been great discoveries made even in the few months since this video was made. Dr. Evans was right when he mentioned those studies. I recently finished the retuximab treatment, awaiting the results of a scan in December. It all sounds very optimistic.

    • @rami.nguyen
      @rami.nguyen 4 ปีที่แล้ว

      Any news on CAR-T development? I've been looking into it later before seeing this video but I've not heard them mention Follicular Lymphoma. I've been diagnosed with stage 3-4 but my specialist isn't very keen on Immunotherapy. I'm on the watch and observe for now and was told I should have 15-20 years to live but the internet is telling me 5-7. Where can you find really good info? I'm sort of doing water fasting with lots of turmerics, garlic nearly zero sugar, carbs dite as I refused chemo. Think I made the right decision? All the best to you

    • @rami.nguyen
      @rami.nguyen 4 ปีที่แล้ว

      Forgot to mention that my side effects are fatigue and gum bleeding. I'm also 30 y.o

    • @alittleofthislittleathat351
      @alittleofthislittleathat351 4 ปีที่แล้ว

      @@rami.nguyen hey bud how are things going with you now, I need to get to a doctor for a hard lump on my right side of my neck. Thanks

    • @rami.nguyen
      @rami.nguyen 4 ปีที่แล้ว

      @@alittleofthislittleathat351 Hi Brian, hope you're well. Things are fine with me ATM, I would admit that I was better before with the fasting and low carb/sugar diet. There's some slow growth and spreading too. I'm guessing you're getting a biopsy out, that's good! good luck man

  • @user-eg8ht4im6x
    @user-eg8ht4im6x 2 ปีที่แล้ว +1

    Good video please remove music, it’s really distracting and makes video unwatchable fir us with Autism!

  • @631ahmadsabbir
    @631ahmadsabbir 2 ปีที่แล้ว +1

    Please help me my lymphoma treatment

    • @hudaali4554
      @hudaali4554 ปีที่แล้ว

      السلام عليكم
      كيف حالكم الان

  • @NAaaa960
    @NAaaa960 5 ปีที่แล้ว +4

    I'm only 22 years old and I've had a lump on my right side of the neck since last November...I an now noticing my eyelids and face are more puffy/swollen...I also feel a pressure on the back of my head on the right side...I've had a CT scan a couple of months ago and all they said Is its lymph nodes

    • @marshhen
      @marshhen 5 ปีที่แล้ว +5

      Have them biopsy one. For many times lumps on my neck were investigated as thyroid problems and my dr only looked at blood tests. He did not really know what he was talking about. Finally another doctor insisted I get biopsy of the lump. Non hodgkins lymphoma was found they could treat it. I do not want to scare you , it could be nothing but do not give up until you have a biopsy result. Ideally ask for full biposy, not just needle aspiration. Good luck

    • @SalehMazumder747
      @SalehMazumder747 4 ปีที่แล้ว +2

      Go to biopsy as soon as possible

    • @alittleofthislittleathat351
      @alittleofthislittleathat351 4 ปีที่แล้ว +1

      How are you doing now please, I have very similar simptums. thanks

    • @NAaaa960
      @NAaaa960 4 ปีที่แล้ว +3

      @@alittleofthislittleathat351 well thank God, I'm still alive....but the lump is still there....it usually changes size :/

    • @thisismyname007
      @thisismyname007 3 ปีที่แล้ว

      Could be Hodgkin’s. If so, you won the “lottery” in that Hodgkin’s has a good outcome.

  • @christiannheartwood6468
    @christiannheartwood6468 6 ปีที่แล้ว +2

    Ok. Have stage 4 NHL follicular and CVID. Where do I get info on 2 together and prognosis? Have had 3 pneumonias so far. Wondering if I am doing all I can to recover.

    • @LymphomaResearchFoundation
      @LymphomaResearchFoundation  6 ปีที่แล้ว +1

      Hi Christiann-- thank you for your comment! At your earliest convenience please contact our LRF Helpline at 800-500-9976 or helpline@lymphoma.org. Our trained staff can help to answer any questions you may have regarding lymphoma diagnosis, treatment options and clinical trials.

    • @johnbladykas4454
      @johnbladykas4454 6 ปีที่แล้ว +2

      Recently diagnosed with cvid and Sclerosing mesenteritis after four admonial hernia surgeries.i am now facing Liver biopsy. It’s mind over matter and it doesn’t matter.
      That being said my need is the thirst for knowledge of these diseases is over whelming.
      Aniexty is the challenge of the unknown

    • @Duffan1
      @Duffan1 5 ปีที่แล้ว

      Same here :( so scared

    • @OkayYTo5
      @OkayYTo5 5 ปีที่แล้ว +1

      Hey how big were your lumps if you don’t mind me asking and how quick did they grow?

    • @alittleofthislittleathat351
      @alittleofthislittleathat351 4 ปีที่แล้ว

      @@LymphomaResearchFoundation what state do you guys treat, I'm in Minnesota. Thank you.

  • @marksheehan8026
    @marksheehan8026 ปีที่แล้ว

    There's actually other options that aren't toxic that do treat lymphoma lve been on it and have meet others..
    Massive stories out there and research have gone into it.. though lam not kicking what he's saying ..

  • @VTBC
    @VTBC 2 ปีที่แล้ว

    Weight loss

  • @TheJenniferben
    @TheJenniferben 6 ปีที่แล้ว +13

    How about treating cancer as a metabolic disease (rather than a genetic disease)? Correct the cause (the deficiencies and toxicities), and support the immune system (rather than injuring it further), using things like the ketogenic diet, reduction of stressors and and correcting hormonal and vitamin imbalances? These chemical therapies just are not working well and patients are suffering. Please study nutrition and how cellular energy works in normal and cancerous cells. The cancer industry and pharmaceutical companies may not make as much money, but patients will have a higher quality of life and maybe we can get the nations debt down a bit.

