I’m happy to have found this channel. Dr explained everything so well. I’ve had a lump by my left collarbone. A needle biopsy showed no cancer, but the core biopsy showed Follicular Lymphoma. I am to meet with the Hematologist/Oncologist next week. At 74 years old, I don’t know what will be my options. I also have rampant papilloma in my mouth, which now seems like surgery will be put on the wayside for now.
Recently diagnosed with Follicular NHL..Completed 20 Radiation treatments now will see. Having scan on 2/22/2023. I'm very hopeful. I will face the news and cont. to fight if necessary.
Stay hopeful!! I was diagnosed in September with NHL Indolent B cell. Started after I banged my ankle on my screen door. Hematoma never resolved. It was looked at by at least 5 Dr's. No biggie until a Dr finally did biopsy. Had 1 radiation tx in December. Waiting for next scan. A cancer diagnosis is mind blowing for sure, however, I'm doing my best to live my life without letting my diagnosis consume me. Hang in there!!
I'm grade I stage II but the last two years I experience extreme fatigue and shortness of breath, so we decided to start chemo R-CHOP. My lymph nodes are located in groin and abdominal area.
Can I please ask about the lumps in groin, like how many and size and feel please? I am worried I have it due to symptoms like night sweats and the ones I have in my right groin. I went to Dr and my blood work came back normal so has dismissed me which worries me. Thanks, I have about 4 in my groin. 2 are hard and small like rocks, other is about an inch and more smooth but firm. none move and all painless.
I have low grade follicular cancer and thyroid cancer too, I was just diagnosed and feel as though I have been forgotten, with the covid virus and christmas i am waiting to hear from the consultants
Thank you for this information. I am doing WW with stage 3 FL age 58 and I heard when it comes to Rituximab one must be able to tolerate steroids. I have allergy to steroids which causes swelling and itching, hives... Is there any way around that allergy to use this therapy? It is too late for radiation and chemo isn't an effective option.
can you PLEASE speak specifically to Non-Hodgkins Follicular Lymphoma? I can NOT find any videos that deal with this type of Lymphoma. I am 11 years living with it and need more information. I think I am out of remission and need more information. Thank you
Hello @TheAndibk - Follicular lymphoma is a form of non-Hodgkin lymphoma (NHL) that arises from B-lymphocytes, making it a B-cell lymphoma. This lymphoma subtype accounts for 20 to 30 percent of all NHL cases. Please visit www.lymphoma.org for more information.
mine dad was diagnosed with low grade lymphoma and tata doctors said to wait till it becomes high grade lymphoma..When it came to do treatment he expired today
i think i have this , my legs itch like crazy but it feels like its under the skin, i had high grade t cell lymphoma last year so im wondering if mine has changed. ...try an anti histamine as mine seemed to get worse with a hot bath (which sounds like histamine release )
I have a lump or mass on my rt collarbone its been sore and bothers me when I side sleep n at times throughout the day. I don't think its anything to worry about, but it hasn't gone away, I've noticed this past 2 months.
Up to 60% of patients can change to Diffuse Large B Cell Lymphoma which is more Agressive. Also many secondary diseases can be triggered by Follicular Lymphoma, so taking such a Blasé attitude to it is concerning. Misdiagnosis or not being diagnosed is common because many doctors do not have any level of suspicion. Many will wait until it is blatantly obvious and has spread throughout the body such as bone marrow and spleen. There are still many people whom have disabling symptoms which are often ignored by doctors and unfortunately this type of dismissive video promotes leaving it and letting it spread. Some will spread faster, not all are the same.
I’m happy to have found this channel. Dr explained everything so well. I’ve had a lump by my left collarbone. A needle biopsy showed no cancer, but the core biopsy showed Follicular Lymphoma. I am to meet with the Hematologist/Oncologist next week. At 74 years old, I don’t know what will be my options. I also have rampant papilloma in my mouth, which now seems like surgery will be put on the wayside for now.
Recently diagnosed with Follicular NHL..Completed 20 Radiation treatments now will see. Having scan on 2/22/2023. I'm very hopeful. I will face the news and cont. to fight if necessary.
