Thank you Dr. Rohit Aggarwal for this information. I was diagnosed 7-19 and still learning day by day what is happening to me. I have a good doctor but you are the one that makes this understandable for me. With all the reading I have done, you are the one that makes the puzzle pieces fit. Please continue, I’m counting on you.
This is a great primer, for people wondering what they should be asking for from their doctor, when often the doctor in many cases has never seen anyone with myositis. However, I would like you to address the incorrect diagnosis. In my case, the wrong type of myositis, by a medical team not familiar enough with the signs, but many people are told they have ALS, or MS, or even the famous "it's all in your head, you look fine." I think this is unfortunately all too common
@@Myositis101I look forward to that video. I have just been tested for mnd but they say I don't have it. My symptoms seem like myositis. Would a mnd neurologist be able to recognise myositis?
I pray 🙏🏼 for a great rheumatologist, neurologists, radiologists, dermatologists, surgeons. This kind of conditions require different specialists that are connected. I feel weakness and the feel like hard as if I had exercise a lot. :-( in my arms, legs, pain, chest pain, etc. I have another autoimmune condition and I know it's possible to have more medical conditions at the same time.
I was diagnosed with JDM in 1980 when I was 10. I have been in remission for decades (I am 50), but I have had several flares of psoriasis recently. I had a punch biopsy to be sure that it was psoriasis and not DM. My ALT and AST are "unusually high" and have caused my Dermatologist to stop my medication because she thinks it's damaging my liver. I'm wondering if those enzymes have been elevated since my diagnosis of JDM and are my "normal". I have been to a GI doc and had a negative MRI of the liver. Please - do those levels (AST and ALT) remain high forever, or could this be due to a reoccurrence of my JDM?
If you have positive polymyositis antibodies do you still need positive ck and emg for diagnosis? My 13yr old daughter has had chronic muscle weakness and in severe cases accompanied difficulty breathing, u able to hold her head up etc. She was positive for anti jo antibodies but is not taking seriously by specialists because her ck levels are normal.
Doctor, thank you for explaining about the diagnosis. It was very clear and easy to understand. Can you recommend any doctor in bangalore who completely knows indepth about myositis ?
Hello, I am trying to find information on Myositis unrelated to auto immune diseases. I have found that this can occur but no matter how I search for more information, only Myositis as autoimmune disease comes up. Are you able to direct me to a source on this? I’ve been completely inactive due to fibromyalgia for a few years. I started, very slowly, building up a walking routine to a few blocks most days and within a couple of months had diffuse, bilateral lower leg muscle fatigue/pain that resulted in discontinuation of this activity. I could not go on. So far, there is no relation to my knees or ankles. I go to PT hoping to resolve it. I appreciate any response you can give. Thank you!
I think I have Myositis but I am based in Canada and I asked about it and I was told because my CK levels are normal, I don’t have it, no further tests were done. I have extreme pain and fatigue and I have weakness in my shoulder muscles, chest and back
I've been dealing with inclusion myositis symptoms for the better part of three years and more recently they become much more severe. I'm serving as an active member in the military right now and it's putting a huge hamper on my capability to do my job. (To the point that I have been landed) I've been working with a neurologist and ruled out many other autoimmune disorders or conditions... Recently had some more extensive blood work taken which apparently is going to take over a month to get the results back for. (Some of which had to leave my province) My symptoms first started to display themselves after my vaccination, cv19 to be specific. I would have flare-ups that would last a few months and then would go into remission for a few months. Now I'm at the point where I'm having flare-ups on a daily basis and the more I push my activity level the more symptoms display. Most recently I'm starting to have trouble swallowing and breathing and I'm quite worried that this is progressing at an uncontrollable rate versus my current treatment plan. Free healthcare is great... Until it isn't
I am 43 years have myositis with muscle weak ness n chronic pain in joints.I have severe hair falls from many years. Is this hair fall is also due to this .Can it be reversed with treatment.
