The Myositis Association, Patient stories, Polymyositis

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  • เผยแพร่เมื่อ 25 พ.ย. 2014
  • Dale Scott, Harrisburg, Pennsylvania

ความคิดเห็น • 17

  • @michaellaw3931
    @michaellaw3931 7 ปีที่แล้ว +7

    I have been diagnosed with Polymyosits as well. It is very difficult to live with but God bless us all.

  • @bigdlove1414
    @bigdlove1414 3 ปีที่แล้ว +1

    God bless you and whoever is reading 💕

  • @johnharper8446
    @johnharper8446 7 ปีที่แล้ว +5

    I was told by a P.A. that i was just getting old and i lived a hard life with a smile on his face and he said thiers nothing i can do but rest. 3 months later i was diagnosed with polymyositis. Its been 2 years now and im still in hell, Thanks American Medicine.

    • @michaellaw3931
      @michaellaw3931 7 ปีที่แล้ว

      John Harper I was diagnosed with Polymyosits too and it is hell. I hope you are doing better sir.

    • @mtsilvagt
      @mtsilvagt 6 ปีที่แล้ว

      John Harper +you should've gone to other doctors .

    • @mtsilvagt
      @mtsilvagt 6 ปีที่แล้ว

      Michael Law +I was diagnosed 7mos ago, and yes it is very much a living hell . hope you are doing better .

    • @MichaelRoachWV
      @MichaelRoachWV 5 ปีที่แล้ว

      I'm almost three years into my journey of going to other doctors. Hopkins, UVA, WVU, and Mayo Clinic in Minnesota for a month. My issues are thought to be neurological, but now it's looking like myositis is possible

    • @ayazokz8228
      @ayazokz8228 5 ปีที่แล้ว

      Plz help me i also suffering Polymyositis my WhatsApp number +971522797937

  • @sakurafarris7511
    @sakurafarris7511 3 ปีที่แล้ว +1

    I'm getting tested for this finally on Monday, its been a journey and I'm so scared. Thank you for sharing your experience.

  • @lorlaine9013
    @lorlaine9013 3 ปีที่แล้ว +1

    Thank you so much for sharing! I hope you're doing well today God bless xx

  • @krissyrabbit515
    @krissyrabbit515 8 ปีที่แล้ว +6

    Thank you for sharing your story. Would you be able to share what the "special test" was that you had done to verify Myositis?

  • @pappaciccia105
    @pappaciccia105 6 ปีที่แล้ว +2

    Thank you, Its taken 2 years for a diagnosis.

    • @mtsilvagt
      @mtsilvagt 6 ปีที่แล้ว

      Pappa Ciccia +I was diagnosed 7mos ago and it is very life changing, hope you are better .

  • @hannahmichelle1210
    @hannahmichelle1210 3 ปีที่แล้ว +1

    What blood test indicated it for her?

  • @robertwilkins2655
    @robertwilkins2655 9 ปีที่แล้ว +12

    you had all these test done until you had this one special test done, wouldn't it be a good thing to tell your viewers what that test was so others don't have to run around like you did and could ask their doctors to perform that test.

    • @PetiteLapinChouette
      @PetiteLapinChouette 7 ปีที่แล้ว

      Robert Wilkins I'm going to guess its the CPK blood test

    • @mtsilvagt
      @mtsilvagt 6 ปีที่แล้ว

      Bronwyn H +CPK tests are routinely done .