Stay hopeful!! I was diagnosed in September with NHL Indolent B cell. Started after I banged my ankle on my screen door. Hematoma never resolved. It was looked at by at least 5 Dr's. No biggie until a Dr finally did biopsy. Had 1 radiation tx in December. Waiting for next scan. A cancer diagnosis is mind blowing for sure, however, I'm doing my best to live my life without letting my diagnosis consume me. Hang in there!!
More power to you mam
Close to midnight, just want to thank you for sharing this video.
Thank you Dr. Rutherford. i envy your patients!
Thank you for such an informative video - really appreciate the professional approach .. .. 13:42
I thought this was a well presented, useful overview of follicular lymphoma - thanks!
Excellent video. I just got diagnosed with low grade lymphoma. Best video I have watched this far
Hope you are doing well.
Hope you are doing well, how's it now?
I have it too, as well a Parkinson Disease. Tough going currently.
Excellent video. Very nicely explained by Dr. Rutherford.
I'm grade I stage II but the last two years I experience extreme fatigue and shortness of breath, so we decided to start chemo R-CHOP. My lymph nodes are located in groin and abdominal area.
Can I please ask about the lumps in groin, like how many and size and feel please? I am worried I have it due to symptoms like night sweats and the ones I have in my right groin. I went to Dr and my blood work came back normal so has dismissed me which worries me. Thanks, I have about 4 in my groin. 2 are hard and small like rocks, other is about an inch and more smooth but firm. none move and all painless.
I have low grade follicular cancer and thyroid cancer too, I was just diagnosed and feel as though I have been forgotten, with the covid virus and christmas i am waiting to hear from the consultants
What kind of treatment did you do or are you on watch and wait
Thank you for this information. I am doing WW with stage 3 FL age 58 and I heard when it comes to Rituximab one must be able to tolerate steroids. I have allergy to steroids which causes swelling and itching, hives... Is there any way around that allergy to use this therapy? It is too late for radiation and chemo isn't an effective option.
can you PLEASE speak specifically to Non-Hodgkins Follicular Lymphoma? I can NOT find any videos that deal with this type of Lymphoma. I am 11 years living with it and need more information. I think I am out of remission and need more information. Thank you
Hello @TheAndibk - Follicular lymphoma is a form of non-Hodgkin lymphoma (NHL) that arises from B-lymphocytes, making it a B-cell lymphoma. This lymphoma subtype accounts for 20 to 30 percent of all NHL cases. Please visit www.lymphoma.org for more information.
I have this also
mine dad was diagnosed with low grade lymphoma and tata doctors said to wait till it becomes high grade lymphoma..When it came to do treatment he expired today
Sorry to read and for your loss
I'm so sorry!! May his memory be a blessing.
I’m so sorry 💔
Sorry for your loss. Many have been left too long.
How many years survive
What the one that juts cause itching itching itching this is so horrible this makes me feel like crying when I’m like this
i think i have this , my legs itch like crazy but it feels like its under the skin, i had high grade t cell lymphoma last year so im wondering if mine has changed. ...try an anti histamine as mine seemed to get worse with a hot bath (which sounds like histamine release )
I am 83 this month Feb 2021
I have a lump or mass on my rt collarbone its been sore and bothers me when I side sleep n at times throughout the day. I don't think its anything to worry about, but it hasn't gone away, I've noticed this past 2 months.
Get it looked at now. That’s how I found out I had cancer.
I listened to the video but must have missed it.. What is it that you treat the patient with when you don't administer chemotherapy?
Read the info below the video
Up to 60% of patients can change to Diffuse Large B Cell Lymphoma which is more Agressive. Also many secondary diseases can be triggered by Follicular Lymphoma, so taking such a Blasé attitude to it is concerning. Misdiagnosis or not being diagnosed is common because many doctors do not have any level of suspicion. Many will wait until it is blatantly obvious and has spread throughout the body such as bone marrow and spleen. There are still many people whom have disabling symptoms which are often ignored by doctors and unfortunately this type of dismissive video promotes leaving it and letting it spread. Some will spread faster, not all are the same.