I have had all the tests for myositis including the biopsy. The only thing i don't have is the skin rashes, but everything else. They say that it's not myositis and they don't know what it could be.Help. For four years I have had the fall, difficulty getting up as well as the pain. I have to walk with a cane.Again, HELP.l
My myositis profile test shows Mi_2B, PL_7 are positive and SAE 1 in borderline but all other test shows negative(Ana, cpk , CRP, LDH, ANCA). I have hand and leg weakness and pain. My Rhuematology doctor not yet started any treatment other than some vitamin tab. Sir kindly guide me.
Can we use homoeopathic medicine rhus to or arnica Montana for inflation and pain along with allopathy in 6 and half years old just 3 days back with 103 temperature and dr gave augmentin and next day diagnosed mystasis no gave steroid reply plz
Thank God Almighty for this phenomenal Dr who cares for people who are suffering 😢. God Almighty protect and prosper you. ❤
I can't tell you how grateful I am for your videos. I am in the process of being diagnosed, and they're extremely helpful. Thank you!
Thank you Dr. Rohit Aggarwal for this information. I was diagnosed 7-19 and still learning day by day what is happening to me.
I have a good doctor but you are the one that makes this understandable for me. With all the reading I have done, you are the one that makes the puzzle pieces fit.
Please continue, I’m counting on you.
Susan your comment is very encouraging for me to keep doing this week by week.
This is a great primer, for people wondering what they should be asking for from their doctor, when often the doctor in many cases has never seen anyone with myositis. However, I would like you to address the incorrect diagnosis. In my case, the wrong type of myositis, by a medical team not familiar enough with the signs, but many people are told they have ALS, or MS, or even the famous "it's all in your head, you look fine." I think this is unfortunately all too common
I agree there are many missed diagnosis. I will address common pitfalls in diagnosis by physicians in a separate video.
@@Myositis101I look forward to that video. I have just been tested for mnd but they say I don't have it. My symptoms seem like myositis. Would a mnd neurologist be able to recognise myositis?
The question is do you want to go to a Dr who has never seen myositis or go to an expert like Dr. Aggarwal
He’s BRILLIANT
So glad that this info is getting out to uninformed people. It's GREAT! Keep up the vids!
Thanks a lot Kevin
Thanks for the informative video.
Can dry mouth and eyes at night be a symptom of Myositis? Thanks
Thank you.
Thank you so much doctor
Your videos are VERY helpful!!
I pray 🙏🏼 for a great rheumatologist, neurologists, radiologists, dermatologists, surgeons. This kind of conditions require different specialists that are connected. I feel weakness and the feel like hard as if I had exercise a lot. :-( in my arms, legs, pain, chest pain, etc. I have another autoimmune condition and I know it's possible to have more medical conditions at the same time.
Thank u....
I was diagnosed with JDM in 1980 when I was 10. I have been in remission for decades (I am 50), but I have had several flares of psoriasis recently. I had a punch biopsy to be sure that it was psoriasis and not DM. My ALT and AST are "unusually high" and have caused my Dermatologist to stop my medication because she thinks it's damaging my liver. I'm wondering if those enzymes have been elevated since my diagnosis of JDM and are my "normal". I have been to a GI doc and had a negative MRI of the liver. Please - do those levels (AST and ALT) remain high forever, or could this be due to a reoccurrence of my JDM?
Thank you Doctor for your wonderful explanations. Do you recommend seeing a neurologist for inclusion body myositis
What diseases have extreme muscle fatigue especially in the back muscles?
IS THERE ANY MEDICINE, FOOD SUPPLEMENT OR VITAMINS THAT YOU CAN GIVE US!
Can you recommend a rheumatologist in the Houston area?
Neuromuscular doctor also - thank you!
If you have positive polymyositis antibodies do you still need positive ck and emg for diagnosis? My 13yr old daughter has had chronic muscle weakness and in severe cases accompanied difficulty breathing, u able to hold her head up etc. She was positive for anti jo antibodies but is not taking seriously by specialists because her ck levels are normal.