    • @gymnastm1
      @gymnastm1 6 ปีที่แล้ว +7

      How would treating follicular lymphoma as a metabolic disease act as a treatment might I ask? Follicular lymphoma is caused by a gene translocation ( t(14;18) to be exact)and as a result, you have overexpression of the bcl-2 gene. This gene prevents natural cell death of B cells (cells that are located in the follicle which is a part of a lymph node). All unhealthy cells should die naturally and when you don't have this natural cell death, you see a malignant (cancerous) increase in size of the lymph nodes. Eventually, the lymph nodes are so saturated with these cells they are no longer functioning properly as immune system protection sites. Based on your comment, there just is no way that diet is going to change a gene mutation.

    • @vwdances
      @vwdances 6 ปีที่แล้ว +3

      Look up Johanna Budwig. She was a scientist with a PhD in physics and later when she was around 50 years old she went back to school and got her MD license. She healed thousands of cancer patients over a 50-year period with a 90% cure rate. Her therapies included certain organic foods, mixtures of cottage cheese and flax oil, exercise for those who were able to, massage with specific oils, small portions of each day spent out in the sun, and other natural and organic methods. She went to the hospitals and often took the sickest cancer patients, stage 4, and maintained her 90% cure rate. She was nominated seven times for the Nobel Peace Prize but was pressured each time to include chemo and radiation with her natural therapies. She refused and thus never received the Nobel Peace Prize. She was the first one to speak out about the dangers of trans fats. The food companies and pharmaceutical companies took her to court 30 times and she won every case. There's another doctor Gerson that I've heard also had great success with natural therapies. Look up the Gerson Therapy. There are people all over the Internet and TH-cam who are telling their stories about how they conquered cancer with completely natural methods. They are not selling anything. They don't own companies that are trying to sell natural anti-cancer methods. They're just trying to get the word out to help other cancer patients learn that there are natural alternatives. Doctors earn thousands of dollars in kickbacks for each single chemotherapy treatment that they give every cancer patient of theirs. I read an example where a doctor might pay a pharmaceutical company $5,000 for a single chemo treatment, then they'll turn around and charge the customer $12,000 for that single treatment! I've just been diagnosed with follicular b-cell lymphoma so I'm still learning about Dr. Budwig. God bless Dr. Evens for searching for non-toxic treatments for cancer patients.

    • @gymnastm1
      @gymnastm1 6 ปีที่แล้ว +3

      Vicki so sorry to hear about your diagnosis. I have a family member with follicular b-cell lymphoma and they have completed their treatment with rituximab and chemo and are now in remission. I hope the best for you and will keep you in my prayers.

    • @foxfur8327
      @foxfur8327 4 ปีที่แล้ว +1

      @@vwdances , I did try this but burst into permanent several cysts in neck, groin, and abdomen after awhile. Someone said that Lyme patients should avoid any kind of oil treatment so I was concerned about the flax. Did improve extremely dry hair and nails, but I think I'm too far gone for any other treatment.
      Was never diagnosed but did get a few broken spinal and rib bones for no reason, lost 100 lb in few weeks, have thyroid nodules, pituitary adenoma, having problems with eyes after getting a frozen face on both sides, deformed bones all over, massive night sweatsm shirt fevers, and so on. They think it's metastatic breast cancer but I didn't have a biopsy for many years so am not sure because no MRI detected that before. Synovial cyst in spine recently exploded. Both red and white platelets have been dropping for ages now and have high calcium.
      Am on antibiotics now for all the cysts plus a really sore throat and ear fir a few weeks. I think that whatever it is, is going to the brain now not just because of frozen face and sore ear but also because of sore throat, worse eye focussing and a bit of memory deterioration, (but only forgetting names). Have Lyme and Epstein Barr. Back and ribs break repeatedly on same spot or else I badly damage muscles or disk slips from the compressed spine. Made extremely loud grinding and popping noise a few months ago.
      Low oxygen, fast heart rate, massive exposure to radiation and agents orange, white and purple in Canada. Will be eligible for an MRI early next year but only of head. Sounds like myeloma to me. Large lump under arm too but have had that for years and some days it is small and not detectable. Cysts all now turning hard. Family member had mycosis fungoides. Heart quivers sometimes lately but am not allowed EKG because I had one last year but no doctor will tell me if I have a bad heart or not. Have asked a half a dozen times.
      Too many health problems over the years which were just classified as immune system disorder for a few years. Not sure why they think this is metastatic cancer without a biopsy. Am esoecially afraid of biopsy now because they might have to do 25 different spots and after so much overradiation from accidents in medical tests already I don't want CT or Pet scan for sure so that's likely why they won't refer to specialists. There is nothing they can do. Sure wish DNA tests could tell. Unfortunately, no one has confidence in chemo because the poisons and extra radiation heal only temporarily and then come back with a vicious fury after a few months or years so those things seem to kill many more people than they save. This disease is just too complicated and would be too painful, expensive and harmful to diagnose.

    • @SalehMazumder747
      @SalehMazumder747 4 ปีที่แล้ว +2

      Dosnt work ...Stop these nonsense don't play with people lives.

  • @raps1046
    @raps1046 4 ปีที่แล้ว

    To me it sounds like a lazy doctor who is not proactive fulfilling the status quo, of just getting by and just collects paycheck to repeat the same clap trap of hem and hawing about nothing new.

    • @taylorscott7402
      @taylorscott7402 3 ปีที่แล้ว

      4 years ago I was diagnosed with LYMPHOMA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including LYMPHOMA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for LYMPHOMA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from LYMPHOMA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.