Doctor, thank you for explaining about the diagnosis. It was very clear and easy to understand. Can you recommend any doctor in bangalore who completely knows indepth about myositis ?
Chanre rheumatology and immunology center
Thank you doctor
Im patient there
Even i have myositis
Hello, I am trying to find information on Myositis unrelated to auto immune diseases. I have found that this can occur but no matter how I search for more information, only Myositis as autoimmune disease comes up. Are you able to direct me to a source on this? I’ve been completely inactive due to fibromyalgia for a few years. I started, very slowly, building up a walking routine to a few blocks most days and within a couple of months had diffuse, bilateral lower leg muscle fatigue/pain that resulted in discontinuation of this activity. I could not go on. So far, there is no relation to my knees or ankles. I go to PT hoping to resolve it. I appreciate any response you can give. Thank you!
I think I have Myositis but I am based in Canada and I asked about it and I was told because my CK levels are normal, I don’t have it, no further tests were done. I have extreme pain and fatigue and I have weakness in my shoulder muscles, chest and back
Hi there .. any update on your situation ? I'm going through something similar but I keep getting told it's in my head
@@zainabshaikh1137howz u now?
I've been dealing with inclusion myositis symptoms for the better part of three years and more recently they become much more severe. I'm serving as an active member in the military right now and it's putting a huge hamper on my capability to do my job. (To the point that I have been landed) I've been working with a neurologist and ruled out many other autoimmune disorders or conditions... Recently had some more extensive blood work taken which apparently is going to take over a month to get the results back for. (Some of which had to leave my province) My symptoms first started to display themselves after my vaccination, cv19 to be specific. I would have flare-ups that would last a few months and then would go into remission for a few months. Now I'm at the point where I'm having flare-ups on a daily basis and the more I push my activity level the more symptoms display. Most recently I'm starting to have trouble swallowing and breathing and I'm quite worried that this is progressing at an uncontrollable rate versus my current treatment plan. Free healthcare is great... Until it isn't
I am 43 years have myositis with muscle weak ness n chronic pain in joints.I have severe hair falls from many years. Is this hair fall is also due to this .Can it be reversed with treatment.
Hi..I'm 43 and have myositis with muscle weakness, I'm currently weaning off prednisone and I've heard people say this causes temporary hairloss.
My hair has started to thin and I'm losing more hair than normal.
I was dx almost 2yrs ago now im kinda at standstill bc they dont know what else to do for me.
Myositis ossificans problem
Sir, radiotherapy is needed before surgery. Sir please reply.
Do grottons papules come and go with flares? And do they always mean Dermatomyositis? Or can they come without muscle disease?
Regarding CK, can your numbers move from say 22 to 105 over time when having myositis? I assume 105 is normal range.
My sis in law has diagnosed by muscles weakness she could not hold any thing or even cutting please what is the cure and treatment of this disease
I have had all the tests for myositis including the biopsy. The only thing i don't have is the skin rashes, but everything else. They say that it's not myositis and they don't know what it could be.Help. For four years I have had the fall, difficulty getting up as well as the pain. I have to walk with a cane.Again, HELP.l
Tq
Sedrate 116
Titer 1:160
Crp 11.1
Myositis?
Gibt es nichts in Deutsch?
My myositis profile test shows Mi_2B, PL_7 are positive and SAE 1 in borderline but all other test shows negative(Ana, cpk , CRP, LDH, ANCA). I have hand and leg weakness and pain. My Rhuematology doctor not yet started any treatment other than some vitamin tab. Sir kindly guide me.
CANT AFFORD FOR THOSE TEST!
Can we use homoeopathic medicine rhus to or arnica Montana for inflation and pain along with allopathy in 6 and half years old just 3 days back with 103 temperature and dr gave augmentin and next day diagnosed mystasis no gave steroid reply plz
WE'RE DEAD! IF WE DONT HAVE MONEY FOR THOSE TEST!
In hindi